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Commentary on “Causes of death among people with myelomeningocele: A multi-institutional 47-year retrospective study” by Szymanski et al. 对 Szymanski 等人撰写的 "脊髓脊膜膨出症患者的死因:一项多机构 47 年回顾性研究 "的评论。
IF 1.9 Q3 Medicine Pub Date : 2023-12-19 DOI: 10.3233/prm-230068
Michael D. Partington
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引用次数: 0
Preliminary assessment of a standardized vision screening guideline in a pediatric inpatient rehabilitation unit 儿科住院康复病房视力筛查标准化指南的初步评估
IF 1.9 Q3 Medicine Pub Date : 2023-12-16 DOI: 10.3233/prm-220137
Jordan R. Wentz, Erin E. Wentz, Samuel R Pierce
PURPOSE: This study aimed to evaluate the impact of a standardized vision screen guideline on occupational therapy vision screens in a pediatric inpatient rehabilitation unit. METHODS: Charts of patients admitted to a pediatric inpatient rehabilitation before guideline implementation (n = 47) versus charts after implementation (n = 47) were randomly, retrospectively reviewed to explore differences in visual skills screened and use of standardized assessments. RESULTS: Significant improvements (p <  = 0.05) were found in the number of visual skills screened (p = 0.034), use of standardized assessments (p = 0.005), and screening of the specific visual skills of accommodative amplitude (p = 0.05), suppression (p = 0.015), and double vision (p <  0.001). CONCLUSION: Implementation of a standardized vision screen guideline improved the frequency of vision screens during occupational therapy evaluations in a pediatric inpatient rehabilitation unit. The use of standardized assessments may also improve the quality of vision screens by encouraging staff to complete more comprehensive vision screens, including screening more visual skills, and by prompting use of standardized assessments, which can improve accuracy of screening procedures.
目的:本研究旨在评估标准化视力筛查指南对儿科住院康复病房职业治疗视力筛查的影响。方法:对儿科住院康复患者在指南实施前(n = 47)与实施后(n = 47)的病历进行随机、回顾性审查,以探索视觉技能筛查和标准化评估使用方面的差异。结果:在筛查的视觉技能数量(p = 0.034)、标准化评估的使用(p = 0.005)、特定视觉技能的筛查(p = 0.05)、抑制(p = 0.015)和复视(p < 0.001)方面均有显著改善(p < = 0.05)。结论:标准化视力筛查指南的实施提高了儿科住院康复病房职业治疗评估中视力筛查的频率。标准化评估的使用还能提高视力筛查的质量,因为它能鼓励工作人员完成更全面的视力筛查,包括筛查更多的视觉技能,还能促进标准化评估的使用,从而提高筛查程序的准确性。
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引用次数: 0
Causes of death among people with myelomeningocele: A multi-institutional 47-year retrospective study 脊髓脊膜膨出症患者的死因:47 年多机构回顾性研究
IF 1.9 Q3 Medicine Pub Date : 2023-12-07 DOI: 10.3233/prm-220086
Konrad M. Szymanski, Cyrus M. Adams, Mohammad Y. Alkawaldeh, Paul F. Austin, Robin M. Bowman, H. Castillo, Jonathan Castillo, David I. Chu, Carlos R. Estrada, Michele Fascelli, Dominic C. Frimberger, Patricio C. Gargollo, Dawud G. Hamdan, Sarah L. Hecht, Betsy Hopson, D. Husmann, Micah A. Jacobs, A. MacNeily, D. McLeod, Peter D. Metcalfe, T. Meyer, R. Misseri, Joseph O. O’Neil, A. Rensing, Jonathan C. Routh, K. Rove, K. Sawin, B. Schlomer, Isaac Shamblin, Rebecca L. Sherlock, G. Slobodov, Jennifer Stout, Stacy T. Tanaka, Dana A. Weiss, John S. Wiener, Hadley M. Wood, E. Yerkes, Jeffrey Blount
PURPOSE: This study aimed to analyze organ system-based causes and non-organ system-based mechanisms of death (COD, MOD) in people with myelomeningocele (MMC), comparing urological to other COD. METHODS: A retrospective review was performed of 16 institutions in Canada/United States of non-random convenience sample of people with MMC (born > = 1972) using non-parametric statistics. RESULTS: Of 293 deaths (89% shunted hydrocephalus), 12% occurred in infancy, 35% in childhood, and 53% in adulthood (documented COD: 74%). For 261 shunted individuals, leading COD were neurological (21%) and pulmonary (17%), and leading MOD were infections (34%, including shunt infections: 4%) and non-infectious shunt malfunctions (14%). For 32 unshunted individuals, leading COD were pulmonary (34%) and cardiovascular (13%), and leading MOD were infections (38%) and non-infectious pulmonary (16%). COD and MOD varied by shunt status and age (p < = 0.04), not ambulation or birthyear (p > = 0.16). Urology-related deaths (urosepsis, renal failure, hematuria, bladder perforation/cancer: 10%) were more likely in females (p = 0.01), independent of age, shunt, or ambulatory status (p > = 0.40). COD/MOD were independent of bladder augmentation (p= >0.11). Unexplained deaths while asleep (4%) were independent of age, shunt status, and epilepsy (p >= 0.47). CONCLUSION: COD varied by shunt status. Leading MOD were infectious. Urology-related deaths (10%) were independent of shunt status; 26% of COD were unknown. Life-long multidisciplinary care and accurate mortality documentation are needed.
