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Early Experiences of Parents of Children who are Deaf or Hard of Hearing: Navigating through Identification, Intervention, and Beyond. 聋人或重听儿童家长的早期经历:聋儿或重听儿童家长的早期经历:在识别、干预和超越过程中的导航》(Navigating through Identification, Intervention, and Beyond.
Pub Date : 2023-01-01 DOI: 10.26077/6d9d-06f3
Gabriella Reynolds, Krystal L Werfel, Morgan Vachio, Emily A Lund

Guidelines created by the American Academy of Pediatrics ([AAP], 2010) and the Joint Committee on Infant Hearing ([JCIH], 2019) were designed to aid in the early identification of infant hearing loss. Despite these guidelines, a quarter of children who do not pass their initial screening are lost to the follow-up process and many more do not receive care in line with the 1-3-6 guidelines (Centers for Disease Control and Prevention [CDC], 2018; JCIH, 2019). To acquire more information about the experiences of families and identify specific barriers to timely diagnosis and intervention, interviews were conducted with 13 parents of children who are deaf or hard of hearing whose children were enrolled in a larger longitudinal study. These interviews revealed common themes regarding delayed identification, frustrations about timely intervention, and confusion when choosing communication modalities. Common themes amongst families who felt well-supported were also identified.

美国儿科学会([AAP],2010 年)和婴儿听力联合委员会([JCIH],2019 年)制定的指导方针旨在帮助早期识别婴儿听力损失。尽管制定了这些指南,但仍有四分之一未通过初次筛查的儿童失去了后续治疗的机会,还有更多的儿童没有得到符合 1-3-6 指南的治疗(美国疾病控制和预防中心 [CDC],2018 年;JCIH,2019 年)。为了获得更多有关家庭经历的信息,并找出妨碍及时诊断和干预的具体障碍,我们对 13 位聋儿或重听儿童的家长进行了访谈,他们的孩子都参加了一项大型纵向研究。这些访谈揭示了有关延迟识别、对及时干预的失望以及在选择交流方式时的困惑等共同主题。此外,还发现了感到得到良好支持的家庭的共同主题。
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引用次数: 0
Assessing Impact of COVID-19 Pandemic on Receipt and Timeliness of Newborn Hearing Screening and Diagnostic Services Among Infants Born in Four States. 评估 COVID-19 大流行对四个州出生婴儿接受新生儿听力筛查和诊断服务及其及时性的影响。
Pub Date : 2022-01-01 DOI: 10.26077/05f5-2ffc
Suhana Ema, Sana Charania, Xidong Deng, Charles Rose, Craig A Mason, Marcus Gaffney, Brandt Culpepper, Michael Lo, Tri Tran, Kirsten Coverstone, Marcia Fort

The study compares receipt and timeliness of newborn hearing screening and follow-up diagnostic services between the pre-pandemic birth cohort and the pandemic birth cohort in four participating states. Findings from this study will help inform state Early Hearing Detection and Intervention (EHDI) programs in the future should a major public health event occur again.

该研究比较了四个参与州的大流行前出生队列和大流行后出生队列的新生儿听力筛查和后续诊断服务的接受情况和及时性。这项研究的结果将有助于在未来再次发生重大公共卫生事件时为各州的早期听力检测和干预 (EHDI) 计划提供参考。
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引用次数: 0
Likely Impact of the COVID-19 Pandemic on Newborn Hearing Screening and Follow-up Services in the United States in 2020. COVID-19 大流行对 2020 年美国新生儿听力筛查和随访服务的可能影响》(Likely Impact of the COVID-19 Pandemic on Newborn Hearing Screening and Follow-up Services in the United States in 2020)。
Pub Date : 2022-01-01 DOI: 10.26077/bdtm-7v57
Kelly Dundon, Suhana Ema, Xidong Deng, Mia Morrison, Treeby Brown, Karl White, Linda Hazard, Marcia Fort, Kirsten Coverstone, Craig A Mason, Marcus Gaffney

This perspective aims to highlight aspects of the Early Hearing Detection and Intervention (EHDI) newborn hearing screening and follow-up processes that were impacted by the COVID-19 pandemic and considers factors that likely impacted follow-up after failing newborn hearing screening among infants born in the United States during 2020. Efforts to minimize the potential impact of missed or delayed identification of hearing loss in infants and young children will also be discussed to help guide future program improvement activities.

