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A bad migrant: An autoethnographic case study of racism in Australian HIV care. 一个坏的移民:种族主义在澳大利亚艾滋病护理的自我民族志案例研究。
IF 1.9 4区 医学 Q3 PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH Pub Date : 2024-12-18 DOI: 10.1177/13634593241306578
Satrio Nindyo Istiko

Australia is world renowned when it comes to its successful response to HIV prevention, but their HIV epidemiological trend has shifted towards the increase of new HIV diagnoses among migrants. This paper reveals a neglected determinant of migrants' health within Australian HIV care, and that is: racism. To provoke a debate on the saliency of racism, I used autoethnographic case study to analyse my encounter with racism in Australian HIV care. I argue migrants who live with HIV can be racially classified by health care professionals into 'good' or 'bad migrants' based on biomedical measures, neoliberal values and dehumanising health care provision. A migrant patient becomes a bad migrant if the person is perceived to be incapable of taking personal responsibility over their treatment, is a burden to the health system and deserving of poor HIV care. Decolonising HIV care is a necessity to stop the subtle yet insidious social reproduction of racism.

澳大利亚在艾滋病预防方面的成功应对措施举世闻名,但其艾滋病流行病学趋势已转向新确诊的移民艾滋病感染者人数增加。本文揭示了在澳大利亚艾滋病防治工作中一个被忽视的决定移民健康的因素,那就是:种族主义。为了引发对种族主义突出性的讨论,我使用了自述式案例研究来分析我在澳大利亚艾滋病护理中遇到的种族主义问题。我认为,医护人员可以根据生物医学措施、新自由主义价值观和非人化的医护服务,将感染艾滋病毒的移民按种族划分为 "好移民 "或 "坏移民"。如果一个移民病人被认为没有能力对自己的治疗承担个人责任,是医疗系统的负担,理应得到糟糕的艾滋病护理,那么他就成了 "坏移民"。要制止种族主义在社会上微妙而又阴险的复制,就必须实现艾滋病毒护理的非殖民化。
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引用次数: 0
The IPEDs assemblage: Tracing the entanglements of biomedicine, technology, enhancement and anti-doping policies in sport and society. iped组合:追踪生物医学,技术,增强和反兴奋剂政策在体育和社会中的纠缠。
IF 1.9 4区 医学 Q3 PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH Pub Date : 2024-12-18 DOI: 10.1177/13634593241306569
Timothy Piatkowski, Luke Turnock, Nick Gibbs, Cameron Duff

The US Anti-Doping Agency (USADA) and Ultimate Fighting Championship (UFC) recently ended their anti-doping partnership amidst controversy. We treat this decision, and the motivations underpinning it, as a means of exploring the complexities of anti-doping norms and the blurred lines between image and performance enhancing drug (IPED) use in sport and wider society. Drawing ideas from assemblage thinking, we analyse the evolving power dynamics surrounding IPED use, anti-doping policy, and the role of popular athletes in shaping societal perceptions of the use of, and potential harms associated with IPEDs. The study offers a case analysis of recent controversies in the UFC to investigate the entanglements of biomedicine, technology and celebrity culture in what we call the IPED assemblage. The 2023 termination of the USADA-UFC partnership has sparked debates about shifts in anti-doping standards, raising concerns about weaker testing protocols and perceptions of IPED normalisation. The case of Conor McGregor's injury recovery and alleged IPED use underscores the blurred lines between therapeutic and enhancement drug use within the IPED assemblage, challenging conventional distinctions between 'good' and 'bad' drugs in the context of sports management and anti-doping policy making. We highlight the inadequacy of current doping policies in responding to the IPED assemblage and highlight the need to shift public discourse to foster a more critical understanding of therapeutic and enhancement strategies to drive innovation in anti-doping frameworks.

