Although primary malignant brain tumours represent only 1.4% of all cancers, it is considered one of the most devastating types of cancers in adults. From the time of diagnosis, the patient and family embark on a "roller coaster" ride of uncertainty, fear and hope. Despite improved medical outcomes, patients often experience severe functional impairment, as well as behavioural and cognitive dysfunction. Subsequently, they suffer from greater dependency and hopelessness than other cancer patients. The family caregivers are faced with multiple demands such as taking on new roles within the family and caring for their loved one while grieving the loss of the person they knew. The role of the nurse is to support the patient and the family throughout the illness trajectory, identify and promote their strengths and mobilize the necessary resources to facilitate patient and family coping. The purpose of this paper is to present, via a detailed case study, the impact of a malignant brain tumour on the patient and the family. The nursing strategies used to help them make the necessary transitions throughout the illness trajectory are discussed.
{"title":"Ongoing transitions: the impact of a malignant brain tumour on patient and family.","authors":"Yasmin Khalili","doi":"","DOIUrl":"","url":null,"abstract":"<p><p>Although primary malignant brain tumours represent only 1.4% of all cancers, it is considered one of the most devastating types of cancers in adults. From the time of diagnosis, the patient and family embark on a \"roller coaster\" ride of uncertainty, fear and hope. Despite improved medical outcomes, patients often experience severe functional impairment, as well as behavioural and cognitive dysfunction. Subsequently, they suffer from greater dependency and hopelessness than other cancer patients. The family caregivers are faced with multiple demands such as taking on new roles within the family and caring for their loved one while grieving the loss of the person they knew. The role of the nurse is to support the patient and the family throughout the illness trajectory, identify and promote their strengths and mobilize the necessary resources to facilitate patient and family coping. The purpose of this paper is to present, via a detailed case study, the impact of a malignant brain tumour on the patient and the family. The nursing strategies used to help them make the necessary transitions throughout the illness trajectory are discussed.</p>","PeriodicalId":77025,"journal":{"name":"Axone (Dartmouth, N.S.)","volume":"28 3","pages":"5-13"},"PeriodicalIF":0.0,"publicationDate":"2007-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"26875414","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Nursing is fundamental to the care of stroke patients. From the acute setting all the way to rehabilitation and community reintegration, nursing is there. Having well-educated and highly skilled nurses to monitor and care for stroke patients is crucial. Equally important is the collaboration of colleagues at a national level to facilitate and disseminate research and best practice guidelines across Canada. The National Stroke Nursing Council aims to fill this role. Stroke nurses from across Canada were invited to a national forum in 2005, hosted by the Canadian Stroke Network. The focus of this forum was to elucidate issues of concern to nurses across the stroke care continuum in relation to a Canadian Stroke Strategy. Subsequent to this forum, a cadre of nurses, after undergoing a rigorous screening process, were selected to form the inaugural National Stroke Nursing Council (NSNC). With ongoing support from the Canadian Stroke Network, the mandate of the NSNC is to promote leadership, communication, advocacy, education and nursing research in the field of stroke.
