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Speech-language pathologists’ experience with nursing initiated texture modified diets in health care settings 言语病理学家在医疗机构中使用护理人员发起的改良口感饮食的经验
Pub Date : 2024-06-03 DOI: 10.3233/acs-240002
Naomi Gurevich, Danielle R. Osmelak
BACKGROUND: Texture modified diets (TMDs) are among the most widely used compensatory measures for managing dysphagia. TMDs are associated with significant risks involving nutrition, hydration, and quality of life. Speech-language pathologists (SLPs) are trained to evaluate and treat people with dysphagia and to assess client-specific appropriateness of TMDs. However, patients are regularly placed on TMDs by nursing staff without formal training in dysphagia and without SLP consult (Gurevich et al., 2021). OBJECTIVE: This study explores the experience of SLPs in health care with respect to such nursing initiated TMDs with the goal of assessing the prevalence of this practice. METHOD: SLP students, clinical fellows, and practicing clinicians (N = 503) were surveyed regarding their exposure to the nursing initiated TMD practice. RESULTS: Overall, 78.9% of respondents have directly encountered the nursing initiated TMD practice, with an additional 10% having heard of it. The group most susceptible to this practice, the certified clinicians who work with dysphagia alongside nurses (n = 461), had a higher rate of directly encountering this practice (82.2%). Among these, the early career clinicians (n = 104) had an even higher direct encounter rate at 87.5%. CONCLUSIONS: Findings show that nursing initiated TMDs are pervasive in United States (U.S.) health care, and SLPs are shown to regularly face this issue in their work settings as soon as they enter the workforce. Given negative outcomes associated with TMDs, patient care would be best served if decisions to implement TMDs were made by personnel with training in dysphagia.
背景:质地改良饮食(TMD)是治疗吞咽困难最广泛使用的补偿措施之一。TMD 与营养、水合和生活质量方面的重大风险相关。言语病理学家 (SLP) 接受过培训,能够评估和治疗吞咽困难患者,并根据患者的具体情况评估 TMD 的适宜性。然而,未经吞咽困难方面正规培训的护理人员却经常让患者使用 TMD,也没有向语言病理学家咨询(Gurevich 等人,2021 年)。目的:本研究探讨了SLPs在医疗保健领域对此类由护理人员发起的TMD的经验,旨在评估这种做法的普遍性。方法:对SLP学生、临床研究员和执业临床医生(N = 503)进行了调查,了解他们对护理引发的TMD实践的接触情况。结果:总体而言,78.9% 的受访者直接接触过由护理人员发起的 TMD 实践,另有 10% 的受访者听说过这种实践。最容易受到这种做法影响的群体是与护士一起从事吞咽困难工作的认证临床医师(n = 461),他们直接遇到这种做法的比例较高(82.2%)。其中,早期职业临床医生(n = 104)的直接接触率更高,达到 87.5%。结论:研究结果表明,护理引发的 TMD 在美国医疗保健领域十分普遍,SLPs 一进入职场就会在工作环境中经常遇到这个问题。考虑到与 TMD 相关的负面结果,如果由受过吞咽困难培训的人员来决定是否实施 TMD,将最有利于患者护理。
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引用次数: 0
Cough effectiveness during airway invasion in adults with oropharyngeal dysphagia: A systematic review of literature 患有口咽吞咽困难的成人在气道入侵时的咳嗽效果:文献系统性综述
Pub Date : 2024-06-03 DOI: 10.3233/acs-230012
Rubab Alhussainy, Chiara Bertolini, C. Kenny
BACKGROUND: Cough and swallowing share common neuroanatomic pathways, leading to an overlap between their mechanisms. Despite the widely recognised role of cough as an airway defence mechanism, empirical evidence supporting its effectiveness for airway clearance is lacking. OBJECTIVE: This review summarises and appraises available evidence regarding the effectiveness of cough in response to airway penetration and/or aspiration during videofluoroscopic swallow study (VFSS) or flexible endoscopic evaluation of swallowing (FEES) in adults with oropharyngeal dysphagia (OD) of any