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Functionally relevant physical exercises as an objective measure of clinical improvement in pediatric chronic pain. 将与功能相关的体育锻炼作为儿科慢性疼痛临床改善的客观衡量标准。
IF 1.9 Q4 PEDIATRICS Pub Date : 2023-01-01 DOI: 10.3233/PRM-220036
Heidi Kempert, Ethan Benore

Purpose: This exploratory study demonstrates the application of functionally relevant physical exercises (FRPE) to objectively assess physical functioning among children with chronic pain. Intensive interdisciplinary pain treatment (IIPT) focuses on functional improvements as a primary outcome. FRPEs aim to enhance clinical assessments and monitoring by providing relevant data for physical and occupational therapies.

Methods: Children enrolled in three weeks of IIPT provided data for study. They completed two self-report measures of functioning (Lower Extremity Functioning Scale [LEFS] and Upper Extremity Functioning Index [UEFI]), measure of pain intensity, and six separate FRPEs (box carry, box lifts, floor to stand, sit to stand, step ups, and modified six-minute walk test). Data from 207 participants aged 8-20 years old were analyzed.

Results: Upon admission, over 91% of children could perform each FRPE at some level to provide clinicians with a baseline assessment of functional strength. Following IIPT, all children were able to complete FRPEs. Overall, children reported statistically significant gains in functioning on all subjective reports and FRPEs (p's < 0.001). Spearman correlations demonstrated that LEFS and UEFI were weakly to moderately correlated to all FRPEs at admission (r's between.43-.64, p's < 0.001 and.36-.50, p's < 0.01 respectively). Correlations between all subjective and objective measures were comparatively lower at discharge.

Conclusion: FRPEs appear to serve as good objective measures of strength and mobility for children with chronic pain, measuring variability across patients and change over time, which is unique from subjective data gathered via self-report. Due to face validity and objective measurement of functioning, from a clinical practice perspective, FRPEs provide meaningful information to support initial assessment, treatment planning, and patient monitoring. This study offers initial support for a novel measurement method that is easily administered and replicated to effectively measure functional improvement in children with chronic pain.

目的:这项探索性研究展示了如何应用功能相关体育锻炼(FRPE)来客观评估慢性疼痛儿童的身体功能。跨学科疼痛强化治疗(IIPT)以功能改善为主要结果。FRPE旨在为物理和职业疗法提供相关数据,从而加强临床评估和监测:方法:参加为期三周 IIPT 的儿童为研究提供数据。他们完成了两项自我功能报告测量(下肢功能量表[LEFS]和上肢功能指数[UEFI])、疼痛强度测量和六项独立的 FRPEs(提箱子、举箱子、从地面到站立、从坐到站立、台阶起立和改良的六分钟步行测试)。对 207 名 8-20 岁参与者的数据进行了分析:入院时,超过 91% 的儿童能在一定程度上完成每项 FRPE,为临床医生提供了功能力量基线评估。IIPT 结束后,所有儿童都能完成 FRPE。总体而言,儿童在所有主观报告和 FRPE 方面的功能均有显著提高(P's 结论):FRPE 似乎是对慢性疼痛患儿的力量和活动能力进行客观测量的良好方法,可测量不同患者的差异性和随时间的变化,这与通过自我报告收集的主观数据截然不同。从临床实践的角度来看,FRPEs 具有表面效度和对功能的客观测量,可为初步评估、治疗计划和患者监测提供有意义的信息。这项研究为一种新颖的测量方法提供了初步支持,该方法易于管理和复制,可有效测量慢性疼痛儿童的功能改善情况。
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引用次数: 0
Use of shear wave elastography to analyze the muscle structure in children with spastic cerebral palsy. 应用横波弹性成像分析痉挛型脑瘫儿童的肌肉结构。
IF 1.9 Q4 PEDIATRICS Pub Date : 2023-01-01 DOI: 10.3233/PRM-201511
Pinar Doruk Analan, Hulya Aslan

Purpose: In children with cerebral palsy (CP), gastrocnemius muscle spasticity may lead to pes equinus posture which causes insufficient ankle joint dorsiflexion for normal gait. The aim of this study was to analyze the stiffness of gastrocnemius and tibialis anterior muscles by shear wave elastography (SWE) in children with pes equinus deformity due to spastic CP.

