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Making waves: what Mary Glover taught us! 掀起波澜:玛丽·格洛弗教我们的!
Pub Date : 2001-12-01
K McEwen
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引用次数: 0
Review article: altered states of consciousness, theories of recovery, and assessment following a severe traumatic brain injury. 回顾文章:意识状态的改变,恢复的理论,和评估后的严重创伤性脑损伤。
Pub Date : 2001-09-01
D Duff

The causes and consequences of severe traumatic brain injury are reviewed, including mechanical injury and neurochemical changes following focal and diffuse injuries. A discussion of terminology seeks to clarify current nomenclature and descriptions of behaviours during emergence from coma. Theories of recovery following severe brain injury are reviewed including diaschisis, plasticity and compensation, redundancy, environmental regulation, and excess disability. Several assessment tools that have been recommended for use with this population of individuals in an altered state of consciousness following coma are discussed and critiqued. They include the Glasgow Coma Scale, Ranchos Los Amigos Levels of Cognitive Functioning Assessment Scale, Western Neuro Sensory Stimulation Profile, Coma Near Coma Scale, Freeman Questionnaire, and the Sensory Modality Assessment Rehabilitation Technique.

回顾了严重创伤性脑损伤的原因和后果,包括机械性损伤和局灶性和弥漫性损伤后的神经化学变化。对术语的讨论旨在澄清当前的术语和昏迷苏醒期间行为的描述。本文综述了重型脑损伤后恢复的理论,包括脑残障、可塑性和补偿、冗余、环境调节和过度残疾。对昏迷后意识状态改变的人群推荐使用的几种评估工具进行了讨论和批评。它们包括格拉斯哥昏迷量表、Ranchos Los Amigos认知功能评估量表、西方神经感觉刺激量表、昏迷近昏迷量表、Freeman问卷和感觉形态评估康复技术。
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引用次数: 0
Unintentional traumatic brain injury in children: the lived experience. 儿童意外创伤性脑损伤:生活经验。
Pub Date : 2001-09-01
J Chisholm, B Bruce

Brain injury is a major cause of injury death and long-term neurological impairment in children often requiring long-term support. Despite the significance and frequency of such injuries, very little is known about the circumstances of these injuries, the long-term outcomes and family support needs. In this pilot study of 10 families of children with traumatic brain injury, participants described a variety of factors which contributed to their child's injury (inattentiveness, unfamiliarity, developmental level, lack of protective gear, invulnerability, peer pressure, environmental hazards and lack of supervision). As a result of their child's injury, family members described fundamental shifts in how they view life and that the roles and responsibilities of family members changed drastically. Study families experienced sustained uncertainty and described the impact on family relationships. While social support was clearly a mediating factor, families described the need for ongoing support and services to help them adapt to new roles, cope with new challenges, and manage sequellae such as post-traumatic headaches, epilepsy, learning difficulties and behavioural problems. The study findings represent an initial attempt to develop knowledge upon which focussed injury prevention interventions can be developed. Furthermore, this information will assist in the determination of appropriate health, rehabilitative, and educational support services for children with brain injuries. Involving families in this way will enhance the implementation of practical and useful support services for families of children with brain injuries.

脑损伤是儿童受伤死亡和长期神经损伤的主要原因,往往需要长期支持。尽管这种伤害的重要性和频率,但对这些伤害的情况,长期结果和家庭支持需求知之甚少。在这项针对10个创伤性脑损伤儿童家庭的试点研究中,参与者描述了导致他们孩子受伤的各种因素(注意力不集中、不熟悉、发育水平、缺乏防护装备、无懈可击、同伴压力、环境危害和缺乏监督)。由于孩子受伤,家庭成员描述了他们对生活的看法发生了根本性的转变,家庭成员的角色和责任也发生了巨大的变化。研究家庭经历了持续的不确定性,并描述了对家庭关系的影响。虽然社会支持显然是一个中介因素,但家庭描述需要持续的支持和服务,以帮助他们适应新的角色,应对新的挑战,并处理创伤后头痛、癫痫、学习困难和行为问题等后遗症。研究结果代表了初步的尝试,以发展知识,重点伤害预防干预措施可以发展。此外,这些信息将有助于为脑损伤儿童确定适当的保健、康复和教育支助服务。以这种方式让家庭参与,将有助为脑损伤儿童的家庭提供切实和有用的支援服务。
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引用次数: 0
Medical misadventure = human tragedy. 医疗事故=人间悲剧。
Pub Date : 2001-06-01
P Turner, N Thornton

