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Evaluating end of treatment care of young people with cancer. 评估癌症青年患者的治疗结束护理。
Pub Date : 2024-04-01 Epub Date: 2023-09-29 DOI: 10.1177/13591045231204073
Eve Twivy, Helen Griffiths, Matthew Td Knight

Background: Existing literature implies there may be gaps in post-treatment support for young people with cancer. This service evaluation explored the needs and experiences of young people when ending cancer treatment in a UK children's hospital to inform service provisions.

Methods: Semi-structured interviews were conducted with nine young people, aged 13-18 years, who had finished active cancer treatment and were receiving follow-up care. The data was analysed using thematic analysis.

Results: Four main themes were developed: being in the dark (i.e. limited awareness of what happens when treatment ends); separation from the hospital (i.e. the loss of valued support from staff); consequences of cancer (i.e. managing ongoing psychological and physical effects); and getting back to normal life (i.e. shifting from hospital to everyday life).

Conclusions: Recommendations for improving clinical practice were made. Greater preparedness for ending treatment could be achieved by clearly setting out ongoing care arrangements, providing resource packs, having opportunities to mark the end of treatment, and offering peer support. To identify specific post-treatment needs, there should be an end of treatment multidisciplinary review and space for young people to share how they are feeling in follow-up medical appointments.

背景:现有文献表明,癌症年轻人的治疗后支持可能存在差距。这项服务评估探讨了年轻人在英国一家儿童医院结束癌症治疗时的需求和经验,为服务提供信息。方法:对9名13~18岁的年轻人进行半结构访谈,这些年轻人已完成癌症的积极治疗并正在接受随访。使用专题分析对数据进行了分析。结果:形成了四个主要主题:处于黑暗中(即对治疗结束时会发生什么的认识有限);与医院分离(即失去工作人员的宝贵支持);癌症的后果(即管理持续的心理和身体影响;恢复正常生活(即从医院转移到日常生活)。结论:提出了改进临床实践的建议。通过明确制定持续的护理安排、提供资源包、有机会标记治疗结束以及提供同伴支持,可以为结束治疗做好更大的准备。为了确定具体的治疗后需求,应该有一个治疗结束后的多学科审查,并为年轻人提供空间,让他们在后续医疗预约中分享自己的感受。
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引用次数: 0
Evolution of anhedonia in adolescent depression: An interpretative phenomenological analysis study. 青少年抑郁症患者厌世情绪的演变:一项解释性现象分析研究。
Pub Date : 2024-04-01 Epub Date: 2023-12-25 DOI: 10.1177/13591045231223862
Amrtavarshini R, Preeti Jacob, John Vijay Sagar Kommu

Introduction: Anhedonia is a symptom complex currently linked to dysfunctional reward processing. Phenomenological studies capture anhedonia as a loss of hedonic and eudemonic pleasure. However, there is a lack of integration between neurobiological understanding and clinical phenomenology. This study used a qualitative method to explore the interplay of sociocultural contexts and individual factors associated with the evolution of dysfunctional reward processing in adolescents with depression and anhedonia.

Methods: Ten female adolescents with a current or prior diagnosis of major depressive disorder were recruited from a public tertiary care child and adolescent psychiatry service. In-depth interviews were conducted, voice recorded, and transcribed verbatim. The transcripts were analyzed using Interpretative Phenomenological Analysis (IPA).

Findings: The adolescents hailed from urban families. Educational stress and relational difficulties figured prominently. Amotivation was the most important subdomain of anhedonia affected. An integrated framework for understanding the evolution of anhedonia is presented. Five main patterns of dysfunctional reward processing emerged in our study: an overworked system, erroneous reward valuation, reward-effort imbalance, and diversion of the reward processing system for self-preservation.

Conclusion: There is a necessity to build robust theoretical models of the evolution of anhedonia, hence finding homogenous sub-groups, paving the way for person-centric interventions for anhedonia.

