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Self-reported strengths and talents of autistic adults. 自闭症成年人自我报告的优势和才能。
IF 5.6 2区 心理学 Q1 PSYCHOLOGY, DEVELOPMENTAL Pub Date : 2026-01-01 Epub Date: 2025-08-26 DOI: 10.1177/13623613251364361
Linnea A Lampinen, Joseph Singer, Xinyue Wang, Benjamin VanHook, Ellen Wilkinson, Vanessa H Bal
<p><p>Many adults express dissatisfaction with the autism diagnostic process, and concerns have been cited regarding the lack of neurodiversity-affirming assessment methods. In part, this is due to instruments framing behaviors as symptoms causing impairment, overlooking potential benefits. Systematically measuring strengths and talents during assessment may inform diagnosis and support planning in a more neurodiversity-affirming manner. Historically, research has relied on caregiver-reported strengths; more information on self-reported strengths is needed to inform self-report instrument development and assessment practices. Participants included 127 legally independent autistic adults recruited primarily through SPARK Research Match, who completed open-ended questions regarding strengths and talents. Qualitative content analysis identified themes of strengths, and associations between strengths and gender, age, age of diagnosis, and education level were examined. Autistic and nonautistic team members collaborated on qualitative coding, data interpretation, and manuscript writing. Themes emerging from the qualitative responses included Cognitive/Executive Functioning (61%), Character Strengths (55%), Creative/Artistic (52%), Academic (33%), and Interpersonal (30%). Overlap between strength domains and <i>Diagnostic and Statistical Manual of Mental Disorders</i> (5th ed.) autism diagnostic criteria suggest that more nuance is needed in how we conceptualize autism, considering both strengths and challenges. Domains of strengths identified in this study can be used to inform measure development and strengths-based assessment and support planning.Lay AbstractAutism research and testing has had a heavy focus on difficulties, without much attention to the strengths of autistic people. Most surveys ask about challenges associated with autism, but do not consider the positive qualities and talents of autistic adults. Previous research on strengths in autistic individuals has mostly been based on what parents report, so we do not know as much about how autistic adults see their own strengths. We asked 127 autistic adults to tell us about their strengths and talents in an online survey. Both autistic and nonautistic team members worked together to group answers by similar themes or categories. We explained categories and compared how they were related to participants' characteristics. Autistic adults shared many different strengths, including skills in problem-solving, character, creativity, academics, and getting along with others. Some strengths were more likely to be mentioned by people of different ages, education levels, or genders. The results show that autistic adults have many different strengths. It is important for researchers, doctors, and the public to recognize both the strengths and challenges of autistic adults to create a more balanced view of autism. Thinking about these strengths when diagnosing autism and planning supports can improve t
许多成年人对自闭症的诊断过程表示不满,并且对缺乏肯定神经多样性的评估方法表示担忧。在某种程度上,这是由于工具将行为定义为导致损害的症状,而忽略了潜在的好处。在评估过程中系统地测量优势和才能,可以以更肯定神经多样性的方式为诊断和支持规划提供信息。从历史上看,研究依赖于照顾者报告的优势;需要更多关于自我报告优势的信息,以便为自我报告工具的开发和评估实践提供信息。参与者包括127名合法独立的自闭症成年人,主要是通过SPARK研究匹配招募的,他们完成了关于优势和才能的开放式问题。定性内容分析确定了优势的主题,并检查了优势与性别、年龄、诊断年龄和教育水平之间的关联。自闭症和非自闭症团队成员在定性编码、数据解释和手稿写作方面进行合作。定性回答中出现的主题包括认知/执行功能(61%)、性格优势(55%)、创意/艺术(52%)、学术(33%)和人际关系(30%)。力量域与《精神障碍诊断与统计手册》(第5版)自闭症诊断标准之间的重叠表明,我们在如何概念化自闭症时需要更多的细微差别,同时考虑到优势和挑战。本研究中确定的优势领域可用于通知测量发展和基于优势的评估和支持规划。【摘要】自闭症研究和测试的重点是自闭症患者的困难,而没有关注自闭症患者的优势。大多数调查询问与自闭症相关的挑战,但没有考虑自闭症成年人的积极品质和才能。以前对自闭症个体优势的研究大多基于父母的报告,所以我们对自闭症成年人如何看待自己的优势知之甚少。我们在一项在线调查中询问了127名自闭症成年人,告诉我们他们的优势和才能。自闭症和非自闭症团队成员一起工作,根据相似的主题或类别对答案进行分组。我们解释了类别,并比较了它们与参与者特征的关系。自闭症成年人有许多不同的优势,包括解决问题的能力、性格、创造力、学术能力和与他人相处的能力。不同年龄、教育水平或性别的人更容易提到一些优点。结果表明,自闭症成年人有许多不同的优势。对于研究人员、医生和公众来说,重要的是认识到自闭症成年人的优势和挑战,以创造一个更平衡的自闭症观点。在诊断自闭症和规划支持时,考虑这些优势可以改善自闭症成年人的福祉,减少耻辱,并帮助人们以更平衡的方式了解自闭症。
