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Educational Needs of Informal Caregivers in Cardiac Rehabilitation: a Mixed-Methods Study. 心脏康复中非正式护理人员的教育需求:一项混合方法研究。
Pub Date : 2025-01-07 DOI: 10.1093/eurjcn/zvaf001
Ana Paula Delgado Bomtempo, Gabriela Lima de Melo Ghisi

Aim: Informal caregivers play a crucial role in supporting individuals with cardiovascular disease (CVD) during cardiac rehabilitation (CR), yet their specific educational needs are often overlooked. Understanding these needs is essential for developing targeted interventions that enhance informal caregiver support and improve patient outcomes in CR. This study aimed to explore the educational needs of informal caregivers supporting individuals with CVD attending CR.

Methods and results: A mixed-methods approach was used to explore the educational needs of informal caregivers. Quantitative data were collected through an online cross-sectional survey completed by 86 informal caregivers. The survey assessed sociodemographic characteristics, quality of life (WHOQOL-BREF), and educational needs. Most respondents had not received formal education or training related to caregiving, although their knowledge of CVD was rated as moderate to high. Many reported difficulties accessing reliable information and resources. Qualitative data were gathered through semi-structured interviews with 16 informal caregivers, and four key themes were determined: Helpful Resources, Empowerment, Lived Experience Network, and Psychological Support. Informal caregivers expressed a desire for practical resources, more direct access to healthcare professionals, and both emotional and peer support. They also highlighted the importance of managing stress and balancing their well-being alongside caregiving responsibilities.

Conclusion: The findings suggest that educational interventions for informal caregivers should be comprehensive and flexible, incorporating practical caregiving strategies as well as social and emotional support. Such programs could enhance the effectiveness of CR by better equipping informal caregivers to support patient recovery while maintaining their own health.

目的:在心脏康复(CR)期间,非正式护理人员在支持心血管疾病(CVD)患者方面发挥着至关重要的作用,但他们的特殊教育需求往往被忽视。了解这些需求对于制定有针对性的干预措施,加强非正式护理人员的支持,改善CR患者的预后至关重要。本研究旨在探讨非正式护理人员支持心血管疾病患者参加CR的教育需求。定量数据是通过86名非正式护理人员完成的在线横断面调查收集的。该调查评估了社会人口学特征、生活质量(WHOQOL-BREF)和教育需求。大多数受访者没有接受过与护理相关的正规教育或培训,尽管他们对心血管疾病的了解程度被评为中等到较高。许多报告称难以获得可靠的信息和资源。通过对16名非正式护理人员的半结构化访谈收集定性数据,确定了四个关键主题:有用资源、赋权、生活体验网络和心理支持。非正式护理人员表达了对实际资源的渴望,更直接地获得医疗保健专业人员,以及情感和同伴支持。他们还强调了管理压力和平衡健康与照顾责任的重要性。结论:对非正规照护者的教育干预应是全面和灵活的,包括实用的照护策略以及社会和情感支持。这些项目可以通过更好地装备非正式护理人员来支持患者康复,同时保持自身健康,从而提高CR的有效性。
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引用次数: 0
The promise of truly interactive and real-time digital counselling in patients with coronary artery disease: a commentary. 冠状动脉疾病患者真正互动和实时数字咨询的承诺:评论。
Pub Date : 2025-01-06 DOI: 10.1093/eurjcn/zvae175
Gianluca Conte, Arianna Magon, Rosario Caruso
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引用次数: 0
Challenges and strategies for effective recruitment and retention of participants in clinical research studies. 有效招募和保留临床研究参与者的挑战和策略。
Pub Date : 2025-01-03 DOI: 10.1093/eurjcn/zvae158
Leonie Klompstra, Anna Strömberg, Tiny Jaarsma, Jeroen M Hendriks

Effective recruitment and retention of participants in clinical research studies are critical to be able to draw meaningful and valid conclusions in research studies. However, there are multiple challenges related to communication, generalizability, and logistics. Researchers must address and overcome these challenges to ensure robust research outcomes. Effective strategies include honest and clear communication, awareness of reasons for (non)-participation, incentivization, and reimbursements of expenses as well as co-designing interventions and research protocols. This paper outlines common issues in participant recruitment and retention and provides practical strategies to overcome challenges.