aetiology. METHODS: The Preferred Reporting Items for Systematic Review and Meta-Analysis guidelines were followed. Literature search was conducted in March 2023 and updated in March 2024 across six databases without publication status, language, or date restrictions. Two independent reviewers performed screening, with disagreements resolved through consensus and majority vote. The principal investigator conducted data extraction and quality appraisal using the Downs and Black checklist. RESULTS: Of 6,049 studies retrieved, 25 met the eligibility criteria. Due to heterogeneous reporting, a summary of participant demographics could not be compiled. Absence of a standardised method for measuring cough effectiveness meant meta-analysis was impossible. Nonetheless, an effective cough response to penetration/aspiration was noted for some participants within 17 studies, ineffective cough responses for some within 17 studies, while one study reported a partially effective cough response for participants. CONCLUSIONS: Robust evidence on cough effectiveness is lacking due to study heterogeneity and inconsistent reporting. Developing a standardised tool to assess cough effectiveness would ensure consistency and comparability across studies, improving clinical reporting of VFSS and FEES outcomes.
背景:咳嗽和吞咽具有共同的神经解剖路径,这导致了两者机制的重叠。尽管咳嗽作为气道防御机制的作用已得到广泛认可,但支持其有效清除气道的实证证据仍然缺乏。目的:本综述总结并评估了在对任何病因的成人口咽吞咽困难(OD)患者进行视频荧光吞咽检查(VFSS)或柔性内窥镜吞咽评估(FEES)时,针对气道穿透和/或吸入进行咳嗽的有效性的现有证据。方法:遵循《系统综述和元分析首选报告项目》指南。文献检索于 2023 年 3 月在六个数据库中进行,并于 2024 年 3 月更新,无出版状态、语言或日期限制。由两名独立审稿人进行筛选,并通过协商一致和多数票解决分歧。主要研究者使用唐斯和布莱克核对表进行数据提取和质量评估。结果:在检索到的 6049 项研究中,有 25 项符合资格标准。由于报告内容不尽相同,因此无法汇总参与者的人口统计数据。由于缺乏衡量咳嗽有效性的标准化方法,因此无法进行荟萃分析。尽管如此,在 17 项研究中,一些参与者对穿刺/吸气的咳嗽反应有效,而在 17 项研究中,一些参与者的咳嗽反应无效,还有一项研究报告称参与者的咳嗽反应部分有效。结论:由于研究的异质性和报告的不一致性,目前还缺乏有关咳嗽有效性的有力证据。开发一种评估咳嗽有效性的标准化工具可确保不同研究之间的一致性和可比性,从而改进 VFSS 和 FEES 结果的临床报告。
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引用次数: 0
Speech and language therapy services for autistic children in Munster: An interpretative phenomenological analysis of parental experiences and expectations 明斯特自闭症儿童的言语和语言治疗服务:对家长经验和期望的解释性现象学分析
Pub Date : 2024-04-16 DOI: 10.3233/acs-230010
David O'Shea, Dominika Lisiecka, Patrick McGarty
BACKGROUND: From a medical perspective, autism is characterised by a dyad of impairments in social communication and interaction, and restricted, repetitive behaviours. However, the neurodiversity movement sees autism as a difference and not as a disability. Autistic individuals account for 1–2% of the population and many autistic children and their families access Speech & Language Therapy (SLT). In Ireland, SLT is provided across primary care, childrens’ disability network teams, as part of the progressing disability services for children and young people, and private providers. However, little is known about parents’ experiences accessing SLT services for autistic children. METHODS: This study aimed to investigate the parental experiences of SLT services for autistic children in the province of Munster, Ireland. Interpretative Phenomenological Analysis was used as a methodological framework. Semi-structured online interviews were carried out with six participants to identify their experiences of receiving SLT services for their autistic children. Data analysis followed a structured process, starting with in-depth explorations of individual datasets