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引用次数: 0
'Breaking down a barrier': Autistic young people see virtual reality as a possible social support, but not a substitute for in-person interactions. “打破障碍”:自闭症年轻人将虚拟现实视为一种可能的社会支持,但不能替代面对面的互动。
IF 5.6 2区 心理学 Q1 PSYCHOLOGY, DEVELOPMENTAL Pub Date : 2025-12-17 DOI: 10.1177/13623613251406114
Nathan Caruana, Terry Goetz, Patrick Nalepka, Elizabeth Pellicano

Autistic people often face challenges in face-to-face social interactions, especially in unfamiliar or high-stakes situations. Virtual reality has been proposed as a tool to support social connection by offering a more controlled and accessible environment. While previous research has focused on virtual reality-based social skills training, little is known about how autistic people experience social interactions in virtual reality. We interviewed 22 autistic young people (aged 9-22 years, MAge = 14.5) after they engaged in a social interaction with a stranger in immersive virtual reality. Using reflexive thematic analysis, we found that participants generally found virtual reality interactions tolerable, engaging and helpful as a low-pressure first step towards more challenging social situations. Virtual reality was valued for reducing sensory overload, increasing confidence and offering novel social opportunities. However, participants did not view virtual reality as a replacement for in-person interaction, which they saw as essential for building meaningful relationships. These findings highlight the potential of virtual reality to support autistic people by modifying the social environment rather than demanding behavioural change. They also challenge deficit-based assumptions about autistic social motivation, emphasising the importance of aligning technological supports with autistic people's lived experiences and preferences.Lay abstractAutistic young people can find social situations stressful and overwhelming, particularly if meeting strangers in high-stakes settings (e.g. first date, job interview). Virtual reality has been suggested as a tool that might help make these interactions easier. In this study, we asked 22 autistic young people, aged 9-22, to try out a social interaction in virtual reality and then tell us about their experience. We found that most participants enjoyed using virtual reality and felt it made social interactions feel safer and less intimidating. They said virtual reality helped reduce distractions and gave them more control over how they presented themselves. Some even said it made them feel more confident when talking to others. However, young people were clear that virtual reality should not replace real-life interactions. They said that in-person contact is still important for building real connections with others. While virtual reality can be a helpful first step when interacting with new people, especially in situations that feel scary or unfamiliar, it is not a substitute for face-to-face relationships. This research shows that autistic young people value social connection and want tools that support, rather than replace, real-life interaction.

自闭症患者经常在面对面的社交互动中面临挑战,尤其是在不熟悉或高风险的情况下。虚拟现实已经被提议作为一种工具,通过提供一个更可控和可访问的环境来支持社会联系。虽然之前的研究主要集中在基于虚拟现实的社交技能训练上,但人们对自闭症患者在虚拟现实中如何体验社交互动知之甚少。我们采访了22名患有自闭症的年轻人(9-22岁,MAge = 14.5),他们在沉浸式虚拟现实中与陌生人进行了社交互动。通过反身性主题分析,我们发现参与者普遍认为虚拟现实互动是可以忍受的、吸引人的、有帮助的,这是迈向更具挑战性的社交情境的低压力第一步。虚拟现实的价值在于减少感官超载,增加信心和提供新的社交机会。然而,参与者并不认为虚拟现实是面对面互动的替代品,他们认为面对面互动对于建立有意义的关系至关重要。这些发现强调了虚拟现实通过改变社会环境而不是要求行为改变来支持自闭症患者的潜力。他们还挑战了关于自闭症社会动机的基于缺陷的假设,强调了将技术支持与自闭症患者的生活经历和偏好相结合的重要性。自闭症的年轻人会觉得社交场合压力很大,尤其是在高风险的场合(比如第一次约会、工作面试)遇到陌生人时。虚拟现实被认为是一种工具,可能有助于使这些互动更容易。在这项研究中,我们邀请了22名年龄在9-22岁之间的自闭症年轻人,让他们尝试在虚拟现实中进行社交互动,然后告诉我们他们的经历。我们发现,大多数参与者都喜欢使用虚拟现实,并认为它使社交互动更安全,不那么令人生畏。他们说,虚拟现实有助于减少干扰,并让他们更好地控制自己的表现方式。有些人甚至说,这让他们在与他人交谈时感觉更自信。然而,年轻人很清楚,虚拟现实不应该取代现实生活中的互动。他们说,面对面的接触对于与他人建立真正的联系仍然很重要。虽然虚拟现实可以成为与陌生人互动的第一步,特别是在感到害怕或不熟悉的情况下,但它不能代替面对面的关系。这项研究表明,自闭症年轻人重视社会联系,想要支持而不是取代现实生活中的互动的工具。
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引用次数: 0
Exploring the autism and functional neurological disorder association: Considerations from biopsychosocial, neuropsychological and computational models. 探索自闭症与功能性神经障碍的关联:来自生物心理社会、神经心理学和计算模型的考虑。