In May of 1997 a drug inadvertently injected intrathecally caused severe neurological damage and death to a child. This event rendered a family grief-stricken and numerous health care providers forever changed. As Paget (1988) says, "The sorrow of mistakes is sometimes very diffuse and sometimes very pointed. It is sometimes the sorrow of failed action and sometimes the sorrow of failed conduct. The sorrow of mistakes has been expressed as the too-lateness of human understanding as it lies along the continuum of time, and as a wish that it might have been different, both then and now" (p.149). The reports of this tragic event in the media horrified a mother in another province. The same error had led to the death of her child five years earlier. In fact, this error has taken place a number of times in North America in the preceding decade. However, we did not know of the previous tragedies nor had we fully understood how critical examination of some of our own earlier near misses could have made such a tragic mistake less likely to occur.

1997年5月,无意中在鞘内注射的一种药物造成了一名儿童严重的神经损伤和死亡。这一事件使一个家庭悲痛欲绝,也使许多医疗服务提供者永远改变了。正如佩吉特(1988)所说,“错误带来的悲伤有时非常分散,有时非常尖锐。有时是行动失败的悲哀,有时是行为失败的悲哀。错误的悲哀被表达为人类的理解太迟,因为它存在于时间的连续体中,并且作为一种希望,它可能是不同的,当时和现在”(第149页)。媒体对这一悲惨事件的报道吓坏了另一个省的一位母亲。五年前,同样的错误导致了她孩子的死亡。事实上,在过去的十年里,这种错误在北美已经发生了好几次。然而,我们不知道以前的悲剧,也没有完全理解,对我们自己早些时候的一些险些失误进行严格审查,是如何减少这种悲剧性错误发生的可能性的。
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引用次数: 0
Guillain-Barré syndrome--a patient guide and nursing resource. 格林-巴-巴综合征——患者指南和护理资源。
Pub Date : 2001-06-01
M Kehoe

Guillain-Barré Syndrome (GBS) is an illness characterized by acute neuromuscular paralysis. A review of the history, course of the disease, current treatments, and nursing interventions, as well as excerpts from a patient teaching guide developed by the author for patients with GBS is included in this paper. The objectives are to present information about GBS, first at a level of understanding appropriate for patients and their families, and then to provide a more indepth discussion for health care providers. Despite the potential severity of GBS, the expected outcomes are encouraging. GBS affects 1-2.73 individuals per 100,000/year (Hahn, 1998). The symptoms can range from numbness and tingling with mild weakness to total paralysis requiring mechanical ventilation. Once diagnosed, patients are usually treated with intravenous immune globulin (i.v. IG), which significantly reduces the duration of the illness (Hughes, 1997; Guillain-Barré Syndrome Study Group, 1985). Neuroscience nurses can make a difference in the recovery of their patients by anticipating potential complications and attending to their special needs during the acute and recovery phases of their illness. Aside from physical care, being able to support and teach the patient and family about GBS is crucial. Use of a patient and family teaching guide is one strategy for providing education and support.