before cross-case analysis of the whole sample. FINDINGS: Participants expressed a variety of experiences and expectations of SLT provision, which centred on three thematic journeys: 1) Parenting an autistic child, 2) Experiencing and navigating SLT services for autistic children and 3) Evolving expectations of SLT service changes. CONCLUSIONS: Findings provide insight into parents’ individual and shared experiences of SLT services for autistic children, which may enrich service providers’ understanding of parents’ perceptions of SLT services. Future research should focus on exploring the experiences of autistic individuals and Speech and Language Therapists providing services for autistic children.2
背景:从医学角度看,自闭症的特征是社会交流和互动方面的双重障碍,以及局限性和重复性行为。然而,神经多样性运动认为自闭症是一种差异,而非残疾。自闭症患者占总人口的 1-2%,许多自闭症儿童及其家人都接受过言语和语言治疗(SLT)。在爱尔兰,作为儿童和青少年残疾服务进展的一部分,言语和语言治疗在初级保健、儿童残疾网络团队以及私人提供者中提供。然而,人们对自闭症儿童家长获得 SLT 服务的经历知之甚少。方法:本研究旨在调查爱尔兰明斯特省的自闭症儿童家长在接受 SLT 服务时的经历。采用解释性现象学分析作为方法框架。研究人员对六名参与者进行了半结构化在线访谈,以了解他们为自闭症儿童接受 SLT 服务的经历。数据分析遵循结构化流程,首先对单个数据集进行深入探讨,然后对整个样本进行交叉分析。研究结果参与者对 SLT 的提供表达了各种不同的体验和期望,这些体验和期望集中在三个主题历程上:1) 养育自闭症儿童,2) 体验和驾驭自闭症儿童的辅助治疗服务,3) 对辅助治疗服务变化的不断发展的期望。结论:研究结果提供了家长对自闭症儿童辅助治疗服务的个人和共同经历的见解,可丰富服务提供者对家长对辅助治疗服务看法的理解。今后的研究应侧重于探索自闭症患者和为自闭症儿童提供服务的言语和语言治疗师的经历。
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引用次数: 0
“You’ll find most people who got involved with the Café couldn’t do without it now” – Socialising in an online versus in-person Aphasia Café "你会发现大多数参加过咖啡馆活动的人现在都离不开它"--网上与现场失语症咖啡馆的社交活动
Pub Date : 2024-03-23 DOI: 10.3233/acs-230006
Shauna Bell, Andrea Horgan, Helen Kelly
BACKGROUND: People with Aphasia (PwA) experience detrimental consequences post-stroke which can result in limited opportunities for social engagement and poor psychosocial ramifications. Peer support can improve psychosocial outcomes. Unfortunately, Covid-19 related social restrictions resulted in the closure of social outlets for PwA, further exacerbating social isolation. Some social networks transitioned online during this period. One such network was the Aphasia Café, a social group for PwA, supported by Speech and Language Therapy students (SLTS). OBJECTIVE: This study aimed to investigate the experiences, knowledge, attitudes, and beliefs about the Aphasia Café (in-person and online), within the context of pandemic-related social restrictions, from the perspectives of PwA and the SLTS who support them. METHODS: 16 SLTS participated in one of five focus groups. Six PwA were individually interviewed. Semi-structured questionnaires facilitated inductive and deductive data collection which were analysed using Framework Analysis. RESULTS: Observed themes related to the in-person and online Aphasia Café will be reported in this paper. Overarching themes observed from both SLTS and PwA include: ‘Socialising changes during Covid-19 pandemic’, ‘Awareness and Purpose of the Aphasia Café’, ‘Perceptions of an Online and In-Person Aphasia Café” (subthemes –accessibility, technology, time/timing, non-verbal communication, and social environment), and ‘Optimal Aphasia Café’ (PwA only). CONCLUSIONS: This study provides a unique perspective on the delivery of a supported informal conversation group from both PwA and the SLTS who facilitate it. Both online and in-person social spaces were considered to enhance the quality of life for PwA and give valuable experience for SLTS.