Methods: 24 legs of 12 children (6 females and 6 males, mean age 45.8 months) with CP were prospectively included in the study. Tissue stiffness quantification with shear-wave velocity (SWV) was analyzed.

Results: The mean SWVs of the gastrocnemius and tibialis anterior muscles were 3.91±0.26 m/s and 2.67±0.18 m/s, respectively. The stiffness of the gastrocnemius muscle was significantly higher than the stiffness of the tibialis anterior muscle (p < 0.0001). There was no correlation between the stiffness of these muscles (r = 0.129, p > 0.05).

Conclusion: Gastrocnemius muscles were stiffer than tibialis anterior muscles in patients with spastic CP. But stiffness between these muscles was not correlated with each other. Pes equinus may be related to stiff gastrocnemius in these patients. This study demonstrates the clinical potential for SWE as a non-invasive tool for analyzing calf muscle stiffness.

目的:脑瘫(CP)患儿腓肠肌痉挛可导致马蹄形姿势,导致踝关节背屈不足以正常步态。本研究采用横波弹性成像(SWE)分析痉挛性马蹄足畸形患儿腓肠肌和胫骨前肌的僵硬程度。方法:前瞻性研究12例马蹄足畸形患儿24条腿(男6女6,平均年龄45.8个月)。分析了用剪切波速(SWV)量化组织刚度的方法。结果:腓肠肌和胫前肌的平均SWVs分别为3.91±0.26 m/s和2.67±0.18 m/s。腓肠肌僵硬度明显高于胫前肌僵硬度(p < 0.05)。结论:痉挛性CP患者腓肠肌比胫前肌僵硬,但两者之间的僵硬程度不相关。这些患者的马蹄足可能与腓肠肌僵硬有关。这项研究证明了SWE作为分析小腿肌肉僵硬的非侵入性工具的临床潜力。
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引用次数: 0
Identifying racial disparities in care for children with spastic cerebral palsy: A single center study. 识别痉挛性脑瘫儿童护理中的种族差异:一项单中心研究。
IF 1.9 Q4 PEDIATRICS Pub Date : 2023-01-01 DOI: 10.3233/PRM-210094
Alecia K Daunter, Jessica Pruente, Angeline Bowman, Daniel G Whitney

Purpose: Existing evidence identifies racial and ethnic disparities impacting the prevalence and severity of cerebral palsy (CP). There is a paucity of literature examining the impact on associated treatment.

Methods: In this retrospective cohort study, an institutional database search identified outpatient encounters for pediatric patients with spastic CP. Additional filters were used to determine treatments received. For each treatment, the proportion of African American (AA) patients receiving treatment was compared to the proportion of Caucasian (C) patients receiving the same treatment.

Results: 3,686 children with spastic CP were seen in outpatient clinics associated with an academic tertiary hospital over a 21-year period. There was no significant difference between the proportion of any treatment compared to the entire sample for AA or C patients.

Conclusion: In this sample, there was no significant evidence of a racial disparity for AA patients receiving treatments for spasticity. This data is limited by several factors. Further research is needed to determine whether pediatric patients with disabilities are receiving equitable care. Clinicians should consider systematically monitoring their practices to identify areas of bias or inequity in accessing care.