目的:本研究旨在分析脊髓脊膜膨出(MMC)患者的器官系统死亡原因和非器官系统死亡机制(COD, MOD),并比较泌尿系统和其他死因。方法:采用非参数统计方法对加拿大/美国16家机构的MMC(出生> = 1972)非随机方便样本进行回顾性分析。结果:293例死亡(89%为分流性脑积水)中,12%发生在婴儿期,35%发生在儿童期,53%发生在成年期(记录的COD: 74%)。在261名分流患者中,主要的COD是神经系统(21%)和肺部(17%),主要的MOD是感染(34%,包括分流感染:4%)和非感染性分流故障(14%)。在32例未分流的患者中,COD主要为肺部(34%)和心血管(13%),MOD主要为感染(38%)和非感染性肺部(16%)。COD和MOD与分流状态和年龄有关(p < = 0.04),而与行走和出生年龄无关(p > = 0.16)。泌尿相关死亡(尿脓毒症、肾衰竭、血尿、膀胱穿孔/癌症:10%)在女性中更有可能(p = 0.01),与年龄、分流术或门诊状态无关(p > = 0.40)。COD/MOD与膀胱增强无关(p= >0.11)。原因不明的睡眠死亡(4%)与年龄、分流状态和癫痫无关(p >= 0.47)。结论:分流状态不同,COD不同。主要的MOD具有传染性。泌尿相关死亡(10%)与分流状态无关;26%的COD未知。需要终身多学科护理和准确的死亡率记录。
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引用次数: 0
Cecostomy tubes improve bowel continence for pediatric patients with spina bifida: A retrospective analysis of outcomes from a single clinic 海绵体造口管改善了脊柱裂儿科患者的肠道连续性:对一家诊所成果的回顾性分析
IF 1.9 Q3 Medicine Pub Date : 2023-12-07 DOI: 10.3233/prm-220123
Asma A. Taha, A. M. Eisen, Hana Q. Abdul Rahman, Kelsey E. Good, Kurt A. Freeman, Jennifer D. Kotzin, Margaret H. Wolf, N. Azar, Kelley R. Davis, J. C. Austin
PURPOSE: Pediatric patients with spina bifida often experience neurogenic bowel dysfunction. Although cecostomy tubes could improve bowel continence, their effectiveness is not well established in this population. The aims of this study were to better understand the effectiveness of cecostomy tubes relative to other management strategies (between-subject) and to explore their effectiveness among patients who received these placements (within-subject). METHODS: Retrospective analysis of data from pediatric patients enrolled in a national spina bifida patient registry (n = 297) at a single multidisciplinary clinic was performed, covering visits between January 2014 –December 2021. Linear and ordinal mixed effect models (fixed and random effects) tested the influence of cecostomy status (no placement vs placement) and time (visits) on bowel continence while controlling for demographic and condition-specific covariates. RESULTS: Patients with cecostomy tubes had higher bowel continence compared to patients without placements (B = 0.695, 95% CI [0.333, 1.050]; AOR = 2.043, p = .007). Patients with cecostomy tubes had higher bowel continence after their placements compared to before (B = 0.834, 95% CI [0.142, 1.540]; AOR = 3.259, p = 0.011). CONCLUSION: Results indicate cecostomy tubes are effective for improving bowel continence in this pediatric population. Future research is needed to conduct risk analyses and determine the clinical significance of these effects.
目的:小儿脊柱裂患者常经历神经源性肠功能障碍。虽然结肠造口管可以改善肠失禁,但其有效性在这一人群中尚未得到很好的证实。本研究的目的是为了更好地了解相对于其他管理策略(受试者之间)的结肠造口管的有效性,并探讨它们在接受这些放置的患者中的有效性(受试者内)。方法:回顾性分析2014年1月至2021年12月在一家多学科诊所登记的国家脊柱裂患者登记处(n = 297)的儿科患者的数据。线性和有序混合效应模型(固定效应和随机效应)在控制人口统计学和条件特异性协变量的同时,测试了结肠切除状态(无放置vs放置)和时间(就诊)对肠失禁的影响。结果:与未置入结肠造口管的患者相比,置入结肠造口管的患者肠失禁发生率更高(B = 0.695, 95% CI [0.333, 1.050];AOR = 2.043, p = .007)。置入结肠造口管后患者的肠失禁发生率高于置入前(B = 0.834, 95% CI [0.142, 1.540];AOR = 3.259, p = 0.011)。结论:结果表明,结肠造口管是改善儿童肠道失禁的有效方法。未来的研究需要进行风险分析,并确定这些影响的临床意义。
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引用次数: 0
Clinical assessment, treatment, and referral trends for adolescent runners seeking care at an injured runners' clinic. 在受伤的跑步者诊所寻求护理的青少年跑步者的临床评估、治疗和转诊趋势。
IF 1.9 Q3 Medicine Pub Date : 2023-11-18 DOI: 10.3233/PRM-220082
Alexandra F DeJong Lempke, Andrea Stracciolini, Sarah B Willwerth, Kathryn E Ackerman, Pierre A d'Hemecourt, William P Meehan, Kristin E Whitney

