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BrightHearts: A pilot study of biofeedback assisted relaxation training for the management of chronic pain in children with cerebral palsy BrightHearts:一项生物反馈辅助放松训练治疗脑瘫儿童慢性疼痛的试点研究
Pub Date : 2021-10-15 DOI: 10.1002/pne2.12062
K. Ostojic, N. Sharp, S. Paget, G. Khut, A. Morrow
Chronic pain is estimated to impact one‐in‐three children with cerebral palsy (CP). Psychological interventions including behavioral and cognitive strategies play a key role in chronic pain management, but there is a paucity of research exploring their use in children with CP.
据估计,慢性疼痛影响三分之一的脑瘫(CP)患儿。包括行为和认知策略在内的心理干预在慢性疼痛管理中起着关键作用,但在CP儿童中的应用研究却很缺乏。
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引用次数: 6
“Pain talk”: A triadic collaboration in which nurses promote opportunities for engaging children and their parents about managing children’s pain “疼痛谈话”:一种三方合作,护士促进儿童及其父母参与管理儿童疼痛的机会
Pub Date : 2021-08-09 DOI: 10.1002/pne2.12061
A. Jordan, B. Carter, K. Vasileiou
Effective communication with children about pain is important and has the potential to mediate the short‐ and longer‐term effects of pain on children. Most communication studies relating to children's pain have focused on language children use to describe everyday pain experiences. However, little is known regarding how health professionals, particularly nurses, communicate with children in healthcare settings about pain. This study aimed to explore how nurses talk to children and their parents about pain and what factors influence nurses’ use of language and non‐verbal communication. A cross‐sectional mixed‐methods (predominantly qualitative) survey (“pain talk”) was conducted, comprising qualitative items about pain communication and four vignettes portraying hypothetical cases of children representing typical child pain scenarios. Participants were recruited via email, social media, newsletters, established networks, and personal contacts. A total of 141 registered (68.1%) or in‐training nurses across 11 countries with experience of managing children's pain completed the survey. Textual survey responses were analyzed using conventional qualitative content analysis. Qualitative content analysis generated a meta‐theme “Being confident and knowing how to do ‘pain talk’” and four main themes that described the functions, purpose, and delivery of “pain talk”: (a) “contextualizing and assessing,” (b) “empowering, explaining, and educating,” (c) “supporting, affirming, and confirming,” and (d) “protecting, distracting, and restoring.” “Pain talk” was a triadic collaborative communication process that required nurses to feel confident about their role and skills. This process involved nurses talking to children and parents about pain and creating engagement opportunities for children and parents. “Pain talk” aimed to promote the agency of the child and parent and their engagement in discussions and decision‐making, using information, support, and comfort. Nurses shaped their “pain talk” to the specific context of the child's pain, previous experiences, and current concerns to minimize potential distress and adverse effects and to promote optimal pain management.
与儿童就疼痛进行有效的沟通是很重要的,并且有可能调节疼痛对儿童的短期和长期影响。大多数关于儿童疼痛的交流研究都集中在儿童用来描述日常疼痛经历的语言上。然而,关于卫生专业人员,特别是护士如何与医疗机构中的儿童就疼痛进行沟通,人们知之甚少。本研究旨在探讨护士如何与儿童及其父母谈论疼痛,以及影响护士使用语言和非语言沟通的因素。横断面混合方法(主要是定性的)调查(“疼痛谈话”)进行,包括关于疼痛沟通的定性项目和四个描述典型儿童疼痛情景的儿童假想案例的小插曲。参与者是通过电子邮件、社交媒体、时事通讯、已建立的网络和个人联系招募的。共有来自11个国家的141名注册护士(68.1%)或正在接受培训的护士完成了调查,这些护士具有管理儿童疼痛的经验。文本调查结果分析采用传统的定性内容分析。定性内容分析产生了一个元主题“自信并知道如何做‘痛苦谈话’”和四个主要主题,描述了“痛苦谈话”的功能、目的和传递:(a)“情境化和评估”,(b)“授权、解释和教育”,(c)“支持、肯定和确认”,以及(d)“保护、转移注意力和恢复”。“疼痛谈话”是一个三方协作的沟通过程,需要护士对自己的角色和技能有信心。在这个过程中,护士与孩子和父母谈论疼痛,并为孩子和父母创造参与的机会。“痛苦谈话”旨在通过提供信息、支持和安慰,促进儿童和家长参与讨论和决策。护士根据儿童疼痛的具体情况、以前的经历和当前的担忧来塑造他们的“疼痛谈话”,以尽量减少潜在的痛苦和不良影响,并促进最佳的疼痛管理。
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引用次数: 4
This is not the end: A long‐awaited update of the definition of pain 这并不是结束:人们期待已久的疼痛定义的更新
Pub Date : 2021-08-05 DOI: 10.1002/pne2.12058
R. D. Andersen
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引用次数: 0
Future roles of artificial intelligence in early pain management of newborns. 人工智能在新生儿早期疼痛管理中的未来作用。
Pub Date : 2021-08-05 eCollection Date: 2021-09-01 DOI: 10.1002/pne2.12060
