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A compassionate university for serious illness, death, and bereavement: Qualitative study of student and staff experiences and support needs. 一所对重病、死亡和丧亲之痛充满同情的大学:对学生和教职员工的经历和支持需求的定性研究。
IF 3.8 4区 医学 Q1 Arts and Humanities Pub Date : 2024-05-01 Epub Date: 2023-07-11 DOI: 10.1080/07481187.2023.2233495
Hanne Bakelants, Filip Van Droogenbroeck, Kenneth Chambaere, Steven Vanderstichelen, Liesbeth De Donder, Luc Deliens, Sara De Gieter, Deborah De Moortel, Joachim Cohen, Sarah Dury

Serious illness, death, and bereavement are common experiences within the work and study context. This study aims to explore the experiences and support needs of university students and staff confronted with serious illness, death, and bereavement. Semi-structured interviews and focus groups were conducted with 21 students and 26 staff. A thematic analysis resulted in three overarching themes: the university as a high-pressure environment; navigating the complex university information and support system; and disenfranchized grief. Four themes were identified in terms of what participants needed from the university: clear processes and procedures; flexibility in policy application; proactive support and recognition; and activities to enhance awareness and interpersonal communication skills. Findings from this study could enable higher education institutions to become more compassionate schools and workplaces.

重病、死亡和丧亲是工作和学习环境中常见的经历。本研究旨在探讨大学生和教职员工在面对重病、死亡和丧亲之痛时的经历和支持需求。研究人员对 21 名学生和 26 名教职员工进行了半结构式访谈和焦点小组讨论。通过主题分析,得出了三个首要主题:大学是一个高压环境;驾驭复杂的大学信息和支持系统;被剥夺权利的悲伤。在参与者需要从大学获得什么方面,确定了四个主题:清晰的流程和程序;政策应用的灵活性;积极主动的支持和认可;以及提高意识和人际沟通技能的活动。这项研究的结果可以帮助高等教育机构成为更具同情心的学校和工作场所。
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引用次数: 0
Effects of death education interventions on cancer patients in palliative care: A systematic review and meta-analysis. 死亡教育干预对姑息治疗癌症患者的影响:系统回顾和荟萃分析。
IF 3.8 4区 医学 Q1 Arts and Humanities Pub Date : 2024-05-01 Epub Date: 2023-07-11 DOI: 10.1080/07481187.2023.2233450
Xiaoling Zhang, Xifeng Xie, Huimin Xiao

This review summarizes the best available evidence on the effects of death education in palliative care for cancer patients. A systematic literature review was conducted across 9 databases, revealing 22 eligible studies (N = 2,374). After two reviewers independently engaged in study selection, quality assessment, and data extraction, the results were synthesized through qualitative and quantitative analysis. Overall, the focus on death education for cancer patients showed an upward trend and consistently demonstrated significant positive effects with regards to the control of anxiety and depression, attitudes toward death, and quality of life. However, high-quality evidence regarding the effects of death education on cancer patients is lacking, warranting additional well-designed rigorous studies and standardized programs with specific and feasible steps.

本综述总结了有关死亡教育在癌症患者姑息治疗中的效果的现有最佳证据。我们在 9 个数据库中进行了系统的文献综述,发现了 22 项符合条件的研究(N = 2,374)。在两名审稿人独立完成研究筛选、质量评估和数据提取后,通过定性和定量分析对结果进行了综合。总体而言,对癌症患者进行死亡教育的关注度呈上升趋势,并在控制焦虑和抑郁、对死亡的态度以及生活质量方面持续显示出显著的积极效果。然而,有关死亡教育对癌症患者影响的高质量证据还很缺乏,因此需要进行更多精心设计的严格研究,并制定具有具体可行步骤的标准化计划。
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引用次数: 0
Professional bereavement photography for perinatal loss: A mixed-methods study. 围产期丧亲专业摄影:混合方法研究。
IF 3.8 4区 医学 Q1 Arts and Humanities Pub Date : 2024-05-01 Epub Date: 2023-07-25 DOI: 10.1080/07481187.2023.2237440
Kitty Vivekananda, Chiara McDowell, Kayleigh Knipe, Charlotte McMaster, Fatima Rahimi, Mia Richards, Sarah Salvini

