Pub Date : 2025-09-01Epub Date: 2025-04-01DOI: 10.1177/00048674251324819
Rebecca Hird Fletcher Garigal And Walkaloa, Lisa Wittenhagen, Alyssa Cormick, Marshall Watson Noongar, Jessica Elliott, James G Scott, Scott Harden, Stephen Stathis, Stuart A Kinner, Ed Heffernan, Penny Dale Turrbal, Carla Meurk, Megan Williams Wiradjuri
Background: The Growth and Empowerment Measure was developed by and for Aboriginal and Torres Strait Islander adults to measure social and emotional well-being and empowerment. This study aimed to co-design and validate a version of the Growth and Empowerment Measure with Aboriginal and Torres Strait Islander young people experiencing youth detention.
Method: 103 Aboriginal and Torres Strait Islander young people experiencing youth detention participated. Participants directed seven adaptations from the Growth and Empowerment Measure for adults to create a Growth and Empowerment Measure-Youth (GEM-Youth). 78 participants completed the GEM-Youth version 7 and 57 participants completed both the full GEM-Youth version 7 and the Kessler psychological distress scale (K10). Cronbach's alpha and inter-item correlations were calculated for two components of the GEM-Youth: how I feel about myself and thinking about my everyday life. Associations between K10 and GEM-Youth scores were quantified using Pearson's correlation.
Results: How I feel about myself questions had a mean inter-item correlation of (0.21) and good internal consistency (α = 0.80). Thinking about my everyday life questions had a mean inter-item correlation of 0.18 and internal consistency of α = 0.69. How I feel about myself showed a strong negative correlation (r(55) = -0.61, [95% confidence interval: -0.42, -0.75] p < 0.001) with K10. Thinking about my everyday life showed a moderate negative correlation with K10 (-0.31, [95% confidence interval: -0.05, -0.52] p = 0.02).
Implications: The GEM-Youth provides a culturally grounded and validated measure to assess social and emotional well-being and empowerment for Aboriginal and Torres Strait Islander young people in detention settings. This measure has therapeutic and research value that should be further refined and explored. Future research should adapt and validate this tool for use with other groups and settings.
背景:成长和赋权测量是由原住民和托雷斯海峡岛民成年人开发的,用于测量社会和情感福祉和赋权。本研究旨在共同设计和验证原住民和托雷斯海峡岛民青年经历青少年拘留的成长和赋权措施。方法:以103名原住民及托雷斯海峡岛民青少年为研究对象。与会者根据《成人成长与赋权措施》改编了7部影片,创建了《成长与赋权措施-青年》(GEM-Youth)。78名参与者完成了GEM-Youth version 7, 57名参与者完成了完整的GEM-Youth version 7和Kessler心理困扰量表(K10)。对GEM-Youth的两个组成部分:我对自己的感觉和对日常生活的思考,计算了Cronbach’s alpha和项目间相关性。K10和GEM-Youth评分之间的关联使用Pearson相关进行量化。结果:“我对自己的感觉”问题的平均项目间相关系数为(0.21),内部一致性较好(α = 0.80)。思考我的日常生活问题的平均项目间相关系数为0.18,内部一致性为α = 0.69。我对自己的感觉表现出强烈的负相关(r(55) = -0.61,[95%置信区间:-0.42,-0.75]p p = 0.02)。启示:GEM-Youth提供了一种文化基础和有效的措施,以评估土著和托雷斯海峡岛民青年在拘留环境中的社会和情感福祉和赋权。该措施具有治疗和研究价值,有待进一步完善和探索。未来的研究应该适应和验证这个工具用于其他群体和设置。
{"title":"Development of a growth and empowerment tool (GEM-Youth) co-designed with Aboriginal and Torres Strait Islander young people.","authors":"Rebecca Hird Fletcher Garigal And Walkaloa, Lisa Wittenhagen, Alyssa Cormick, Marshall Watson Noongar, Jessica Elliott, James G Scott, Scott Harden, Stephen Stathis, Stuart A Kinner, Ed Heffernan, Penny Dale Turrbal, Carla Meurk, Megan Williams Wiradjuri","doi":"10.1177/00048674251324819","DOIUrl":"10.1177/00048674251324819","url":null,"abstract":"<p><strong>Background: </strong>The Growth and Empowerment Measure was developed by and for Aboriginal and Torres Strait Islander adults to measure social and emotional well-being and empowerment. This study aimed to co-design and validate a version of the Growth and Empowerment Measure with Aboriginal and Torres Strait Islander young people experiencing youth detention.