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Developing skills of allied health professionals for a principal investigator role: A case from the SIP SMART2 swallowing prehabilitation trial 为主要研究者角色发展联合卫生专业人员的技能:来自SIP SMART2吞咽康复试验的一个案例
Pub Date : 2023-04-10 DOI: 10.3233/acs-220021
Florence Cook, I. Nazareth, R. Govender
BACKGROUND: Clinicals trials are the bedrock for evidence-based practice amongst healthcare professionals. Creating research opportunities through structured training is integral in developing future research leaders including allied health professionals (AHP)s. The UK National Institute for Health Research (NIHR) Associate Principal Investigator (API) scheme was launched in 2019 to support trainee medical, dental, nursing and AHPs to gain practical experience delivering clinical trials under local PIs. API certification requires completion of activities which includes Good Clinical Practice Training, attendance at trial meetings, trial recruitment and maintenance of site file related activities. The aim of this article was to showcase how the activities completed by an AHP undertaking the API scheme support researcher development. METHODS: SIP SMART2 is a multicentre trial of swallowing prehabilitation in head and neck cancer. SIP SMART2 was one of the first AHP-led trials to be registered on the API scheme in April 2019 with six APIs registered. The example of one trainee’s activities and skills acquisition by completing the scheme were compared to a well-established researcher development framework known as the Vitae Researcher Development Framework (RDF). RESULTS: Activities completed during the API scheme supported development across all 4 domains of the RDF. In particular, Domain C (Research governance and organisation) and Domain D (Engagement, influence and impact). CONCLUSIONS: The API scheme provides an opportunity for AHPs to gain skills and experience to develop across all domains of the Vitae RDF. Future work should assess whether completion of the API scheme leads to long-term engagement in clinical research.
背景:临床试验是医疗保健专业人员循证实践的基础。通过结构化培训创造研究机会对于培养未来的研究领导者,包括联合卫生专业人员(AHP)是不可或缺的。英国国家卫生研究所(NIHR)副首席研究员(API)计划于2019年启动,旨在支持实习医疗、牙科、护理和ahp获得在当地pi下开展临床试验的实践经验。原料药认证要求完成的活动包括良好临床实践培训、参加试验会议、试验招募和维护现场文件相关活动。本文的目的是展示采用API方案的AHP完成的活动如何支持研究人员的发展。方法:SIP SMART2是一项针对头颈癌患者吞咽康复的多中心试验。SIP SMART2是2019年4月在API计划上注册的首批ahp主导的试验之一,注册了6个API。通过完成该计划,一个学员的活动和技能获得的例子与一个完善的研究人员发展框架进行了比较,该框架被称为Vitae研究人员发展框架(RDF)。结果:在API方案期间完成的活动支持跨RDF的所有4个领域的开发。特别是领域C(研究治理和组织)和领域D(参与、影响和影响)。结论:API方案为ahp提供了一个机会,以获得跨Vitae RDF所有领域开发的技能和经验。未来的工作应评估API方案的完成是否会导致长期参与临床研究。
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引用次数: 0
A banking app to help patients with brain injuries 帮助脑损伤患者的银行应用程序
Pub Date : 2023-04-06 DOI: 10.3233/acs-220019
Mark Brodie, Carolyn S. Brodie, L. Raymond
We describe the process where a stroke survivor, his wife, and a speech language pathologist participated together to design and implement a new piece of software to help patients with brain injury recover skills needed to manage their finances. Each person brought unique skills that led to a successful collaboration. The stroke survivor, a computer scientist, has experience with aphasia apps that he used in therapy. His wife, also a computer scientist, has experience with participatory design techniques and agile software development methodologies. The SLP understands the requirements needed for software to be useful for patients in a clinical setting. Together the team created an app that is currently being used in two rehab centers.
