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18F-FDG PET/CT in paediatric Staphylococcus aureus bacteraemia 18F-FDG PET/CT 在小儿金黄色葡萄球菌菌血症中的应用。
IF 1.6 4区 医学 Q2 PEDIATRICS Pub Date : 2024-07-22 DOI: 10.1111/jpc.1_16560
Karan Bir Singh, Kevin I London
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引用次数: 0
Recurrent indurated red plaques 反复出现的凹陷性红色斑块。
IF 1.6 4区 医学 Q2 PEDIATRICS Pub Date : 2024-07-22 DOI: 10.1111/jpc.1_16501
Thuraiya Al Rumhi, Sheikha S Al-Badi, Fathiya Al-Rahbi, Reem Abdawani, Buthaina H Al-Musalhi
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引用次数: 0
Child with headache and small head 头痛、头小的儿童。
IF 1.6 4区 医学 Q2 PEDIATRICS Pub Date : 2024-07-22 DOI: 10.1111/jpc.1_16513
Drew Brownell, Anderson H Kuo
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引用次数: 0
Excellent accuracy of trained neonatal nurses in the detection of referral-warranted retinopathy of prematurity within an established telemedicine screening programme 在一项既定的远程医疗筛查计划中,经过培训的新生儿护士在发现需要转诊的早产儿视网膜病变方面具有极高的准确性。
IF 1.6 4区 医学 Q2 PEDIATRICS Pub Date : 2024-07-21 DOI: 10.1111/jpc.16621
Thuan Anh Le Nguyen, Vanessa Raileanu, Bernice Smith, Alison Griffin, Shaheen Shah

Aim

To evaluate level of agreement of specialist trained retinopathy of prematurity (ROP) nurses compared with an experienced paediatric ophthalmologist in detection of referral-warranted ROP (RWROP) using wide-field digital retinal imaging.

Methods

This is a prospective, observational, blinded study of neonates in a level III neonatal intensive care unit, from July 2020 to November 2022. Image capture using wide-field digital retinal imaging followed by ROP grading and staging was completed by trained ROP nurses. This was then compared with findings by an experienced paediatric ophthalmologist. The primary outcome was presence of RWROP in either eye.

Results

One hundred and ninety-five neonates (55% male) with a total of 768 screening visits were included. At the initial screen, nurse and ophthalmologist agreed about presence of RWROP for 191 of 195 neonates (98%, kappa = 0.79, P < 0.0001), with 100% sensitivity for RWROP detection. Including all 768 screening episodes, agreement was 98% for RWROP. There was disagreement in 16 screenings (2%) for 11 (6%) neonates. Of the five screenings (0.7%) that the ophthalmologist thought were RWROP and the nurse did not, three were disagreements about whether the zone was posterior zone 2 or zone 1.

Conclusions

We found excellent levels of agreement and add evidence that interpretations by specialist trained nurses could be safely integrated into a ‘hybrid ROP screening system’.

目的:评估受过专业培训的早产儿视网膜病变(ROP)护士与经验丰富的儿科眼科医生在使用宽视场数字视网膜成像检测转诊需要的早产儿视网膜病变(RWROP)方面的一致程度:这是一项前瞻性、观察性、盲法研究,研究对象是 2020 年 7 月至 2022 年 11 月期间在三级新生儿重症监护病房的新生儿。由经过培训的 ROP 护士使用宽视场数字视网膜成像技术进行图像采集,然后进行 ROP 分级和分期。然后与经验丰富的儿科眼科医生的检查结果进行比较。主要结果是两只眼睛中是否存在 RWROP:共纳入 105 名新生儿(55% 为男性),共进行了 768 次筛查。在初次筛查中,护士和眼科医生对 195 名新生儿中的 191 名(98%,kappa = 0.79,P 结论)是否存在 RWROP 达成一致:我们发现双方的意见高度一致,并进一步证明受过专业培训的护士可以安全地将解释工作整合到 "混合 ROP 筛查系统 "中。
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引用次数: 0
Why do children not survive extracorporeal membrane oxygenation? 为什么儿童无法在体外膜氧合术后存活?
IF 1.6 4区 医学 Q2 PEDIATRICS Pub Date : 2024-07-21 DOI: 10.1111/jpc.16614
Georgina K Alexander, Siva P Namachivayam, Roberto Chiletti, Warwick Butt

Background

Extracorporeal membrane oxygenation (ECMO) is used in critically ill children with cardiac and/or respiratory failure. Use is increasing in children with high-risk comorbidities. Reasons children do not survive ECMO are poorly described.