</p><p><strong>Method: </strong>103 Aboriginal and Torres Strait Islander young people experiencing youth detention participated. Participants directed seven adaptations from the Growth and Empowerment Measure for adults to create a Growth and Empowerment Measure-Youth (GEM-Youth). 78 participants completed the GEM-Youth version 7 and 57 participants completed both the full GEM-Youth version 7 and the Kessler psychological distress scale (K10). Cronbach's alpha and inter-item correlations were calculated for two components of the GEM-Youth: how I feel about myself and thinking about my everyday life. Associations between K10 and GEM-Youth scores were quantified using Pearson's correlation.</p><p><strong>Results: </strong>How I feel about myself questions had a mean inter-item correlation of (0.21) and good internal consistency (α = 0.80). Thinking about my everyday life questions had a mean inter-item correlation of 0.18 and internal consistency of α = 0.69. How I feel about myself showed a strong negative correlation (<i>r</i>(55) = -0.61, [95% confidence interval: -0.42, -0.75] <i>p</i> < 0.001) with K10. Thinking about my everyday life showed a moderate negative correlation with K10 (-0.31, [95% confidence interval: -0.05, -0.52] <i>p</i> = 0.02).</p><p><strong>Implications: </strong>The GEM-Youth provides a culturally grounded and validated measure to assess social and emotional well-being and empowerment for Aboriginal and Torres Strait Islander young people in detention settings. This measure has therapeutic and research value that should be further refined and explored. Future research should adapt and validate this tool for use with other groups and settings.</p>","PeriodicalId":8589,"journal":{"name":"Australian and New Zealand Journal of Psychiatry","volume":" ","pages":"765-775"},"PeriodicalIF":3.7,"publicationDate":"2025-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12397543/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143750354","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2025-09-01Epub Date: 2025-08-12DOI: 10.1177/00048674251362045
Aswin Ratheesh, Alexis Whitton, Jill Newby, Michael Berk
{"title":"Precision medicine approaches to mental health: Bridging population evidence and personalised care.","authors":"Aswin Ratheesh, Alexis Whitton, Jill Newby, Michael Berk","doi":"10.1177/00048674251362045","DOIUrl":"10.1177/00048674251362045","url":null,"abstract":"","PeriodicalId":8589,"journal":{"name":"Australian and New Zealand Journal of Psychiatry","volume":" ","pages":"763-764"},"PeriodicalIF":3.7,"publicationDate":"2025-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144820446","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2025-09-01Epub Date: 2025-05-23DOI: 10.1177/00048674251336030
William Capon, Mathew Varidel, Ian B Hickie, Jacob J Crouse, Sebastian Rosenberg, Gina Dimitroupoulos, Haley M LaMonica, Elizabeth M Scott, Frank Iorfino
Objective: To develop a Service Needs Index that measures a young person's needs across domains relevant to care provision and to examine the index's construction under different assumptions.
Methods: A cohort of young people (n = 2193) aged 12-25 years who sought help at youth mental health services across Australia were invited to use a digital platform (Innowell) as part of their care and complete a multidimensional assessment. Using online assessment data from the eligible 1611 individuals (73.5%), a Service Needs Index comprising three sub-indices (Clinical, Psychosocial, and Comorbidity) was constructed under two weighting approaches, an equal weighted scheme and a weighting scheme constructed with expert input and correlation-optimisation. These approaches were examined and compared.