IF 5.6 2区 心理学 Q1 PSYCHOLOGY, DEVELOPMENTAL Pub Date : 2025-12-17 DOI: 10.1177/13623613251393504
Richard H Cole, Lily Smythe, Mark J Edwards, Francesca Happé, Timothy R Nicholson

Evidence is accumulating regarding an association between autism and functional neurological disorder, a common cause for a wide range of neurological symptoms affecting motor, sensory and cognitive systems. Symptoms can include paralysis, tremors, sensory disturbance, vision loss and dizziness. Functional neurological disorder exists at the complex intersection of physical and mental health, neurology and psychiatry, and body and mind. Despite a recent resurgence in clinical and scientific interest, functional neurological disorder has lagged behind other causes of neurological symptoms in research, service development and acceptance. The nature of the association between autism and functional neurological disorder remains uncertain, but several plausible mechanisms can be identified from overlapping areas of research, highlighting endogenous factors such as atypical interoception, motor function, emotional processing and sensorimotor integration, alongside exogenous influences including adversity, healthcare inequality and stigma. This review first provides an overview of functional neurological disorder through various explanatory frameworks before applying biopsychosocial, neuropsychological and computational perspectives to conceptualise its intersection with autism. It then considers how this association might be understood and explores how services could be adapted to better recognise and support autistic individuals with functional neurological disorder across the diagnostic and treatment pathway.Lay AbstractFunctional neurological disorder causes real and often disabling symptoms, such as seizures, paralysis, tremors or sensory changes, even though standard medical tests do not show physical damage to the nervous system. Research suggests that autistic people are more likely to experience functional neurological disorder than their non-autistic peers, but the reasons for this are not yet understood. This article explores why autism and functional neurological disorder might occur together. It draws on research into how the brain processes body signals (like pain or movement), handles emotions and responds to uncertainty. It also looks at life experiences that affect health, including trauma, barriers to healthcare and stigma. This article shows that both internal factors (such as differences in movement, emotional awareness and sensory processing) and external factors (such as stress, inequality and misdiagnosis) may increase the chances of functional neurological disorder in some autistic individuals. Several models are introduced to help explain how these influences might interact. Finally, this article outlines how healthcare services could better support autistic people with functional neurological disorder. It encourages functional neurological disorder services to adapt communication styles, provide appropriate adjustments and include autistic voices in research and treatment planning to improve care and outcomes.

越来越多的证据表明自闭症与功能性神经障碍之间存在关联,功能性神经障碍是影响运动、感觉和认知系统的一系列神经症状的常见原因。症状包括瘫痪、震颤、感觉障碍、视力丧失和头晕。功能性神经障碍存在于生理与心理健康、神经病学与精神病学、身体与心灵的复杂交叉点。尽管最近临床和科学兴趣重新抬头,但功能性神经障碍在研究、服务开发和接受方面落后于神经症状的其他原因。自闭症与功能性神经障碍之间的关联性质仍不确定,但可以从重叠的研究领域确定几个看似合理的机制,突出了内源性因素,如非典型内感受、运动功能、情绪加工和感觉运动整合,以及外源性影响,包括逆境、医疗不平等和耻辱。本综述首先通过各种解释框架概述功能性神经障碍,然后应用生物心理社会、神经心理学和计算视角概念化其与自闭症的交叉。然后考虑如何理解这种联系,并探索如何通过诊断和治疗途径更好地识别和支持患有功能性神经障碍的自闭症患者。尽管标准的医学测试并没有显示出神经系统的物理损伤,功能性神经紊乱却会引起真实的、通常是致残的症状,如癫痫、瘫痪、震颤或感觉改变。研究表明,自闭症患者比非自闭症患者更容易出现功能性神经障碍,但其原因尚不清楚。这篇文章探讨了为什么自闭症和功能性神经障碍可能同时发生。它借鉴了对大脑如何处理身体信号(如疼痛或运动)、处理情绪和对不确定性做出反应的研究。它还着眼于影响健康的生活经历,包括创伤、获得医疗保健的障碍和耻辱。这篇文章表明,内部因素(如运动、情绪意识和感觉处理方面的差异)和外部因素(如压力、不平等和误诊)都可能增加一些自闭症患者患功能性神经障碍的机会。介绍了几个模型来帮助解释这些影响是如何相互作用的。最后,本文概述了医疗保健服务如何更好地支持患有功能性神经障碍的自闭症患者。它鼓励功能性神经紊乱服务调整沟通方式,提供适当的调整,并在研究和治疗计划中纳入自闭症患者的声音,以改善护理和结果。
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引用次数: 0
Short report: Autistic adults' perceptions of gender, autism, and policing in the United States. 简短报告:美国自闭症成年人对性别、自闭症和警察的看法。
IF 5.6 2区 心理学 Q1 PSYCHOLOGY, DEVELOPMENTAL Pub Date : 2025-12-17 DOI: 10.1177/13623613251395539
