Pub Date : 2006-04-01DOI: 10.1080/13638490500235466
G E Lancioni, M F O'Reilly, N N Singh, D Oliva, S Baccani, L Severini, J Groeneweg
This study assessed (a) whether three girls with multiple disabilities and minimal motor behaviour could acquire pairs of responses taught through micro-switch-based programmes and (b) how the girls would eventually choose between those responses. In relation to the choice issue, a response-choice analysis was conducted to find out whether possible differences in performance rates for the two responses were due to the stimuli linked to them and/or to potential response preferences. Results indicated that all three girls succeeded in the acquisition of the two responses programmed for them and showed clear response choices. The choices seemed to be largely motivated by the stimuli linked to the responses. Implications of these findings were discussed, including the need to assess their generality and extend the scope of the work in this area.
{"title":"Micro-switch programmes for students with multiple disabilities and minimal motor behaviour: assessing response acquisition and choice.","authors":"G E Lancioni, M F O'Reilly, N N Singh, D Oliva, S Baccani, L Severini, J Groeneweg","doi":"10.1080/13638490500235466","DOIUrl":"https://doi.org/10.1080/13638490500235466","url":null,"abstract":"<p><p>This study assessed (a) whether three girls with multiple disabilities and minimal motor behaviour could acquire pairs of responses taught through micro-switch-based programmes and (b) how the girls would eventually choose between those responses. In relation to the choice issue, a response-choice analysis was conducted to find out whether possible differences in performance rates for the two responses were due to the stimuli linked to them and/or to potential response preferences. Results indicated that all three girls succeeded in the acquisition of the two responses programmed for them and showed clear response choices. The choices seemed to be largely motivated by the stimuli linked to the responses. Implications of these findings were discussed, including the need to assess their generality and extend the scope of the work in this area.</p>","PeriodicalId":79705,"journal":{"name":"Pediatric rehabilitation","volume":"9 2","pages":"137-43"},"PeriodicalIF":0.0,"publicationDate":"2006-04-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1080/13638490500235466","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"25830940","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2006-04-01DOI: 10.1080/13638490500373465
Regina Trollmann, Bert Bakker, Martin Lundberg, Helmuth G Doerr
Purpose: To analyse the auxological data of children with myelomeningocele (MMC) on growth hormone (GH) therapy whose growth data was documented within KIGS (Pfizer International Growth Database). Longitudinal growth data of a sub-group of pre-pubertal children were studied after a treatment period of 3 years.
Patients and methods: Eighty patients (38 m, 42 f) with MMC with a median chronological age (CA) of 11.6 years (at latest visit) on GH were registered in the KIGS database. In 52 patients, GH deficiency was documented. GH therapy started with a median dose of 0.23 mg kg(-1) per week. The 3-year longitudinal growth was analysed in 21 patients (13 m, 8 f; median CA 9.2 years, latest visit), all of whom were pre-pubertal at start and during GH therapy.
Results: GH therapy started at 7.5 years with a dose of 0.23 mg kg(-1) per week. Birth length SDS (-0.51) and mid-parental height SDS (+0.07) were in the normal range. BMI SDS at start was +0.24, at latest visit -0.03. After a median treatment duration of 3.0 years (latest visit), height SDS improved from -2.97 (start of GH) to -2.01. The sub-group of pre-pubertal MMC patients started GH therapy (dose 0.22 mg kg(-1) per week) at 6.2 years. Growth velocity (GV) SDS increased significantly (at start: -1.77; 1 year: +2.60, 2 years: +2.25, 3 years: +1.24), thus height SDS improved from -3.25 at start to -1.87 at 36 months. BMI SDS was in the normal range and remained unchanged during GH therapy. No major side effects of GH were recorded.
Conclusion: GH had positive effects on height SDS in MMC patients. The analysis of the longitudinal growth data of pre-pubertal MMC patients showed a significant increase in GV SDS and improvement of height SDS.