Md Sirajus Salekin, Peter R Mouton, Ghada Zamzmi, Raj Patel, Dmitry Goldgof, Marcia Kneusel, Sammie L Elkins, Eileen Murray, Mary E Coughlin, Denise Maguire, Thao Ho, Yu Sun

The advent of increasingly sophisticated medical technology, surgical interventions, and supportive healthcare measures is raising survival probabilities for babies born premature and/or with life-threatening health conditions. In the United States, this trend is associated with greater numbers of neonatal surgeries and higher admission rates into neonatal intensive care units (NICU) for newborns at all birth weights. Following surgery, current pain management in NICU relies primarily on narcotics (opioids) such as morphine and fentanyl (about 100 times more potent than morphine) that lead to a number of complications, including prolonged stays in NICU for opioid withdrawal. In this paper, we review current practices and challenges for pain assessment and treatment in NICU and outline ongoing efforts using Artificial Intelligence (AI) to support pain- and opioid-sparing approaches for newborns in the future. A major focus for these next-generation approaches to NICU-based pain management is proactive pain mitigation (avoidance) aimed at preventing harm to neonates from both postsurgical pain and opioid withdrawal. AI-based frameworks can use single or multiple combinations of continuous objective variables, that is, facial and body movements, crying frequencies, and physiological data (vital signs), to make high-confidence predictions about time-to-pain onset following postsurgical sedation. Such predictions would create a therapeutic window prior to pain onset for mitigation with non-narcotic pharmaceutical and nonpharmaceutical interventions. These emerging AI-based strategies have the potential to minimize or avoid damage to the neonate's body and psyche from postsurgical pain and opioid withdrawal.

越来越先进的医疗技术、外科手术和支持性保健措施的出现,提高了早产儿和/或有危及生命的健康状况的婴儿的存活率。在美国,这一趋势与更多的新生儿手术和更高的新生儿重症监护病房(NICU)的入院率有关。手术后,目前NICU的疼痛管理主要依赖麻醉剂(阿片类药物),如吗啡和芬太尼(药效约为吗啡的100倍),这导致许多并发症,包括因阿片类药物戒断而延长在NICU的住院时间。在本文中,我们回顾了目前NICU疼痛评估和治疗的实践和挑战,并概述了未来使用人工智能(AI)支持新生儿疼痛和阿片类药物节约方法的持续努力。新一代nicu疼痛管理方法的主要焦点是主动缓解(避免)疼痛,旨在防止术后疼痛和阿片类药物戒断对新生儿的伤害。基于人工智能的框架可以使用连续客观变量的单一或多个组合,即面部和身体运动、哭泣频率和生理数据(生命体征),对术后镇静后疼痛发作时间做出高置信度的预测。这样的预测将在疼痛发作之前创造一个治疗窗口,以便通过非麻醉性药物和非药物干预措施减轻疼痛。这些新兴的基于人工智能的策略有可能最大限度地减少或避免术后疼痛和阿片类药物戒断对新生儿身体和精神的损害。
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引用次数: 0
Don’t tell me, show me: Reactions from those with lived experience to the 2020 revised IASP definition of pain 不要告诉我,让我看看:有亲身经历的人对2020年修订的IASP疼痛定义的反应
Pub Date : 2021-07-18 DOI: 10.1002/PNE2.12059
Isabel Jordan, R. Martens, K. Birnie
In 2020, the International Association for the Study of Pain (IASP) revised the definition of pain, providing an update to IASP’s original definition in place since 1979. The origins of the field of pediatric pain, born in part in the 1980s from the advocacy of Jill Lawson, mother to Jeffrey Lawson who experienced gross inadequacies in pain care as a premature infant, emphasize the critical need to listen to and act with the voice of people living with pain and their families and caregivers. Furthermore, the field of pediatric pain emerged in the mid‐1980s marking this revised definition of pain as the first opportunity within which the experience and science of pain in childhood has been considered. This invited commentary offers two lived experience reactions to the revised IASP definition of pain, from the perspective of one's own experience with pain during childhood and as parents and family members. Together, they highlight that the value of a revised definition must be judged on its ability to directly benefit children experiencing pain and their families. Their skeptical hope reflects their lived experience backed by empirical evidence demonstrating continued inequities and inadequacies in preventing and managing pediatric pain. We must mobilize together to ensure change in culture, knowledge, and behavior. With the combined efforts of researchers, healthcare professionals, and policymakers, in partnership with diverse people with lived experience, we can ensure that more effective action is taken to rapidly improve pain for children and their families.