Aims

Describe characteristics and cause of death, compare mortality in children with high-risk comorbidities, evaluate mortality trends over a decade.

Method

All children <18 years old who received ECMO at this institution from 1 January 2011 to 31 December 2020 were described and categorised by outcome: died on or <48 h post-ECMO, died ≥48 h post-ECMO, survived to hospital discharge. Children who did not survive ECMO (DNSE) were categorised to: ECMO withdrawal for irrecoverable original condition, withdrawal for poor prognosis neurological condition, brain death, withdrawal for poor prognosis with multiple complex conditions, and unsupportable. Poison regression was used to analyse survival trends.

Results

Four hundred twenty-eight children received ECMO, 19% DNSE, 14% died ≥48 h post-ECMO and 67% survived. ECMO was electively withdrawn for irrecoverable original condition (39%), poor prognosis for neurological condition (32%) or multiple complex conditions (18%). One hundred twenty-two children had ≥1 high-risk comorbidity. Children with genetic syndromes (58%), risk-adjusted congenital heart surgery score-1 ≥4 (53%), primary immunodeficiency (50%) had lower hospital survival. No children with malignancy/bone marrow transplant survived to hospital discharge. Overall hospital survival was 67%, with no significant change during the study period (P-trend = 0.99).

Conclusion

Children who DNSE have therapy electively withdrawn for irrecoverable disease or poor prognosis. Children with high-risk comorbidities have a reasonable chance of survival. This study informs clinicians ECMO may be a therapeutic option.

背景:体外膜肺氧合(ECMO)用于心脏和/或呼吸衰竭的重症儿童。在患有高风险合并症的儿童中,使用率越来越高。目的:描述死亡特征和原因,比较高危合并症患儿的死亡率,评估十年来的死亡率趋势:所有患儿428 名儿童接受了 ECMO,19% DNSE,14% 在 ECMO 后≥48 小时死亡,67% 存活。选择撤除 ECMO 的原因包括:原有病情无法恢复(39%)、神经系统病情预后不良(32%)或多种复杂病情(18%)。122 名患儿的高危合并症≥1 种。患有遗传综合征(58%)、先天性心脏病手术风险调整评分-1≥4(53%)、原发性免疫缺陷(50%)的患儿住院生存率较低。恶性肿瘤/骨髓移植患儿无一存活至出院。总体住院生存率为67%,在研究期间无明显变化(P-趋势=0.99):结论:DNSE患儿因疾病无法治愈或预后不良而选择放弃治疗。结论:DNSE 患儿因疾病无法治愈或预后不佳而选择放弃治疗,而患有高风险合并症的患儿则有合理的生存机会。这项研究告诉临床医生,ECMO 可能是一种治疗选择。
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引用次数: 0
Identifying barriers and facilitators for the effective diagnosis and provision of primary health care for otitis media from the perspective of carers of Aboriginal children. 从原住民儿童照顾者的角度,找出有效诊断和提供中耳炎初级保健服务的障碍和促进因素。
IF 1.6 4区 医学 Q2 PEDIATRICS Pub Date : 2024-07-20 DOI: 10.1111/jpc.16626
Gloria Lau, Roz Walker, Pamela Laird, Philomena Lewis, Jafri Kuthubutheen, André Schultz

Aim: To identify the barriers and facilitators for timely detection and optimal management of otitis media (OM) in Aboriginal children in a primary care setting from the perspective of carers of Aboriginal children.

Methods: A qualitative, Aboriginal co-designed, participatory action research study with interviews and focus groups in a large town in the Kimberley, Western Australia. The Consolidated Framework for Implementation Research informed stakeholder group identification and interview framework development. Data underwent thematic analysis using NVivo software.

Results: Thirty-two carers of Aboriginal children participated. Key barriers identified for the detection of OM were limited information about OM provided to carers and carers feeling disempowered to express their concerns. Key facilitators identified were the provision of health information through health promotion and the use of culturally secure resources. Having a culturally secure clinical environment was identified as essential, with Aboriginal Health Workers playing a vital role in clinical care. No barriers to management of OM in primary care were reported. Facilitators included health care practitioners (HCPs) emphasising the importance of completing antibiotic course and the clinic providing necessary medications.

