Sonal Gandhi, Drew Moss, Richard Stephen Sheppard, Ibrahim Omore, Fionnuala Crowley, Tianxiang Sheng, Linda Wu, Deirdre Jill Cohen, Cardinale B Smith
{"title":"Examining the impact of specialty palliative care consultation in patients with metastatic pancreatic cancer: evaluating use at an NCI designated cancer center.","authors":"Sonal Gandhi, Drew Moss, Richard Stephen Sheppard, Ibrahim Omore, Fionnuala Crowley, Tianxiang Sheng, Linda Wu, Deirdre Jill Cohen, Cardinale B Smith","doi":"10.21037/apm-24-121","DOIUrl":"https://doi.org/10.21037/apm-24-121","url":null,"abstract":"","PeriodicalId":7956,"journal":{"name":"Annals of palliative medicine","volume":"14 1","pages":"101-104"},"PeriodicalIF":0.0,"publicationDate":"2025-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143439719","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Julia Thiesbonenkamp-Maag, Christina Gerlach, Guido Sprenger, Johannes Eurich, Bernd Alt-Epping
Background: In the majority of cultures, death is accompanied by a series of rituals that assist the bereaved in coping with this significant transition. However, there is a paucity of empirical literature on the organisation of such rituals. The objective of this multidisciplinary study was to collate an inventory of rituals and ritual elements. This data will be employed to develop a repertoire of rituals. The research was conducted in Germany. The participants in the second phase were primarily hospital chaplains. Consequently, the data collected primarily related to rituals anchored in a Christian context.
Methods: We initiated a multidisciplinary research project (palliative medicine, cultural anthropology, theology) on rituals in end-of-life care. The study employed a mixed-methods approach, comprising three phases, and was conducted in Germany. In this paper, we present the results of a survey on professionals conducted using an online questionnaire. The aim was to explore the general understanding, demands, practices and further suggestions from clinical practice (phase 2). The questionnaire consisted of both open and closed questions. It should be noted that the survey did not enquire about the respondents' religious affiliation. The responses to the closed questions were analysed statistically, while the open-ended responses were analysed qualitatively.
Results: A total of 299 questionnaires were completed, primarily by chaplains, nurses, and doctors. The respondents described a wide range of rituals, and across all professions, there was a high to medium perceived need for the use of rituals for patients nearing the end of their lives and their relatives. Rituals at the end of life were found to be highly relevant in terms of providing support and structure, expressing emotions, and experiencing community. The spectrum of rituals extends from established and extensive religious rituals to smaller everyday actions that are elevated to the status of rituals.
Conclusions: As religious traditions are no longer practised by an increasing number of people; it may be reasonable to develop new rituals for the dying phase that can be adapted and used by palliative care staff to suit the respective context. These rituals could make a valuable contribution to the care of the dying, their relatives and the professional team.
{"title":"Preparing for death: a survey on rituals in the dying phase in the Christian context in Germany.","authors":"Julia Thiesbonenkamp-Maag, Christina Gerlach, Guido Sprenger, Johannes Eurich, Bernd Alt-Epping","doi":"10.21037/apm-24-119","DOIUrl":"https://doi.org/10.21037/apm-24-119","url":null,"abstract":"<p><strong>Background: </strong>In the majority of cultures, death is accompanied by a series of rituals that assist the bereaved in coping with this significant transition. However, there is a paucity of empirical literature on the organisation of such rituals. The objective of this multidisciplinary study was to collate an inventory of rituals and ritual elements. This data will be employed to develop a repertoire of rituals. The research was conducted in Germany. The participants in the second phase were primarily hospital chaplains. Consequently, the data collected primarily related to rituals anchored in a Christian context.</p><p><strong>Methods: </strong>We initiated a multidisciplinary research project (palliative medicine, cultural anthropology, theology) on rituals in end-of-life care. The study employed a mixed-methods approach, comprising three phases, and was conducted in Germany. In this paper, we present the results of a survey on professionals conducted using an online questionnaire. The aim was to explore the general understanding, demands, practices and further suggestions from clinical practice (phase 2). The questionnaire consisted of both open and closed questions. It should be noted that the survey did not enquire about the respondents' religious affiliation. The responses to the closed questions were analysed statistically, while the open-ended responses were analysed qualitatively.</p><p><strong>Results: </strong>A total of 299 questionnaires were completed, primarily by chaplains, nurses, and doctors. The respondents described a wide range of rituals, and across all professions, there was a high to medium perceived need for the use of rituals for patients nearing the end of their lives and their relatives. Rituals at the end of life were found to be highly relevant in terms of providing support and structure, expressing emotions, and experiencing community. The spectrum of rituals extends from established and extensive religious rituals to smaller everyday actions that are elevated to the status of rituals.