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Lived Experience of the Social Suffering of the Parents with Autism Spectrum Disorder (ASD) Child 自闭症谱系障碍(ASD)儿童父母社会痛苦的生活体验
Pub Date : 2019-08-01 DOI: 10.29252/REFAHJ.19.72.243
ansar khougar, A. A. Asgharnejad, H. Ranjbar, Mojgan Lotfei, Mitra Hakimshoushtari
Introduction : The current study is performed to identify the parents with an autistic child’s lived experience of social suffering. Method : The current study applies qualitative method with the thematic analysis approach. Purposive sampling is performed on parents of the children with autism spectrum. Thirteen parent were interviewed about 45 to 70 minutes. Participants include four fathers and nine mothers with a child who has diagnosed with autism. The data collection method was a semi-structured in depth inter -view. Data analysis process was started from the first in terview via MAXQDA software and coding is perfumed after each interview. Following that, Thematic analysis is used to study the data. Finally, the lived experience findings were categorized in main and sub themes. In this study, four criteria of Guba and Lincoln were used to increase scientific accuracy. Findings : 155 codes were extracted from interviews and those codes were categorized in five main themes and six sub themes. Main themes include: diagnosis process، parents’ everyday problems، family’s presence in the community، support services and financial problems. Discussion : the results have shown that parents of a child which is in autism spectrum facing excessive suffering and difficulties in various aspects of their life. The chal lenges begin in early stages of diagnosis procedure and extend to every aspect of their life. Abstract Introduction: ASDs are classified as developmental neurological group disor -ders, which cause significant deficiencies in social interaction and communication. Restricted and repetitive behaviors are also present. Raising a child with ASD is a difficult experience, and it negatively affects both the child and his/her family. The parents of the child with ASD has are the ones who have the most interaction with him/her, and they suffer from ASDS challenges more than other relatives. De creasing parenting efficiency and increasing their physical and psychiatric prob lems are some examples of those challenges. The studies reveal that parents and mothers in particular, experience higher levels of stress compared to the ones with normal children. For many years, most of the studies have focused on the effects of parents on children with ASDs, but recent research have concentrated on the effects of children with ASDs on their parents’ lives. The present research aims to discover the ASDs children’s parents’ sufferings and problems thorough the study of their lived experiences. Method: The current study applies qualitative method with the thematic analy sis approach. Purposive sampling is performed on parents of the children with autism spectrum. In this study, 13 interviews were conducted with parents, each of which had lasted between 45 to 70 minutes. The participants were four fathers and nine mothers with a child diagnosed with ASD. The data collection instru ment was a semi-structured in depth interview. Data analysis process started from the
引言:本研究旨在确定患有自闭症儿童的父母的社会痛苦生活经历。方法:本研究采用定性分析和专题分析相结合的方法。对自闭症谱系儿童的父母进行有针对性的抽样。13名家长接受了约45至70分钟的采访。参与者包括四位父亲和九位母亲,他们的孩子被诊断为自闭症。数据收集方法是一种半结构化的深度交互视图。数据分析过程从一开始就通过MAXQDA软件进行,每次采访后都会进行编码。然后,采用专题分析法对数据进行研究。最后,将生活体验的发现分为主主题和次主题。在这项研究中,Guba和Lincoln的四个标准被用来提高科学准确性。研究结果:从访谈中提取了155个代码,这些代码分为五个主主题和六个子主题。主要主题包括:诊断过程、父母的日常问题、家庭在社区的存在、支持服务和经济问题。讨论:研究结果表明,自闭症儿童的父母在生活的各个方面都面临着过度的痛苦和困难。挑战始于诊断程序的早期阶段,并延伸到他们生活的方方面面。摘要简介:ASD被归类为发育性神经系统群体障碍,在社交和沟通方面存在显著缺陷。限制性和重复性行为也存在。抚养患有自闭症谱系障碍的孩子是一种困难的经历,它对孩子和他/她的家人都有负面影响。自闭症儿童的父母是与他/她互动最多的人,他们比其他亲属更容易受到自闭症谱系障碍的挑战。降低育儿效率和增加他们的身体和精神问题就是这些挑战的一些例子。研究表明,与有正常孩子的父母相比,父母尤其是母亲承受的压力更大。多年来,大多数研究都集中在父母对ASD儿童的影响上,但最近的研究集中在ASD儿童对父母生活的影响上。本研究旨在通过对ASD儿童父母生活经历的研究,发现父母的痛苦和问题。方法:本研究采用定性分析法和专题分析法。对自闭症谱系儿童的父母进行有针对性的抽样。在这项研究中,对父母进行了13次访谈,每次访谈持续时间在45到70分钟之间。参与者是四位父亲和九位母亲,他们的孩子被诊断为自闭症谱系障碍。数据收集说明是一个半结构化的深度访谈。数据分析过程从第一次面试开始,通过MAXQDA软件进行,每次面试后都会进行编码。数据最终采用专题分析法进行分析。最后,父母生活经历的结果记录在主要和次要主题中。在这项研究中,Guba和Lincoln的四个标准被用来提高科学准确性。调查结果:数据分为五大主题。第一类是关于诊断过程。分主题包括诊断前的困惑和不同的医学诊断。困惑的父母试图了解孩子异常行为的原因,这是医学诊断过程中艰难的第一步。没有具体的参考资料可供参与者指导他们如何建立健康记录和简化旅程。所有参与者都抱怨那段时间的困难。一些
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引用次数: 3
Determininge the Relationship between Misery Indices and the Divorce Rate in Iran 伊朗悲惨指数与离婚率关系的确定
Pub Date : 2019-03-10 DOI: 10.29252/REFAHJ.18.71.7
nafiseh majdzadeh, Reza Zeinalzadeh
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引用次数: 0
The Triangular Relationship between Poverty, Inequality and Growth in Iran during the Development Plans 发展计划期间伊朗贫困、不平等和增长之间的三角关系
Pub Date : 2019-03-10 DOI: 10.29252/REFAHJ.18.71.1
Sakineh Ashrafi, Davod Behbudi, M. Mahdavi, H. Panahi
دناوت یم هك تسه رقف شهاك یارب شلات ،هعسوت فده نیرت مهم :همدقم میهست اب طبترم تاعوضوم .دبای ققحت دمآرد عیزوت ای / و یداصتقا دشر اب .تسا هدوب 0991 ههد زا هعسوت یاهتسایس تیولوا ،ارقف هب دشر عفانم شهاك یارب دنك رازبا كی ییاهنت هب دشر هك تسا نیا هتفرگ تروص عامجا هب )تورث( ییاراد و دمآرد یعیزوتزاب و یعیزوت یاهتسایس زین و تسا رقف .دنا هتفای تیمها یا هدنیازف روط یط رقف و یرباربان ،یداصتقا دشر لباقتم هطبار هلاقم نیا رد :شور یسرربدروم )6102-5991( ناریا هعسوت مجنپ ات مود یاه همانرب یاهلاس نیا ،ارقف یماح دشر موهفم زا هدافتسا اب روظنم نیا هب .