Conclusions: A culturally secure health promotion strategy with health promotion teams, campaigns and resources is needed to increase community awareness of OM signs and symptoms and facilitate appropriate health seeking. It is essential that the local Aboriginal community co-lead and co-develop these initiatives to ensure the unique wisdom and knowledge of Aboriginal people are captured. HCPs and the clinic effectively facilitate management of OM by providing medications and emphasising completion of antibiotics.

目的:从原住民儿童照顾者的角度出发,确定在初级护理环境中及时发现和优化管理原住民儿童中耳炎(OM)的障碍和促进因素:方法:在西澳大利亚州金伯利的一个大城镇开展一项由原住民共同设计的参与式定性行动研究,包括访谈和焦点小组。实施研究综合框架为利益相关者小组的确定和访谈框架的制定提供了依据。使用 NVivo 软件对数据进行了主题分析:结果:32 名土著儿童的照顾者参加了此次活动。发现 OM 的主要障碍是向照护者提供的有关 OM 的信息有限,以及照护者感到无力表达他们的担忧。发现的主要促进因素是通过健康宣传提供健康信息和使用文化上安全的资源。拥有一个文化安全的临床环境被认为是至关重要的,原住民卫生工作者在临床护理中发挥着至关重要的作用。据报告,在初级保健中管理 OM 没有障碍。促进因素包括医护人员(HCPs)强调完成抗生素疗程的重要性以及诊所提供必要的药物:结论:需要制定一项文化安全的健康促进战略,通过健康促进团队、活动和资源来提高社区对 OM 症状和体征的认识,并促进适当的就医。当地原住民社区必须共同领导和制定这些措施,以确保原住民的独特智慧和知识得到充分体现。保健医生和诊所通过提供药物和强调完成抗生素治疗,有效促进对 OM 的管理。
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引用次数: 0
Influence of blood loss on cerebral oxygen saturation in paediatric patients undergoing surgery for scoliosis correction: A retrospective observational study 失血对脊柱侧弯矫正手术儿科患者脑氧饱和度的影响:一项回顾性观察研究。
IF 1.6 4区 医学 Q2 PEDIATRICS Pub Date : 2024-07-20 DOI: 10.1111/jpc.16619
Jia Gao, Lijing Li, Zhengzheng Gao, Yi Ren, Fang Wang, Xiaoxue Wang, Duoyi Li, Guoliang Liu, Xuejun Zhang, Jianmin Zhang

Aim

Surgery for congenital scoliosis correction in children is often associated with considerable blood loss. Decrease in regional oxygen saturation (rScO2) can reflect insufficient cerebral perfusion and predict neurological complications. This retrospective observational study explored the relationship between blood loss during this surgery and a decrease in rScO2 in children.

Methods

The following clinical data of children aged 3–14 years who underwent elective posterior scoliosis correction between March 2019 and July 2021 were collected: age, sex, height, weight, baseline rScO2, basal mean invasive arterial pressure (MAP), preoperative Cobb angle, number of surgical segments, preoperative and postoperative haemoglobin level, percentage of lowest rScO2 below the baseline value that lasted 3 min or more during the operation (decline of rScO2 from baseline, D-rScO2%), intraoperative average invasive MAP, end-tidal carbon dioxide pressure, fluid infusion rate of crystalloids and colloids, operation time, and percentage of total blood loss/patient's blood volume (TBL/PBV).

Results

A total of 105 children were included in the study. Massive haemorrhage (TBL/PBV ≥50%) was reported in 53.3% of patients, who had significantly higher D-rScO2 (%) (t = −5.264, P < 0.001) than those who had non-massive haemorrhage (TBL/PBV <50%). Multiple regression analysis revealed that TBL/PBV (β = 0.04, 95% CI: 0.018–0.062, P < 0.05) was significantly associated with D-rScO2%.

Conclusions

Intraoperative massive blood loss in children significantly increased D-rScO2%. Monitoring should be improved, and timely blood supplementation should be performed to ensure maintenance of the blood and oxygen supply to vital organs, improve the safety of anaesthesia, and avoid neurological complications.

