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The effect of source credibility on consumers' perceptions of the quality of health information on the Internet. 来源可信度对消费者对互联网健康信息质量认知的影响。
Pub Date : 2006-03-01 DOI: 10.1080/14639230600552601
Benjamin R Bates, Sharon Romina, Rukhsana Ahmed, Danielle Hopson

Recent use of the Internet as a source of health information has raised concerns about consumers' ability to tell 'good' information from 'bad' information. Although consumers report that they use source credibility to judge information quality, several observational studies suggest that consumers make little use of source credibility. This study examines consumer evaluations of web pages attributed to a credible source as compared to generic web pages on measures of message quality. In spring 2005, a community-wide convenience survey was distributed in a regional hub city in Ohio, USA. 519 participants were randomly assigned one of six messages discussing lung cancer prevention: three messages each attributed to a highly credible national organization and three identical messages each attributed to a generic web page. Independent sample t-tests were conducted to compare each attributed message to its counterpart attributed to a generic web page on measures of trustworthiness, truthfulness, readability, and completeness. The results demonstrated that differences in attribution to a source did not have a significant effect on consumers' evaluations of the quality of the information.Conclusions. The authors offer suggestions for national organizations to promote credibility to consumers as a heuristic for choosing better online health information through the use of media co-channels to emphasize credibility.

最近使用互联网作为健康信息的来源引起了人们对消费者区分“好”信息和“坏”信息的能力的担忧。尽管消费者报告说他们使用来源可信度来判断信息质量,但一些观察性研究表明,消费者很少使用来源可信度。本研究考察了消费者对网页的评价,这些网页归因于一个可信的来源,与一般的网页相比,对信息质量的衡量。2005年春季,在美国俄亥俄州的一个区域中心城市进行了一项社区范围的便利性调查。519名参与者被随机分配到六条讨论肺癌预防的信息中的一条:三条信息分别来自一个高度可信的国家组织,三条相同的信息分别来自一个通用的网页。进行了独立样本t检验,以比较每个归属信息与其对应的归属于通用网页的可信度,真实性,可读性和完整性的措施。结果表明,来源的差异对消费者对信息质量的评价没有显著影响。作者为国家组织提供了提高消费者可信度的建议,作为通过使用媒体共同渠道来强调可信度来选择更好的在线健康信息的启发式方法。
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引用次数: 168
Quality of websites in Spanish public hospitals. 西班牙公立医院网站的质量。
Pub Date : 2006-03-01 DOI: 10.1080/14639230500519940
José Joaquín Mira, Gilberto Llinás, Olga Tomás, Virtudes Pérez-Jover

The objectives were to assess the quality of websites in Spanish public hospitals by means of a validated system, also including measures of readability and accessibility. A scale was designed and validated to assess the quality (citizen-orientated) of the websites of hospitals. The quality of the of public hospital websites was evaluated by means of the results of the above evaluation scale, analysis of the readability of their contents, and the results of the accessibility test. The validated scale contains 73 elements or attributes. Analysis of the concordance of website evaluations shows average assessment values of between 0.80 and 0.81, which confirms a high degree of agreement among jurors. Twenty per cent of the attributes do not appear on any websites, and 14% are present on all of them. The average mark of the hospitals is 43%. The marks given for readability of tests show that it is satisfactory for 64% hospitals. None of the websites visited fulfilled the requirements necessary to be considered as accessible. The quality of the websites analysed by means of this scale varies from 23% to 62%. Differences in the size or location of the hospitals do not explain this high level of variability. The results suggest that the readability of websites should be improved and that such sites should be accessible to people with disabilities.

