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Torticollis and plagiocephaly in infancy: therapeutic strategies. 婴儿斜颈和斜头畸形:治疗策略。
Pub Date : 2006-01-01 DOI: 10.1080/13638490500037904
L A van Vlimmeren, P J M Helders, L N A van Adrichem, R H H Engelbert

Background: Asymmetry in infancy is a diagnosis with a large spectrum of features, expressing an abnormal shape of parts of the body or unequal postures and movements, which might be structural and/or functional, with localized or generalized expression.

Purpose: The purpose of the present study is to highlight different therapeutic aspects of the most occurring asymmetries in infancy: congenital muscular torticollis, positional torticollis and plagiocephaly, based on best evidence in current literature.

Results: A flow chart is presented showing different pathways in therapeutic strategies, such as physical therapy, orthotic devices (helmet treatment and Dynamic Orthotic Cranioplasty) and surgery.

Conclusion: It is concluded that there are different views towards management on torticollis and plagiocephaly. A systematic therapeutic management to evaluate these asymmetries is indicated. The presented therapeutic flow chart might serve as a basis in order to achieve uniformity in therapeutic thinking and performance.

背景:婴儿期不对称是一种具有广泛特征的诊断,表现为身体部位形状异常或姿势和动作不平等,可能是结构性和/或功能性的,表现为局部或全身性。目的:本研究的目的是根据目前文献的最佳证据,强调婴儿最常见的不对称:先天性肌性斜颈,体位性斜颈和斜头畸形的不同治疗方面。结果:给出了不同治疗策略的流程图,如物理治疗、矫形装置(头盔治疗和动态矫形颅骨成形术)和手术。结论:对斜颈和斜头畸形的治疗存在不同的看法。指出了一种系统的治疗管理来评估这些不对称。所提出的治疗流程图可以作为一个基础,以达到统一的治疗思维和表现。
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引用次数: 65
Costs and complications of hospitalizations for children with cerebral palsy. 脑瘫儿童住院的费用和并发症。
Pub Date : 2006-01-01 DOI: 10.1080/13638490500079476
N A Murphy, C Hoff, T Jorgensen, C Norlin, P C Young

Background: Although many children with cerebral palsy (CP) develop secondary conditions requiring hospitalization, in-patient hospital utilization by this population has not been characterized.

Objective: To characterize hospitalizations in children with CP and to compare them with hospitalizations of those without CP using a large national data set.

Methods: Analysis of the Healthcare Utilization Project Kid Inpatient Database, a weighted survey of paediatric discharges from US hospitals in 1997.

Results: In 1997, 37,000 children with CP were hospitalized, generating charges approaching 600 million dollars. Children with CP demonstrated longer lengths of stay (6.3 vs 4.1 days, p < 0.001), higher total charges (16,024 vs 9952 dollars, p < 0.001), more diagnoses (5.6 vs 3.0, p < 0.001) and more procedures (1.7 vs 1.1, p < 0.001) per admission. Five major diagnostic categories accounted for 83.2% of the discharge diagnoses for children with CP (48.6% for those without CP, p < 0.001). Children with CP were more often transferred to other facilities (p < 0.001) or prescribed home health care (p < 0.001) upon discharge.

Conclusions: Hospitalization of children with CP represents a major expenditure for health care systems. Studies to improve the management of conditions associated with CP could result in better outcomes for children and families and potentially decrease costs associated with hospitalization.