</p><p><strong>Conclusions: </strong>As religious traditions are no longer practised by an increasing number of people; it may be reasonable to develop new rituals for the dying phase that can be adapted and used by palliative care staff to suit the respective context. These rituals could make a valuable contribution to the care of the dying, their relatives and the professional team.</p>","PeriodicalId":7956,"journal":{"name":"Annals of palliative medicine","volume":"14 1","pages":"79-89"},"PeriodicalIF":0.0,"publicationDate":"2025-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143439822","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Supportive care after breast cancer.","authors":"Charles B Simone","doi":"10.21037/apm-24-163","DOIUrl":"https://doi.org/10.21037/apm-24-163","url":null,"abstract":"","PeriodicalId":7956,"journal":{"name":"Annals of palliative medicine","volume":"13 6","pages":"1556-1558"},"PeriodicalIF":0.0,"publicationDate":"2024-11-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142778725","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2024-11-01Epub Date: 2024-09-19DOI: 10.21037/apm-24-86
Noora Reffat, Matthew McLaughlin, Alaa Abd-Elsayed
Radiofrequency ablation (RFA) is a neuromodulation technique that uses electrocautery to damage nerves with thermal energy and interrupt nociception and has primarily been used to treat patients with chronic back pain. While the use of RFA to modulate neuronal innervation of cervical and lumbar facet joints is well studied, research on the applications of RFA to target the thoracic spine is limited despite these facet joints accounting for pain in over 25% of patients with chronic mid-back and upper-back pain. The purpose of this paper is thus to describe RFA and its utilization in the thoracic spine for chronic back pain. A review of the literature on PubMed was conducted to identify primary evidence for RFA with a focus on only the thoracic spine. Nine papers were identified and reviewed in this article. Primary literature published on RFA-naive patients with thoracic facet joint pain has provided evidence in support of RFA for short-term and long-term pain relief in this spinal region. However, all but two of these studies utilized a cohort study design. Future studies with larger patient cohorts or that utilize a randomized control trial study design are crucial to better establish the effectiveness and long-term utility of this neuromodulation technique.
{"title":"Advances in radiofrequency ablation for thoracic spine pain.","authors":"Noora Reffat, Matthew McLaughlin, Alaa Abd-Elsayed","doi":"10.21037/apm-24-86","DOIUrl":"10.21037/apm-24-86","url":null,"abstract":"<p><p>Radiofrequency ablation (RFA) is a neuromodulation technique that uses electrocautery to damage nerves with thermal energy and interrupt nociception and has primarily been used to treat patients with chronic back pain. While the use of RFA to modulate neuronal innervation of cervical and lumbar facet joints is well studied, research on the applications of RFA to target the thoracic spine is limited despite these facet joints accounting for pain in over 25% of patients with chronic mid-back and upper-back pain. The purpose of this paper is thus to describe RFA and its utilization in the thoracic spine for chronic back pain. A review of the literature on PubMed was conducted to identify primary evidence for RFA with a focus on only the thoracic spine. Nine papers were identified and reviewed in this article. Primary literature published on RFA-naive patients with thoracic facet joint pain has provided evidence in support of RFA for short-term and long-term pain relief in this spinal region. However, all but two of these studies utilized a cohort study design. Future studies with larger patient cohorts or that utilize a randomized control trial study design are crucial to better establish the effectiveness and long-term utility of this neuromodulation technique.</p>","PeriodicalId":7956,"journal":{"name":"Annals of palliative medicine","volume":" ","pages":"1458-1465"},"PeriodicalIF":0.0,"publicationDate":"2024-11-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142279547","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2024-11-01Epub Date: 2024-10-18DOI: 10.21037/apm-24-78
Malika Peera, Samantha K F Kennedy, Jashmira K Bhinder, John J Wu, Kritika Sharma, Henry C Y Wong, Elwyn Zhang, Adrian W Chan, Shing Fung Lee, Darren Haywood, Deborah Kirk, Helena Guedes, Carla Thamm, Jennifer Y Y Kwan, Muna Alkhaifi
Background and objective: Breast cancer (BC) is the most prevalent cancer among women worldwide. With a growing number of BC survivors (BCSs), the number of survivors who require high-quality survivorship care is increasing. Various recommendations have been proposed for survivorship care plans (SCPs). However, globally, limited progress has been made to implement these recommendations consistently in cancer care centers. This review explores the gaps and challenges that exist in BC survivorship care (BCSC) and proposes future directions for improving survivorship care for patients and the healthcare system.
