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Ongoing transitions: the impact of a malignant brain tumour on patient and family. 正在进行的过渡:恶性脑肿瘤对患者和家属的影响。
Pub Date : 2007-01-01
Yasmin Khalili

Although primary malignant brain tumours represent only 1.4% of all cancers, it is considered one of the most devastating types of cancers in adults. From the time of diagnosis, the patient and family embark on a "roller coaster" ride of uncertainty, fear and hope. Despite improved medical outcomes, patients often experience severe functional impairment, as well as behavioural and cognitive dysfunction. Subsequently, they suffer from greater dependency and hopelessness than other cancer patients. The family caregivers are faced with multiple demands such as taking on new roles within the family and caring for their loved one while grieving the loss of the person they knew. The role of the nurse is to support the patient and the family throughout the illness trajectory, identify and promote their strengths and mobilize the necessary resources to facilitate patient and family coping. The purpose of this paper is to present, via a detailed case study, the impact of a malignant brain tumour on the patient and the family. The nursing strategies used to help them make the necessary transitions throughout the illness trajectory are discussed.

虽然原发性恶性脑肿瘤只占所有癌症的1.4%,但它被认为是成人中最具破坏性的癌症之一。从确诊的那一刻起,患者和家属就开始了不确定、恐惧和希望的“过山车”之旅。尽管医疗结果有所改善,但患者往往会出现严重的功能障碍,以及行为和认知功能障碍。随后,他们比其他癌症患者遭受更大的依赖和绝望。家庭照顾者面临着多重需求,如在家庭中承担新的角色,照顾他们所爱的人,同时为失去他们认识的人而悲伤。护士的角色是在整个疾病过程中支持患者和家庭,识别和促进他们的优势,并动员必要的资源来促进患者和家庭应对。本文的目的是通过详细的案例研究,介绍恶性脑肿瘤对患者及其家属的影响。护理策略,以帮助他们作出必要的过渡,整个疾病的轨迹进行了讨论。
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引用次数: 0
The National Stroke Nursing Council: a nursing call for action. 全国中风护理委员会:护理行动呼吁。
Pub Date : 2007-01-01
Rhonda Hardy-Joel, Teri Green

Nursing is fundamental to the care of stroke patients. From the acute setting all the way to rehabilitation and community reintegration, nursing is there. Having well-educated and highly skilled nurses to monitor and care for stroke patients is crucial. Equally important is the collaboration of colleagues at a national level to facilitate and disseminate research and best practice guidelines across Canada. The National Stroke Nursing Council aims to fill this role. Stroke nurses from across Canada were invited to a national forum in 2005, hosted by the Canadian Stroke Network. The focus of this forum was to elucidate issues of concern to nurses across the stroke care continuum in relation to a Canadian Stroke Strategy. Subsequent to this forum, a cadre of nurses, after undergoing a rigorous screening process, were selected to form the inaugural National Stroke Nursing Council (NSNC). With ongoing support from the Canadian Stroke Network, the mandate of the NSNC is to promote leadership, communication, advocacy, education and nursing research in the field of stroke.

护理是中风病人护理的基础。从急性病到康复和重返社区,护理一直都在。拥有受过良好教育和高技能的护士来监测和护理中风患者是至关重要的。同样重要的是在国家一级的同事合作,促进和传播加拿大各地的研究和最佳实践指南。国家中风护理委员会旨在填补这一角色。2005年,来自加拿大各地的中风护士被邀请参加由加拿大中风网络主办的全国论坛。本次论坛的重点是阐明与加拿大卒中战略相关的中风护理连续体中护士关注的问题。在这个论坛之后,一群护士干部经过严格的筛选程序,被选中组成首届国家中风护理委员会(NSNC)。在加拿大中风网络的持续支持下,NSNC的任务是促进中风领域的领导、沟通、宣传、教育和护理研究。
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引用次数: 0
Neurological assessment of the stroke patient: the Canadian Neurological Scale. 中风患者的神经学评估:加拿大神经学量表。
Pub Date : 2007-01-01
Michelle MacKay, Karen Legg, Shannon Nearing
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引用次数: 0
Central auditory processing disorders: review and case study. 中枢性听觉加工障碍:回顾与个案研究。
Pub Date : 2007-01-01
Tatra Dobrzanski Palfery, Diane Duff

In this review paper, the prevalence and characteristics of central auditory processing disorder (CAPD) are reviewed. The causes, pathology and diagnosis of CAPD are also discussed. Recommendations are made for classroom interventions and a case study is presented. CAPDs are complex, heterogeneous disorders involving the process of auditory stimuli within the mechanisms of the central nervous system that can result in profound personal, social and academic consequences. Specificity in diagnosis, support by family members, neuroscience and allied health professionals and educators, and self-management and advocacy are required for children, adolescents and adults to have successful academic and work outcomes.

