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Contemporary Perspectives on Social Work in Acquired Brain Injury: An Introduction 获得性脑损伤社会工作的当代视角:导论
Journal of social work in disability & rehabilitation
Pub Date : 2016-08-11 DOI: 10.1080/1536710X.2016.1216660
G. Simpson, F. Yuen
ABSTRACT This special issue of the Journal of Social Work in Disability and Rehabilitation, “Contemporary Perspectives on Social Work in Acquired Brain Injury,” has been initiated and coordinated by the International Network of Social Workers in Acquired Brain Injury (INSWABI). In introducing the issue, some space is allocated for providing definitions of traumatic brain injury (TBI) and acquired brain injury (ABI), outlining the epidemiology and global costs, and detailing the impairments and psychosocial impacts for both the person sustaining the injury and his or her family. Finally, an outline of the articles contributing to this special issue are detailed, followed by a brief discussion about the role of the INSWABI network in promoting best practice in social work within this specialty area.
《残疾与康复社会工作杂志》特刊“获得性脑损伤社会工作的当代视角”由国际获得性脑损伤社会工作者网络(INSWABI)发起和协调。在介绍这一问题时，分配了一些空间来提供创伤性脑损伤(TBI)和获得性脑损伤(ABI)的定义，概述了流行病学和全球成本，并详细说明了遭受伤害的人及其家人的损害和心理社会影响。最后，详细介绍了本期特刊的文章大纲，然后简要讨论了INSWABI网络在促进这一专业领域内社会工作最佳实践方面的作用。
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引用次数: 6
Acquired Brain Injury, Parenting, Social Work, and Rehabilitation: Supporting Parents to Support Their Children 后天性脑损伤，育儿，社会工作和康复:支持父母支持他们的孩子
Journal of social work in disability & rehabilitation
Pub Date : 2016-08-11 DOI: 10.1080/1536710X.2016.1220883
M. Holloway, L. Tyrrell
ABSTRACT Growing numbers of adults live with the consequences of acquired brain injury (ABI). Those affected frequently require medical input, rehabilitation, and social care. Individuals could suffer from a range of impairments that affect functional abilities. Limited attention has been paid to parenting with an ABI both within the social work and ABI literature. Parents with ABI present specific challenges to social workers and rehabilitationists. Case studies are used to illustrate how services can work to protect and support all parties, facilitating engagement with rehabilitation. The article concludes by considering the knowledge needed to facilitate engagement with rehabilitation and support.
越来越多的成年人生活在获得性脑损伤(ABI)的后果中。受影响的人往往需要医疗投入、康复和社会关怀。个体可能遭受一系列影响功能性能力的损伤。在社会工作和ABI文献中，对ABI父母的关注是有限的。患有ABI的父母对社会工作者和康复学家提出了特殊的挑战。案例研究用于说明服务如何保护和支持各方，促进参与康复工作。文章最后考虑了促进参与康复和支持所需的知识。
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引用次数: 6
A Clarion Call for Social Work Attention: Brothers and Sisters of Persons With Acquired Brain Injury in the United States 社会工作关注的号角:美国获得性脑损伤患者的兄弟姐妹
Journal of social work in disability & rehabilitation
Pub Date : 2016-08-11 DOI: 10.1080/1536710X.2016.1220881
C. E. Degeneffe
ABSTRACT This article presents a clarion call for increased social work attention to the needs of siblings of persons with acquired brain injury (ABI) in the United States. The article overviews how siblings are psychosocially affected, how they provide care to the injured brothers and sisters, and how they personally develop as a result of their experiences. The article highlights the fact that social workers and other professionals often overlook the needs of siblings of persons with ABI and makes an appeal for social workers to advance clinical practice and research to benefit this often neglected population.
摘要:本文提出了一个响亮的呼吁，呼吁增加社会工作对美国获得性脑损伤(ABI)患者的兄弟姐妹的需求的关注。这篇文章概述了兄弟姐妹是如何受到心理社会影响的，他们如何照顾受伤的兄弟姐妹，以及他们如何根据自己的经历发展个人。这篇文章强调了社会工作者和其他专业人士经常忽视ABI患者兄弟姐妹的需求这一事实，并呼吁社会工作者推进临床实践和研究，以造福这一经常被忽视的人群。
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引用次数: 4
Holding Resilience in Trust: Working Systemically With Families Following an Acquired Brain Injury 在信任中保持韧性:在获得性脑损伤后系统地与家庭合作
Journal of social work in disability & rehabilitation
Pub Date : 2016-08-11 DOI: 10.1080/1536710X.2016.1220882
Franca Butera-Prinzi, Nella Charles, K. Story
ABSTRACT The conceptualization of resilience following acquired brain injury needs to remain sensitive to the complex nature and enduring dimensions of trauma, loss, and stress. It is essential that a systemic and dynamic view be maintained with a focus on the key adaptation tasks that families face: grieving, restructuring, identity redefinition, and growing through adversity. These tasks are explored in a case example illustrating how these challenges reemerge across the life cycle. The key theme in this contribution is that resilience is a fluid property, a potential that practitioners and service systems can listen for, support, strengthen, and hold in trust.