我们描述了一个中风幸存者、他的妻子和一位语言病理学家共同参与设计和实现一个新的软件的过程,这个软件可以帮助脑损伤患者恢复管理财务所需的技能。每个人都有独特的技能,促成了成功的合作。这位中风幸存者是一名计算机科学家,他在治疗失语症时使用过失语症应用程序。他的妻子也是一名计算机科学家,拥有参与式设计技术和敏捷软件开发方法的经验。SLP了解软件在临床环境中对患者有用的需求。该团队共同开发了一款应用程序,目前正在两个康复中心使用。
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引用次数: 0
Exploring the uptake of CATALISE recommendations from the perspective of speech and language therapists working in the Irish context: A qualitative online survey 从言语和语言治疗师在爱尔兰工作的角度探索CATALISE建议的吸收:一项定性在线调查
Pub Date : 2023-04-06 DOI: 10.3233/acs-220011
A. Gallagher, Sinead Finn, Ruth Dolan, Edel Dunphy
BACKGROUND: The Irish Association of Speech and Language Therapists (IASLT) has led on a series of implementation efforts since the publication of recommendations regarding terminology and diagnosis of developmental language disorder (DLD) by the CATALISE Consortium in 2017. OBJECTIVE: To explore the views of speech and language therapists (SLTs) about the effectiveness of IASLT dissemination efforts in relation to the CATALISE recommendations to inform the development of a national DLD implementation strategy. METHODS: A self-administered qualitative e-survey was designed. A purposive sample of SLTs working in Ireland was recruited using a maximum variation strategy. The survey included closed and open questions. Qualitative data were analysed deductively using constructs from the Consolidation Framework for Implementation Research. Findings were integrated using concepts from the RE-AIM framework. RESULTS: Dissemination methods were considered effective at the preadoption stage. However, barriers to early use of the CATALISE recommendations were identified related to low practitioner self-concept, the complex nature of the required practice changes, and a lack of compatibility with service pathways. Misalignment across health and education policy was identified as a barrier to uptake of the recommendations for those working in schools. Ongoing opportunities for case-based discussion was viewed as an important component of future implementation efforts. The importance of engaged leadership in overcoming implementation barriers is also highlighted. CONCLUSIONS: A targeted multi-level implementation strategy developed by an inclusive stakeholder network including speech and language therapy managers is required to support the full adoption of the CATALISE recommendations into policy, service, and practice in the Irish context.
背景:自2017年CATALISE联盟发布关于发展性语言障碍(DLD)术语和诊断的建议以来,爱尔兰言语和语言治疗师协会(IASLT)领导了一系列实施工作。目的:探讨言语和语言治疗师(slt)对与CATALISE建议相关的IASLT传播工作有效性的看法,以便为国家DLD实施战略的制定提供信息。方法:设计一份自我管理的定性电子调查。使用最大变异策略招募了在爱尔兰工作的slt的有目的样本。调查包括封闭式和开放式问题。定性数据分析演绎使用结构从实施研究巩固框架。研究结果使用RE-AIM框架中的概念进行整合。结果:在采用前阶段,传播方法是有效的。然而,早期使用CATALISE建议的障碍被认为与从业者自我概念低、所需实践变化的复杂性以及与服务途径缺乏兼容性有关。卫生和教育政策之间的不协调被确定为学校工作人员接受建议的障碍。正在进行的基于案例的讨论的机会被视为未来执行工作的一个重要组成部分。还强调了领导参与克服执行障碍的重要性。结论:需要一个包括言语和语言治疗管理人员在内的包容性利益相关者网络制定有针对性的多层次实施战略,以支持在爱尔兰背景下将CATALISE建议全面纳入政策、服务和实践。
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引用次数: 0
Speech and language therapy service provision to UK intensive care units: A national survey 英国重症监护病房的言语和语言治疗服务:一项全国性调查
Pub Date : 2023-04-06 DOI: 10.3233/acs-220015
Claire S. Mills, H. Newman, C. Iezzi, Anna-Liisa Sutt, Rachel Jones, Jude Sadiq, A. Ginnelly, Gemma L Jones, Sarah Wallace Obe