Methods: Current literature on BCSC was searched using PubMed and Google Scholar. The search strategy utilized a combination of keywords related to BCSC, gaps in survivorship care, and health promotion. Retrievable and English articles from January 2000 to March 2024 were included in the review.
Key content and findings: Despite the large number of guidelines and recommendations on best BCSC practices, only a small number of these have been translated into clinical practices that help streamline patient care. There are many gaps to the provision of high-quality survivorship care, all of which negatively affect patient outcomes. Some of these gaps include but are not limited to: the limited role of primary care providers (PCPs), lack of coordination of care, lack of evidence-based research, insufficient data on health promotion, and challenges implementing comprehensive care.
Conclusions: These findings indicate the need for a holistic and personalized approach to BCSC. The importance of implementing a multi-disciplinary and coordinated approach to survivorship care has been emphasized. This includes further involvement of PCPs, through increased training for PCPs in survivorship care. Despite available models of survivorship care, further research is needed to determine optimal BCSC that improves patient outcomes while decreasing the strain on the healthcare system. Additionally, technology can play a beneficial role in survivorship care, especially through telehealth and artificial intelligence (AI). Nonetheless, further research is needed on BCSC.
{"title":"Breast cancer survivorship care: a narrative review of challenges and future directions.","authors":"Malika Peera, Samantha K F Kennedy, Jashmira K Bhinder, John J Wu, Kritika Sharma, Henry C Y Wong, Elwyn Zhang, Adrian W Chan, Shing Fung Lee, Darren Haywood, Deborah Kirk, Helena Guedes, Carla Thamm, Jennifer Y Y Kwan, Muna Alkhaifi","doi":"10.21037/apm-24-78","DOIUrl":"10.21037/apm-24-78","url":null,"abstract":"<p><strong>Background and objective: </strong>Breast cancer (BC) is the most prevalent cancer among women worldwide. With a growing number of BC survivors (BCSs), the number of survivors who require high-quality survivorship care is increasing. Various recommendations have been proposed for survivorship care plans (SCPs). However, globally, limited progress has been made to implement these recommendations consistently in cancer care centers. This review explores the gaps and challenges that exist in BC survivorship care (BCSC) and proposes future directions for improving survivorship care for patients and the healthcare system.</p><p><strong>Methods: </strong>Current literature on BCSC was searched using PubMed and Google Scholar. The search strategy utilized a combination of keywords related to BCSC, gaps in survivorship care, and health promotion. Retrievable and English articles from January 2000 to March 2024 were included in the review.</p><p><strong>Key content and findings: </strong>Despite the large number of guidelines and recommendations on best BCSC practices, only a small number of these have been translated into clinical practices that help streamline patient care. There are many gaps to the provision of high-quality survivorship care, all of which negatively affect patient outcomes. Some of these gaps include but are not limited to: the limited role of primary care providers (PCPs), lack of coordination of care, lack of evidence-based research, insufficient data on health promotion, and challenges implementing comprehensive care.</p><p><strong>Conclusions: </strong>These findings indicate the need for a holistic and personalized approach to BCSC. The importance of implementing a multi-disciplinary and coordinated approach to survivorship care has been emphasized. This includes further involvement of PCPs, through increased training for PCPs in survivorship care. Despite available models of survivorship care, further research is needed to determine optimal BCSC that improves patient outcomes while decreasing the strain on the healthcare system. Additionally, technology can play a beneficial role in survivorship care, especially through telehealth and artificial intelligence (AI). Nonetheless, further research is needed on BCSC.</p>","PeriodicalId":7956,"journal":{"name":"Annals of palliative medicine","volume":" ","pages":"1502-1512"},"PeriodicalIF":0.0,"publicationDate":"2024-11-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142456525","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2024-11-01Epub Date: 2024-11-07DOI: 10.21037/apm-24-102