背景:失语症患者(PwA)在中风后会经历不利的后果,这可能会导致他们参与社会活动的机会受到限制,造成不良的社会心理影响。同伴支持可以改善社会心理状况。不幸的是,与 Covid-19 相关的社会限制导致了 PwA 社交渠道的关闭,进一步加剧了社会隔离。在此期间,一些社交网络过渡到了网上。Aphasia Café 就是这样一个网络,它是一个由言语和语言治疗专业学生 (SLTS) 支持的 PwA 社交团体。目标: 本研究旨在从 PwA 和支持他们的语言治疗学生的角度,调查在与大流行病相关的社会限制背景下,有关失语咖啡馆(现场和在线)的经验、知识、态度和信念。方法:16 名辅助治疗师参加了五个焦点小组中的一个。对 6 名残疾人进行了个别访谈。半结构式问卷有助于归纳和演绎数据的收集,并使用框架分析法对这些数据进行分析。结果:本文将报告与现场和在线失语咖啡馆相关的观察主题。从 SLTS 和 PwA 中观察到的首要主题包括在 Covid-19 大流行期间社交的变化"、"对失语症咖啡馆的认识和目的"、"对在线和面对面失语症咖啡馆的看法"(副主题 - 可及性、技术、时间/时机、非语言交流和社会环境)以及 "最佳失语症咖啡馆"(仅 PwA)。结论:本研究提供了一个独特的视角,从残疾人和促进该小组的辅助性非正式会话小组两方面来看待该小组。在线和面对面的社交空间都被认为能够提高 PwA 的生活质量,并为 SLTS 提供宝贵的经验。
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引用次数: 0
Exploring the lived experiences and perspectives of individuals with communication and swallowing difficulties associated with Long-COVID 探索与长期慢性阻塞性肺病(Long-COVID)相关的交流和吞咽困难患者的生活经历和观点
Pub Date : 2024-02-03 DOI: 10.3233/acs-230007
Ó. Gilheaney, Naomi Rogers, K. McTiernan
BACKGROUND: Long-COVID occurs in individuals with a history of probable or confirmed SARS CoV-2 infection. Long-COVID can affect individuals who experience both mild and severe acute COVID-19 and can involve and affect multiple body systems. Research thus far acknowledges swallowing and communication difficulties as a characteristic of Long-COVID, however, this research lacks detail and does not address the psychosocial impact of these problems. OBJECTIVES: To establish an understanding of the presence, severity, and trajectory of swallowing and communication difficulties as a symptom of Long-COVID among adults. To investigate the psychosocial impact of these characteristics and explore supports and barriers to recovery. METHODS: The objectives were addressed by utilizing a qualitative research design. Semi-structured interviews were carried out with participants using online Zoom sessions. The interviews were recorded and transcribed and reflexive thematic analysis was used to analyse the data. RESULTS: Seven participants from Ireland, Scotland and Australia were interviewed. Four main themes were identified including dysphagia-related issues, communication-related issues, psychosocial impact of dysphagia and communication disorders, and accessing Long-COVID related healthcare for dysphagia and communication disorders. The presentation of swallowing and communication problems was diverse and had significant psychosocial and mental health consequences. Furthermore, access to healthcare services to effectively treat these issues was challenging. CONCLUSIONS: The lack of recognition of swallowing and communication as a symptom of Long-COVID and its adverse effects is a pertinent issue which warrants further research and updated guidelines for individuals living with Long-COVID and healthcare professionals alike.
