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Micro-switch programmes for students with multiple disabilities and minimal motor behaviour: assessing response acquisition and choice. 多重残疾和最小运动行为学生的微开关方案:评估反应获取和选择。
Pub Date : 2006-04-01 DOI: 10.1080/13638490500235466
G E Lancioni, M F O'Reilly, N N Singh, D Oliva, S Baccani, L Severini, J Groeneweg

This study assessed (a) whether three girls with multiple disabilities and minimal motor behaviour could acquire pairs of responses taught through micro-switch-based programmes and (b) how the girls would eventually choose between those responses. In relation to the choice issue, a response-choice analysis was conducted to find out whether possible differences in performance rates for the two responses were due to the stimuli linked to them and/or to potential response preferences. Results indicated that all three girls succeeded in the acquisition of the two responses programmed for them and showed clear response choices. The choices seemed to be largely motivated by the stimuli linked to the responses. Implications of these findings were discussed, including the need to assess their generality and extend the scope of the work in this area.

这项研究评估了(a)三名患有多重残疾和运动行为极少的女孩是否能够通过基于微开关的课程获得成对的反应,以及(b)女孩最终如何在这些反应之间做出选择。关于选择问题,我们进行了一个反应-选择分析,以找出两种反应的表现率的可能差异是由于与它们相关的刺激和/或潜在的反应偏好。结果表明,这三个女孩都成功地习得了为她们设定的两个反应,并表现出明确的反应选择。这些选择似乎在很大程度上是由与回应相关的刺激所驱动的。讨论了这些发现的影响,包括评估其普遍性和扩大这一领域工作范围的必要性。
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引用次数: 33
Growth in pre-pubertal children with myelomeningocele (MMC) on growth hormone (GH): the KIGS experience. 生长激素(GH)对青春期前脊髓脊膜膨出(MMC)儿童生长的影响:KIGS经验。
Pub Date : 2006-04-01 DOI: 10.1080/13638490500373465
Regina Trollmann, Bert Bakker, Martin Lundberg, Helmuth G Doerr

Purpose: To analyse the auxological data of children with myelomeningocele (MMC) on growth hormone (GH) therapy whose growth data was documented within KIGS (Pfizer International Growth Database). Longitudinal growth data of a sub-group of pre-pubertal children were studied after a treatment period of 3 years.

Patients and methods: Eighty patients (38 m, 42 f) with MMC with a median chronological age (CA) of 11.6 years (at latest visit) on GH were registered in the KIGS database. In 52 patients, GH deficiency was documented. GH therapy started with a median dose of 0.23 mg kg(-1) per week. The 3-year longitudinal growth was analysed in 21 patients (13 m, 8 f; median CA 9.2 years, latest visit), all of whom were pre-pubertal at start and during GH therapy.

Results: GH therapy started at 7.5 years with a dose of 0.23 mg kg(-1) per week. Birth length SDS (-0.51) and mid-parental height SDS (+0.07) were in the normal range. BMI SDS at start was +0.24, at latest visit -0.03. After a median treatment duration of 3.0 years (latest visit), height SDS improved from -2.97 (start of GH) to -2.01. The sub-group of pre-pubertal MMC patients started GH therapy (dose 0.22 mg kg(-1) per week) at 6.2 years. Growth velocity (GV) SDS increased significantly (at start: -1.77; 1 year: +2.60, 2 years: +2.25, 3 years: +1.24), thus height SDS improved from -3.25 at start to -1.87 at 36 months. BMI SDS was in the normal range and remained unchanged during GH therapy. No major side effects of GH were recorded.

Conclusion: GH had positive effects on height SDS in MMC patients. The analysis of the longitudinal growth data of pre-pubertal MMC patients showed a significant increase in GV SDS and improvement of height SDS.