BACKGROUND: The role of Speech and Language Therapists (SLTs) in intensive care units (ICUs) has become increasingly recognised. This survey was developed in response to concern amongst UK SLTs that service provision was insufficient. OBJECTIVE: The primary objective was to benchmark and describe UK pre-pandemic SLT ICU service provision. Secondary objectives included: identifying factors which might explain differences in SLT service provision, identifying unmet needs and good practice, and informing recommended SLT staffing levels. METHODS: An online survey was distributed through UK SLT networks and social media. Quantitative data were reported descriptively, and content analysis was conducted with qualitative data. RESULTS: Responses were received from 64 hospitals, representing three paediatric services and 61 adult services. Average staffing ratios of 0.03 and 0.01 whole time equivalent (WTE) were reported for these respectively. Most services (77&) received no funding from their ICU for SLT staffing. Few reported an adequate SLT service for communication (12&), swallowing (16&) and tracheostomy weaning interventions (11&). Compliance with national guidance for SLT-led communication and swallowing input for all tracheostomised patients was achieved by 27& of sites. CONCLUSIONS: Staffing levels at many sites were insufficient to provide a consistent and responsive service. The findings contributed to a recommendation of 0.1 WTE SLT per ICU bed, which was incorporated into Edition 2 of the Guidelines for the Provision of Intensive Care Services. This survey identified barriers and facilitators to providing an adequate SLT service for critically ill patients that may assist service development initiatives and guide further research.
背景:言语和语言治疗师(SLTs)在重症监护病房(ICUs)中的作用越来越得到认可。这项调查是为了回应英国slt对服务提供不足的担忧而开展的。目的:主要目的是基准和描述英国大流行前SLT ICU服务提供。次要目标包括:确定可能解释SLT服务提供差异的因素,确定未满足的需求和良好做法,并告知建议的SLT人员配备水平。方法:通过英国SLT网络和社交媒体进行在线调查。定量资料采用描述性报告,定性资料进行内容分析。结果:收到了来自64家医院的回复,代表3家儿科服务机构和61家成人服务机构。平均编制比率分别为0.03和0.01的全时间当量(WTE)。大多数服务(77&)没有从其ICU获得SLT人员配备的资金。很少有人报道在沟通(12&)、吞咽(16&)和气管造口术脱机干预(11&)方面有足够的SLT服务。所有气管造口患者的slt引导沟通和吞咽输入符合国家指南的比例达到27%。结论:许多地点的人员配备水平不足以提供一致和反应迅速的服务。这些发现促成了每张ICU病床0.1 WTE SLT的建议,该建议被纳入《重症监护服务提供指南》第2版。这项调查确定了为危重患者提供适当的SLT服务的障碍和促进因素,这可能有助于服务发展倡议并指导进一步的研究。
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引用次数: 0
Delivering script therapy for people with aphasia in EVA park: Two single case treatment studies 在EVA公园为失语症患者提供脚本治疗:两个单例治疗研究
Pub Date : 2023-02-18 DOI: 10.3233/acs-220014
J. Marshall, Niamh Devane, Jude Berraondo, R. Talbot, Panagiota Temponera, Katie Clegg, Stephanie Wilson
BACKGROUND: There are few applications of virtual reality (VR) in aphasia rehabilitation. EVA Park is an online VR platform developed with and for people with aphasia. Our research is testing its potential to host aphasia therapies. OBJECTIVE: Two case studies evaluated if delivery of Script Therapy in EVA Park is feasible and acceptable to participants, whether it improved production of trained scripts and promoted generalisation to untrained scripts, narrative speech and functional communication. METHODS: Two participants with aphasia received 20 hours of Script Therapy in EVA Park. Feasibility was assessed through session attendance, completion of practice and ratings of treatment fidelity. Acceptability was explored via post therapy interviews. The impact of therapy on script production, narrative production and functional communication was assessed through measures administered twice before therapy, immediately post therapy and at 5 weeks follow up. RESULTS: Participants attended at least 85% of sessions. Compliance with practice was good for one, but not the other. Fidelity ratings indicated that over 80% of core treatment components were fully present in recorded sessions. Participants expressed positive views about the intervention. Therapy significantly improved the production of words in trained scripts, with maintenance for one participant. Neither participant improved in the production of untrained scripts or personal narratives. One improved on the assessment of functional communication, but the margin of change was small. CONCLUSIONS: The study adds to the evidence that EVA Park can host a range of interventions and that this platform is acceptable to its intended user group.