目的是通过一个经过验证的系统评估西班牙公立医院网站的质量,还包括可读性和可访问性的措施。设计并验证了医院网站质量评价量表(以市民为本)。通过上述评价量表的结果、对公立医院网站内容的可读性分析以及可访问性测试的结果,对公立医院网站的质量进行评价。验证的比例包含73个元素或属性。对网站评价的一致性分析,平均评价值在0.80 ~ 0.81之间,证实了陪审员之间的高度一致。20%的属性没有出现在任何网站上,14%的属性出现在所有网站上。医院的平均得分是43%。测试结果显示,64%的医院对测试结果的可读性表示满意。所访问的网站均未达到可访问的要求。通过该量表分析的网站质量从23%到62%不等。医院规模或地点的差异并不能解释这种高度的差异。结果表明,网站的可读性应该得到改善,这样的网站应该是残疾人访问。
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引用次数: 42
Why are structured data different? Relating differences in data representation to the rationale of OpenSDE. 为什么结构化数据不同?将数据表示的差异与OpenSDE的基本原理联系起来。
Pub Date : 2005-12-01 DOI: 10.1080/14639230500367563
Renske K Los, Astrid M van Ginneken, Jolt Roukema, Henriette A Moll, Johan van der Lei

OpenSDE is an application that supports clinicians with structured recording of narrative patient data to enable use of data in both clinical practice and research. OpenSDE is based on a rationale and requirements for structured data entry. In this study, we analyse the impact of the rationale and the requirements on data representation using OpenSDE. Three paediatricians transcribed 20 paper patient records using OpenSDE. The transcribed records were compared; the findings that were the same in content but differed in representation (e.g. recorded as free text instead of in a structured manner) were categorized in one of three categories of difference in representation. The transcribed records contained 1764 findings in total. The medical content of 302 of these findings was represented differently by at least one clinician and was thus included in this study. In OpenSDE, clinicians are free to determine the degree of detail at which patient data are described. This flexibility accounts for 87% of the differences in data representation. Thirteen per cent of the differences are due to clinicians interpreting and translating phrases from the source text and transcribing these to (different) concepts in OpenSDE. The differences in data representation largely result from initial design decisions for OpenSDE.

OpenSDE是一个应用程序,它支持临床医生对叙事患者数据进行结构化记录,以便在临床实践和研究中使用数据。OpenSDE基于结构化数据输入的基本原理和需求。在本研究中,我们分析了使用OpenSDE的基本原理和对数据表示的要求的影响。3名儿科医生使用OpenSDE转录了20份纸质病历。比较转录记录;内容相同但表现方式不同的调查结果(例如,以自由文本记录而不是以结构化方式记录)被归类为三种表现差异之一。转录的记录共包含1764项发现。其中302项发现的医学内容被至少一名临床医生不同地表示,因此被纳入本研究。在OpenSDE中,临床医生可以自由决定描述患者数据的详细程度。这种灵活性占数据表示差异的87%。13%的差异是由于临床医生解释和翻译源文本中的短语,并将它们转录到OpenSDE中的(不同)概念。数据表示的差异很大程度上源于OpenSDE的初始设计决策。
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引用次数: 10
Use of an artificial neural network to localize accessory pathways of Wolff-Parkinson-White syndrome with 12-lead electrocardiogram. 应用人工神经网络定位12导联心电图的沃尔夫-帕金森-怀特综合征副通路。
Pub Date : 2005-12-01 DOI: 10.1080/14639230500367670
Damin Huang, Kazunobu Yamauchi, Yasuya Inden, Jun Yang, Zheng Jiang, Hiromasa Ida, Kimiko Katsuyama, Kai Wang, Ken Kato, Hiroki Kato

