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Cancer Genetics 癌症遗传学
Pub Date : 2002-10-29 DOI: 10.1046/j.1523-5394.2002.106004.x
Sharon J. Olsen ms, rn, aocn
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引用次数: 5
Patient and Caregiver Interest in Internet-Based Cancer Services 患者和护理人员对基于互联网的癌症服务的兴趣
Pub Date : 2002-10-29 DOI: 10.1046/j.1523-5394.2002.106005.x
Jeannine Monnier phd, Marilyn Laken phd, rn, Cindy L. Carter phd

purpose: The primary goal of this study was to identify the needs for, the interest in, and the feasibility of the implementation of an Internet-based cancer services web site. Additionally, group differences (racial, patient vs caregiver, or rural vs urban) were identified that might influence the implementation of such a project.

description of study: Patients with cancer and caregivers (N = 319) in the waiting rooms of a cancer center located within a southeastern medical university completed questionnaires regarding their interest in Internet-based services. Topics included the likelihood of using Internet-based services, interest in home healthcare services delivered via a personal computer, and knowledge about and use of the Internet.

results: Results indicated that most patient and caregiver respondents were interested in Internet-based cancer-related services such as information related to treatment (80%), conversations with physicians via the Internet (70%), and online support groups (65%). In addition, respondents reported that they would be likely to use such services (70%) and were interested in home healthcare services delivered via personal computers (60%). No group differences were found across ethnic groups, geographic settings, and patient status (patient vs caregivers) on these variables. Minorities, older individuals, and less educated individuals were less likely to have knowledge of and to have used the Internet.

clinical implications: Patients with cancer and their caregivers are interested in supplementing in-person services with Internet-based services relating to their cancer treatment. Special efforts need to be made to reach ethnic minorities, the elderly, and those with less education with Internet-based programs.

目的:本研究的主要目的是确定基于互联网的癌症服务网站的需求、兴趣和实施的可行性。此外,小组差异(种族,患者与护理人员,或农村与城市)被确定可能影响这样一个项目的实施。研究描述:癌症患者和护理人员(N = 319)在位于东南医科大学的一个癌症中心的候诊室完成了关于他们对基于互联网的服务的兴趣的问卷调查。主题包括使用基于互联网的服务的可能性、对通过个人计算机提供的家庭保健服务的兴趣以及对互联网的了解和使用。结果:结果表明,大多数患者和护理人员受访者对基于互联网的癌症相关服务感兴趣,例如与治疗相关的信息(80%),通过互联网与医生对话(70%)和在线支持小组(65%)。此外,受访者表示他们可能会使用此类服务(70%),并对通过个人电脑提供的家庭医疗保健服务感兴趣(60%)。在这些变量上,没有发现种族群体、地理环境和患者状态(患者与护理人员)之间的组差异。少数民族、老年人和受教育程度较低的人不太可能了解和使用互联网。临床意义:癌症患者及其护理人员有兴趣利用与癌症治疗相关的基于互联网的服务来补充面对面的服务。需要特别努力为少数民族、老年人和受教育程度较低的人提供基于互联网的项目。
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引用次数: 98
Tapestry 挂毯
Pub Date : 2002-10-29 DOI: 10.1046/j.1523-5394.2002.106008.x
Maureen J. Angen phd, cpsych, J. Helen MacRae phd, cpsych, J. Steven A. Simpson phd, md, frcp, Marilyn Hundleby phd, cpsych

purpose: In an effort to mitigate the negative psychological sequelae of a cancer diagnosis and cancer treatment, efforts have been made to explore a variety of psychosocial issues and interventions. This article describes the provision and preliminary evaluation of a novel psychosocial service delivery, a residential “retreat” program called Tapestry, which is run under the aegis of the established cancer care community in Alberta, Canada.

overview: Retreat programs offer a novel way to provide psychosocial support for those persons who are living with cancer. The retreats are unique in the provision of a respite and the opportunity to address the isolation and other existential issues arising from a cancer diagnosis. The program described in this article has provided such a service six times per year since 1998. The intervention is described, and preliminary evaluation data are presented.

clinical implications: Cancer care has begun to move beyond a solely biomedical paradigm toward a more holistic ethos in service delivery and research orientation. While the face value of and demand for such programming continues to grow, few residential psychosocial programs are offered under the auspices of conventional cancer care centers, and little work has been done to examine the nature and possible efficacy of retreat programs as a valid forum for psychosocial service delivery.