背景:虚拟现实技术在失语康复中的应用较少。EVA Park是一个为失语症患者开发的在线虚拟现实平台。我们的研究正在测试它在失语症治疗方面的潜力。目的:两个案例研究评估了EVA Park的剧本治疗是否可行,参与者是否可以接受,是否提高了训练后剧本的制作,是否促进了对未训练剧本的推广,叙事言语和功能性沟通。方法:2例失语症患者在EVA公园接受20小时的文字治疗。可行性评估通过会议出席,完成实践和治疗保真度评级。通过治疗后访谈探讨可接受性。治疗对剧本制作、叙事制作和功能交流的影响通过治疗前、治疗后立即和5周随访两次实施的措施进行评估。结果:参与者至少参加了85%的疗程。遵守惯例对其中一个有利,但对另一个不利。保真度评级表明,超过80%的核心治疗成分在记录的会话中完全存在。嘉宾对干预表示积极评价。治疗显著改善了训练后的文字的产生,并维持了一个参与者。没有一个参与者在未经训练的剧本或个人叙述的制作方面有所提高。一个改进了功能沟通的评估,但变化幅度很小。结论:该研究增加了EVA Park可以进行一系列干预的证据,并且该平台对其目标用户群体是可接受的。
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引用次数: 0
Hidden in plain sight: A qualitative exploration of teachers and children’s perspectives on supporting developmental language disorder in school 隐藏在显而易见的地方:教师和儿童在学校支持发展性语言障碍的观点的定性探索
Pub Date : 2022-12-13 DOI: 10.3233/acs-220010
M. Gibbons, Karen Coughlan, A. Gallagher
BACKGROUND: Developmental language disorder (DLD) is a difficulty learning, understanding, and using spoken language with lifelong implications for education and well-being. Teachers play a key role in the identification of DLD, in referring children to speech and language therapy services, and in the delivery of supports in school. Research suggests that school staff may benefit from health promotion interventions to increase their awareness and understanding of the condition. OBJECTIVE: The aim of this study was to explore the awareness and understanding of teachers and children about DLD and how these needs can be met in school to inform the development of a locally- responsive health promotion DLD intervention. METHODS: Semi-structured interviews with children with DLD (n = 7), and focus groups were held with classroom teachers (n = 7) in schools serving populations of high socioeconomic need using a narrative inquiry approach. A framework analysis was undertaken using the International Classification of Functioning (ICF). RESULTS: Teachers reportedly continue to use a variety of diagnostic terms when describing DLD. All stakeholders discussed the importance of the teacher’s role in making the necessary classroom adjustments to enable children with DLD to achieve and participate. Children provided some practical suggestions regarding how their needs can be met in the classroom. CONCLUSIONS: The study findings highlight the important contextual insights that teachers and children can provide to inform the development of locally responsive, health promotion interventions aimed at increasing awareness, knowledge and actions related to DLD in school.