简介失乐症是一种症状综合,目前与奖赏处理功能障碍有关。现象学研究将失乐症描述为享乐和愉悦感的丧失。然而,神经生物学理解与临床现象学之间缺乏整合。本研究采用定性方法探讨了社会文化背景和个体因素的相互作用,这些因素与患有抑郁症和厌食症的青少年奖赏加工功能障碍的演变有关:从一家公立三级医院的儿童和青少年精神病学服务机构招募了十名目前或之前被诊断为重度抑郁障碍的女性青少年。我们进行了深入访谈、录音和逐字记录。访谈记录采用解释性现象学分析法(IPA)进行分析:青少年来自城市家庭。教育压力和人际关系方面的困难非常突出。缺乏动力是失乐症最重要的子域。本文提出了一个理解失乐症演变的综合框架。在我们的研究中,出现了五种主要的奖赏处理功能障碍模式:系统过度疲劳、错误的奖赏评价、奖赏-努力失衡以及奖赏处理系统为自我保护而分流:结论:有必要建立健全的失乐症演变理论模型,从而找到同质亚群,为以人为本的失乐症干预措施铺平道路。
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引用次数: 0
Health-related quality of life among adolescents and young adults with mood and anxiety concerns. 有情绪和焦虑问题的青少年和年轻人的健康相关生活质量
Pub Date : 2024-04-01 Epub Date: 2023-11-18 DOI: 10.1177/13591045231214286
Ayman A Kazi, Elizabeth A Osuch, Michael Wammes, Ava John-Baptiste

Objectives: To characterize health related quality of life (HRQOL) for Canadians aged 16 to 25 (adolescents and young adults, AYAs) seeking care for mood and anxiety concerns at the First Episode Mood and Anxiety Program, in London, Ontario and to identify factors associated with HRQOL in this population.

Methods: AYAs completed demographic, psychometric, and HRQOL questionnaires. We calculated 36-Item Short-Form Health Survey (SF-36) scores standardized to Canadian and US population norms. We computed Short Form 6 Dimension (SF-6D) utilities conducting multivariable linear regression analysis, adjusting for age, sex, ethnoracial minority status, parental marital/cohabitation status, parental education, the Anxiety Sensitivity Index (ASI-R), Montgomery-Åsberg Depression Rating Scale Self-Report (MADRS-S), Sheehan Disability Scale (SDS), and a modified Inventory of College Students' Recent Life Experiences (ICSRLE-M).

Results: Amongst 182 AYAs who completed questionnaires, mean physical component summary (PCS), mental component summary (MCS) and SF-6D utility scores were low, 43.8 (SD = 16.6), 19.0 (SD = 11.9) and .576 (SD = .074), respectively. Maternal post-secondary education, depression (MADRS-S) and functional impairment (SDS) were significantly associated with SF-6D utility.

Conclusion: This cohort of mental healthcare-seeking AYAs had significantly impaired psychometric and utility-based measures of quality of life, underscoring the importance of timely access to healthcare services for this population.

目的:描述安大略省伦敦首次情绪和焦虑项目中16至25岁加拿大人(青少年和年轻人,AYAs)因情绪和焦虑问题寻求护理的健康相关生活质量(HRQOL)特征,并确定该人群中与HRQOL相关的因素。方法:asa完成人口统计、心理测量和HRQOL问卷。我们根据加拿大和美国的人口标准计算了36项简短健康调查(SF-36)得分。我们通过多变量线性回归分析计算了短表6维(SF-6D)效用,调整了年龄、性别、少数民族状况、父母婚姻/同居状况、父母教育程度、焦虑敏感性指数(ASI-R)、Montgomery-Åsberg抑郁评定量表自我报告(MADRS-S)、Sheehan残疾量表(SDS)和修改后的大学生近期生活经历量表(ICSRLE-M)。结果:完成问卷调查的182名青少年青少年中,身体成分总结(PCS)、心理成分总结(MCS)和SF-6D效用得分均值较低,分别为43.8分(SD = 16.6)、19.0分(SD = 11.9)和0.576分(SD = 0.074)。母亲的高等教育程度、抑郁(MADRS-S)和功能障碍(SDS)与SF-6D效用显著相关。结论:这组寻求精神卫生保健的aya患者的心理测量和基于效用的生活质量测量明显受损,强调了及时获得医疗保健服务对这一人群的重要性。
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引用次数: 0
"Truman syndrome" induced by online education: A case report in adolescent-Onset psychosis. 网络教育诱发的“杜鲁门综合征”:青少年发病性精神病一例报告。
Pub Date : 2024-04-01 Epub Date: 2023-10-18 DOI: 10.1177/13591045231208349
Burcu Yildirim Budak, Irem Yazici Karabulut