Meredith Cola, Aili Hauptmann, Alison Russell, Dieu M Truong, Ashlee Yates Flanagan, Kimberly G Tena, Juan Pacheco, Ashley Zitter, Azia Knox, Maggie Rose Pelella, Lizzy Fulop, Maxine Covello, Amanda Lee, Margaret Lyons, Sarah Schillinger, Rita Solórzano, Sinan Turnacioglu, Vijay Ravindran, Judith S Miller, Joseph P McCleery, Julia Parish-Morris
<p><p>Autistic individuals face increased risk during police interactions in the United States, including injury and death. Research shows police behave inequitably during interactions with marginalized communities and may behave even more inequitably toward individuals with multiple minoritized identities. Many autistic people also identify as gender diverse. However, it is largely unknown if or how autistic adults' perceptions of police differ by gender identity. We examined autistic adults' perceptions of policing, autism, and gender using an online questionnaire. Results revealed significant differences across gender groups (cis women, cis men, gender diverse) in perceptions of justice, comfort in disclosing diagnosis, helpfulness of diagnostic disclosure, influence of gender, and concern that one's autistic traits would be misperceived as dangerous. These findings align with widespread calls for police reform and suggest current policing practices likely do not meet the needs of all autistic individuals, particularly autistic cis women and gender diverse individuals, who are more likely to report their gender has influenced police interactions and more concerned that their autistic characteristics are being misperceived, relative to autistic cis men. Reducing the harm marginalized groups face because of systemic inequities in the current policing system is a critical need that could enhance safety for autistic individuals.Lay abstractAutistic people in the United States are at a higher risk of injury or death when they interact with the police. Research has shown that police often treat people from minoritized communities unfairly, and this can be even worse for people who belong to more than one minoritized group, like being both autistic and gender diverse. Many autistic people also identify as gender diverse. However, we do not yet know if autistic people's views of police may differ across gender identities. In this study, we explored how autistic adults view police and if those views differ across different gender identities. We found that autistic adults with different gender identities have different views on things like justice, how comfortable they feel telling police about their autism diagnosis, whether they think telling the police about their diagnosis would be helpful, how they think their gender affects police behavior, and whether they worry that their autistic traits might be seen as dangerous. These results may indicate that the current policing practices may not take into account autistic individuals' unique perspectives and experiences, particularly when police are interacting with autistic women and gender diverse people. It is important that we make changes to reduce the harm that autistic people face because of unfairness in the current policing system using feedback from autistic individuals. This could make things safer for all autistic people. Our results suggest it could be beneficial for police officers to receive
在美国,自闭症患者在与警察互动时面临更大的风险,包括受伤和死亡。研究表明,警察在与边缘化社区的互动中表现得不公平,对具有多个少数群体身份的个人可能表现得更不公平。许多自闭症患者也认为自己的性别是多元的。然而,自闭症成年人对警察的看法是否或如何因性别认同而不同,这在很大程度上是未知的。我们使用在线问卷调查了自闭症成年人对警察、自闭症和性别的看法。结果显示,不同性别群体(顺式女性、顺式男性、不同性别)在对公正、披露诊断的舒适度、诊断披露的帮助性、性别的影响以及对自闭症特征被误解为危险的担忧等方面存在显著差异。这些调查结果与对警察改革的广泛呼吁一致,并表明目前的警务做法可能无法满足所有自闭症个体的需求,特别是自闭的独联体妇女和性别多样化个体的需求,她们更有可能报告说,她们的性别影响了警察的互动,与自闭的独联体男子相比,她们更担心自己的自闭特征被误解。减少边缘化群体因当前警务系统中的系统性不平等而面临的伤害,是一项可以增强自闭症患者安全的迫切需要。在美国,自闭症患者在与警察互动时受伤或死亡的风险更高。研究表明,警察经常不公平地对待来自少数群体的人,对于属于多个少数群体的人来说,情况可能更糟,比如患有自闭症和性别多元化的人。许多自闭症患者也认为自己的性别是多元的。然而,我们还不知道自闭症患者对警察的看法是否会因性别认同而有所不同。在这项研究中,我们探讨了自闭症成年人如何看待警察,以及这些观点是否在不同的性别认同中有所不同。我们发现,不同性别认同的自闭症成年人对一些事情有不同的看法,比如正义,告诉警察自己的自闭症诊断是否舒服,是否认为告诉警察自己的诊断会有帮助,他们认为自己的性别如何影响警察的行为,以及他们是否担心自己的自闭症特征可能被视为危险。这些结果可能表明,目前的警务实践可能没有考虑到自闭症患者独特的观点和经历,特别是当警察与自闭症妇女和性别不同的人互动时。重要的是,我们要根据自闭症患者的反馈,做出改变,以减少自闭症患者面临的伤害,因为目前的警务系统不公平。这对所有自闭症患者来说都是安全的。我们的研究结果表明,对警察来说,在自闭症群体中接受包含性别多样性的培训可能是有益的,这样他们就能更好地保护和尊重所有自闭症患者。
