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Suffering in children and adolescents in paediatric palliative care in Spain: psychometric properties of the qESNA scale 西班牙儿科姑息治疗中儿童和青少年的痛苦：qESNA量表的心理测量特性。
Anales de pediatria
Pub Date : 2024-10-01 DOI: 10.1016/j.anpede.2024.09.005
Daniel Toro-Pérez , Joaquin T. Limonero , Catalina Bolancé , Montserrat Guillen , Sergi Navarro-Vilarrubí , Ester Camprodon-Rosanas

Objective

To analyze the psychometric properties of the qESNA scale and its usefulness to assess the suffering of paediatric patients with life-limiting and/or life-threatening diseases (children with LLTC) in clinical practice.

Methods

Cross-sectional and longitudinal study in 58 patients in Spain (female, 32.8%; mean age, 15.6 [SD, 4.5]; age range, 8–23 years), with administration of the qESNA scale along with other scales to assess anxiety, depression, emotion regulation and psychosocial functioning. We performed exploratory and confirmatory factor analyses and calculated goodness-of-fit indices were calculated; we assessed reliability by means of the Cronbach alpha and temporal stability and convergent validity through the intraclass correlation coefficient with scales used to assess psychological disorders and the specificity and sensitivity through ROC curves.

Results

The factor analysis identified a 14-item scale with 3 factors, a comparative fit index of 0.93, a Tucker-Lewis index of 0.91 and a root mean square error of approximation of 0.07. The Cronbach alpha was 0.85 and the intraclass correlation coefficient was 0.66. The convergent validity was high for the correlation to the risk of depression (−0.69) and of anxiety (−0.60) and emotional changes (−0.59). The analysis of the ROC curves showed that a score of less than 81 would be indicative of suffering, with a sensitivity of 83.33% and a specificity of 93.48%.