Results: The Clinical, Psychosocial, and Comorbidity Indices were derived using standardised questionnaires to assess mental health symptoms and history, work and social functioning, and physical health and substance use, respectively. The expert input weighting scheme was favoured with less output uncertainty. Among those with the top 25% of Clinical Index scores, almost half also belonged in the group with the top 25% of Psychosocial Index scores, while 11.9% of the total sample were in the bottom 25% percentiles for both Clinical and Psychosocial Index scores.
Conclusion: These indices should be assessed in real-world settings before recommendations are made about their feasibility and acceptability; however, the indices could differentiate between needs to guide individual-level decision-making about service pathways for young people. Furthermore, population-level analyses of these aggregated indices can inform strategic decisions related to service planning and design.
{"title":"Matching needs to services: Development of a service needs index for determining care pathways in youth mental health.","authors":"William Capon, Mathew Varidel, Ian B Hickie, Jacob J Crouse, Sebastian Rosenberg, Gina Dimitroupoulos, Haley M LaMonica, Elizabeth M Scott, Frank Iorfino","doi":"10.1177/00048674251336030","DOIUrl":"10.1177/00048674251336030","url":null,"abstract":"<p><strong>Objective: </strong>To develop a Service Needs Index that measures a young person's needs across domains relevant to care provision and to examine the index's construction under different assumptions.</p><p><strong>Methods: </strong>A cohort of young people (<i>n</i> = 2193) aged 12-25 years who sought help at youth mental health services across Australia were invited to use a digital platform (Innowell) as part of their care and complete a multidimensional assessment. Using online assessment data from the eligible 1611 individuals (73.5%), a Service Needs Index comprising three sub-indices (Clinical, Psychosocial, and Comorbidity) was constructed under two weighting approaches, an equal weighted scheme and a weighting scheme constructed with expert input and correlation-optimisation. These approaches were examined and compared.</p><p><strong>Results: </strong>The Clinical, Psychosocial, and Comorbidity Indices were derived using standardised questionnaires to assess mental health symptoms and history, work and social functioning, and physical health and substance use, respectively. The expert input weighting scheme was favoured with less output uncertainty. Among those with the top 25% of Clinical Index scores, almost half also belonged in the group with the top 25% of Psychosocial Index scores, while 11.9% of the total sample were in the bottom 25% percentiles for both Clinical and Psychosocial Index scores.</p><p><strong>Conclusion: </strong>These indices should be assessed in real-world settings before recommendations are made about their feasibility and acceptability; however, the indices could differentiate between needs to guide individual-level decision-making about service pathways for young people. Furthermore, population-level analyses of these aggregated indices can inform strategic decisions related to service planning and design.</p>","PeriodicalId":8589,"journal":{"name":"Australian and New Zealand Journal of Psychiatry","volume":" ","pages":"776-785"},"PeriodicalIF":3.7,"publicationDate":"2025-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12397553/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144126261","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2025-09-01Epub Date: 2025-08-20DOI: 10.1177/00048674251362048
Andrea Phillipou, Melissa Kirkovski, Erica Neill, Susan Rossell, Caroline Gurvich, Larry Abel, David Castle, Stephanie Miles
{"title":"Research Letters: High-definition transcranial direct current stimulation of the inferior parietal lobe in anorexia nervosa: A proof-of-concept randomised controlled trial.","authors":"Andrea Phillipou, Melissa Kirkovski, Erica Neill, Susan Rossell, Caroline Gurvich, Larry Abel, David Castle, Stephanie Miles","doi":"10.1177/00048674251362048","DOIUrl":"10.1177/00048674251362048","url":null,"abstract":"","PeriodicalId":8589,"journal":{"name":"Australian and New Zealand Journal of Psychiatry","volume":" ","pages":"844-847"},"PeriodicalIF":3.7,"publicationDate":"2025-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144940445","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2025-09-01Epub Date: 2025-08-23DOI: 10.1177/00048674251369611
Steve Kisely
{"title":"Moving towards more person-centred, culturally safe and evidence-informed care.","authors":"Steve Kisely","doi":"10.1177/00048674251369611","DOIUrl":"10.1177/00048674251369611","url":null,"abstract":"","PeriodicalId":8589,"journal":{"name":"Australian and New Zealand Journal of Psychiatry","volume":" ","pages":"761-762"},"PeriodicalIF":3.7,"publicationDate":"2025-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144940384","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2025-08-01Epub Date: 2025-05-26DOI: 10.1177/00048674251342952
Rebecca K McLean, Lucy A Tully, Mark R Dadds
Background: We evaluated the reliability, validity and acceptability of the Pediatric Symptom Checklist-17, a free, brief measure of child mental health, in a sample of parents of preschool-age (3-5 years) and school-age children (6-17 years). This is the first study to examine parent-reported Pediatric Symptom Checklist-17 for children aged 3 years.