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引用次数: 0
The impact of individual factors on linguistic alignment of autistic boys and their mothers. 个体因素对自闭症男孩及其母亲语言一致性的影响。
IF 5.6 2区 心理学 Q1 PSYCHOLOGY, DEVELOPMENTAL Pub Date : 2025-12-17 DOI: 10.1177/13623613251395538
Nell Maltman, Camille J Wynn, Elizabeth A Wynn, Audra Sterling

Linguistic alignment reflects shared linguistic behaviors (e.g. syntax and lexicon) between interlocutors. Recent work has examined whether autistic children align to the same degree as their non-autistic peers, with current findings inconclusive. This study took an in-depth approach to investigating factors contributing to variation in linguistic alignment among autistic individuals. Eighteen school-age and adolescent autistic male participants, 14 males with fragile X syndrome + autism, and their mothers participated in the study. Dyads engaged in an unstructured conversation for ~12 min. Using Bayesian linear mixed-effect models, we assessed the relationships between alignment and within-individual factors of the participants. Lexical and syntactic alignment were uniquely influenced by within-participant factors. Maternal lexical and syntactic alignment were differentially associated with participant cognitive and expressive language abilities, and according to etiology (fragile X syndrome + autism vs idiopathic autism). This study highlights the complexity of alignment in autistic individuals and their mothers. Results suggest that alignment is a dynamic process that is motivated in part by within-individual traits of their children. Consequently, characterizing alignment in autism requires a highly nuanced and thoughtful approach that accounts for the heterogeneity of the population.

语言对齐反映了对话者之间共同的语言行为(如语法和词汇)。最近的研究调查了自闭症儿童是否与非自闭症儿童在同一程度上保持一致,但目前的研究结果尚无定论。本研究采用深入的方法来调查导致自闭症个体语言一致性差异的因素。18名学龄和青少年自闭症男性参与者,14名患有脆性X综合征+自闭症的男性参与者,以及他们的母亲参加了这项研究。两人进行了约12分钟的非结构化对话。使用贝叶斯线性混合效应模型,我们评估了参与者的对齐和个体内部因素之间的关系。词汇和句法对齐受到参与者内部因素的独特影响。根据病因(脆性X综合征+自闭症与特发性自闭症),母亲的词汇和句法对齐与参与者的认知和表达语言能力存在差异。这项研究强调了自闭症患者和他们的母亲之间关系的复杂性。结果表明,结盟是一个动态的过程,部分是由孩子的个人特征所驱动的。因此,描述自闭症的一致性需要一种高度细致和深思熟虑的方法,以解释人群的异质性。
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引用次数: 0
Participatory systems mapping: Can this approach improve how services work for autistic people? 参与式系统绘图:这种方法能否改善为自闭症患者提供的服务?
IF 5.6 2区 心理学 Q1 PSYCHOLOGY, DEVELOPMENTAL Pub Date : 2025-12-15 DOI: 10.1177/13623613251399656
Megan Freeth, Daniel Poole, Victoria Newell, Kelly Scargill
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引用次数: 0
Letter to the editor: Employment of autistic individuals in the age of AI integration: Challenges and opportunities. 致编辑的信:人工智能融合时代自闭症个体的就业:挑战与机遇。
IF 5.6 2区 心理学 Q1 PSYCHOLOGY, DEVELOPMENTAL Pub Date : 2025-12-10 DOI: 10.1177/13623613251401556
Michal Waisman Nitzan, Liron Lamash, Darren Hedley, Simon M Bury, Eynat Gal

As artificial intelligence (AI) reshapes the modern workplace, the implications for neurodivergent populations, particularly autistic adults, warrant attention. Autistic people remain underrepresented in the workforce, facing persistent barriers to sustained employment. In this letter, we consider whether AI may compound these barriers or offer opportunities for autistic people: With thoughtful design and implementation, could AI foster more inclusive and accessible workplaces? We call for critical reflection on AI's potential impact on autistic employment. We argue that facilitating inclusion of autistic individuals in the workforce in the age of AI will require care, collaboration, and a commitment to neurodiversity.Lay AbstractAs artificial intelligence (AI) becomes more common in workplaces, it could affect autistic people in important ways. Today, many autistic adults still face difficulties finding and keeping jobs. In this letter, we ask whether AI will make things harder for autistic people or whether it might help. Could AI be designed in a way that supports autistic workers and creates more inclusive workplaces? We believe that the answer depends on how AI is used. We call for thoughtful planning and teamwork between employers, autistic people, and designers to make sure AI is used in ways that support neurodiversity and employment inclusion.