有效招募和保留临床研究的参与者对于能够在研究中得出有意义和有效的结论至关重要。然而,在沟通、通用性和后勤方面存在多重挑战。科学家必须应对和克服这些挑战,以确保强有力的研究成果。有效的策略包括诚实和清晰的沟通,意识到(不)参与的原因,激励和报销费用,以及共同设计干预措施和研究方案。本文概述了参与者招募和保留的常见问题,并提供了克服挑战的实用策略。
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引用次数: 0
Effects of exergaming and yoga on exercise capacity and physical and mental health in heart failure patients: a randomized sub-study. 运动和瑜伽对心力衰竭患者运动能力和身心健康的影响:一项随机子研究
Pub Date : 2025-01-02 DOI: 10.1093/eurjcn/zvae155
Leonie Klompstra, Eva Hägglund, Tiny Jaarsma, Naoko P Kato, Anna Strömberg

Aims: This study aimed to explore effects of exergaming and medical yoga on exercise capacity, fatigue, shortness of breath, health-related quality of life, depression, and anxiety in patients with heart failure.

Methods and results: A randomized sub-study with a 3-month intervention and outcomes measures at baseline, 3, 6, and 12 months. Participants were recruited from heart failure clinics in Sweden. Treatment effects in change of outcomes were tested in an analysis of mixed-effects models with repeated measures. Change in outcomes was the dependent variable. The independent fixed-effect parameters were treatment group, time, and the interaction between treatment group and time.In total, 104 patients (37% women, mean age 71 ± 12, 48% in New York Heart Association Class II and 42% in III) were randomized to exergaming (n = 35), medical yoga (n = 33), or an active control group (n = 36). No statistically significant differences were found between these three groups on any of the outcome measures. Exergaming significantly improved exercise capacity, fatigue, shortness of breath, and physical health-related quality of life and medical yoga improved symptoms of fatigue and emotional health-related quality of life. The control group did not change on the exercise capacity, symptoms, health-related quality of life, or depressive or anxiety symptoms. The well-being score in patients in the control group significantly decreased at 3 months.

Conclusion: Both exergaming and medical yoga demonstrated positive impacts on outcomes when compared with a control group. Exergaming, characterized by its elevated physical intensity, exerted effects primarily on physical health, while medical yoga, as a mind-body intervention, exhibited influences on emotional well-being.

Registration: ClinicalTrial.gov: NCT01785121.

目的:本研究旨在探讨运动瑜伽和医学瑜伽对心力衰竭患者运动能力、疲劳、呼吸短促、健康相关生活质量、抑郁和焦虑的影响。方法和结果:一项随机亚研究,干预3个月,基线、3、6和12个月的结果测量。参与者是从瑞典的心力衰竭诊所招募的。在重复测量的混合效应模型分析中,对结果变化的治疗效果进行了测试。结果的变化是因变量。独立固定效应参数为治疗组、时间、治疗组与时间的交互作用。总共104例患者(37%为女性,平均年龄71±12岁,48%为纽约心脏协会II级,42%为III级)被随机分为运动组(n = 35)、医学瑜伽组(n = 33)和积极对照组(n = 36)。在任何结果测量上,这三组之间没有发现统计学上的显著差异。锻炼显著改善了运动能力、疲劳、呼吸短促和身体健康相关的生活质量,医学瑜伽改善了疲劳症状和情绪健康相关的生活质量。对照组在运动能力、症状、健康相关生活质量、抑郁或焦虑症状方面没有变化。对照组患者幸福感评分在3个月时明显下降。结论:与对照组相比,运动和医学瑜伽对结果都有积极的影响。运动的特点是提高身体强度,主要对身体健康产生影响,而医学瑜伽作为一种身心干预,对情绪健康产生影响。注册:ClinicalTrial.gov: NCT01785121。
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引用次数: 0
Class 1, Level A: that's the recommendation for transitional care in young people with heart disease. 1级,A级:这是对患有心脏病的年轻人的过渡性护理的建议。
Pub Date : 2025-01-02 DOI: 10.1093/eurjcn/zvae160
Philip Moons
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引用次数: 0
Effect of interactive digital counselling on risk factors and lifestyle in patients with coronary artery disease: a systematic review and meta-analysis. 交互式数字咨询对冠状动脉疾病患者危险因素和生活方式的影响:系统回顾和荟萃分析
Pub Date : 2025-01-02 DOI: 10.1093/eurjcn/zvae154
Minna Lahtinen, Pirjo Kaakinen, Miia M Jansson, Karoliina Paalimäki-Paakki, Mari Virtanen, Heli Kerimaa, Kirsi Kivelä, Anne Oikarinen, Mira Rajala, Krista Hylkilä, Maria Kääriäinen

Aims: Digital counselling has gained paramount importance for coronary artery disease (CAD) patients' treatment in recent years. It has been shown to provide a multitude of benefits, including improved risk factors and enhanced lifestyles. No previous reviews have emphasized the interactiveness of digital counselling. Consequently, the aim of this review is to determine whether interactive two-way digital counselling can provide effective secondary prevention as alternative or adjunct care compared with usual care, where patients visit a cardiac clinic and obtain verbal information and written recommendations of the risk factors without a digital intervention.

