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Multidisciplinary physical rehabilitation program of individuals with spinal muscular atrophy in an inclusive school setting. 脊髓性肌萎缩症患者在包容性学校环境中的多学科物理康复计划。
IF 0.8 Q4 PEDIATRICS Pub Date : 2024-01-01 DOI: 10.3233/PRM-230008
Faruq Ahmed, Asma Islam, Suria Akter, Md Abdullah Al Zubayer, Md Nasim Mahmud, Hosneara Yeasmin, Zannatul Mawa

Spinal muscular atrophy (SMA) is a neuromuscular ailment that leads to the deprivation of motor neurons in the spinal cord, producing denervation and muscle weakness. This case report explains how a patient with type 2 SMA used a therapeutic exercise rehabilitation program in a school environment. Motor functions were assessed by Gross Motor Function Measure-88 (GMFM-88), Manual Muscle Testing (MMT), and Hammersmith Functional Motor Scale (HFMS), which is validated and reliable. This study employed a repeated pre-test post-test measures design. During a year of treatment sessions, the child underwent twice weekly 45-minute physical therapy sessions for 48 weeks. The research was carried out between March 2022 and February 2023. The purpose of the intervention, which comprised a variety of therapeutic workouts, was to enhance physical function and gross motor abilities in an age-appropriate manner. The intervention utilized in this study led to improvements in GMFM-88, HFMS, and MMT total scores. The results of this case study showed that a child with type 2 SMA aged nine had successfully improved their gross motor skills and muscle strength.

