Bo Daelman, Tijs K Tournoy, Davide Morselli, Koen Luyckx, Philip Moons
Retrospective data collection methods provide a practical and cost-effective alternative to traditional longitudinal studies, particularly when time and resource constraints hinder long-term follow-up. While conventional retrospective questionnaires are widely used, their susceptibility to recall errors often compromises data reliability and accuracy. The Life History Calendar (LHC) has emerged as a solution to these limitations by incorporating visual prompts and contextual cues to enhance recall and improve data quality. This article offers a comprehensive overview of the LHC approach, highlighting its flexible design and diverse administration methods. Additionally, key considerations for the effective management, analysis and visualisation of LHC data are discussed.
{"title":"Mapping Memories: Enhancing Retrospective Data with the Life History Calendar.","authors":"Bo Daelman, Tijs K Tournoy, Davide Morselli, Koen Luyckx, Philip Moons","doi":"10.1093/eurjcn/zvaf035","DOIUrl":"https://doi.org/10.1093/eurjcn/zvaf035","url":null,"abstract":"<p><p>Retrospective data collection methods provide a practical and cost-effective alternative to traditional longitudinal studies, particularly when time and resource constraints hinder long-term follow-up. While conventional retrospective questionnaires are widely used, their susceptibility to recall errors often compromises data reliability and accuracy. The Life History Calendar (LHC) has emerged as a solution to these limitations by incorporating visual prompts and contextual cues to enhance recall and improve data quality. This article offers a comprehensive overview of the LHC approach, highlighting its flexible design and diverse administration methods. Additionally, key considerations for the effective management, analysis and visualisation of LHC data are discussed.</p>","PeriodicalId":93997,"journal":{"name":"European journal of cardiovascular nursing","volume":" ","pages":""},"PeriodicalIF":0.0,"publicationDate":"2025-03-07","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143574888","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Mary Roberts Davis, Christopher V Chien, Jonathan Auld
{"title":"The struggle is real! Measuring and managing heart failure congestion in the outpatient setting.","authors":"Mary Roberts Davis, Christopher V Chien, Jonathan Auld","doi":"10.1093/eurjcn/zvaf034","DOIUrl":"https://doi.org/10.1093/eurjcn/zvaf034","url":null,"abstract":"","PeriodicalId":93997,"journal":{"name":"European journal of cardiovascular nursing","volume":" ","pages":""},"PeriodicalIF":0.0,"publicationDate":"2025-03-07","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143576015","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"From invisible to visible: a new position for informal caregivers.","authors":"Ida Elisabeth Højskov","doi":"10.1093/eurjcn/zvaf030","DOIUrl":"https://doi.org/10.1093/eurjcn/zvaf030","url":null,"abstract":"","PeriodicalId":93997,"journal":{"name":"European journal of cardiovascular nursing","volume":" ","pages":""},"PeriodicalIF":0.0,"publicationDate":"2025-03-05","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143560375","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Suzanne Fredericks, Julie Sanders, Maria Back, Lien Desteghe, Ana Gomes, Elena Marques-Sule, Maggie Simpson, Jeroen M Hendriks
Many nurses and allied professionals (NAPs) lack the skills, knowledge and confidence to engage in conducting and implementing research. This statement describes the importance of NAPs' involvement in clinical research within the context of cardiovascular care. The existing gaps, barriers and enablers to NAPs involvement in research as a potential response to workforce issues in these professions as well as to contribute to excellence in patient care delivery and associated outcomes are identified. Specifically, career development pathways for NAPs are discussed. Finally, potential future directions for NAP research in clinical practice are provided.