格林-巴罗综合征(GBS)是一种以急性神经肌肉麻痹为特征的疾病。本文回顾了该病的历史、病程、目前的治疗方法和护理干预措施,并摘录了作者为GBS患者编写的患者教学指南。其目标是首先在适合患者及其家属的理解水平上提供有关GBS的信息,然后为卫生保健提供者提供更深入的讨论。尽管GBS可能很严重,但预期结果令人鼓舞。GBS影响每10万人/年1-2.73人(Hahn, 1998)。症状可从麻木和刺痛伴轻度虚弱到需要机械通气的完全瘫痪。一旦确诊,患者通常接受静脉注射免疫球蛋白(i.v. IG)治疗,这大大缩短了病程(Hughes, 1997;格林-巴罗综合征研究小组,1985年)。神经科学护士可以通过预测潜在的并发症,并在患者疾病的急性期和恢复期照顾他们的特殊需求,从而在患者的康复中发挥重要作用。除了身体护理之外,能够支持和教育患者和家属关于GBS的知识至关重要。使用病人和家庭教学指南是提供教育和支持的一种策略。
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引用次数: 0
Critical illness polyneuropathy. 重症多发性神经病。
Pub Date : 2001-06-01
P Bovan, W Blackburn, P Potter

Over the past three decades, there has been an increasing interest in cases of profound muscle weakness in critically ill, mechanically ventilated patients. Potential causes for these acute weakness syndromes are multiple and include disorders of the peripheral nerves, the neuromuscular junction, and muscle (Sliwa, 2000). This article will provide an overview of one potential cause of an acute weakness syndrome affecting peripheral nerves, critical illness polyneuropathy (CIP). A case study concerning a 32-year-old male who suffered multiple traumatic injuries, and who was treated for more than two years, is presented to illustrate the course of the syndrome. He required extensive interdisciplinary involvement to achieve independence in spite of ongoing neurological impairments.

在过去的三十年中,人们对危重症机械通气患者的深度肌肉无力的病例越来越感兴趣。这些急性无力综合征的潜在原因是多种多样的,包括周围神经、神经肌肉连接处和肌肉的疾病(Sliwa, 2000)。这篇文章将提供一个潜在的原因,急性虚弱综合征影响周围神经,重症多神经病变(CIP)的概述。一个案例研究涉及一个32岁的男性谁遭受了多创伤性损伤,谁被治疗了两年多,提出了说明过程的综合征。他需要广泛的跨学科参与,以实现独立,尽管持续的神经损伤。
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引用次数: 0
Writing for publication. 为出版而写作。
Pub Date : 2001-06-01 DOI: 10.4324/9781003003007-2
D. Duff
A discussion of the benefits and obstacles of authoring a paper for a nursing journal is followed by an explanation of the process of writing for publication. Benefits include advancing nursing knowledge and professional recognition of the individual author. The barriers addressed are time, failure to recognize expertise, a reluctance to subject one's work and ideas to the public arena for scrutiny, and lack of confidence with scholarly writing. The discussion focuses on choosing a suitable journal and subject, the role of the editor and peer reviewers in a refereed journal, and a procedure for planning, writing, and editing a paper. The process is addressed both in a generic sense, and specifically when writing a paper for AXON. Strategies to get nurses started with writing, such as critical reading of journal articles individually or with a peer group, writing with a mentor or group, and starting with small projects, are also included.
讨论了为护理期刊撰写论文的好处和障碍,然后解释了为出版撰写论文的过程。好处包括提高护理知识和个人作者的专业认可。解决的障碍是时间,不承认专业知识,不愿意将自己的工作和想法置于公共领域进行审查,以及对学术写作缺乏信心。讨论的重点是选择合适的期刊和主题,编辑和同行审稿人在审稿期刊中的作用,以及计划,写作和编辑论文的程序。这个过程在一般意义上和在为AXON写论文时都得到了解决。还包括让护士开始写作的策略,例如单独或与同伴小组批判性地阅读期刊文章,与导师或小组一起写作,以及从小项目开始。
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引用次数: 5
Daring men to be caring men: the dilemma of disability for male caregivers. 勇敢的男人成为有爱心的男人:男性照顾者的残疾困境。
Pub Date : 2001-03-01
M L Anderson

The presence of a chronic illness such as multiple sclerosis (MS) represents not only overwhelming demands on male caregivers, but ambivalence for men with respect to their masculinity. Men as sole caregivers for spouses with MS feel caught between a rock and a hard place, given their gender socialization and the pressing demands of caring for a dependent and vulnerable spouse. Regular chapter visits within the MS Society in Ontario confirmed the assumption that male caregivers have to contend with a predominant bias among professional female caregivers that men are really not capable of caring for someone with a chronic illness and subsequently cannot be trusted with such responsibility. This bias actually works to undermine men's perceived capability and predisposition to caring for a vulnerable family member with a chronic illness or disability.