Purpose: Over a 10-year time frame, this study aimed to evaluate diagnosis, treatment, and referral trends for adolescent runners seeking care for running-related injuries (RRIs) at a clinic that specializes in running medicine.

Methods: This study was a retrospective chart review of 392 adolescent runners (2,326 encounters) who sought care for RRIs between the years 2011 and 2021. Descriptive statistics were used to summarize clinical assessments, referrals, assistive devices, and medications prescribed or administered overall and by injury type. Chi-square analyses were used to compare proportions of services rendered across the 10-year time frame.

Results: Patients most frequently received manual evaluations or special tests during clinic visits. Most visits resulted in at least one referral (91%), primarily for physical therapy or gait-training. Assistive devices and medications/supplements were offered at only 18% of patient visits. The majority of assessments (X2 = 69.7, p = 0.002), treatments (X2: 23.6-43.8, p: <  0.001-0.003), and referrals (X2 = 132, p <  0.001) were for shin injuries. Larger proportions of nutrition assessments (X2 = 40.7, p <  0.001), interventions (X2 = 26.8, p = 0.003), and referrals (X2 = 27.5, p = 0.002) were performed in or after the year 2015.

Conclusion: Clinic visits for shin injuries required the most clinical resources per episode of care. There were observed shifts in clinical assessment and treatment approaches to include more expanded nutritional and physiologic considerations.