This study addresses research gaps regarding the impact of professional bereavement photography for perinatal loss. Utilizing a mixed-methods research design, 504 parents completed an online survey measuring their attitudes toward bereavement photography and its impact. Thirty-one parents participated in semi-structured interviews. The results indicate a high level of acceptability and satisfaction for professional bereavement photography by parents (including those from more diverse backgrounds). Data triangulation confirmed that photos are valuable in enfranchising grief, validating parental and babies' identities and facilitating connections with others. Significant correlations were found for sharing of photos with both positive attitudes toward photography and for continuing bonds. The expression of continuing bonds in public social media spaces suggests increased social acceptance and validation for grieving perinatal losses. The findings from this study further inform practice guidelines for supporting perinatal loss.

本研究填补了有关围产期丧亲专业摄影影响的研究空白。采用混合方法研究设计,504 位父母完成了一项在线调查,以了解他们对丧亲摄影的态度及其影响。31 位家长参加了半结构化访谈。结果表明,家长(包括来自不同背景的家长)对专业丧亲摄影的接受度和满意度都很高。数据三角分析证实,照片在减轻悲伤、确认父母和婴儿的身份以及促进与他人的联系方面很有价值。研究发现,分享照片与对摄影的积极态度和持续的联系都有显著的相关性。在公共社交媒体空间中表达持续的纽带表明,围产期丧子的悲痛得到了更多的社会接受和认可。这项研究的结果进一步为围产期丧亲支持实践指南提供了参考。
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引用次数: 0
Perceived burdensomeness, thwarted belongingness, and hopelessness as predictors of future suicidal ideation in Spanish university students. 预示西班牙大学生未来自杀倾向的感知负担、归属感受挫和绝望感。
IF 3.8 4区 医学 Q1 Arts and Humanities Pub Date : 2024-05-01 Epub Date: 2023-07-14 DOI: 10.1080/07481187.2023.2235569
Sandra Pérez, Jose Enrique Layrón, Maria Luisa Barrigón, Enrique Baca-García, Jose H Marco

The Interpersonal Theory of Suicide (IPTS) has received support for its role in understanding suicidal thoughts and behaviors. However, few longitudinal studies have focused on testing this theory in university students. The present study aimed to confirm the theoretical model of the IPTS in a sample of 225 Spanish university students, using path analysis in a longitudinal study. We assessed thwarted belongingness and perceived burdensomeness at T1 and hopelessness and suicidal ideation at T2, 12-14 weeks later. Moreover, we assessed suicidal ideation weekly for 14 weeks. Path analyses confirmed the Interpersonal Theory of Suicide model, with thwarted belongingness and perceived burdensomeness as direct and indirect predictors of suicidal ideation through hopelessness. Providers of guidance and clinical services in university settings should be trained to identify perceived burdensomeness, social belongingness, hopelessness, and suicidal ideation when screening for suicide prevention.

自杀的人际关系理论(IPTS)在理解自杀想法和行为方面的作用得到了支持。然而,很少有纵向研究侧重于在大学生中检验这一理论。本研究旨在通过纵向研究中的路径分析,在 225 名西班牙大学生样本中证实 IPTS 的理论模型。我们在第一阶段评估了受挫归属感和感知到的负担,并在第二阶段(12-14 周后)评估了无望感和自杀意念。此外,我们还在 14 周内每周对自杀意念进行评估。路径分析证实了自杀的人际关系理论模型,归属感受挫和感知到的负担重是通过无望感直接和间接预测自杀意念的因素。在大学环境中提供指导和临床服务的人员应接受培训,以便在进行自杀预防筛查时识别感知到的负担、社会归属感、绝望和自杀意念。
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引用次数: 0
A qualitative study of factors involved in the helping behaviors of suicide prevention gatekeepers. 对自杀预防守门人帮助行为相关因素的定性研究。
IF 3.8 4区 医学 Q1 Arts and Humanities Pub Date : 2024-05-01 Epub Date: 2023-08-21 DOI: 10.1080/07481187.2023.2246018
Corentin Montiel, Brian L Mishara