背景:发展性语言障碍(DLD)是一种学习、理解和使用口语的困难,对教育和福祉具有终身影响。教师在识别弱智、将儿童转介到言语和语言治疗服务以及在学校提供支持方面发挥着关键作用。研究表明,学校工作人员可以从健康促进干预措施中受益,以提高他们对这种情况的认识和理解。目的:本研究的目的是探讨教师和儿童对DLD的认识和理解,以及如何在学校满足这些需求,为制定当地响应性健康促进DLD干预措施提供信息。方法:采用叙事探究法,在服务于高社会经济需求人群的学校对DLD儿童(n = 7)进行半结构化访谈,并与课堂教师(n = 7)进行焦点小组讨论。使用国际功能分类(ICF)进行了框架分析。结果:据报道,教师在描述DLD时继续使用各种诊断术语。所有利益相关者都讨论了教师在进行必要的课堂调整以使DLD儿童能够实现和参与方面的作用的重要性。孩子们就如何在课堂上满足他们的需求提出了一些切实可行的建议。结论:研究结果强调了教师和儿童可以提供的重要背景见解,为当地响应的健康促进干预措施的发展提供信息,旨在提高学校中与DLD相关的认识、知识和行动。
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引用次数: 2
The COVID-19 silver lining for speech and language therapists working in intensive care units COVID-19给在重症监护病房工作的语言治疗师带来了一线希望
Pub Date : 2022-11-25 DOI: 10.3233/acs-220016
Claire S. Mills, Gemma M. M. Jones, S. Wallace
The COVID-19 pandemic has been a dark cloud for all, but particularly for healthcare workers. However, despite the many challenges and stresses faced, speech and language therapists working in intensive care units in the UK have found a silver lining. This “Spotlight on: The COVID-19 silver lining for speech and language therapists” outlines some of these positive outcomes including: the increased recognition of the SLT role, increased visibility, improved services, increased productivity, and a promising future. By recognising and celebrating some of the positive developments made during the pandemic we can continue to work to ensure equity of provision for all patients in intensive care.
COVID-19大流行对所有人来说都是一片乌云,对医护人员来说尤其如此。然而,尽管面临许多挑战和压力,在英国重症监护病房工作的言语和语言治疗师还是发现了一线希望。“聚焦:2019冠状病毒病给言语和语言治疗师带来的一线希望”概述了其中一些积极成果,包括:对言语和语言治疗师作用的进一步认识、知名度的提高、服务的改善、生产力的提高以及充满希望的未来。通过承认和庆祝大流行期间取得的一些积极进展,我们可以继续努力确保为所有重症监护患者提供公平服务。
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引用次数: 0
Recovery in the context of post-stroke aphasia: A concept analysis 脑卒中后失语症的康复:概念分析
Pub Date : 2022-11-19 DOI: 10.3233/acs-220013
Laoighse Gleeson, C. Jagoe
BACKGROUND: The term ‘recovery’ frequents the literature relating to aphasia, however there has been limited research directly investigating the concept (or meaning) the term represents. OBJECTIVE: To present a concept analysis of ‘recovery’ in the context of post-stroke aphasia and investigate the consistency in meaning, use and interpretation of the concept, in relation the International Classification of Functioning, Disability and Health (ICF) and the Life Participation Approach to Aphasia (LPAA). METHODS: Rodgers’ evolutionary method of concept analysis was used to analyse the studies retrieved through a systematic search of PubMed and CINAHL bibliographic databases and a journal search of Aphasiology. The International Classification of Functioning, Disability and Health (ICF) and the Life Participation Approach to Aphasia (LPAA) were used as frameworks to explore the correspondence of the concept of ‘recovery’ with current speech and language therapy service delivery approaches. RESULTS: Seventy-one papers were retrieved and analysis revealed six core attributes of the concept; recovery as (1) a process (2) variable dependant (3) existing on a spectrum (4) facilitated (5) quantifiable (6) subject to deceleration. The concept of recovery was found to be impairment-oriented, demonstrating a poor overall correspondence with current frameworks underpinning service delivery. CONCLUSIONS: Facilitating recovery in the context of post-stroke aphasia is a widely discussed therapeutic priority, yet the concept of recovery itself remains ambiguous. Clarification of the current conceptual status of recovery is necessary to ensure consistency in meaning, use and interpretation of the concept, in recognition of its potential implications on research and service delivery.
