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Research in mental health learning disabilities: present challenges and future drivers 心理健康学习障碍研究:当前挑战和未来驱动因素
Pub Date : 2009-11-01 DOI: 10.1016/j.mppsy.2009.07.004
Angela Hassiotis

Research in mental health learning disabilities has advanced significantly in recent years. Many important papers have helped to change practice and to pursue innovative ideas that cut across the nature/nurture divide. Several new journals have been launched that cover an array of subjects from basic sciences to policy and practice. The advent of evidence-based practice has been slow to develop in mental health learning disabilities but rigorous epidemiological studies and related developments such as the more precise calibration of diagnostic tools have been some of the notable outcomes. The scope of this article, written from the perspective of a clinical academic in the psychiatry of learning disability, is not to report on the whole of the research field in learning disabilities and so, inevitably, there will be important omissions. The aim is to discuss scientific enquiry as it pertains to mental health issues in this population and to consider some of the future drivers that show promise in helping to deliver high-quality care to our service users.

近年来,对心理健康学习障碍的研究取得了显著进展。许多重要的论文有助于改变实践,并寻求跨越先天/后天鸿沟的创新理念。一些新的期刊已经出版,涵盖了从基础科学到政策和实践的一系列学科。在精神健康学习障碍方面,循证实践的出现发展缓慢,但严格的流行病学研究和相关的发展,如更精确地校准诊断工具,是一些显著的成果。本文从学习障碍精神病学临床学者的角度出发,并不是要报道整个学习障碍研究领域,因此,不可避免地会有重要的遗漏。目的是讨论与这一人群的心理健康问题有关的科学研究,并考虑一些未来的驱动因素,这些因素有望帮助我们的服务用户提供高质量的护理。
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引用次数: 6
Family carers of people with learning disabilities: common themes across caring 学习障碍者的家庭照顾者:关怀的共同主题
Pub Date : 2009-11-01 DOI: 10.1016/j.mppsy.2009.07.007
Neelima Yannamani, Asif Zia, Nauman Khalil

Here, we review the role of carers in general and specifically within the learning disability services. The role of carers is recognized but not always appreciated by the healthcare services despite guidance from the Department of Health and the Royal College of Psychiatrists. Service users in learning disability have complex needs, and carers provide life-long care. Carers have reported positive and negative experiences in their caring role; however, the negative experiences of caring can be minimized by providing better support and education to the carers. The resources available to provide this support are not equally accessible to all carers, e.g. respite care. Carers will have to go through many changes in service provisions. In return for the care they provide, carers would like services to listen to them. Regular carers' needs should be assessed and person-centred support must be offered to carers by responsible services.

在这里,我们回顾一般的角色,特别是在学习障碍服务中的照顾者。尽管有卫生部和皇家精神病学院的指导,但护理人员的作用得到了承认,但并不总是得到医疗服务部门的重视。学习障碍的服务使用者有复杂的需求,护理人员提供终身护理。护理人员报告了他们在照顾角色中的积极和消极经历;然而,通过向照顾者提供更好的支持和教育,可以最大限度地减少照顾者的负面经历。并非所有护理人员都能平等地获得提供这种支持的资源,例如临时护理。护理人员将不得不经历服务条款的许多变化。作为他们提供照顾的回报,照顾者希望服务能够倾听他们的意见。应评估普通照护者的需求,并通过负责任的服务机构向照护者提供以人为本的支持。
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引用次数: 9
Epilepsy, mental health, adults with learning disability – reviewing the evidence 癫痫、精神健康、成人学习障碍——回顾证据
Pub Date : 2009-11-01 DOI: 10.1016/j.mppsy.2009.07.006
Brian Fitzgerald, Howard Ring

Epilepsy, the experience of learning disability and the experience of mental health problems frequently occur in the same individual and can cause severe disadvantage, distress and vulnerability to the individual, together with a burden of care on families or carers. The challenges posed to clinicians include unpicking the complexities involved in understanding symptoms and presentations as well as the very limited evidence-based guiding management strategies. While evidence for service provision, care giving, and specific treatments is very limited, there are some themes that emerge from a review of the literature. The evidence that does exist indicates that the combination of these experiences is common, and attention must be paid to individual circumstances if one is to effectively understand and manage problems that arise. Certain clinical scenarios lead to specific treatment choices and the most popular anti-epileptic drugs prescribed seem to have both mood stabilizing and anti-epileptic effect profiles.