目的:为了减轻癌症诊断和癌症治疗的负面心理后遗症,人们努力探索各种社会心理问题和干预措施。本文描述了一种新型心理社会服务的提供和初步评估,这是一个名为Tapestry的住宅“撤退”项目,在加拿大阿尔伯塔省建立的癌症护理社区的支持下运行。概述:静修项目为癌症患者提供了一种新颖的心理支持方式。疗养所的独特之处在于提供了一个喘息的机会,并有机会解决因癌症诊断而产生的孤立和其他存在问题。本文中描述的程序自1998年以来每年提供6次这样的服务。对干预措施进行了描述,并给出了初步评价数据。临床意义:癌症治疗已经开始超越单一的生物医学范式,在服务提供和研究方向上转向更全面的精神。虽然此类项目的表面价值和需求持续增长,但在传统癌症护理中心的支持下,很少提供住宿社会心理项目,而且很少有工作来检查疗养项目作为提供社会心理服务的有效论坛的性质和可能的效果。
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引用次数: 16
All Things Must Pass—A Reprise 一切都必须过去——再来一次
Pub Date : 2002-10-29 DOI: 10.1046/j.1523-5394.2002.106010.x
G. V. Foley , RN, MSN, OCN, CNAA
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引用次数: 0
Darbepoetin Alfa Darbepoetin:其在癌症患者中的应用综述。
Pub Date : 2002-10-29 DOI: 10.1046/j.1523-5394.2002.106009.x
Laura L. Jung pharmd, Rowena N. Schwartz pharmd, bcop
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引用次数: 4
Perceived Risk of Breast Cancer 乳腺癌的感知风险
Pub Date : 2002-09-20 DOI: 10.1046/j.1523-5394.2002.105005.x
Noreen C. Facione phd, rn

purpose: The purpose of this study was to examine the influence of heuristic reasoning on women's perceived risk for developing breast cancer, and to test for an expected bias in the direction of optimism that is predicted by recent research on human cognition.

description of study: In total, 770 women recruited in community settings were surveyed regarding cancer screening behavior and their perceived risk of developing breast cancer.

results: Most women perceived their risk of breast cancer to be lower than that of other women (3:1), confirming the expected bias toward optimism, and this finding was not attributable to the personality trait of optimism. Women following mammography guidelines showed greater optimism that their risk was low. Cancer knowledge and education diminished unwarranted optimism. Women with a history of benign breast disease, with a female relative with breast cancer, or both overestimated their risk. All findings suggest that heuristic thinking is being used to estimate personal cancer risk.

clinical implications: Clinicians should expect women to be optimistic about their personal risk of developing breast cancer. As a result, women may put off breast cancer screening or delay the evaluation of breast symptoms that may signal breast cancer. Helping women to understand their relative risk is an essential part of a health promotion visit.

目的:本研究的目的是检验启发式推理对女性患乳腺癌的感知风险的影响,并检验最近人类认知研究预测的乐观方向的预期偏差。研究描述:总共调查了770名在社区环境中招募的妇女,关于癌症筛查行为和她们患乳腺癌的感知风险。结果:大多数女性认为自己患乳腺癌的风险比其他女性低(3:1),证实了预期的乐观倾向,这一发现并不是乐观的人格特质造成的。遵循乳房x光检查指南的女性对其患病风险较低表现出更大的乐观态度。癌症知识和教育减少了毫无根据的乐观情绪。有良性乳腺病史的女性,有女性亲属患有乳腺癌的女性,或者两者都高估了自己的风险。所有的研究结果都表明,启发式思维正在被用于估计个人癌症风险。临床意义:临床医生应该期望女性对她们患乳腺癌的个人风险持乐观态度。因此,女性可能会推迟乳腺癌筛查或推迟对可能预示乳腺癌的乳房症状的评估。帮助妇女了解她们的相对风险是健康促进访问的重要组成部分。
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引用次数: 71
Indirect Economic Effects of Long-Term Breast Cancer Survival 乳腺癌长期生存的间接经济效应
Pub Date : 2002-09-20 DOI: 10.1046/j.1523-5394.2002.105004.x
Thomas N. Chirikos phd, Anita Russell-Jacobs mph , Alan B. Cantor phd