背景:术语“恢复”经常出现在与失语症相关的文献中,然而,直接调查该术语所代表的概念(或含义)的研究有限。目的:对脑卒中后失语症中“康复”的概念进行分析,并探讨国际功能、残疾和健康分类(ICF)和失语症生活参与方法(LPAA)在概念的含义、使用和解释上的一致性。方法:采用Rodgers概念分析的进化方法,系统检索PubMed和CINAHL书目数据库,检索失语学期刊,对检索到的研究进行分析。使用国际功能、残疾和健康分类(ICF)和失语症的生活参与方法(LPAA)作为框架来探索“恢复”概念与当前言语和语言治疗服务提供方法的对应关系。结果:检索到71篇论文,分析揭示了该概念的6个核心属性;恢复作为(1)一个过程(2)变量依赖(3)存在于一个频谱(4)促进(5)可量化(6)受制于减速。人们发现,恢复的概念是以损害为导向的,这表明与支持提供服务的现行框架总体上不太符合。结论:促进脑卒中后失语症的康复是一个被广泛讨论的治疗重点,然而康复的概念本身仍然是模糊的。必须澄清复原的目前概念状况,以确保这一概念的含义、使用和解释的一致性,并认识到它对研究和提供服务的潜在影响。
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引用次数: 0
Sensory based interventions by speech language pathologists 语言病理学家基于感觉的干预
Pub Date : 2022-11-01 DOI: 10.3233/acs-220004
Marinda Raubenheimer, Salome Geertsema, M. le Roux, M. Graham
BACKGROUND: The use of sensory based interventions (SBI) by many parties including speech-language pathologists (SLPs) are evident despite limited proof of their efficacy. Insight into SLPs’ implementation, knowledge, and perceptions of SBI are crucial to define and guide such practices in the field of speech-language therapy. OBJECTIVES: The study aimed to gather information regarding the nature of SBI, knowledge of sensory processing and SBI, and perception of the role and outcomes of SBI as implemented by SLPs. METHOD: A quantitative survey design was employed. Sixty-five SLPs working in early intervention clinics, public hospital clinics, school settings, and private practice responded to a questionnaire. Results were analysed using SPSS statistical software. RESULTS: Respondents indicated that they often implement SBI using various sensory activities and equipment. They answered more than half of the questions related to the prevalence and nature of sensory difficulties in children with Autistic Spectrum Disorder (CWASD) accurately. Respondents answered fewer questions regarding the differences between SBI and sensory integration therapy accurately. Regular collaboration with and guidance from occupational therapists (OTs) were reported. Respondents acknowledged the role of SLPs in addressing sensory difficulties in CWASD. Positive outcomes for the implementation of SBI in speech-language therapy were stated. CONCLUSION: Despite the limited evidence for the efficacy of SBI, SLPs regularly implement such practices to enhance therapy outcomes. The insights gathered from this study support reports of positive outcomes related to SBI. The need for more rigorous efficacy studies, clearer guidelines and specialised training for SLT’s in SBI are highlighted.