慢性疾病如多发性硬化症(MS)的出现不仅代表了对男性照顾者的巨大需求,也代表了男性对自己男子气概的矛盾心理。男性作为多发性硬化症配偶的唯一照顾者感到进退两难,因为他们的性别社会化和照顾依赖和脆弱的配偶的迫切需求。安大略省多发性硬化症协会的定期分会访问证实了这样一种假设,即男性护理人员必须与专业女性护理人员的主要偏见作斗争,即男性确实没有能力照顾患有慢性疾病的人,因此不能被信任承担这样的责任。这种偏见实际上破坏了男性照顾患有慢性疾病或残疾的脆弱家庭成员的能力和倾向。
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引用次数: 0
Psychological distress and family burden following spinal cord injury: concurrent traumatic brain injury cannot be overlooked. 脊髓损伤后的心理困扰和家庭负担:并发创伤性脑损伤不容忽视。
Pub Date : 2001-03-01
K M Buchanan, L J Elias

Although concurrent spinal cord injury (SCI) and traumatic brain injury (TBI) are recognized, there is little acknowledgement of SCI/TBI as a contributor to psychological distress and family burden. By mail-out questionnaire, we evaluated psychological distress and family burden in a married group (n = 12) with traumatic SCI who had not been identified as having concurrent TBI on referral to the Canadian Paraplegic Association. Both the person with SCI and the partner completed the Brief Symptom Inventory (BSI), the Adjective Checklist, and a Likert strain scale to measure the perception of the partner's strain. The partner also completed the Zarit Burden Interview. Despite screening criteria designed to selectively recruit individuals without TBI, seven individuals described post-traumatic amnesia (PTA) > or = 3 days. Subsequently, participants' reports were divided into two groups--"longer PTA" and "shorter PTA". On the Brief Symptom Inventory, the two SCI groups did not differ, but the partners of individuals with "longer PTA" had significantly elevated Global Severity Index scores compared to the other partners. The "longer PTA" partner group demonstrated more strain and more burden (as measured by the Likert strain scale and the Zarit Burden Interview). Given the size of the groups (n = 7, n = 5), these findings are presented to illustrate trends and to stimulate further research.

虽然并发脊髓损伤(SCI)和创伤性脑损伤(TBI)是公认的,但很少有人认识到SCI/TBI是心理困扰和家庭负担的一个因素。通过邮寄问卷,我们评估了一组已婚创伤性脊髓损伤患者(n = 12)的心理困扰和家庭负担,这些患者在转介到加拿大截瘫协会时未被确定为并发TBI。脊髓损伤患者和伴侣都完成了简短症状量表(BSI)、形容词检查表和李克特压力量表来测量伴侣的压力感知。该合伙人还完成了Zarit Burden访谈。尽管筛选标准被设计为选择性招募没有TBI的个体,但有7个个体描述创伤后失忆症(PTA) >或= 3天。随后,参与者的报告被分为“较长PTA”和“较短PTA”两组。在简短症状量表上,两组SCI没有差异,但“PTA较长”个体的伴侣与其他伴侣相比,其全球严重性指数得分显著升高。“更长的PTA”伴侣组表现出更多的压力和更多的负担(通过Likert压力量表和Zarit负担访谈测量)。考虑到小组的规模(n = 7, n = 5),这些发现是为了说明趋势并刺激进一步的研究。
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引用次数: 0
Improving the appropriateness of carotid endarterectomy: results of three city-wide studies. 提高颈动脉内膜切除术的适宜性:三个全市研究的结果。
Pub Date : 2000-03-01
T B Lubkey, J H Wong, J M Findlay
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引用次数: 0
期刊
Axone (Dartmouth, N.S.)
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