{"title":"Nurses and allied professionals' engagement in clinical research-in-practice: a statement of the Association of Cardiovascular Nursing & Allied Professions of the European Society of Cardiology.","authors":"Suzanne Fredericks, Julie Sanders, Maria Back, Lien Desteghe, Ana Gomes, Elena Marques-Sule, Maggie Simpson, Jeroen M Hendriks","doi":"10.1093/eurjcn/zvae172","DOIUrl":"10.1093/eurjcn/zvae172","url":null,"abstract":"<p><p>Many nurses and allied professionals (NAPs) lack the skills, knowledge and confidence to engage in conducting and implementing research. This statement describes the importance of NAPs' involvement in clinical research within the context of cardiovascular care. The existing gaps, barriers and enablers to NAPs involvement in research as a potential response to workforce issues in these professions as well as to contribute to excellence in patient care delivery and associated outcomes are identified. Specifically, career development pathways for NAPs are discussed. Finally, potential future directions for NAP research in clinical practice are provided.</p>","PeriodicalId":93997,"journal":{"name":"European journal of cardiovascular nursing","volume":" ","pages":"185-193"},"PeriodicalIF":0.0,"publicationDate":"2025-03-03","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143061796","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Ladislav Batalik, Jing Jing Su, Chen Yang, Garyfallia Pepera
{"title":"Enhancing patient activation in cardiovascular health through personalized mobile health interventions and social support.","authors":"Ladislav Batalik, Jing Jing Su, Chen Yang, Garyfallia Pepera","doi":"10.1093/eurjcn/zvae161","DOIUrl":"10.1093/eurjcn/zvae161","url":null,"abstract":"","PeriodicalId":93997,"journal":{"name":"European journal of cardiovascular nursing","volume":" ","pages":"323-324"},"PeriodicalIF":0.0,"publicationDate":"2025-03-03","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142934142","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Patricia M Davidson, Binu Koirala, Cheryl R Himmelfarb
{"title":"Nurse led heart failure clinics: looking back and moving forward.","authors":"Patricia M Davidson, Binu Koirala, Cheryl R Himmelfarb","doi":"10.1093/eurjcn/zvaf005","DOIUrl":"10.1093/eurjcn/zvaf005","url":null,"abstract":"","PeriodicalId":93997,"journal":{"name":"European journal of cardiovascular nursing","volume":" ","pages":"301-304"},"PeriodicalIF":0.0,"publicationDate":"2025-03-03","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143018605","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Lieselotte Knaepen, Lien Desteghe, Michiel Delesie, Rana Önder, Johan Vijgen, Paul Dendale, Joris Ector, Hein Heidbuchel
Aims: Developing an integrated care pathway for atrial fibrillation (AF) patients is of pivotal importance, given the different treatment strategies. Moreover, knowledge about the condition is an important factor in engaging patients in their care. Patient education formed the core of the integrated AF-EduCare/AF-EduApp approach. The main aim of this manuscript is to report the impact of this approach on AF and risk factor (RF)-related knowledge and self-care awareness.
Methods and results: Atrial fibrillation patients (n = 1232) were randomized to standard care (SC) or three educational interventions: in-person, online, or app-based education. Patients in the intervention groups received targeted education based on their responses to the Jessa Atrial fibrillation Knowledge Questionnaire (JAKQ) and a Self-Care Questionnaire (SCQ) presented at different time points. Patients who received educational follow-up reached a significantly higher knowledge score (in-person: 86.5 ± 13.2%; online: 82.5 ± 19.3%; app: 80.1 ± 15.0%) than the SC group (65.3 ± 16.6%) after 12/18 months (P < 0.001). The knowledge rapidly improved with the first sessions (i.e. 3 months) and remained sustained in all education groups. Patients with RF at baseline showed a slight but significant increase in awareness about their RF through education [e.g. no knowledge of last measured systolic blood pressure compared between education vs. SC: odds ratio of 0.45 (P = 0.012)], a change that was not seen in SC patients. Nevertheless, patients keep under-estimating the presence of their own RFs compared with objective documentation in their medical record (e.g. hypertension).
Conclusion: The JAKQ and SCQ are good instruments to provide targeted education to AF patients in daily clinical care. Knowledge level increases clinically significantly, but the impact on awareness about personal risk factors remains unsatisfactory.