目的:分析生长激素(GH)治疗的脊髓脊膜膨出(MMC)儿童的生长数据,这些生长数据记录在KIGS(辉瑞国际生长数据库)中。在3年的治疗期后,研究了一组青春期前儿童的纵向生长数据。患者和方法:80例(38 m, 42 f) MMC患者(最近一次就诊时)中位实足年龄(CA)为11.6岁,在KIGS数据库中登记。在52例患者中,GH缺乏被记录在案。生长激素治疗开始时的中位剂量为每周0.23 mg kg(-1)。我们分析了21例患者3年的纵向生长(13 m, 8 f;平均年龄9.2岁,最近一次就诊),所有患者在激素治疗开始和治疗期间均处于青春期前。结果:生长激素治疗开始于7.5岁,剂量为每周0.23 mg kg(-1)。出生长SDS(-0.51)和亲代中高SDS(+0.07)在正常范围内。BMI SDS开始时为+0.24,最近一次访问时为-0.03。中位治疗时间为3.0年(最近一次就诊)后,身高SDS从-2.97(生长激素开始)改善到-2.01。青春期前MMC患者亚组在6.2岁时开始GH治疗(剂量为0.22 mg kg(-1) /周)。生长速度(GV) SDS显著升高(开始时:-1.77;1年+2.60,2年+2.25,3年+1.24),因此身高SDS从开始时的-3.25改善到36个月时的-1.87。BMI SDS在正常范围内,在生长激素治疗期间保持不变。没有记录生长激素的主要副作用。结论:GH对MMC患者身高SDS有积极影响。分析青春期前MMC患者的纵向生长数据,GV SDS显著增加,身高SDS显著改善。
{"title":"Growth in pre-pubertal children with myelomeningocele (MMC) on growth hormone (GH): the KIGS experience.","authors":"Regina Trollmann, Bert Bakker, Martin Lundberg, Helmuth G Doerr","doi":"10.1080/13638490500373465","DOIUrl":"https://doi.org/10.1080/13638490500373465","url":null,"abstract":"<p><strong>Purpose: </strong>To analyse the auxological data of children with myelomeningocele (MMC) on growth hormone (GH) therapy whose growth data was documented within KIGS (Pfizer International Growth Database). Longitudinal growth data of a sub-group of pre-pubertal children were studied after a treatment period of 3 years.</p><p><strong>Patients and methods: </strong>Eighty patients (38 m, 42 f) with MMC with a median chronological age (CA) of 11.6 years (at latest visit) on GH were registered in the KIGS database. In 52 patients, GH deficiency was documented. GH therapy started with a median dose of 0.23 mg kg(-1) per week. The 3-year longitudinal growth was analysed in 21 patients (13 m, 8 f; median CA 9.2 years, latest visit), all of whom were pre-pubertal at start and during GH therapy.</p><p><strong>Results: </strong>GH therapy started at 7.5 years with a dose of 0.23 mg kg(-1) per week. Birth length SDS (-0.51) and mid-parental height SDS (+0.07) were in the normal range. BMI SDS at start was +0.24, at latest visit -0.03. After a median treatment duration of 3.0 years (latest visit), height SDS improved from -2.97 (start of GH) to -2.01. The sub-group of pre-pubertal MMC patients started GH therapy (dose 0.22 mg kg(-1) per week) at 6.2 years. Growth velocity (GV) SDS increased significantly (at start: -1.77; 1 year: +2.60, 2 years: +2.25, 3 years: +1.24), thus height SDS improved from -3.25 at start to -1.87 at 36 months. BMI SDS was in the normal range and remained unchanged during GH therapy. No major side effects of GH were recorded.</p><p><strong>Conclusion: </strong>GH had positive effects on height SDS in MMC patients. The analysis of the longitudinal growth data of pre-pubertal MMC patients showed a significant increase in GV SDS and improvement of height SDS.</p>","PeriodicalId":79705,"journal":{"name":"Pediatric rehabilitation","volume":"9 2","pages":"144-8"},"PeriodicalIF":0.0,"publicationDate":"2006-04-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1080/13638490500373465","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"25830382","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2006-04-01DOI: 10.1080/13638490500074584
J Süssová, O Svestková, I Sáchová
The aim of this work is to inform about the present situation in the care of disabled children in the Czech Republic. It contains the evaluation of the present situation and displays plans of care in the future.