This study explores the factors involved in the capacity of newly trained suicide prevention gatekeepers to engage in the identification and support of people at risk of suicide. In-depth telephone interviews were conducted with 18 gatekeepers from various settings who had participated in a larger quantitative study of the impact of gatekeeper training. Conventional content analysis was performed on the data collected. Participants said that gatekeeper training provided key information and legitimized their role. Previous experience with suicidal friends and family members motivated their involvement and helped them to engage with at-risk individuals. Support available from the setting, including attitudes toward suicide, resources for referrals and promotion of the gatekeeper activities, were instrumental in gatekeepers' ability to fulfill their role. Gatekeeper programs may benefit from adopting a comprehensive approach to gatekeeper helping behaviors by attending to their contextual influences, and the effects of gatekeepers' personal experiences.

本研究探讨了新培训的自杀预防把关人参与识别和支持自杀风险人群的能力所涉及的因素。研究人员对 18 名来自不同环境的守门人进行了深入的电话访谈,这些守门人曾参加过一项关于守门人培训影响的大型定量研究。对收集到的数据进行了常规内容分析。参与者表示,把关人培训提供了关键信息,并使他们的角色合法化。之前与有自杀倾向的朋友和家人接触的经历激励他们参与其中,并帮助他们与高危人群接触。环境提供的支持,包括对自杀的态度、转介资源和守门人活动的推广,都有助于守门人履行其职责。通过关注环境影响和守门人个人经历的影响,对守门人的帮助行为采取综合方法,可能会使守门人项目受益匪浅。
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引用次数: 0
Grief participation rights and the social support hierarchy: Exploring the communicative role of the bereaved in a social support interaction. 悲伤参与权与社会支持等级:探索丧亲者在社会支持互动中的沟通角色。
IF 3.8 4区 医学 Q1 Arts and Humanities Pub Date : 2024-05-01 Epub Date: 2023-07-20 DOI: 10.1080/07481187.2023.2235582
Kathrine Lund Hansen, Mai-Britt Guldin, Christina Fogtmann Fosgerau

This article explores how bereaved individuals co-construct social support and social norms in the social interaction of 14 bereavement group meetings in Denmark. To study this, we used a discourse analytical approach focusing on how the participants position their social supporters. The results show that the participants designate, uphold, and presuppose two hierarchical positions to bereaved and non-bereaved supporters with different abilities to understand them. Based on this finding, the concepts of "grief participation rights" and "social support hierarchy" are proposed to supplement existing notions of "rights to grieve" and "grief hierarchy." These concepts suggest that non-bereaved supporters are not accorded the same participatory rights in social support conversations as bereaved individuals who have suffered a similar loss as the speaker. The concepts are discussed in relation to effective social support and in the context of research on social disconnection in grief.