purpose: The indirect morbidity/disability costs of breast cancer may be rising as a consequence of the growth in the population of long-term survivors. This study was conducted to test whether women who have survived breast cancer for at least 5 years experience long-lasting or continuing economic consequences that are attributable to their disease.

description of study: A group of 105 women who initially had been treated for breast cancer approximately 5 years before were interviewed to obtain data on economic, demographic, and health changes in the period since diagnosis. An age-matched and work-matched group of 105 women without cancer also was interviewed to obtain the same data for the same time period. Key changes in the economic position of subjects and their families were measured, including changes in work effort, pay rates, and annual earnings of working women and changes in household earnings, income, and assets of all women.

results: These preliminary empirical findings suggest that breast cancer exacts an economic toll from long-term survivors. In particular, survivors who were working at the time of their diagnosis experienced significantly larger reductions in annual market earnings over the 5-year study period than did working control subjects. These losses appear to arise mostly from reduced work effort, not changes in pay rates. Also, changes in total household earnings were lower for survivors, suggesting the presence of family adjustments to the disease. However, no significant differences were detected between the groups in changes in total income or assets over the study period.

clinical implications: Clinicians and policy makers must seek ways to minimize the indirect economic losses that are attributable to breast cancer.

目的:乳腺癌的间接发病/残疾费用可能随着长期幸存者人数的增加而上升。本研究旨在测试乳腺癌存活至少5年的女性是否经历了长期或持续的经济后果,这些后果可归因于她们的疾病。研究描述:对105名最初接受乳腺癌治疗约5年的女性进行了访谈,以获取自诊断以来这段时间内的经济、人口和健康变化数据。另外,研究人员还采访了年龄和工作匹配的105名未患癌症的女性,以获得同一时期的相同数据。研究测量了受试者及其家庭经济地位的关键变化,包括工作女性的工作努力、工资率和年收入的变化,以及所有女性家庭收入、收入和资产的变化。结果:这些初步的实证研究结果表明,乳腺癌对长期幸存者造成了经济损失。特别是,在诊断时工作的幸存者在5年的研究期间,其年市场收入的下降幅度明显大于工作的对照组。这些损失似乎主要来自工作努力的减少,而不是工资水平的变化。此外,幸存者的家庭总收入变化较低,表明家庭对疾病的调整存在。然而,在研究期间,两组之间的总收入或资产变化没有发现显著差异。临床意义:临床医生和政策制定者必须设法减少乳腺癌造成的间接经济损失。
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引用次数: 126
The Resiliency of the Human Spirit 人类精神的弹性
Pub Date : 2002-09-20 DOI: 10.1046/j.1523-5394.2002.105008.x
Genevieve V. Foley rn, msn, ocn, cnna
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引用次数: 1
Developing Cancer Clinical Trial Resources for Native Americans 为美洲原住民开发癌症临床试验资源
Pub Date : 2002-09-20 DOI: 10.1046/j.1523-5394.2002.105006.x
Margo Boesch msw
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引用次数: 2
Diagnosing Breast Cancer with Synchronous Metastatic Melanoma 诊断乳腺癌伴同步转移性黑色素瘤
Pub Date : 2002-09-20 DOI: 10.1046/j.1523-5394.2002.105007.x
Lisa K. Bond md , Ralp Vance md , David Berd md , John M. Kirkwood md , Hester Hill Schnipper licsw , bcd
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引用次数: 3
期刊
Cancer practice
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