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A comparison of developmental versus functional assessment in the rehabilitation of young children. 幼儿康复中发育评估与功能评估的比较。
Pub Date : 2005-04-01 DOI: 10.1080/13638490400022287
C E Long, J A Blackman, W J Farrell, M E Smolkin, M R Conaway

Background: The purpose of this study was to explore the differences in and potential uses of information derived from developmental vs. functional assessment during the acute rehabilitation of very young children with acquired brain injury. Both methods of assessment are typically used during hospitalization in order to assist in developing individualized goals and outcome measures. With the trend of shortened hospital stays, effective assessment for determining optimal treatment goals and outcomes becomes increasingly important. The results from a developmental and a functional assessment obtained on 23 inpatient children below 6 years of age who had experienced either an acquired brain injury or encephalitis were compared. The data was collected through a retrospective chart review spanning 4 years.

Methods and outcome measures: Each child received a cognitive and a language test using either the Early Learning Accomplishment Profile (E-LAP) or the Learning Accomplishment Profile Diagnostic (LAP-D) for the developmental assessment measure. The Functional Independence Measure for Children (WeeFIM) was used as a functional assessment. Summary statistics and frequencies were calculated for variables including age and diagnosis. Partial Pearson correlations and 95% confidence intervals were calculated between the functional and developmental assessments, adjusting for the amount of time between administrations of the two exams. Pearson correlations were computed between length of hospital stay and performance on the developmental and functional quotients.

Results: Moderate, statistically significant Pearson partial correlations were found between the E-LAP/LAP-D cognitive quotient and the WeeFIM cognitive quotient (r = 0.42, 95% CI (0, 0.72)), the E-LAP/LAP-D language quotient and the WeeFIM cognitive quotient (r = 0.55, 95% CI (0.17, 0.79)) and the E-LAP/LAP-D cognitive quotient and the WeeFIM total quotient (r = 0.50, 95% CI (0.10, 0.76)). An inverse correlation was found between the length of stay and the E-LAP/ LAP-D cognitive quotient (r = -0.68, 95% CI (-0.86, -0.34)) as well as the E-LAP/LAP-D language quotient (r = -0.61, 95% CI (-0.83, -0.23)).

Conclusions: The moderate but limited correlations between developmental and functional assessments may be attributed to differences in the two forms of assessment including the test items, their administration and scoring. While both forms of assessment were thought to be useful for developing individualized treatment goals and measuring outcomes, there were advantages and disadvantages to each.

背景:本研究的目的是探讨在非常年幼的后天性脑损伤儿童的急性康复过程中,发育与功能评估信息的差异和潜在用途。这两种评估方法通常在住院期间使用,以帮助制定个性化目标和结果测量。随着住院时间的缩短,有效的评估对确定最佳治疗目标和结果变得越来越重要。对23例经历后天性脑损伤或脑炎的6岁以下住院儿童进行了发育和功能评估。数据是通过4年的回顾性图表审查收集的。方法和结果测量:每个孩子都接受了认知和语言测试,使用早期学习成就概况(E-LAP)或学习成就概况诊断(LAP-D)作为发展评估措施。采用儿童功能独立性量表(WeeFIM)进行功能评估。计算年龄和诊断等变量的汇总统计和频率。计算功能和发育评估之间的部分Pearson相关性和95%置信区间,调整两次考试之间的时间间隔。在发展和功能商数上计算住院时间与表现之间的Pearson相关性。结果:E-LAP/LAP-D认知商数与WeeFIM认知商数(r = 0.42, 95% CI(0,0.72))、E-LAP/LAP-D语言商数与WeeFIM认知商数(r = 0.55, 95% CI(0.17, 0.79))、E-LAP/LAP-D认知商数与WeeFIM总商数(r = 0.50, 95% CI(0.10, 0.76))之间存在中度、统计学显著的Pearson偏相关。研究发现,住院时间与E-LAP/LAP-D认知商(r = -0.68, 95% CI(-0.86, -0.34))以及E-LAP/LAP-D语言商(r = -0.61, 95% CI(-0.83, -0.23))呈负相关。结论:发育评估和功能评估之间存在适度但有限的相关性,这可能是由于两种评估形式的差异,包括测试项目、使用方法和评分。虽然这两种形式的评估都被认为对制定个性化治疗目标和衡量结果有用,但每种评估都有其优缺点。
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引用次数: 22
Speech rehabilitation in 10 Spanish-speaking children with severe cerebral palsy: a 4-year longitudinal study. 10例严重脑瘫西班牙语儿童的语言康复:一项为期4年的纵向研究。
Pub Date : 2005-04-01 DOI: 10.1080/13638490400025322
M Puyuelo, J A Rondal