脊髓性肌萎缩症(SMA)是一种神经肌肉疾病,导致脊髓运动神经元被剥夺,产生神经支配丧失和肌肉无力。本病例报告解释了2型SMA患者如何在学校环境中使用治疗性运动康复计划。采用大运动功能量表-88 (GMFM-88)、手动肌肉测试(MMT)和Hammersmith功能运动量表(HFMS)对运动功能进行评估。本研究采用重复前测后测方法设计。在一年的治疗过程中,孩子每周接受两次45分钟的物理治疗,持续48周。该研究于2022年3月至2023年2月进行。干预的目的包括各种治疗性锻炼,以适合年龄的方式增强身体功能和大运动能力。本研究采用的干预措施改善了GMFM-88、HFMS和MMT总分。这个案例研究的结果表明,一个患有2型SMA的儿童在9岁时成功地提高了他们的大运动技能和肌肉力量。
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引用次数: 0
Spina bifida global learning collaborative: Educating the next generation of clinicians, researchers, and advocates 脊柱裂全球学习合作组织:教育下一代临床医生、研究人员和倡导者
IF 1.9 Q4 PEDIATRICS Pub Date : 2023-12-20 DOI: 10.3233/prm-230037
N. Dosa, Yakob S. Ahmed, Ann I. Alriksson‐Schmidt, H. Castillo, Silvana Contepomi, Mary M. Locastro, Jan Koning, George Koutsouros, Elly Kutwa, Anjali Mahorta, Shade MacFarland, A. Öhrvall, Patricia O’Neill, Anneloes Overvelde, M. Peny-Dahlstrand, Andrea Shaw, Jessica Stockman, Zulma Tovar-Spinoza, Jonathan Castillo
PURPOSE: This project aimed to launch an international learning community to guide the development of a spina bifida (SB) curriculum for global health trainees. METHODS: Using a descriptive study design, a convenience sample of SB curricula were identified in 2022–23 by members of the Spina Bifida World Congress Outreach Committee and evaluated during a series of monthly Zoom calls to discuss SB education in a global health context. Participants included (1) leadership from the ReachAnother Foundation, (2) invited panelists from the Spina Bifida World Congress Global Health Symposium, and (3) global health students and preceptors. Education initiatives in Ethiopia, Sweden, Argentina, Ecuador, and the United States were evaluated vis-à-vis format and content. RESULTS: All of the education initiatives referenced the framework of the World Health Organization International Classification of Functioning, Disability and Health. Formats varied and included both virtual and interactive workshops, print materials, videos, and guides for small group discussion. Content addressed four domains: Folate Prevention, Neurosurgical Training, After Care, and Data Collection. A multidisciplinary approach, partnerships with families, and workforce pipeline training were identified as guiding themes for educating the next generation of SB researchers and clinicians in global health settings. CONCLUSION: The Spina Bifida Global Learning Collaborative is a transnational group of advocates, clinicians, and investigators whose mission is the advancement of SB-related global health education. Lessons learned from the collaborative are being leveraged to develop a global health curriculum for learners, which may improve services for individuals with SB around the globe.
目的:本项目旨在发起一个国际学习社区,以指导全球健康受训人员脊柱裂(SB)课程的开发。方法:采用描述性研究设计,由脊柱裂世界大会外联委员会成员在 2022-23 年期间确定脊柱裂课程的便利样本,并在一系列每月一次的 Zoom 电话会议中进行评估,以讨论全球健康背景下的脊柱裂教育。与会者包括:(1)ReachAnother 基金会的领导;(2)脊柱裂世界大会全球健康研讨会的特邀小组成员;(3)全球健康专业的学生和实习医生。对埃塞俄比亚、瑞典、阿根廷、厄瓜多尔和美国的教育活动的形式和内容进行了评估。结果:所有教育活动都参考了世界卫生组织的《国际功能、残疾和健康分类》框架。形式多种多样,包括虚拟和互动研讨会、印刷材料、视频和小组讨论指南。内容涉及四个领域:叶酸预防、神经外科培训、术后护理和数据收集。多学科方法、与家庭的合作以及劳动力管道培训被确定为在全球健康环境中教育下一代脊柱裂研究人员和临床医生的指导主题。结论:脊柱裂全球学习合作组织是一个由倡导者、临床医生和研究人员组成的跨国团体,其使命是促进与脊柱裂相关的全球健康教育。从该合作组织中汲取的经验正被用于为学习者开发全球健康课程,这可能会改善全球脊柱裂患者的服务。
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引用次数: 0
Commentary on “Causes of death among people with myelomeningocele: A multi-institutional 47-year retrospective study” by Szymanski et al. 对 Szymanski 等人撰写的 "脊髓脊膜膨出症患者的死因:一项多机构 47 年回顾性研究 "的评论。
IF 1.9 Q4 PEDIATRICS Pub Date : 2023-12-19 DOI: 10.3233/prm-230068
Michael D. Partington
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引用次数: 0
Preliminary assessment of a standardized vision screening guideline in a pediatric inpatient rehabilitation unit 儿科住院康复病房视力筛查标准化指南的初步评估
