Pub Date : 2026-02-09DOI: 10.1177/18758894261419624
Berna Karamancıoğlu, Özge Keniş Coşkun, Ela Erdem-Eralp, Yasemin Gökdemir, Evrim Karadag-Saygı
Objective: The aim of this study was to investigate the effects of manual diaphragmatic relaxation combined with diaphragmatic breathing on respiratory muscle strength, pulmonary function, chest expansion, and sitting ability in children with diplegic cerebral palsy (CP).
Materials and methods: This randomized controlled study was conducted with 15 children with diplegic CP aged 5-15 years. Participants were randomly divided into two groups (control and intervention); both groups received conventional physiotherapy two days a week (45 minutes) for eight weeks. The intervention group additionally received manual diaphragm relaxation and diaphragmatic breathing exercises. The primary outcome was respiratory muscle strength (maximum inspiratory pressure and maximum respiratory pressure. Secondary outcomes were pulmonary function test (PFT), chest expansion and sitting dimension of the Gross Motor Functional Measurement (GMFM-B). (NCT05559346)Results:After eight weeks of intervention, the intervention group showed improvement in respiratory muscle strength, chest mobility, and GMFM-B score (p < 0.05). Respiratory muscle strength was significantly higher in the intervention group than in the control group (p < 0.05), but PFT parameters and GMFM-B scores were not significantly different between the two groups (p > 0.05)Conclusion:Adding manual diaphragmatic relaxation and diaphragmatic breathing exercises to the physiotherapy program in children with CP may contribute to the rehabilitation program.
{"title":"Effects of diaphragmatic breathing and manual diaphragm relaxation on respiratory muscle strength, chest expansion, pulmonary function, and sitting ability in children with diplegic cerebral palsy: A randomized controlled trial.","authors":"Berna Karamancıoğlu, Özge Keniş Coşkun, Ela Erdem-Eralp, Yasemin Gökdemir, Evrim Karadag-Saygı","doi":"10.1177/18758894261419624","DOIUrl":"https://doi.org/10.1177/18758894261419624","url":null,"abstract":"<p><strong>Objective: </strong>The aim of this study was to investigate the effects of manual diaphragmatic relaxation combined with diaphragmatic breathing on respiratory muscle strength, pulmonary function, chest expansion, and sitting ability in children with diplegic cerebral palsy (CP).</p><p><strong>Materials and methods: </strong>This randomized controlled study was conducted with 15 children with diplegic CP aged 5-15 years. Participants were randomly divided into two groups (control and intervention); both groups received conventional physiotherapy two days a week (45 minutes) for eight weeks. The intervention group additionally received manual diaphragm relaxation and diaphragmatic breathing exercises. The primary outcome was respiratory muscle strength (maximum inspiratory pressure and maximum respiratory pressure. Secondary outcomes were pulmonary function test (PFT), chest expansion and sitting dimension of the Gross Motor Functional Measurement (GMFM-B). (NCT05559346)Results:After eight weeks of intervention, the intervention group showed improvement in respiratory muscle strength, chest mobility, and GMFM-B score (p < 0.05). Respiratory muscle strength was significantly higher in the intervention group than in the control group (p < 0.05), but PFT parameters and GMFM-B scores were not significantly different between the two groups (p > 0.05)Conclusion:Adding manual diaphragmatic relaxation and diaphragmatic breathing exercises to the physiotherapy program in children with CP may contribute to the rehabilitation program.</p>","PeriodicalId":16692,"journal":{"name":"Journal of pediatric rehabilitation medicine","volume":" ","pages":"18758894261419624"},"PeriodicalIF":1.0,"publicationDate":"2026-02-09","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"146150210","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2026-02-04DOI: 10.1177/18758894251412949
Elaine L Pico
{"title":"2025 Award Announcements.","authors":"Elaine L Pico","doi":"10.1177/18758894251412949","DOIUrl":"https://doi.org/10.1177/18758894251412949","url":null,"abstract":"","PeriodicalId":16692,"journal":{"name":"Journal of pediatric rehabilitation medicine","volume":" ","pages":"18758894251412949"},"PeriodicalIF":1.0,"publicationDate":"2026-02-04","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"146119288","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2026-01-23DOI: 10.1177/18758894251413863
Laura E Black, Nancy Yeh, Emily Hillaker, Kavita Nadendla, Melissa Trovato
Children with severe traumatic brain injury (TBI) experience medical complications including paroxysmal sympathetic hyperactivity, disorders of consciousness, mood disruption, agitation, and upper motor neuron syndrome. This review article examines the pharmacologic agents used in management of complications of pediatric TBI and the evidence supporting the use of these medications. Much of the literature to support medications used in pediatric TBI comes from adult literature; therefore, more research is needed to examine the impact of these agents in pediatric patients.