获得性脑损伤后恢复力的概念需要对创伤、损失和压力的复杂性质和持久维度保持敏感。必须保持系统和动态的观点，重点关注家庭面临的关键适应任务:悲伤、重组、身份重新定义和在逆境中成长。通过一个案例来探讨这些任务，说明这些挑战如何在整个生命周期中重新出现。这篇文章的关键主题是，弹性是一种流动的特性，是从业者和服务系统可以倾听、支持、加强和信任的一种潜力。
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引用次数: 4
Describing an Early Social Work Intervention Program for Families after Severe Traumatic Brain Injury 描述严重创伤性脑损伤后家庭的早期社会工作干预计划
Journal of social work in disability & rehabilitation
Pub Date : 2016-08-11 DOI: 10.1080/1536710X.2016.1220888
G. Simpson, D. Pfeiffer, Shay Keogh, B. Lane
ABSTRACT A necessary step to evaluating practice is the accurate specification of social work interventions. Interventions delivered to 27 families with a relative with traumatic brain injury (TBI) admitted to a specialist inpatient brain injury rehabilitation service were coded (655 hr of social work services). The most frequent interventions were counseling, education, and case management. Services addressed person-oriented (65%; e.g., adjustment to hospital, adjustment to disability, family conflict) and environment-oriented (35%; e.g., transport, accommodation, finance, legal, and immigration) issues. This is the first description of a family intervention program after TBI delivered in an inpatient setting and lays the groundwork for future evaluation.
评估社会工作实践的一个必要步骤是对社会工作干预措施的准确描述。对27个有创伤性脑损伤(TBI)亲属入住专科住院脑损伤康复服务的家庭提供的干预措施进行编码(655小时的社会工作服务)。最常见的干预措施是咨询、教育和病例管理。以人为本的服务(65%;例如，适应医院、适应残疾、家庭冲突)和以环境为导向(35%;例如，交通、住宿、财务、法律和移民)问题。这是第一次描述创伤性脑损伤后在住院环境中进行的家庭干预计划，为未来的评估奠定了基础。
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引用次数: 14
Support Persons' Perceptions of Giving Vocational Rehabilitation Support to Clients With Acquired Brain Injury in Sweden. 在瑞典，支持人对给予获得性脑损伤客户职业康复支持的看法。
Journal of social work in disability & rehabilitation
Pub Date : 2016-07-01 Epub Date: 2016-09-12 DOI: 10.1080/1536710X.2016.1220880
Marie Matérne, Lars-Olov Lundqvist, Thomas Strandberg

The aim of this article is to explore the perception of being a support person for clients with acquired brain injury undergoing vocational rehabilitation. Nine support persons, identified by clients with brain injury, were interviewed. Interviews were analyzed using qualitative content analysis, resulting in 3 themes for assisting the client: commitment, adaptation, and cooperation. Within each theme, multiple dimensions were identified, reflecting the complexity of vocational rehabilitation following acquired brain injury. Commitment built on social relations is linked to sustainability of support. The included support persons' role was especially valuable in contexts where adaptation and cooperation were required.