本视角旨在强调早期听力检测和干预(EHDI)新生儿听力筛查和随访过程中受 COVID-19 大流行影响的方面,并考虑 2020 年期间在美国出生的婴儿中新生儿听力筛查失败后可能影响随访的因素。此外,还将讨论如何努力将婴幼儿听力损失漏诊或延迟识别的潜在影响降至最低,以帮助指导未来的计划改进活动。
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引用次数: 0
Language Growth in Children with Mild to Severe Hearing Loss who Received Early Intervention by 3 Months or 6 Months of Age. 在 3 个月或 6 个月之前接受早期干预的轻度至重度听力损失儿童的语言发育情况。
Pub Date : 2022-01-01 DOI: 10.26077/e97b-7add
Elizabeth A Walker, Caitlin Ward, Jacob Oleson, Caitlin Sapp, Ryan W McCreery, J Bruce Tomblin, Mary P Moeller

Purpose: To evaluate the impact of hearing screening, diagnosis, and early intervention (EI) by 3 months or 6 months of age on language growth trajectories for children with hearing loss (HL) relative to children with normal hearing (NH).

Method: We recruited 133 children with mild to severe HL through universal newborn hearing screening records and referrals from audiologists in the United States and 116 children with NH who served as a comparison group. Examiners administered a battery of developmentally appropriate language measures between 12 months and 8 years of age. We constructed latent growth curve models of global language, grammar, and vocabulary using Bayesian statistics.

Results: Children with HL demonstrated no significant differences in initial language skills compared to children with NH. Children in the 1-3-6 group also showed no difference in language growth compared to children with NH. The slope for the 1-2-3 group was significantly steeper than children with NH for global language and grammar.

Conclusions: This study documents the positive impact of EI on language outcomes in children with congenital HL. It is among the first to provide evidence to support the potential effects of very early intervention by 3 months of age.

目的:评估3个月或6个月时进行听力筛查、诊断和早期干预(EI)对听力损失(HL)儿童相对于听力正常(NH)儿童的语言成长轨迹的影响:我们通过美国通用新生儿听力筛查记录和听力学家的转介,招募了 133 名轻度至重度听力损失儿童,并招募了 116 名听力正常儿童作为对比组。检查人员对 12 个月至 8 岁的儿童进行了一系列适合其发展的语言测量。我们使用贝叶斯统计法构建了全局语言、语法和词汇的潜在增长曲线模型:与 NH 儿童相比,HL 儿童的初始语言技能没有明显差异。与 NH 儿童相比,1-3-6 组的儿童在语言成长方面也没有差异。1-2-3 组儿童在全局语言和语法方面的斜率明显高于 NH 儿童:本研究记录了幼儿教育对先天性 HL 患儿语言成果的积极影响。该研究是首批提供证据支持 3 个月大早期干预潜在效果的研究之一。
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引用次数: 0
Visual Reinforcers Designed for Children with Developmental Disabilities. 为发育障碍儿童设计的视觉强化物。
Pub Date : 2021-01-01 DOI: 10.26077/b0fc-4c2d
Angela Yarnell Bonino, Amanda Hemann, Deborah Mood, Emily Kay, Elizabeth S Pancoast, Kristin K Sommerfeldt
A library of visual reinforcers has been created to facilitate visual reinforcement audiometry (VRA) testing in children with developmental disabilities. The library includes 45 reinforcer sets-photos or videos grouped by a common theme-that were created based on commonly reported interests of children with developmental disabilities. Each reinforce set contains a minimum of 20 unique photo or video files that can be downloaded in two formats: one for commercially available VRA reinforcement systems and another for a custom setup. The library is freely available for download online under a Creative Commons License (Creative Commons Attribution-NonCommercial 4.0 International License). Use of these materials has the potential to improve behavioral testing outcomes for children with developmental disabilities, including children with restricted interests. Future research is needed to determine the effectiveness of implementing these materials in clinical settings.
建立了一个视觉强化物库,以方便在发育障碍儿童中进行视觉强化听力学测试。该图书馆包括45组强化集——按共同主题分组的照片或视频——是根据普遍报道的发育障碍儿童的兴趣创建的。每个加固集包含至少20个独特的照片或视频文件,可以以两种格式下载:一种用于商用VRA加固系统,另一种用于自定义设置。该库在知识共享许可(知识共享署名-非商业4.0国际许可)下可免费在线下载。使用这些材料有可能改善发育障碍儿童的行为测试结果,包括兴趣受限的儿童。未来的研究需要确定在临床环境中实施这些材料的有效性。
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引用次数: 0
Audiologist Perception on Reporting Hearing Assessment Results to State Early Hearing Detection and Intervention Programs. 听力学家对向国家早期听力检测和干预计划报告听力评估结果的看法。
Pub Date : 2021-01-01 DOI: 10.26077/df10-2c4d
Winnie Chung, Maria C Sanchez-Gomez