本文就中枢性听觉加工障碍(central auditory processing disorder, CAPD)的发病特点进行综述。并对CAPD的病因、病理及诊断进行了讨论。对课堂干预提出了建议,并提出了一个案例研究。capd是一种复杂的异质性疾病,涉及中枢神经系统机制内的听觉刺激过程,可导致深刻的个人,社会和学术后果。儿童、青少年和成人要取得成功的学业和工作成果,就需要诊断的特异性、家庭成员、神经科学和联合卫生专业人员和教育工作者的支持、自我管理和宣传。
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引用次数: 0
Quality of life: Gamma Knife surgery and whole brain radiation therapy. 生活质量:伽玛刀手术和全脑放疗。
Pub Date : 2007-01-01
Janice Nesbitt

Cerebral metastasis of cancers originating outside the brain has traditionally been treated with whole brain radiation therapy (WBRT). Gamma Knife Radiosurgery (GKS) provides safe and effective alternative treatment that is less invasive and has fewer side effects. Both WBRT and GKS are reviewed and discussed in terms of quality of life and health outcomes. The case studies of two individuals who underwent Gamma Knife surgery are presented.

传统上,脑外肿瘤转移的治疗采用全脑放射治疗(WBRT)。伽玛刀放射外科(GKS)提供了安全有效的替代治疗,其侵入性较小,副作用较少。从生活质量和健康结果的角度对WBRT和GKS进行了审查和讨论。个案研究的两个个体谁接受伽玛刀手术提出。
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引用次数: 0
Stroke prevention in southeastern Ontario: the nursing role and implementation of evidence-based practice. 安大略东南部中风预防:循证实践的护理作用和实施。
Pub Date : 2007-01-01
Susan Kotel, Sandy Acheson, Sandra Melchiorre

Stroke has a significant impact on personal, social and financial factors for individuals, families and the health care system. Stroke prevention clinics (SPCs) were developed in order to address the needs, identified through research, for improved recognition and reaction to TIA/stroke symptoms, as well as for expediting investigations and implementing early stroke prevention interventions. Along with the advent of SPCs came a new role for nurses. As part of an interdisciplinary team, the nursing role continues to evolve in the southeastern region of Ontario. SPC nurses play an important role in assisting to coordinate activities in and outside the clinic setting, and are instrumental in raising public and health care provider awareness of TIA, stroke, stroke prevention and risk factor management. In this article, the evolution of SPCs in Ontario is discussed. A case study is used to illustrate both the role of SPCs in expediting diagnosis and treatment for patients experiencing TIA or stroke symptoms, as well as the nursing role and how evidence is incorporated into practice. Results of some preliminary research and the issues involved in establishing an appropriate outcome evaluation process are explored. As well, the potential for nursing research within SPCs and future directions for the nursing role are appraised.

中风对个人、家庭和卫生保健系统的个人、社会和经济因素都有重大影响。建立中风预防诊所(SPCs)是为了满足通过研究确定的需求,以改善对TIA/中风症状的识别和反应,以及加快调查和实施早期中风预防干预措施。随着特殊护理中心的出现,护士的新角色也出现了。作为跨学科团队的一部分,护理角色在安大略省东南部地区不断发展。SPC护士在协助协调诊所内外的活动方面发挥着重要作用,并有助于提高公众和卫生保健提供者对TIA、卒中、卒中预防和风险因素管理的认识。本文讨论了安大略省SPCs的演变。一个案例研究用来说明SPCs在加速TIA或中风症状患者的诊断和治疗中的作用,以及护理的作用,以及如何将证据纳入实践。探讨了一些初步研究的结果和建立适当的结果评价过程所涉及的问题。此外,护理研究的潜力在特殊护理中心和护理角色的未来方向进行了评估。
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引用次数: 0
Case study: closure of a patent foramen ovale without surgery following stroke. 案例研究:闭合性卵圆孔未闭中风后不手术。
Pub Date : 2007-01-01
Diane Duff
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引用次数: 0
Codman Award 2006: the experience of hope in ALS patients. 2006年科德曼奖:ALS患者的希望体验。
Pub Date : 2007-01-01
Antonietta Vitale, Angela Genge