本文探讨了在丹麦的 14 个丧亲小组会议的社会互动中,丧亲者是如何共同构建社会支持和社会规范的。为了对此进行研究,我们采用了一种话语分析方法,重点研究参与者如何定位他们的社会支持者。研究结果表明,参与者对丧亲支持者和非丧亲支持者指定、维护和预设了两种等级立场,而对他们的理解能力各不相同。基于这一发现,我们提出了 "悲伤参与权 "和 "社会支持等级 "的概念,以补充现有的 "悲伤权 "和 "悲伤等级 "的概念。这些概念表明,在社会支持对话中,非丧亲支持者并不享有与发言人同样的参与权。我们将结合有效的社会支持以及有关悲伤中社会脱节的研究来讨论这些概念。
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引用次数: 0
Communication about euthanasia in Dutch nursing homes. 荷兰养老院中有关安乐死的交流。
IF 3.8 4区 医学 Q1 Arts and Humanities Pub Date : 2024-04-25 DOI: 10.1080/07481187.2024.2330011
Marjolein J H T Rikmenspoel, F. de Boer, B. Onwuteaka-Philipsen, H. Pasman, Guy AM Widdershoven
In this research, we explore how competent nursing home residents in the Netherlands experience communication about euthanasia. Interviews were conducted with 15 nursing home residents. Three themes were found during data analysis: 1) The possibility to discuss euthanasia; 2) Interaction and 3) Anticipating the future. Whether or not euthanasia was discussed was influenced by the openness of the resident and the accessibility and openness of their medical practitioner. Important factors mentioned by respondents regarding interaction were the level of connectedness with others, the feeling of being understood and one's own firmness in holding on to the option of euthanasia in the future. Regarding anticipating the future, respondents felt reassured in having an advance directive. They expressed a lack of certainty whether the medical practitioner would be willing to eventually perform euthanasia. As a practical implication, ACP may provide a pathway for improvement of communication about euthanasia with competent residents.
在这项研究中,我们探讨了荷兰有能力的疗养院居民如何体验有关安乐死的沟通。我们对 15 名养老院居民进行了访谈。在数据分析过程中发现了三个主题:1)讨论安乐死的可能性;2)互动;3)对未来的预测。讨论安乐死与否受居民的开放程度、医生的可及性和开放性的影响。在互动方面,受访者提到的重要因素包括与他人的联系程度、被理解的感觉以及自己对未来安乐死选择的坚定性。关于对未来的预测,受访者对预先指示感到放心。他们对医生最终是否愿意实施安乐死表示不确定。从实际意义上讲,预先医疗指示可为改善与有能力的住院医生就安乐死问题进行沟通提供一条途径。
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引用次数: 0
Aesthetic practices in bereavement 丧亲之痛的审美实践
IF 3.8 4区 医学 Q2 PSYCHOLOGY, MULTIDISCIPLINARY Pub Date : 2024-04-22 DOI: 10.1080/07481187.2024.2329843
Barbara Thompson
Published in Death Studies (Ahead of Print, 2024)
发表于《死亡研究》(2024 年提前出版)
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引用次数: 0
Families of organ donors between Jews and Arabs in Israel during a military operation: Constructing meaning through participation in an epistemic Community - Media analysis of two cases 军事行动期间以色列犹太人和阿拉伯人之间的器官捐献者家庭:通过参与认识论社区构建意义--对两个案例的媒体分析
IF 3.8 4区 医学 Q1 Arts and Humanities Pub Date : 2024-04-18 DOI: 10.1080/07481187.2024.2341881
Shirley Ben-Shlomo, Ayelet Oreg, Noaz Cohen
This study explores how bereaved families of organ donors become participants in an ‘imagined epistemic community’ of organ donor families, amidst a national conflict between Jews and Arabs in Isra...
本研究探讨了在以色列犹太人和阿拉伯人之间的民族冲突中,器官捐献者的遗属如何成为器官捐献者遗属 "想象中的认识论社区 "的参与者。
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引用次数: 0
Psychometric properties of the German version of the Pre-loss Grief Questionnaire (PG-12-R) 德文版失恋前悲伤问卷(PG-12-R)的心理测量特性
IF 3.8 4区 医学 Q1 Arts and Humanities Pub Date : 2024-04-16 DOI: 10.1080/07481187.2024.2337201
Viktoria Schmidt, Julia Treml, Elmar Brähler, Anette Kersting
This study aimed to develop a German version of the revised Pre-loss Grief Questionnaire (PG-12-R) and examine its factor structure, reliability and validity. The PG-12-R was assessed in a represen...
本研究旨在开发修订版失恋前悲伤问卷(PG-12-R)的德语版本,并检查其因子结构、可靠性和有效性。PG-12-R 在一个具有代表性的研究小组中进行了评估。
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引用次数: 0
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Death Studies
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