随着人工智能(AI)重塑现代工作场所,它对神经分化人群(尤其是自闭症成年人)的影响值得关注。自闭症患者在劳动力中的代表性仍然不足,他们在持续就业方面面临着持续的障碍。在这封信中,我们考虑了人工智能是否会加剧这些障碍,或者为自闭症患者提供机会:通过深思熟虑的设计和实施,人工智能是否能促进更包容、更无障碍的工作场所?我们呼吁批判性地反思人工智能对自闭症患者就业的潜在影响。我们认为,在人工智能时代,促进自闭症患者融入劳动力需要关心、合作和对神经多样性的承诺。随着人工智能(AI)在工作场所变得越来越普遍,它可能会在很多重要方面影响自闭症患者。今天,许多患有自闭症的成年人仍然在找工作和保住工作方面面临困难。在这封信中,我们询问人工智能是否会让自闭症患者的生活变得更加困难,或者它是否会有所帮助。人工智能能否被设计成一种支持自闭症员工并创造更具包容性的工作场所的方式?我们认为,答案取决于如何使用人工智能。我们呼吁雇主、自闭症患者和设计师之间进行深思熟虑的规划和团队合作,以确保人工智能的使用方式支持神经多样性和就业包容性。
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引用次数: 0
Self-injurious behaviors with increased likelihood of injury in autistic youth: The role of distress linked to a strong preference for sameness. 自闭青少年自残行为与伤害可能性增加:痛苦的作用与强烈的同一性偏好有关。
IF 5.6 2区 心理学 Q1 PSYCHOLOGY, DEVELOPMENTAL Pub Date : 2025-12-08 DOI: 10.1177/13623613251396036
Emily F Ferguson, Emily Spackman, Antonio Y Hardan, Mirko Uljarević
<p><p>Self-injurious behaviors in autistic youth vary widely in their form, intensity, and potential for physical injury. This study explored predictors of two categories of self-injurious behaviors that were delineated based on their potential for physical injury (self-injurious behavior-High Likelihood and self-injurious behavior-Low Likelihood), with a focus on the role of distress linked to a strong preference for routines (otherwise known as insistence on sameness). The sample included 1892 autistic youth (M<sub>age</sub> = 10.82, SD<sub>age</sub> = 4.14; 22% females) across the United States. Distress associated with insistence on sameness was the strongest predictor of total self-injurious behavior scores, self-injurious behavior-Low Likelihood, and self-injurious behavior-High Likelihood, after controlling for demographic factors and speech level, and remained a unique predictor after accounting for variance explained by other restricted and repetitive behaviors. Sensory hypersensitivity and sensory-seeking were strong unique predictors of all self-injurious behaviors, while hyposensitivity was a weaker predictor of self-injurious behavior total and self-injurious behavior-Low Likelihood, and a non-significant predictor of self-injurious behavior-High Likelihood. Among demographic factors, lower household income was the strongest predictor of all self-injurious behaviors. Higher speech level was a positive predictor of self-injurious behavior-Low Likelihood but a negative predictor of self-injurious behavior-High Likelihood. These findings demonstrate the role of distress associated with insistence on sameness in manifestations of self-injurious behaviors and highlight the importance of exploring predictors at a more granular level to inform targeted interventions and support.Lay AbstractThis study explored factors associated with repetitive self-injurious behaviors in autistic youth, focusing on emotional distress linked to a strong preference for routines (often referred to as insistence on sameness), a category of behaviors that includes difficulties with change and a strong preference for routines and/or rituals. We examined two categories of self-injurious behaviors: lower likelihood of physical injury (self-injurious behavior-Low Likelihood) and higher likelihood of physical injury (self-injurious behavior-High Likelihood). The study included 1892 autistic youth of varying ages and cognitive abilities. The main finding was that distress associated with disruptions to routines was the strongest predictor of all types of self-injurious behavior. Youth with greater sensitivity to sensory input or sensory-seeking behaviors were more likely to engage in self-injurious behaviors that could increase risk of physical injury. In contrast, those with reduced sensitivity to sensory input were less likely to engage in self-injurious behaviors. Demographic factors also played a role in the manifestation and severity of self-injurious behaviors.