A 4-year longitudinal intervention was conducted with 10 young severely dysarthric children with cerebral palsy. Two procedures were implemented, each one for a period of 2 years. The first procedure centred on training the oral praxies, whereas the second one favoured a more functional approach based on voice and prosody training as well as parents' and school teachers' involvement. Bobath neurodevelopmental treatment was given throughout the 4-year period. Results clearly favour the second type of procedure which in interaction with Bobath's technique proved able to bring the children from unintelligible to an acceptable level of functional speech.

对10名年轻的重度运动障碍脑瘫儿童进行了为期4年的纵向干预。实施了两个程序,每个程序为期2年。第一个过程集中在口头行为的训练上,而第二个过程则倾向于基于声音和韵律训练以及家长和学校老师参与的更实用的方法。在整个4年的时间里,都给予了巴斯神经发育治疗。结果明显倾向于第二种类型的程序,与Bobath的技术相互作用,证明能够将儿童从无法理解的功能语言提高到可接受的水平。
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引用次数: 22
Saint or sinner? Teacher perceptions of a child with traumatic brain injury. 圣人还是罪人?教师对创伤性脑损伤儿童的看法。
Pub Date : 2005-04-01 DOI: 10.1080/13638490500037847
C A Hawley

Purpose: To examine influences on classroom performance and behaviour following traumatic brain injury (TBI).

Methods: A case-study of one child who suffered a moderate TBI, with frontal brain damage, aged 8, followed up at ages 12 and 13 years. Parents and child were interviewed to establish pre- and post-injury behaviour and functioning. All 19 teachers who taught the child reported on classroom performance, behaviour and educational achievement in each of their subjects. The child completed a comprehensive neuropsychological assessment battery including the Weschler Intelligence Scale for Children (WISC-III(UK)), Children's Memory Scale (CMS) and Vineland Adaptive Behaviour Scales (VABS).

Results: This child demonstrated above-average intelligence and good attention/concentration on the CMS. However, he was unable to focus or maintain attention in most classroom situations. His behaviour was erratic and disruptive in class and at home. At 5-year follow-up, his behaviour had deteriorated in both home and school situations, particularly in less structured environments.

Conclusions: Teachers of more structured subjects (maths and science) perceived the child as excitable but performing at average or above-average levels, whereas teachers of less structured subjects (art, drama, music) perceived him to be 'attention-seeking' and very disruptive in class. The influences of environmental factors are discussed.

目的:探讨创伤性脑损伤(TBI)对学生课堂表现和行为的影响。方法:对1例8岁中度脑外伤伴额叶脑损伤儿童进行随访,随访时间分别为12岁和13岁。对父母和孩子进行访谈,以确定受伤前后的行为和功能。教这名孩子的19名教师都报告了他们每个科目的课堂表现、行为和教育成就。儿童完成了包括Weschler儿童智力量表(WISC-III(UK))、儿童记忆量表(CMS)和Vineland适应行为量表(VABS)在内的综合神经心理学评估。结果:患儿表现出高于平均水平的智力和良好的注意力/注意力集中。然而,在大多数课堂情况下,他无法集中注意力或保持注意力。无论是在课堂上还是在家里,他的行为都很不稳定,具有破坏性。在5年的随访中,他的行为在家庭和学校环境中都有所恶化,特别是在结构较松散的环境中。结论:教授结构化科目(数学和科学)的老师认为这个孩子很容易兴奋,但表现在平均水平或高于平均水平,而教授结构化科目(艺术、戏剧、音乐)的老师则认为他“喜欢引人注意”,在课堂上很有破坏性。讨论了环境因素的影响。
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引用次数: 14
Developing behavioural services to meet defined standards within a national system of specialist education services. 发展行为服务,以符合国家专业教育服务系统内的规定标准。
Pub Date : 2005-04-01 DOI: 10.1080/13638490400024036
Gary W LaVigna, Leeann Christian, Thomas J Willis