{"title":"Neuropharmacology in pediatric traumatic brain injury.","authors":"Laura E Black, Nancy Yeh, Emily Hillaker, Kavita Nadendla, Melissa Trovato","doi":"10.1177/18758894251413863","DOIUrl":"https://doi.org/10.1177/18758894251413863","url":null,"abstract":"<p><p>Children with severe traumatic brain injury (TBI) experience medical complications including paroxysmal sympathetic hyperactivity, disorders of consciousness, mood disruption, agitation, and upper motor neuron syndrome. This review article examines the pharmacologic agents used in management of complications of pediatric TBI and the evidence supporting the use of these medications. Much of the literature to support medications used in pediatric TBI comes from adult literature; therefore, more research is needed to examine the impact of these agents in pediatric patients.</p>","PeriodicalId":16692,"journal":{"name":"Journal of pediatric rehabilitation medicine","volume":" ","pages":"18758894251413863"},"PeriodicalIF":1.0,"publicationDate":"2026-01-23","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"146030152","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2025-12-23DOI: 10.1177/18758894251406431
Nelleke Gertrude Langerak, Roshaan Salie, Kirsten Ann Donald, Anthony Graham Fieggen, Maaike Maria Eken
PurposeUnderstanding the level of fatigue experienced by adolescents and adults with cerebral palsy (CP) in low- and middle-income countries is crucial, as it can inform healthcare workers in the assessment, prevention, and management of fatigue for these individuals, similar to the approach taken in high-income countries. This study aimed to determine self-perceived fatigue and the level of accomplishments and satisfaction of activities and participation in daily life in adolescents and adults with CP compared with typically developing (TD) peers living in urban South Africa. The study also examined whether the outcome measures were associated within the CP cohort.MethodsThis case-control study included 31 adolescents and 30 adults with CP and TD peers matched for age, sex, and socio-economic status. Participants completed the Fatigue Severity Scale and Life-Habits Questionnaire.ResultsSelf-perceived fatigue was reported in 14/31 adolescents with CP, 6/31 TD adolescents, 9/30 adults with CP, and 8/30 TD peers. No differences in fatigue were observed between adults or adolescents with CP and TD peers. However, accomplishment and satisfaction scores were lower for adolescents (p < 0.001 and p = 0.016, respectively) and adults with CP (both p < 0.001) compared to TD peers.ConclusionsIndividuals with CP living in urban South Africa reported similar levels of fatigue as TD peers. Despite limitations in accomplishing life habits, adolescents and adults with CP reported to be independent in their daily activities and satisfied with their community participation, which was unrelated to fatigue.
