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Mental capacity and psychopathology 心理能力和精神病理学
Pub Date : 2009-12-01 DOI: 10.1016/j.mppsy.2009.09.007
Gareth S. Owen

Mental capacity is a difficult yet fundamental concept that is becoming more influential in psychiatric practice. Assessment of mental capacity for research purposes has proven possible but empirical research into this area is relatively new. I report on empirical studies that have assessed the reliability of capacity assessments and the associations with psychopathology. Such information can help to guide decision-making both at a clinician–patient level and also at a policy level. The decision-making at issue is some of the most fundamental we face in medicine.

心理能力是一个困难但基本的概念,在精神病学实践中越来越有影响力。以研究为目的的心理能力评估已被证明是可能的,但对这一领域的实证研究相对较新。我报告了一些实证研究,这些研究评估了能力评估的可靠性及其与精神病理学的关系。这些信息可以帮助指导临床患者和政策层面的决策。争论中的决策是我们在医学中面临的一些最基本的问题。
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引用次数: 3
The duty to safeguard adults from abuse 保护成年人不受虐待的责任
Pub Date : 2009-12-01 DOI: 10.1016/j.mppsy.2009.09.010
Michael C. Dunn, Anthony J. Holland, Isabel C.H. Clare

Policies and procedures for ‘adult safeguarding’ aim to protect adults against the harm posed to them by other individuals. In England, safeguarding adults from abuse is a public duty, and psychiatrists have an important role to play in upholding this duty through their involvement in this process. Here, we outline ethical, legal and social issues raised by current procedures for adult safeguarding in England and consider proposals for policy reform alongside parallel developments in the law in Scotland. Addressing these issues adequately involves (a) clarifying who will require the support of safeguarding services, (b) defining the nature of the putative harm they face, (c) determining which interventions are justifiable, and (d) ascertaining the circumstances in which these interventions can be initiated. In line with other recent developments in mental health and mental capacity law, the major challenge facing the development of adult safeguarding policy and practice is to find an appropriate balance between protection and empowerment.

“成人保护”的政策和程序旨在保护成年人免受其他人对他们造成的伤害。在英国,保护成年人不受虐待是一项公共责任,精神科医生通过参与这一过程,在维护这一责任方面发挥着重要作用。在这里,我们概述了英格兰现行成人保护程序所引起的伦理、法律和社会问题,并考虑了苏格兰法律平行发展的政策改革建议。充分解决这些问题涉及(a)澄清谁将需要保护服务的支持,(b)定义他们所面临的假定伤害的性质,(c)确定哪些干预措施是合理的,以及(d)确定可以启动这些干预措施的情况。根据最近心理健康和心理能力法的其他发展,制定成人保护政策和做法所面临的主要挑战是在保护和赋予权力之间找到适当的平衡。
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引用次数: 2
Truth-telling in psychiatry 精神病学中的实话实说
Pub Date : 2009-12-01 DOI: 10.1016/j.mppsy.2009.09.004
Richard A.A. Kanaan

Truth-telling has been part of one of the great bioethical shifts of the 20th century, from medical paternalism to respect for patient autonomy. Some argue that there are psychiatric cases where truth-telling is less necessary, however. The three standard justifications for medical deception – that the truth can be anti-therapeutic, that patients don't want to know the truth, and that telling the truth is ultimately impossible – seem to be more compelling in psychiatry, and there are additional justifications that apply when psychiatric patients lack the capacity to make their own decisions. Here, I consider those justifications, and argue that truth-telling is paramount even in psychiatry.