{"title":"Rehabilitation care in paediatrics in the Czech Republic.","authors":"J Süssová, O Svestková, I Sáchová","doi":"10.1080/13638490500074584","DOIUrl":"https://doi.org/10.1080/13638490500074584","url":null,"abstract":"<p><p>The aim of this work is to inform about the present situation in the care of disabled children in the Czech Republic. It contains the evaluation of the present situation and displays plans of care in the future.</p>","PeriodicalId":79705,"journal":{"name":"Pediatric rehabilitation","volume":"9 2","pages":"119-21"},"PeriodicalIF":0.0,"publicationDate":"2006-04-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1080/13638490500074584","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"25830976","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2006-04-01DOI: 10.1080/13638490500155573
A Utley, B Steenbergen
Bimanual co-ordination is a field that has generated much research interest. It is clear that when hands move simultaneously there is a tendency for such movements to be synchronized. This phenomenon has also been observed in individuals with congenital brain damage, such as cerebral palsy. This paper provides an overview of past and current work in the area of bimanual co-ordination looking at the nature of the coupling and the underlying control of such movements. Work on 'non-disabled' individuals and unimanual reaching and grasping is included, but the main emphasis is bimanual co-ordination in children with hemiparetic cerebral palsy. The direction for future research is discussed and consideration given to the therapeutic implications of such work.
{"title":"Discrete bimanual co-ordination in children and young adolescents with hemiparetic cerebral palsy: recent findings, implications and future research directions.","authors":"A Utley, B Steenbergen","doi":"10.1080/13638490500155573","DOIUrl":"https://doi.org/10.1080/13638490500155573","url":null,"abstract":"<p><p>Bimanual co-ordination is a field that has generated much research interest. It is clear that when hands move simultaneously there is a tendency for such movements to be synchronized. This phenomenon has also been observed in individuals with congenital brain damage, such as cerebral palsy. This paper provides an overview of past and current work in the area of bimanual co-ordination looking at the nature of the coupling and the underlying control of such movements. Work on 'non-disabled' individuals and unimanual reaching and grasping is included, but the main emphasis is bimanual co-ordination in children with hemiparetic cerebral palsy. The direction for future research is discussed and consideration given to the therapeutic implications of such work.</p>","PeriodicalId":79705,"journal":{"name":"Pediatric rehabilitation","volume":"9 2","pages":"127-36"},"PeriodicalIF":0.0,"publicationDate":"2006-04-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1080/13638490500155573","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"25830978","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2006-04-01DOI: 10.1080/13638490500138702
T T Dang-Vu, M Desseilles, P Peigneux, P Maquet
The idea that sleep might be involved in brain plasticity has been investigated for many years through a large number of animal and human studies, but evidence remains fragmentary. Large amounts of sleep in early life suggest that sleep may play a role in brain maturation. In particular, the influence of sleep in developing the visual system has been highlighted. The current data suggest that both Rapid Eye Movement (REM) and non-REM sleep states would be important for brain development. Such findings stress the need for optimal paediatric sleep management. In the adult brain, the role of sleep in learning and memory is emphasized by studies at behavioural, systems, cellular and molecular levels. First, sleep amounts are reported to increase following a learning task and sleep deprivation impairs task acquisition and consolidation. At the systems level, neurophysiological studies suggest possible mechanisms for the consolidation of memory traces. These imply both thalamocortical and hippocampo-neocortical networks. Similarly, neuroimaging techniques demonstrated the experience-dependent changes in cerebral activity during sleep. Finally, recent works show the modulation during sleep of cerebral protein synthesis and expression of genes involved in neuronal plasticity.
{"title":"A role for sleep in brain plasticity.","authors":"T T Dang-Vu, M Desseilles, P Peigneux, P Maquet","doi":"10.1080/13638490500138702","DOIUrl":"https://doi.org/10.1080/13638490500138702","url":null,"abstract":"<p><p>The idea that sleep might be involved in brain plasticity has been investigated for many years through a large number of animal and human studies, but evidence remains fragmentary. Large amounts of sleep in early life suggest that sleep may play a role in brain maturation. In particular, the influence of sleep in developing the visual system has been highlighted. The current data suggest that both Rapid Eye Movement (REM) and non-REM sleep states would be important for brain development. Such findings stress the need for optimal paediatric sleep management. In the adult brain, the role of sleep in learning and memory is emphasized by studies at behavioural, systems, cellular and molecular levels. First, sleep amounts are reported to increase following a learning task and sleep deprivation impairs task acquisition and consolidation. At the systems level, neurophysiological studies suggest possible mechanisms for the consolidation of memory traces. These imply both thalamocortical and hippocampo-neocortical networks. Similarly, neuroimaging techniques demonstrated the experience-dependent changes in cerebral activity during sleep. Finally, recent works show the modulation during sleep of cerebral protein synthesis and expression of genes involved in neuronal plasticity.</p>","PeriodicalId":79705,"journal":{"name":"Pediatric rehabilitation","volume":"9 2","pages":"98-118"},"PeriodicalIF":0.0,"publicationDate":"2006-04-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1080/13638490500138702","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"25830975","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2006-01-01DOI: 10.1080/13638490500065392
Dirk J Bakker
Remarkably few research articles on the treatment of developmental dyslexia were published during the last 25 years. Some treatment research arose from the temporal processing theory, some from the phonological deficit hypothesis and some more from the balance model of learning to read and dyslexia. Within the framework of that model, this article reviews the aetiology of dyslexia sub-types, the neuropsychological rationale for treatment, the treatment techniques and the outcomes of treatment research. The possible mechanisms underlying the effects of treatment are discussed.