Purpose: To describe an evaluation conducted by 39 state Early Hearing Detection and Intervention (EHDI) programs on the reporting process and system usability for audiologists when reporting the hearing test results to the EHDI program and the barriers encountered during reporting.

Method: Each author independently extracted numbers, percentages, and texts from the evaluation reports into an Excel spreadsheet, which then became the dataset. Authors then compared and cross-checked the datasets before coding. Texts conveying similar concepts were coded with the same name and organized into categories. Finally, thematic identification and analysis were performed when a theme(s) or concept(s) that pertained to similar challenges encountered by audiologists was identified and organized under a higher-order domain.

Results: Some audiologists reported no barriers when reporting hearing test results to the state EHDI programs. Among those audiologists who reported barriers, the most recurrent barrier was a non-user-friendly data system design. The second most recurrent barrier was not having adequate administrative time to report data as a busy clinician. The third most recurrent barrier was an incomplete understanding of the state EHDI reporting requirements. Finally, the method audiologists were required to use when reporting results also posed some challenges, such as no internet connection in rural areas when required to report via an internet portal.

Conclusion: Because of the wide variety of barriers faced by audiologists, multiple strategies to improve the reporting process would likely be beneficial.

目的:描述39个州的早期听力检测和干预(EHDI)项目对听力学家在向EHDI项目报告听力测试结果时的报告过程和系统可用性以及报告过程中遇到的障碍进行的评估。方法:每位作者将评估报告中的数字、百分比和文本独立提取到Excel电子表格中,然后将其作为数据集。然后,作者在编码之前对数据集进行了比较和交叉检查。传达相似概念的文本用相同的名称编码,并按类别组织。最后,当与听力学家遇到的类似挑战有关的主题或概念被识别并组织在一个更高阶域下时,就进行了主题识别和分析。结果:一些听力学家在向州EHDI项目报告听力测试结果时报告没有障碍。在那些报告障碍的听力学家中,最常见的障碍是非用户友好的数据系统设计。第二个最经常出现的障碍是,作为一名繁忙的临床医生,没有足够的管理时间来报告数据。第三个最经常出现的障碍是对州EHDI报告要求的不完全理解。最后,听力学家在报告结果时被要求使用的方法也带来了一些挑战,例如在农村地区,当需要通过互联网门户进行报告时,没有互联网连接。结论:由于听力学家面临着各种各样的障碍,改进报告过程的多种策略可能是有益的。
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引用次数: 0
Beliefs and Self-Efficacy of Parents of Young Children with Hearing Loss. 失聪幼儿父母的信念与自我效能感。
Sophie E Ambrose, Margo Appenzeller, Alexandra Mai, Jean L DesJardin