2020年,国际疼痛研究协会(IASP)修订了疼痛的定义,对1979年以来IASP的原始定义进行了更新。儿科疼痛领域的起源部分源于20世纪80年代吉尔·劳森(Jill Lawson)的倡导,她是杰弗里·劳森(Jeffrey Lawson)的母亲,杰弗里·劳森(Jeffrey Lawson)在早产时经历了疼痛护理的严重不足,她强调了倾听疼痛患者及其家人和护理人员的声音并采取行动的迫切需要。此外,儿童疼痛领域出现在20世纪80年代中期,标志着这一修订后的疼痛定义是第一次有机会考虑儿童疼痛的经验和科学。这篇特邀评论提供了对IASP修订后的疼痛定义的两种生活经验反应,从一个人自己在童年时期和作为父母和家庭成员的疼痛经历的角度出发。总之,他们强调,修订后的定义的价值必须根据其对遭受痛苦的儿童及其家庭的直接好处的能力来判断。他们持怀疑态度的希望反映了他们的生活经验,这些经验证据表明,在预防和管理儿科疼痛方面存在持续的不平等和不足。我们必须共同动员起来,确保文化、知识和行为发生变化。在研究人员、医疗保健专业人员和政策制定者的共同努力下,与各种有生活经验的人合作,我们可以确保采取更有效的行动,迅速改善儿童及其家庭的疼痛。
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引用次数: 2
Self‐reported sensitivity to pain in early and moderately‐late preterm‐born adolescents: A community‐based cohort study 早期和中晚期早产青少年自我报告的疼痛敏感性:一项基于社区的队列研究
Pub Date : 2021-05-11 DOI: 10.1002/pne2.12053
Nienke H. van Dokkum, M. D. de Kroon, S. Reijneveld, A. Bos
We aimed to compare ratings of self‐reported and parent‐reported pain sensitivity between early preterm (EP), moderately‐late preterm (MLP), and full‐term (FT) adolescents. For EP adolescents, we aimed to determine whether pain sensitivity was associated with early‐life events. EP (n = 68, response rate 47.4%), MLP (n = 128, response rate 33.0%), and FT (n = 78, response rate 31.1%) adolescents and their parents (n = 277) answered an author‐generated question on pain sensitivity at 14‐15 years of age within a community‐based cohort study. Differences between groups were determined using the chi‐square test for trends. For EP adolescents, we assessed associations of treatment modalities (inotrope treatment, mechanical ventilation, and C‐section) and neonatal morbidities (sepsis/necrotizing enterocolitis, small‐for‐gestational age status, asphyxia, and cerebral pathologies) with adolescent pain sensitivity using logistic regression analyses. Increased pain sensitivity was reported by 18% of EP adolescents, compared with 12% of MLP adolescents, and 7% of FT adolescents (P = 0.033). Parent‐reported pain sensitivity did not differ by gestational age group. For EP adolescents, inotrope treatment was associated with increased pain sensitivity (odds ratio, 5.00, 95% confidence interval, 1.23‐20.4, P = 0.025). No other neonatal treatment modalities or morbidities were associated with pain sensitivity in adolescence. In conclusion, we observed higher proportions of increased pain sensitivity for EP and MLP adolescents. Physicians treating preterm adolescents should be aware of altered pain sensitivity.