目的:在10年的时间框架内,本研究旨在评估青少年跑步者在一家专门从事跑步医学的诊所寻求跑步相关损伤(RRIs)护理的诊断、治疗和转诊趋势。方法:本研究是对2011年至2021年间寻求RRIs治疗的392名青少年跑步者(2326次接触)的回顾性图表回顾。描述性统计用于总结临床评估、转诊、辅助装置、处方或管理的药物总体和损伤类型。卡方分析用于比较10年时间框架内提供的服务的比例。结果:患者在门诊就诊时最常接受人工评估或特殊检查。大多数就诊至少有一次转诊(91%),主要是物理治疗或步态训练。只有18%的患者就诊时提供了辅助设备和药物/补充剂。大多数评估(X2 = 69.7, p = 0.002)、治疗(X2: 23.6-43.8, p: < 0.001-0.003)和转诊(X2 = 132, p < 0.001)以胫骨损伤为主。更大比例的营养评估(X2 = 40.7, p < 0.001)、干预(X2 = 26.8, p = 0.003)和转诊(X2 = 27.5, p = 0.002)在2015年或之后进行。结论:胫骨损伤的临床就诊需要最多的临床资源。观察到临床评估和治疗方法的转变,包括更多的营养和生理方面的考虑。
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引用次数: 0
Physical activity and functional limitations in pediatric multiple sclerosis: Are fatigue and depression confounding variables? 儿童多发性硬化症的体力活动和功能限制:疲劳和抑郁是混淆变量吗?
IF 1.9 Q3 Medicine Pub Date : 2023-09-30 DOI: 10.3233/PRM-220081
E Morghen Sikes, Marcia Finlayson, Brenda Banwell, Ruth Ann Marrie, E Ann Yeh, Rob Motl

Purpose: Pediatric-onset multiple sclerosis (MS) is associated with risk for functional limitations defined as the perceived reduction in capacity for undertaking activities of daily living. Moderate-to-vigorous physical activity (MVPA) has been associated with less frequent and less impactful functional limitations, but the symptoms of fatigue and depression have not been considered as potential confounding variables. This study examined whether fatigue and depression confound the association between MVPA and functional limitations among youth with pediatric MS.

Methods: Participant data were accumulated from three ongoing observational studies. The combined sample included 65 cases of pediatric-onset MS (24 male/41 female, 16±1.7 years of age). Data on self-report MVPA, functional limitations, depression, and fatigue were analyzed.

Results: MVPA was significantly associated with functional limitations (r = 0.45), fatigue (r = -0.28), and depression (r = -0.32). Functional limitations were associated with fatigue (r = -0.45) and depressive symptoms (r = -0.53). MVPA was significantly correlated with functional limitations (β= 0.27, p = 0.04) even after accounting for general fatigue (β= 0.08, p = 0.64) and depressive symptoms (β= -0.40, p = 0.03) among those with pediatric MS.

Conclusion: Self-reported MVPA was associated with perceived functional limitations among youth with pediatric MS independent of perceived fatigue and depressive symptoms.