近日,美国反兴奋剂机构(USADA)和终极格斗冠军赛(UFC)在争议中结束了反兴奋剂合作关系。我们将这一决定及其背后的动机视为一种探索反兴奋剂规范复杂性的手段,以及在体育运动和更广泛的社会中使用形象和成绩增强药物(IPED)之间模糊界限的手段。从集合思维中汲取灵感,我们分析了围绕IPED使用的不断演变的权力动态,反兴奋剂政策,以及流行运动员在塑造使用IPED的社会观念中的作用,以及与IPED相关的潜在危害。该研究对UFC最近的争议提供了一个案例分析,以调查生物医学、技术和名人文化在我们所谓的IPED组合中的纠缠。2023年美国反兴奋剂机构与ufc的合作关系终止引发了关于反兴奋剂标准转变的争论,引发了对检测协议薄弱的担忧,以及对IPED正常化的看法。康纳·麦格雷戈(Conor McGregor)的伤病恢复和所谓的IPED使用案例强调了在IPED组合中治疗性和增强性药物使用之间的模糊界限,挑战了体育管理和反兴奋剂政策制定背景下“好”和“坏”药物之间的传统区别。我们强调当前兴奋剂政策在应对IPED方面的不足,并强调需要改变公众话语,以促进对治疗和增强策略的更批判性理解,从而推动反兴奋剂框架的创新。
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引用次数: 0
Inegalitarian effects on access to vaccines of delegating Covid-19 vaccination to a private online appointment platform: The French case. 将Covid-19疫苗接种委托给私人在线预约平台对疫苗获取的不平等影响:法国案例
IF 1.9 4区 医学 Q3 PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH Pub Date : 2024-12-13 DOI: 10.1177/13634593241306574
Selma Ghomari, Charlotte Serrano, Amélie Beaugrand, Maud Gelly

A great deal of research has shown that health inequalities are the product of socially unequal wear and tear of bodies, socially differentiated use of the healthcare system and unequal access to care, as well as healthcare professionals' differentiating practices. However, public policies are rarely the focus of recent investigations on the production of health inequalities. How can public policies produce or even amplify health inequalities, but also reduce them, or fail to do so? This study aims to investigate the impact of online appointment booking on effective access to Covid-19 vaccination. Through a quantitative survey of the first weeks of vaccination against Covid-19 in 2021 in an undeserved French suburb called Seine-Saint-Denis, this paper shows how the vaccination policy has contributed to reproducing and amplifying inequalities towards Covid-19: middle and upper classes are significantly more represented among people vaccinated (67%) than in the population of Seine-SaintDenis (41%), and working classes are significantly less represented (33%) than in Seine-Saint-Denis (59%). The people vaccinated are more highly educated and more often French than the population of SeineSaint-Denis. Online appointment favoured more educated people.

大量研究表明,健康不平等是社会上不平等的身体磨损、社会上不同的医疗保健系统使用和不平等的保健机会以及医疗保健专业人员的不同做法的产物。然而,公共政策很少成为最近关于保健不平等产生的调查的重点。公共政策如何能够产生甚至扩大卫生不平等,但同时又能减少或未能做到这一点?本研究旨在调查在线预约对有效获得Covid-19疫苗接种的影响。通过对2021年在法国一个名为塞纳-圣但尼的贫困郊区接种Covid-19疫苗的头几周进行的定量调查,本文显示了疫苗接种政策如何导致再现和扩大了针对Covid-19的不平等:在接种疫苗的人群中,中产阶级和上层阶级的比例(67%)明显高于塞纳-圣但尼省的比例(41%),而工人阶级的比例(33%)明显低于塞纳-圣但尼省的比例(59%)。接种疫苗的人受教育程度更高,而且往往是法国人,而不是塞纳圣丹尼斯的人口。网上预约更青睐受教育程度更高的人。
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引用次数: 0
Corrosion of care and disempowerment in acute psychiatry: As seen from the positions of therapists and suicidal patients. 从治疗师和自杀病人的立场看急诊精神病学中的护理腐蚀和权能丧失:从治疗师和自杀患者的立场看问题。
IF 1.9 4区 医学 Q3 PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH Pub Date : 2024-12-13 DOI: 10.1177/13634593241303617
Julia Hagen, Birthe Loa Knizek, Heidi Hjelmeland

For people in suicidal crisis, referral to a psychiatric hospital is common. However, acute psychiatry is characterized by a lack of resources in terms of time and beds, making it challenging for therapists to provide person-centered care. In this qualitative study, we explored the experiences and positionings of therapists and suicidal patients in an acute psychiatric ward in Norway. We generated data through participatory observation and interviews with therapists and patients and analyzed the material using principles from Systematic Text Condensation supplemented with an analysis from a Positioning theory perspective. We developed two themes: Therapists positioned as professionals with authority in a context with restricted action radius, and Patients in suicidal crisis positioned as medical subjects with limited influence. In this resource-limited context, therapists managed their work and obligations by simplifying the patient's suffering and suicidality and by emphasizing medical aspects. Ensuring an efficient patient flow was a high priority. The therapists' authority and actions were closely connected to how patients were positioned and their experiences of the care. Positioning theory provides new perspectives for understanding the power imbalance in the positions of therapists and patients. The findings provide insights into acute inpatient psychiatry as a normative field where the choices and actions of both therapists and patients are restricted. In that sense, both patients and therapists can feel powerless. The findings point to significant limitations in the acute mental health care of people in suicidal crisis.