تسا هتفرگ رارق دنا هدش عفتنم یداصتقا دشر زا ارقف یا هرود هچ رد دنك یم نومزآ هعلاطم ،هدافتسادروم هجنس .تسا هدوب هنوگچ یداصتقا دشر تارمث عیزوت و عفانم یگنوگچ مه و دشر نازیم مه هك تسا »رقف لداعم دشر خرن« یژولدتم نیا .دروآ یم باسح هب ار ارقف ریغ و ارقف نایم هدش عیزوت دشر رد تارییغت و هتفای میمعت زنرول ینحنم طابترا ،نوسنیكتا یروئت ساسا رب .دهد یم حرش ار رقف دشر خرن داد ناشن رقف لداعم دشر خرن هجنس یاهدروآرب :اه هتفای یماح ،یرهش قطانم رد هعسوت موس و مود همانرب ود رد لك هنیزه نیگنایم و تشادن موادت هعسوت مجنپ و مراهچ همانرب ود رد هك تسا هدوب ارقف رد و تسا هتفای شیازفا ،همانرب ود نیا یط رد رقف هك دراد نیا رب تللاد دنور .دنا هدید بیسآ ارقف ریغ زا رتشیب یبسن روط هب ارقف مجنپ همانرب یط نامه یسرربدروم هعسوت یاه همانرب یط ییاتسور قطانم رد هجنس نیا .تسا یرهش قطانم دنور یاهتسایس ،هعسوت همانرب جنپ یارجا دوجو اب داد ناشن جیاتن :ثحب یاه همانرب لوط رد رادیاپ كیژتارتسا همانرب كی تروص هب رقف شهاك لح یارب یتفن یاهدمآرد زا هدافتسا و تسا هدشن هتفرگ راك هب هعسوت ثعاب هعسوت و دشر هلئسم هب هجوت نودب ینامرد هژورپ تروص هب رقف هلئسم یفرشا هنیکس.1 ،...... هاگشناد ،..... هدكشناد ،داصتقا رتكد .)لوئسم ةدنسیون(روشك ،رهش
我要给你三针糖汁,一百舍客勒的氮气,一百舍克的水。客家Tsa和Tessa Rakkaf的边界是土耳其的边界。奈良,我不会和你战斗,但我会为你战斗。不要来到亚朱尔杜姆的亚朱尔多姆和亚朱卡特的亚朱卡特。رقحاـرهدا5;فر1583;واردبیبينرودهب1605;هعانرب两个水炮:罗得红十字会的邻居Thabah Yah,国王殿下的邻居Rajatarsa,Hah Hah HahYah Yah Ard Yah Ar,Heftfah Hab,Heftfa,Heftah,Heshwah赫什瓦。Jefferson Hannix.1。。。匈牙利。。。我的爱好,我以为你疯了。)卢森堡、丹麦、,
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引用次数: 1
a pathological assessment of social housing (Mehr) taking an approach toward social class inequality and urban deviation in Tabriz 社会住房的病理学评估(Mehr)——从大不里士社会阶层不平等和城市偏差的角度
Pub Date : 2019-03-10 DOI: 10.29252/refahj.18.71.4
Saeed Irani, Mansur Hagigatian, Asghar Mohamadi
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引用次数: 0
The Determinants of Gender Equality in Youth Employment in Developing Countries 发展中国家青年就业中性别平等的决定因素
Pub Date : 2019-03-10 DOI: 10.29252/REFAHJ.18.71.2
N. Ahmadvand, M. Fotros, mehdi amini rad
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引用次数: 0
The study of the status of living standards and related socioeconomic factors among the elderly in Tehran 德黑兰老年人生活水平现状及相关社会经济因素研究
Pub Date : 2019-03-10 DOI: 10.29252/REFAHJ.18.71.5
مینا جهان پور, حسین محققی کمال, سمانه حسین زاده, حمیرا سجادی, مهدی باسخا, مهدی خزلی
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引用次数: 0
Studying the cohabitation subculture in metropolis Tehran (backgrounds and consequents) 德黑兰大都市的同居亚文化研究(背景与后果)
Pub Date : 2019-03-10 DOI: 10.29252/REFAHJ.18.71.8
pouran omidvar, P. Danesh, F. Javaheri, M. Z. Mazandarani