目的:分析生长激素(GH)治疗的脊髓脊膜膨出(MMC)儿童的生长数据,这些生长数据记录在KIGS(辉瑞国际生长数据库)中。在3年的治疗期后,研究了一组青春期前儿童的纵向生长数据。患者和方法:80例(38 m, 42 f) MMC患者(最近一次就诊时)中位实足年龄(CA)为11.6岁,在KIGS数据库中登记。在52例患者中,GH缺乏被记录在案。生长激素治疗开始时的中位剂量为每周0.23 mg kg(-1)。我们分析了21例患者3年的纵向生长(13 m, 8 f;平均年龄9.2岁,最近一次就诊),所有患者在激素治疗开始和治疗期间均处于青春期前。结果:生长激素治疗开始于7.5岁,剂量为每周0.23 mg kg(-1)。出生长SDS(-0.51)和亲代中高SDS(+0.07)在正常范围内。BMI SDS开始时为+0.24,最近一次访问时为-0.03。中位治疗时间为3.0年(最近一次就诊)后,身高SDS从-2.97(生长激素开始)改善到-2.01。青春期前MMC患者亚组在6.2岁时开始GH治疗(剂量为0.22 mg kg(-1) /周)。生长速度(GV) SDS显著升高(开始时:-1.77;1年+2.60,2年+2.25,3年+1.24),因此身高SDS从开始时的-3.25改善到36个月时的-1.87。BMI SDS在正常范围内,在生长激素治疗期间保持不变。没有记录生长激素的主要副作用。结论:GH对MMC患者身高SDS有积极影响。分析青春期前MMC患者的纵向生长数据,GV SDS显著增加,身高SDS显著改善。
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引用次数: 11
Rehabilitation care in paediatrics in the Czech Republic. 捷克共和国儿科的康复护理。
Pub Date : 2006-04-01 DOI: 10.1080/13638490500074584
J Süssová, O Svestková, I Sáchová

The aim of this work is to inform about the present situation in the care of disabled children in the Czech Republic. It contains the evaluation of the present situation and displays plans of care in the future.

这项工作的目的是介绍捷克共和国照顾残疾儿童的现状。它包含了对当前形势的评估,并显示了未来的护理计划。
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引用次数: 1
Discrete bimanual co-ordination in children and young adolescents with hemiparetic cerebral palsy: recent findings, implications and future research directions. 偏瘫性脑瘫儿童和青少年的离散双手协调:最近的发现、意义和未来的研究方向
Pub Date : 2006-04-01 DOI: 10.1080/13638490500155573
A Utley, B Steenbergen

Bimanual co-ordination is a field that has generated much research interest. It is clear that when hands move simultaneously there is a tendency for such movements to be synchronized. This phenomenon has also been observed in individuals with congenital brain damage, such as cerebral palsy. This paper provides an overview of past and current work in the area of bimanual co-ordination looking at the nature of the coupling and the underlying control of such movements. Work on 'non-disabled' individuals and unimanual reaching and grasping is included, but the main emphasis is bimanual co-ordination in children with hemiparetic cerebral palsy. The direction for future research is discussed and consideration given to the therapeutic implications of such work.

双手协调是一个引起许多研究兴趣的领域。很明显,当双手同时移动时,这些动作有同步的趋势。这种现象在患有先天性脑损伤(如脑瘫)的个体中也有观察到。本文概述了过去和目前在双手协调领域的工作,着眼于耦合的性质和这种运动的潜在控制。对“非残疾”个体和单手伸手和抓握的工作也包括在内,但主要强调的是偏瘫性脑瘫儿童的双手协调。讨论了未来的研究方向,并考虑了这些工作的治疗意义。
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引用次数: 35
A role for sleep in brain plasticity. 睡眠在大脑可塑性中的作用。
Pub Date : 2006-04-01 DOI: 10.1080/13638490500138702
T T Dang-Vu, M Desseilles, P Peigneux, P Maquet

The idea that sleep might be involved in brain plasticity has been investigated for many years through a large number of animal and human studies, but evidence remains fragmentary. Large amounts of sleep in early life suggest that sleep may play a role in brain maturation. In particular, the influence of sleep in developing the visual system has been highlighted. The current data suggest that both Rapid Eye Movement (REM) and non-REM sleep states would be important for brain development. Such findings stress the need for optimal paediatric sleep management. In the adult brain, the role of sleep in learning and memory is emphasized by studies at behavioural, systems, cellular and molecular levels. First, sleep amounts are reported to increase following a learning task and sleep deprivation impairs task acquisition and consolidation. At the systems level, neurophysiological studies suggest possible mechanisms for the consolidation of memory traces. These imply both thalamocortical and hippocampo-neocortical networks. Similarly, neuroimaging techniques demonstrated the experience-dependent changes in cerebral activity during sleep. Finally, recent works show the modulation during sleep of cerebral protein synthesis and expression of genes involved in neuronal plasticity.