对于有自杀危机的人来说,转诊到精神病院是很常见的。然而,急性精神病学的特点是在时间和床位方面缺乏资源,这使得治疗师提供以人为本的护理具有挑战性。在这个定性研究中,我们探讨了经验和治疗师和自杀患者在挪威急性精神病病房的定位。我们通过参与式观察和对治疗师和患者的访谈来生成数据,并使用系统文本浓缩的原则来分析材料,并辅以定位理论的分析。我们发展了两个主题:治疗师被定位为在行动范围有限的背景下具有权威的专业人士,而自杀危机中的患者被定位为影响有限的医学主体。在这种资源有限的情况下,治疗师通过简化病人的痛苦和自杀倾向以及强调医疗方面来管理他们的工作和义务。确保病人的高效流动是重中之重。治疗师的权威和行动与病人的位置和他们的护理经历密切相关。定位理论为理解治疗师和患者在位置上的权力不平衡提供了新的视角。这些发现提供了对急性住院精神病学作为一个规范领域的见解,治疗师和患者的选择和行动都受到限制。从这个意义上说,患者和治疗师都感到无能为力。研究结果指出,在自杀危机人群的急性精神卫生保健方面存在重大局限性。
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引用次数: 0
Välkky's voyage on to a hospital ward: Expectations, explorations and emergent robocentric nursing care. Välkky的医院病房之旅:期望,探索和紧急机器人中心护理。
IF 1.9 4区 医学 Q3 PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH Pub Date : 2024-12-04 DOI: 10.1177/13634593241303610
Sarah Nettleton, Nik Brown, Karl Atkin, Luna Dolezal, Sanna Metsäketo, Daniel Robins

Drawing on ethnographic fieldwork in Finland, we report on the trial of a teleoperated care robot named Välkky introduced onto a fully operational hospital neurological ward. Our data revealed a narrative arc where participants' early expectations of the hospital-based trial altered as the project unfolded. Greeted with techno-excitement and experimental enthusiasm about the place of robotics in reshaping roles within clinical care, Välkky became the focus for collaborative in situ learning, adaptation and redesign amongst the roboticists, designers, nurses, patients, and managers. Välkky acted as an 'attractor' provoking thinking about, and a reimagining of, future arrangements of care. Our empirically informed insights seek to pave the way for real-world nuanced thinking that pushes beyond human/non-human and success/failure binaries. Building on debates in STS and feminist posthumanism, we propose a robocentric approach, which encourages us to 'queer' health care robots, and to understand them as fluid, hybrid, distributed and relational figures, rather than purely as inert, mechanical, non-human objects that might replace humans. Nursing care practices by and with robots will generate new meanings and practices of care that will emerge iteratively, as caring relations, relationships and practices develop within the context of operational ward environments. Robots may or may not be able support care, but they will invariably challenge what care is.

根据芬兰的人种学田野调查,我们报告了一种名为Välkky的远程操作护理机器人的试验,该机器人被引入了一个完全可操作的医院神经病房。我们的数据揭示了一个叙事弧线,参与者对医院试验的早期期望随着项目的展开而改变。随着技术的兴奋和对机器人在临床护理中重塑角色的实验热情的欢迎,Välkky成为机器人专家,设计师,护士,患者和管理人员之间协作就地学习,适应和重新设计的焦点。Välkky作为一个“吸引者”,激发了人们对未来护理安排的思考和重新想象。我们经验丰富的见解试图为现实世界的细微差别思维铺平道路,超越人类/非人类和成功/失败的二元对立。基于STS和女权主义后人文主义的争论,我们提出了一种以机器人为中心的方法,鼓励我们“酷儿”医疗保健机器人,并将它们理解为流动的、混合的、分布的和相关的数字,而不是纯粹的、不活跃的、机械的、非人类的、可能取代人类的物体。随着护理关系、关系和实践在手术室环境的背景下发展,机器人的护理实践将产生新的意义和护理实践,这些意义和实践将迭代出现。机器人可能会也可能不会支持护理,但它们总是会挑战什么是护理。
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引用次数: 0
Legitimacy and professional boundaries: An institutional analysis of Chinese Medicine in Mainland China and Hong Kong. 合法性与专业界限:中国内地与香港中医药制度分析。
IF 1.9 4区 医学 Q3 PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH Pub Date : 2024-12-02 DOI: 10.1177/13634593241303612
Xiaoli Tian, Sai Zhang