{"title":"The National Stroke Nursing Council: a nursing call for action.","authors":"Rhonda Hardy-Joel, Teri Green","doi":"","DOIUrl":"","url":null,"abstract":"<p><p>Nursing is fundamental to the care of stroke patients. From the acute setting all the way to rehabilitation and community reintegration, nursing is there. Having well-educated and highly skilled nurses to monitor and care for stroke patients is crucial. Equally important is the collaboration of colleagues at a national level to facilitate and disseminate research and best practice guidelines across Canada. The National Stroke Nursing Council aims to fill this role. Stroke nurses from across Canada were invited to a national forum in 2005, hosted by the Canadian Stroke Network. The focus of this forum was to elucidate issues of concern to nurses across the stroke care continuum in relation to a Canadian Stroke Strategy. Subsequent to this forum, a cadre of nurses, after undergoing a rigorous screening process, were selected to form the inaugural National Stroke Nursing Council (NSNC). With ongoing support from the Canadian Stroke Network, the mandate of the NSNC is to promote leadership, communication, advocacy, education and nursing research in the field of stroke.</p>","PeriodicalId":77025,"journal":{"name":"Axone (Dartmouth, N.S.)","volume":"28 4","pages":"7-8"},"PeriodicalIF":0.0,"publicationDate":"2007-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"26876294","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Neurological assessment of the stroke patient: the Canadian Neurological Scale.","authors":"Michelle MacKay, Karen Legg, Shannon Nearing","doi":"","DOIUrl":"","url":null,"abstract":"","PeriodicalId":77025,"journal":{"name":"Axone (Dartmouth, N.S.)","volume":"28 4","pages":"9-10"},"PeriodicalIF":0.0,"publicationDate":"2007-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"26876295","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
In this review paper, the prevalence and characteristics of central auditory processing disorder (CAPD) are reviewed. The causes, pathology and diagnosis of CAPD are also discussed. Recommendations are made for classroom interventions and a case study is presented. CAPDs are complex, heterogeneous disorders involving the process of auditory stimuli within the mechanisms of the central nervous system that can result in profound personal, social and academic consequences. Specificity in diagnosis, support by family members, neuroscience and allied health professionals and educators, and self-management and advocacy are required for children, adolescents and adults to have successful academic and work outcomes.
{"title":"Central auditory processing disorders: review and case study.","authors":"Tatra Dobrzanski Palfery, Diane Duff","doi":"","DOIUrl":"","url":null,"abstract":"<p><p>In this review paper, the prevalence and characteristics of central auditory processing disorder (CAPD) are reviewed. The causes, pathology and diagnosis of CAPD are also discussed. Recommendations are made for classroom interventions and a case study is presented. CAPDs are complex, heterogeneous disorders involving the process of auditory stimuli within the mechanisms of the central nervous system that can result in profound personal, social and academic consequences. Specificity in diagnosis, support by family members, neuroscience and allied health professionals and educators, and self-management and advocacy are required for children, adolescents and adults to have successful academic and work outcomes.</p>","PeriodicalId":77025,"journal":{"name":"Axone (Dartmouth, N.S.)","volume":"28 3","pages":"20-3"},"PeriodicalIF":0.0,"publicationDate":"2007-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"26875416","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Cerebral metastasis of cancers originating outside the brain has traditionally been treated with whole brain radiation therapy (WBRT). Gamma Knife Radiosurgery (GKS) provides safe and effective alternative treatment that is less invasive and has fewer side effects. Both WBRT and GKS are reviewed and discussed in terms of quality of life and health outcomes. The case studies of two individuals who underwent Gamma Knife surgery are presented.
{"title":"Quality of life: Gamma Knife surgery and whole brain radiation therapy.","authors":"Janice Nesbitt","doi":"","DOIUrl":"","url":null,"abstract":"<p><p>Cerebral metastasis of cancers originating outside the brain has traditionally been treated with whole brain radiation therapy (WBRT). Gamma Knife Radiosurgery (GKS) provides safe and effective alternative treatment that is less invasive and has fewer side effects. Both WBRT and GKS are reviewed and discussed in terms of quality of life and health outcomes. The case studies of two individuals who underwent Gamma Knife surgery are presented.</p>","PeriodicalId":77025,"journal":{"name":"Axone (Dartmouth, N.S.)","volume":"28 2","pages":"36-41"},"PeriodicalIF":0.0,"publicationDate":"2007-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"26689224","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Stroke has a significant impact on personal, social and financial factors for individuals, families and the health care system. Stroke prevention clinics (SPCs) were developed in order to address the needs, identified through research, for improved recognition and reaction to TIA/stroke symptoms, as well as for expediting investigations and implementing early stroke prevention interventions. Along with the advent of SPCs came a new role for nurses. As part of an interdisciplinary team, the nursing role continues to evolve in the southeastern region of Ontario. SPC nurses play an important role in assisting to coordinate activities in and outside the clinic setting, and are instrumental in raising public and health care provider awareness of TIA, stroke, stroke prevention and risk factor management. In this article, the evolution of SPCs in Ontario is discussed. A case study is used to illustrate both the role of SPCs in expediting diagnosis and treatment for patients experiencing TIA or stroke symptoms, as well as the nursing role and how evidence is incorporated into practice. Results of some preliminary research and the issues involved in establishing an appropriate outcome evaluation process are explored. As well, the potential for nursing research within SPCs and future directions for the nursing role are appraised.