{"title":"Self-perceived fatigue in relation to activity and participation in adolescents and adults with cerebral palsy living in urban South Africa.","authors":"Nelleke Gertrude Langerak, Roshaan Salie, Kirsten Ann Donald, Anthony Graham Fieggen, Maaike Maria Eken","doi":"10.1177/18758894251406431","DOIUrl":"https://doi.org/10.1177/18758894251406431","url":null,"abstract":"<p><p>PurposeUnderstanding the level of fatigue experienced by adolescents and adults with cerebral palsy (CP) in low- and middle-income countries is crucial, as it can inform healthcare workers in the assessment, prevention, and management of fatigue for these individuals, similar to the approach taken in high-income countries. This study aimed to determine self-perceived fatigue and the level of accomplishments and satisfaction of activities and participation in daily life in adolescents and adults with CP compared with typically developing (TD) peers living in urban South Africa. The study also examined whether the outcome measures were associated within the CP cohort.MethodsThis case-control study included 31 adolescents and 30 adults with CP and TD peers matched for age, sex, and socio-economic status. Participants completed the Fatigue Severity Scale and Life-Habits Questionnaire.ResultsSelf-perceived fatigue was reported in 14/31 adolescents with CP, 6/31 TD adolescents, 9/30 adults with CP, and 8/30 TD peers. No differences in fatigue were observed between adults or adolescents with CP and TD peers. However, accomplishment and satisfaction scores were lower for adolescents (p < 0.001 and p = 0.016, respectively) and adults with CP (both p < 0.001) compared to TD peers.ConclusionsIndividuals with CP living in urban South Africa reported similar levels of fatigue as TD peers. Despite limitations in accomplishing life habits, adolescents and adults with CP reported to be independent in their daily activities and satisfied with their community participation, which was unrelated to fatigue.</p>","PeriodicalId":16692,"journal":{"name":"Journal of pediatric rehabilitation medicine","volume":" ","pages":"18758894251406431"},"PeriodicalIF":1.0,"publicationDate":"2025-12-23","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145810632","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2025-12-23DOI: 10.1177/18758894251404151
Sopatip Rerkmoung, Tyler Busch, Adrian M Svingos, Beth S Slomine, Stacy J Suskauer
PurposeTo explore convergent validity of the Physical and Neurological Examination of Subtle Signs Gaits and Stations completion scores (PANESS G/S) with Bruininks-Oseretsky Test of Motor Proficiency, Second Edition balance score - (BOT-2) and Activities-specific Balance Confidence Scale - (ABC) in typically developing youth with and without a history of concussion.MethodCross-sectional data obtained from 79 youth (32 with history of concussion) aged 10-17 years. First, between-group differences in balance measures were explored. Then, correlations were explored between demographic variables and balance measures to identify control variables for subsequent correlations between balance measures.ResultsGiven no between-group differences on PANESS G/S, BOT-2, or ABC, correlations were examined across all participants. PANESS G/S was correlated with age. BOT-2 balance score was correlated with Full Scale Intelligence Quotient (FSIQ). Controlling for age and FSIQ, PANESS G/S was associated with better BOT-2 performance. PANESS G/S and ABC were not correlated.ConclusionThis work adds to the literature characterizing the use of PANESS in adolescents, including those post-mTBI. Correlation between PANESS G/S and BOT-2 balance supports overlapping constructs. Lack of PANESS G/S correlation with ABC may reflect the lack of balance concerns in generally healthy youth and known discordance between performance and self-report measures.