The legitimacy of complementary and alternative medicines (CAMs) and their integration into mainstream healthcare have long been a topic in sociological discussions. This study examines the institutional influences on Chinese medicine (CM), an important CAM in mainland China and Hong Kong. In-depth interviews with practitioners and observations in public hospitals facilitate a comparison of the professional boundaries, statuses, and jurisdictions of CM in the two regions. In mainland China, CM has a high degree of state-granted legitimacy with blurred professional boundaries between CM and Western medicine (WM) in a highly integrated healthcare system. However, these blurred boundaries have had the following unintended consequences: (i) devaluation of traditional knowledge in CM education and practices, (ii) biomedicalisation of CM practices wherein a substantial reliance on WM has decreased the utilisation of healing principles in CM and (iii) ambiguity in the efficacy of CM due to the co-use of CM and WM. In contrast, the demarcated professional boundaries in Hong Kong have allowed CM to maintain its knowledge base, even though CM is practised within strict parameters. This study reveals that institutional requirements (on efficiency, accountability and profitability) prioritise the biomedical model and drive the biomedicalisation of CM. Therefore, the lack of clear professional boundaries in the current integrative medical system in mainland China have eroded the knowledge base of CM and undermined the efficacy-based legitimacy of CM.

补充和替代药物(CAMs)及其融入主流医疗保健的合法性长期以来一直是社会学讨论的主题。中医药是中国大陆和香港重要的医学门类,本研究旨在探讨制度对中医药的影响。对从业者的深入访谈和在公立医院的观察有助于比较两个地区的专业界限、地位和CM的管辖权。在中国大陆,在高度整合的医疗体系中,中医与西医之间的专业界限模糊,具有高度的国家认可的合法性。然而,这些模糊的界限产生了以下意想不到的后果:(i)中医教育和实践中传统知识的贬值;(ii)中医实践的生物医学化,其中对中医的大量依赖减少了中医治疗原则的利用;(iii)由于中医和中医的共同使用,中医的疗效模糊不清。相比之下,香港的专业界限分明,使得中医得以保持其知识基础,尽管中医在严格的范围内进行。该研究表明,制度要求(效率、问责制和盈利能力)优先考虑生物医学模式,并推动CM的生物医学化。因此,中国大陆目前的中西医结合体系缺乏明确的专业界限,侵蚀了中医的知识基础,削弱了中医基于疗效的合法性。
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引用次数: 0
Institutional inconsistencies and professionals' hidden institutional work in Russian pandemic-affected healthcare: The material dimension. 俄罗斯受大流行影响的医疗保健中的制度不一致和专业人员隐藏的制度工作:物质层面。
IF 1.9 4区 医学 Q3 PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH Pub Date : 2024-12-02 DOI: 10.1177/13634593241303620
Ekaterina Borozdina, Anna Temkina

In recent years, medical sociology has produced a significant amount of publications about the effects of the COVID-19 pandemic on medical care provision and healthcare professionalism around the globe. This study builds on this line of research by looking at a rarely discussed case of pandemic management-the case of Russia's centralized and state-dominated medical sector. In our analysis, we focus on the organizational level and the institutional work of front-line health professionals. Using a neoinstitutional theoretical lens, we show how, as a result of the conflict between professional and managerial logics, pockets of extreme institutional uncertainty emerged within Russian healthcare: "non-COVID" healthcare facilities and hospitals rapidly restructured for COVID-19 care. Qualitative interviews with healthcare professionals indicate that institutional misalignment inside these "gray zones" translated into the material dimension, significantly impeding the effectiveness of the pandemic response. While sociological literature frequently portrays Russian health professionals as fully subjected to administrative constraints and disempowered, our data allows us to trace their informal institutional work and agency during the health crisis. Through these materially mediated work, our informants attempted to deal with both the challenges of the pandemic and institutional contradictions of the Russian healthcare system. Professionals' institutional work brought some improvements to Russia's pandemic-affected clinical settings. However, being informal and purposefully hidden, it neither constituted a viable solution for medical organizations, nor contributed to the strengthening of professionals' autonomy.