{"title":"Effectiveness of the AF-EduCare and AF-EduApp approach to improve atrial fibrillation knowledge and risk factor awareness in patients with atrial fibrillation: a randomized controlled trial.","authors":"Lieselotte Knaepen, Lien Desteghe, Michiel Delesie, Rana Önder, Johan Vijgen, Paul Dendale, Joris Ector, Hein Heidbuchel","doi":"10.1093/eurjcn/zvae164","DOIUrl":"10.1093/eurjcn/zvae164","url":null,"abstract":"<p><strong>Aims: </strong>Developing an integrated care pathway for atrial fibrillation (AF) patients is of pivotal importance, given the different treatment strategies. Moreover, knowledge about the condition is an important factor in engaging patients in their care. Patient education formed the core of the integrated AF-EduCare/AF-EduApp approach. The main aim of this manuscript is to report the impact of this approach on AF and risk factor (RF)-related knowledge and self-care awareness.</p><p><strong>Methods and results: </strong>Atrial fibrillation patients (n = 1232) were randomized to standard care (SC) or three educational interventions: in-person, online, or app-based education. Patients in the intervention groups received targeted education based on their responses to the Jessa Atrial fibrillation Knowledge Questionnaire (JAKQ) and a Self-Care Questionnaire (SCQ) presented at different time points. Patients who received educational follow-up reached a significantly higher knowledge score (in-person: 86.5 ± 13.2%; online: 82.5 ± 19.3%; app: 80.1 ± 15.0%) than the SC group (65.3 ± 16.6%) after 12/18 months (P < 0.001). The knowledge rapidly improved with the first sessions (i.e. 3 months) and remained sustained in all education groups. Patients with RF at baseline showed a slight but significant increase in awareness about their RF through education [e.g. no knowledge of last measured systolic blood pressure compared between education vs. SC: odds ratio of 0.45 (P = 0.012)], a change that was not seen in SC patients. Nevertheless, patients keep under-estimating the presence of their own RFs compared with objective documentation in their medical record (e.g. hypertension).</p><p><strong>Conclusion: </strong>The JAKQ and SCQ are good instruments to provide targeted education to AF patients in daily clinical care. Knowledge level increases clinically significantly, but the impact on awareness about personal risk factors remains unsatisfactory.</p><p><strong>Registration: </strong>ClinicalTrials/gov: NCT03707873NCT03788044.</p>","PeriodicalId":93997,"journal":{"name":"European journal of cardiovascular nursing","volume":" ","pages":"266-276"},"PeriodicalIF":0.0,"publicationDate":"2025-03-03","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142960541","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Zekun Bian, Bin Shang, Caifeng Luo, Fei Lv, Weiyi Sun, Yijing Gong, Jun Liu
Aims: To construct a symptom network of chronic heart failure patients in the vulnerable period and identify core symptoms and bridge symptoms between different symptom clusters.
Methods and results: A convenience sampling method was used to select 402 patients with chronic heart failure within 3 months after discharge from the cardiology departments of two tertiary-level A hospitals in Zhenjiang City, and symptom-related entries of the Minnesota living with heart failure questionnaire (MLHFQ) were used to conduct the survey. Symptom networks were constructed using the R language. The constructed symptom network was structurally stable, and the correlation stability coefficient was 0.595. In the network, 'depression' (MLHFQ9), 'dyspnoea on exertion' (MLHFQ3), and 'worry' (MLHFQ7) are the core symptoms. 'Cognitive problems' (MLHFQ8), 'sleep difficulties' (MLHFQ4), and 'fatigue' (MLHFQ6) are bridge symptoms connecting the emotional-cognitive and somatic symptom clusters. In the network comparison test, there were no significant differences in symptom networks between patients of different genders and places of residence.
Conclusion: 'Depression' and 'increased need to rest' are the core and most severe symptoms, respectively, in the vulnerable phase of chronic heart failure, and 'cognitive problems' is the most important bridge symptom. Clinical caregivers can build a precise intervention programme based on the core and bridge symptoms and focus on the emotional and cognitive symptom clusters, in order to improve the efficacy of symptom management during the vulnerable period in patients with chronic heart failure.