背景:长期 COVID 发生在有可能或确诊 SARS CoV-2 感染史的人身上。轻度和重度急性 COVID-19 患者均可感染长型 COVID,并可涉及和影响多个身体系统。迄今为止的研究承认吞咽和交流困难是长型 COVID 的一个特征,但这些研究缺乏细节,也没有涉及这些问题对社会心理的影响。目标:了解长颈型颈椎病患者的存在情况、心理和社会影响:了解吞咽和交流障碍作为长期慢性阻塞性肺气肿的症状在成人中的存在情况、严重程度和发展轨迹。调查这些特征对社会心理的影响,并探索康复的支持和障碍。方法:采用定性研究设计来实现上述目标。通过在线 Zoom 会话与参与者进行了半结构化访谈。对访谈进行了记录和转录,并使用反思性主题分析法对数据进行分析。结果:对来自爱尔兰、苏格兰和澳大利亚的七名参与者进行了访谈。确定了四大主题,包括与吞咽困难相关的问题、与交流相关的问题、吞咽困难和交流障碍的社会心理影响以及因吞咽困难和交流障碍而获得与 Long-COVID 相关的医疗保健服务。吞咽和交流障碍的表现形式多种多样,对社会心理和精神健康造成了严重影响。此外,获得有效治疗这些问题的医疗服务也具有挑战性。结论:吞咽和交流障碍是长期慢性阻塞性肺气肿的症状之一,但人们对这一症状及其不良影响认识不足,这是一个相关问题,需要进一步研究,并为长期慢性阻塞性肺气肿患者和医疗保健专业人员提供最新指南。
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引用次数: 0
Exploring the lived experiences and perspectives of individuals with communication and swallowing difficulties associated with Long-COVID 探索与长期慢性阻塞性肺病(Long-COVID)相关的交流和吞咽困难患者的生活经历和观点
Pub Date : 2024-02-03 DOI: 10.3233/acs-230007
Ó. Gilheaney, Naomi Rogers, K. McTiernan
BACKGROUND: Long-COVID occurs in individuals with a history of probable or confirmed SARS CoV-2 infection. Long-COVID can affect individuals who experience both mild and severe acute COVID-19 and can involve and affect multiple body systems. Research thus far acknowledges swallowing and communication difficulties as a characteristic of Long-COVID, however, this research lacks detail and does not address the psychosocial impact of these problems. OBJECTIVES: To establish an understanding of the presence, severity, and trajectory of swallowing and communication difficulties as a symptom of Long-COVID among adults. To investigate the psychosocial impact of these characteristics and explore supports and barriers to recovery. METHODS: The objectives were addressed by utilizing a qualitative research design. Semi-structured interviews were carried out with participants using online Zoom sessions. The interviews were recorded and transcribed and reflexive thematic analysis was used to analyse the data. RESULTS: Seven participants from Ireland, Scotland and Australia were interviewed. Four main themes were identified including dysphagia-related issues, communication-related issues, psychosocial impact of dysphagia and communication disorders, and accessing Long-COVID related healthcare for dysphagia and communication disorders. The presentation of swallowing and communication problems was diverse and had significant psychosocial and mental health consequences. Furthermore, access to healthcare services to effectively treat these issues was challenging. CONCLUSIONS: The lack of recognition of swallowing and communication as a symptom of Long-COVID and its adverse effects is a pertinent issue which warrants further research and updated guidelines for individuals living with Long-COVID and healthcare professionals alike.