近年来,医学社会学出版了大量关于COVID-19大流行对全球医疗保健提供和医疗保健专业精神影响的出版物。本研究基于这一研究思路,研究了一个很少被讨论的流行病管理案例——俄罗斯中央集权和国家主导的医疗部门。在我们的分析中,我们关注的是组织层面和一线卫生专业人员的机构工作。利用新制度理论的视角,我们展示了由于专业和管理逻辑之间的冲突,俄罗斯医疗保健中出现了极端的制度不确定性:“非covid”医疗机构和医院迅速为COVID-19护理进行了重组。对卫生保健专业人员的定性访谈表明,这些“灰色地带”内的制度失调转化为物质层面,严重阻碍了大流行应对的有效性。虽然社会学文献经常将俄罗斯卫生专业人员描述为完全受到行政限制和被剥夺权力,但我们的数据使我们能够追踪他们在卫生危机期间的非正式机构工作和代理。通过这些物质媒介的工作,我们的线人试图应对大流行的挑战和俄罗斯医疗保健系统的制度矛盾。专业人员的机构工作使俄罗斯受大流行影响的临床环境有所改善。然而,由于非正式和有意隐藏,它既不是医疗组织的可行解决方案,也无助于加强专业人员的自主权。
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引用次数: 0
Boundary-work of primary care physicians using telemedicine technologies for communication. 使用远程医疗技术进行沟通的初级保健医生的边界工作。
IF 1.9 4区 医学 Q3 PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH Pub Date : 2024-12-02 DOI: 10.1177/13634593241303607
Ariela Popper-Giveon, Yael Keshet, Tamar Adar

Implementing telemedicine technologies (TT) for patient-physician communication leads to the emergence of new structures of boundaries. Hence, boundary work theory can provide a useful lens for examining how primary care physicians (PCPs) experience TT. The objective of this research was to examine the experiences of PCPs in using TT in their communication with patients. During 2023 in-depth interviews were conducted with 20 Israeli PCPs: family physicians and pediatricians. The concept of boundary work emerged as a focal point, with three forms of boundary work identified in the PCPs' descriptions of their TT experiences: collaborative, competitive, and configurational. Interviewees described improved collaboration with patients who find it difficult to get to the clinic and better service for administrative issues. However, they reported constant power struggles to maintain their authority. They expressed concern about treatment failure and suggested that healthcare organizations reconfigure TT so that it can be used to provide optimal care. They suggested that healthcare organizations should instruct physicians how to best manage TT consultations and regulate its usage. This article demonstrates that while implementing TT in primary care has many advantages, it uncovers boundary work for maintaining power and authority that both PCPs and healthcare organizations should take into account in practice as well as in policy.

实施远程医疗技术(TT)的医患沟通导致新的边界结构的出现。因此,边界工作理论可以为检查初级保健医生(pcp)如何体验TT提供有用的视角。本研究的目的是检查pcp在与患者沟通时使用TT的经验。在2023年期间,对20名以色列pcp:家庭医生和儿科医生进行了深入访谈。边界工作的概念成为焦点,在pcp对其TT经验的描述中确定了三种形式的边界工作:协作、竞争和配置。受访者描述了改善与难以到达诊所的患者的合作,以及为行政问题提供更好的服务。然而,他们报告说,为了维护自己的权威,他们经常进行权力斗争。他们表达了对治疗失败的担忧,并建议医疗机构重新配置TT,使其能够用于提供最佳护理。他们建议医疗机构应指导医生如何最好地管理TT咨询并规范其使用。本文表明,虽然在初级保健中实施TT有许多优势,但它揭示了维护权力和权威的边界工作,这是pcp和医疗保健组织在实践和政策中都应该考虑的。
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引用次数: 0
Medication literacy and its social contextuality. 用药知识及其社会背景。
IF 1.9 4区 医学 Q3 PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH Pub Date : 2024-11-01 Epub Date: 2023-12-05 DOI: 10.1177/13634593231211520
Noémia Lopes, Carla Rodrigues, Elsa Pegado

