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Methodological reflections on the recruitment and engagement of people for cancer screening research in Wales. 关于威尔士癌症筛查研究人员的招募和参与的方法学反思。
IF 1.3 4区 医学 Q2 Medicine Pub Date : 2023-04-01 DOI: 10.1071/PY22259
Juping Yu, Joyce Kenkre, Sarah Wallace, Susan Thomas, Helen Jessop

Cancer is a major threat to public health and the second leading cause of death globally. Population-based cancer screening is an effective way to improve the early detection of a cancer and reduce mortality. Factors associated with participation in cancer screening have been increasingly explored in research. The challenges to undertaking such research are evident, but there is little discussion about how to address such challenges. This article discusses methodological issues associated with the recruitment and engagement of participants in research, drawing upon our experience of undertaking research exploring the support needs of people residing in Newport West, Wales, to participate in breast, bowel, and cervical screening programs. Four key areas were addressed: sampling issues, language barriers, IT issues, and time demand for participation. The paper highlights the importance of ongoing community engagement, the provision of appropriate study materials, and the adaption to different data collection modes to meet participants' needs to participate in research, thus enabling people who are usually excluded from research to have a voice and make a significant contribution to research.

癌症是对公众健康的主要威胁,也是全球第二大死亡原因。以人群为基础的癌症筛查是提高癌症早期发现和降低死亡率的有效途径。参与癌症筛查的相关因素在研究中得到了越来越多的探索。开展此类研究的挑战是显而易见的,但很少有人讨论如何应对这些挑战。本文讨论了与研究参与者的招募和参与相关的方法问题,借鉴了我们开展研究的经验,探索居住在威尔士新港西部的人们参与乳房、肠道和宫颈筛查项目的支持需求。讨论了四个关键领域:抽样问题、语言障碍、IT问题和参与的时间需求。本文强调了持续的社区参与、提供适当的研究材料以及适应不同的数据收集模式以满足参与者参与研究的需求的重要性,从而使通常被排除在研究之外的人有发言权并为研究做出重大贡献。
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引用次数: 1
An exploration of the inverse care law and market forces in Australian primary health care. 逆向护理法和市场力量在澳大利亚初级卫生保健的探索。
IF 1.3 4区 医学 Q2 Medicine Pub Date : 2023-04-01 DOI: 10.1071/PY22160
Elizabeth Harris, Mark F Harris

This paper examines the implications of the second sentence in Tudor Harts statement about inverse care - that its operation was strongest when exposed to market forces. In the Australian context, we briefly review some available evidence for inverse care in three groups - Aboriginal and Torres Strait Islander people and those living in remote and socioeconomically disadvantaged areas. We then discuss the extent to which these examples can be attributed to the operation of supply-and-demand within Australia's hybrid fee-for-service system in general practice. Our analysis suggests disparities in workforce supply and the ability of disadvantaged groups to seek preventive and proactive care are critical factors. These, in turn, suggest the need to fund general practice to be responsible for proactive and preventive care of disadvantaged population groups alongside broader structural reforms in workforce, education and taxation.

本文考察了都铎哈特关于逆护理声明的第二句话的含义-当暴露于市场力量时,其操作是最强的。在澳大利亚的背景下,我们简要回顾了一些现有的证据,在三个群体逆向护理-土著和托雷斯海峡岛民和那些生活在偏远和社会经济不利地区。然后,我们讨论了这些例子在多大程度上可以归因于澳大利亚混合收费服务系统中一般实践中的供需运作。我们的分析表明,劳动力供应的差异和弱势群体寻求预防性和前瞻性护理的能力是关键因素。这反过来又表明,需要为全科医疗提供资金,以负责对弱势群体的主动和预防性护理,同时在劳动力、教育和税收方面进行更广泛的结构性改革。
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引用次数: 3
Strengthening learning and research in health equity - opportunities for university departments of primary health care and general practice. 加强卫生公平方面的学习和研究——大学初级卫生保健系和全科医生系的机会。
IF 1.3 4区 医学 Q2 Medicine Pub Date : 2023-04-01 DOI: 10.1071/PY22146
Jennifer Reath, Phyllis Lau, Winston Lo, Steven Trankle, Miriam Brooks, Yasin Shahab, Penelope Abbott