IF 1.9 Q4 PEDIATRICS Pub Date : 2023-12-16 DOI: 10.3233/prm-220137
Jordan R. Wentz, Erin E. Wentz, Samuel R Pierce
PURPOSE: This study aimed to evaluate the impact of a standardized vision screen guideline on occupational therapy vision screens in a pediatric inpatient rehabilitation unit. METHODS: Charts of patients admitted to a pediatric inpatient rehabilitation before guideline implementation (n = 47) versus charts after implementation (n = 47) were randomly, retrospectively reviewed to explore differences in visual skills screened and use of standardized assessments. RESULTS: Significant improvements (p <  = 0.05) were found in the number of visual skills screened (p = 0.034), use of standardized assessments (p = 0.005), and screening of the specific visual skills of accommodative amplitude (p = 0.05), suppression (p = 0.015), and double vision (p <  0.001). CONCLUSION: Implementation of a standardized vision screen guideline improved the frequency of vision screens during occupational therapy evaluations in a pediatric inpatient rehabilitation unit. The use of standardized assessments may also improve the quality of vision screens by encouraging staff to complete more comprehensive vision screens, including screening more visual skills, and by prompting use of standardized assessments, which can improve accuracy of screening procedures.
目的:本研究旨在评估标准化视力筛查指南对儿科住院康复病房职业治疗视力筛查的影响。方法:对儿科住院康复患者在指南实施前(n = 47)与实施后(n = 47)的病历进行随机、回顾性审查,以探索视觉技能筛查和标准化评估使用方面的差异。结果:在筛查的视觉技能数量(p = 0.034)、标准化评估的使用(p = 0.005)、特定视觉技能的筛查(p = 0.05)、抑制(p = 0.015)和复视(p < 0.001)方面均有显著改善(p < = 0.05)。结论:标准化视力筛查指南的实施提高了儿科住院康复病房职业治疗评估中视力筛查的频率。标准化评估的使用还能提高视力筛查的质量,因为它能鼓励工作人员完成更全面的视力筛查,包括筛查更多的视觉技能,还能促进标准化评估的使用,从而提高筛查程序的准确性。
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引用次数: 0
Causes of death among people with myelomeningocele: A multi-institutional 47-year retrospective study 脊髓脊膜膨出症患者的死因:47 年多机构回顾性研究
IF 1.9 Q4 PEDIATRICS Pub Date : 2023-12-07 DOI: 10.3233/prm-220086
Konrad M. Szymanski, Cyrus M. Adams, Mohammad Y. Alkawaldeh, Paul F. Austin, Robin M. Bowman, H. Castillo, Jonathan Castillo, David I. Chu, Carlos R. Estrada, Michele Fascelli, Dominic C. Frimberger, Patricio C. Gargollo, Dawud G. Hamdan, Sarah L. Hecht, Betsy Hopson, D. Husmann, Micah A. Jacobs, A. MacNeily, D. McLeod, Peter D. Metcalfe, T. Meyer, R. Misseri, Joseph O. O’Neil, A. Rensing, Jonathan C. Routh, K. Rove, K. Sawin, B. Schlomer, Isaac Shamblin, Rebecca L. Sherlock, G. Slobodov, Jennifer Stout, Stacy T. Tanaka, Dana A. Weiss, John S. Wiener, Hadley M. Wood, E. Yerkes, Jeffrey Blount
PURPOSE: This study aimed to analyze organ system-based causes and non-organ system-based mechanisms of death (COD, MOD) in people with myelomeningocele (MMC), comparing urological to other COD. METHODS: A retrospective review was performed of 16 institutions in Canada/United States of non-random convenience sample of people with MMC (born > = 1972) using non-parametric statistics. RESULTS: Of 293 deaths (89% shunted hydrocephalus), 12% occurred in infancy, 35% in childhood, and 53% in adulthood (documented COD: 74%). For 261 shunted individuals, leading COD were neurological (21%) and pulmonary (17%), and leading MOD were infections (34%, including shunt infections: 4%) and non-infectious shunt malfunctions (14%). For 32 unshunted individuals, leading COD were pulmonary (34%) and cardiovascular (13%), and leading MOD were infections (38%) and non-infectious pulmonary (16%). COD and MOD varied by shunt status and age (p < = 0.04), not ambulation or birthyear (p > = 0.16). Urology-related deaths (urosepsis, renal failure, hematuria, bladder perforation/cancer: 10%) were more likely in females (p = 0.01), independent of age, shunt, or ambulatory status (p > = 0.40). COD/MOD were independent of bladder augmentation (p= >0.11). Unexplained deaths while asleep (4%) were independent of age, shunt status, and epilepsy (p >= 0.47). CONCLUSION: COD varied by shunt status. Leading MOD were infectious. Urology-related deaths (10%) were independent of shunt status; 26% of COD were unknown. Life-long multidisciplinary care and accurate mortality documentation are needed.