自闭症青少年的自残行为在形式、强度和潜在的身体伤害方面差异很大。本研究探讨了两类自伤行为的预测因素,这两类自伤行为是根据其潜在的身体伤害(自伤行为-高可能性和自伤行为-低可能性)来描述的,重点是与对常规的强烈偏好(也被称为坚持千篇一律)相关的痛苦作用。样本包括美国1892名自闭症青年(Mage = 10.82, SDage = 4.14, 22%为女性)。在控制了人口统计学因素和言语水平后,与坚持同一性相关的痛苦是自伤行为总分、自伤行为低可能性和自伤行为高可能性的最强预测因子,并且在考虑了其他限制性和重复性行为解释的方差后仍然是唯一的预测因子。感觉超敏性和感觉寻求是所有自伤行为的强预测因子,而低敏性是自伤行为总量和自伤行为低似然的弱预测因子,是自伤行为高似然的不显著预测因子。在人口统计因素中,较低的家庭收入是所有自残行为的最强预测因子。言语水平高是自伤行为低可能性的正向预测因子,是自伤行为高可能性的负向预测因子。这些发现表明,在自残行为的表现中,与坚持同一性相关的痛苦所起的作用,并强调了在更细致的层面上探索预测因素的重要性,从而为有针对性的干预和支持提供信息。摘要本研究探讨了自闭症青少年中重复性自伤行为的相关因素,重点关注与强烈的常规偏好(通常被称为坚持千篇一律)相关的情绪困扰,这类行为包括难以改变和对常规和/或仪式的强烈偏好。我们研究了两类自伤行为:低可能性的身体伤害(自伤行为-低可能性)和高可能性的身体伤害(自伤行为-高可能性)。该研究包括1892名不同年龄和认知能力的自闭症青少年。研究的主要发现是,与日常生活中断相关的痛苦是所有类型自残行为的最强预测因子。对感官输入或感官寻求行为更敏感的青少年更有可能从事可能增加身体伤害风险的自残行为。相比之下,那些对感官输入敏感度降低的人不太可能做出自残行为。人口因素对自伤行为的表现和严重程度也有影响。家庭收入越低,自伤行为的严重程度越高。此外,较高的言语量(例如说完整的句子)与更严重的自伤行为(低可能性)和自伤行为(高可能性)相关。这些发现强调了自闭症青少年自残行为的复杂性,以及理解导致这些行为的不同因素的重要性。这项研究可能有助于对自闭症青少年的自伤行为做出更积极的、量身定制的干预。
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引用次数: 0
Understanding and measuring caregiver-reported quality of life among minimally verbal autistic children with intellectual disability. 理解和测量照顾者报告的轻度言语自闭症伴智力残疾儿童的生活质量。
IF 5.6 2区 心理学 Q1 PSYCHOLOGY, DEVELOPMENTAL Pub Date : 2025-12-07 DOI: 10.1177/13623613251394995
Elizabeth A Kaplan-Kahn, Rachel M Benecke, Laura Graham Holmes, Judith S Miller

To address the dearth of literature on outcomes for autistic individuals with significant intellectual disability, researchers require validated measures to use in research. This study examined the psychometric properties of PROMIS quality-of-life caregiver-proxy scales included in the PROMIS Autism Battery-Lifespan among autistic children who are minimally verbal and with intellectual disability (MVID). We examined basic psychometric properties of the PROMIS caregiver-proxy scales and tested the scales for measurement invariance between groups of autistic children who are minimally verbal with intellectual disability and those without signficant intellectuatl disability (N = 448). We also descriptively examined feedback from caregivers regarding the appropriateness of the questions to capture meaningful outcomes for their autistic children who are minimally verbal with intellectual disability. Results indicated that some PROMIS caregiver-proxy scales (Anger, Positive Affect, and Life Satisfaction) exhibited strong psychometric evidence and content validity, but many other scales either did not demonstrate measurement invariance between groups or included a high proportion of items endorsed by caregivers as not applicable for their minimally verbal autistic child. Our findings emphasize the need for continued work developing appropriate measures for capturing meaningful outcomes among minimally verbal autistic people with significant intellectual disability.

为了解决文献缺乏对患有严重智力残疾的自闭症患者的结果,研究人员需要在研究中使用有效的测量方法。本研究考察了PROMIS孤独症电池寿命量表中包含的PROMIS生活质量照顾者代理量表在轻度言语和智力残疾孤独症儿童(MVID)中的心理测量特性。我们检查了PROMIS照顾者-代理量表的基本心理测量特性,并测试了轻度言语智力残疾自闭症儿童和无显著智力残疾自闭症儿童的测量不变性(N = 448)。我们还描述性地检查了照顾者关于问题的适当性的反馈,以便为他们的自闭症儿童捕获有意义的结果,这些儿童具有最低限度的语言能力和智力障碍。结果表明,一些PROMIS照顾者代理量表(愤怒、积极影响和生活满意度)显示出强有力的心理测量证据和内容效度,但许多其他量表要么没有显示出组间测量的不稳定性,要么包含了很高比例的照顾者认为不适用于他们的最低语言自闭症儿童的项目。我们的研究结果强调,需要继续开展工作,制定适当的措施,以在具有显著智力残疾的最低限度语言自闭症患者中获得有意义的结果。
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引用次数: 0
Transgender and gender-diverse autistic adolescents are at elevated risk of depression. 跨性别和性别多样化的自闭症青少年患抑郁症的风险较高。
IF 5.6 2区 心理学 Q1 PSYCHOLOGY, DEVELOPMENTAL Pub Date : 2025-12-06 DOI: 10.1177/13623613251396712
Joseph Pereira, Natalia Ramos, LeeAnne Green Snyder, Jeremy Veenstra-VanderWeele, Amandeep Jutla