This article aims to contribute to the discussion about medication literacy, by focussing on the social contextuality of the information mobilised in the use of medicines. We aim to explore the social construction processes of medication literacy, as an essential dimension for a more layperson-centred approach in the promotion of literacy in this field. This approach is justified by the growing social and cultural dissemination of medication use, the diversification of its uses beyond health and illness, and the increasing degree of lay autonomy in managing its use. The article is organised in two main sections. In the first section, we review the social history of medication literacy, including a discussion of the social contextuality of literacy phenomena. In the second section, the analysis of social contextuality is operationalised with a focus on information, covering: (i) ways of relating to institutional information and sources of information about medication; (ii) contexts of sociability in which information is shared and validated. This analysis is empirically supported by selected results from two research projects, conducted in Portugal, on the consumption of medicines and dietary supplements for performance purposes - that is, for the management and/or improvement of cognitive, bodily or relational performance.

本文旨在通过关注用药信息的社会背景,为有关用药扫盲的讨论做出贡献。我们旨在探讨药物知识的社会建构过程,将其作为在这一领域推广以非专业人士为中心的扫盲方法的一个重要方面。之所以采用这种方法,是因为药物使用在社会和文化中的传播日益广泛,其用途已超出了健康和疾病的范畴,而且非专业人士在管理药物使用方面的自主程度也在不断提高。本文分为两个主要部分。在第一部分中,我们回顾了用药知识的社会历史,包括讨论了用药知识现象的社会背景。在第二部分中,我们以信息为重点,对社会背景性进行了操作性分析,包括:(i) 与机构信息和药物信息来源相关的方式;(ii) 信息共享和验证的社会背景。在葡萄牙开展的两个研究项目的部分成果为这一分析提供了经验支持,这两个研究项目的研究对象是为提高绩效(即管理和/或改善认知、身体或人际关系绩效)而消费药物和膳食补充剂的情况。
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引用次数: 0
Sensing pain: Embodied knowledge in endometriosis. 感知疼痛:子宫内膜异位症的体现知识。
IF 1.9 4区 医学 Q3 PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH Pub Date : 2024-11-01 Epub Date: 2023-12-04 DOI: 10.1177/13634593231214938
Elina Helosvuori, Venla Oikkonen

The article explores how sensations of pain are turned into embodied knowledge in endometriosis, a chronic gynaecological illness characterized by persistent, possibly paralysing pain. While previous studies have shown how people with endometriosis struggle to achieve accurate diagnosis and effective treatment, we examine the ways in which some of these difficulties are rooted in the complexities of embodied experiences of endometriosis pain and the challenges of translating the sensed patterns and shifts in pain into a language acknowledged within a clinical setting. Building on a phenomenologically inspired approach to chronic pain and drawing on interviews with people diagnosed with endometriosis in Finland, we examine how our interlocutors use their embodied sensations of pain to adapt to the evolving biomedical and lived surroundings in which their pain is evaluated and managed. The analysis shows how living with chronic pain involves constantly attuning to the multitude of symptoms as well as developing personal strategies of communicating sensations of pain to gain medical recognition and care. We argue that while the lived complexities of the body with endometriosis may fall outside the scope of medical practices of measuring, such complexities nevertheless require medical acknowledgment and careful attention.

这篇文章探讨了疼痛的感觉如何转化为子宫内膜异位症的具体知识,子宫内膜异位症是一种慢性妇科疾病,其特征是持续的,可能瘫痪的疼痛。虽然以前的研究表明,子宫内膜异位症患者如何努力实现准确的诊断和有效的治疗,但我们研究了一些困难的方式,这些困难源于子宫内膜异位症疼痛的具体体验的复杂性,以及将疼痛的感知模式和转变转化为临床环境中公认的语言的挑战。基于对慢性疼痛的现象学启发方法和对芬兰子宫内膜异位症患者的访谈,我们研究了我们的对话者如何使用他们的具体疼痛感觉来适应不断发展的生物医学和生活环境,在这种环境中,他们的疼痛被评估和管理。分析显示,慢性疼痛患者如何不断适应各种症状,并制定个人策略,与疼痛的感觉沟通,以获得医疗认可和护理。我们认为,虽然子宫内膜异位症患者身体的生活复杂性可能超出了医学实践的测量范围,但这种复杂性仍然需要医学认可和仔细关注。
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引用次数: 0
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