Method: A national community sample of Australian parents (N = 2097) completed a demographic questionnaire and the Pediatric Symptom Checklist-17. We used a cross-sectional, test-retest design to assess the structural validity, internal consistency, test-retest reliability, concurrent and predictive validity of the Pediatric Symptom Checklist-17 total and subscale scores. Predictive validity was evaluated using a sub-sample of parents (n = 122) who completed the Pediatric Symptom Checklist-17 and Child Behaviour Checklist at a second timepoint. Normative data were also produced.
Results: Factor analysis supported the three-factor model for the Pediatric Symptom Checklist-17. Total (r = 0.82-0.93) and subscale scores (r = 0.75-0.89) strongly correlated with the Child Behaviour Checklist and demonstrated strong internal consistency (total scores α = 0.87-0.88). Test-retest reliability was acceptable for school-age children. The Pediatric Symptom Checklist-17 demonstrated excellent classification accuracy for preschool children; however, it did not perform as strongly in older age ranges. Normative data for age and gender were produced for the measure. Results indicated high levels of parent acceptability for the measure.
Conclusion: Findings contribute new validation evidence for the use of the Pediatric Symptom Checklist-17 as a screening and assessment measure in research and clinical settings, for parents of children from 3 years and above. This study is the first to ascertain Australian normative data for the Pediatric Symptom Checklist-17.
{"title":"Reliability, predictive validity and normative data for the Pediatric Symptom Checklist-17 in a national Australian sample.","authors":"Rebecca K McLean, Lucy A Tully, Mark R Dadds","doi":"10.1177/00048674251342952","DOIUrl":"10.1177/00048674251342952","url":null,"abstract":"<p><strong>Background: </strong>We evaluated the reliability, validity and acceptability of the Pediatric Symptom Checklist-17, a free, brief measure of child mental health, in a sample of parents of preschool-age (3-5 years) and school-age children (6-17 years). This is the first study to examine parent-reported Pediatric Symptom Checklist-17 for children aged 3 years.</p><p><strong>Method: </strong>A national community sample of Australian parents (<i>N</i> = 2097) completed a demographic questionnaire and the Pediatric Symptom Checklist-17. We used a cross-sectional, test-retest design to assess the structural validity, internal consistency, test-retest reliability, concurrent and predictive validity of the Pediatric Symptom Checklist-17 total and subscale scores. Predictive validity was evaluated using a sub-sample of parents (<i>n</i> = 122) who completed the Pediatric Symptom Checklist-17 and Child Behaviour Checklist at a second timepoint. Normative data were also produced.</p><p><strong>Results: </strong>Factor analysis supported the three-factor model for the Pediatric Symptom Checklist-17. Total (<i>r</i> = 0.82-0.93) and subscale scores (<i>r</i> = 0.75-0.89) strongly correlated with the Child Behaviour Checklist and demonstrated strong internal consistency (total scores α = 0.87-0.88). Test-retest reliability was acceptable for school-age children. The Pediatric Symptom Checklist-17 demonstrated excellent classification accuracy for preschool children; however, it did not perform as strongly in older age ranges. Normative data for age and gender were produced for the measure. Results indicated high levels of parent acceptability for the measure.</p><p><strong>Conclusion: </strong>Findings contribute new validation evidence for the use of the Pediatric Symptom Checklist-17 as a screening and assessment measure in research and clinical settings, for parents of children from 3 years and above. This study is the first to ascertain Australian normative data for the Pediatric Symptom Checklist-17.</p>","PeriodicalId":8589,"journal":{"name":"Australian and New Zealand Journal of Psychiatry","volume":" ","pages":"702-712"},"PeriodicalIF":3.7,"publicationDate":"2025-08-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12280244/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144141305","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2025-08-01Epub Date: 2025-07-09DOI: 10.1177/00048674251356403