<p><p>Autistic people are more likely to be transgender and gender diverse than the general population. Furthermore, co-occurring trait-level autism and transgender and gender-diverse identity are associated with symptoms of depression and anxiety, and autistic adolescents who identify as transgender and gender diverse have more internalizing behaviors than both non-transgender and gender-diverse autistic adolescents and non-autistic transgender and gender-diverse adolescents. However, no study has yet examined the extent to which transgender and gender-diverse identity predicts specific co-occurring mental health diagnoses in autistic adolescents. In a sample of 9027 autistic adolescents aged 13 to 17 drawn from the Simons Powering Autism Research for Knowledge cohort, 36 of whom we identified as transgender and gender diverse, we estimated univariate models of transgender and gender-diverse identity as a predictor of individual diagnoses. Depression, but no other diagnosis, remained statistically significant after adjustment for multiple comparisons. In a multiple regression model that incorporated known risk factors for adolescent depression (e.g. language impairment and disturbed sleep), transgender and gender-diverse identity remained a significant predictor (odds ratio: 4.01, 95% confidence interval: 1.87-8.67, <i>p</i> = 5.94 × 10<sup>-4</sup>) with an effect size at least as strong as that of a depression family history. This suggests transgender and gender-diverse autistic adolescents, who often face stigma and discrimination, are particularly vulnerable to depression.Lay abstract"Transgender and gender diverse" (TGD) people have gender identities that differ from the sex they were assigned at birth. Many autistic people have a TGD identity. Autistic adolescents who are TGD have more "internalizing symptoms," which include symptoms of depression and anxiety, than autistic adolescents who are not TGD. In this study, we examined a group of 9027 autistic adolescents, 36 of whom had a TGD identity, to determine which, if any, mental health diagnoses would be associated with TGD identity, and whether those associations would remain even after accounting for known risk factors for a diagnosis. We found that depression, but no other diagnosis, was associated with TGD identity. This association remained even when accounting for known risk factors for depression, and in fact, TGD identity was associated with depression at least as strongly as a family history of that diagnosis. This strong association is perhaps not surprising. TGD adolescents often face stigma, social rejection, and discrimination, which can lead to depression. Autistic adolescents can face similar difficulties. Autistic youth who also have a TGD identity may therefore be at particular risk of developing depression. Our study highlights that providers who work with autistic youth in the community should be aware of this risk so they can identify and treat depression when it is p
与一般人群相比,自闭症患者更有可能是跨性别者和性别多样化者。此外,共同发生的特质水平自闭症、跨性别和性别多元化认同与抑郁和焦虑症状相关,并且自认为跨性别和性别多元化的自闭症青少年比非跨性别和性别多元化的自闭症青少年和非自闭症跨性别和性别多元化的自闭症青少年有更多的内化行为。然而,目前还没有研究调查跨性别和性别多元化身份在多大程度上预测自闭症青少年中共同发生的特定心理健康诊断。从Simons Powering Autism Research for Knowledge队列中抽取了9027名13至17岁的自闭症青少年样本,其中36人被确定为跨性别和性别多元化,我们估计跨性别和性别多元化身份的单变量模型可以作为个体诊断的预测因子。在多重比较调整后,抑郁症,但没有其他诊断,仍然具有统计学意义。在纳入已知青少年抑郁症危险因素(如语言障碍和睡眠障碍)的多元回归模型中,跨性别和性别多元认同仍然是一个显著的预测因子(优势比:4.01,95%置信区间:1.87-8.67,p = 5.94 × 10-4),其效应大小至少与抑郁症家族史一样强。这表明,经常面临耻辱和歧视的跨性别和性别多样化自闭症青少年特别容易患抑郁症。“跨性别者和多元性别”(TGD)人的性别认同与他们出生时的性别不同。许多自闭症患者都有TGD身份。与非TGD的自闭症青少年相比,患有TGD的自闭症青少年有更多的“内化症状”,包括抑郁和焦虑症状。在这项研究中,我们检查了9027名自闭症青少年,其中36人有TGD身份,以确定哪些(如果有的话)心理健康诊断与TGD身份相关,以及即使在考虑了已知的诊断风险因素后,这些关联是否仍然存在。我们发现抑郁症与TGD身份有关,但没有其他诊断。即使考虑到已知的抑郁症风险因素,这种关联仍然存在,事实上,TGD身份与抑郁症的相关性至少与该诊断的家族史一样强。这种强烈的联系也许并不令人惊讶。TGD青少年经常面临耻辱、社会排斥和歧视,这可能导致抑郁。自闭症青少年也会面临类似的困难。因此,具有TGD身份的自闭症青少年可能特别容易患抑郁症。我们的研究强调,在社区中与自闭症青少年一起工作的提供者应该意识到这种风险,这样他们就可以在抑郁症出现时识别和治疗抑郁症。未来的研究应该进一步调查自闭症患者抑郁和TGD身份之间的关系,以确定提供者和照顾者如何支持这些年轻人。
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引用次数: 0
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Autism
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