癫痫、学习障碍的经历和精神健康问题的经历经常发生在同一个人身上,可能给个人造成严重的不利条件、痛苦和脆弱性,同时给家庭或照顾者带来照顾负担。临床医生面临的挑战包括理解症状和表现的复杂性,以及非常有限的循证指导管理策略。虽然有关服务提供、护理和具体治疗的证据非常有限,但从文献综述中可以得出一些主题。确实存在的证据表明,这些经验的结合是普遍的,如果一个人要有效地理解和管理出现的问题,就必须注意个人情况。某些临床情况会导致特定的治疗选择,最流行的抗癫痫药物似乎同时具有稳定情绪和抗癫痫的作用。
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引用次数: 5
Psychiatry of intellectual and developmental disability in the US: time for a new beginning 美国智力和发育障碍的精神病学:是时候重新开始了
Pub Date : 2009-11-01 DOI: 10.1016/j.mppsy.2009.08.003
Kerim M. Munir

Although psychiatry in the United States owes its origins to the treatment of persons with intellectual disabilities (ID) and developmental disabilities (DD), over the past 50 years, clinical services, education of professionals and research in psychiatry of ID have consistently lagged behind other fields in psychiatry. The historical and contemporary reasons for this development are discussed with recommendations for establishment of a fully credentialed subspecialty of Psychiatry of Intellectual and Developmental Disabilities in the United States.

尽管美国的精神病学起源于对智力障碍(ID)和发育障碍(DD)患者的治疗,但在过去的50年里,智力障碍精神病学的临床服务、专业教育和研究一直落后于精神病学的其他领域。讨论了这一发展的历史和当代原因,并建议在美国建立一个完全认可的智力和发育障碍精神病学亚专业。
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引用次数: 7
Positive behavioural support as a service system for people with challenging behaviour 积极行为支持作为一种服务系统,为有挑战性行为的人提供服务
Pub Date : 2009-10-01 DOI: 10.1016/j.mppsy.2009.07.001
David Allen

Challenging behaviours amongst people with learning disabilities are a major concern for carers, clinicians, and policy-makers. Services frequently fail to deliver optimum care practices for this user group, yet there is now considerable evidence as to what components are required to constitute an effective service. This article promotes positive behavioural support as an over-arching service model, and describes how it can help address the needs of members of this population and those who support them.

学习障碍者的挑战性行为是护理人员、临床医生和决策者关注的主要问题。服务经常不能为这一用户群体提供最佳护理实践,但现在有相当多的证据表明需要哪些组成部分才能构成有效的服务。这篇文章将积极的行为支持作为一种全面的服务模式进行推广,并描述了它如何帮助解决这一群体成员和支持他们的人的需求。
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引用次数: 25
People with learning disability, and ageing 有学习障碍的人,老年人
Pub Date : 2009-10-01 DOI: 10.1016/j.mppsy.2009.06.019
Satheesh Kumar Gangadharan, John Devapriam, Sabyasachi Bhaumik

With the increase in lifespan, age-related mental and physical health problems have become evident in people with learning disability. Owing to the heterogeneity of the population, the nature and extent of age-related changes has not been explored fully. This article describes the mental health problems in older adults with learning disabilities with a focus on dementia, and highlights current evidence-based practice. To date, the main focus of research and service initiatives related to ageing has been on dementia in Down syndrome, despite the fact that a substantial proportion of older people with learning disabilities in general suffer from a variety of health problems. Clinical practice varies considerably within UK, and the link between community learning disability teams and mental health services for older people is not well established in many areas. The clinical challenges are related to a lack of standardized assessment processes and difficulties in carrying out the full range of investigations in some cases. The recently published national guideline on dementia in people with learning disabilities has now set the expected service standards and provides an audit tool against which quality of care can be measured. It is to be hoped that this will encourage the development of a dementia care pathway, removing the barriers in access to services for older people with learning disabilities.