Methods and results: Studies that implemented digital interventions in patient counselling among CAD patients were identified by searching 10 electronic databases at the end of August 2022 and updated on 15 December 2023. The Joanna Briggs Institution (JBI) protocol was used for screening, quality assessment, data extraction, and meta-analysis. In total, 15 papers were identified that reported the effect of interactive digital counselling on risk factors and lifestyle changes in CAD patients. The results of the meta-analyses had neutral pre-defined outcomes and did not show any effect on cardiovascular risk factors or lifestyle changes.

Conclusion: There is a need for better descriptions of the content and delivery of interactive digital interventions in studies. In the future, digital interventions should be designed not only to focus on patient, but to incorporate social support, peer groups, and interactive tools on a digital platform. Social support has proved to be important in terms of adherence to treatment.

Registration: PROSPERO CRD42021247315.

目的:近年来,数字咨询对冠状动脉疾病(CAD)患者的治疗具有至关重要的意义。它已被证明提供了许多好处,包括改善风险因素和改善生活方式。之前没有评论强调过数字咨询的互动性。因此,本综述的目的是确定与常规护理相比,交互式双向数字咨询是否可以提供有效的二级预防,作为替代或辅助护理,在常规护理中,患者访问心脏诊所,在没有数字干预的情况下获得口头信息和危险因素的书面建议。方法和结果:通过在2022年8月底检索10个电子数据库并于2023年12月15日更新,确定了在CAD患者中实施数字干预的研究。采用乔安娜布里格斯研究所(JBI)方案进行筛选、质量评估、数据提取和荟萃分析。总共有15篇论文报告了交互式数字咨询对CAD患者风险因素和生活方式改变的影响。荟萃分析的结果具有中性的预定义结果,没有显示出对心血管危险因素或生活方式改变的任何影响。结论:有必要更好地描述研究中交互式数字干预的内容和交付。未来,数字干预措施的设计不仅应关注患者,还应将社会支持、同伴团体和互动工具纳入数字平台。社会支持在坚持治疗方面已被证明是重要的。注册号:PROSPERO CRD42021247315。
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引用次数: 0
Experienced-based co-design for cardiovascular and chronic disease research. 心血管和慢性疾病研究的基于经验的协同设计。
Pub Date : 2025-01-02 DOI: 10.1093/eurjcn/zvae129
Binu Koirala, Chitchanok Benjasirisan, Arum Lim, Robyn Moore, Cheryl R Dennison Himmelfarb, Patricia M Davidson

The participatory co-design method has received significant attention recently. Experience-based co-design is an approach that enables patients (service users) and healthcare providers (service delivers) to co-design services and care pathways in partnership to improve health outcomes based on their experience. Traditionally, it was used as a quality improvement technique. Yet, it is a valuable participatory research design that can help improve health outcomes and be applied in nursing research. This paper will discuss its application in research among people living with cardiovascular multimorbidity and its practicalities, usability, and impact on cardiovascular and chronic disease research and models of care.

参与式协同设计方法近年来受到了广泛的关注。基于经验的协同设计是一种方法,使患者(服务使用者)和医疗保健提供者(服务提供者)能够合作共同设计服务和护理途径,以根据他们的经验改善健康结果。传统上,它被用作一种质量改进技术。然而,它是一种有价值的参与性研究设计,可以帮助改善健康结果并应用于护理研究。本文将讨论其在心血管多病人群研究中的应用及其实用性、可用性以及对心血管和慢性疾病研究和护理模式的影响。
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引用次数: 0
Association between socioeconomic position and discontinuation of pharmacotherapy for heart failure after cardiac resynchronization therapy. 社会经济地位与心脏再同步化疗法后停止心力衰竭药物治疗之间的关系。
Pub Date : 2024-12-16 DOI: 10.1093/eurjcn/zvae083
Maria Hee Jung Park Frausing, Christoffer Tobias Witt, István Bakos, Erzsébet Horváth-Puhó, Brian Bridal Løgstrup, Hans Eiskjær, Jens Cosedis Nielsen, Rikke Elmose Mols

Aims: Pharmacological therapy remains a cornerstone in heart failure (HF) treatment despite the implantation of a cardiac resynchronization therapy (CRT) device. The aim of this study was to investigate the association between (i) drug discontinuation and (ii) long-term adherence to HF pharmacotherapy after CRT implantation and socioeconomic position and multimorbidity.