Gordon Parker
In 2024, WHO published the Clinical Descriptions and Diagnostic Requirements for International Classification of Diseases 11th Revision Mental, Behavioural and Neurodevelopmental Disorders manual. Stated objectives were to determine valid and reliable diagnoses and defined so as to differentiate conditions both from other conditions and from normative states. This paper provides a critique of the criteria sets derived for both the depressive and the bipolar disorders. It is argued that failure to specify a minimum number of criteria for certain conditions compromises valid intrinsic and differential definitions, while additional reasons leading to the quantified low reliability of dysthymia are noted. Several idiosyncratic definitions and rulings are noted, while numerous boundary issues (differentiating disorder categories and clinical depression from normative depression) are noted. The use and application of 'postcoordination' codes (in addition to 'specifiers') appears enigmatic and potentially unserviceable.
{"title":"A critique of International Classification of Diseases 11th Revision criteria for the mood disorders.","authors":"Gordon Parker","doi":"10.1177/00048674251356403","DOIUrl":"10.1177/00048674251356403","url":null,"abstract":"<p><p>In 2024, WHO published the Clinical Descriptions and Diagnostic Requirements for International Classification of Diseases 11th Revision Mental, Behavioural and Neurodevelopmental Disorders manual. Stated objectives were to determine valid and reliable diagnoses and defined so as to differentiate conditions both from other conditions and from normative states. This paper provides a critique of the criteria sets derived for both the depressive and the bipolar disorders. It is argued that failure to specify a minimum number of criteria for certain conditions compromises valid intrinsic and differential definitions, while additional reasons leading to the quantified low reliability of dysthymia are noted. Several idiosyncratic definitions and rulings are noted, while numerous boundary issues (differentiating disorder categories and clinical depression from normative depression) are noted. The use and application of 'postcoordination' codes (in addition to 'specifiers') appears enigmatic and potentially unserviceable.</p>","PeriodicalId":8589,"journal":{"name":"Australian and New Zealand Journal of Psychiatry","volume":" ","pages":"674-678"},"PeriodicalIF":3.7,"publicationDate":"2025-08-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12280239/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144599228","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2025-08-01Epub Date: 2025-06-25DOI: 10.1177/00048674251346680
Magdalena Hagn, Andre Bauer, Gerard J Byrne
{"title":"Ageing and anxiety: Prevalence of anxiety in older adults with psychotic illnesses.","authors":"Magdalena Hagn, Andre Bauer, Gerard J Byrne","doi":"10.1177/00048674251346680","DOIUrl":"10.1177/00048674251346680","url":null,"abstract":"","PeriodicalId":8589,"journal":{"name":"Australian and New Zealand Journal of Psychiatry","volume":" ","pages":"754-756"},"PeriodicalIF":3.7,"publicationDate":"2025-08-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144482926","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2025-08-01Epub Date: 2025-06-24DOI: 10.1177/00048674251346681
Samantha M Loi, Priscilla Tjokrowijoto, Nathan M D'Cunha, Jade Cartwright, Naomi Moylan, Monica Cations, Debbie Stange, Adrienne Withall, Kelly Atkins, Laine Bradley, Elissa Burton, Brian Draper, Amanda Fitzgerald, Clare Goodlet, Muireann Irish, Trish Joseph, Wendy Kelso, Robyn Lewis, Vincent Poisson, Margaret Pozzebon, Theresa Scott, Daniel Schweitzer, Kym Torresi, Angela Scovell, Anita Goh, Rachael Cvejic, Karen Glennen, Clare Beard
Introduction: Young-onset dementia (YOD) is a dementia where symptom onset occurs at less than 65 years of age. There has been increased recognition of YOD with improved diagnostic assessments and the introduction of the National Disability Insurance Scheme (NDIS). The Joint Solutions project aimed to evaluate the gaps and barriers along the pathway of care in Australia from a range of stakeholder perspectives to investigate access to services from those who have YOD and those who provide care for them.