说实话是20世纪最大的生物伦理转变之一,从医疗家长式作风到尊重患者自主权。然而,一些人认为,在某些精神病病例中,说实话是没有必要的。医学欺骗的三个标准理由——真相可能是反治疗的,病人不想知道真相,讲真话最终是不可能的——似乎在精神病学中更有说服力,当精神病人缺乏自己做决定的能力时,还有其他的理由适用。在这里,我考虑了这些理由,并认为即使在精神病学中,说实话也是最重要的。
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引用次数: 6
Healthcare decision-making by adults with learning disabilities: ongoing agendas, future challenges 有学习障碍的成年人的医疗保健决策:正在进行的议程,未来的挑战
Pub Date : 2009-11-01 DOI: 10.1016/j.mppsy.2009.09.006
Kirsty Keywood, Margaret Flynn

This contribution reviews recent developments in the law and policy of healthcare decision-making by, with and for adults with learning disabilities. In particular, it considers the impact of the Mental Capacity Act 2005 and the reforms outlined in the Department of Health's (2005) White Paper Our Health, Our Care, Our Say: A New Direction for Community Services, and the Local Authority Circular (2008) Transforming Social Care. Pressing issues such as the concept of choice for vulnerable adults and the challenges for professionals in assessing decision-making ability are assumed within these policy frameworks. Other issues, such as the importance of creating time to engage and involve vulnerable adults in decision-making about their health, continue to present challenges for healthcare policy and practice.

这篇文章回顾了有学习障碍的成年人在医疗保健决策方面的法律和政策的最新发展。它特别考虑了《2005年精神能力法》的影响,以及卫生部(2005年)白皮书《我们的健康、我们的照料、我们的发言权:社区服务的新方向》和地方当局通告(2008年)《社会照料转型》中概述的改革。这些政策框架假定了一些紧迫的问题,如弱势成年人的选择概念和专业人员在评估决策能力方面面临的挑战。其他问题,例如创造时间让弱势成年人参与有关其健康的决策的重要性,继续给医疗保健政策和实践带来挑战。
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引用次数: 0
Learning disability (part 2): an introduction 学习障碍(第2部分):介绍
Pub Date : 2009-11-01 DOI: 10.1016/j.mppsy.2009.08.004
Angela Hassiotis
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引用次数: 0
Assessment in primary care 初级保健评估
Pub Date : 2009-11-01 DOI: 10.1016/j.mppsy.2009.08.005
Michael Kerr

For many people with learning disabilities, the presence of ill health may impair their ability to achieve the best possible quality of life. The attainment of a good standard of health (at least as good as the rest of the population) is a reasonable goal. Primary care teams are central to the provision of good-quality healthcare. This provision is based on an ability to assess, investigate and manage a range of common and complex conditions, which requires an awareness of the specific needs of this population. The expected health needs of people with learning disabilities in the community and how best to identify and address these needs are described here. These needs include improved access to health promotion, identification of common but unidentified illness and the common comorbidities of people with a learning disability such as epilepsy. The organization of care is also reviewed, in particular the need for structured care delivery through health checks.

对于许多有学习障碍的人来说,健康状况不佳可能会损害他们实现最佳生活质量的能力。达到良好的健康标准(至少与其他人口一样好)是一个合理的目标。初级保健队是提供高质量保健的核心。这笔经费的依据是有能力评估、调查和管理一系列共同和复杂的情况,这就需要了解这些人口的具体需要。这里描述了社区中学习障碍者的预期健康需求以及如何最好地确定和解决这些需求。这些需求包括改善获得健康促进服务的机会,查明常见但未查明的疾病,以及癫痫等学习障碍患者的常见合并症。还审查了护理的组织,特别是通过健康检查有组织地提供护理的必要性。
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引用次数: 2
Choices, rights and control: what service users expect from their healthcare services 选择、权利和控制:服务用户对其医疗保健服务的期望
Pub Date : 2009-11-01 DOI: 10.1016/j.mppsy.2009.08.002
Ray Jacques, Simon Stranks