Stephanie Wang, Edward Christopher Dee, Charles B Simone, Puneeth Iyengar
{"title":"Stepped palliative care: considerations for equitable implementation.","authors":"Stephanie Wang, Edward Christopher Dee, Charles B Simone, Puneeth Iyengar","doi":"10.21037/apm-24-102","DOIUrl":"10.21037/apm-24-102","url":null,"abstract":"","PeriodicalId":7956,"journal":{"name":"Annals of palliative medicine","volume":" ","pages":"1537-1540"},"PeriodicalIF":0.0,"publicationDate":"2024-11-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142613464","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Background: Recognizing and appropriately treating symptoms of suffering in patients receiving palliative care is a means to enhance the quality of life for both the patient and their family. The objective of this study was to determine the proportion of pharmacological treatments for symptoms of suffering and prescribing patterns in hospitalized patients receiving palliative care at a tertiary care government general hospital.
Methods: This retrospective study was conducted at the Prachuapkhirikhan Hospital, Thailand. All patients over 18 years old who were admitted to the hospital and received palliative care were included. Data were collected from medical charts and analyzed using descriptive statistics.
Results: During the 3-year period of study, 296 admissions were included. Cancer, cardiovascular disease, and infectious disease were the top three primary diseases for which patients received palliative care. Dyspnea was the most reported symptom of suffering (81.08%), followed by fatigue, constipation, and pain (41.89%, 35.14%, and 25.34%, respectively). All cases experienced fatigue, depression, insomnia, and anxiety received pharmacological treatment. Dyspnea, pain, nausea/vomiting, delirium, and malignant bowel obstruction were treated in at least 80% of the cases experiencing suffering. Constipation, diarrhea, and anorexia/cachexia were treated in approximately 66.35%, 78.57%, and 67.86% of the cases, respectively. Strong opioids were the most commonly used medication for the treatment of dyspnea or pain.
Conclusions: Our study revealed that suffering symptoms were routinely identified in hospitalized palliative care patients. Pharmacological treatments were prescribed to manage most of these symptoms. However, there is a need to improve the quality of assessing suffering symptoms severity to enhance their effectiveness.
{"title":"Prescribed medications for alleviating suffering symptoms in patients receiving palliative care at a tertiary care hospital.","authors":"Arisara Saetan, Busba Chindavijak, Naeti Suksomboon, Thanarat Suansanae","doi":"10.21037/apm-24-52","DOIUrl":"10.21037/apm-24-52","url":null,"abstract":"<p><strong>Background: </strong>Recognizing and appropriately treating symptoms of suffering in patients receiving palliative care is a means to enhance the quality of life for both the patient and their family. The objective of this study was to determine the proportion of pharmacological treatments for symptoms of suffering and prescribing patterns in hospitalized patients receiving palliative care at a tertiary care government general hospital.</p><p><strong>Methods: </strong>This retrospective study was conducted at the Prachuapkhirikhan Hospital, Thailand. All patients over 18 years old who were admitted to the hospital and received palliative care were included. Data were collected from medical charts and analyzed using descriptive statistics.</p><p><strong>Results: </strong>During the 3-year period of study, 296 admissions were included. Cancer, cardiovascular disease, and infectious disease were the top three primary diseases for which patients received palliative care. Dyspnea was the most reported symptom of suffering (81.08%), followed by fatigue, constipation, and pain (41.89%, 35.14%, and 25.34%, respectively). All cases experienced fatigue, depression, insomnia, and anxiety received pharmacological treatment. Dyspnea, pain, nausea/vomiting, delirium, and malignant bowel obstruction were treated in at least 80% of the cases experiencing suffering. Constipation, diarrhea, and anorexia/cachexia were treated in approximately 66.35%, 78.57%, and 67.86% of the cases, respectively. Strong opioids were the most commonly used medication for the treatment of dyspnea or pain.</p><p><strong>Conclusions: </strong>Our study revealed that suffering symptoms were routinely identified in hospitalized palliative care patients. Pharmacological treatments were prescribed to manage most of these symptoms. However, there is a need to improve the quality of assessing suffering symptoms severity to enhance their effectiveness.</p>","PeriodicalId":7956,"journal":{"name":"Annals of palliative medicine","volume":" ","pages":"1362-1370"},"PeriodicalIF":0.0,"publicationDate":"2024-11-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142279562","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2024-11-01Epub Date: 2024-11-07DOI: 10.21037/apm-22-1435