{"title":"Convergent validity of physical and neurological examination of subtle signs (PANESS) gaits and stations with performance-based and self-reported balance measures.","authors":"Sopatip Rerkmoung, Tyler Busch, Adrian M Svingos, Beth S Slomine, Stacy J Suskauer","doi":"10.1177/18758894251404151","DOIUrl":"https://doi.org/10.1177/18758894251404151","url":null,"abstract":"<p><p>PurposeTo explore convergent validity of the Physical and Neurological Examination of Subtle Signs Gaits and Stations completion scores (PANESS G/S) with Bruininks-Oseretsky Test of Motor Proficiency, Second Edition balance score - (BOT-2) and Activities-specific Balance Confidence Scale - (ABC) in typically developing youth with and without a history of concussion.MethodCross-sectional data obtained from 79 youth (32 with history of concussion) aged 10-17 years. First, between-group differences in balance measures were explored. Then, correlations were explored between demographic variables and balance measures to identify control variables for subsequent correlations between balance measures.ResultsGiven no between-group differences on PANESS G/S, BOT-2, or ABC, correlations were examined across all participants. PANESS G/S was correlated with age. BOT-2 balance score was correlated with Full Scale Intelligence Quotient (FSIQ). Controlling for age and FSIQ, PANESS G/S was associated with better BOT-2 performance. PANESS G/S and ABC were not correlated.ConclusionThis work adds to the literature characterizing the use of PANESS in adolescents, including those post-mTBI. Correlation between PANESS G/S and BOT-2 balance supports overlapping constructs. Lack of PANESS G/S correlation with ABC may reflect the lack of balance concerns in generally healthy youth and known discordance between performance and self-report measures.</p>","PeriodicalId":16692,"journal":{"name":"Journal of pediatric rehabilitation medicine","volume":" ","pages":"18758894251404151"},"PeriodicalIF":1.0,"publicationDate":"2025-12-23","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145810656","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2025-11-25DOI: 10.1177/18758894251400511
Susan Biffl
{"title":"Commentary on \"Digital play and rehabilitation for children and adolescents in hospitals, outpatient departments and rehabilitation centres: A scoping review\".","authors":"Susan Biffl","doi":"10.1177/18758894251400511","DOIUrl":"https://doi.org/10.1177/18758894251400511","url":null,"abstract":"","PeriodicalId":16692,"journal":{"name":"Journal of pediatric rehabilitation medicine","volume":" ","pages":"18758894251400511"},"PeriodicalIF":1.0,"publicationDate":"2025-11-25","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145604706","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2025-11-01Epub Date: 2025-10-16DOI: 10.1177/18758894251385635
Lainey G Bukowiec, Kitty Y Wu, Joline E Brandenburg, Peter C Rhee
PurposeLower extremity spasticity can cause pain and limit function. This study examined the safety and efficacy of hyperselective neurectomy (HSN) of the gastrocnemius-soleus complex (GSC) in addressing spastic equinus deformities in pediatric patients.MethodsPediatric patients that underwent HSN of the GSC by a single surgeon were retrospectively reviewed. Preoperative and postoperative Modified Ashworth Score and passive ankle dorsiflexion (°) were compared using Wilcoxon signed-rank test and Student's paired two-tailed t-test, respectively.ResultsTen lower extremities in seven patients with a mean age of 10 years were reviewed. Mean follow-up was 15 months. All extremities demonstrated improvement in spasticity. All exhibited improved passive ankle dorsiflexion range of motion with the knee in extension (mean change +17°, SD = 8°, p = 0.000). Five patients demonstrated improved passive dorsiflexion with the knee in flexion while two remained unchanged from preoperative assessment (mean change +13°, SD = 9°, p = 0.002). One complication, wound dehiscence, was noted and managed conservatively. No patients reported loss of strength or sensation. Four patients underwent subsequent staged surgery on the ipsilateral extremity for concomitant contractures.ConclusionHSN of the GSC is safe in pediatric patients and effectively reduces spastic equinus deformity and improves ankle passive dorsiflexion in short-term follow-up.