目的:儿童多发性硬化症(MS)与功能限制的风险有关,功能限制定义为日常生活能力的降低。中度至剧烈的体力活动(MVPA)与频率较低、影响较小的功能限制有关,但疲劳和抑郁症状尚未被视为潜在的混杂变量。这项研究考察了疲劳和抑郁是否混淆了患有儿科MS的年轻人的MVPA和功能限制之间的联系。方法:参与者数据是从三项正在进行的观察性研究中积累的。合并样本包括65例儿科发病的MS(24男/41女,16±1.7岁)。分析了自我报告的MVPA、功能限制、抑郁和疲劳的数据。结果:MVPA与功能限制显著相关(r = 0.45),疲劳(r = -0.28)和抑郁症(r = -0.32)。功能限制与疲劳有关(r = -0.45)和抑郁症状(r = -0.53)。MVPA与功能限制显著相关(β= 0.27,p = 0.04),即使考虑到一般疲劳(β= 0.08,p = 0.64)和抑郁症状(β= -0.40,p = 0.03)。结论:在儿童多发性硬化症青年中,自我报告的MVPA与感知的功能局限性相关,与感知的疲劳和抑郁症状无关。
{"title":"Physical activity and functional limitations in pediatric multiple sclerosis: Are fatigue and depression confounding variables?","authors":"E Morghen Sikes, Marcia Finlayson, Brenda Banwell, Ruth Ann Marrie, E Ann Yeh, Rob Motl","doi":"10.3233/PRM-220081","DOIUrl":"10.3233/PRM-220081","url":null,"abstract":"<p><strong>Purpose: </strong>Pediatric-onset multiple sclerosis (MS) is associated with risk for functional limitations defined as the perceived reduction in capacity for undertaking activities of daily living. Moderate-to-vigorous physical activity (MVPA) has been associated with less frequent and less impactful functional limitations, but the symptoms of fatigue and depression have not been considered as potential confounding variables. This study examined whether fatigue and depression confound the association between MVPA and functional limitations among youth with pediatric MS.</p><p><strong>Methods: </strong>Participant data were accumulated from three ongoing observational studies. The combined sample included 65 cases of pediatric-onset MS (24 male/41 female, 16±1.7 years of age). Data on self-report MVPA, functional limitations, depression, and fatigue were analyzed.</p><p><strong>Results: </strong>MVPA was significantly associated with functional limitations (r = 0.45), fatigue (r = -0.28), and depression (r = -0.32). Functional limitations were associated with fatigue (r = -0.45) and depressive symptoms (r = -0.53). MVPA was significantly correlated with functional limitations (β= 0.27, p = 0.04) even after accounting for general fatigue (β= 0.08, p = 0.64) and depressive symptoms (β= -0.40, p = 0.03) among those with pediatric MS.</p><p><strong>Conclusion: </strong>Self-reported MVPA was associated with perceived functional limitations among youth with pediatric MS independent of perceived fatigue and depressive symptoms.</p>","PeriodicalId":16692,"journal":{"name":"Journal of pediatric rehabilitation medicine","volume":null,"pages":null},"PeriodicalIF":1.9,"publicationDate":"2023-09-30","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"41127556","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Hematological and biochemical profiles in children with cerebral palsy: A cross-sectional study. 脑瘫儿童血液学和生化特征:一项横断面研究。
IF 1.9 Q3 Medicine Pub Date : 2023-01-01 DOI: 10.3233/PRM-201514
Rohit Khandelwal, Vivek Vankalapati Manjunath, Leeni Mehta, Shivalingappa Bussenahalli Mangajjera

Purpose: Cerebral palsy is a common pediatric neurological problem that has multiple comorbidities, including nutritional issues. Hematological and biochemical parameters significantly affect the health status of patients with cerebral palsy, and till now very few studies have analyzed these parameters. This study aimed to describe the hematological and biochemical parameters of children diagnosed with cerebral palsy.

Methods: This four-year observational study included children with cerebral palsy who were admitted to the Department of Pediatrics of a medical college teaching hospital.Hemoglobin, platelet count, white blood count (WBC), red blood cells (RBCs), packed cell volume, RBC indices, and biochemical parameters (urea, creatinine, total bilirubin, total protein, albumin, globulin, aspartate transaminase, alanine transaminase, electrolytes, calcium and alkaline phosphatase) were noted and values (mean, standard deviation, and interquartile range) presented. Age and gender-based analyses were performed.

Results: The average hemoglobin level was 11.48 mg/dl, platelet count was 301.24×109/L, and WBC count was 11.13 109/L. Anemia was observed more commonly in males younger than nine years of age. Of 282 patients, 14 (4.96%) had a platelet count of less than 150×109/L. Abnormal alkaline phosphatase levels were observed more commonly in patients who were younger than nine years of age and in females more than males, and the difference was statistically significant. Protein levels and calcium levels were similar between both age groups.

Conclusion: Anemia was more common in younger patients and males with cerebral palsy. Abnormal bone turnover markers (alkaline phosphatase) were more common in young patients and females with cerebral palsy. Understanding the differential effect of age and gender on various investigational parameters will help improve care of children with cerebral palsy by initiating appropriate and timely clinical interventions, thereby providing a better quality of life.