Methods: A cross-sectional quantitative approach was used, with questionnaires designed in consultation with general practitioners (GPs), clinicians, people with YOD, caregivers and community service providers.
Results: 313 people responded, including 45% lived experience (n = 33 people with YOD; 105 caregivers), 30% clinicians (n = 7 GPs; n = 86 clinicians), and 25% community providers. All states of Australia were represented, with Victoria having the largest proportion of respondents (39%). Time to diagnosis was 12 months from symptom onset for 70% of caregivers. Up to 90% of caregivers reported their family member with YOD had cognitive testing and neuroimaging. Access to age-appropriate post-diagnostic support varied, with 40% of caregivers reporting their family member received allied health and psychological support. There was limited information provided on employment, driving, legal and financial issues. Sixty percent of people with lived experience stated they had difficulties accessing the NDIS.
Discussion: There is improvement in the diagnosis of YOD but access to and availability of post-diagnostic support varies. More work is needed to improve equity and collaboration between service providers and clinicians and those affected by YOD.
{"title":"Lived experience perspectives about gaps and barriers in services for those living with, and those providing care, for people with young-onset dementia in Australia: Findings from the Joint Solutions Project.","authors":"Samantha M Loi, Priscilla Tjokrowijoto, Nathan M D'Cunha, Jade Cartwright, Naomi Moylan, Monica Cations, Debbie Stange, Adrienne Withall, Kelly Atkins, Laine Bradley, Elissa Burton, Brian Draper, Amanda Fitzgerald, Clare Goodlet, Muireann Irish, Trish Joseph, Wendy Kelso, Robyn Lewis, Vincent Poisson, Margaret Pozzebon, Theresa Scott, Daniel Schweitzer, Kym Torresi, Angela Scovell, Anita Goh, Rachael Cvejic, Karen Glennen, Clare Beard","doi":"10.1177/00048674251346681","DOIUrl":"10.1177/00048674251346681","url":null,"abstract":"<p><strong>Introduction: </strong>Young-onset dementia (YOD) is a dementia where symptom onset occurs at less than 65 years of age. There has been increased recognition of YOD with improved diagnostic assessments and the introduction of the National Disability Insurance Scheme (NDIS). The Joint Solutions project aimed to evaluate the gaps and barriers along the pathway of care in Australia from a range of stakeholder perspectives to investigate access to services from those who have YOD and those who provide care for them.</p><p><strong>Methods: </strong>A cross-sectional quantitative approach was used, with questionnaires designed in consultation with general practitioners (GPs), clinicians, people with YOD, caregivers and community service providers.</p><p><strong>Results: </strong>313 people responded, including 45% lived experience (<i>n</i> = 33 people with YOD; 105 caregivers), 30% clinicians (<i>n</i> = 7 GPs; <i>n</i> = 86 clinicians), and 25% community providers. All states of Australia were represented, with Victoria having the largest proportion of respondents (39%). Time to diagnosis was 12 months from symptom onset for 70% of caregivers. Up to 90% of caregivers reported their family member with YOD had cognitive testing and neuroimaging. Access to age-appropriate post-diagnostic support varied, with 40% of caregivers reporting their family member received allied health and psychological support. There was limited information provided on employment, driving, legal and financial issues. Sixty percent of people with lived experience stated they had difficulties accessing the NDIS.</p><p><strong>Discussion: </strong>There is improvement in the diagnosis of YOD but access to and availability of post-diagnostic support varies. More work is needed to improve equity and collaboration between service providers and clinicians and those affected by YOD.</p>","PeriodicalId":8589,"journal":{"name":"Australian and New Zealand Journal of Psychiatry","volume":" ","pages":"729-739"},"PeriodicalIF":3.7,"publicationDate":"2025-08-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144473897","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2025-08-01Epub Date: 2025-06-24DOI: 10.1177/00048674251346676
Anoop Sankaranarayanan, Patsy Di Prinzio, Frank Morgan, Giulietta Valuri, David Castle, Anna Waterreus, Vera A Morgan
Objectives: We used a large, representative sample of adults with psychotic disorders (N = 1825) from the 2010 Australian national survey of psychotic disorders (Survey of High Impact Psychosis - SHIP) to report on 12-month prevalence of both any and violent criminal offending among people with psychotic disorders, and examine correlates of criminal offending, modelling the impact of clinical factors over known sociodemographic and behavioural risk factors.