{"title":"Hyperselective neurectomy for spastic equinovarus in pediatric patients with hypertonia.","authors":"Lainey G Bukowiec, Kitty Y Wu, Joline E Brandenburg, Peter C Rhee","doi":"10.1177/18758894251385635","DOIUrl":"10.1177/18758894251385635","url":null,"abstract":"<p><p>PurposeLower extremity spasticity can cause pain and limit function. This study examined the safety and efficacy of hyperselective neurectomy (HSN) of the gastrocnemius-soleus complex (GSC) in addressing spastic equinus deformities in pediatric patients.MethodsPediatric patients that underwent HSN of the GSC by a single surgeon were retrospectively reviewed. Preoperative and postoperative Modified Ashworth Score and passive ankle dorsiflexion (°) were compared using Wilcoxon signed-rank test and Student's paired two-tailed t-test, respectively.ResultsTen lower extremities in seven patients with a mean age of 10 years were reviewed. Mean follow-up was 15 months. All extremities demonstrated improvement in spasticity. All exhibited improved passive ankle dorsiflexion range of motion with the knee in extension (mean change +17°, SD = 8°, <i>p</i> = 0.000). Five patients demonstrated improved passive dorsiflexion with the knee in flexion while two remained unchanged from preoperative assessment (mean change +13°, SD = 9°, <i>p</i> = 0.002). One complication, wound dehiscence, was noted and managed conservatively. No patients reported loss of strength or sensation. Four patients underwent subsequent staged surgery on the ipsilateral extremity for concomitant contractures.ConclusionHSN of the GSC is safe in pediatric patients and effectively reduces spastic equinus deformity and improves ankle passive dorsiflexion in short-term follow-up.</p>","PeriodicalId":16692,"journal":{"name":"Journal of pediatric rehabilitation medicine","volume":" ","pages":"295-303"},"PeriodicalIF":1.0,"publicationDate":"2025-11-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145308286","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2025-11-01Epub Date: 2025-11-05DOI: 10.1177/18758894251391909
Leidy Johana Escobar Zuluaga, María de Las Mercedes Ruiz Brunner, Eduardo Cuestas, Elisabeth Cieri, Ana Laura Condinanzi, Carolina Ayllon, Verónica Schiariti
Purpose: In Argentina, there is no consensus on the functional assessment of children with cerebral palsy (CP). The International Classification of Functioning, Disability and Health (ICF) Core Sets for children with CP are tools that standardize clinical functional assessments. The aim was to build functioning profiles of children with CP aged 2 to 18 years in eight Argentine cities, to identify their functional needs and contribute to improving assessment processes.
Methods: Cross-sectional study, developed in stages. This article describes the last stage, the creation of the functional profile of a sample surveyed in eight cities. Twenty-five categories established in the common abbreviated core set of CP were evaluated through the application of a protocol called PC-CIFuncional (previously created). This protocol consists of scales or culturally sensitive instruments, assessed through clinical evaluations and questionnaires for children and families.
Results: One hundred thirty-three functioning profiles were built using the previously developed PC-CIFuncional protocol. Of the participants, 52.7% had severe motor compromise with Gross Motor Function Classification System (GMFCS) levels IV and V. In children at GMFCS level IV-V, most categories in activities and participation-including recreation, communication and physical activity-showed severe limitations and restrictions, compared with their peers. The use of technology for daily living and mobility in children with less motor compromise (GMFCS level I-III) was neither a facilitator nor a barrier, but in children with greater compromise it was a complete facilitator.
Conclusions: Differences in functional needs were identified in children with CP according to motor involvement. This project standardizes the identification of functional needs and therapeutic goals based on ICF language, creating novel functioning profiles in Argentina.