This paper explores the roles of university departments of primary health care (PHC) and general practice in promoting health equity. The coronavirus disease 2019 (COVID-19) pandemic has exposed long-standing health and workforce inequities in Australia, as elsewhere. Addressing these inequities will require wide-ranging responses particularly focussed on PHC and the PHC workforce. Well-resourced university departments of PHC and general practice have potential to lead research informing PHC transformation and strategies to reduce health inequity, as well as to train and inspire a future PHC workforce. Examples from such academic departments in Australia and internationally are briefly described, and the experience of a recently established department of general practice is considered, in order to recommend enablers including institutional support, curriculum design, and partnerships with communities and between institutions. Support for community-based clinical schools, practice-based research networks and strengthening PHC research capacity will enable the PHC and general practice academy to engage more effectively in addressing health inequity.

本文探讨了大学初级卫生保健部门(PHC)和全科医生在促进卫生公平方面的作用。与其他地方一样,2019年冠状病毒病(COVID-19)大流行暴露了澳大利亚长期存在的健康和劳动力不平等现象。解决这些不平等问题需要采取广泛的应对措施,特别是侧重于初级保健和初级保健工作人员。资源充足的大学初级保健和全科医学系有潜力领导研究,为初级保健改革和减少卫生不平等的战略提供信息,并培训和激励未来的初级保健工作人员。简要描述了澳大利亚和国际上此类学术部门的例子,并考虑了最近成立的全科医学部门的经验,以便推荐包括机构支持,课程设计以及与社区和机构之间的伙伴关系在内的推动因素。支持以社区为基础的临床学校、基于实践的研究网络和加强初级保健研究能力,将使初级保健和全科医学学院能够更有效地参与解决保健不平等问题。
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引用次数: 3
Health equity for trans and gender-diverse Australians: addressing the inverse care law through the provision of gender-affirming health care in the primary healthcare setting. 澳大利亚跨性别者和性别多样化者的卫生平等:通过在初级卫生保健机构提供性别肯定的卫生保健,解决反保健法问题。
IF 1.3 4区 医学 Q2 Medicine Pub Date : 2023-04-01 DOI: 10.1071/PY22149
Samantha Clune, Janette Collier, Virginia Lewis

Background: Equitable access to gender-affirming hormone treatment (GAHT) for trans and gender-diverse people has been identified as a key factor in addressing rates of poor health outcomes in the trans and gender-diverse community. In Australia, GAHT is largely delivered via a medical model, and within acute care facilities. Medicalisation and pathologisation of gender-affirming care acts as a significant barrier to access for many trans and gender-diverse individuals.

Methods: This project incorporated a case study approach using multiple methods to investigate a recent community sponsored, co-designed program providing GAHT that included a peer navigator (PN) model of care in a primary healthcare (community health) setting.

Results: Service activity in Year 1 and Year 2 demonstrated acceptability of the model, with over 1000 appointments delivered. This was supported by client feedback survey data collected at their initial (n =110) and then 6-months post visit (n =78) with the PN, and 31 interviews with clients, staff and stakeholders.

Conclusion: Findings highlight the integral nature of the PN to the sustainability of the program, with some key insights into potential barriers. Basing service design on an Informed Consent model recognises the agency of the individual and their right to equitable access to health care of their choosing.

背景:跨性别者和性别多样化者公平获得性别肯定激素治疗(GAHT)已被确定为解决跨性别者和性别多样化群体健康状况不佳比率的关键因素。在澳大利亚,GAHT主要通过医疗模式在急症护理设施内提供。性别确认护理的医疗化和病理化是许多跨性别者和性别多样化个人获得护理的重大障碍。方法:本项目采用案例研究方法,采用多种方法调查最近由社区赞助、共同设计的项目,该项目提供GAHT,包括初级卫生保健(社区卫生)环境中的同伴导航员(PN)护理模型。结果:第一年和第二年的服务活动证明了该模型的可接受性,提供了超过1000个预约。这得到了客户反馈调查数据的支持,这些数据是在客户最初(n =110)和六个月后(n =78)与PN访问时收集的,并与客户、员工和利益相关者进行了31次访谈。结论:研究结果强调了PN对项目可持续性的整体性质,以及对潜在障碍的一些关键见解。基于知情同意模式的服务设计承认个人的能动性及其公平获得自己选择的保健服务的权利。
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引用次数: 1
Dialectics, power dynamics, and undercurrents of meaning: using psychotherapeutic strategies in primary care with trans and gender-diverse clients. 辩证法、权力动力学和意义潜流:在跨性别和性别多样化客户的初级保健中使用心理治疗策略。
IF 1.3 4区 医学 Q2 Medicine Pub Date : 2023-04-01 DOI: 10.1071/PY22156
Elizabeth Waldron, Lucy Solonsch, Louise Stone