Conclusions

This study confirmed that the psychometric properties of the qESNA scale are good and the scale’s usefulness as an instrument to detect emotional suffering in children with life-limiting or life-threatening illnesses in clinical practice.
目的分析qESNA量表的心理测量特性及其在临床实践中用于评估患有局限性疾病和/或危及生命的疾病的儿科患者（LLTC患儿）的痛苦的实用性：对西班牙的 58 名患者（女性，32.8%；平均年龄 15.6 [SD, 4.5]；年龄范围 8-23 岁）进行横断面和纵向研究，同时使用 qESNA 量表和其他量表评估焦虑、抑郁、情绪调节和社会心理功能。我们进行了探索性和确认性因素分析，并计算了拟合优度指数；我们通过克朗巴赫α评估了信度，通过类内相关系数评估了时间稳定性和收敛效度，并通过ROC曲线评估了特异性和敏感性：因子分析确定了一个包含 3 个因子的 14 项量表，比较拟合指数为 0.93，塔克-刘易斯指数为 0.91，均方根近似误差为 0.07。Cronbach alpha 为 0.85，类内相关系数为 0.66。与抑郁风险（-0.69）、焦虑（-0.60）和情绪变化（-0.59）的相关性较高。ROC 曲线分析表明，得分低于 81 分将表明患有抑郁症，其敏感性为 83.33%，特异性为 93.48%：本研究证实了 qESNA 量表具有良好的心理测量学特性，可作为临床实践中检测患有局限性疾病或危及生命疾病的儿童情绪痛苦的工具。
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引用次数: 0
Characterization and management of vertigo in the pediatric population: comprehensive study on the most common etiology, audiovestibular, and psychosomatic manifestations 儿科眩晕症的特征和治疗：关于最常见病因、听觉前庭和心身表现的综合研究。
Anales de pediatria
Pub Date : 2024-10-01 DOI: 10.1016/j.anpede.2024.09.007
Joan Lorente-Piera , Eduardo Arnaus Martín , Christian Espinoza-Vinces , Beatriz Remon-González , Carla Rodríguez-Zanetti , Raquel Manrique-Huarte
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引用次数: 0
Rational application of the ESPGHAN 2022 recommendations for the follow-up of the paediatric coeliac patient: consensus document of scientific societies (SEGHNP, AEPAP, SEPEAP, SEEC, AEG, SEPD, SEMFYC, SEMG and SEMERGEN) 合理应用 ESPGHAN 2022 年关于儿科乳糜泻患者随访的建议：科学协会（SEGHNP、AEPAP、SEPEAP、SEEC、AEG、SEPD、SEMFYC、SEMG 和 SEMERGEN）的共识文件。
Anales de pediatria
Pub Date : 2024-10-01 DOI: 10.1016/j.anpede.2024.09.008
Enriqueta Roman , Josefa Barrio , Maria Luz Cilleruelo , Ricardo Torres , Vega Almazán , Cristobal Coronel , Beatriz Espin , Eva Martinez-Ojinaga , David Perez Solís , Maria Antonia Moreno , Joaquín Reyes , Luis Fernandez Salazar , Sergio Farrais , Gemma Castillejo , Noelia Fontanillas , Mar Noguerol , Alicia Prieto , y Ester Donat , Sociedad de Gastroenterología, Hepatología y Nutrición Pediátrica (SEGHNP), Sociedades de Pediatría de Atención Primaria (AEPap y SEPEAP), Sociedad Española de Enfermedad Celíaca (SEEC), Sociedades de Digestivo de Adultos (AEG y SEPD), Sociedades de Atención Primaria de adultos (SEMFYC, SEMG y SEMERGEN)
Coeliac disease is a common condition for which the only current treatment is a gluten-free diet. Adherence to this diet is not always easy and is associated with a reduction in quality of life for the patient and their family. Non-adherence is associated with complications of varying severity. The lack of control at the outpatient care level in a high percentage of these patients evinces the need to improve follow-up protocols and the approach to care delivery with coordination of paediatric gastroenterology units (PGU) and primary care paediatricians. With this aim in mind, the present document was developed by consensus to offer a set of recommendations adapted to our region, based on the recent recommendations published by the European Society of Paediatric Gastroenterology, Hepatology and Nutrition (ESPGHAN), and with participation of the pertinent scientific societies, including those concerning the adult population, for the management and follow-up of adolescents and the transition to adult care.
乳糜泻是一种常见病，目前唯一的治疗方法就是无麸质饮食。坚持这种饮食并非易事，而且会降低患者及其家人的生活质量。不坚持治疗还会引起严重程度不同的并发症。这些患者中有很大一部分在门诊治疗中缺乏控制，这表明有必要改进后续治疗方案，并在儿科胃肠病科（PGU）和儿科初级保健医生的协调下改进治疗方法。有鉴于此，本文件在欧洲儿科胃肠病学、肝脏病学和营养学学会（ESPGHAN）近期发布的建议基础上，并在相关科学学会（包括与成人相关的学会）的参与下，以协商一致的方式编写而成，旨在为青少年的管理和随访以及向成人护理的过渡提供一套适合本地区的建议。
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引用次数: 0
Use of topical antibiotic therapy in acute otitis media with otorrhea: Results of a national survey 急性中耳炎伴流脓时局部抗生素治疗的使用：全国调查结果。
Anales de pediatria
Pub Date : 2024-10-01 DOI: 10.1016/j.anpede.2024.07.018
Maria Garcia de Oteyza , Miguel Ángel Molina Gutiérrez , Carlota Marín Córdoba , María de Ceano-Vivas
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引用次数: 0
Reference charts for the six-minute walk test in healthy school-aged children from the city of Zaragoza, Spain 西班牙萨拉戈萨市健康学龄儿童六分钟步行测试参考图表。
Anales de pediatria
Pub Date : 2024-10-01 DOI: 10.1016/j.anpede.2024.09.002
Ana Villamañán Montero , Carlos Martín de Vicente , Juan Pablo García Íñiguez , Feliciano Ramos Fuentes

Introduction

The six-minute walk test is a stress test that provides information about exercise tolerance in chronic diseases. The aim of the study was to develop reference equations with normal values for the test in healthy children aged 6–12 years in our paediatric reference population.

Patients and methods

The six-minute walk test was carried out in a sample of 236 healthy children, analyzing pre- and post-test variables, and we developed reference equations selecting variables that turned out to be significant (P < .05).