In this study, the concept of hope in patients diagnosed with amyotrophic lateral sclerosis was explored. The researchers asked, "What does hope mean to you?" The final sample consisted of 13 patients at varying stages of illness and at differing times since diagnosis. Semi-structured interviews with open-ended questions were used to elicit views on hope, its sources and evolution. The findings were similar to a study done by Herth (1990) in which two themes emerged: hope fostering strategies and hope hindering barriers. The study process allowed the researchers to capture the participants' sources of hope. An unexpected finding was that participants described taking part in the interviews as "therapeutic." The findings support the notion that clinicians need to engage patients in discussions of hope, particularly the question of hope and its meaning, in order to adequately address their most important concerns and understand their point of view. Implications and suggestions for nursing practice include taking the time to explore hope-fostering approaches and discuss hope-hindering obstacles and our role in creating a hopeful environment.

本研究探讨肌萎缩性侧索硬化症患者的希望概念。研究人员问道:“希望对你来说意味着什么?”最后的样本包括13名处于不同疾病阶段和诊断后不同时间的患者。采用带有开放式问题的半结构化访谈来引出人们对希望、希望的来源和发展的看法。这些发现与赫斯(1990)的一项研究相似,其中出现了两个主题:希望培育策略和希望阻碍障碍。研究过程使研究人员能够捕捉到参与者希望的来源。一个意想不到的发现是,参与者将参加访谈描述为“治疗”。研究结果支持这样一种观点,即临床医生需要让患者参与讨论希望,特别是希望及其意义的问题,以便充分解决他们最重要的问题并理解他们的观点。对护理实践的启示和建议包括花时间探索培养希望的方法,讨论阻碍希望的障碍和我们在创造充满希望的环境中的作用。
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引用次数: 0
Mary Glover Lecture 2005: patient safety, accountability and leadership--flavour of the day or here to stay? 玛丽·格洛弗讲座2005:病人安全,问责制和领导力——今天的味道还是留下来?
Pub Date : 2006-01-01
Wendy Nicklin
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引用次数: 0
Saving costs using an ounce of prevention: introduction of a regional stroke prevention clinic. 用一盎司预防节省成本:引进区域中风预防诊所。
Pub Date : 2006-01-01
Susan Bisaillon, André Douen, Barbara Neabel, Nicole Pageau, Dan Selchen

Trillium Health Centre (THC) is one of Canada's largest community hospitals and a regional provider of tertiary-level cardiac, neuroscience, and orthopedic care. In 2001, it was named one of nine Regional Stroke Centres in Ontario, with a mandate to coordinate stroke services across the continuum of care in keeping with best practices in the west Greater Toronto Area (GTA). Within its role as a Regional Stroke Centre, THC has successfully implemented an innovative approach to the delivery of stroke prevention services in its regional catchment area. Building on best practices, it has introduced a specialized and interdisciplinary team to provide timely and effective primary and secondary prevention services. The rapid growth in utilization to more than 2000 patients in the last fiscal year (2004-2005), suggests that the clinic is meeting a real need in the community for stroke prevention services. Many of these patients now benefit from appropriate medical management, stroke awareness education, lifestyle counselling, and expedited referrals to other specialists. The Regional Stroke Prevention Clinic (RSPC) may be the first step in preventing a stroke, thus avoiding the social costs to people with strokes and their families, and the financial burden on the health care system.

Trillium健康中心(THC)是加拿大最大的社区医院之一,也是三级心脏、神经科学和骨科护理的区域提供者。2001年,它被指定为安大略省九个区域中风中心之一,其任务是协调整个护理连续体的中风服务,以保持大多伦多西部地区(GTA)的最佳做法。作为区域中风中心,THC成功实施了一种创新方法,在其区域集水区提供中风预防服务。在最佳做法的基础上,它引进了一个专门的跨学科小组,提供及时和有效的初级和二级预防服务。在上一个财政年度(2004-2005年),该诊所的使用率迅速增长到2000多名患者,这表明该诊所正在满足社区对中风预防服务的真正需求。许多患者现在受益于适当的医疗管理,中风意识教育,生活方式咨询,并迅速转介到其他专家。区域中风预防诊所(RSPC)可能是预防中风的第一步,从而避免中风患者及其家庭的社会成本,以及医疗保健系统的经济负担。
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Axone (Dartmouth, N.S.)
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