{"title":"Stroke prevention in southeastern Ontario: the nursing role and implementation of evidence-based practice.","authors":"Susan Kotel, Sandy Acheson, Sandra Melchiorre","doi":"","DOIUrl":"","url":null,"abstract":"<p><p>Stroke has a significant impact on personal, social and financial factors for individuals, families and the health care system. Stroke prevention clinics (SPCs) were developed in order to address the needs, identified through research, for improved recognition and reaction to TIA/stroke symptoms, as well as for expediting investigations and implementing early stroke prevention interventions. Along with the advent of SPCs came a new role for nurses. As part of an interdisciplinary team, the nursing role continues to evolve in the southeastern region of Ontario. SPC nurses play an important role in assisting to coordinate activities in and outside the clinic setting, and are instrumental in raising public and health care provider awareness of TIA, stroke, stroke prevention and risk factor management. In this article, the evolution of SPCs in Ontario is discussed. A case study is used to illustrate both the role of SPCs in expediting diagnosis and treatment for patients experiencing TIA or stroke symptoms, as well as the nursing role and how evidence is incorporated into practice. Results of some preliminary research and the issues involved in establishing an appropriate outcome evaluation process are explored. As well, the potential for nursing research within SPCs and future directions for the nursing role are appraised.</p>","PeriodicalId":77025,"journal":{"name":"Axone (Dartmouth, N.S.)","volume":"28 3","pages":"14-9"},"PeriodicalIF":0.0,"publicationDate":"2007-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"26875415","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Case study: closure of a patent foramen ovale without surgery following stroke.","authors":"Diane Duff","doi":"","DOIUrl":"","url":null,"abstract":"","PeriodicalId":77025,"journal":{"name":"Axone (Dartmouth, N.S.)","volume":"28 2","pages":"42-3"},"PeriodicalIF":0.0,"publicationDate":"2007-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"26689225","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
In this study, the concept of hope in patients diagnosed with amyotrophic lateral sclerosis was explored. The researchers asked, "What does hope mean to you?" The final sample consisted of 13 patients at varying stages of illness and at differing times since diagnosis. Semi-structured interviews with open-ended questions were used to elicit views on hope, its sources and evolution. The findings were similar to a study done by Herth (1990) in which two themes emerged: hope fostering strategies and hope hindering barriers. The study process allowed the researchers to capture the participants' sources of hope. An unexpected finding was that participants described taking part in the interviews as "therapeutic." The findings support the notion that clinicians need to engage patients in discussions of hope, particularly the question of hope and its meaning, in order to adequately address their most important concerns and understand their point of view. Implications and suggestions for nursing practice include taking the time to explore hope-fostering approaches and discuss hope-hindering obstacles and our role in creating a hopeful environment.