Trans and gender-diverse individuals experience poor mental health, and face significant barriers when trying to access appropriate mental health care. Most seek treatment from mainstream primary care services, who have an ethical duty to provide care to all. Primary care practitioners can ameliorate traumatic harms by identifying helpful strategies and avoiding inappropriate or harmful strategies. However, there is limited robust, culturally sensitive evidence informing clinicians about the appropriateness and efficacy of psychological interventions for trans and gender-diverse clients. This forum article argues that the epistemological and ontological frameworks underlying psychotherapies can impact the therapeutic relationship, and are therefore important factors to consider in primary care practice with trans and gender-diverse clients. Our paper synthesises selected psychotherapies into four clusters. Each cluster is accompanied by discussion of the potential or demonstrated benefits and limitations of the underlying framework, in the context of primary care with trans and gender-diverse clients. We also explore power dynamics in therapeutic relationships with trans and gender-diverse clients, and the challenges these factors pose to developing a shared understanding of the client's needs and preferences. The article concludes with some practical considerations for managing these issues in primary care.

跨性别者和性别多样化者的精神健康状况不佳,在试图获得适当的精神卫生保健时面临重大障碍。大多数人向主流初级保健服务机构寻求治疗,这些机构负有向所有人提供护理的道德责任。初级保健从业人员可以通过确定有用的策略和避免不适当或有害的策略来改善创伤性伤害。然而,有有限的可靠的,文化敏感的证据告诉临床医生关于心理干预的适当性和有效性对跨性别和性别多样化的客户。这篇论坛文章认为,心理治疗的认识论和本体论框架可以影响治疗关系,因此是跨性别和性别多样化客户的初级保健实践中需要考虑的重要因素。我们的论文将选定的心理疗法综合为四类。每个分组都伴随着对跨性别和性别多样化客户的初级保健背景下潜在或已证明的基础框架的益处和局限性的讨论。我们还探讨了治疗关系中与跨性别和性别多样化客户的权力动力学,以及这些因素对发展对客户需求和偏好的共同理解所构成的挑战。文章总结了在初级保健中管理这些问题的一些实际考虑。
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引用次数: 1
Corrigendum to: Use of electronic medical records to monitor the safe and effective prescribing of medicinal cannabis: is it feasible? 使用电子病历监测安全有效的医用大麻处方:是否可行?
IF 1.3 4区 医学 Q2 Medicine Pub Date : 2023-02-01 DOI: 10.1071/PY22054_CO
Christine M Hallinan, Jane M Gunn, Yining Qian, Yvonne A Bonomo

Background: General practitioners are well positioned to contribute to the pharmacovigilance of medical cannabis via the general practice electronic medical record (EMR). The aim of this research is to interrogate de-identified patient data from the Patron primary care data repository for reports of medicinal cannabis to ascertain the feasibility of using EMRs to monitor medicinal cannabis prescribing in Australia.

Methods: EMR rule-based digital phenotyping of 1 164 846 active patients from 109 practices was undertaken to investigate reports of medicinal cannabis use from September 2017 to September 2020.

Results: Eighty patients with 170 prescriptions of medicinal cannabis were identified in the Patron repository. Reasons for prescription included anxiety, multiple sclerosis, cancer, nausea, and Crohn's disease. Nine patients showed symptoms of a possible adverse event, including depression, motor vehicle accident, gastrointestinal symptoms, and anxiety.

Conclusions: The recording of medicinal cannabis effects in the patient EMR provides potential for medicinal cannabis monitoring in the community. This is especially feasible if monitoring were to be embedded into general practitioner workflow.