我们的目的是比较早期早产儿(EP)、中度晚期早产儿(MLP)和足月青少年(FT)自我报告和父母报告的疼痛敏感性评分。对于EP青少年,我们的目的是确定疼痛敏感性是否与早期生活事件相关。在一项基于社区的队列研究中,EP (n = 68,应答率47.4%)、MLP (n = 128,应答率33.0%)和FT (n = 78,应答率31.1%)青少年及其父母(n = 277)回答了作者在14 - 15岁时提出的关于疼痛敏感性的问题。使用卡方检验确定组间差异的趋势。对于EP青少年,我们使用logistic回归分析评估了治疗方式(肌力治疗、机械通气和C -切片)和新生儿发病率(脓毒症/坏死性小肠结肠炎、小胎龄状态、窒息和脑病)与青少年疼痛敏感性的关系。18%的EP青少年报告疼痛敏感性增加,而MLP青少年为12%,FT青少年为7% (P = 0.033)。父母报告的疼痛敏感性在不同胎龄组之间没有差异。对于EP青少年,正性肌力治疗与疼痛敏感性增加相关(优势比为5.00,95%可信区间为1.23‐20.4,P = 0.025)。没有其他新生儿治疗方式或发病率与青春期疼痛敏感性相关。总之,我们观察到EP和MLP青少年疼痛敏感性增加的比例更高。治疗早产青少年的医生应该意识到疼痛敏感性的改变。
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引用次数: 0
Establishment of resilience in a challenging recovery at home after pediatric tonsil surgery—Children’s and caregivers’ perspectives 儿童扁桃体手术后在家中建立韧性-儿童和护理人员的观点
Pub Date : 2021-05-10 DOI: 10.1002/pne2.12051
Fredrik Alm, Gunilla Lööf, K. Blomberg, E. Ericsson
The objective of this study was to explore children's and caregivers’ experiences and management of postoperative recovery at home after tonsil surgery. The study had an explorative qualitative design with an inductive approach. Twenty children (5‐12 years of age) undergoing tonsillectomy or tonsillotomy with or without adenoidectomy participated along with their caregivers in semi‐structured interviews at a mean time of 28 days after surgery. The interviews were analyzed with content analysis. One main category emerged from the interviews: children and caregivers struggle to establish resilience in a challenging recovery. The families’ resilience relied on their situational awareness and capacity to act, which in turn formed a basis for the ability to return to normal daily life. Children and caregivers described the recovery as an evident interruption of daily life which had an impact on the children's physical and psychological well‐being. Both children and caregivers described the pain as a central concern. The families used different pharmacological and complementary strategies to manage the pain, which in some cases were complex. Some families said that the analgesics were insufficient in preventing breakthrough pain, and spoke about a lack of support as well as inadequate and contradictory information from healthcare staff. Caregivers also expressed uncertainty, ambivalence, or anxiety about the responsibility associated with their child's recovery. To optimize and support the recovery after tonsil surgery, it is crucial to obtain knowledge of children's and caregivers’ perspectives of postoperative recovery at home. The results indicate that the postoperative period included several troublesome experiences for which neither the children nor the caregivers were informed or prepared. The experience of pain was significant, and often complex to manage. To increase families’ resilience, the information provided by healthcare professionals needs to be broadened. Multidisciplinary teamwork is necessary to achieve this goal.