Choices, rights and control are aspects of healthcare that most take for granted. For many people with a learning disability, however, these are not a reality, with them being denied choice, their rights and control over the healthcare that they are given. Following on from the Mencap report Death by Indifference, which highlighted some of the shortfalls in the provision of healthcare for people with learning disability, it was the Royal College of Psychiatrist's Service User Group's intention to look into a more personalised account of experiences of accessing healthcare services. To do this, the group garnered the views of the pan-UK membership of the group, asking them about their experiences of healthcare. We wanted them to share both good and bad practice of receiving services, and also areas such as staff attitude and how much they were listened to. From the research and consultation, it was found that, in many instances, people with learning disability who access healthcare services are denied their choices in that they are not consulted on the type of care they should expect. This is specifically true for aspects such as medication. It was also found that people with learning disability can often be denied their rights, such as the right to be treated like an adult and not be patronised, the right to privacy and to be fully informed about making decisions. The third main theme to emerge from the group's work was that people with learning disability often feel they have little-to-no control over the services they receive from healthcare professionals. The findings are that, when people are consulted and fully informed of their healthcare, it leads to good practice and better outcomes. Healthcare professionals need to make the most basic reasonable adjustments to ensure that they cover everyone's needs.

选择、权利和控制是大多数人认为理所当然的医疗保健方面的内容。然而,对于许多有学习障碍的人来说,这些都不是现实,他们被剥夺了选择、权利和对医疗保健的控制权。Mencap报告《冷漠导致死亡》强调了为学习障碍患者提供医疗保健方面的一些不足之处,随后,皇家精神病学院服务用户小组打算对获得医疗保健服务的经历进行更个性化的调查。为此,该组织收集了该组织泛英国成员的意见,询问他们的医疗保健经历。我们希望他们分享接受服务的好的和坏的做法,以及工作人员的态度和他们被倾听的程度。从研究和咨询中发现,在许多情况下,获得医疗保健服务的学习障碍者被剥夺了他们的选择,因为没有人就他们应该期待的护理类型征求他们的意见。在药物等方面尤其如此。研究还发现,有学习障碍的人往往被剥夺了他们的权利,比如被当作成年人对待、不受光顾的权利、隐私权和充分了解决策的权利。从该小组的工作中得出的第三个主题是,有学习障碍的人经常觉得他们对医疗保健专业人员提供的服务几乎没有控制权。研究结果表明,当人们被咨询并充分了解他们的医疗保健时,它会带来良好的实践和更好的结果。医疗保健专业人员需要做出最基本的合理调整,以确保它们涵盖每个人的需求。
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引用次数: 2
Life events and mental illness in people with learning disabilities 学习障碍患者的生活事件和精神疾病
Pub Date : 2009-11-01 DOI: 10.1016/j.mppsy.2009.07.005
Asit B. Biswas, Frederick G. Furniss

Specific traumas, such as abuse and bereavement, and overall extent of potentially stressful life experiences are associated with increased levels of a range of behavioural and affective difficulties in people with learning disabilities. Although causality is probably complex and variable across diagnostic groups, evidence for a causal role for life events in the incidence of mental ill-health is growing. Even salient events, however, may not be perceived by carers as relevant to emotional and behavioural disturbance. Preventative strategies including use of social stories may reduce distress when life events can be anticipated. Supportive groupwork and a number of behavioural and cognitive–behavioural interventions offer promising interventions to reduce affective and other symptoms subsequent to traumatic life events.

特定的创伤,如虐待和丧亲之痛,以及潜在压力生活经历的总体程度,与学习障碍患者一系列行为和情感困难的水平增加有关。虽然在诊断组之间的因果关系可能是复杂和可变的,但生活事件在精神疾病发病率中的因果作用的证据正在增加。然而,即使是突出的事件,也可能不会被护理人员认为与情绪和行为障碍有关。当生活事件可以预见时,包括使用社会故事在内的预防策略可能会减少痛苦。支持性小组工作和一些行为和认知行为干预措施提供了有希望的干预措施,以减少创伤性生活事件后的情感和其他症状。
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引用次数: 9
Healthcare in intellectual disabilities: Europe outside the UK 智力残疾的医疗保健:英国以外的欧洲
Pub Date : 2009-11-01 DOI: 10.1016/j.mppsy.2009.07.008
Luis Salvador-Carulla, Juan Carlos García-Gutierrez