Today, radio-frequency ablation has been shown to be a safe and effective method to treat paroxysmal tachycardia with Wolff-Parkinson-White syndrome. The many criteria reported for localizing the sites of accessory pathways from a 12-lead electrocardiogram have not proven adequate to differentiate the correct sites of accessory pathways for all situations. This study trained an artificial neural network to differentiate the varied features needed to localize 10 sites of accessory pathways. One hundred fifty patients underwent successful catheter ablation, with manifest single and antegradely conducting accessory pathways. Using the two electrocardiogram features of polarity of delta wave and R wave's share of QRS complex, an artificial neural network learned the characteristics of electrocardiogram waves for each site of the 10 accessory pathways through 90 learning cases, and an applicable network model was developed for testing. In 58 of 60 test cases (96.7%), sites of accessory pathways were localized correctly by the network. Based on the method employed in the present study, it thus becomes possible to predict the sites of accessory pathways with Wolff-Parkinson-White syndrome in more detail by using an artificial neural network with a 12-lead electrocardiogram. In the future, when this method is incorporated into a conventional automatic electrocardiogram system which could analyze delta waves and ORS complex, it will become useful to automatically diagnose the locations of the accessory pathways with Wolff-Parkinson-White syndrome in clinical practice.

如今,射频消融已被证明是一种安全有效的治疗阵发性心动过速伴沃尔夫-帕金森-怀特综合征的方法。据报道,从12导联心电图中定位副通路位置的许多标准尚未被证明足以区分所有情况下副通路的正确位置。本研究训练了一个人工神经网络来区分10个辅助通路位置所需的不同特征。150例患者成功行导管消融,有明显的单行和顺行附属通路。利用delta波极性和R波在QRS复核中的份额这两种心电图特征,人工神经网络通过90个学习案例学习了10个辅助通路各位点的心电图波特征,并建立了适用的网络模型进行测试。在60个测试案例中,有58个(96.7%)的辅助通路被网络正确定位。基于本研究所采用的方法,利用人工神经网络和12导联心电图更详细地预测沃尔夫-帕金森-怀特综合征副通路的位置成为可能。未来,当该方法与传统的可分析δ波和ORS复波的自动心电图系统结合使用时,将有助于临床自动诊断Wolff-Parkinson-White综合征附属通路的位置。
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引用次数: 3
The Web as an educational tool for/in learning/teaching bioinformatics statistics. 网络作为学习/教授生物信息学统计的教育工具。
Pub Date : 2005-12-01 DOI: 10.1080/14639230500367456
J Oliver, M E Pisano, T Alonso, P Roca

Statistics provides essential tool in Bioinformatics to interpret the results of a database search or for the management of enormous amounts of information provided from genomics, proteomics and metabolomics. The goal of this project was the development of a software tool that would be as simple as possible to demonstrate the use of the Bioinformatics statistics. Computer Simulation Methods (CSMs) developed using Microsoft Excel were chosen for their broad range of applications, immediate and easy formula calculation, immediate testing and easy graphics representation, and of general use and acceptance by the scientific community. The result of these endeavours is a set of utilities which can be accessed from the following URL: http://gmein.uib.es/bioinformatica/statistics. When tested on students with previous coursework with traditional statistical teaching methods, the general opinion/overall consensus was that Web-based instruction had numerous advantages, but traditional methods with manual calculations were also needed for their theory and practice. Once having mastered the basic statistical formulas, Excel spreadsheets and graphics were shown to be very useful for trying many parameters in a rapid fashion without having to perform tedious calculations. CSMs will be of great importance for the formation of the students and professionals in the field of bioinformatics, and for upcoming applications of self-learning and continuous formation.

统计学为生物信息学提供了重要的工具,用于解释数据库搜索的结果或管理来自基因组学、蛋白质组学和代谢组学的大量信息。该项目的目标是开发一种软件工具,它将尽可能简单地演示生物信息学统计的使用。选择使用Microsoft Excel开发的计算机仿真方法(csm),是因为它们的应用范围广泛,公式计算方便快捷,测试方便,图形表示方便,并且被科学界普遍使用和接受。这些努力的结果是一组实用程序,可以从以下URL访问:http://gmein.uib.es/bioinformatica/statistics。在对以前学过传统统计教学方法课程的学生进行测试时,普遍的意见/总体共识是,基于网络的教学有许多优点,但他们的理论和实践也需要传统的人工计算方法。一旦掌握了基本的统计公式,Excel电子表格和图形对于快速尝试许多参数而不必执行繁琐的计算是非常有用的。csm对于培养生物信息学领域的学生和专业人员,以及未来自主学习和持续形成的应用具有重要意义。
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引用次数: 8
Accessibility compliance rates of consumer-oriented Canadian health care Web sites. 面向消费者的加拿大医疗保健网站的可访问性遵守率。
Pub Date : 2005-12-01 DOI: 10.1080/14639230500367746
Laura O'Grady