背景:全科医生有能力通过全科医生电子病历(EMR)对医用大麻的药物警戒做出贡献。本研究的目的是询问来自Patron初级保健数据库的去识别患者数据,以获取药用大麻的报告,以确定在澳大利亚使用电子病历监测药用大麻处方的可行性。方法:对来自109个诊所的1 164 846名活跃患者进行基于EMR规则的数字表型分析,调查2017年9月至2020年9月的药用大麻使用报告。结果:在Patron数据库中鉴定出80例患者170张药用大麻处方。处方的原因包括焦虑、多发性硬化症、癌症、恶心和克罗恩病。9例患者表现出可能的不良事件症状,包括抑郁、机动车事故、胃肠道症状和焦虑。结论:在患者电子病历中记录药用大麻的效果为社区的药用大麻监测提供了潜力。如果将监控嵌入到全科医生的工作流程中,这尤其可行。
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引用次数: 0
Community antibiotic management of skin infections in the Torres Strait. 托雷斯海峡皮肤感染的社区抗生素管理。
IF 1.3 4区 医学 Q2 Medicine Pub Date : 2023-02-01 DOI: 10.1071/PY22142
Allison Hempenstall, Pelista Pilot, Malcolm McDonald, Simon Smith, Josh Hanson

Background: There is a high burden of skin and soft tissue infections (SSTI) - including cellulitis - among Aboriginal and Torres Strait Islander peoples living in remote communities. In tropical environments, such as the Torres Strait, cellulitis accounts for 37% of potentially preventable hospitalisations. This study aimed to evaluate the safety, effectiveness and community acceptance of outpatient antibiotic treatment for the management of skin infections in the Torres Strait.

Conclusions: Outpatient management of skin infection in the Torres Strait is effective, safe and appreciated by patients.

Methods: This was a 12-month prospective, observational study commencing in January 2019 involving 295 adults with a skin infection across the Torres Strait.

Results: Most (276/295 (94%)) participants were treated successfully in the community. Of 295 enrolled patients, 151 of 295 (51%) had cellulitis, 59 of 295 (20%) had a skin abscess and 85 of 295 (28%) had a wound infection. Of the 77 of 278 (27%) infections accompanied by systemic features, 63 of 77 (82%) were managed in the community. Staphylococcus aureus was the most frequent isolate, at 165 of 261 (63%); 56 of 165 (33%) were methicillin resistant. In the 276 community-managed cases, oral trimethoprim/sulfamethoxazole was initially used in 159 (57%), oral flucloxacillin in 75 (27%) and intravenous cefazolin plus oral probenecid in 32 (13%). The clinical course was complicated in eight of 232 (3%) patients who had complete follow-up data: seven patients required hospitalisation after initial treatment in the communityand one had an antibiotic side-effect. All 232 patients with complete follow-up data were content with the care they received.

背景:居住在偏远社区的原住民和托雷斯海峡岛民的皮肤和软组织感染(SSTI)负担很高,包括蜂窝组织炎。在热带环境中,如托雷斯海峡,蜂窝组织炎占本可预防住院的37%。本研究旨在评估托雷斯海峡地区门诊抗生素治疗皮肤感染的安全性、有效性和社区接受度。结论:托勒斯海峡皮肤感染的门诊治疗有效、安全,受到患者的好评。方法:这是一项为期12个月的前瞻性观察性研究,于2019年1月开始,涉及295名患有托雷斯海峡对岸皮肤感染的成年人。结果:大多数(276/295(94%))参与者在社区治疗成功。295例入组患者中,151例(51%)有蜂窝织炎,59例(20%)有皮肤脓肿,85例(28%)有伤口感染。278例感染中有77例(27%)伴有全身特征,77例中有63例(82%)在社区得到处理。金黄色葡萄球菌是最常见的分离物,261例中有165例(63%);165例中有56例(33%)耐甲氧西林。276例社区管理病例中,159例(57%)最初使用口服甲氧苄啶/磺胺甲恶唑,75例(27%)口服氟氯西林,32例(13%)静脉注射头孢唑林加口服丙苯酸。有完整随访数据的232例患者中,有8例(3%)患者的临床病程复杂:7例患者在社区初始治疗后需要住院治疗,1例出现抗生素副作用。所有232例随访数据完整的患者均对所接受的治疗感到满意。
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引用次数: 1
Engaging with a rural Aboriginal community to identify strategies to improve oral health within their community: a qualitative study. 参与农村土著社区以确定改善社区内口腔健康的策略:一项定性研究。
IF 1.3 4区 医学 Q2 Medicine Pub Date : 2023-02-01 DOI: 10.1071/PY22215
David Walker, Anna Tynan, Taygan Tucker, Barry Fisher, Tarita Fisher