睡眠可能与大脑可塑性有关的观点已经通过大量的动物和人类研究进行了多年的研究,但证据仍然不完整。生命早期大量的睡眠表明睡眠可能在大脑成熟中发挥作用。特别是,睡眠对视觉系统发展的影响已经被强调。目前的数据表明,快速眼动(REM)和非快速眼动睡眠状态对大脑发育都很重要。这些发现强调了最佳儿科睡眠管理的必要性。在成人大脑中,睡眠在学习和记忆中的作用被行为、系统、细胞和分子水平的研究所强调。首先,据报道,在完成学习任务后,睡眠量会增加,睡眠剥夺会损害任务的习得和巩固。在系统水平上,神经生理学研究提出了记忆痕迹巩固的可能机制。这暗示了丘脑皮质和海马-新皮质网络。同样,神经成像技术也证明了睡眠期间大脑活动的经验依赖性变化。最后,最近的研究表明,睡眠期间大脑蛋白质合成和神经元可塑性相关基因表达的调节。
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引用次数: 113
Treatment of developmental dyslexia: a review. 发展性阅读障碍的治疗:综述。
Pub Date : 2006-01-01 DOI: 10.1080/13638490500065392
Dirk J Bakker

Remarkably few research articles on the treatment of developmental dyslexia were published during the last 25 years. Some treatment research arose from the temporal processing theory, some from the phonological deficit hypothesis and some more from the balance model of learning to read and dyslexia. Within the framework of that model, this article reviews the aetiology of dyslexia sub-types, the neuropsychological rationale for treatment, the treatment techniques and the outcomes of treatment research. The possible mechanisms underlying the effects of treatment are discussed.

在过去的25年里,关于发展性阅读障碍治疗的研究文章非常少。一些治疗研究来自时间加工理论,一些来自语音缺陷假说,更多的来自学习阅读和阅读障碍的平衡模型。在该模型的框架内,本文综述了阅读障碍亚型的病因学、治疗的神经心理学原理、治疗技术和治疗研究的结果。讨论了治疗效果的可能机制。
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引用次数: 43
Sagittal counter forces (SCF) in the treatment of idiopathic scoliosis: a preliminary report. 矢状反力(SCF)治疗特发性脊柱侧凸:初步报告。
Pub Date : 2006-01-01 DOI: 10.1080/13638490500038126
H-R Weiss, R Dallmayer, D Gallo

Background: In patients with idiopathic scoliosis (IS), reduced thoracic kyphosis and reduced lumbar lordosis frequently occur in correlation with the lateral spinal curvature. Normalization of the sagittal profile and hyper-correction of the deviation in frontal and coronal plane are the main issues of the latest concept of bracing. The purpose of this study was to investigate the influence of of sagittal counter forces (SCF) on the scoliotic deformity.

Study design: A case series of four patients with IS treated with two braces designed to improve the sagittal profile (Rigo-System-Chêneau-brace and with a sagittal counter force brace, SCF-brace).

Methods: The short-term effect (30 min) of both braces was evaluated using surface topography (Formetric surface topography system, Diers International, Wiesbaden).

Results: One patient (Cobb angle 92 degrees ) showed no short-term correction in the frontal and coronal planes; others (Cobb angles between 39 and 48 degrees ) exhibited valuable correction in frontal and coronal planes. There was no short-term correction in the sagittal plane for either brace.

Conclusion: The application of sagittal counter forces (SCF) seems to have similar short-term effects as 3D correction and should be addressed more in future concepts of scoliosis bracing.