目的:儿童先天性脊柱侧凸矫正手术通常会导致大量失血。区域血氧饱和度(rScO2)的降低可反映脑灌注不足并预示神经系统并发症。这项回顾性观察研究探讨了儿童在该手术中的失血量与 rScO2 下降之间的关系:方法:收集2019年3月至2021年7月期间接受选择性后脊柱侧凸矫正术的3-14岁儿童的以下临床数据:年龄、性别、身高、体重、基线rScO2、基础平均有创动脉压(MAP)、术前Cobb角、手术节段数、术前和术后血红蛋白水平、术中rScO2低于基线值且持续3分钟或以上的最低rScO2百分比(rScO2从基线下降、D-rScO2%)、术中平均有创 MAP、潮气末二氧化碳压力、晶体液和胶体液输注率、手术时间以及总失血量/患者血容量(TBL/PBV)百分比。结果:共有 105 名儿童参与研究。53.3%的患者出现大出血(TBL/PBV≥50%),他们的D-rScO2(%)显著升高(t = -5.264,P 2%):儿童术中大量失血会显著增加 D-rScO2%。结论:儿童术中大量失血明显增加了 D-rScO2%,应加强监测,及时补血,以确保维持重要器官的血液和氧气供应,提高麻醉安全性,避免神经系统并发症。
{"title":"Influence of blood loss on cerebral oxygen saturation in paediatric patients undergoing surgery for scoliosis correction: A retrospective observational study","authors":"Jia Gao,&nbsp;Lijing Li,&nbsp;Zhengzheng Gao,&nbsp;Yi Ren,&nbsp;Fang Wang,&nbsp;Xiaoxue Wang,&nbsp;Duoyi Li,&nbsp;Guoliang Liu,&nbsp;Xuejun Zhang,&nbsp;Jianmin Zhang","doi":"10.1111/jpc.16619","DOIUrl":"10.1111/jpc.16619","url":null,"abstract":"<div>\u0000 \u0000 <section>\u0000 \u0000 <h3> Aim</h3>\u0000 \u0000 <p>Surgery for congenital scoliosis correction in children is often associated with considerable blood loss. Decrease in regional oxygen saturation (rScO<sub>2</sub>) can reflect insufficient cerebral perfusion and predict neurological complications. This retrospective observational study explored the relationship between blood loss during this surgery and a decrease in rScO<sub>2</sub> in children.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Methods</h3>\u0000 \u0000 <p>The following clinical data of children aged 3–14 years who underwent elective posterior scoliosis correction between March 2019 and July 2021 were collected: age, sex, height, weight, baseline rScO<sub>2</sub>, basal mean invasive arterial pressure (MAP), preoperative Cobb angle, number of surgical segments, preoperative and postoperative haemoglobin level, percentage of lowest rScO<sub>2</sub> below the baseline value that lasted 3 min or more during the operation (decline of rScO<sub>2</sub> from baseline, D-rScO<sub>2</sub>%), intraoperative average invasive MAP, end-tidal carbon dioxide pressure, fluid infusion rate of crystalloids and colloids, operation time, and percentage of total blood loss/patient's blood volume (TBL/PBV).</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Results</h3>\u0000 \u0000 <p>A total of 105 children were included in the study. Massive haemorrhage (TBL/PBV ≥50%) was reported in 53.3% of patients, who had significantly higher D-rScO<sub>2</sub> (%) (<i>t</i> = −5.264, <i>P</i> &lt; 0.001) than those who had non-massive haemorrhage (TBL/PBV &lt;50%). Multiple regression analysis revealed that TBL/PBV (<i>β</i> = 0.04, 95% CI: 0.018–0.062, <i>P</i> &lt; 0.05) was significantly associated with D-rScO<sub>2</sub>%.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Conclusions</h3>\u0000 \u0000 <p>Intraoperative massive blood loss in children significantly increased D-rScO<sub>2</sub>%. Monitoring should be improved, and timely blood supplementation should be performed to ensure maintenance of the blood and oxygen supply to vital organs, improve the safety of anaesthesia, and avoid neurological complications.</p>\u0000 </section>\u0000 </div>","PeriodicalId":16648,"journal":{"name":"Journal of paediatrics and child health","volume":null,"pages":null},"PeriodicalIF":1.6,"publicationDate":"2024-07-20","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141731264","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Mortality risk factors in children with influenza-associated encephalopathy admitted to the paediatric intensive care unit between 2009 and 2021 2009年至2021年期间入住儿科重症监护室的流感相关脑病患儿的死亡风险因素。
IF 1.6 4区 医学 Q2 PEDIATRICS Pub Date : 2024-07-18 DOI: 10.1111/jpc.16611
Jiajia Bi, Xiaoxin Wu, Jikui Deng