背景:虽然许多脑瘫(CP)患儿会出现需要住院治疗的继发性疾病,但这一人群的住院治疗情况尚未明确。目的:利用一个大型的国家数据集来描述CP患儿的住院特征,并将其与非CP患儿的住院情况进行比较。方法:分析医疗保健利用项目儿童住院患者数据库,该数据库是1997年美国医院儿科出院的加权调查。结果:1997年,有37,000名患有CP的儿童住院,产生的费用接近6亿美元。患有CP的儿童住院时间更长(6.3天对4.1天,p < 0.001),总费用更高(16,024美元对9952美元,p < 0.001),每次就诊的诊断次数更多(5.6次对3.0次,p < 0.001),手术次数更多(1.7次对1.1次,p < 0.001)。5类主要诊断占有CP患儿出院诊断率的83.2%(无CP患儿为48.6%,p < 0.001)。患有CP的儿童在出院时更常被转移到其他机构(p < 0.001)或规定的家庭保健(p < 0.001)。结论:CP患儿住院是卫生保健系统的一项主要支出。改善与CP相关的疾病管理的研究可以为儿童和家庭带来更好的结果,并可能降低与住院相关的费用。
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引用次数: 57
An optic micro-switch for an eyelid response to foster environmental control in children with minimal motor behaviour. 一个用于眼睑反应的光学微开关,以促进具有最小运动行为的儿童的环境控制。
Pub Date : 2006-01-01 DOI: 10.1080/13638490500074550
G E Lancioni, N N Singh, M F O'Reilly, J Sigafoos, D Oliva, A Costantini, S Gatto, V Marinelli, A Putzolu

This study assessed whether two children (11.9- and 9.7-years-old) with profound multiple disabilities and minimal motor behaviour could learn to control environmental stimulation using an eyelid response with a newly developed micro-switch. The response consisted of raising the eyelid markedly (i.e. by looking upward or opening the eyes widely). The micro-switch developed for this target response consisted of an electronically regulated optic sensor mounted on an eyeglasses' frame. Data showed that the children learned the target eyelid response to activate the micro-switch and to increase their level of environmental stimulation. Responding was largely maintained at a 2-month post-intervention check. These results indicate that continued work in this area has positive implications for the rehabilitation of children with most serious disabilities.

本研究评估了两个患有严重多重残疾和极少运动行为的儿童(11.9岁和9.7岁)是否可以通过使用新开发的微开关的眼睑反应来学习控制环境刺激。反应包括明显地抬起眼睑(即向上看或睁大眼睛)。为此目标响应开发的微开关由安装在眼镜框架上的电子调节光学传感器组成。数据显示,孩子们学会了目标眼睑反应来激活微开关,并增加他们的环境刺激水平。在干预后2个月的检查中,应答基本维持不变。这些结果表明,在这一领域继续开展工作对最严重残疾儿童的康复具有积极意义。
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引用次数: 37
Voices from the past. A developmental psychiatrist considers Still's 'Some abnormal psychical conditions in children'. 来自过去的声音。一位发展精神病学家认为斯蒂尔是“儿童的一些不正常的心理状况”。
Pub Date : 2006-01-01 DOI: 10.1080/13638490500049651
G O'Brien
In March 1902, Sir George F. Still gave a series of three Goulstonian lectures to the Royal College of Physicians in London, the first of which is produced here by kind permission of the Lancet. Still’s aim in these lectures was to propose that ‘an abnormal defect of moral control’ could be identified in some children, whether or not the child is of low intelligence. In Victorian times, when low intelligence/ mental retardation was widely believed to be linked to a more fundamental trait of moral inferiority and degeneration, to make such a proposal was innovative. Still explores his theory with close reference to a large volume of case material collected over a considerable period and here presented in a structured and organized fashion. Indeed, one of the most striking features of the paper is the vivid and descriptive power Still applies to his clinical observations of child behaviour and (what we now call) temperament [1]. In presenting and exploring empirical evidence of his theory in this way, he shows himself to have been an enlightened, entertaining and reforming natural scientist, albeit at some points in the narrative seemingly evidencing mainstream eugenic beliefs of that time, which are quite unacceptable today. In studying this paper, questions began to form in my mind. How would we understand, diagnose, classify or otherwise label the children he describes, today? Is Still here endeavouring to identify psychopathic personality disorder in childhood or at least its temperamental precursors? [2]. Or is his work more relevant to our thinking on disorders such as autism/pervasive developmental disorder or other conditions in which social and inter-personal difficulties arise in childhood, such as ADHD? What is he saying about aetiology—and what would he say about today’s debates concerning the relative contribution of genetic and environmental influences upon childhood psychosocial adjustment? [3]. Or is his way of thinking so different from ours today, such that these questions do not arise? In all of this, we need to start by considering Still himself, his life and work and the influences which were shaping his thinking. Sir George F. Still (1868–1941) was the first Professor of Paediatrics at King’s College/University of London and is recognized as the first full time Paediatrician to have been appointed to the Great Ormond Street Children’s Hospital: the doctors appointed prior to his arrival there having been General Physicians. His most celebrated contribution to medicine resulted from his paper ‘On a form of chronic joint disease in children’ [4], which came to be known as ‘Still’s Disease’—the name now given to a type of juvenile chronic arthritis in
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引用次数: 1
Paediatric rehabilitation in Italy. 意大利的儿科康复。
Pub Date : 2006-01-01 DOI: 10.1080/13638490500074592
E Maggioni