{"title":"Exploring symptom clusters and core symptoms during the vulnerable phase in patients with chronic heart failure: a network-based analysis.","authors":"Zekun Bian, Bin Shang, Caifeng Luo, Fei Lv, Weiyi Sun, Yijing Gong, Jun Liu","doi":"10.1093/eurjcn/zvae152","DOIUrl":"10.1093/eurjcn/zvae152","url":null,"abstract":"<p><strong>Aims: </strong>To construct a symptom network of chronic heart failure patients in the vulnerable period and identify core symptoms and bridge symptoms between different symptom clusters.</p><p><strong>Methods and results: </strong>A convenience sampling method was used to select 402 patients with chronic heart failure within 3 months after discharge from the cardiology departments of two tertiary-level A hospitals in Zhenjiang City, and symptom-related entries of the Minnesota living with heart failure questionnaire (MLHFQ) were used to conduct the survey. Symptom networks were constructed using the R language. The constructed symptom network was structurally stable, and the correlation stability coefficient was 0.595. In the network, 'depression' (MLHFQ9), 'dyspnoea on exertion' (MLHFQ3), and 'worry' (MLHFQ7) are the core symptoms. 'Cognitive problems' (MLHFQ8), 'sleep difficulties' (MLHFQ4), and 'fatigue' (MLHFQ6) are bridge symptoms connecting the emotional-cognitive and somatic symptom clusters. In the network comparison test, there were no significant differences in symptom networks between patients of different genders and places of residence.</p><p><strong>Conclusion: </strong>'Depression' and 'increased need to rest' are the core and most severe symptoms, respectively, in the vulnerable phase of chronic heart failure, and 'cognitive problems' is the most important bridge symptom. Clinical caregivers can build a precise intervention programme based on the core and bridge symptoms and focus on the emotional and cognitive symptom clusters, in order to improve the efficacy of symptom management during the vulnerable period in patients with chronic heart failure.</p>","PeriodicalId":93997,"journal":{"name":"European journal of cardiovascular nursing","volume":" ","pages":"279-287"},"PeriodicalIF":0.0,"publicationDate":"2025-03-03","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142916687","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Naoko P Kato, Marie Mattisson, Pernilla Grahn, Maria Liljeroos, Peter Johansson, Anna Strömberg, Tiny Jaarsma
Thorough consideration of user experiences and the weighing of advantages and disadvantages are essential when implementing new technology in clinical practice. This article describes a primary care nurse's experience using two technologies to monitor lung congestion in six patient cases: a remote dielectric sensing device for non-invasive lung fluid measurement and a portable handheld ultrasound device. Both can support decision-making when assessing lung congestion in heart failure patients. However, technical difficulties and interpretational complexities are inherent in their use. Balancing these advantages and disadvantages and finding effective strategies to address challenges is crucial for successful clinical implementation.
{"title":"Describing the use of remote dielectric sensing and handheld ultrasound in assessing lung congestion in heart failure patients within a primary care setting.","authors":"Naoko P Kato, Marie Mattisson, Pernilla Grahn, Maria Liljeroos, Peter Johansson, Anna Strömberg, Tiny Jaarsma","doi":"10.1093/eurjcn/zvae157","DOIUrl":"10.1093/eurjcn/zvae157","url":null,"abstract":"<p><p>Thorough consideration of user experiences and the weighing of advantages and disadvantages are essential when implementing new technology in clinical practice. This article describes a primary care nurse's experience using two technologies to monitor lung congestion in six patient cases: a remote dielectric sensing device for non-invasive lung fluid measurement and a portable handheld ultrasound device. Both can support decision-making when assessing lung congestion in heart failure patients. However, technical difficulties and interpretational complexities are inherent in their use. Balancing these advantages and disadvantages and finding effective strategies to address challenges is crucial for successful clinical implementation.</p>","PeriodicalId":93997,"journal":{"name":"European journal of cardiovascular nursing","volume":" ","pages":"325-331"},"PeriodicalIF":0.0,"publicationDate":"2025-03-03","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142924306","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}