Aim

The purpose of this study was to determine the risk factors for death in children with influenza-associated encephalopathy (IAE) in the paediatric intensive care unit (PICU).

Methods

Forty-six paediatric patients with IAE admitted to the PICU at shenzhen Children's Hospital between December 2009 and December 2021 were evaluated. Their clinical characteristics were retrospectively analysed.

Results

A total of 46 patients were diagnosed with influenza A virus infection and encephalopathy. The cases were concentrated in children <5 years of age (27/46, 58.7%). Twenty-nine patients (63.0%) survived and 17 patients (37.0%) died, of which 70.6% (12/17) of the patients died within 1 week of hospitalisation. Thirty-two patients (69.6%) developed neurological symptoms within 1–2 days of fever onset. Common symptoms included fever (45/46, 97.8%), loss of consciousness (39/46, 84.8%), seizures (31/46, 67.4%), cough (19/46, 41.3%), and vomiting (16/46, 34.8%). Multivariate logistic regression analysis indicated that vomiting (odds ratio [OR], 11.005), loss of consciousness (AVPU score: P; OR, 15.871), lymphopenia (OR, 8.964), alanine aminotransferase (>80 IU/L; OR, 32.060) and serum sodium concentration (>145 mmol/L or <135 mmol/L; OR, 16.264) were related to mortality.

Conclusions

The mortality in this study population was 37.0%. Children with IAE who have corresponding clinical manifestations and abnormal examination results in PICU should be warned of the high mortality rate.

目的:本研究旨在确定儿科重症监护病房(PICU)中流感相关脑病(IAE)患儿的死亡风险因素:方法:对2009年12月至2021年12月期间入住深圳市儿童医院儿科重症监护室的46名IAE患儿进行评估。结果:共有 46 名患者被诊断为 IAE:结果:共有46名患者被确诊为甲型流感病毒感染合并脑病。病例主要集中在儿童(80 IU/L;OR,32.060)和血清钠浓度(>145 mmol/L或结论):本研究人群的死亡率为 37.0%。应提醒在 PICU 有相应临床表现和异常检查结果的 IAE 患儿注意高死亡率。
{"title":"Mortality risk factors in children with influenza-associated encephalopathy admitted to the paediatric intensive care unit between 2009 and 2021","authors":"Jiajia Bi,&nbsp;Xiaoxin Wu,&nbsp;Jikui Deng","doi":"10.1111/jpc.16611","DOIUrl":"10.1111/jpc.16611","url":null,"abstract":"<div>\u0000 \u0000 <section>\u0000 \u0000 <h3> Aim</h3>\u0000 \u0000 <p>The purpose of this study was to determine the risk factors for death in children with influenza-associated encephalopathy (IAE) in the paediatric intensive care unit (PICU).</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Methods</h3>\u0000 \u0000 <p>Forty-six paediatric patients with IAE admitted to the PICU at shenzhen Children's Hospital between December 2009 and December 2021 were evaluated. Their clinical characteristics were retrospectively analysed.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Results</h3>\u0000 \u0000 <p>A total of 46 patients were diagnosed with influenza A virus infection and encephalopathy. The cases were concentrated in children &lt;5 years of age (27/46, 58.7%). Twenty-nine patients (63.0%) survived and 17 patients (37.0%) died, of which 70.6% (12/17) of the patients died within 1 week of hospitalisation. Thirty-two patients (69.6%) developed neurological symptoms within 1–2 days of fever onset. Common symptoms included fever (45/46, 97.8%), loss of consciousness (39/46, 84.8%), seizures (31/46, 67.4%), cough (19/46, 41.3%), and vomiting (16/46, 34.8%). Multivariate logistic regression analysis indicated that vomiting (odds ratio [OR], 11.005), loss of consciousness (AVPU score: P; OR, 15.871), lymphopenia (OR, 8.964), alanine aminotransferase (&gt;80 IU/L; OR, 32.060) and serum sodium concentration (&gt;145 mmol/L or &lt;135 mmol/L; OR, 16.264) were related to mortality.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Conclusions</h3>\u0000 \u0000 <p>The mortality in this study population was 37.0%. Children with IAE who have corresponding clinical manifestations and abnormal examination results in PICU should be warned of the high mortality rate.</p>\u0000 </section>\u0000 </div>","PeriodicalId":16648,"journal":{"name":"Journal of paediatrics and child health","volume":null,"pages":null},"PeriodicalIF":1.6,"publicationDate":"2024-07-18","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141633807","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Medical assessments for abuse and neglect in contacts of maltreated children 对被虐待儿童接触者的虐待和忽视情况进行医疗评估。
IF 1.6 4区 医学 Q2 PEDIATRICS Pub Date : 2024-07-16 DOI: 10.1111/jpc.16618
Nancy D. Kellogg, James L. Lukefahr, Wouter Koek