Vast amounts of consumer-based health care information are widely available on the World Wide Web. However, for some this material is inaccessible due to reliance on specialized computer equipment or software known as assistive technology. These tools, designed for people with sensory, physical, or learning disabilities, act as a median to interpret Web pages in accessible ways. Unfortunately, many websites, including those with health-related content are not designed to accommodate this equipment. No research has yet been published examining the extent of this problem in Canadian consumer-oriented health care sites. The purpose of this study was to investigate the percentage of accessible consumer-based health care websites of Canadian origin. A listing of such sites was randomly sampled for study inclusion. Each was assessed for accessibility based on the World Wide Web Consortium (W3C) Web Accessibility Initiative (WAI) Web Content Accessibility Guidelines (WCAG) 1.0 using the validation software Bobby. The results indicated that only about 40% of pages investigated were free of errors in accordance with WCAG 1.0 Priority 1 level. Websites should be constructed in compliance with these standards to better accommodate those using assistive devices.

大量基于消费者的医疗保健信息可以在万维网上广泛获取。然而,对于一些人来说,由于依赖于专门的计算机设备或称为辅助技术的软件,这些材料是无法访问的。这些工具是为有感官、身体或学习障碍的人设计的,它们充当了以可访问的方式解释Web页面的中介。不幸的是,许多网站,包括那些与健康有关的内容的网站,都不适合这种设备。目前还没有发表过调查加拿大以消费者为导向的医疗保健网站中这一问题的程度的研究。本研究的目的是调查加拿大来源的可访问的消费者为基础的医疗保健网站的百分比。这些地点的清单被随机抽样纳入研究。使用验证软件Bobby,根据万维网联盟(W3C)网络可访问性倡议(WAI)网络内容可访问性指南(WCAG) 1.0对每个网站的可访问性进行评估。结果表明,按照WCAG 1.0优先级1的标准,只有大约40%的被调查页面没有错误。网站的建设应符合这些标准,以更方便使用辅助设备的人士。
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引用次数: 27
Locating ICT's benefits in elderly care. 定位信息通信技术在老年人护理中的好处。
Pub Date : 2005-12-01 DOI: 10.1080/14639230500429363
Nils-Göran Olve, Vivian Vimarlund

The impact of information and communication technology (ICT) is indirect and depends on redesign of practices and structures also outside health care. Improvements will only be realized if all parties involved can coordinate their efforts to take advantage of new technology. A 'package' of changed work practices and structures extending across organizational boundaries needs to be designed and implemented. This is very different from the common conception of introducing new ICT tools. Calls for 'evaluation of benefits' before new ICT systems are introduced need to recognize this complexity. This article investigates how analysis and economic evaluations can be used to improve decision-making when new applications are proposed. This is done by drawing parallels with experiences from other industries. We conclude that the entire 'change package' should be analysed for its consequences on the well-being of care recipients, and the requirements it presents for capital investments and changed labour inputs, in particular changed competence needs. Some concepts and structures are suggested for such evaluations.

信息和通信技术(信通技术)的影响是间接的,取决于在卫生保健之外的做法和结构的重新设计。只有有关各方能够协调努力,利用新技术,才能实现改进。需要设计和实施一个跨越组织边界的变更工作实践和结构的“包”。这与引入新的信息和通信技术工具的一般概念非常不同。在引入新的信息通信技术系统之前进行“效益评估”的呼吁需要认识到这种复杂性。本文探讨了在提出新应用时如何使用分析和经济评价来改进决策。这是通过借鉴其他行业的经验来实现的。我们的结论是,应该分析整个“一揽子改革”对护理对象福利的影响,以及它对资本投资和劳动力投入的要求,特别是对能力需求的改变。对这种评价提出了一些概念和结构。
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引用次数: 10
Wireless home monitoring and health care activity management through the Internet in patients with chronic diseases. 通过互联网对慢性病患者进行无线家庭监测和保健活动管理。
Pub Date : 2005-12-01 DOI: 10.1080/14639230500170587
Andrea Tura, Luca Quareni, David Longo, Claudia Condoluci, Astrid van Rijn, Giorgio Albertini