Early-onset schizophrenia (EOS) is an important psychiatric problem characterized by the onset of psychotic symptoms before the age of 18 years. We present the case of a 14-year-old girl who had social anxiety symptoms in the premorbid period and whose psychotic symptoms increased with pandemic restrictions and online education. Our patient's distance from the peer environment and school as well as the fact that she used webcams and online education more frequently in her daily life were risk factors for EOS. In accordance with the case of Truman syndrome, she has delusions that her daily life is secretly filmed and that she is a "TV star." Anti-anxiety treatments were initiated during the pre-pandemic period. After a diagnosis of schizophrenia was made, antipsychotic treatment was initiated. A significant response was observed after paliperidone (extended release) treatment. Close follow-ups revealed decreased delusions and increased functionality. Further studies are required to elucidate whether Truman syndrome and social anxiety are different aspects of a similar spectrum. With increasing digitalization, the direction of psychiatric diseases, including EOS, and measures that can be taken for adolescent mental health in crisis, such as pandemics, should be discussed in future research.

早发性精神分裂症(EOS)是一个重要的精神问题,其特征是在18岁前出现精神病症状。我们报告了一名14岁女孩的病例,她在发病前有社交焦虑症状,她的精神病症状随着疫情限制和在线教育而增加。我们的患者与同伴环境和学校的距离,以及她在日常生活中更频繁地使用网络摄像头和在线教育,都是EOS的风险因素。根据杜鲁门综合征的情况,她有一种错觉,认为自己的日常生活被秘密拍摄,她是一个“电视明星”。抗焦虑治疗是在疫情前开始的。在诊断为精神分裂症后,开始进行抗精神病药物治疗。帕利培酮(缓释)治疗后观察到显著的疗效。近距离随访显示妄想症减少,功能增强。需要进一步的研究来阐明杜鲁门综合征和社交焦虑是否是相似谱系中的不同方面。随着数字化程度的提高,包括EOS在内的精神疾病的发展方向,以及在流行病等危机中可以为青少年心理健康采取的措施,都应该在未来的研究中加以讨论。
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引用次数: 0
"It opened a new door for me": A qualitative study of forcibly displaced parents' experiences of an attachment-based parenting program. “这为我打开了一扇新的门”:一项关于被迫流离失所的父母在基于依恋的育儿计划中的经历的定性研究。
Pub Date : 2024-04-01 Epub Date: 2023-09-20 DOI: 10.1177/13591045231202875
Anna Kristen, Marlene M Moretti, Fatumo Osman

The aim of the study was to explore forcibly displaced parents' experiences of how an online attachment-based parenting program (eConnect) impacted their relationships with their teens. Data was collected from four focus group discussions with 28 parents who participated in the eConnect program. Data was analyzed using network thematic analysis. A global theme emerged from the analysis: Strengthened Parent-Teen Relationships. Four underpinning organizing themes described the process through which the parent-teen relationship was strengthened: Knowledge Served as the Foundation for Change, Increased Parental Self-Efficacy, Improved Emotional Attunement Facilitates Dyadic Affect Regulation, and Shifted Power Dynamics and Emerging Mutual Parent-Teen Partnership. Findings suggest that eConnect is promising intervention for strengthening parent-teen relationships and supporting forcibly displaced families.

这项研究的目的是探索被迫流离失所的父母的经历,即基于在线依恋的育儿计划(eConnect)如何影响他们与青少年的关系。数据是从与28名参与eConnect项目的家长的四次焦点小组讨论中收集的。数据采用网络专题分析法进行分析。分析得出了一个全球性的主题:加强父母与青少年的关系。四个基本的组织主题描述了加强父母与青少年关系的过程:知识是改变的基础,父母自我效能的提高,情绪调节的改善有助于情绪调节,权力动力的转变和父母与青少年共同伙伴关系的形成。研究结果表明,eConnect有望为加强父母与青少年的关系和支持被迫流离失所的家庭提供干预。
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引用次数: 0
Evaluation of the effectiveness of behavioral interventions for autism spectrum disorders: A systematic review of randomized controlled trials and quasi-experimental studies. 行为干预对自闭症谱系障碍有效性的评估:随机对照试验和准实验研究的系统综述。
Pub Date : 2024-01-01 Epub Date: 2023-10-06 DOI: 10.1177/13591045231205614
Carlo Pruneti, Gabriella Coscioni, Sara Guidotti