The purpose of this study was to learn more about the beliefs and self-efficacy of parents of young children with hearing loss. Seventy-two parents completed the Scale of Parental Involvement and Self-Efficacy-Revised (SPISE-R), which queries parents about their child's hearing device use and their perceptions of their own beliefs, knowledge, confidence, and actions pertaining to supporting their child's auditory access and spoken language development. Two beliefs were identified that related to parents' action scores and one belief was identified that related to children's hearing device use. Knowledge and confidence scores were significantly correlated with action scores and children's hearing device use, whereas only confidence scores were related to scores on a measure of children's spoken language abilities. Results indicate the SPISE-R is a promising tool for use in early intervention to better understand parents' strengths and needs pertaining to supporting their young child's auditory access and spoken language development.

本研究的目的是了解听力损失幼儿父母的信念和自我效能感。72位家长完成了父母参与和自我效能量表-修订(SPISE-R),该量表询问家长孩子的听力设备使用情况,以及他们对自己的信念、知识、信心和行动的看法,这些都与支持孩子的听觉接触和口语发展有关。两个信念被确定与父母的行动得分有关,一个信念被确定与儿童的助听器使用有关。知识和信心得分与行动得分和儿童助听器的使用显著相关,而只有信心得分与儿童口语能力的得分相关。结果表明,SPISE-R是一种很有前途的工具,用于早期干预,以更好地了解父母在支持幼儿听觉访问和口语发展方面的优势和需求。
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引用次数: 0
Beliefs and Self-Efficacy of Parents of Young Children with Hearing Loss. 幼儿听力损失父母的信念与自我效能感。
Pub Date : 2020-05-01 DOI: 10.26077/KKKH-VJ55
Sophie E. Ambrose, Margo Appenzeller, Alexandra Mai, Jean Desjardin
The purpose of this study was to learn more about the beliefs and self-efficacy of parents of young children with hearing loss. Seventy-two parents completed the Scale of Parental Involvement and Self-Efficacy-Revised (SPISE-R), which queries parents about their child's hearing device use and their perceptions of their own beliefs, knowledge, confidence, and actions pertaining to supporting their child's auditory access and spoken language development. Two beliefs were identified that related to parents' action scores and one belief was identified that related to children's hearing device use. Knowledge and confidence scores were significantly correlated with action scores and children's hearing device use, whereas only confidence scores were related to scores on a measure of children's spoken language abilities. Results indicate the SPISE-R is a promising tool for use in early intervention to better understand parents' strengths and needs pertaining to supporting their young child's auditory access and spoken language development.
本研究的目的是了解听力损失幼儿父母的信念和自我效能。72名父母完成了父母参与和自我效能量表修订版(SPISE-R),该量表询问父母对孩子听力设备的使用情况,以及他们对自己的信仰、知识、信心和行动的看法,这些都与支持孩子的听觉和口语发展有关。两种信念与父母的行动得分有关,一种信念与儿童的听力设备使用有关。知识和信心得分与动作得分和儿童听力设备使用显著相关,而只有信心得分与儿童口语能力的测量得分相关。结果表明,SPISE-R是一种很有前途的工具,可用于早期干预,以更好地了解父母在支持幼儿听觉通路和口语发展方面的优势和需求。
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引用次数: 14
Using Technology to Monitor Hearing Device Use and Linguistic Environments: Early Intervention Providers' Perspectives. 使用技术监测听力设备使用和语言环境:早期干预提供者的观点。
Margo C Appenzeller, Sophie E Ambrose