本文的目的是探讨作为一个支持人的感知获得性脑损伤客户进行职业康复。对九名由脑损伤患者确定的支持人员进行了访谈。访谈采用定性内容分析法进行分析，得出协助客户的3个主题:承诺、适应和合作。在每个主题中，确定了多个维度，反映了获得性脑损伤后职业康复的复杂性。建立在社会关系基础上的承诺与支持的可持续性有关。所包括的支助人员的作用在需要适应和合作的情况下特别有价值。
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引用次数: 3
Mindful Connections: The Role of a Peer Support Group on the Psychosocial Adjustment for Adults Recovering From Brain Injury. 正念连接:同伴支持小组在成人脑损伤恢复期心理社会适应中的作用。
Journal of social work in disability & rehabilitation
Pub Date : 2016-07-01 Epub Date: 2016-09-12 DOI: 10.1080/1536710X.2016.1220879
Melissa Cutler, Michelle L A Nelson, Maya Nikoloski, Kerry Kuluski

How does participating in a peer support group impact an adult's psychosocial adjustment following brain injury? This question was investigated using a qualitative approach, interviewing patients recruited from an ambulatory care program. Data analysis guided by Bury's sociological framework, biographical disruption and biographical repair, revealed participants' pregroup disrupted sense of self, including subthemes related to intrinsic losses and uncertainty. Enhanced psychosocial adjustment including subthemes described participants' reorientation through shared experience. Finally, a postgroup adapted sense of self including subthemes was characterized by heightened purpose, self-awareness, and acceptance. Findings lend weight to using tailored peer interventions to optimize psychosocial adjustment for this population.

参加同伴支持小组如何影响脑损伤后成人的社会心理适应?这个问题是用定性方法调查的，采访了从门诊护理项目招募的患者。在Bury的社会学框架“传记破坏”和“传记修复”的指导下，数据分析揭示了参与者群体前自我意识的破坏，包括与内在损失和不确定性相关的子主题。增强的社会心理适应包括分主题描述了参与者通过分享经验的重新定位。最后，后群体适应的自我意识(包括子主题)的特点是目的、自我意识和接受程度的提高。研究结果为使用量身定制的同伴干预措施来优化这一人群的心理社会适应提供了依据。
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引用次数: 11
Corrigendum. 勘误表。
Journal of social work in disability & rehabilitation
Pub Date : 2016-04-01 DOI: 10.1080/1536710X.2016.1181950
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引用次数: 0
Parents’ Stress and Coping Related to Children's Use of a Cochlear Implant: A Qualitative Study 父母的压力和应对与儿童使用人工耳蜗有关:一项定性研究
Journal of social work in disability & rehabilitation
Pub Date : 2016-03-09 DOI: 10.1080/1536710X.2016.1162123
L. Anmyr, K. Larsson, Mariann Olsson
ABSTRACT The aim was to increase understanding of parents’ experiences of having a child with a cochlear implant (CI) and to explore how these related to children’s use of CI. Twelve parents of children, full-time users or limited users of CIs, participated in the study. Qualitative content analysis showed that the parents of children who used their CI differed from the parents with limited users in how they handled stressors. Support from health care professionals was seen as insufficient. Parents need to get involved in dynamic processes in which health care resources promote parental coping.
本研究的目的是增加父母对孩子植入人工耳蜗(CI)经历的理解，并探讨这些经历与儿童使用人工耳蜗的关系。12名儿童的父母，全职或有限的ci使用者参与了这项研究。定性内容分析表明，使用CI的儿童的父母与使用有限CI的儿童的父母在处理压力源方面存在差异。保健专业人员的支持被认为是不够的。父母需要参与医疗资源促进父母应对的动态过程。
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引用次数: 8
Implementation of Choice from Participants’ Perspectives: A Study of Community Mental Healthcare Reform in Sweden 参与者视角下的选择实施:瑞典社区精神卫生保健改革研究
Journal of social work in disability & rehabilitation
Pub Date : 2016-03-09 DOI: 10.1080/1536710X.2016.1162121
Maria Fjellfeldt, M. Eklund, M. Sandlund, U. Markström
ABSTRACT The aim of this study was to explore participants’ experiences and opinions about a free-choice system in relation to policy objectives articulated by the national government and local authorities. A case study was conducted. Thirty-five informants participated. Qualitative interviews were undertaken. Results are discussed on how to address different dimensions of choice, not only where, but also what, by whom, how much, and when. They also concern how to design systems that in some ways ensure predictability and continuity to avoid unwanted harm caused by the unpredictability embedded in competitive choice systems. Finally, different aspects of quality need to be addressed.
本研究的目的是探讨参与者关于自由选择制度与国家政府和地方当局所阐述的政策目标的关系的经验和意见。进行了案例研究。35名举报人参与了调查。进行了定性访谈。结果讨论了如何解决选择的不同维度，不仅是在哪里，而且是什么，由谁，多少，以及何时。它们还涉及如何设计系统，在某种程度上确保可预测性和连续性，以避免竞争选择系统中嵌入的不可预测性所造成的不必要的伤害。最后，需要解决质量的不同方面。
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