目的:脑瘫是一种常见的小儿神经系统疾病,有多种合并症,包括营养问题。血液学和生化指标对脑瘫患者的健康状况有显著影响,迄今为止对这些指标进行分析的研究很少。本研究旨在描述诊断为脑瘫儿童的血液学和生化参数。方法:对某医学院附属医院儿科收治的脑瘫患儿进行为期四年的观察性研究。记录血红蛋白、血小板计数、白细胞计数(WBC)、红细胞(RBC)、堆积细胞体积、红细胞指数、生化参数(尿素、肌酐、总胆红素、总蛋白、白蛋白、球蛋白、天冬氨酸转氨酶、丙氨酸转氨酶、电解质、钙和碱性磷酸酶)并给出数值(平均值、标准差和四分位数范围)。进行了年龄和性别分析。结果:平均血红蛋白水平11.48 mg/dl,血小板计数301.24×109/L,白细胞计数11.13 109/L。贫血在9岁以下的男性中更为常见。282例患者中,14例(4.96%)血小板计数低于150×109/L。碱性磷酸酶异常多见于9岁以下患者,且女性多于男性,差异有统计学意义。两个年龄组的蛋白质水平和钙水平相似。结论:贫血多见于年轻患者和男性脑瘫患者。骨转换标志物(碱性磷酸酶)异常在年轻患者和女性脑瘫患者中更为常见。了解年龄和性别对各种研究参数的差异影响将有助于通过启动适当和及时的临床干预来改善脑瘫儿童的护理,从而提供更好的生活质量。
{"title":"Hematological and biochemical profiles in children with cerebral palsy: A cross-sectional study.","authors":"Rohit Khandelwal,&nbsp;Vivek Vankalapati Manjunath,&nbsp;Leeni Mehta,&nbsp;Shivalingappa Bussenahalli Mangajjera","doi":"10.3233/PRM-201514","DOIUrl":"https://doi.org/10.3233/PRM-201514","url":null,"abstract":"<p><strong>Purpose: </strong>Cerebral palsy is a common pediatric neurological problem that has multiple comorbidities, including nutritional issues. Hematological and biochemical parameters significantly affect the health status of patients with cerebral palsy, and till now very few studies have analyzed these parameters. This study aimed to describe the hematological and biochemical parameters of children diagnosed with cerebral palsy.</p><p><strong>Methods: </strong>This four-year observational study included children with cerebral palsy who were admitted to the Department of Pediatrics of a medical college teaching hospital.Hemoglobin, platelet count, white blood count (WBC), red blood cells (RBCs), packed cell volume, RBC indices, and biochemical parameters (urea, creatinine, total bilirubin, total protein, albumin, globulin, aspartate transaminase, alanine transaminase, electrolytes, calcium and alkaline phosphatase) were noted and values (mean, standard deviation, and interquartile range) presented. Age and gender-based analyses were performed.</p><p><strong>Results: </strong>The average hemoglobin level was 11.48 mg/dl, platelet count was 301.24×109/L, and WBC count was 11.13 109/L. Anemia was observed more commonly in males younger than nine years of age. Of 282 patients, 14 (4.96%) had a platelet count of less than 150×109/L. Abnormal alkaline phosphatase levels were observed more commonly in patients who were younger than nine years of age and in females more than males, and the difference was statistically significant. Protein levels and calcium levels were similar between both age groups.</p><p><strong>Conclusion: </strong>Anemia was more common in younger patients and males with cerebral palsy. Abnormal bone turnover markers (alkaline phosphatase) were more common in young patients and females with cerebral palsy. Understanding the differential effect of age and gender on various investigational parameters will help improve care of children with cerebral palsy by initiating appropriate and timely clinical interventions, thereby providing a better quality of life.</p>","PeriodicalId":16692,"journal":{"name":"Journal of pediatric rehabilitation medicine","volume":null,"pages":null},"PeriodicalIF":1.9,"publicationDate":"2023-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9680297","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Why working expectations need to change to protect doctors and the quality of patient care: A perspective from down-under. 为什么工作期望需要改变以保护医生和患者护理质量:一个自下而上的视角。
IF 1.9 Q3 Medicine Pub Date : 2023-01-01 DOI: 10.3233/PRM-230040
Kate Middleton
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引用次数: 0
Use of virtual reality for targeted physical rehabilitation: Case report on managing functional motor disorder. 利用虚拟现实技术进行有针对性的物理康复:管理功能性运动障碍的案例报告。
IF 1.9 Q3 Medicine Pub Date : 2023-01-01 DOI: 10.3233/PRM-210009
Alan T Nguyen, Sydney Hemphill, Bridgette Donahue, Maria Menendez, Samuel Rodriguez, Thomas J Caruso