In Italy, paediatric rehabilitation is part of the activity of services for neurological and psychiatric diseases in childhood and adolescence. These services (UONPIA) have an integrated, multi-professional, child- and family-oriented approach to paediatric disabling conditions. At present, inadequate territorial distribution of services, shortage of resources and need of epidemiological monitoring and specific designs of bio-medical research are the main problems.

在意大利,儿童康复是儿童和青少年神经和精神疾病服务活动的一部分。这些服务对儿童致残状况采取综合、多专业、面向儿童和家庭的方法。目前的主要问题是服务的地域分布不充分、资源短缺、需要流行病学监测和生物医学研究的具体设计。
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引用次数: 0
Outcome of intensive oral motor and behavioural interventions for feeding difficulties in three children with Goldenhar Syndrome. 强化口腔运动和行为干预对3例高登哈综合征患儿喂养困难的效果。
Pub Date : 2006-01-01 DOI: 10.1080/13638490500144809
E P Clawson, K S Palinski, C A Elliott

Objective: The facial anomalies and surgeries associated with Goldenhar Syndrome often lead to feeding problems. The purpose of this study was to demonstrate the outcome of Goldenhar Syndrome children admitted to the day patient paediatric feeding programme.

Subjects: Three children with Goldenhar Syndrome and feeding difficulties participated, mean age 3 years. Average length of stay was 8 weeks. Upon admission all were dependent on tube feedings.

Methods: The children received four therapeutic sessions daily. The sessions included oral motor interventions, behavioural techniques and a structured meal. Data regarding children's feeding were collected at admission and discharge.

Results: The patients had 52% acceptance of food/drink at admission and 88.7% at discharge. Expels were 30% at admission and 14% at discharge. Mouth clean was 9.3% at admission and 97% at discharge. Total inappropriate feeding behaviours averaged 83% at admission and 27.3% at discharge. Children averaged 3.4 g per meal at admission and 105.4 g at discharge. Two children were completely weaned from tube feedings by discharge.

Conclusions: Results support the hypothesis that combining oral motor and behavioural interventions offer effective treatment for children with Goldenhar Syndrome. Many children with Goldenhar Syndrome are reliant on tube feedings and this regimen allows them to eat orally, thereby improving their nutrition and quality of life.