目的:现有证据表明种族和民族差异影响脑瘫(CP)的患病率和严重程度。研究其对相关治疗影响的文献很少。方法:在这项回顾性队列研究中,一个机构数据库搜索确定了患有痉挛性CP的儿科患者的门诊就诊情况。使用附加过滤器来确定接受的治疗。对于每一种治疗,比较非洲裔美国人(AA)患者接受治疗的比例与高加索人(C)患者接受相同治疗的比例。结果:21年间,某三级专科医院门诊共收治了3686例痉挛性CP患儿。对于AA或C患者,任何治疗的比例与整个样本相比没有显著差异。结论:在本样本中,没有明显的证据表明在接受痉挛治疗的AA患者中存在种族差异。这一数据受到几个因素的限制。需要进一步的研究来确定残疾儿童患者是否得到了公平的护理。临床医生应考虑系统地监测他们的实践,以确定在获得护理方面存在偏见或不公平的领域。
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引用次数: 0
The complete acute and post-acute care course of children affected by acute flaccid myelitis in Western Pennsylvania: A case series. 宾夕法尼亚州西部急性弛缓性脊髓炎患儿的急性期和急性期后的完整治疗过程:病例系列。
IF 1.9 Q4 PEDIATRICS Pub Date : 2023-01-01 DOI: 10.3233/PRM-210120
Jessica Beardsley, Andrew McCoy, Megan Freeman, Natan Cramer, Desiree Neville, Silvia Owusu-Ansah, Amy Houtrow, Amit Sinha

Acute flaccid myelitis (AFM) is a "polio-like" neurologic disorder of the spinal cord gray matter characterized by asymmetric, flaccid limb weakness of rapid onset following prodromal viral illness. It has affected the pediatric population of the United States since 2014, but there is a paucity of literature describing the post-acute comprehensive rehabilitation management that maximizes functional outcomes for patients. This case series attempts to mitigate this by describing the complete acute and post-acute care course of six children diagnosed with AFM in Western Pennsylvania. It is critical that pediatric rehabilitation medicine providers be knowledgeable about the complex medical and rehabilitation management for patients with AFM.

急性弛缓性脊髓炎(AFM)是一种 "类似小儿麻痹症 "的脊髓灰质神经系统疾病,其特征是在病毒性疾病前驱期迅速出现不对称、弛缓性肢体无力。自 2014 年以来,这种疾病一直影响着美国的儿科人群,但描述能最大限度改善患者功能的急性期后综合康复管理的文献却很少。本系列病例试图通过描述宾夕法尼亚州西部六名被诊断为甲沟炎儿童的完整急性期和急性期后护理过程来缓解这一问题。至关重要的是,儿科康复医疗服务提供者必须了解手足口病患者复杂的医疗和康复管理。
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引用次数: 0
Six-minute walk test and factors affecting exercise capacity in children with cystic fibrosis. 囊性纤维化儿童6分钟步行试验及影响运动能力的因素。
IF 1.9 Q4 PEDIATRICS Pub Date : 2023-01-01 DOI: 10.3233/PRM-210089
Vahideh Toopchizadeh, Elaheh Nezamoleslami, Mandana Rafeey, Fatemeh Jahanjoo, Mohammad Sadegh Khabbaz, Amir Hossein Jafari-Rouhi

Purpose: This study aimed to compare the result of the six-minute walk test (6MWT) in patients with cystic fibrosis (CF) aged < 20 years old and individuals without CF.

Methods: In this cross-sectional study, 50 children and adolescents with CF and 20 children and adolescents without CF underwent the 6MWT. Vital signs before and immediately after the 6MWT and six-minute walk distance (6MWD) were evaluated.

Results: The mean change in heart rate, percentage of peripheral oxygen saturation (SpO2%), systolic blood pressure, respiratory rate, and dyspnea severity during the 6MWT was significantly higher in patients with CF. In the case group, 6MWD was associated with regular chest physical therapy (CPT) and forced expiratory volume (FEV)> 80%. Patients with CF receiving regular CPT or mechanical vibration and with FEV in the first second > 80% showed better physical capacity during the 6MWT (smaller Sp02% decline and lower dyspnea perception).

Conclusion: Children and adolescents with CF have lower physical capacity compared to individuals without CF. CPT and mechanical vibration could be used to increase physical capacity in this population.