目的:本研究旨在分析脊髓脊膜膨出(MMC)患者的器官系统死亡原因和非器官系统死亡机制(COD, MOD),并比较泌尿系统和其他死因。方法:采用非参数统计方法对加拿大/美国16家机构的MMC(出生> = 1972)非随机方便样本进行回顾性分析。结果:293例死亡(89%为分流性脑积水)中,12%发生在婴儿期,35%发生在儿童期,53%发生在成年期(记录的COD: 74%)。在261名分流患者中,主要的COD是神经系统(21%)和肺部(17%),主要的MOD是感染(34%,包括分流感染:4%)和非感染性分流故障(14%)。在32例未分流的患者中,COD主要为肺部(34%)和心血管(13%),MOD主要为感染(38%)和非感染性肺部(16%)。COD和MOD与分流状态和年龄有关(p < = 0.04),而与行走和出生年龄无关(p > = 0.16)。泌尿相关死亡(尿脓毒症、肾衰竭、血尿、膀胱穿孔/癌症:10%)在女性中更有可能(p = 0.01),与年龄、分流术或门诊状态无关(p > = 0.40)。COD/MOD与膀胱增强无关(p= >0.11)。原因不明的睡眠死亡(4%)与年龄、分流状态和癫痫无关(p >= 0.47)。结论:分流状态不同,COD不同。主要的MOD具有传染性。泌尿相关死亡(10%)与分流状态无关;26%的COD未知。需要终身多学科护理和准确的死亡率记录。
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引用次数: 0
Cecostomy tubes improve bowel continence for pediatric patients with spina bifida: A retrospective analysis of outcomes from a single clinic 海绵体造口管改善了脊柱裂儿科患者的肠道连续性:对一家诊所成果的回顾性分析
IF 1.9 Q4 PEDIATRICS Pub Date : 2023-12-07 DOI: 10.3233/prm-220123
Asma A. Taha, A. M. Eisen, Hana Q. Abdul Rahman, Kelsey E. Good, Kurt A. Freeman, Jennifer D. Kotzin, Margaret H. Wolf, N. Azar, Kelley R. Davis, J. C. Austin
PURPOSE: Pediatric patients with spina bifida often experience neurogenic bowel dysfunction. Although cecostomy tubes could improve bowel continence, their effectiveness is not well established in this population. The aims of this study were to better understand the effectiveness of cecostomy tubes relative to other management strategies (between-subject) and to explore their effectiveness among patients who received these placements (within-subject). METHODS: Retrospective analysis of data from pediatric patients enrolled in a national spina bifida patient registry (n = 297) at a single multidisciplinary clinic was performed, covering visits between January 2014 –December 2021. Linear and ordinal mixed effect models (fixed and random effects) tested the influence of cecostomy status (no placement vs placement) and time (visits) on bowel continence while controlling for demographic and condition-specific covariates. RESULTS: Patients with cecostomy tubes had higher bowel continence compared to patients without placements (B = 0.695, 95% CI [0.333, 1.050]; AOR = 2.043, p = .007). Patients with cecostomy tubes had higher bowel continence after their placements compared to before (B = 0.834, 95% CI [0.142, 1.540]; AOR = 3.259, p = 0.011). CONCLUSION: Results indicate cecostomy tubes are effective for improving bowel continence in this pediatric population. Future research is needed to conduct risk analyses and determine the clinical significance of these effects.
目的:小儿脊柱裂患者常经历神经源性肠功能障碍。虽然结肠造口管可以改善肠失禁,但其有效性在这一人群中尚未得到很好的证实。本研究的目的是为了更好地了解相对于其他管理策略(受试者之间)的结肠造口管的有效性,并探讨它们在接受这些放置的患者中的有效性(受试者内)。方法:回顾性分析2014年1月至2021年12月在一家多学科诊所登记的国家脊柱裂患者登记处(n = 297)的儿科患者的数据。线性和有序混合效应模型(固定效应和随机效应)在控制人口统计学和条件特异性协变量的同时,测试了结肠切除状态(无放置vs放置)和时间(就诊)对肠失禁的影响。结果:与未置入结肠造口管的患者相比,置入结肠造口管的患者肠失禁发生率更高(B = 0.695, 95% CI [0.333, 1.050];AOR = 2.043, p = .007)。置入结肠造口管后患者的肠失禁发生率高于置入前(B = 0.834, 95% CI [0.142, 1.540];AOR = 3.259, p = 0.011)。结论:结果表明,结肠造口管是改善儿童肠道失禁的有效方法。未来的研究需要进行风险分析,并确定这些影响的临床意义。
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引用次数: 0
Clinical assessment, treatment, and referral trends for adolescent runners seeking care at an injured runners' clinic. 在受伤的跑步者诊所寻求护理的青少年跑步者的临床评估、治疗和转诊趋势。
IF 1.9 Q4 PEDIATRICS Pub Date : 2023-11-18 DOI: 10.3233/PRM-220082
Alexandra F DeJong Lempke, Andrea Stracciolini, Sarah B Willwerth, Kathryn E Ackerman, Pierre A d'Hemecourt, William P Meehan, Kristin E Whitney