目的:戈登哈综合征的面部畸形和手术常导致进食问题。本研究的目的是证明戈尔登哈综合征儿童接受日间儿科喂养计划的结果。研究对象:3名患有高氏综合征和喂养困难的儿童,平均年龄3岁。平均住院时间为8周。入院时均依赖管饲。方法:每日4次治疗。疗程包括口腔运动干预、行为技巧和有组织的饮食。在入院和出院时收集有关儿童喂养的数据。结果:患者入院时对饮食的接受度为52%,出院时为88.7%。入院时为30%,出院时为14%。入院时口腔清洁度为9.3%,出院时为97%。入院时和出院时,不适当进食行为的总数分别为83%和27.3%。儿童入院时平均每餐3.4克,出院时平均每餐105.4克。两名儿童在出院时完全脱离管饲。结论:结果支持口腔运动和行为干预相结合的假设,可以有效治疗儿童戈登哈综合征。许多患有戈尔登哈综合征的儿童依赖于管饲,这种喂养方法使他们能够口服食物,从而改善他们的营养和生活质量。
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引用次数: 20
Thermoregulation during exercise in severely burned children. 重度烧伤儿童运动中的体温调节。
Pub Date : 2006-01-01 DOI: 10.1080/13638490500074576
S J McEntire, D N Herndon, A P Sanford, O E Suman

Introduction: Severe burns result in skeletal muscle catabolism and weakness, which is worsened by prolonged physical inactivity. Exercise would be an ideal tool in the rehabilitation of burned children. However, it has been postulated that burned children may have an excessive rise in body temperature during exercise compared to non-burned children, partly due to the reduced area available for heat dissipation, thereby questioning the safety of exercise in burned children.

Methods: Children (n = 15) with >40% total body surface area (TBSA) burns and non-burned children (n = 13) successfully completed this study. All subjects completed 20 minutes of treadmill exercise at approximately 75% of their peak aerobic power. Tympanic temperature (Ttym), burned and unburned skin temperature were recorded pre-exercise, every 2 minutes during exercise and during recovery.

Results: Within burned children, significant differences between the temperature of unburned skin and burned skin, during later stages of sub-maximal exercise (minutes 12-20) were present. However, there were no significant differences between burned and non-burned children in Ttym or unburned skin temperature indicating that severely burned children do not demonstrate an impaired thermoregulatory response to 20 minutes of sub-maximal exercise at room temperatures.

Conclusion: It is concluded that exercise at moderate intensities conducted at room temperature is safe in burned children with <75% TBSA burns.

严重的烧伤会导致骨骼肌分解代谢和虚弱,而长期不运动则会使这种情况恶化。运动是烧伤儿童康复的理想工具。然而,有人推测,烧伤儿童在运动时体温可能比未烧伤儿童过高,部分原因是可用于散热的面积减少,从而质疑烧伤儿童运动的安全性。方法:15例体表面积(TBSA)大于40%的烧伤患儿和13例未烧伤患儿均成功完成本研究。所有受试者都以大约75%的峰值有氧能力完成了20分钟的跑步机运动。运动前记录鼓室温度(Ttym)、烧伤和未烧伤皮肤温度,运动时和恢复时每2分钟记录一次。结果:在烧伤儿童中,在次最大运动后期(12-20分钟),未烧伤皮肤和烧伤皮肤的温度存在显著差异。然而,烧伤和未烧伤儿童的皮肤温度没有显著差异,这表明严重烧伤儿童在室温下进行20分钟的次最大运动后,没有表现出体温调节反应受损。结论:在室温下进行中等强度的运动是安全的
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引用次数: 22
Designing clinical interventions for children with specific memory disorders. 设计儿童特殊记忆障碍的临床干预措施。
Pub Date : 2005-10-01 DOI: 10.1080/13638490400022436
Peter M Rankin, Jane Hood

Despite increasing research into the severe effects of childhood memory disorders, there is currently a paucity of evidence available to inform the design of appropriate rehabilitation strategies. Indeed, within the paediatric literature there is no model that links specific memory disorders with hypotheses for appropriate rehabilitation strategies. This paper introduces a series of intervention hypotheses based on an examination of the strengths and weaknesses associated with each type of childhood memory disorder, including short-term phonological, visuo-spatial, central executive and long-term semantic and episodic memory. Guidance is provided for integrating the hypotheses within practical rehabilitation strategies and case studies are described to examine a number of the hypotheses.