{"title":"Codman Award 2006: the experience of hope in ALS patients.","authors":"Antonietta Vitale, Angela Genge","doi":"","DOIUrl":"","url":null,"abstract":"<p><p>In this study, the concept of hope in patients diagnosed with amyotrophic lateral sclerosis was explored. The researchers asked, \"What does hope mean to you?\" The final sample consisted of 13 patients at varying stages of illness and at differing times since diagnosis. Semi-structured interviews with open-ended questions were used to elicit views on hope, its sources and evolution. The findings were similar to a study done by Herth (1990) in which two themes emerged: hope fostering strategies and hope hindering barriers. The study process allowed the researchers to capture the participants' sources of hope. An unexpected finding was that participants described taking part in the interviews as \"therapeutic.\" The findings support the notion that clinicians need to engage patients in discussions of hope, particularly the question of hope and its meaning, in order to adequately address their most important concerns and understand their point of view. Implications and suggestions for nursing practice include taking the time to explore hope-fostering approaches and discuss hope-hindering obstacles and our role in creating a hopeful environment.</p>","PeriodicalId":77025,"journal":{"name":"Axone (Dartmouth, N.S.)","volume":"28 2","pages":"27-35"},"PeriodicalIF":0.0,"publicationDate":"2007-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"26689223","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Mary Glover Lecture 2005: patient safety, accountability and leadership--flavour of the day or here to stay?","authors":"Wendy Nicklin","doi":"","DOIUrl":"","url":null,"abstract":"","PeriodicalId":77025,"journal":{"name":"Axone (Dartmouth, N.S.)","volume":"27 2","pages":"24-31"},"PeriodicalIF":0.0,"publicationDate":"2006-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"25891232","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Susan Bisaillon, André Douen, Barbara Neabel, Nicole Pageau, Dan Selchen
Trillium Health Centre (THC) is one of Canada's largest community hospitals and a regional provider of tertiary-level cardiac, neuroscience, and orthopedic care. In 2001, it was named one of nine Regional Stroke Centres in Ontario, with a mandate to coordinate stroke services across the continuum of care in keeping with best practices in the west Greater Toronto Area (GTA). Within its role as a Regional Stroke Centre, THC has successfully implemented an innovative approach to the delivery of stroke prevention services in its regional catchment area. Building on best practices, it has introduced a specialized and interdisciplinary team to provide timely and effective primary and secondary prevention services. The rapid growth in utilization to more than 2000 patients in the last fiscal year (2004-2005), suggests that the clinic is meeting a real need in the community for stroke prevention services. Many of these patients now benefit from appropriate medical management, stroke awareness education, lifestyle counselling, and expedited referrals to other specialists. The Regional Stroke Prevention Clinic (RSPC) may be the first step in preventing a stroke, thus avoiding the social costs to people with strokes and their families, and the financial burden on the health care system.
{"title":"Saving costs using an ounce of prevention: introduction of a regional stroke prevention clinic.","authors":"Susan Bisaillon, André Douen, Barbara Neabel, Nicole Pageau, Dan Selchen","doi":"","DOIUrl":"","url":null,"abstract":"<p><p>Trillium Health Centre (THC) is one of Canada's largest community hospitals and a regional provider of tertiary-level cardiac, neuroscience, and orthopedic care. In 2001, it was named one of nine Regional Stroke Centres in Ontario, with a mandate to coordinate stroke services across the continuum of care in keeping with best practices in the west Greater Toronto Area (GTA). Within its role as a Regional Stroke Centre, THC has successfully implemented an innovative approach to the delivery of stroke prevention services in its regional catchment area. Building on best practices, it has introduced a specialized and interdisciplinary team to provide timely and effective primary and secondary prevention services. The rapid growth in utilization to more than 2000 patients in the last fiscal year (2004-2005), suggests that the clinic is meeting a real need in the community for stroke prevention services. Many of these patients now benefit from appropriate medical management, stroke awareness education, lifestyle counselling, and expedited referrals to other specialists. The Regional Stroke Prevention Clinic (RSPC) may be the first step in preventing a stroke, thus avoiding the social costs to people with strokes and their families, and the financial burden on the health care system.</p>","PeriodicalId":77025,"journal":{"name":"Axone (Dartmouth, N.S.)","volume":"27 3","pages":"29-33"},"PeriodicalIF":0.0,"publicationDate":"2006-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"26079875","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}