背景:包括语言病理学家(slp)在内的许多方面使用基于感觉的干预(SBI)是显而易见的,尽管其有效性的证据有限。洞察slp的实施、知识和对SBI的认知对于定义和指导言语治疗领域的此类实践至关重要。目的:本研究旨在收集有关SBI的性质、感觉加工和SBI的知识,以及slp实施SBI的作用和结果的感知信息。方法:采用定量调查设计。65名在早期干预诊所、公立医院诊所、学校和私人诊所工作的slp回答了一份问卷。采用SPSS统计软件对结果进行分析。结果:受访者表示,他们经常使用各种感官活动和设备实施SBI。他们准确地回答了一半以上与自闭症谱系障碍(CWASD)儿童感觉困难的普遍性和性质有关的问题。对于SBI和感觉统合治疗的差异,被调查者准确回答的问题较少。报告了与职业治疗师的定期合作和指导。被访者承认,残障人士在解决残疾儿童的感官困难方面发挥了重要作用。在言语语言治疗中实施SBI的积极结果被陈述。结论:尽管SBI疗效的证据有限,但slp定期实施这种做法以提高治疗效果。从这项研究中收集到的见解支持了与SBI相关的积极结果的报告。强调需要更严格的疗效研究,更明确的指导方针和SBI中SLT的专门培训。
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引用次数: 0
“Know the risks but balance that with their enjoyment”: Impacts of dysphagia on quality of life from the perspectives of allied health professionals “了解风险,但要平衡其乐趣”:从联合健康专业人员的角度看吞咽困难对生活质量的影响
Pub Date : 2022-11-01 DOI: 10.3233/acs-220012
Rebecca Smith, Lucy Bryant, B. Hemsley
BACKGROUND: Numerous quantitative and descriptive studies show that dysphagia impacts on quality of life. However, there is little in-depth qualitative research exploring the nature of quality of life impacts of dysphagia from the perspectives of people with chronic or lifelong dysphagia or allied health professionals. OBJECTIVE: To determine the views of allied health professionals who work with people with dysphagia on (a) the impacts of dysphagia on a person’s quality of life, participation, and inclusion; and (b) barriers and facilitators to mealtime-related quality of life for people with dysphagia. METHODS: 15 allied health professionals (12 speech and language therapists and three occupational therapists) each attended one of four 2-hour focus groups. Their discussions were recorded, de-identified, and analysed for content themes. Summaries of the researchers’ interpretations were sent to participants for verification. RESULTS: Allied health professionals view that dysphagia impacts negatively on a person’s quality of life, affecting choice and control, engagement in social activities, physical health, and positive food experiences. Barriers and facilitators to improved quality of life include: the opinions of others towards the person’s texture-modified food, implementation of dysphagia interventions, knowledge of and education on dysphagia, and the person’s control over mealtime design components. CONCLUSIONS: The impacts of dysphagia on quality of life extend beyond enjoyment of the food itself and into the person’s social activities and inclusion. Further research should examine the impacts of dysphagia on quality of life from the perspective of people with dysphagia and their supporters and identify ways to reduce this impact.
背景:大量的定量和描述性研究表明,吞咽困难会影响生活质量。然而,很少有深入的定性研究从慢性或终身吞咽困难患者或相关卫生专业人员的角度探讨吞咽困难对生活质量影响的本质。目的:确定与吞咽困难患者一起工作的专职卫生专业人员的观点:(a)吞咽困难对一个人的生活质量、参与和包容的影响;(b)吞咽困难患者进餐时间相关生活质量的障碍和促进因素。方法:15名专职卫生专业人员(12名言语和语言治疗师和3名职业治疗师)每人参加4个2小时焦点小组中的一个。他们的讨论被记录下来,去识别,并分析内容主题。研究人员的解释摘要被发送给参与者进行验证。结果:联合健康专家认为,吞咽困难会对一个人的生活质量产生负面影响,影响选择和控制、参与社会活动、身体健康和积极的食物体验。改善生活质量的障碍和促进因素包括:他人对该人的质地改良食物的看法,吞咽困难干预措施的实施,吞咽困难的知识和教育,以及个人对用餐时间设计组件的控制。结论:吞咽困难对生活质量的影响不仅限于食物本身的享受,还涉及到个人的社会活动和融入。进一步的研究应该从吞咽困难患者及其支持者的角度来检查吞咽困难对生活质量的影响,并确定减少这种影响的方法。
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引用次数: 0
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Advances in communication and swallowing
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