The objective of this research was to assess the efficacy of behavioral therapy interventions in the treatment of autism spectrum disorders (ASD). The study utilized the PubMed and Embase databases to locate randomized controlled trials, quasi-experimental treatment studies, and randomized clinical trial comparisons. The experimental group received treatment based on an applied behavioral approach, such as PECS, DTT, PRT, TEACCH, ESDM, and EIBI. After examining seventeen studies, the researchers found that each type of behavioral intervention had a positive impact. Naturalistic protocols that employed PRT and PECS improved ASD symptoms in general, despite their targeting of particular cognitive domains such as language. ESDM enhanced receptive language, particularly in preschool-aged children. Structured and integrated interventions, like EIBI and TEACCH, improved overall adaptive functioning. Combining DTT with a TEACCH program produced greater benefits in linguistic, affective-social, and personal autonomy domains. However, there is a scarcity of high-quality research available on behavioral interventions for ASD. Further comparative studies are necessary to identify cost-efficient interventions. For example, PRT and PECS significantly improved social communication skills in only 15-40 hours over six months. The authors emphasized the need for continued research and the application of evidence-based interventions in specialized settings.

本研究的目的是评估行为治疗干预对自闭症谱系障碍(ASD)的疗效。该研究利用PubMed和Embase数据库定位随机对照试验、准实验治疗研究和随机临床试验比较。实验组接受了基于应用行为方法的治疗,如PECS、DTT、PRT、TEACCH、ESDM和EIBI。在检查了17项研究后,研究人员发现每种类型的行为干预都有积极的影响。采用PRT和PECS的自然主义方案总体上改善了ASD症状,尽管它们针对特定的认知领域,如语言。ESDM增强了接受性语言,尤其是在学龄前儿童中。结构和综合干预措施,如EIBI和技经评估组,改善了整体适应功能。将DTT与TEACCH项目相结合,在语言、情感、社会和个人自主领域产生了更大的好处。然而,目前缺乏关于ASD行为干预的高质量研究。有必要进行进一步的比较研究,以确定具有成本效益的干预措施。例如,PRT和PECS在六个月内仅用15-40小时就显著提高了社交沟通技能。作者强调,需要继续进行研究,并在专门环境中应用循证干预措施。
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引用次数: 0
Sharing information about mental health services: To reach adolescents where they are, we need to market early help provision on social media. 分享心理健康服务信息:为了帮助青少年,我们需要在社交媒体上推广早期帮助。
Pub Date : 2024-01-01 Epub Date: 2023-10-23 DOI: 10.1177/13591045231209800
Maria E Loades, Debra M Desrochers, Sally Edgar, Melanie Luximon, Beatrice Sung

There is a large and widening gap between the need for mental health help and timely access to services for adolescents. To enable adolescents to access evidence-based help when they first begin to struggle, we need widespread public health messaging which promotes prompt problem recognition and encourages and facilitates help-seeking. Current messaging approaches are often to share information on websites, but adolescents do not tend to look at these. Adolescents have an almost ubiquitous presence on social media, including using these platforms to seek information and support. As mental health professionals and researchers, we need to capitalise on their presence in this space and share messages about early help and support in ways that are engaging, relevant, credible, and perceived to be trustworthy by adolescents. To do this, we need to learn from our interdisciplinary colleagues with social marketing expertise, and from co-designing messages and messaging strategies with adolescents themselves. We illustrate the unique value that each of these partners can bring to improve how information about early help for mental health is shared.