随着寿命的延长,与年龄相关的心理和身体健康问题在学习障碍人群中变得越来越明显。由于人口的异质性,与年龄有关的变化的性质和程度尚未得到充分探讨。这篇文章描述了老年人学习障碍的心理健康问题,重点是痴呆症,并强调了目前的循证实践。迄今为止,与老龄化有关的研究和服务举措的主要重点是唐氏综合症痴呆症,尽管有很大一部分有学习障碍的老年人普遍患有各种健康问题。临床实践在英国有很大差异,社区学习障碍小组和老年人心理健康服务之间的联系在许多地区还没有很好地建立起来。临床挑战与缺乏标准化评估程序以及在某些情况下难以进行全面调查有关。最近发布的关于学习障碍患者痴呆症的国家指南现已确定了预期的服务标准,并提供了一种可用于衡量护理质量的审计工具。希望这将鼓励痴呆症护理途径的发展,消除有学习障碍的老年人获得服务的障碍。
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引用次数: 8
Mental ill-health in adults with learning disabilities 有学习障碍的成年人的精神疾病
Pub Date : 2009-10-01 DOI: 10.1016/j.mppsy.2009.06.014
Kiran Azam, Amanda Sinai, Angela Hassiotis

A learning disability is a lifelong condition. Mental ill-health is common in people with learning disabilities, and several epidemiological studies have shown higher rates of psychiatric disorder in people with learning disabilities compared with the population as a whole. Biological, psychological, and social influences may account for this excess of mental ill-health. Presentation of symptoms differs across the range of learning disabilities. Nevertheless, there are several understudied areas, especially in the epidemiology (prevalence and incidence) of various types of mental disorder and the predictors of those disorders. Further investigation into the aetiology and course of mental ill-health may lead to better care and suitable interventions for this population.

学习障碍是一种终生的疾病。精神疾病在有学习障碍的人群中很常见,一些流行病学研究表明,与整体人口相比,有学习障碍的人群患精神疾病的比例更高。生理、心理和社会影响可解释这种过度的精神疾病。各种学习障碍的症状表现各不相同。然而,有几个研究不足的领域,特别是在各种类型精神障碍的流行病学(患病率和发病率)和这些障碍的预测因素方面。对精神疾病的病因和病程的进一步调查可能会为这一人群提供更好的护理和适当的干预措施。
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引用次数: 11
The mental health needs of people with autism spectrum disorders 自闭症谱系障碍患者的心理健康需求
Pub Date : 2009-10-01 DOI: 10.1016/j.mppsy.2009.06.016
Muthukumar Kannabiran, Jane McCarthy

Autism spectrum disorders (ASDs) are characterized by restricted, repetitive behaviour and abnormalities in social interaction and communication. A prevalence rate of ASD of up to 116/10,000 has been reported. The prevalence and range of psychiatric disorders are increased in people with ASD, including those with intellectual disability. Risk factors for psychiatric disorders in this group include genetic factors, communication problems, loneliness and low self-esteem. Mental health problems may be difficult to assess, and range from attention deficit hyperactivity disorder (ADHD) and tic disorders to psychotic and mood disorders, and catatonia. Prevalence of ADHD and tic disorders is increased in people with ASD. While the presentation of depressive and bipolar disorders may be similar to that in the general populations, depression may be associated with onset of or increase in maladaptive behaviour. In contrast to checking, cleaning or counting compulsions seen in people with obsessive–compulsive disorder (OCD), people with ASD may engage in repeating, hoarding, touching and tapping behaviour. ASD has been proposed as a non-specific neurodevelopmental marker for childhood-onset schizophrenia and it is recognized that psychotic symptoms may be difficult to establish in the presence of ASD. Interestingly, catatonia has been reported in up to 17% of young people with ASD referred to a national centre. It is important to disseminate available evidence on psychiatric treatment for people with ASD, while recognizing the need for further research on treatment and outcome measures.

自闭症谱系障碍(ASDs)的特点是限制,重复的行为和社会互动和沟通异常。据报道,自闭症的患病率高达116/10,000。在自闭症谱系障碍患者中,包括智力障碍患者,精神疾病的患病率和范围都在增加。这一群体精神疾病的风险因素包括遗传因素、沟通问题、孤独和自卑。精神健康问题可能很难评估,其范围从注意缺陷多动障碍(ADHD)和抽动障碍到精神病和情绪障碍以及紧张症。ADHD和抽动障碍的患病率在ASD患者中增加。虽然抑郁症和双相情感障碍的表现可能与一般人群相似,但抑郁症可能与适应不良行为的发生或增加有关。与强迫症(OCD)患者的检查、清洁或计数强迫症不同,ASD患者可能会有重复、囤积、触摸和轻敲行为。ASD被认为是儿童精神分裂症发病的非特异性神经发育标志物,并且人们认识到,在ASD存在的情况下,精神病症状可能难以确定。有趣的是,据报道,多达17%的ASD年轻人被转到国家中心。重要的是要传播对自闭症患者进行精神治疗的现有证据,同时认识到需要进一步研究治疗和结果措施。
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引用次数: 21
Psychotherapeutic interventions in learning disability: focus on cognitive behavioural therapy and mental health 学习障碍的心理治疗干预:重点是认知行为治疗和心理健康
Pub Date : 2009-10-01 DOI: 10.1016/j.mppsy.2009.06.018
Paul Willner