Results

The pre- and post-test values, respectively, were 97.82% (SD, 0.64) vs 97.82% (SD, 0.59) for oxygen saturation; 96.59 bpm (SD, 16.11) vs 131.89 bmp (SD, 22.64) for the heart rate; 0.52 (SD, 0.83) vs 3.01 (SD, 2.42) for the degree of dyspnea (Borg scale) and 0.68 (SD, 0.98) vs 2.95 (SD, 2.26) for the degree of lower extremities fatigue (Borg scale). The average distance walked was 668.03 m (SD, 87.36) (671.42 m in boys [SD, 92.2] vs 664.22 m in girls [SD, 81.81]). We fitted predictive equations that included the variables age, height and difference between baseline and final heart rate. We also generated percentile charts of the distance walked for height.

Conclusions

Age, height, regular physical activity and obesity had an impact on test results. Obtaining reference values for the 6-min walk test in healthy children is necessary for its application in clinical practice.
简介六分钟步行测试是一种压力测试，可提供有关慢性疾病患者运动耐量的信息。本研究的目的是为儿科参考人群中 6-12 岁健康儿童的六分钟步行测试制定具有正常值的参考方程：我们对 236 名健康儿童进行了六分钟步行测试，分析了测试前和测试后的变量，并选择结果显著的变量（P 结果）制定了参考方程：测试前后的数值分别为：血氧饱和度为 97.82%（SD，0.64） vs 97.82%（SD，0.59）；心率为 96.59 bpm（SD，16.11） vs 131.89 bmp（SD，22.64）；血氧饱和度为 0.52 (SD, 0.83) vs 3.01 (SD, 2.42)；下肢疲劳程度（博格量表）为 0.68 (SD, 0.98) vs 2.95 (SD, 2.26)。平均步行距离为 668.03 米（标清，87.36）（男生为 671.42 米[标清，92.2] ，女生为 664.22 米[标清，81.81]）。我们拟合了预测方程，其中包括年龄、身高以及基线心率和最终心率之间的差异等变量。我们还生成了身高步行距离百分位图：结论：年龄、身高、经常运动和肥胖对测试结果有影响。要将 6 分钟步行测试应用于临床实践，就必须获得健康儿童的参考值。
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引用次数: 0
Penetrating thoracic trauma by pencil: An unusual school accident 被铅笔穿透的胸部创伤：一起不寻常的校园事故
Anales de pediatria
Pub Date : 2024-10-01 DOI: 10.1016/j.anpede.2024.09.004
Hugo Urrutia Soto, Juan Marcos Peraza Fagundez, Oscar Ariscain Jiménez
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引用次数: 0
Chylomicron retention disease: A condition to keep in mind 乳糜泻：值得注意的疾病。
Anales de pediatria
Pub Date : 2024-10-01 DOI: 10.1016/j.anpede.2024.09.001
Diego Mauricio Peñafiel-Freire , Neus Saloni Gomez , Bertha Ortigosa Pezonaga , Elena Aznal Sáinz
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引用次数: 0
Reemergence of pertussis: Strategies and challenges in its control in Spain 百日咳卷土重来：西班牙控制百日咳的策略和挑战。
Anales de pediatria
Pub Date : 2024-10-01 DOI: 10.1016/j.anpede.2024.07.017
Fernando Moraga-Llop , María Garcés-Sánchez , Juan José González-López
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引用次数: 0
Experience of the national cohort of pregnant women with HIV and their children in Spain: temporal trends in vertical transmission of HIV and associated infections 西班牙全国感染艾滋病毒孕妇及其子女队列的经验：艾滋病毒垂直传播和相关感染的时间趋势。
Anales de pediatria
Pub Date : 2024-10-01 DOI: 10.1016/j.anpede.2024.07.016
Marta Illán Ramos , Arantxa Berzosa Sánchez , Itziar Carrasco García , Asunción Diaz Franco , Inmaculada Jarrín Vera , Luis Prieto Tato , Rosa Polo Rodríguez , Mª Luisa Navarro Gómez , José Tomás Ramos Amador , en nombre del Grupo de Trabajo de la Cohorte Nacional de mujeres embarazadas que viven con VIH y sus hijos en España

Introduction

The vertical transmission rate (VTR) of HIV has decreased to less than 2% in high-income countries, in spite of which perinatal infections continue to occur. We present data from the national cohort of pregnant women living with HIV and their children in Spain. The objectives were to describe the characteristics of this population, evaluate the VTR of HIV, the safety of antiretroviral therapy (ART) and the prevalence of coinfection.