青少年在需要心理健康帮助和及时获得服务之间存在着巨大且不断扩大的差距。为了让青少年在刚开始挣扎时能够获得基于证据的帮助,我们需要广泛的公共卫生信息,促进及时认识问题,鼓励和促进寻求帮助。目前的信息传递方法通常是在网站上共享信息,但青少年并不倾向于查看这些信息。青少年在社交媒体上几乎无处不在,包括利用这些平台寻求信息和支持。作为心理健康专业人员和研究人员,我们需要利用他们在这个领域的存在,以吸引人、相关、可信和青少年信任的方式分享关于早期帮助和支持的信息。为此,我们需要向具有社会营销专业知识的跨学科同事学习,并与青少年自己共同设计信息和信息策略。我们展示了这些合作伙伴中的每一个都可以带来的独特价值,以改善如何共享有关心理健康早期帮助的信息。
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引用次数: 0
Remediation of theory of mind in children with autism spectrum disorders: Effectiveness and transferability of training effects to behavioral symptoms. 自闭症谱系障碍儿童心理理论的治疗:训练效果对行为症状的有效性和可转移性。
Pub Date : 2024-01-01 Epub Date: 2023-10-19 DOI: 10.1177/13591045231208580
Vahid Nejati, Nazanin Khankeshlooyee, Hosein Pourshahriar

Background: Children with autism spectrum disorders (ASD) struggle with impaired theory of mind. We aimed to evaluate the effect of remediation of theory of mind on theory of mind, face perception, and behavioral symptoms in children with ASD.

Methods: Thirty children with ASD were randomly assigned to two equal groups of theory of mind training and active control group. Attentive remediation of theory of mind (ARTOM) and story-telling sessions were used for intervention in the groups. Theory of mind and facial emotion recognition tests as well as Gilliam autism rating scale (GARS) were used for assessment in three baseline, post-intervention, and follow-up sessions. Repeated measures ANOVAs were used for analysis.

Results: The results showed improvement in facial emotion recognition and theory of mind in intervention group. The behavioral symptoms, measured by GARS, were ameliorated in the intervention group. The training effects lasted until follow-up session.

Conclusions: The results suggest remediation of basic components of theory of mind, without direct intervention on theory of mind, improves theory of mind skill. The results also suggest that the remediation of basic components of theory of mind improves social and communicational performance and ameliorates stereotypes symptoms in children with ASD.

背景:患有自闭症谱系障碍(ASD)的儿童与受损的心理理论作斗争。我们旨在评估心理理论补救对ASD儿童的心理理论、面部感知和行为症状的影响。方法:将30例ASD患儿随机分为心理训练理论组和主动对照组。心理理论的注意补救(ARTOM)和讲故事课程被用于干预组。心理理论和面部情绪识别测试以及Gilliam自闭症评定量表(GARS)用于三个基线、干预后和随访阶段的评估。采用重复测量方差分析进行分析。结果:干预组在面部情绪识别和心理理论方面均有所提高。通过GARS测量,干预组的行为症状有所改善。训练效果一直持续到后续训练。结论:研究结果表明,在不直接干预心理理论的情况下,修复心理理论的基本组成部分,可以提高心理技能理论。研究结果还表明,心理理论的基本组成部分的修复可以改善ASD儿童的社交和沟通表现,并改善刻板印象症状。
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引用次数: 0
Mental illness in children and its determinants in Ethiopia: A systematic review and meta-analysis, 2023. 埃塞俄比亚儿童精神疾病及其决定因素:一项系统综述和荟萃分析,2023年。
Pub Date : 2024-01-01 Epub Date: 2023-10-21 DOI: 10.1177/13591045231209078
Kalkidan Worku Mitiku, Eniyew Tegegne, Menichil Amsalu, Samuel Derbie Habtegiorgis, Birhanu Melaku

Introduction: Young people are at risk of developing mental health disorders. Depression, anxiety, and behavioral problems are among the primary causes of illness and impairment among teenagers. Suicide is the fourth highest cause of mortality in those aged 15 to 29. This study aimed to assess the determinants of mental health among children in Ethiopia.

Methods: Online databases were searched from inception until March 2023. Preferred Reporting Items for Systematic Reviews and Meta-Analyses 2020 was used in this review. Subgroup analysis, I2 test, funnel plot, and Egger's test were performed. Pooled odds ratios (OR) were calculated.

Result: Fourteen studies were included in the meta-analysis. The pooled prevalence of mental illnesses among Ethiopian children was 24.68% (95% CI: 19.99%-32.38%). Having previous child abuse history (OR: 5.65; 95% CI: 4.32-7.39), poor socio-economic status (OR: 1.94; 95% CI: 1.24-3.04), urban residence (OR: 1.93; 95% CI:1.39-2.67), and being male (OR: 1.65; 95% CI: 1.15-2.38) were determinants of childhood mental illness in Ethiopia.