Methods and results: We conducted a registry-based cohort study including all patients who underwent a first-time CRT implantation at Aarhus University Hospital from 2000 to 2017. Heart failure pharmacotherapy included beta-blockers (BBs), renin-angiotensin system inhibitors [angiotensin-converting enzyme inhibitor (ACEI)/angiotensin II receptor blocker (ARB)], and mineralocorticoid receptor antagonists (MRAs). Patients were identified using the Danish Pacemaker and International Classification for Disease Registry, and information about medication and comorbidities was obtained through linkage to the Danish health registries. We identified 2007 patients, of whom 1880 (94%) were eligible for inclusion. The cumulative incidence of drug discontinuation at 10 years was 6% [95% confidence interval (CI) 5-8%] for BB, 10% (95% CI 9-12%) for ACEI/ARB, and 24% (95% CI 20-27%) for MRAs. Living alone was associated with higher BB discontinuation rates [hazard ratio (HR) 1.83, 95% CI 1.20-2.79], whereas patients with multimorbidity were more likely to discontinue ACEI/ARB (HR 1.92, 95% CI 1.33-2.80) and MRA therapy (HR 1.51, 95% CI 1.10-2.09). Income and educational level did not influence drug discontinuation rates, and similar adherence patterns were observed across all strata of socioeconomic position and multimorbidity.

Conclusion: In patients with CRTs, drug discontinuation rates were low, and adherence to HF pharmacotherapy was comparable regardless of socioeconomic position. Living alone and multimorbidity were associated with the discontinuation of specific HF drugs.

目的:尽管植入了心脏再同步化治疗(CRT)装置,但药物治疗仍是心力衰竭(HF)治疗的基石。本研究旨在调查 1)停药和 2)植入 CRT 后长期坚持高血压药物治疗与社会经济地位和多病之间的关系:我们开展了一项基于登记的队列研究,研究对象包括2000-2017年期间在奥胡斯大学医院首次接受CRT植入术的所有患者。高血压药物治疗包括β受体阻滞剂(BB)、肾素血管紧张素系统抑制剂(ACEI/ARB)和矿物质皮质激素受体拮抗剂(MRA)。通过丹麦心脏起搏器和 ICD 登记处确定了患者身份,并通过与丹麦健康登记处的链接获得了有关药物和合并症的信息。我们确定了 2,007 名患者,其中 1,880 人(94%)符合纳入条件。10年后,BB的累计停药率为6%(95%置信区间[CI] 5-8%),ACEI/ARB为10%(95%置信区间[CI] 9-12%),MRA为24%(95%置信区间[CI] 20-27%)。独居与较高的 BB 停药率相关(危险比 [HR] 1.83,95%CI 1.20-2.79),而多病症患者更有可能停止 ACEI/ARB(HR 1.92,95%CI 1.33-2.80)和 MRA 治疗(HR 1.51,95%CI 1.10-2.09)。收入和教育水平并不影响停药率,在社会经济地位和多病症的所有阶层都观察到了类似的依从模式:在使用 CRT 的患者中,停药率很低,而且无论社会经济地位如何,对高血压药物治疗的依从性相当。独居和多病与停用特定的高血压药物有关。
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引用次数: 0
Redefining patient experience: insights from the ATLAS trial on subcutaneous vs. transvenous implantable defibrillators. 重新定义患者体验:关于皮下植入式除颤器与经静脉植入式除颤器的 ATLAS 试验的启示。
Pub Date : 2024-12-16 DOI: 10.1093/eurjcn/zvae082
Katia Regina Silva, Roberto Costa
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引用次数: 0
Beyond testing: understanding the patient perspective of medication adherence in hypertension. 超越测试:从患者角度了解高血压患者的用药依从性。
Pub Date : 2024-12-16 DOI: 10.1093/eurjcn/zvae131
Trond Røed Pettersen, Dion Candelaria
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引用次数: 0
期刊
European journal of cardiovascular nursing
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