背景:长期 COVID 发生在有可能或确诊 SARS CoV-2 感染史的人身上。轻度和重度急性 COVID-19 患者均可感染长型 COVID,并可涉及和影响多个身体系统。迄今为止的研究承认吞咽和交流困难是长型 COVID 的一个特征,但这些研究缺乏细节,也没有涉及这些问题对社会心理的影响。目标:了解长颈型颈椎病患者的存在情况、心理和社会影响:了解吞咽和交流障碍作为长期慢性阻塞性肺气肿的症状在成人中的存在情况、严重程度和发展轨迹。调查这些特征对社会心理的影响,并探索康复的支持和障碍。方法:采用定性研究设计来实现上述目标。通过在线 Zoom 会话与参与者进行了半结构化访谈。对访谈进行了记录和转录,并使用反思性主题分析法对数据进行分析。结果:对来自爱尔兰、苏格兰和澳大利亚的七名参与者进行了访谈。确定了四大主题,包括与吞咽困难相关的问题、与交流相关的问题、吞咽困难和交流障碍的社会心理影响以及因吞咽困难和交流障碍而获得与 Long-COVID 相关的医疗保健服务。吞咽和交流障碍的表现形式多种多样,对社会心理和精神健康造成了严重影响。此外,获得有效治疗这些问题的医疗服务也具有挑战性。结论:吞咽和交流障碍是长期慢性阻塞性肺气肿的症状之一,但人们对这一症状及其不良影响认识不足,这是一个相关问题,需要进一步研究,并为长期慢性阻塞性肺气肿患者和医疗保健专业人员提供最新指南。
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引用次数: 0
Big data and artificial intelligence in post-stroke aphasia: A mapping review 卒中后失语症中的大数据和人工智能:绘图回顾
Pub Date : 2024-01-25 DOI: 10.3233/acs-230005
Gordon Pottinger, Áine Kearns
BACKGROUND: Aphasia is an impairment of language as a result of brain damage which can affect individuals after a stroke. Recent research in aphasia has highlighted new technologies and techniques that fall under the umbrella of big data and artificial intelligence (AI). OBJECTIVES: This review aims to examine the extent, range and nature of available research on big data and AI relating to aphasia post stroke. METHODS: A mapping review is the most appropriate format for reviewing the evidence on a broad and emerging topic such as big data and AI in post-stroke aphasia. Following a systematic search of online databases and a two-stage screening process, data was extracted from the included studies. This analysis process included grouping the research into inductively created categories as the different areas within the research topic became apparent. RESULTS: Seventy-two studies were included in the review. The results showed an emergent body of research made up of meta-analyses and quasi-experimental studies falling into defined categories within big data and AI in post-stroke aphasia. The two largest categories were automation, including automated assessment and diagnosis as well as automatic speech recognition, and prediction and association, largely through symptom-lesion mapping and meta-analysis. CONCLUSIONS: The framework of categories within the research field of big data and AI in post-stroke aphasia suggest this broad topic has the potential to make an increasing contribution to aphasia research. Further research is needed to evaluate the specific areas within big data and AI in aphasia in terms of efficacy and accuracy within defined categories.
背景:失语症是脑损伤导致的语言障碍,中风后的患者也会受到影响。近期对失语症的研究突出了大数据和人工智能(AI)领域的新技术和新工艺。目的:本综述旨在研究与中风后失语症相关的大数据和人工智能研究的程度、范围和性质。方法:对于像大数据和人工智能在中风后失语症中的应用这样一个广泛而新兴的课题,图谱综述是最合适的证据综述形式。在对在线数据库进行系统检索和两阶段筛选后,从纳入的研究中提取数据。在分析过程中,随着研究课题中不同领域的显现,研究被归纳为不同的类别。结果:72 项研究被纳入综述。结果表明,在卒中后失语症的大数据和人工智能研究中,出现了由荟萃分析和准实验研究组成的研究机构。最大的两个类别是自动化(包括自动评估和诊断以及自动语音识别)和预测与关联(主要通过症状-病灶映射和荟萃分析)。结论:卒中后失语症大数据和人工智能研究领域的类别框架表明,这一广泛的主题有可能为失语症研究做出越来越大的贡献。需要进一步开展研究,以评估大数据和人工智能在失语症研究中的具体领域在所定义类别中的有效性和准确性。
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引用次数: 0