Conclusion: and Recommendations: Mental disorders are highly prevalent in children with a history of child abuse, and a strong legislative body must be established to prosecute child abusers. Interventions that focus on gender equality in education and the creation of a safe environment for poor urban children are suggested.

引言:年轻人有患心理健康障碍的风险。抑郁、焦虑和行为问题是青少年患病和受损的主要原因。自杀是15至29岁人群中死亡率第四高的原因。这项研究旨在评估埃塞俄比亚儿童心理健康的决定因素。方法:从一开始到2023年3月,对在线数据库进行搜索。本综述使用了2020年系统评价和荟萃分析的首选报告项目。进行亚组分析、I2检验、漏斗图和Egger检验。计算合并优势比(OR)。结果:14项研究被纳入荟萃分析。埃塞俄比亚儿童的精神疾病总患病率为24.68%(95%置信区间:19.99%-32.38%)。有虐待儿童史(OR:5.65;95%置信区间4.32-7.39)、社会经济地位差(OR:1.94;95%置信度:1.24-3.04)、城市居住(OR:11.93;95%可信区间1.39-2.67),结论:和建议:精神障碍在有虐待儿童史的儿童中非常普遍,必须建立一个强有力的立法机构来起诉虐待儿童者。建议采取干预措施,重点关注教育中的性别平等和为城市贫困儿童创造一个安全的环境。
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引用次数: 0
Exploring psychosocial experiences of behavior therapists dealing with children having autism spectrum disorder. 探索行为治疗师处理自闭症谱系障碍儿童的心理社会体验。
Pub Date : 2024-01-01 Epub Date: 2023-10-21 DOI: 10.1177/13591045231209363
Samia Shahid, Fatima Javed, Muhammad Nasar Iqbal, Muhammad Rafiq

Behavior therapists play an important role in the life of children with an autism spectrum disorder (ASD). Literature reported that child's improvement depends on the quality of therapy they receive. Therefore, the current study aims to explore the psychosocial experiences of behavior therapist working with children having ASD, and suggest the coping strategies which they use to deal with those stressors. The study utilizes a qualitative research design with a phenomenological research approach to explore the psychosocial experiences. For this purpose, the researchers conduct semi-structured interviews of 6 behavior therapists, ages ranging from 25 to 35 years. They note the verbatim of the therapists and convert into codes to create themes and categories. Furthermore, the study utilizes Interpretative Phenomenological Analysis for the interpretation of the results. The results of this phenomenological research indicate six superordinate themes emerged from the transcripts. The results demonstrate professional and psychological experiences of behavior therapists along with the social and the health issues faced by the children with ASD, and the coping strategies used by the therapists that is emotion focused coping, problem focused coping and maladaptive copings. Gaining insight into therapists' psychosocial experiences can pave the way for developing approaches aimed at enhancing their overall welfare. These approaches may encompass initiatives to alleviate stress, mitigate burnout, and boost job satisfaction.

行为治疗师在自闭症谱系障碍(ASD)儿童的生活中发挥着重要作用。文献报道,儿童的进步取决于他们接受的治疗质量。因此,本研究旨在探索行为治疗师处理自闭症儿童的心理社会体验,并提出他们应对这些压力源的应对策略。本研究采用定性研究设计和现象学研究方法来探索心理社会体验。为此,研究人员对6名行为治疗师进行了半结构化访谈,年龄从25岁到35岁不等。他们记录治疗师的逐字逐句,并转换成代码来创建主题和类别。此外,本研究利用解释现象学分析来解释结果。这一现象学研究的结果表明,六个上级主题出现在转录本中。研究结果展示了行为治疗师的专业和心理经验,以及自闭症谱系障碍儿童面临的社会和健康问题,以及治疗师使用的应对策略,即情绪为主的应对、问题为主的应对和不适应的应对。深入了解治疗师的心理社会经历可以为制定旨在提高其整体福利的方法铺平道路。这些方法可能包括缓解压力、缓解倦怠和提高工作满意度的举措。
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引用次数: 0
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Clinical child psychology and psychiatry
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