Background: Aboriginal and Torres Strait Islanders bear a higher burden of oral disease compared to non-Indigenous persons. Rural Aboriginal and Torres Strait Islander communities are further disadvantaged due to service access difficulties. This study, initiated by community concern for oral health identified through its Health Action Group, aimed to explore a rural Aboriginal community's strategies to resolve oral health problems.

Conclusion: Community members are aware of local barriers and potential facilitators for improving oral health within their community. Their identification of priority strategies can be used to inform the delivery of oral healthcareservices and to develop oral healthcare promotion programs for the community. Co-designing solutions with the community should be an integral part of solving complex problems such as oral health.

Methods: A qualitative research study using a phenomenological research design with focus group discussions and in-depth interviews was completed in partnership with a rural community in Queensland, Australia, with a predominantly Aboriginal population. The research team included Aboriginal and non-Aboriginal personnel; community and external personnel; and dental and non-dental personnel. The collaborative approach included the development, implementation, analysis and interpretation of the research involving the community through its Health Action Group. Community engagement led to the recruitment of 27 participants from local health and community groups.

Results: Themes emerging from the data included: reducing financial barriers to accessing oral health care; integrating oral health care with other health services; increasing oral healthcare promotion activities; and ensuring local input and cultural safety within local oral healthcare services.

背景:与非原住民相比,原住民和托雷斯海峡岛民承受着更高的口腔疾病负担。农村土著居民和托雷斯海峡岛民社区由于难以获得服务而进一步处于不利地位。本研究由社区口腔健康关注组织发起,旨在探讨农村原住民社区解决口腔健康问题的策略。结论:社区成员意识到当地的障碍和潜在的促进因素在他们的社区内改善口腔健康。他们确定的优先策略可用于告知口腔保健服务的提供,并为社区制定口腔保健促进计划。与社区共同设计解决方案应该是解决口腔健康等复杂问题的一个组成部分。方法:采用现象学研究设计,重点小组讨论和深度访谈,与澳大利亚昆士兰州的一个农村社区合作完成了一项定性研究,其中主要是土著人口。研究小组包括土著和非土著人员;社区和外部人员;以及牙科和非牙科人员。协作方法包括通过其卫生行动小组制定、实施、分析和解释涉及社区的研究。通过社区参与,从当地卫生和社区团体招募了27名参与者。结果:从数据中得出的主题包括:减少获得口腔保健的经济障碍;将口腔保健与其他保健服务结合起来;加强口腔健康推广活动;确保当地口腔保健服务的投入和文化安全。
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引用次数: 0
General wellbeing and work impacts among community pharmacists during crisis management. 社区药剂师在危机管理期间的一般福利和工作影响。
IF 1.3 4区 医学 Q2 Medicine Pub Date : 2023-02-01 DOI: 10.1071/PY22007
Hanan Khalil, Chaojie Liu, Leila Karimi, J Adamm Ferrier, Zhanming Liang, Sandra Leggat

Background: Community pharmacists are highly accessible for advice, as most pharmacies are open long hours and no appointment is needed. Community pharmacists, as essential community health workers, play a critical role in the fight against coronavirus disease 2019 (COVID-19). This study aimed to determine the general wellbeing and work impacts of pharmacists and the factors important for adaptability and resilience during the COVID-19 pandemic.

Methods: This study adopted a cross-sectional design. Community pharmacists from various professional networks in Australia were invited through emails and social media posts to complete an anonymous online survey during the second wave of the COVID-19 pandemic in Victoria, Australia.