Since the 1990s, many publications have provided a description of the status of care for persons with intellectual disability in Europe. This set of documents constitutes a unique case of international description and follow-up of care systems for intellectual disabilities in a single world region. The main information sources on care systems for persons with intellectual disability in Europe are presented with a special focus on projects funded by the European Commission during the past 15 years, which incorporate information on care systems (MEROPE, IDRESNET, POMONA, DECLOC). Following this knowledge base, a set of priorities has been identified as regards to training, care planning and provision, assessment and monitoring, empowerment and other related issues. These European projects highlight the fact that inequalities in the care of persons with intellectual disability persist to date, although these differences are decreasing particularly in Western Europe, and care reforms are also in progress in those Eastern European countries which have joined the European Union. The inequalities regarding people with intellectual disabilities exceed the differences found in other health sectors, such as adult mental health care, and therefore healthcare for people with intellectual disabilities should be placed as a main priority focus within equity of care strategies in Europe.

自20世纪90年代以来,许多出版物都提供了对欧洲智力残疾者护理状况的描述。这一套文件构成了在世界单一区域对智力残疾护理系统进行国际描述和后续行动的独特案例。介绍了欧洲智力残疾者护理系统的主要信息来源,特别关注了过去15年中由欧洲委员会资助的项目,这些项目纳入了有关护理系统的信息(MEROPE、IDRESNET、POMONA、DECLOC)。根据这个知识库,在培训、护理计划和提供、评估和监测、授权和其他相关问题方面确定了一套优先事项。这些欧洲项目突出了这样一个事实,即迄今为止在照顾智力残疾者方面仍然存在不平等现象,尽管这些差异在西欧尤其减少,而且在那些加入欧洲联盟的东欧国家,照顾改革也在进行中。智力残疾者方面的不平等现象超过了成人心理保健等其他卫生部门的差异,因此,应将智力残疾者的保健作为欧洲保健平等战略的主要优先重点。
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引用次数: 6
Poverty and the mental health of families with a child with intellectual disabilities 有智障儿童家庭的贫困与心理健康
Pub Date : 2009-11-01 DOI: 10.1016/j.mppsy.2009.08.001
Chris Hatton, Eric Emerson

Research with representative samples of children with intellectual disabilities and their parents has consistently demonstrated much higher levels of psychopathology and poorer well-being amongst both children with intellectual disabilities and their parents compared with those without intellectual disabilities. Although these differences in psychopathology are often assumed to be an inevitable consequence of the child's intellectual disability and therefore to result in an inherently stressful parenting role, here, we briefly review the research evidence for an alternative proposition, namely that poverty and socio-economic position may play an important part in the development and maintenance of psychopathology in both children with intellectual disabilities and their parents. We review evidence that families with a child with intellectual disabilities are more likely to be living in poverty, and that differences in socio-economic position between families with a child with or without intellectual disabilities can substantially account for differences in child and parent psychopathology. Potential mechanisms linking poor socio-economic position to family psychopathology are outlined, together with some brief implications for policy and practice.

对智障儿童及其父母的代表性样本进行的研究一致表明,与非智障儿童相比,智障儿童及其父母的精神病理学水平更高,幸福感更差。虽然这些精神病理的差异通常被认为是儿童智力残疾的必然结果,因此导致了固有的父母压力,但在这里,我们简要回顾了另一种命题的研究证据,即贫困和社会经济地位可能在智力残疾儿童及其父母的精神病理的发展和维持中发挥重要作用。我们回顾了有智障儿童的家庭更有可能生活在贫困中的证据,以及有智障儿童或无智障儿童的家庭之间社会经济地位的差异可以在很大程度上解释儿童和父母精神病理的差异。将社会经济地位低下与家庭精神病理学联系起来的潜在机制概述,以及对政策和实践的一些简要影响。
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引用次数: 11
期刊
Psychiatry (Abingdon, England)
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