Purpose: Over a 10-year time frame, this study aimed to evaluate diagnosis, treatment, and referral trends for adolescent runners seeking care for running-related injuries (RRIs) at a clinic that specializes in running medicine.

Methods: This study was a retrospective chart review of 392 adolescent runners (2,326 encounters) who sought care for RRIs between the years 2011 and 2021. Descriptive statistics were used to summarize clinical assessments, referrals, assistive devices, and medications prescribed or administered overall and by injury type. Chi-square analyses were used to compare proportions of services rendered across the 10-year time frame.

Results: Patients most frequently received manual evaluations or special tests during clinic visits. Most visits resulted in at least one referral (91%), primarily for physical therapy or gait-training. Assistive devices and medications/supplements were offered at only 18% of patient visits. The majority of assessments (X2 = 69.7, p = 0.002), treatments (X2: 23.6-43.8, p: <  0.001-0.003), and referrals (X2 = 132, p <  0.001) were for shin injuries. Larger proportions of nutrition assessments (X2 = 40.7, p <  0.001), interventions (X2 = 26.8, p = 0.003), and referrals (X2 = 27.5, p = 0.002) were performed in or after the year 2015.

Conclusion: Clinic visits for shin injuries required the most clinical resources per episode of care. There were observed shifts in clinical assessment and treatment approaches to include more expanded nutritional and physiologic considerations.

目的:在10年的时间框架内,本研究旨在评估青少年跑步者在一家专门从事跑步医学的诊所寻求跑步相关损伤(RRIs)护理的诊断、治疗和转诊趋势。方法:本研究是对2011年至2021年间寻求RRIs治疗的392名青少年跑步者(2326次接触)的回顾性图表回顾。描述性统计用于总结临床评估、转诊、辅助装置、处方或管理的药物总体和损伤类型。卡方分析用于比较10年时间框架内提供的服务的比例。结果:患者在门诊就诊时最常接受人工评估或特殊检查。大多数就诊至少有一次转诊(91%),主要是物理治疗或步态训练。只有18%的患者就诊时提供了辅助设备和药物/补充剂。大多数评估(X2 = 69.7, p = 0.002)、治疗(X2: 23.6-43.8, p: < 0.001-0.003)和转诊(X2 = 132, p < 0.001)以胫骨损伤为主。更大比例的营养评估(X2 = 40.7, p < 0.001)、干预(X2 = 26.8, p = 0.003)和转诊(X2 = 27.5, p = 0.002)在2015年或之后进行。结论:胫骨损伤的临床就诊需要最多的临床资源。观察到临床评估和治疗方法的转变,包括更多的营养和生理方面的考虑。
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引用次数: 0
Physical activity and functional limitations in pediatric multiple sclerosis: Are fatigue and depression confounding variables? 儿童多发性硬化症的体力活动和功能限制:疲劳和抑郁是混淆变量吗?
IF 1.9 Q4 PEDIATRICS Pub Date : 2023-09-30 DOI: 10.3233/PRM-220081
E Morghen Sikes, Marcia Finlayson, Brenda Banwell, Ruth Ann Marrie, E Ann Yeh, Rob Motl

Purpose: Pediatric-onset multiple sclerosis (MS) is associated with risk for functional limitations defined as the perceived reduction in capacity for undertaking activities of daily living. Moderate-to-vigorous physical activity (MVPA) has been associated with less frequent and less impactful functional limitations, but the symptoms of fatigue and depression have not been considered as potential confounding variables. This study examined whether fatigue and depression confound the association between MVPA and functional limitations among youth with pediatric MS.