To improve outcomes for children with hearing loss, early intervention professionals must work with families to optimize children's hearing device use and the linguistic and auditory features of children's environments. Two technologies with potential use in monitoring these domains are data logging and Language Environment Analysis (LENA) technology. This study, which surveyed early intervention providers, had two objectives: (a) to determine whether providers' experiences, perspectives, and current practices indicated there was a need for tools to better monitor these domains, and (b) to gain a better understanding of providers' experiences with and perspectives on use of the two technologies. Most providers reported that they used informal, subjective methods to monitor functioning in the two domains and felt confident that their methods allowed them to know how consistently children on their caseloads were wearing their hearing devices and what their environments were like between intervention visits. Although most providers reported limited personal experience with accessing data logging information and with LENA technology, many reported receiving data logging information from children's audiologists. Providers generally believed access to the technologies could be beneficial, but only if coupled with proper funding for the technology, appropriate training, and supportive administrative policies.

为了改善听力损失儿童的预后,早期干预专业人员必须与家庭合作,优化儿童助听器的使用以及儿童环境的语言和听觉特征。在监测这些领域方面具有潜在用途的两种技术是数据记录和语言环境分析(LENA)技术。这项研究调查了早期干预提供者,有两个目标:(a)确定提供者的经验、观点和当前实践是否表明需要工具来更好地监测这些领域,(b)更好地理解提供者使用这两种技术的经验和观点。大多数提供者报告说,他们使用非正式的、主观的方法来监测这两个领域的功能,并确信他们的方法使他们能够了解他们的病例中儿童佩戴助听器的一致性,以及在干预访问之间他们的环境是什么样的。尽管大多数提供者报告在访问数据记录信息和使用LENA技术方面的个人经验有限,但许多提供者报告从儿童听力学家那里获得数据记录信息。提供者普遍认为,获得这些技术可能是有益的,但前提是要有适当的技术资金、适当的培训和支持性的管理政策。
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引用次数: 0
Using Technology to Monitor Hearing Device Use and Linguistic Environments: Early Intervention Providers' Perspectives. 使用技术监测听力设备使用和语言环境:早期干预提供者的观点。
Pub Date : 2020-01-01 DOI: 10.26077/XFZS-4831
Margo Appenzeller, Sophie E. Ambrose
To improve outcomes for children with hearing loss, early intervention professionals must work with families to optimize children's hearing device use and the linguistic and auditory features of children's environments. Two technologies with potential use in monitoring these domains are data logging and Language Environment Analysis (LENA) technology. This study, which surveyed early intervention providers, had two objectives: (a) to determine whether providers' experiences, perspectives, and current practices indicated there was a need for tools to better monitor these domains, and (b) to gain a better understanding of providers' experiences with and perspectives on use of the two technologies. Most providers reported that they used informal, subjective methods to monitor functioning in the two domains and felt confident that their methods allowed them to know how consistently children on their caseloads were wearing their hearing devices and what their environments were like between intervention visits. Although most providers reported limited personal experience with accessing data logging information and with LENA technology, many reported receiving data logging information from children's audiologists. Providers generally believed access to the technologies could be beneficial, but only if coupled with proper funding for the technology, appropriate training, and supportive administrative policies.
为了改善听力损失儿童的预后,早期干预专业人员必须与家庭合作,优化儿童助听器的使用以及儿童环境的语言和听觉特征。在监测这些领域方面具有潜在用途的两种技术是数据记录和语言环境分析(LENA)技术。这项研究调查了早期干预提供者,有两个目标:(a)确定提供者的经验、观点和当前实践是否表明需要工具来更好地监测这些领域,(b)更好地理解提供者使用这两种技术的经验和观点。大多数提供者报告说,他们使用非正式的、主观的方法来监测这两个领域的功能,并确信他们的方法使他们能够了解他们的病例中儿童佩戴助听器的一致性,以及在干预访问之间他们的环境是什么样的。尽管大多数提供者报告在访问数据记录信息和使用LENA技术方面的个人经验有限,但许多提供者报告从儿童听力学家那里获得数据记录信息。提供者普遍认为,获得这些技术可能是有益的,但前提是要有适当的技术资金、适当的培训和支持性的管理政策。
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引用次数: 1
期刊
Journal of early hearing detection and intervention
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