目的:本研究旨在比较老年囊性纤维化(CF)患者6分钟步行试验(6MWT)的结果 方法:在这项横断面研究中,50名患有CF的儿童和青少年以及20名没有CF的儿童或青少年接受了6MWT。评估6MWT和6分钟步行距离(6MWD)前后的生命体征。结果:CF患者在6MWT期间心率、外周血氧饱和度百分比(SpO2%)、收缩压、呼吸频率和呼吸困难严重程度的平均变化显著较高。在病例组中,6MWD与常规胸部物理治疗(CPT)和用力呼气量(FEV)> 80%。CF患者接受常规CPT或机械振动,并在第一秒内出现FEV > 80%的患者在6MWT期间表现出更好的体力(Sp02%下降较小,呼吸困难感较低)。结论:患有慢性疲劳的儿童和青少年的体能比没有慢性疲劳的人低。CPT和机械振动可用于提高该人群的体能。
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引用次数: 0
Release and highlights of the Lifespan Bowel Management Protocol produced for clinicians who manage neurogenic bowel dysfunction in individuals with spina bifida. 发布为管理脊柱裂患者神经源性肠道功能障碍的临床医生制作的《全生命周期肠道管理规程》并介绍其要点。
IF 1.9 Q4 PEDIATRICS Pub Date : 2023-01-01 DOI: 10.3233/PRM-230060
Maryellen S Kelly, Eileen Sherburne, Joy Kerr, Colleen Payne, Heather Dorries, Patricia Beierwaltes, Adam Guerro, Judy Thibadeau
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引用次数: 0
Abstracts of the 2023 World Congress on Spina Bifi da Research & Care - Transition. 2023年世界脊柱裂数据研究与护理大会摘要。
IF 1.9 Q4 PEDIATRICS Pub Date : 2023-01-01 DOI: 10.3233/PRM-239014
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引用次数: 0
Abstracts of the 2023 World Congress on Spina Bifi da Research & Care - Orthopedics, Physical Therapy & Occupational Therapy. 2023年世界脊柱裂研究与护理大会-骨科,物理治疗和职业治疗摘要。
IF 1.9 Q4 PEDIATRICS Pub Date : 2023-01-01 DOI: 10.3233/PRM-239011
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引用次数: 0
Efficacy of intrathecal morphine administration in pediatric patients undergoing selective dorsal rhizotomy. 鞘内给药吗啡在小儿选择性背根切断术中的疗效。
IF 1.9 Q4 PEDIATRICS Pub Date : 2023-01-01 DOI: 10.3233/PRM-220048
Jared Pennington, Shawnelle Contini, Miraides Brown, Nupur Goel, Tsulee Chen

Purpose: The purpose of this study was to evaluate the effectiveness of intrathecal morphine following selective dorsal rhizotomy in pediatric patients previously diagnosed with cerebral palsy.

Methods: This was a retrospective, cohort analysis over the course of four years. The analysis consisted of a treatment group which received intrathecal morphine (5 mcg/kg) injection and a control group that did not receive the injection prior to dural closure. All patients underwent multilevel laminectomies for selective dorsal rhizotomy at Akron Children's Hospital. The effectiveness of the treatment was measured by total dose of hydromorphone administered on patient-controlled analgesia (PCA), number of days on oral narcotics, and cumulative dose of oral narcotic.

Results: Of the analyzed 15 pediatric patients, seven patients received intrathecal morphine injection while the other eight did not receive the treatment prior to dural closure. There was a difference of 1135 mcg in total PCA dose between the study group (3243 mcg) and the control group (4378 mcg). The total PCA dose based on weight was lower in the study group (163 mcg/kg) than in the control group (171 mcg/kg).

Conclusion: Based on these findings, the administration of intrathecal morphine clinically reduces the opiate need in the first 96 hours post-operatively.