A project was developed for the creation of an Internet-based network aimed at improved management of home care activities in brain-injured children. At the patient's side, a home care unit was provided, made of a portable medical device, and a tablet PC. Measured clinical data were blood oxygen saturation, heart rate, breath rate and quantity of movement. Thanks to device portability, the patient was free to move while measurements were taken. At prescribed time intervals, measured data were automatically transmitted to the tablet PC via Bluetooth. From the tablet PC, data were transmitted remotely to a Service Centre (via ADSL or GPRS) and made available for consultation by health care professionals through the project Web portal. At the portal, other functionalities were also available, both for patients and families, and for professionals (such as weekly planning agenda, access to relevant information resources, communication tools). Information was delivered for the right participant through a workflow engine. A first trial involving nine patients was performed for two months. At the end, although some improvements were suggested, good acceptance was detected, and 78% of patients and families claimed to be interested in further use of the platform.

制定了一个项目,目的是建立一个基于互联网的网络,以改进对脑损伤儿童的家庭护理活动的管理。在病人身边,提供了一个家庭护理单元,由便携式医疗设备和平板电脑组成。测量的临床数据包括血氧饱和度、心率、呼吸频率和活动量。由于设备的便携性,患者在测量时可以自由活动。在规定的时间间隔内,测量数据通过蓝牙自动传输到平板电脑上。数据从平板电脑(通过ADSL或GPRS)远程传输到服务中心,并通过项目门户网站提供给保健专业人员进行咨询。在门户网站上,其他功能也可供患者和家属以及专业人员使用(例如每周计划议程,访问相关信息资源,通信工具)。信息通过工作流引擎传递给合适的参与者。第一次试验涉及9名患者,进行了两个月。最后,尽管提出了一些改进建议,但人们对该平台的接受度很高,78%的患者和家属表示有兴趣进一步使用该平台。
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引用次数: 9
A systematic approach to medical decision-making of uncommon clinical pictures: a case of ulcerative skin lesions by palm tree thorn injury and a one-year follow-up. 一个系统的方法来医疗决策罕见的临床图片:1例溃疡性皮肤病变的棕榈树刺伤和一年的随访。
Pub Date : 2005-09-01 DOI: 10.1080/14639230500209104
Salvatore Corrao, Roberto D'Alia, Salvatore Caputo, Sabrina Arnone, Giovan Battista Pardo, Tom Jefferson

In clinical practice, the clinician is challenged with symptoms and/or signs at times apparently insoluble by diagnostic and/or therapeutic means. We propose that in these cases, we have to use an EBM approach in which evidence may be looked up in every available clinical report and bibliographic databases are used for searching that evidence. We report on a case of ulcerative skin lesions apparently insoluble by expert dermatologists following a conventional diagnostic and therapeutic process. We use this case report for illustrating a systematic approach to resolve diagnostic and therapeutic questions using a bibliographic database search (like MEDLINE and EMBASE). Both a systematic approach to bibliographic databases and a critically appraised topic on case reports (or case series) are needed to 'rehabilitate' low-level evidences (that is a case report or case series) to a higher level when we approach decision-making of uncommon clinical pictures. We demonstrate the possibility of using bibliographic databases to search and retrieve useful information for decision-making of uncommon clinical pictures. The method we have proposed can be applied in every area of the world, especially in rural areas. Finally, an Internet-shared database of uncommon clinical pictures with critically appraised topics could be useful in saving more time.