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引用次数: 0
Spirituality development during childhood; a latent approach for health and social improvement 儿童时期的精神发展;健康和社会改善的潜在途径
Pub Date : 2019-03-01 DOI: 10.29252/REFAHJ.18.71.6
Mozhgan Moshtagh
قاتشم ناگژم ،یعامتجا هافر و تملاس یارتكد و یتسیزهب مولع هاگشناد ناریا ،نارهت ،یشخب ناوت تیونعم شرورپ رد یا هژیو تیمها ییادتبا نینس رد یونعم براجت:همدقم یعامتجا تملاس یاقترا رد دناوت یم ،تیونعم هعسوت دنیارف زا یهاگآ و دراد اهیگژیو ییاسانش ،تیونعم داعبا لیلحت ،یرورم هلاقم نیا فده .دشاب رثؤم .تسا یكدوك نارود رد تیونعم هعسوت اب طبترم لماوع و PubMed، یاههاگیاپ .تسا یتیاور یرورم عون زا شهوژپ نیا :شور یاه هژاودیلك اب ،Sciencedirect مرفتلپ و Google Scholar، Magiran ،»یكدوك و تیونعم هعسوت« ،»تیونعم و بهذم« ،»تملاس و تیونعم« رارق وجو تسج دروم اهنآ نیتلا لداعم و »یكدوك نارود و یونعم لماكت« عبانم یخرب یوجو تسج و یراركت ای طبترمان دراوم فذح زا سپ .دنتفرگ .دندش باختنا لیلحت یارب اهنآ نیرت بسانم ،طبترم تاعلاطم رد هعسوت داعبا ریاس اب طبترم ار یونعم دعب لماكت ،نازادرپ هیرظن بلغا :اه هتفای هب مارتحا ،قلعت سح ؛دعب هس زا لكشتم تیونعم هعسوت .دنا هدرك حرطم یناسنا تیامح .تساه هتسنادان و اه هتخانشان هب نداد تیمها و یهاگآ ،نارگید و دوخ ساسحا یارب تصرف داجیا ،یونعم براجت و تاساسحا نایب یارب ناكدوك زا تكراشم زا ریدقت ،ینهذ یزاسریوصت یارب هنیمز ندركایهم ،یتفگش و تریح زا یخرب ،مهم یاهلاؤس ندیسرپ یارب وا ندرك قیوشت نینچمه ،اهراك رد کدوك .دنتسه تیونعم شرورپ یاهشور نورد مئلاع یریگدای اب طبترم ،ادخ اب طابترا هبرجت یریگ لكش :ثحب ناكم ،نامز ؛ینوریب و درف فلتخم تاساسحا ؛ینورد هنیمز( دنتسه هنیمز و اهشزرا هب دهعت ،لداعتم تیوه اب طبترم ،تبثم تیونعم .)رگید دارفا و ،دوخ هب تبسن تیلوئسم و یلدمه ساسحا ،یقلاخا یاهباختنا .تساهرواب رد دناوت یم درف یگدنز تیفیك دوبهب رب هولاع ،تعیبط و تادوجوم ریاس .دشاب رثؤم زین یعامتجا هعسوت و تملاس یاقترا :یدیلک یاه هژاو هعسوت ،یبهذم -یونعم لماكت تیونعم ،یكدوك نارود ،یعامتجا تملاس و
我的杀手,挪威Haffer和Yatkad俱乐部,Sheikh Nauth,Shinjo Sharp俱乐部,或Hejyo团队,Yattaba Nines,South Brought:我会同时联系你。爱琴海疾病、Teonam Dabba Lihet、Iram Holamic疾病。Tessa Ikodok瑙鲁是一条从Tionam流向Luma和PubMed、Yahagipe、Yahajipe、Yekuan Oroma流向Shejup:Sovereigny or Hyododic Water、Sciencedirect Merftleph和Google Scholar的河流,Magiran,Yekdoch,TeenamHassut,Teenam,Taumas,Teenan,Tauma,RakhJooTaumas、AnaNitelaLaddam、YekdochNaurud、YunnamLamaket、AbnamYarabYuzhouJazz和伊拉克人是肥皂中毒的受害者。Dentfurg失去了LiethYana。对不起,对不起,对不起。球队和Yahaga,Nargid和Sasha Yahub,Dajaya,Yunnam Brajzet和Tassaha Nayb,Nakdok的女婿,inه1607وYasaryust Yahub Henyams Nerkhaim,伊拉克人和Trisha Yahub,Yahalos Nedserp的女婿和Nelserp的女婿Arak。红十字会、丹蒂斯、田纳西州、夏普、东北部、伊里格达、伊里格达、电梯混合动力、Naomi、Inorrib和Thasasha Flythema、Indres Henjames。德黑兰公爵拉吉德·达尔法、德黑兰、埃尔德马·萨沙和塔赫兰。你为什么抽烟,抽烟吗,抽烟吗,
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引用次数: 2
Systematic Review of Studies on Slums (1996-2017) 贫民窟研究的系统回顾(1996-2017)