Aim

Identifying abuse or neglect in one child (index) implicates risk to other children residing in the same home (contacts). While child protection investigators may interview and visually examine contacts, there is lack of consensus regarding when contacts should have a medical assessment. Our goal was to describe the prevalence, characteristics and predictors of abuse and neglect among contacts medically assessed by a child maltreatment evaluation centre over a 5-year period.

Methods

Records of 381 maltreated index children and their 588 contacts were reviewed. Abuse or neglect was diagnosed in 15% of contact children.

Results

When index children had more than one type of maltreatment or more than three risk factors, their contacts were more likely to be neglected or abused, respectively. Failure to thrive, patterned injuries, and unmet medical needs were the most common findings among maltreated contacts, and most were diagnosed with injuries or conditions that would not be evident to a child protection investigator.

Conclusions

Clinicians should consider evaluating contacts of maltreated children who have multiple risk factors or maltreatment types. These evaluations should include a careful assessment for injuries, growth and unmet medical needs.

目的:发现一名儿童(指数)受到虐待或忽视,就会给居住在同一家庭的其他儿童(接触者)带来风险。虽然儿童保护调查人员可能会对接触者进行面谈和目测,但对于接触者何时应接受医学评估却缺乏共识。我们的目标是描述 5 年内由儿童虐待评估中心进行医学评估的接触者中虐待和忽视的发生率、特征和预测因素:我们审查了 381 名受虐待儿童及其 588 名接触者的记录。15%的接触儿童被诊断为虐待或忽视:结果:当指数儿童有一种以上的虐待行为或三种以上的风险因素时,他们的接触者更有可能被忽视或被虐待。在受虐待的接触者中,发育不良、模式化伤害和未满足的医疗需求是最常见的发现,而且大多数接触者被诊断出患有儿童保护调查员无法察觉的伤害或病症:临床医生应考虑对具有多种风险因素或虐待类型的受虐待儿童接触者进行评估。这些评估应包括对伤害、成长和未满足的医疗需求的仔细评估。
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引用次数: 0
A novel model of care for paediatric patients with developmental disabilities and associated behaviours of concern 为有发育障碍和相关关注行为的儿科病人提供新型护理模式。
IF 1.6 4区 医学 Q2 PEDIATRICS Pub Date : 2024-07-16 DOI: 10.1111/jpc.16615
Daryl Efron, James Fowler, Emily Cull, Kirsten Noakes, Claire Wilkin, Ric Haslam

Aim

Children and adolescents with autism spectrum disorder and/or intellectual disability often present to emergency departments with behaviours of concern: irritability, aggression and self-injurious behaviour. The objective of this study was to design, implement and evaluate a new model of care to support these patients and their families following presentation to reduce the need for re-presentation.

Methods

We designed and evaluated a new model of care for these patients, comprising consultations with a developmental paediatrician and a child psychiatrist, referral to a specialist behavioural service and 6 weeks of care coordination by a clinical nurse consultant. Using a quality improvement framework, iterative improvements were made to the model via a series of plan–do–study–act cycles. Re-presentation rates were compared with a control group of patients who presented with behaviours of concern but were not recruited into the study. Participating families and treating clinicians were surveyed at 2 and 6 weeks post-enrolment to gather qualitative feedback about their experience of the model.