Patients and methods

Multicentre prospective, observational and descriptive study with participation of 62 hospitals. The sample included pegnant women living with HIV whose children were born between January 2020 and December 2022. We collected prospective data on the characteristics of mothers and children using an online questionnaire (REDCap web application).

Results

The study included 414 mother-child dyads. Most mothers were immigrants (227/349; 65.1%). The main route of HIV infection was heterosexual transmission (160/402; 39.8%), followed by vertical transmission (44/402; 10.9%). The diagnosis was made before conception in 313/389 women (80.4%), 394/402 (98%) received ART during pregnancy and 356/402 (89.3%) had an undetectable viral load at the time of delivery. The delivery was vaginal in 230/388 children (59.3%). The proportion of preterm birth was 11.1%. The most frequent neonatal prophylaxis approach was monotherapy with zidovudine (358/414; 86.5%). There were 3 cases of vertical transmission of HIV (95% CI, 0%–1.54%). Only one newborn was breastfed.

Conclusions

At present, most women living with HIV in Spain receive the diagnosis before conception, are of foreign ancestry and achieve good control of the infection. Although the VTR is very low in Spain, there are still infections that could be prevented with early diagnosis and treatment.
导言：在高收入国家，艾滋病垂直传播率（VTR）已下降到 2% 以下，尽管如此，围产期感染仍在继续发生。我们展示了西班牙感染艾滋病病毒的孕妇及其子女的全国队列数据。我们的目标是描述这一人群的特征，评估 HIV VTR、抗逆转录病毒疗法（ART）的安全性以及合并感染的发生率：多中心前瞻性、观察性和描述性研究，共有 62 家医院参与。样本包括在 2020 年 1 月至 2022 年 12 月期间出生婴儿的艾滋病毒感染妇女。我们使用在线问卷（REDCap 网络应用程序）收集了有关母亲和儿童特征的前瞻性数据：研究包括 414 个母子二人组。大多数母亲是移民（227/349；65.1%）。艾滋病毒感染的主要途径是异性传播（160/402；39.8%），其次是垂直传播（44/402；10.9%）。有 313/389 名妇女（80.4%）在受孕前被确诊，394/402 名妇女（98%）在怀孕期间接受了抗逆转录病毒疗法，356/402 名妇女（89.3%）在分娩时检测不到病毒载量。230/388（59.3%）名婴儿经阴道分娩。早产比例为 11.1%。最常见的新生儿预防方法是齐多夫定单药治疗（358/414；86.5%）。有 3 例艾滋病毒垂直传播（95% CI，0%-1.54%）。只有一名新生儿是母乳喂养：目前，在西班牙，大多数感染艾滋病毒的妇女在受孕前就得到了诊断，她们都是外籍人士，并且感染得到了很好的控制。虽然西班牙的 VTR 很低，但仍有一些感染是可以通过早期诊断和治疗来预防的。
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引用次数: 0
Scientific output after the 2017, 2019 and 2021 meetings of the Sociedad Española de Neonatología 西班牙新生儿学会 2017、2019 和 2021 年会议之后的科学成果。
Anales de pediatria
Pub Date : 2024-09-01 DOI: 10.1016/j.anpede.2024.08.001
Luis Bachiller Carnicero

Introduction

The sharing of research findings through communications at congresses and publications is essential for the dissemination of scientific knowledge. The aim was to determine the percentage of communications presented the biennial meetings of the Sociedad Española de Neonatología (SENeo, Spanish Society of Neonatology) eventually published as full-text articles in indexed peer-reviewed journals and their bibliometric characteristics.

Material and methods

We conducted a cross-sectional study by reviewing the abstracts from the oral communications (OCs) in the 2017, 2019 and 2021 SENeo congresses. Then we searched for the authors in the MEDLINE and Scopus databases. We collected data on the authors, type of OC and bibliometric characteristics.