{"title":"ICF-based functioning profiles in children and adolescents with cerebral palsy: Evidence from a population-based study in Argentina.","authors":"Leidy Johana Escobar Zuluaga, María de Las Mercedes Ruiz Brunner, Eduardo Cuestas, Elisabeth Cieri, Ana Laura Condinanzi, Carolina Ayllon, Verónica Schiariti","doi":"10.1177/18758894251391909","DOIUrl":"10.1177/18758894251391909","url":null,"abstract":"<p><strong>Purpose: </strong>In Argentina, there is no consensus on the functional assessment of children with cerebral palsy (CP). The International Classification of Functioning, Disability and Health (ICF) Core Sets for children with CP are tools that standardize clinical functional assessments. The aim was to build functioning profiles of children with CP aged 2 to 18 years in eight Argentine cities, to identify their functional needs and contribute to improving assessment processes.</p><p><strong>Methods: </strong>Cross-sectional study, developed in stages. This article describes the last stage, the creation of the functional profile of a sample surveyed in eight cities. Twenty-five categories established in the common abbreviated core set of CP were evaluated through the application of a protocol called PC-CIFuncional (previously created). This protocol consists of scales or culturally sensitive instruments, assessed through clinical evaluations and questionnaires for children and families.</p><p><strong>Results: </strong>One hundred thirty-three functioning profiles were built using the previously developed PC-CIFuncional protocol. Of the participants, 52.7% had severe motor compromise with Gross Motor Function Classification System (GMFCS) levels IV and V. In children at GMFCS level IV-V, most categories in activities and participation-including recreation, communication and physical activity-showed severe limitations and restrictions, compared with their peers. The use of technology for daily living and mobility in children with less motor compromise (GMFCS level I-III) was neither a facilitator nor a barrier, but in children with greater compromise it was a complete facilitator.</p><p><strong>Conclusions: </strong>Differences in functional needs were identified in children with CP according to motor involvement. This project standardizes the identification of functional needs and therapeutic goals based on ICF language, creating novel functioning profiles in Argentina.</p>","PeriodicalId":16692,"journal":{"name":"Journal of pediatric rehabilitation medicine","volume":" ","pages":"282-294"},"PeriodicalIF":1.0,"publicationDate":"2025-11-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145445266","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2025-11-01Epub Date: 2025-10-31DOI: 10.1177/18758894251385505
Helle Sneftrup Poulsen, Alice Ørts Hansen, Lone Walentin Laulund, Charlotte Ytterberg, Lisbeth Rosenbek Minet
PurposeThis study aimed to explore therapists' experiences of providing early intervention therapy services for infants with or at risk of cerebral palsy (CP), and, in particular, therapy services that promote infants' hand function.MethodsEleven semi-structured small group interviews and one individual interview were conducted with 26 therapists working with infants, either in hospital or in the municipality. Interview transcripts were analyzed using qualitative content analysis.ResultsProviding early intervention therapy services for infants with or at risk of CP was influenced by factors such as inadequate coordination and communication between hospital and municipalities, varying use of motor assessment tools to detect risk of CP, more focus on gross motor function than hand function in early age, impact of usual clinical practice, requirements for acting in a variable therapeutic role when providing guidance for parents, and challenges obtaining therapeutic training and specialization in a decentralized organization.ConclusionChallenges caused by a complex practice and a high level of requirement for therapeutic skill may have an impact on evidence-based practice and need to be addressed when incorporating new research knowledge about early CP-specific interventions into a family-centered clinical practice.
{"title":"Perceptions of occupational therapists and physiotherapists of early intervention therapy services for infants with or at risk of cerebral palsy: A qualitative interview study.","authors":"Helle Sneftrup Poulsen, Alice Ørts Hansen, Lone Walentin Laulund, Charlotte Ytterberg, Lisbeth Rosenbek Minet","doi":"10.1177/18758894251385505","DOIUrl":"10.1177/18758894251385505","url":null,"abstract":"<p><p>PurposeThis study aimed to explore therapists' experiences of providing early intervention therapy services for infants with or at risk of cerebral palsy (CP), and, in particular, therapy services that promote infants' hand function.MethodsEleven semi-structured small group interviews and one individual interview were conducted with 26 therapists working with infants, either in hospital or in the municipality. Interview transcripts were analyzed using qualitative