Is trans-laryngeal ultrasound (TLUS) an accurate and acceptable tool in the assessment of inducible laryngeal obstruction? A protocol for the ILOTUS: A cross-sectional, two-stage feasibility study 经喉超声(TLUS)是评估诱发性喉梗阻的准确且可接受的工具吗?ILOTUS方案:一项横断面、两阶段可行性研究
Pub Date : 2024-01-17 DOI: 10.3233/acs-230003
C. Slinger, Paul Leong, Sally Spencer, R. Slinger, R. Govender
BACKGROUND: Inducible laryngeal obstruction (ILO) describes an inappropriate narrowing of the larynx during breathing in. ILO can lead to several respiratory symptoms and be misidentified and treated as asthma, with associated patient morbidity and healthcare cost. ILO is also known as vocal cord dysfunction, or paradoxical vocal fold movement. The current reference assessment tool for diagnosing ILO is a video-laryngoscopy. However, timely access to specialist diagnostic laryngoscopy services may be challenging, and laryngoscopy may be poorly tolerated. AIMS: The aim of this cross-sectional, two-stage feasibility study is to determine whether abnormal vocal fold movements associated with ILO can be adequately visualised using trans-laryngeal ultrasound (TLUS) namely, the ILOTUS study: (ILO assessment via trans- laryngeal ultrasound). The second aim is to compare TLUS with a reference standard diagnostic tool to ascertain whether it may serve as a less invasive screening tool to assess ILO. Participants’ opinions about the acceptability of TLUS will also be gathered and compared with responses to a validated symptom score questionnaire. METHODS: In stage one, healthy volunteers (n = 30) will undergo TLUS to assess whether the vocal folds can be visualised,and whether narrowing of the vocal folds can be seen when they mimic ILO. Stage 2 will be conducted with a patient population(n = 30) referred to a tertiary airways service for breathlessness assessment. Participants in stage 2 will undergo the reference standard laryngoscopy as well as simultaneous TLUS. The level of agreement between TLUS and laryngoscopy will be evaluated, as well as comparison of symptom scores. DISCUSSION: This study will help inform future studies of the utility of TLUS in the assessment of ILO. This will be valuable for understanding whether TLUS could be offered as a non-invasive option for patients in the assessment of ILO if they are not able to tolerate or access laryngoscopy diagnostic services. It is not intended that TLUS will replace the current reference standard of video-laryngoscopy but may have potential as an early screening tool if found to be non-inferior.
背景:诱发性喉阻塞(ILO)是指吸气时喉部不适当地狭窄。诱发性喉阻塞(ILO)可导致多种呼吸道症状,并被误认为是哮喘而加以治疗,从而增加患者的发病率和医疗成本。ILO 也被称为声带功能障碍或矛盾性声带运动。目前诊断 ILO 的参考评估工具是视频喉镜检查。然而,及时获得专业的喉镜诊断服务可能具有挑战性,而且喉镜检查的耐受性可能较差。目的: 该横断面、两阶段可行性研究的目的是确定经喉超声(TLUS)是否能充分显示与 ILO 相关的声带异常运动,即 ILOTUS 研究:(通过经喉超声进行 ILO 评估)。第二个目的是将 TLUS 与参考标准诊断工具进行比较,以确定它是否可作为一种创伤较小的筛查工具来评估 ILO。此外,还将收集参与者对 TLUS 可接受性的意见,并将其与对有效症状评分问卷的答复进行比较。方法:在第一阶段,健康志愿者(n = 30)将接受 TLUS 检查,以评估是否能看到声带,以及在模仿 ILO 时是否能看到声带变窄。第二阶段将对转诊到三级气道服务机构进行呼吸困难评估的患者(30 人)进行测试。第二阶段的参与者将接受参考标准喉镜检查和同步 TLUS 检查。将评估 TLUS 与喉镜检查的一致程度,并比较症状评分。讨论:这项研究将有助于为今后有关 TLUS 在评估 ILO 方面的效用的研究提供信息。这将有助于了解,如果患者无法忍受或无法获得喉镜诊断服务,TLUS 是否可作为评估 ILO 的一种无创选择。TLUS 并不打算取代目前的视频喉镜参考标准,但如果发现其不具劣势,则有可能成为一种早期筛查工具。