Pub Date : 2019-03-01 DOI: 10.29252/refahj.18.71.3
S. Hemati, R. Hemati, Hossain moltafet, Asghar Izadi jairan
Introduction : With the expeditios growth of urban popula tion in developing countries, slums as a social predicament and problem has impeded the urban management of these countries. From this viewpoint, and by doing multiple re searche studies, the researchers of different courses in Iran have tried to survey the grounds of formation and growth of this phenonmenon as well as its consequences and effects. Regarding the nature of the topic, a remarkable variety is observed in the ‘statement of the problem’ and ‘methodol -ogy’. This paper systematically reviewed the field of slums in the past two decades, a critical assessment of how to face field researchers, including the geography and management was carried out as well. The systematic review method in this study provides the opportunity to conduct a descriptive and analytical survey of them with reflections, questions, meth -odology, theoretical framework, and other selected paper characteristics. The findings of this review show that there is no consensus about the term”slums or marginalization” in Iran, and little effort has ben made to offer a public accep tance as regards the definition. It is obvious that in the design of related issues, a quantitative approach has been to be the dominant approach of active researchers in this field. Method : The method used in the current study was a sys tematic review and analysis of the previous studies. Sys tematic reviews provide useful and concise summaries of a given subject on a particular topic, and contrary to the traditional approach to reviewing articles, such as early research, follow strict and rigorous principles. Their ap 1-
导言:随着发展中国家城市人口的迅猛增长,贫民窟作为一个社会困境和社会问题,一直困扰着发展中国家的城市管理。从这一观点出发,伊朗不同学科的研究人员进行了多项研究,试图探究这一现象形成和发展的原因,以及其后果和影响。关于主题的性质,在“问题陈述”和“方法”中可以观察到显著的变化。本文系统地回顾了近二十年来贫民窟研究领域的发展,并对如何面对贫民窟研究领域的研究人员进行了批判性的评估,包括在地理和管理方面的评估。本研究的系统综述方法提供了对它们进行描述性和分析性调查的机会,包括反思、问题、方法、理论框架和其他选定的论文特征。这次审查的结果表明,在伊朗对“贫民窟或边缘化”一词没有达成共识,也没有作出多少努力使公众接受这一定义。很明显,在相关问题的设计中,定量方法已成为该领域活跃研究者的主导方法。方法:本研究采用的方法是对以往研究的系统回顾和分析。系统评论提供了对特定主题的给定主题的有用和简明的摘要,与传统的审查文章的方法相反,例如早期的研究,遵循严格和严格的原则。他们的ap - 1
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引用次数: 1
Investigating the Effects of the Spread of Contagious Disease and Immunization of Population on Social Welfare Using Agent Based Modeling 基于Agent的模型研究传染病传播和人口免疫对社会福利的影响
Pub Date : 2019-02-10 DOI: 10.29252/REFAHJ.18.70.181
Ghasem Shirkhodaie, Arash Rahman
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引用次数: 0
期刊
Social welfare
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