Results

A total of 31 families participated in the study. Three- and 6-month re-presentation rates were 48.7% and 36.3% lower than the control group. Qualitative evaluation of the model by both families and clinicians was positive. The model was feasible and acceptable. Families reported feeling heard and understood, and that the intervention was helpful and provided a positive path forwards.

Conclusions

The findings suggest that a simple model of care can be successfully implemented and provide meaningful benefits for families of children with behaviours of concern, including reduced crisis-oriented help-seeking.

目的:患有自闭症谱系障碍和/或智力障碍的儿童和青少年在急诊科就诊时经常会出现令人担忧的行为:易怒、攻击和自伤行为。本研究旨在设计、实施和评估一种新的护理模式,为这些患者及其家人提供就诊后的支持,以减少再次就诊的需要:我们为这些患者设计并评估了一种新的护理模式,包括与发育儿科医生和儿童精神科医生会诊、转诊至行为专科服务机构以及由临床护士顾问进行为期 6 周的护理协调。利用质量改进框架,通过一系列 "计划-实施-研究-行动 "周期对该模式进行了反复改进。再次就诊率与对照组患者进行了比较,对照组患者出现了令人担忧的行为,但未被纳入研究。在报名后的 2 周和 6 周,对参与家庭和主治临床医生进行了调查,以收集他们对该模式体验的定性反馈:共有 31 个家庭参与了研究。与对照组相比,3 个月和 6 个月的再次就诊率分别降低了 48.7% 和 36.3%。家庭和临床医生对该模式的定性评价都是积极的。该模式是可行和可接受的。家庭表示感觉自己的意见被倾听和理解,干预措施很有帮助,并提供了一条积极的前进道路:研究结果表明,一个简单的护理模式可以成功实施,并为有令人担忧行为的儿童家庭带来有意义的益处,包括减少以危机为导向的求助。
{"title":"A novel model of care for paediatric patients with developmental disabilities and associated behaviours of concern","authors":"Daryl Efron,&nbsp;James Fowler,&nbsp;Emily Cull,&nbsp;Kirsten Noakes,&nbsp;Claire Wilkin,&nbsp;Ric Haslam","doi":"10.1111/jpc.16615","DOIUrl":"10.1111/jpc.16615","url":null,"abstract":"<div>\u0000 \u0000 <section>\u0000 \u0000 <h3> Aim</h3>\u0000 \u0000 <p>Children and adolescents with autism spectrum disorder and/or intellectual disability often present to emergency departments with behaviours of concern: irritability, aggression and self-injurious behaviour. The objective of this study was to design, implement and evaluate a new model of care to support these patients and their families following presentation to reduce the need for re-presentation.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Methods</h3>\u0000 \u0000 <p>We designed and evaluated a new model of care for these patients, comprising consultations with a developmental paediatrician and a child psychiatrist, referral to a specialist behavioural service and 6 weeks of care coordination by a clinical nurse consultant. Using a quality improvement framework, iterative improvements were made to the model via a series of plan–do–study–act cycles. Re-presentation rates were compared with a control group of patients who presented with behaviours of concern but were not recruited into the study. Participating families and treating clinicians were surveyed at 2 and 6 weeks post-enrolment to gather qualitative feedback about their experience of the model.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Results</h3>\u0000 \u0000 <p>A total of 31 families participated in the study. Three- and 6-month re-presentation rates were 48.7% and 36.3% lower than the control group. Qualitative evaluation of the model by both families and clinicians was positive. The model was feasible and acceptable. Families reported feeling heard and understood, and that the intervention was helpful and provided a positive path forwards.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Conclusions</h3>\u0000 \u0000 <p>The findings suggest that a simple model of care can be successfully implemented and provide meaningful benefits for families of children with behaviours of concern, including reduced crisis-oriented help-seeking.</p>\u0000 </section>\u0000 </div>","PeriodicalId":16648,"journal":{"name":"Journal of paediatrics and child health","volume":null,"pages":null},"PeriodicalIF":1.6,"publicationDate":"2024-07-16","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141627025","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
期刊
Journal of paediatrics and child health
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