Virtual reality (VR) technology has seen increasing use in physical rehabilitation and in the management of acute and chronic pain. Functional movement disorders (FMDs) are a source of disability with no known association to neurologic pathology, and patients are generally offered multidisciplinary treatment approaches to improve functional movement. However, patients who are not compliant with rehabilitation may have persistent FMD and long-term disability. Given VR's use in physical rehabilitation, it may serve as a useful adjunct for the management of FMD. Utilizing an application called MovementTM to create a playlist of targeted applications for the restoration of motor function and balance, this case study presents the application of VR as a tool to engage patients in physical therapy for the management of FMD. The VR games were selected to encourage movement while customization of levels within the games facilitated achievement of physical therapy goals. Physical rehabilitation aided by VR, when used in collaboration with a multidisciplinary care team, may be used to facilitate recovery from FMD.

虚拟现实(VR)技术在物理康复和急慢性疼痛治疗中的应用越来越广泛。功能性运动障碍(FMD)是造成残疾的原因之一,与神经系统病理学并无关联,患者通常会接受多学科治疗,以改善功能性运动。然而,不服从康复治疗的患者可能会出现持续的 FMD 和长期残疾。鉴于 VR 在物理康复中的应用,它可以作为治疗 FMD 的有效辅助手段。本案例研究利用一款名为 MovementTM 的应用程序创建了一个有针对性的应用程序播放列表,以恢复运动功能和平衡能力。选择 VR 游戏的目的是鼓励运动,而游戏中的自定义级别则有助于实现物理治疗目标。与多学科护理团队合作使用 VR 辅助物理康复治疗,可用于促进 FMD 的康复。
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引用次数: 0
International collaborations on advocacy, education, and research: Broad-spectrum thematic diversity catalyzes multidisciplinary spina bifida care. 倡导、教育和研究方面的国际合作:广谱主题多样性促进多学科脊柱裂护理。
IF 1.9 Q3 Medicine Pub Date : 2023-01-01 DOI: 10.3233/PRM-239016
Jonathan Castillo, Judy K Thibadeau, Tim Brei, Heidi Castillo

As with the wide range in spina bifida (SB) incidence rates across nations, there is also wide variance in topics encountered by clinicians today. Both the wide variance in SB incidence rates and the wide diversity of topics to be addressed provide the backdrop for any dialogue among professionals serving this population. On the international stage, the World Congress on Spina Bifida Research and Care has been the only conference dedicated solely to research, practical challenges, and real-life solutions for those living with SB, their families, and caregivers. As a conference with a clear sense of the growing global village, the 2023 congress showcased innovative research from junior to preeminent investigators. Topical areas included urology, neurosurgery, global health, prenatal surgery, and transition to adult care amid others. Ultimately, through the dissemination of a compendium of conference abstracts, we hope that professionals will be aided and inspired to continue to improve the education, advocacy, and care among the many communities of individuals affected by SB globally.

随着各国脊柱裂(SB)发病率的广泛差异,今天临床医生遇到的话题也有很大的差异。SB发病率的巨大差异和要解决的主题的广泛多样性为服务于这一人群的专业人员之间的任何对话提供了背景。在国际舞台上,世界脊柱裂研究与护理大会是唯一一个专门针对脊柱裂患者、他们的家人和照顾者的研究、实际挑战和现实解决方案的会议。2023年大会是体现地球村意识的会议,展示了从初级研究者到杰出研究者的创新研究。主题领域包括泌尿外科、神经外科、全球健康、产前手术和向成人护理的过渡等。最终,我们希望通过传播会议摘要汇编,帮助和激励专业人士继续改善全球受SB影响的个人社区的教育,宣传和护理。
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引用次数: 0
期刊
Journal of pediatric rehabilitation medicine
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