Cognitive behavioural therapy (CBT) assumes that psychological disorders are characterized by distorted or dysfunctional thinking, and can be treated by working with the patient to modify thinking in the direction of more realistic or adaptive evaluations of events. CBT has been evaluated extensively and is now the first-line treatment of choice for many psychological disorders. It is increasingly being used with people with learning disabilities, although the evidence base with this population is relatively weak, consisting largely of case studies and case series. There are also controlled trials in anger and depression, for which all published studies report significant clinical improvements that are well maintained over 3–6-month follow-up periods. There are many barriers to engagement with CBT for people with learning disabilities, which reflect limitations of ability and motivation. The limitations of ability reflect the fact that people with learning disabilities have to cope with cognitive deficits in addition to the cognitive distortions that are the target of CBT interventions. If barriers to treatment are recognized, significant steps can be taken to increase accessibility by adapting the therapy. Adaptations include involving carers, simplifications of the delivery of therapy (e.g. by using simple language and a slower pace), and simplifications of the model (e.g. by the therapist adopting a more directive, less collaborative, approach). If the current policy of increasing access to psychological therapies is extended to people with learning disabilities, it is likely that evidence will also accrue to support the use of other psychotherapeutic approaches.

认知行为疗法(CBT)认为,心理障碍的特征是思维扭曲或功能失调,可以通过与患者一起调整思维,使其对事件进行更现实或适应性的评估来治疗。CBT已被广泛评估,现在是许多心理障碍的首选一线治疗方法。它越来越多地被用于有学习障碍的人,尽管这一人群的证据基础相对薄弱,主要由案例研究和案例系列组成。在愤怒和抑郁方面也有对照试验,所有已发表的研究都报告了显著的临床改善,并在3 - 6个月的随访期内保持良好。有学习障碍的人参与CBT有许多障碍,这反映了能力和动机的局限性。能力的限制反映了这样一个事实,即学习障碍患者除了认知扭曲之外,还必须应对认知缺陷,这是CBT干预的目标。如果认识到治疗的障碍,就可以采取重大步骤,通过调整治疗方法来提高可及性。适应包括让护理人员参与进来,简化治疗的提供(例如通过使用简单的语言和较慢的节奏),以及简化模型(例如通过治疗师采用更直接,更少合作的方法)。如果目前增加心理治疗机会的政策扩展到有学习障碍的人,很可能也会有证据支持使用其他心理治疗方法。
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引用次数: 19
Mental health and behavioural problems in children and adolescents with learning disabilities 有学习障碍的儿童和青少年的心理健康和行为问题
Pub Date : 2009-10-01 DOI: 10.1016/j.mppsy.2009.06.017
Sarah H. Bernard

Epidemiological studies confirm that children and adolescents with learning disabilities are at risk of developing a range of mental health or behavioural problems. The presentation of these problems is complicated by a variety of factors including the child's level of cognitive functioning, diagnostic overshadowing, and psychiatric comorbidities. Expert multidisciplinary assessment is required in order to understand the underlying aetiology of the child's problems and the nature of any psychopathological processes. Appropriate interventions can then be planned and implemented. Child and adolescent mental health services and commissioners need to ensure that a comprehensive package of services is developed for this group of children as any unassessed and untreated problems are likely to have a significant impact on the quality of the child's life and the lives of family members and carers.

流行病学研究证实,有学习障碍的儿童和青少年面临出现一系列精神健康或行为问题的风险。这些问题的表现因多种因素而变得复杂,包括儿童的认知功能水平、诊断阴影和精神合并症。为了了解儿童问题的潜在病因和任何精神病理过程的性质,需要专家进行多学科评估。然后就可以计划和实施适当的干预措施。儿童和青少年心理健康服务机构和专员需要确保为这一儿童群体制定全面的一揽子服务,因为任何未经评估和未经治疗的问题都可能对儿童的生活质量以及家庭成员和照顾者的生活质量产生重大影响。
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引用次数: 3
期刊
Psychiatry (Abingdon, England)
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