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引用次数: 0
Improving efficiency through innovation in the ‘real-world’: Feasibility of a co-designed telehealth solution for individuals with aphasia 通过 "现实世界 "中的创新提高效率:为失语症患者共同设计远程保健解决方案的可行性
Pub Date : 2023-12-28 DOI: 10.3233/acs-220018
Katie E Chadd, S. Harding, J. Mortley, Pam Enderby
BACKGROUND: Research indicates that speech and language therapy for individuals with aphasia delivered via telehealth is acceptable and facilitates good outcomes. Although adoption of telehealth has increased following COVID-19, it has not been implemented broadly. Telehealth could assist services to meet the recommended intensity of therapy for individuals with aphasia. OBJECTIVE: The study aimed to investigate the barriers and facilitators to adopting telehealth for individuals with aphasia at two local NHS trusts; and to co-design a telehealth solution responding to these challenges. The feasibility of this solution was also investigated. A secondary objective is to highlight the value of real-world data (RWD) collection in evaluating clinical practice. METHODS: An experience-based co-design study was conducted, which developed and piloted a bespoke telehealth solution across service pathways at two NHS sites. Feasibility was evaluated qualitatively through interviews and quantitatively from RWD collected through the telehealth software. RESULTS: The telehealth solution incorporated outsourcing of the service to a specialist company, provision of hardware and software and regular support for individuals with aphasia and their carers. Take up was associated with a positive impact and the RWD revealed a substantial increase in the hours of therapy the individuals with aphasia received. CONCLUSION: Personalised telehealth solutions which respond to local and personal needs are feasible and an acceptable way to increase the intensity of speech and language therapy for some individuals with aphasia, bringing services more in line with evidence-based recommendations and optimising patient outcomes. Embedded RWD collection systems are valuable for evaluation.
背景:研究表明,通过远程医疗为失语症患者提供言语和语言治疗是可以接受的,并且有助于取得良好的治疗效果。尽管在 COVID-19 之后,远程医疗的采用率有所提高,但尚未得到广泛实施。远程医疗可以帮助服务机构达到为失语症患者推荐的治疗强度。目标: 该研究旨在调查两家当地 NHS 信托公司在为失语症患者采用远程保健服务时遇到的障碍和促进因素,并共同设计一个远程保健解决方案来应对这些挑战。此外,还对该解决方案的可行性进行了调查。次要目标是强调真实世界数据 (RWD) 收集在评估临床实践中的价值。方法:我们开展了一项基于经验的共同设计研究,在两个国家医疗服务系统(NHS)站点的服务路径中开发并试用了定制的远程医疗解决方案。通过访谈对可行性进行了定性评估,并通过远程保健软件收集的 RWD 对可行性进行了定量评估。结果:远程保健解决方案包括将服务外包给一家专业公司、提供硬件和软件,以及为失语症患者及其照顾者提供定期支持。使用该方案产生了积极的影响,RWD 显示,失语症患者接受治疗的时间大幅增加。结论:针对当地和个人需求的个性化远程医疗解决方案是可行的,也是一种可以接受的方式,可以提高一些失语症患者的言语和语言治疗强度,使服务更符合循证建议,并优化患者的治疗效果。嵌入式 RWD 收集系统对评估很有价值。
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引用次数: 0
Introduction to Advances in Communication and Swallowing Volume 26, Issue 2 通讯与吞咽研究进展》第 26 卷第 2 期简介
Pub Date : 2023-12-08 DOI: 10.3233/acs-239004
Julie Regan, Irene P. Walsh
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引用次数: 0
期刊
Advances in communication and swallowing
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