In response to increasing demand for more accountability and improved outcomes in the provision of behavioural services, Specialist Education Services (SES) in New Zealand employed the trainer of trainers programme developed by the Institute for Applied Behaviour Analysis (IABA). The goal was to develop a national training team capable of training SES staff to carry out assessments and develop support plans that could meet defined standards. The purpose of this study was to evaluate the outcomes of this trainer of trainers project. The primary methods of evaluation included the pre-post training comparisons of trainees' functional assessments and positive behaviour support plans, against 140 defined criteria. The results of this project indicated that the SES national training team was able to train SES staff to meet the same standards of service delivery as the external IABA trainers. Further, a Periodic Service Review (PSR) system was implemented to insure that service standards could be maintained at a high level. A major conclusion reached in this study was that a trainer of trainer approach appears to be effective in preparing large numbers of educational personnel to meet the increasing demands by schools for professionals to meet a high standard of service delivery.

为了响应对行为服务提供的更多问责制和改善结果的日益增长的需求,新西兰的专业教育服务(SES)采用了由应用行为分析研究所(IABA)开发的培训师培训师计划。目标是建立一个国家培训小组,能够培训社会服务系统工作人员进行评估和制定符合规定标准的支助计划。本研究的目的是评估这个培训师的培训师项目的结果。评估的主要方法包括培训前后对受训者的功能评估和积极行为支持计划进行比较,对照140个确定的标准。这个项目的结果表明,社会服务系统国家培训小组能够培训社会服务系统工作人员,使其达到与外部机构间律师协会培训人员相同的服务提供标准。此外,还实施了定期服务审查(PSR)制度,以确保服务标准能够维持在高水平。这项研究得出的一项主要结论是,培训师的培训师办法似乎有效地培养了大批教育人员,以满足学校对专业人员日益增加的要求,以达到高标准的服务提供。
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引用次数: 32
Voices from the past: early institutional experience of children with disabilities--the case of Scotland. 来自过去的声音:残疾儿童的早期机构经验——以苏格兰为例。
Pub Date : 2005-01-01 DOI: 10.1080/13638490410001727455
Iain Hutchison

In the countries of the western world, the institutional option for confining and endeavouring to 'correct' traits and attributes of people who did not conform to a rising consciousness of 'normalcy' developed rapidly during the 19th century. Scotland, a small, but rapidly urbanizing and industrializing country on the edge of Europe, was not an exception, but in its adoption of the institutional option for children with disabilities, its responses and objectives to different forms of impairment followed an uneven path. This article considers the reason for this erratic response, and the varied objectives of those responses, in the context of different forms of impairment and the differing interests of those with a professional or philanthropic involvement. The responses of some of the children directly affected are also considered.

在西方国家,限制和努力“纠正”那些不符合“正常”意识的人的特征和属性的制度选择在19世纪迅速发展起来。苏格兰是欧洲边缘的一个虽小但正在迅速城市化和工业化的国家,它也不例外,但在为残疾儿童采取体制选择时,它对不同形式的残疾的反应和目标走的是一条不平衡的道路。本文考虑了这种不稳定反应的原因,以及这些反应的不同目标,在不同形式的损害和专业或慈善参与的不同利益的背景下。还考虑了一些直接受到影响的儿童的反应。
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引用次数: 3
Lower extremity sensory function in children with cerebral palsy. 脑瘫患儿下肢感觉功能的变化。
Pub Date : 2005-01-01 DOI: 10.1080/13638490400011181
John F McLaughlin, Steven D Felix, Sogol Nowbar, Anne Ferrel, Kristie Bjornson, Ross M Hays

Objectives: (1) To determine the feasibility of qualitative sensory testing in the lower extremities (LE) of children with cerebral palsy (CP), especially spastic diplegia. (2) To determine if there is a detectable difference in qualitative LE sensory function in children with CP compared to typical children. (3) To determine if dorsal rhizotomy results in detectable changes in LE sensory function in children with spastic diplegia.