目的:本研究的目的是评估脊髓鞘内吗啡在既往诊断为脑瘫的儿童患者选择性脊髓背根切断术后的有效性。方法:这是一项为期四年的回顾性队列分析。分析包括治疗组接受鞘内注射吗啡(5 mcg/kg),对照组在硬脑膜闭合前未接受注射。所有患者均在阿克伦儿童医院接受了多节段椎板切除术和选择性背根切断术。通过患者自控镇痛(PCA)时氢吗啡酮的总剂量、口服麻醉品的用药天数和口服麻醉品的累积剂量来衡量治疗效果。结果:在分析的15例儿童患者中,7例患者接受了鞘内吗啡注射,另外8例患者在硬膜闭合前未接受治疗。研究组(3243 mcg)与对照组(4378 mcg)的总PCA剂量相差1135 mcg。研究组基于体重的PCA总剂量(163微克/千克)低于对照组(171微克/千克)。结论:基于这些发现,鞘内注射吗啡在临床上减少了术后96小时内阿片类药物的需求。
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引用次数: 0
Translation and preliminary validation of the Brazilian family resources scale in a sample of parents of children with congenital Zika virus syndrome. 在先天性寨卡病毒综合征患儿父母样本中翻译并初步验证巴西家庭资源量表。
IF 1.9 Q4 PEDIATRICS Pub Date : 2023-01-01 DOI: 10.3233/PRM-220025
Sarah Barker Ladd, Natalie A Williams, Pompéia Villachan-Lyra, Emmanuelle Chaves, Cody Hollist, Renata Trefiglio Mendes Gomes, Leopoldo Nelson F Barbosa

Purpose: Family-centered rehabilitative care optimizes outcomes for children with significant developmental disabilities. Family-centered services involve assessing family resources that promote positive developmental outcomes for children. Little is known regarding family resources in the context of caring for a child with developmental disabilities in Brazil due to an absence of validated measures. This study describes the translation and cultural adaptation of the Family Resource Scale and explored the measurement quality of the resulting measure (the Brazilian-Family Resource Scale, or B-FRS).

Methods: A rigorous serial translation process that emphasized linguistic accuracy as well as cultural adaptation was utilized. The resulting 27-item B-FRS was theoretically related and reflected the contextual intent of the original measure.

Results: A four-factor scoring approach yielded acceptable internal consistency estimates for the subscales and total scale score. Overall, low levels of family resources were reported by caregivers of children with Congenital Zika Syndrome. Low family resources were associated with parental depressive and stress-related symptoms.

Conclusion: Confirmatory factor analysis of the B-FRS in a larger sample is recommended. Practitioners in Brazil should broadly consider family needs and resources to provide family-centered care that is effective for the child and engages the family in a way that highlights their strengths and promotes positive developmental trajectories.

目的以家庭为中心的康复护理可优化严重发育障碍儿童的康复效果。以家庭为中心的服务包括评估家庭资源,以促进儿童取得积极的发展成果。由于缺乏有效的测量方法,人们对巴西照顾发育障碍儿童的家庭资源知之甚少。本研究介绍了家庭资源量表的翻译和文化调整,并探讨了由此产生的量表(巴西-家庭资源量表,或 B-FRS)的测量质量:方法:采用了严格的序列翻译程序,强调语言准确性和文化适应性。结果:采用四因素计分法得出了巴西-家庭资源量表(Brazilian-Family Resource Scale,简称 B-FRS):四因素计分法得出了各分量表和量表总分可接受的内部一致性估计值。总体而言,先天性寨卡综合征患儿的照顾者报告的家庭资源水平较低。低家庭资源与父母的抑郁和压力相关症状有关:建议在更大的样本中对 B-FRS 进行确认性因素分析。巴西的从业人员应广泛考虑家庭的需求和资源,提供以家庭为中心的护理,这种护理对儿童有效,并能以突出家庭优势和促进积极发展轨迹的方式吸引家庭参与。
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引用次数: 0
期刊
Journal of pediatric rehabilitation medicine
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