背景:在特发性脊柱侧凸(IS)患者中,胸后凸减轻和腰椎前凸减轻通常与脊柱外侧弯曲相关。矢状面轮廓的规范化和额冠面偏差的过度矫正是最新支撑概念的主要问题。本研究的目的是探讨矢状反力(SCF)对脊柱侧凸畸形的影响。研究设计:4例IS患者接受两种用于改善矢状面轮廓的支架治疗(Rigo-System-Chêneau-brace和矢状面反力支架,scf支架)。方法:采用表面形貌法(formmetric表面形貌系统,Diers International, Wiesbaden)评估两支套的短期效果(30 min)。结果:1例患者(Cobb角92度)额冠面无短期矫正;其他(Cobb角在39到48度之间)在额位和冠状面显示出有价值的校正。两支支架在矢状面均无短期矫正。结论:矢状面反力(SCF)的应用似乎具有与3D矫正相似的短期效果,应在未来的脊柱侧凸支具概念中得到更多的关注。
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引用次数: 23
Self-determination: can we let the child determine the 'best' treatment? 自我决定:我们能让孩子决定“最佳”治疗吗?
Pub Date : 2006-01-01 DOI: 10.1080/13638490500293341
J Sigafoos
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引用次数: 11
Paediatric rehabilitation in Israel: unique problems, exceptional solutions. 以色列的儿科康复:独特的问题,特殊的解决方案。
Pub Date : 2006-01-01 DOI: 10.1080/13638490500049719
M Beeri, S Meyer
Mind the gap: Israel straddles the gap between Western medicine and Middle-Eastern cultural and political challenges. Maintaining state-of-the-art paediatric rehabilitation in an era of economic and political constrictions is described and analysed in this review.
注意差距:以色列跨越了西方医学与中东文化和政治挑战之间的差距。在经济和政治紧缩的时代保持最先进的儿科康复是在这篇综述中描述和分析的。
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引用次数: 0
An evaluation of the responsiveness of a comprehensive set of outcome measures for children and adolescents with traumatic brain injuries. 对创伤性脑损伤儿童和青少年的一套综合结果措施的反应性评价。
Pub Date : 2006-01-01 DOI: 10.1080/13638490500050097
N Thomas-Stonell, P Johnson, P Rumney, V Wright, B Oddson

The relative responsiveness of nine outcome measure scales was evaluated with 33 children and adolescents (aged 4-18 years) who had sustained traumatic brain injuries. Scales were selected to evaluate outcomes from each of the World Health Organization (WHO) International Classification of Functioning, Disability and Health domains. The outcome measures were administered to all participants during their inpatient rehabilitation stay and again at a follow-up clinic visit. No single outcome measure captured the diversity of improvement in this sample. The measures agreed that improvement had occurred, but did not agree about which children were improving. This result suggests that the scales were measuring different skills and outcomes. Three of the measures used in combination, either the Child Health Questionnaire or the Functional Independence Measure for Children, the American Speech-Language-Hearing Association National Outcome Measures System (Birth to Kindergarten NOMS/School-aged Health Care) and the Gross Motor Function Measure, are sufficient to detect change in each of the children where change occurred. The Pediatric Evaluation of Disability Inventory and the MultiAttribute Health Status Classification were the least responsive of the nine measures used.

对33例持续颅脑外伤的儿童和青少年(4-18岁)进行了9项结果测量量表的相对反应性评估。选择量表来评估世界卫生组织(世卫组织)国际功能、残疾和健康分类各领域的结果。结果测量在所有参与者的住院康复期间进行,并在随访的诊所访问中再次进行。在这个样本中,没有一个单一的结果测量方法能够捕捉到改善的多样性。这些措施一致认为已经有所改善,但对于哪些儿童正在改善却没有达成一致意见。这一结果表明,这些量表衡量的是不同的技能和结果。儿童健康问卷或儿童功能独立性测量、美国语言听力协会国家结果测量系统(从出生到幼儿园/学龄卫生保健)和大运动功能测量这三种综合使用的测量方法足以检测每个发生变化的儿童的变化。儿童残疾评估量表和多属性健康状态分类是所使用的九种测量方法中反应最低的。
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引用次数: 36
期刊
Pediatric rehabilitation
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