Design: Objectives 1 and 2: Prospective observational cohort study. Objective 3: Add-on to prospective interventional studies.

Setting: Regional tertiary children's hospital.

Participants: Objectives 1 and 2: 62 children with CP and 65 typical children between 3-18 years of age. Objective 3: 34 children with spastic diplegia.

Interventions: Objectives 1 and 2: None. Objective 3: Dorsal rhizotomy.

Main outcome measures: Pain, light touch, direction of scratch, vibration, toe position and knee position using standard qualitative techniques.

Results: Objective 1: 32 (52%) children with CP and 55 (85%) typical children completed all items (p = 0.09). Objective 2: Summary scores for separate LE sensory modalities were lower in children with CP for direction of scratch (p < 0.001), toe position (p = 0.01) and vibration sense (p = 0.01). Objective 3: No changes of LE sensory function.

Conclusions: LE sensory testing in young children with CP is feasible. There is a qualitative sensory deficit in this sample of children with CP and specifically in children with spastic diplegia that is traditionally associated with dorsal column sensory modalities. A conservative dorsal rhizotomy does not produce a measurable change in LE sensory function in this sample of children with spastic diplegia.

目的:(1)探讨脑瘫特别是痉挛性双瘫患儿下肢感官定性检测的可行性。(2)确定CP患儿的定性LE感觉功能与正常患儿相比是否存在可检测的差异。(3)确定脊背神经根切断术是否会导致痉挛性双瘫儿童LE感觉功能的可检测变化。设计:目的1和2:前瞻性观察队列研究。目的3:前瞻性介入研究的补充。单位:地区三级儿童医院。参与者:目标1和2:62名CP儿童和65名3-18岁的典型儿童。目的3:34例痉挛性双瘫患儿。干预措施:目标1和2:无。目的3:背根切断术。主要结果测量:疼痛、轻触、划伤方向、振动、脚趾位置和膝关节位置,采用标准定性技术。结果:目的1:32例CP患儿(52%)和55例典型患儿(85%)完成了所有项目(p = 0.09)。目的2:CP患儿在抓痕方向(p < 0.001)、脚趾位置(p = 0.01)和振动感觉(p = 0.01)上的单独LE感觉模式的综合得分较低。目的3:LE感觉功能无改变。结论:幼儿CP的LE感觉检测是可行的。在这个患有CP的儿童样本中,特别是在痉挛性双瘫的儿童中,存在定性的感觉缺陷,传统上与背柱感觉模式有关。保守的背根切断术不会对痉挛性双瘫患儿的LE感觉功能产生可测量的改变。
{"title":"Lower extremity sensory function in children with cerebral palsy.","authors":"John F McLaughlin,&nbsp;Steven D Felix,&nbsp;Sogol Nowbar,&nbsp;Anne Ferrel,&nbsp;Kristie Bjornson,&nbsp;Ross M Hays","doi":"10.1080/13638490400011181","DOIUrl":"https://doi.org/10.1080/13638490400011181","url":null,"abstract":"<p><strong>Objectives: </strong>(1) To determine the feasibility of qualitative sensory testing in the lower extremities (LE) of children with cerebral palsy (CP), especially spastic diplegia. (2) To determine if there is a detectable difference in qualitative LE sensory function in children with CP compared to typical children. (3) To determine if dorsal rhizotomy results in detectable changes in LE sensory function in children with spastic diplegia.</p><p><strong>Design: </strong>Objectives 1 and 2: Prospective observational cohort study. Objective 3: Add-on to prospective interventional studies.</p><p><strong>Setting: </strong>Regional tertiary children's hospital.</p><p><strong>Participants: </strong>Objectives 1 and 2: 62 children with CP and 65 typical children between 3-18 years of age. Objective 3: 34 children with spastic diplegia.</p><p><strong>Interventions: </strong>Objectives 1 and 2: None. Objective 3: Dorsal rhizotomy.</p><p><strong>Main outcome measures: </strong>Pain, light touch, direction of scratch, vibration, toe position and knee position using standard qualitative techniques.</p><p><strong>Results: </strong>Objective 1: 32 (52%) children with CP and 55 (85%) typical children completed all items (p = 0.09). Objective 2: Summary scores for separate LE sensory modalities were lower in children with CP for direction of scratch (p < 0.001), toe position (p = 0.01) and vibration sense (p = 0.01). Objective 3: No changes of LE sensory function.</p><p><strong>Conclusions: </strong>LE sensory testing in young children with CP is feasible. There is a qualitative sensory deficit in this sample of children with CP and specifically in children with spastic diplegia that is traditionally associated with dorsal column sensory modalities. A conservative dorsal rhizotomy does not produce a measurable change in LE sensory function in this sample of children with spastic diplegia.</p>","PeriodicalId":79705,"journal":{"name":"Pediatric rehabilitation","volume":"8 1","pages":"45-52"},"PeriodicalIF":0.0,"publicationDate":"2005-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1080/13638490400011181","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"25030876","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 39
Potential benefits of physical activity for children with acute lymphoblastic leukaemia. 体育活动对急性淋巴细胞白血病儿童的潜在益处
Pub Date : 2005-01-01 DOI: 10.1080/13638490410001727428
Jennifer White, Judith A Flohr, Stuart S Winter, Jamie Vener, Lyman R Feinauer, Lynda B Ransdell