Methods: Participant data were accumulated from three ongoing observational studies. The combined sample included 65 cases of pediatric-onset MS (24 male/41 female, 16±1.7 years of age). Data on self-report MVPA, functional limitations, depression, and fatigue were analyzed.

Results: MVPA was significantly associated with functional limitations (r = 0.45), fatigue (r = -0.28), and depression (r = -0.32). Functional limitations were associated with fatigue (r = -0.45) and depressive symptoms (r = -0.53). MVPA was significantly correlated with functional limitations (β= 0.27, p = 0.04) even after accounting for general fatigue (β= 0.08, p = 0.64) and depressive symptoms (β= -0.40, p = 0.03) among those with pediatric MS.

Conclusion: Self-reported MVPA was associated with perceived functional limitations among youth with pediatric MS independent of perceived fatigue and depressive symptoms.

目的:儿童多发性硬化症(MS)与功能限制的风险有关,功能限制定义为日常生活能力的降低。中度至剧烈的体力活动(MVPA)与频率较低、影响较小的功能限制有关,但疲劳和抑郁症状尚未被视为潜在的混杂变量。这项研究考察了疲劳和抑郁是否混淆了患有儿科MS的年轻人的MVPA和功能限制之间的联系。方法:参与者数据是从三项正在进行的观察性研究中积累的。合并样本包括65例儿科发病的MS(24男/41女,16±1.7岁)。分析了自我报告的MVPA、功能限制、抑郁和疲劳的数据。结果:MVPA与功能限制显著相关(r = 0.45),疲劳(r = -0.28)和抑郁症(r = -0.32)。功能限制与疲劳有关(r = -0.45)和抑郁症状(r = -0.53)。MVPA与功能限制显著相关(β= 0.27,p = 0.04),即使考虑到一般疲劳(β= 0.08,p = 0.64)和抑郁症状(β= -0.40,p = 0.03)。结论:在儿童多发性硬化症青年中,自我报告的MVPA与感知的功能局限性相关,与感知的疲劳和抑郁症状无关。
{"title":"Physical activity and functional limitations in pediatric multiple sclerosis: Are fatigue and depression confounding variables?","authors":"E Morghen Sikes, Marcia Finlayson, Brenda Banwell, Ruth Ann Marrie, E Ann Yeh, Rob Motl","doi":"10.3233/PRM-220081","DOIUrl":"10.3233/PRM-220081","url":null,"abstract":"<p><strong>Purpose: </strong>Pediatric-onset multiple sclerosis (MS) is associated with risk for functional limitations defined as the perceived reduction in capacity for undertaking activities of daily living. Moderate-to-vigorous physical activity (MVPA) has been associated with less frequent and less impactful functional limitations, but the symptoms of fatigue and depression have not been considered as potential confounding variables. This study examined whether fatigue and depression confound the association between MVPA and functional limitations among youth with pediatric MS.</p><p><strong>Methods: </strong>Participant data were accumulated from three ongoing observational studies. The combined sample included 65 cases of pediatric-onset MS (24 male/41 female, 16±1.7 years of age). Data on self-report MVPA, functional limitations, depression, and fatigue were analyzed.</p><p><strong>Results: </strong>MVPA was significantly associated with functional limitations (r = 0.45), fatigue (r = -0.28), and depression (r = -0.32). Functional limitations were associated with fatigue (r = -0.45) and depressive symptoms (r = -0.53). MVPA was significantly correlated with functional limitations (β= 0.27, p = 0.04) even after accounting for general fatigue (β= 0.08, p = 0.64) and depressive symptoms (β= -0.40, p = 0.03) among those with pediatric MS.</p><p><strong>Conclusion: </strong>Self-reported MVPA was associated with perceived functional limitations among youth with pediatric MS independent of perceived fatigue and depressive symptoms.</p>","PeriodicalId":16692,"journal":{"name":"Journal of pediatric rehabilitation medicine","volume":" ","pages":""},"PeriodicalIF":1.9,"publicationDate":"2023-09-30","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"41127556","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Six- and 12-month functional outcomes among patients with confirmed acute flaccid myelitis (AFM) with onset in 2018, United States. 美国2018年确诊的急性弛缓性脊髓炎(AFM)患者6个月和12个月的功能预后。
IF 1.9 Q4 PEDIATRICS Pub Date : 2023-01-01 DOI: 10.3233/PRM-220054
Adriana S Lopez, Sarah Kidd, Eileen Yee, Kathleen Dooling, Janell A Routh