在临床实践中,临床医生面临着症状和/或体征的挑战,这些症状和/或体征有时显然无法通过诊断和/或治疗手段解决。我们建议,在这些情况下,我们必须使用循证医学方法,在每一个可用的临床报告中查找证据,并使用书目数据库来搜索证据。我们报告一例溃疡性皮肤病变显然不溶由专家皮肤科医生以下的传统诊断和治疗过程。我们用这个病例报告来说明使用书目数据库搜索(如MEDLINE和EMBASE)解决诊断和治疗问题的系统方法。当我们处理不常见临床图像的决策时,需要对书目数据库进行系统的方法和对病例报告(或病例系列)进行批判性评估的主题,以“恢复”低水平证据(即病例报告或病例系列)到更高的水平。我们展示了使用书目数据库搜索和检索有用信息的可能性,以便对罕见的临床图片进行决策。我们提出的方法可以应用于世界上的每一个地区,特别是农村地区。最后,一个互联网共享数据库的罕见的临床图片与批判性评价的主题可能有助于节省更多的时间。
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引用次数: 4
Completeness and accuracy of WWW-based catalogues of medical E-learning modules. 基于www的医学电子学习模块目录的完整性和准确性。
Pub Date : 2005-09-01 DOI: 10.1080/14639230500193647
Jürgen Stausberg, Kevin Bludssat, Martin Geueke

Catalogues of medical E-learning modules offer easy access to learning material that is available on the World Wide Web (WWW) free of charge. Therefore, a study was conducted on the retrieval performance of four WWW-based catalogues: CAL reviews, KELDAmed, LMU, and LRSMed. LRSMed is run by the authors. Completeness was calculated pairwise. Two reviewers checked the availability of 80 modules independently. Five criteria were chosen to calculate accuracy: gynaecology and microbiology as medical fields; case study as type of learning resource; diabetes mellitus and AIDS as free-text diagnoses. Also, two reviewers evaluated independently whether the module is really an appropriate resource for that criterion or not. The analysis is based on a consensual decision about the correct votes. From the URLs, 93% were available at the evaluation of completeness, 92% at the evaluation of accuracy. The kappa values for inter-rater reliability were 0.83 and 0.36. The best service offers 60.8% of the pooled E-learning resources. The resources retrieved by the five criteria were rated as correct in 69.3% (LRSMed), 76.6% (KELDAmed), and 82.7% (CAL reviews). The overall accuracy was 76.7%. Medical students and other potential users of E-learning modules should be aware that the completeness of WWW-based catalogues in this area is not satisfying. The retrieval accuracy is better; four of five resources offered correspond with the search criterion. Up to now, most of the services miss an application-programming interface that could be used for a meta-search to improve completeness.

医学电子学习模块目录提供了方便的途径,可以免费获取万维网上提供的学习材料。因此,我们研究了四个基于www的目录:CAL reviews、KELDAmed、LMU和LRSMed的检索性能。LRSMed由作者管理。完整性是两两计算的。两名审稿人独立审核了80个模块的可用性。选择五个标准来计算准确性:妇科和微生物学作为医学领域;案例研究作为一种学习资源糖尿病和艾滋病作为自由文本诊断。另外,两个审阅者独立地评估该模块是否真的是满足该标准的合适资源。分析是基于对正确选票的一致决定。从url中,93%在完整性评估中可用,92%在准确性评估中可用。信度kappa值分别为0.83和0.36。最好的服务提供了60.8%的在线学习资源。五个标准检索到的资源的正确率分别为69.3% (LRSMed)、76.6% (KELDAmed)和82.7% (CAL)。总体准确率为76.7%。医学生和电子学习模块的其他潜在用户应该意识到,在这一领域,基于万维网的目录的完整性并不令人满意。检索精度较高;提供的五个资源中有四个符合搜索条件。到目前为止,大多数服务都缺少可用于元搜索以提高完整性的应用程序编程接口。
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引用次数: 0
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Medical informatics and the Internet in medicine
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