Acute lymphoblastic leukaemia (ALL) is the most common form of paediatric leukaemia. The survival rate in children with ALL has improved significantly over the past several years, which makes quality of life an important focus for researchers. Some of the side effects of treatment (i.e. osteoporosis and obesity) are not realized until years after conclusion of therapy. Few studies have addressed the impact of physical activity (PA) on the side effects that occur during treatment of children with ALL. This paper discusses the increased risk for both osteoporosis and obesity due to treatment for ALL and suggests ways that PA may attenuate bone loss and risk of obesity by discussing what is known about effects of PA in healthy children and children with other chronic diseases. Recommendations will be made for PA interventions and future research in children with ALL.

急性淋巴细胞白血病(ALL)是儿童白血病最常见的形式。在过去的几年里,ALL患儿的存活率有了显著的提高,这使得生活质量成为研究人员关注的一个重要焦点。治疗的一些副作用(如骨质疏松和肥胖)直到治疗结束数年后才意识到。很少有研究涉及体育活动(PA)对急性淋巴细胞白血病儿童治疗期间发生的副作用的影响。本文讨论了由于ALL治疗而增加的骨质疏松和肥胖风险,并通过讨论已知的PA对健康儿童和患有其他慢性疾病的儿童的影响,提出了PA可能减轻骨质流失和肥胖风险的方法。将对急性淋巴细胞白血病儿童的PA干预和未来研究提出建议。
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引用次数: 51
Adult life with Duchenne muscular dystrophy: observations among an emerging and unforeseen patient population. 成人生活与杜氏肌营养不良症:观察一个新兴的和不可预见的患者群体。
Pub Date : 2005-01-01 DOI: 10.1080/13638490400010191
Jes Rahbek, Birgit Werge, Anny Madsen, John Marquardt, Birgit Fynbo Steffensen, Joergen Jeppesen

The knowledge of adult life with Duchenne muscular dystrophy (DMD) is sparse. The purpose of this study was to review existing information and describe body functional, social participatory and quality of life profiles of the ordinary adult Danish DMD patient. Sixty-five study subjects aged 18-42 years were included in a cross-sectional survey based on data from a semi-structured questionnaire comprising 197 items. The ordinary adult DMD patient states his quality of life as excellent; he is worried neither about his disease nor about the future. His assessment of income, hours of personal assistance, housing, years spent in school and ability to participate in desired activities are positive. Despite heavy immobilization, he is still capable of functioning in a variety of activities that are associated with normal life. He lacks qualifying education and he is in painful need of a love life. The frequency of pains is surprisingly high; nearly 40% has pains daily. The nature, magnitude, consequence and possible cure of these reported pains must be scrutinized. Parents and professionals, paediatricians not the least, must anticipate in all measures taken that the DMD boy grows up to manhood and will need competences for adult social life in all respects.