Methods: Any past year criminal offending was the main outcome variable, based on self-reported criminal offending, charge and/or arrest. We assessed the additional impact of clinical variables over other risk factors associated with criminal offending. Odds ratio and 95% confidence intervals determined from logistic regression summarised the association of risk factors with offending outcomes.
Results: Of 1784 participants with valid responses, 305 (220 men, 85 women) reported criminal offending; 38 men and 6 women reporting some violent offending. Compared with non-offenders, younger age, male sex, homelessness, cannabis and other drug use, and past year delusions and mania were associated with offending in logistic regression models.
Conclusion: We found that known sociodemographic risk factors such as sex and homelessness were predictive of both any offending and violent offending. Other significant correlates of any offending behaviour were cannabis use, other illicit substance use and violent victimisation. Clinical factors including past year delusions, mania and deliberate self-harm, and premorbid personality disorder were associated with any offending but not with violent offending. Our study challenges the importance given to many clinical factors, especially in regard to risk of violent offending.
{"title":"Twelve-month prevalence and correlates of criminal offending in a nationally representative sample of people with psychotic disorders.","authors":"Anoop Sankaranarayanan, Patsy Di Prinzio, Frank Morgan, Giulietta Valuri, David Castle, Anna Waterreus, Vera A Morgan","doi":"10.1177/00048674251346676","DOIUrl":"10.1177/00048674251346676","url":null,"abstract":"<p><strong>Objectives: </strong>We used a large, representative sample of adults with psychotic disorders (<i>N</i> = 1825) from the 2010 Australian national survey of psychotic disorders (Survey of High Impact Psychosis - SHIP) to report on 12-month prevalence of both any and violent criminal offending among people with psychotic disorders, and examine correlates of criminal offending, modelling the impact of clinical factors over known sociodemographic and behavioural risk factors.</p><p><strong>Methods: </strong>Any past year criminal offending was the main outcome variable, based on self-reported criminal offending, charge and/or arrest. We assessed the additional impact of clinical variables over other risk factors associated with criminal offending. Odds ratio and 95% confidence intervals determined from logistic regression summarised the association of risk factors with offending outcomes.</p><p><strong>Results: </strong>Of 1784 participants with valid responses, 305 (220 men, 85 women) reported criminal offending; 38 men and 6 women reporting some violent offending. Compared with non-offenders, younger age, male sex, homelessness, cannabis and other drug use, and past year delusions and mania were associated with offending in logistic regression models.</p><p><strong>Conclusion: </strong>We found that known sociodemographic risk factors such as sex and homelessness were predictive of both any offending and violent offending. Other significant correlates of any offending behaviour were cannabis use, other illicit substance use and violent victimisation. Clinical factors including past year delusions, mania and deliberate self-harm, and premorbid personality disorder were associated with any offending but not with violent offending. Our study challenges the importance given to many clinical factors, especially in regard to risk of violent offending.</p>","PeriodicalId":8589,"journal":{"name":"Australian and New Zealand Journal of Psychiatry","volume":" ","pages":"713-728"},"PeriodicalIF":3.7,"publicationDate":"2025-08-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144473899","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}