content analysis.ResultsProviding early intervention therapy services for infants with or at risk of CP was influenced by factors such as inadequate coordination and communication between hospital and municipalities, varying use of motor assessment tools to detect risk of CP, more focus on gross motor function than hand function in early age, impact of usual clinical practice, requirements for acting in a variable therapeutic role when providing guidance for parents, and challenges obtaining therapeutic training and specialization in a decentralized organization.ConclusionChallenges caused by a complex practice and a high level of requirement for therapeutic skill may have an impact on evidence-based practice and need to be addressed when incorporating new research knowledge about early CP-specific interventions into a family-centered clinical practice.</p>","PeriodicalId":16692,"journal":{"name":"Journal of pediatric rehabilitation medicine","volume":" ","pages":"256-267"},"PeriodicalIF":1.0,"publicationDate":"2025-11-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145422075","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2025-11-01Epub Date: 2025-11-10DOI: 10.1177/18758894251391901
Cristina A Sarmiento, Chloe Glaros, Jordan M Wyrwa, Emily Gianetti, McKenzie Bremel, Lori Silveira, Donald Borchert, Lisa A Brenner, Brooke Dorsey Holliman
PurposeThis study aimed to understand and describe the rehabilitation and care complexity needs of adults with cerebral palsy (CP) receiving care in a pediatric healthcare setting.MethodsThis was an exploratory sequential mixed-methods study. Qualitative data included 20 semi-structured interviews with adults with CP and caregivers. Quantitative data included electronic health record data from adults with CP who were active pediatric rehabilitation medicine (PRM) patients over a two-year period at a pediatric health system (N = 280). Results from analyses were mixed and merged through narrative and joint display approaches.ResultsThree qualitative themes were identified: 1) Wide range of equipment and orthotic needs that change over time; 2) Various roles of therapies in adulthood; and 3) High levels of rehabilitation and subspecialty care utilization. Quantitatively, n = 150 (53.8%) had equipment prescription(s), n = 79 (28.2%) had orthotic prescription(s), and n = 162 (57.9%) were actively engaged in at least one type of therapy. Participants cumulatively saw over 30 types of specialists. Only n = 21 (7.7%) had documented transition efforts during their PRM visits.ConclusionWhile the rehabilitation needs of individuals with CP evolve over time, adults with CP have high rehabilitation and overall healthcare utilization needs. This can complicate the transition to adult-based care and underscores the importance of comprehensive and longitudinal transition processes.
{"title":"Rehabilitation needs and healthcare utilization of adults with cerebral palsy: A mixed methods study.","authors":"Cristina A Sarmiento, Chloe Glaros, Jordan M Wyrwa, Emily Gianetti, McKenzie Bremel, Lori Silveira, Donald Borchert, Lisa A Brenner, Brooke Dorsey Holliman","doi":"10.1177/18758894251391901","DOIUrl":"10.1177/18758894251391901","url":null,"abstract":"<p><p>PurposeThis study aimed to understand and describe the rehabilitation and care complexity needs of adults with cerebral palsy (CP) receiving care in a pediatric healthcare setting.MethodsThis was an exploratory sequential mixed-methods study. Qualitative data included 20 semi-structured interviews with adults with CP and caregivers. Quantitative data included electronic health record data from adults with CP who were active pediatric rehabilitation medicine (PRM) patients over a two-year period at a pediatric health system (N = 280). Results from analyses were mixed and merged through narrative and joint display approaches.ResultsThree qualitative themes were identified: 1) Wide range of equipment and orthotic needs that change over time; 2) Various roles of therapies in adulthood; and 3) High levels of rehabilitation and subspecialty care utilization. Quantitatively, n = 150 (53.8%) had equipment prescription(s), n = 79 (28.2%) had orthotic prescription(s), and n = 162 (57.9%) were actively engaged in at least one type of therapy. Participants cumulatively saw over 30 types of specialists. Only n = 21 (7.7%) had documented transition efforts during their PRM visits.ConclusionWhile the rehabilitation needs of individuals with CP evolve over time, adults with CP have high rehabilitation and overall healthcare utilization needs. This can complicate the transition to adult-based care and underscores the importance of comprehensive and longitudinal transition processes.</p>","PeriodicalId":16692,"journal":{"name":"Journal of pediatric rehabilitation medicine","volume":" ","pages":"268-281"},"PeriodicalIF":1.0,"publicationDate":"2025-11-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12614310/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145482349","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}