Results: Sixty-five community pharmacists completed the online survey. The respondents reported fair levels of general wellbeing during the COVID-19 pandemic, with a mean self-related health score of 33.57 (s.d.=13.19) out of a maximal of 96, despite relatively high levels of job stress and emotional labour. Lower levels of general wellbeing were correlated with higher levels of job stress (r =0.645, P <0.01) and emotional labour (r =0.513, P <0.01), and lower levels of occupational self-efficacy (r =-0.566, P <0.01). Leader member exchange was negatively correlated with job stress (r =-0.419, P <0.01) and positively correlated with psychological safety (r =0.693, P <0.01). The linear regression models showed that female pharmacists had lower occupational self-efficacy (β =-0.286, P =0.024), but higher psychological safety (β =0.234, P =0.042). Higher work ability was associated with lower job stress (β =-0.529, P <0.001), higher occupational self-efficacy (β =0.511, P =0.001), and poorer self-related health (β =-0.659, P <0.001).

Conclusions: The findings highlight the importance of a supportive work environment in helping community pharmacists to feel psychologically safe and reduce stress during a crisis.

背景:社区药剂师很容易获得建议,因为大多数药房开放时间很长,不需要预约。社区药剂师作为重要的社区卫生工作者,在抗击2019冠状病毒病(COVID-19)中发挥着关键作用。本研究旨在确定药剂师的总体健康和工作影响,以及在COVID-19大流行期间影响适应性和复原力的重要因素。方法:本研究采用横断面设计。在澳大利亚维多利亚州第二波COVID-19大流行期间,通过电子邮件和社交媒体帖子邀请来自澳大利亚各专业网络的社区药剂师完成一项匿名在线调查。结果:65名社区药师完成了在线调查。受访者表示,在2019冠状病毒病大流行期间,他们的总体幸福感水平相当,尽管工作压力和情绪劳动水平相对较高,但自我相关健康得分平均为33.57分(标准差=13.19),满分为96分。总体幸福感水平较低与工作压力水平较高相关(r =0.645, P)。结论:研究结果强调了支持性工作环境在帮助社区药剂师在危机期间获得心理安全感和减轻压力方面的重要性。
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引用次数: 1
Cancer screening in prisons: lessons for health providers. 监狱中的癌症筛查:给卫生服务提供者的教训。
IF 1.3 4区 医学 Q2 Medicine Pub Date : 2023-02-01 DOI: 10.1071/PY22120
Sarah Hesse, Kim Williamson, Deborah Bonney, Marie Finley, Tom Meehan

Background: Lifestyle factors place those who experience incarceration at increased risk of morbidity and mortality from a range of preventable diseases, including cancer.

Methods: Two nurses were employed for a period of 6months to facilitate bowel and breast cancer screening of prisoners across four correctional centres in Queensland. We identify factors impacting on cancer screening in prisons and document the outcomes for those screened.

Results: Both screening programs produced a positivity rate of ∼17% in those screened, with 23 individuals returning a positive faecal occult blood test and five women requiring further investigations following breast screening. At 3months postscreening, all of the positive cases had been referred for further investigations. It is likely that the screening programs were instrumental in preventing morbidity (and mortality) in the subgroup with positive test results.

Conclusions: Cancer screening within the prison environment presents a number of challenges. Intervention at the individual and systems level is required to ensure prisoners can access a standard of care equal to that provided in the community.

背景:生活方式因素使被监禁者罹患包括癌症在内的一系列可预防疾病和死亡的风险增加。方法:雇用了两名护士,为期6个月,以促进在昆士兰州四个惩教中心的囚犯肠癌和乳腺癌筛查。我们确定了影响监狱癌症筛查的因素,并记录了筛查者的结果。结果:两种筛查方案在筛查者中均产生了约17%的阳性率,其中23人的粪便隐血检查呈阳性,5名妇女在乳房筛查后需要进一步调查。筛查后3个月,所有阳性病例均被转诊作进一步调查。这很可能是筛查程序有助于预防发病率(和死亡率)的亚组阳性检测结果。结论:在监狱环境中进行癌症筛查面临许多挑战。需要在个人和系统层面进行干预,以确保囚犯能够获得与社区提供的同等标准的护理。
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引用次数: 0
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Australian journal of primary health
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