尽管对儿童记忆障碍的严重影响的研究越来越多,但目前缺乏可用于设计适当康复策略的证据。事实上,在儿科文献中,没有模型将特定的记忆障碍与适当的康复策略的假设联系起来。本文介绍了一系列的干预假设,基于检查的优势和劣势与各种类型的儿童记忆障碍,包括短期语音,视觉空间,中央执行和长期语义和情景记忆。提供了将这些假设整合到实际康复策略中的指导,并描述了案例研究来检查一些假设。
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引用次数: 18
CBT in paediatric and adolescent health settings: a review of practice-based evidence. CBT在儿科和青少年健康环境:基于实践证据的审查。
Pub Date : 2005-10-01 DOI: 10.1080/13638490500066622
D Christie, C Wilson

Cognitive Behavioural therapy (CBT) has strong theoretical underpinnings that facilitate the systematic evaluation of outcomes and process of change adults. CBT has been extensively adapted for use with children and young people with session content and method of delivery modified to acknowledge developmental stage and ability. Current approaches emphasise the psychological management of the impact of symptoms of particular types of physical health difficulties and prevention of the development of psychological difficulties, as well as in the alleviation of procedurally related stress. The need for collaboration with families and other parts of a child's network is particularly relevant in the paediatric setting. This review describes what we have found helpful in our work and provides a road map of where to go to find out more about how to do more. General CBT approaches are described as well as examples of how CBT has been used specifically for procedural distress, diabetes, sickle cell disease, chronic pain and chronic fatigue.

认知行为疗法(CBT)具有强大的理论基础,有助于对成人改变的结果和过程进行系统评估。CBT已被广泛应用于儿童和青少年,其治疗内容和方法经过修改,以确认发育阶段和能力。目前的做法强调对特定类型的身体健康困难症状的影响进行心理管理,防止心理困难的发展,以及减轻与程序有关的压力。与家庭和儿童网络的其他部分合作的必要性在儿科环境中尤为重要。这篇综述描述了我们在工作中发现的有用之处,并提供了一个路线图,说明在哪里可以找到更多关于如何做更多事情的信息。本文描述了一般的CBT方法,以及CBT如何专门用于程序性痛苦、糖尿病、镰状细胞病、慢性疼痛和慢性疲劳的例子。
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引用次数: 35
How do specific memory disorders present in the school classroom? 特殊记忆障碍是如何出现在学校课堂上的?
Pub Date : 2005-10-01 DOI: 10.1080/13638490400022303
Jane Hood, Peter M Rankin

Childhood memory disorders have received increasing empirical investigation over recent years and reviews of the dissociations within the developmental memory system are now available. However, there are few descriptions within the literature of children's consequent behavioural and learning difficulties within an educational context. This paper reviews the growing evidence that links specific memory disorders to academic skills and then provides clinical descriptions of the day-to-day behaviour and learning often observed following the identification of such children. It is anticipated that such descriptions will allow professionals to understand the range of consequences possible and alert health and educational staff to children at risk of suffering unidentified memory difficulties. A clinical description of the behavioural repertoire associated with different childhood memory disorders is also necessary to consider how professionals may design rehabilitative support.

近年来,儿童记忆障碍得到了越来越多的实证研究,并且对发育记忆系统中的解离进行了综述。然而,在文献中很少有关于儿童在教育背景下随之而来的行为和学习困难的描述。这篇论文回顾了将特定记忆障碍与学习技能联系起来的越来越多的证据,然后提供了日常行为和学习的临床描述,这些行为和学习通常是在这些儿童的识别之后观察到的。预计这种描述将使专业人员能够了解可能的后果范围,并提醒卫生和教育工作人员注意有可能遭受不明记忆困难的儿童。对不同儿童记忆障碍相关行为的临床描述也是考虑专业人员如何设计康复支持的必要条件。
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引用次数: 6
期刊
Pediatric rehabilitation
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