Brian D Mikolasko, Khaldoun Almhanna, Dana Guyer
Hepatobiliary malignancies (HBMs), primarily hepatocellular carcinoma (HCC) and cholangiocarcinoma (CCA), share the common traits of having a generally poor prognosis, late presentation, and high symptom burden related to both the disease process itself and underlying poor liver function. The incidences of both malignancies have been rising in recent decades for unclear reasons. Curative options remain limited given the general aggressive disease course despite advances in diagnosis, therapies, and surgery. Early integration of palliative care into the routine care of patients with HBMs is an essential, but underutilized, component of care to improve the functional and symptomatic quality of the lives of patients and their families. While formal guidelines for its integration are currently lacking, palliative care can and should be provided in parallel to disease specific care at any stage to address the physical, emotional, and spiritual needs of patients with HBMs. In this review, the special needs of this patient population are examined ranging from early symptom management at the time of diagnosis all the way through to end-of-life care. Key barriers that prevent the early provision of palliative care for patients with HBMs are identified and discussed and recommendations provided on how to improve early integration.
{"title":"Palliative care and hepatobiliary malignancies: say no to late referral.","authors":"Brian D Mikolasko, Khaldoun Almhanna, Dana Guyer","doi":"10.21037/apm-22-1435","DOIUrl":"10.21037/apm-22-1435","url":null,"abstract":"<p><p>Hepatobiliary malignancies (HBMs), primarily hepatocellular carcinoma (HCC) and cholangiocarcinoma (CCA), share the common traits of having a generally poor prognosis, late presentation, and high symptom burden related to both the disease process itself and underlying poor liver function. The incidences of both malignancies have been rising in recent decades for unclear reasons. Curative options remain limited given the general aggressive disease course despite advances in diagnosis, therapies, and surgery. Early integration of palliative care into the routine care of patients with HBMs is an essential, but underutilized, component of care to improve the functional and symptomatic quality of the lives of patients and their families. While formal guidelines for its integration are currently lacking, palliative care can and should be provided in parallel to disease specific care at any stage to address the physical, emotional, and spiritual needs of patients with HBMs. In this review, the special needs of this patient population are examined ranging from early symptom management at the time of diagnosis all the way through to end-of-life care. Key barriers that prevent the early provision of palliative care for patients with HBMs are identified and discussed and recommendations provided on how to improve early integration.</p>","PeriodicalId":7956,"journal":{"name":"Annals of palliative medicine","volume":" ","pages":"1466-1475"},"PeriodicalIF":0.0,"publicationDate":"2024-11-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142613463","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Saim Mahmood Khan, Muhammad Saad Shaikh, Eiman Anwar, Mahrairah Iqbal
{"title":"Evaluating the cost-effectiveness of KOPAL trial: a critical review.","authors":"Saim Mahmood Khan, Muhammad Saad Shaikh, Eiman Anwar, Mahrairah Iqbal","doi":"10.21037/apm-24-130","DOIUrl":"https://doi.org/10.21037/apm-24-130","url":null,"abstract":"","PeriodicalId":7956,"journal":{"name":"Annals of palliative medicine","volume":"13 6","pages":"1545-1547"},"PeriodicalIF":0.0,"publicationDate":"2024-11-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142779428","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}