Results

The sample included 525 OCs, and we found a publication rate of 40.38% corresponding to 212 publications, 78.8% of them in international journals. The most frequent journal of publication was Anales de Pediatría. The median and interquartile range values for the impact factor, quartile and number of citations were 2.86 (1.96–3.98), 2 (1−3) and 3 (0−7), respectively, with a remarkable increase in the impact factor for the most recent congresses. The median time elapsed to publication was 10 months (IQR, 1–23). The proportion published was higher for multicentre studies and those with a respiratory topic.

Conclusions

The frequency of publication for OCs submitted to SENeo congresses was similar to the frequency of publication for other paediatric congresses, with an impact factor that was above the mean of the congresses under study. The proportion of publication was higher for studies with a multicentre design or a respiratory topic.

导言：通过大会交流和出版物分享研究成果对于传播科学知识至关重要。本研究旨在确定在西班牙新生儿学会（SENeo，Spanish Society of Neonatología）两年一度的会议上发表的交流文章最终作为全文发表在索引同行评审期刊上的比例及其文献计量学特征：我们通过审查 2017 年、2019 年和 2021 年 SENeo 大会的口头交流（OC）摘要进行了横向研究。然后，我们在 MEDLINE 和 Scopus 数据库中搜索作者。我们收集了有关作者、OC类型和文献计量学特征的数据：样本包括 525 份OC，我们发现发表率为 40.38%，对应 212 篇论文，其中 78.8% 发表在国际期刊上。最常发表的期刊是《儿科学类杂志》（Anales de Pediatría）。影响因子、四分位数和引用次数的中位数和四分位数范围值分别为 2.86（1.96-3.98）、2（1-3）和 3（0-7），最近几届大会的影响因子显著增加。论文发表的中位时间为 10 个月（IQR，1-23）。多中心研究和以呼吸系统为主题的研究发表的比例更高：结论：提交给 SENeo 大会的 OCs 的发表频率与其他儿科大会的发表频率相似，影响因子高于所研究大会的平均值。多中心设计或以呼吸系统为主题的研究发表比例较高。
{"title":"Scientific output after the 2017, 2019 and 2021 meetings of the Sociedad Española de Neonatología","authors":"Luis Bachiller Carnicero","doi":"10.1016/j.anpede.2024.08.001","DOIUrl":"10.1016/j.anpede.2024.08.001","url":null,"abstract":"<div><h3>Introduction</h3><p>The sharing of research findings through communications at congresses and publications is essential for the dissemination of scientific knowledge. The aim was to determine the percentage of communications presented the biennial meetings of the Sociedad Española de Neonatología (SENeo, Spanish Society of Neonatology) eventually published as full-text articles in indexed peer-reviewed journals and their bibliometric characteristics.</p></div><div><h3>Material and methods</h3><p>We conducted a cross-sectional study by reviewing the abstracts from the oral communications (OCs) in the 2017, 2019 and 2021 SENeo congresses. Then we searched for the authors in the MEDLINE and Scopus databases. We collected data on the authors, type of OC and bibliometric characteristics.</p></div><div><h3>Results</h3><p>The sample included 525 OCs, and we found a publication rate of 40.38% corresponding to 212 publications, 78.8% of them in international journals. The most frequent journal of publication was <em>Anales de Pediatría</em>. The median and interquartile range values for the impact factor, quartile and number of citations were 2.86 (1.96–3.98), 2 (1−3) and 3 (0−7), respectively, with a remarkable increase in the impact factor for the most recent congresses. The median time elapsed to publication was 10 months (IQR, 1–23). The proportion published was higher for multicentre studies and those with a respiratory topic.</p></div><div><h3>Conclusions</h3><p>The frequency of publication for OCs submitted to SENeo congresses was similar to the frequency of publication for other paediatric congresses, with an impact factor that was above the mean of the congresses under study. The proportion of publication was higher for studies with a multicentre design or a respiratory topic.</p></div>","PeriodicalId":93868,"journal":{"name":"Anales de pediatria","volume":"101 3","pages":"Pages 157-164"},"PeriodicalIF":0.0,"publicationDate":"2024-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.sciencedirect.com/science/article/pii/S2341287924002072/pdfft?md5=1f488abe18dca68b2f06fc58b5d1de05&pid=1-s2.0-S2341287924002072-main.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142115834","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
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