关于成人杜氏肌营养不良症(DMD)的知识很少。本研究的目的是回顾现有信息,描述普通成年丹麦DMD患者的身体功能、社会参与和生活质量概况。65名年龄在18-42岁之间的研究对象参与了一项横断面调查,调查数据来自一份包含197个项目的半结构化问卷。普通成年DMD患者认为自己的生活质量很好;他既不担心自己的病情,也不担心未来。他对收入、个人援助时间、住房、在学校度过的时间和参加期望活动的能力的评估是积极的。尽管严重的固定,他仍然能够进行各种与正常生活相关的活动。他缺乏合格的教育,他非常需要爱情生活。疼痛的频率高得惊人;近40%的人每天都有疼痛。必须仔细审查这些报告的疼痛的性质、程度、后果和可能的治疗方法。父母和专业人士,尤其是儿科医生,必须在采取的所有措施中预料到,DMD男孩成长为成年男子,并需要在各方面具备成人社会生活的能力。
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引用次数: 122
Is rehabilitation the Cinderella of health, education and social services for children? 康复是儿童保健、教育和社会服务领域的灰姑娘吗?
Pub Date : 2005-01-01 DOI: 10.1080/13638490400011173
Kátia Soares Pinto, Andréa Ponte Rocha, Alessandra Célia Bonfim Coutinho, Denise Mafra Gonçalves, Paulo Sérgio Siebra Beraldo
In 2003, the editors of Pediatric Rehabilitation posed a challenge to the community of professionals involved in paediatric rehabilitation: to write an essay that discussed whether rehabilitation is the Cinderella of health, education and social services for children. According to Webster [1], the term ‘Cinderella’ can be defined in the following ways: (1) a heroine, (2) the tale itself, (3) a ballet, (4) a person or thing of merit, undeservedly neglected or forced into a wretched or obscure existence, or (5) a person who achieves unexpected or sudden success or recognition, especially after obscurity, neglect or misery. The editorial board of Pediatric Rehabilitation addressed this question on two occasions, adopting the fourth definition of the term Cinderella [2,3]. Both times, the adopted stance asserted that paediatric rehabilitation needed to undergo crucial changes, to prioritize a holistic view of the child in the medical, social, educational and financial support aspects, allied with available scientific resources. In this sense, the belief was that paediatric rehabilitation’s Cinderella image should be disspelled. It is understood that the intention is to rescue paediatric rehabilitation from the neglected role to which it has historically been submitted. In other words, paediatric rehabilitation needs to be ‘rehabilitated’. If rehabilitation is able to do more for children than has been expected and its results can bring positive recognition, then the view that it is inferior and less important than the other areas of medicine should be eradicated. Paediatric rehabilitation began with a misconceived pretext: that the child is a miniature adult [4]. The SARAH Network of Rehabilitation Hospitals never shared this viewpoint [5]. Dedicated to paediatric rehabilitation for over 40 years, SARAH could not pass up the challenge of debating the issue [3,6]. This essay aims to demonstrate, from the historical perspective up through present-day paradigms, that paediatric rehabilitation has come to play an important role in health care. A quantitative analysis of the relevant scientific literature in this area was reviewed. This review will present principles of evidence-based practice, charting a counterpoint to the scientific literature of paediatric rehabilitation. This specialty has, at present, an important critical mass from various centres. There is evidence of an expanding interest in rehabilitation, manifested by the increasing quality of scientific publications.
{"title":"Is rehabilitation the Cinderella of health, education and social services for children?","authors":"Kátia Soares Pinto,&nbsp;Andréa Ponte Rocha,&nbsp;Alessandra Célia Bonfim Coutinho,&nbsp;Denise Mafra Gonçalves,&nbsp;Paulo Sérgio Siebra Beraldo","doi":"10.1080/13638490400011173","DOIUrl":"https://doi.org/10.1080/13638490400011173","url":null,"abstract":"In 2003, the editors of Pediatric Rehabilitation posed a challenge to the community of professionals involved in paediatric rehabilitation: to write an essay that discussed whether rehabilitation is the Cinderella of health, education and social services for children. According to Webster [1], the term ‘Cinderella’ can be defined in the following ways: (1) a heroine, (2) the tale itself, (3) a ballet, (4) a person or thing of merit, undeservedly neglected or forced into a wretched or obscure existence, or (5) a person who achieves unexpected or sudden success or recognition, especially after obscurity, neglect or misery. The editorial board of Pediatric Rehabilitation addressed this question on two occasions, adopting the fourth definition of the term Cinderella [2,3]. Both times, the adopted stance asserted that paediatric rehabilitation needed to undergo crucial changes, to prioritize a holistic view of the child in the medical, social, educational and financial support aspects, allied with available scientific resources. In this sense, the belief was that paediatric rehabilitation’s Cinderella image should be disspelled. It is understood that the intention is to rescue paediatric rehabilitation from the neglected role to which it has historically been submitted. In other words, paediatric rehabilitation needs to be ‘rehabilitated’. If rehabilitation is able to do more for children than has been expected and its results can bring positive recognition, then the view that it is inferior and less important than the other areas of medicine should be eradicated. Paediatric rehabilitation began with a misconceived pretext: that the child is a miniature adult [4]. The SARAH Network of Rehabilitation Hospitals never shared this viewpoint [5]. Dedicated to paediatric rehabilitation for over 40 years, SARAH could not pass up the challenge of debating the issue [3,6]. This essay aims to demonstrate, from the historical perspective up through present-day paradigms, that paediatric rehabilitation has come to play an important role in health care. A quantitative analysis of the relevant scientific literature in this area was reviewed. This review will present principles of evidence-based practice, charting a counterpoint to the scientific literature of paediatric rehabilitation. This specialty has, at present, an important critical mass from various centres. There is evidence of an expanding interest in rehabilitation, manifested by the increasing quality of scientific publications.","PeriodicalId":79705,"journal":{"name":"Pediatric rehabilitation","volume":"8 1","pages":"33-43"},"PeriodicalIF":0.0,"publicationDate":"2005-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1080/13638490400011173","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"25030445","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 1
Micro-switch clusters to enhance hand responses and appropriate head position in two children with multiple disabilities. 微开关簇增强两名多重残疾儿童的手部反应和适当的头部位置。
Pub Date : 2005-01-01 DOI: 10.1080/13638490410001727446
Giulio E Lancioni, Mark F O'Reilly, Nirbhay N Singh, Doretta Oliva, Lorenza Scalini, Cecilia M Vigo, Jop Groeneweg

This study evaluated the use of micro-switch clusters to improve response activity and posture with two children with multiple disabilities. The children were first taught a hand response and then required to combine this response with appropriate head position. The micro-switch clusters adopted for this purpose consisted of a pressure or mercury micro-switch for the hand response combined with a mercury micro-switch for the head position. Both children had an increase in the frequency of the hand response and in the percentage of times this occurred in combination with appropriate head position. These changes were maintained at a 2-month post-intervention check.

本研究评估了使用微开关簇来改善两个多重残疾儿童的反应活动和姿势。孩子们首先被教导一个手部反应,然后被要求将这个反应与适当的头部位置结合起来。为此目的采用的微动开关簇包括用于手部响应的压力或水银微动开关,以及用于头部位置的水银微动开关。两个孩子的手部反应频率都有所增加,而且在适当的头部位置下,这种反应发生的次数百分比也有所增加。这些变化在干预后2个月的检查中保持不变。
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引用次数: 15
期刊
Pediatric rehabilitation
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