Purpose: Acute flaccid myelitis (AFM), an uncommon but serious neurologic condition, primarily affects children, and can progress quickly to paralysis and respiratory failure. Data on long-term outcomes of patients with AFM are limited. This study reports on functional status through 12 months for AFM patients who became ill in 2018 in the United States.

Methods: Health departments collected information on outcomes at 6 and 12 months after onset of AFM using a standardized form that asked patients or their parents/guardians about functional status. Analyses were restricted to confirmed cases.

Results: Of the 238 confirmed AFM cases reported to CDC in 2018, 90 (38%) had assessments at 6 months, 82 (34%) at 12 months, and 49 (21%) at both 6 and 12 months. Among the 49 patients with data at both time points, the proportion of patients reporting significant or severe impairment at 6 months ranged from 2% to 59% depending on the outcome. Although proportions decreased by 12 months and ranged from 2% to 51%, most patients had some impairment at 12 months. No deaths were reported.

Conclusion: Six- and 12-month outcomes in patients with onset of AFM in 2018 span a wide range of functionality, particularly of upper and lower extremities. Importantly, improvement appears to occur over time in some patients.

目的:急性弛缓性脊髓炎(AFM)是一种不常见但严重的神经系统疾病,主要影响儿童,可迅速发展为瘫痪和呼吸衰竭。有关急性弛缓性脊髓炎患者长期疗效的数据十分有限。本研究报告了美国 2018 年发病的 AFM 患者在 12 个月内的功能状况。方法:卫生部门使用标准化表格收集 AFM 发病后 6 个月和 12 个月的预后信息,该表格询问患者或其父母/监护人有关功能状况的信息。分析仅限于确诊病例:在 2018 年向疾控中心报告的 238 例确诊肺结核病例中,90 例(38%)在 6 个月时进行了评估,82 例(34%)在 12 个月时进行了评估,49 例(21%)在 6 个月和 12 个月时都进行了评估。在两个时间点均有数据的 49 名患者中,根据结果的不同,6 个月时报告明显或严重损伤的患者比例从 2% 到 59% 不等。虽然在 12 个月时比例有所下降,从 2% 到 51% 不等,但大多数患者在 12 个月时都出现了一些功能障碍。没有死亡报告:2018年发病的AFM患者6个月和12个月的疗效涵盖了广泛的功能范围,尤其是上肢和下肢。重要的是,随着时间的推移,一些患者的病情似乎有所改善。
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引用次数: 0
Why working expectations need to change to protect doctors and the quality of patient care: A perspective from down-under. 为什么工作期望需要改变以保护医生和患者护理质量:一个自下而上的视角。
IF 1.9 Q4 PEDIATRICS Pub Date : 2023-01-01 DOI: 10.3233/PRM-230040
Kate Middleton
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引用次数: 0
期刊
Journal of pediatric rehabilitation medicine
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