{"title":"Treatment of developmental dyslexia: a review.","authors":"Dirk J Bakker","doi":"10.1080/13638490500065392","DOIUrl":"https://doi.org/10.1080/13638490500065392","url":null,"abstract":"<p><p>Remarkably few research articles on the treatment of developmental dyslexia were published during the last 25 years. Some treatment research arose from the temporal processing theory, some from the phonological deficit hypothesis and some more from the balance model of learning to read and dyslexia. Within the framework of that model, this article reviews the aetiology of dyslexia sub-types, the neuropsychological rationale for treatment, the treatment techniques and the outcomes of treatment research. The possible mechanisms underlying the effects of treatment are discussed.</p>","PeriodicalId":79705,"journal":{"name":"Pediatric rehabilitation","volume":"9 1","pages":"3-13"},"PeriodicalIF":0.0,"publicationDate":"2006-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1080/13638490500065392","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"25734689","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2006-01-01DOI: 10.1080/13638490500038126
H-R Weiss, R Dallmayer, D Gallo
Background: In patients with idiopathic scoliosis (IS), reduced thoracic kyphosis and reduced lumbar lordosis frequently occur in correlation with the lateral spinal curvature. Normalization of the sagittal profile and hyper-correction of the deviation in frontal and coronal plane are the main issues of the latest concept of bracing. The purpose of this study was to investigate the influence of of sagittal counter forces (SCF) on the scoliotic deformity.
Study design: A case series of four patients with IS treated with two braces designed to improve the sagittal profile (Rigo-System-Chêneau-brace and with a sagittal counter force brace, SCF-brace).
Methods: The short-term effect (30 min) of both braces was evaluated using surface topography (Formetric surface topography system, Diers International, Wiesbaden).
Results: One patient (Cobb angle 92 degrees ) showed no short-term correction in the frontal and coronal planes; others (Cobb angles between 39 and 48 degrees ) exhibited valuable correction in frontal and coronal planes. There was no short-term correction in the sagittal plane for either brace.
Conclusion: The application of sagittal counter forces (SCF) seems to have similar short-term effects as 3D correction and should be addressed more in future concepts of scoliosis bracing.
{"title":"Sagittal counter forces (SCF) in the treatment of idiopathic scoliosis: a preliminary report.","authors":"H-R Weiss, R Dallmayer, D Gallo","doi":"10.1080/13638490500038126","DOIUrl":"https://doi.org/10.1080/13638490500038126","url":null,"abstract":"<p><strong>Background: </strong>In patients with idiopathic scoliosis (IS), reduced thoracic kyphosis and reduced lumbar lordosis frequently occur in correlation with the lateral spinal curvature. Normalization of the sagittal profile and hyper-correction of the deviation in frontal and coronal plane are the main issues of the latest concept of bracing. The purpose of this study was to investigate the influence of of sagittal counter forces (SCF) on the scoliotic deformity.</p><p><strong>Study design: </strong>A case series of four patients with IS treated with two braces designed to improve the sagittal profile (Rigo-System-Chêneau-brace and with a sagittal counter force brace, SCF-brace).</p><p><strong>Methods: </strong>The short-term effect (30 min) of both braces was evaluated using surface topography (Formetric surface topography system, Diers International, Wiesbaden).</p><p><strong>Results: </strong>One patient (Cobb angle 92 degrees ) showed no short-term correction in the frontal and coronal planes; others (Cobb angles between 39 and 48 degrees ) exhibited valuable correction in frontal and coronal planes. There was no short-term correction in the sagittal plane for either brace.</p><p><strong>Conclusion: </strong>The application of sagittal counter forces (SCF) seems to have similar short-term effects as 3D correction and should be addressed more in future concepts of scoliosis bracing.</p>","PeriodicalId":79705,"journal":{"name":"Pediatric rehabilitation","volume":"9 1","pages":"24-30"},"PeriodicalIF":0.0,"publicationDate":"2006-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1080/13638490500038126","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"25734690","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2006-01-01DOI: 10.1080/13638490500293341
J Sigafoos
{"title":"Self-determination: can we let the child determine the 'best' treatment?","authors":"J Sigafoos","doi":"10.1080/13638490500293341","DOIUrl":"https://doi.org/10.1080/13638490500293341","url":null,"abstract":"","PeriodicalId":79705,"journal":{"name":"Pediatric rehabilitation","volume":"9 1","pages":"1-2"},"PeriodicalIF":0.0,"publicationDate":"2006-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1080/13638490500293341","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"25734688","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2006-01-01DOI: 10.1080/13638490500049719
M Beeri, S Meyer
Mind the gap: Israel straddles the gap between Western medicine and Middle-Eastern cultural and political challenges. Maintaining state-of-the-art paediatric rehabilitation in an era of economic and political constrictions is described and analysed in this review.
{"title":"Paediatric rehabilitation in Israel: unique problems, exceptional solutions.","authors":"M Beeri, S Meyer","doi":"10.1080/13638490500049719","DOIUrl":"https://doi.org/10.1080/13638490500049719","url":null,"abstract":"Mind the gap: Israel straddles the gap between Western medicine and Middle-Eastern cultural and political challenges. Maintaining state-of-the-art paediatric rehabilitation in an era of economic and political constrictions is described and analysed in this review.","PeriodicalId":79705,"journal":{"name":"Pediatric rehabilitation","volume":"9 1","pages":"76-82"},"PeriodicalIF":0.0,"publicationDate":"2006-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1080/13638490500049719","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"25748833","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2006-01-01DOI: 10.1080/13638490500050097
N Thomas-Stonell, P Johnson, P Rumney, V Wright, B Oddson
The relative responsiveness of nine outcome measure scales was evaluated with 33 children and adolescents (aged 4-18 years) who had sustained traumatic brain injuries. Scales were selected to evaluate outcomes from each of the World Health Organization (WHO) International Classification of Functioning, Disability and Health domains. The outcome measures were administered to all participants during their inpatient rehabilitation stay and again at a follow-up clinic visit. No single outcome measure captured the diversity of improvement in this sample. The measures agreed that improvement had occurred, but did not agree about which children were improving. This result suggests that the scales were measuring different skills and outcomes. Three of the measures used in combination, either the Child Health Questionnaire or the Functional Independence Measure for Children, the American Speech-Language-Hearing Association National Outcome Measures System (Birth to Kindergarten NOMS/School-aged Health Care) and the Gross Motor Function Measure, are sufficient to detect change in each of the children where change occurred. The Pediatric Evaluation of Disability Inventory and the MultiAttribute Health Status Classification were the least responsive of the nine measures used.
{"title":"An evaluation of the responsiveness of a comprehensive set of outcome measures for children and adolescents with traumatic brain injuries.","authors":"N Thomas-Stonell, P Johnson, P Rumney, V Wright, B Oddson","doi":"10.1080/13638490500050097","DOIUrl":"https://doi.org/10.1080/13638490500050097","url":null,"abstract":"<p><p>The relative responsiveness of nine outcome measure scales was evaluated with 33 children and adolescents (aged 4-18 years) who had sustained traumatic brain injuries. Scales were selected to evaluate outcomes from each of the World Health Organization (WHO) International Classification of Functioning, Disability and Health domains. The outcome measures were administered to all participants during their inpatient rehabilitation stay and again at a follow-up clinic visit. No single outcome measure captured the diversity of improvement in this sample. The measures agreed that improvement had occurred, but did not agree about which children were improving. This result suggests that the scales were measuring different skills and outcomes. Three of the measures used in combination, either the Child Health Questionnaire or the Functional Independence Measure for Children, the American Speech-Language-Hearing Association National Outcome Measures System (Birth to Kindergarten NOMS/School-aged Health Care) and the Gross Motor Function Measure, are sufficient to detect change in each of the children where change occurred. The Pediatric Evaluation of Disability Inventory and the MultiAttribute Health Status Classification were the least responsive of the nine measures used.</p>","PeriodicalId":79705,"journal":{"name":"Pediatric rehabilitation","volume":"9 1","pages":"14-23"},"PeriodicalIF":0.0,"publicationDate":"2006-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1080/13638490500050097","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"25748916","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}