本研究的目的是探讨扁桃体手术后儿童及其照顾者的在家康复经验和管理。本研究采用探索性定性设计和归纳方法。20名接受扁桃体切除术或扁桃体切除术伴或不伴腺样体切除术的儿童(5 - 12岁)在手术后平均28天与其护理人员一起参加了半结构化访谈。对访谈进行内容分析。采访中出现了一个主要类别:儿童和照顾者在充满挑战的复苏中努力建立复原力。这些家庭的复原力依赖于他们的态势感知和行动能力,而这反过来又构成了恢复正常日常生活能力的基础。儿童和看护人将康复描述为日常生活的明显中断,这对儿童的身心健康产生了影响。儿童和护理人员都将疼痛描述为一个主要问题。这些家庭使用不同的药理学和补充策略来控制疼痛,在某些情况下是复杂的。一些家庭表示,镇痛剂不足以预防突破性疼痛,并谈到缺乏支持,以及卫生保健人员提供的信息不充分和相互矛盾。照顾者也表达了对与孩子康复相关的责任的不确定、矛盾或焦虑。为了优化和支持扁桃体手术后的恢复,了解儿童和护理人员在家中对术后恢复的看法至关重要。结果表明,术后期间包括一些麻烦的经历,无论是儿童还是护理人员都没有被告知或准备。疼痛的经历是重要的,往往复杂的管理。为了提高家庭的复原力,医疗保健专业人员提供的信息需要扩大。多学科团队合作是实现这一目标的必要条件。
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引用次数: 1
General dental practitioners’ knowledge and attitudes on children’s pain and pain management—A questionnaire survey 全科牙医对儿童疼痛及疼痛处理的知识和态度调查
Pub Date : 2021-05-10 DOI: 10.1002/pne2.12052
L. Krekmanova, S. Nilsson, M. Hakeberg, G. Klingberg, A. Robertson
The aim was to study general dental practitioners’ knowledge and attitudes on pain and pain management in children and adolescents, using a multidimensional questionnaire. There is little information on dentists’ views on pain in children. The research question was how attitudes and knowledge may correlate to the dentists’ age, sex, years of professional experience, the proportion of working time devoted to treating children and adolescents, as well as being a parent. At the time of the study, 387 general dentists working for the Public Dental Service participated in a web‐based, multidimensional validated questionnaire holding the categories (A) views on the care of children in pain, (B) physiology, (C) pain alleviation, (D) medication, (E) sociology/psychology, (F) Pain assessment instruments and methods, (G) non‐medication methods of pain alleviation, and (H) documentation of pain management. The age categories were given as; below 25, 25‐35, 36‐45, 46‐55 years, and older than 55 years of age. 71% of the responders were female. The dentists’ age cohort, as well as the years of professional experience, tended to make a difference as to the pain interventions in children and adolescents (P < 0.03). The female dentists, in comparison to the male dentists, conveyed different pain treatment strategies (P < 0.03). The proportion of working time devoted to treating children and adolescents, as well as being a parent, did not show significant differences regarding pain strategies. Associations were observed between the age of the dentists studied, the number of years as professionals and the knowledge and attitudes that benefit children's pain treatment. Being a parent was not significant. In this studied group, female dentists displayed significantly more care regarding pain management, than did their male colleagues. Furthermore, the study highlighted the need for a short questionnaire, user‐friendly yet with retained multidimensionality.
目的是研究全科牙科医生的知识和态度的疼痛和疼痛管理的儿童和青少年,使用多维问卷。关于牙医对儿童疼痛的看法的信息很少。研究的问题是态度和知识如何与牙医的年龄、性别、专业经验年数、用于治疗儿童和青少年的工作时间比例以及是否为人父母有关。在研究期间,387名在公共牙科服务工作的普通牙医参与了一份基于网络的多维有效问卷,问卷包含以下类别:(a)对儿童疼痛护理的看法,(B)生理学,(C)减轻疼痛,(D)药物,(E)社会学/心理学,(F)疼痛评估工具和方法,(G)减轻疼痛的非药物方法,以及(H)疼痛管理的文件。年龄分类如下:25岁以下、25 - 35岁、36 - 45岁、46 - 55岁及55岁以上。71%的应答者是女性。在儿童和青少年的疼痛干预方面,牙医的年龄队列和专业经验年数倾向于产生差异(P < 0.03)。与男性牙医相比,女性牙医表达了不同的疼痛治疗策略(P < 0.03)。用于治疗儿童和青少年的工作时间比例,以及作为父母,在疼痛策略方面没有显着差异。研究人员观察到,被研究牙医的年龄、作为专业人员的年数与有利于儿童疼痛治疗的知识和态度之间存在关联。为人父母并不重要。在这个研究小组中,女性牙医在疼痛管理方面表现出比男性同事更多的关心。此外,该研究强调需要一个简短的问卷,用户友好,但保留多维度。
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引用次数: 1
Nurses' perception, knowledge, and use of neonatal pain assessment 护士对新生儿疼痛评估的认知、知识和使用
Pub Date : 2021-05-07 DOI: 10.1002/pne2.12050
Martina Carlsen Misic, R. D. Andersen, Sofia Strand, M. Eriksson, Emma Olsson
Preterm and sick newborn infants undergo several painful procedures during their hospital stay, potentially leading to short‐ and long‐term negative consequences. Pain assessment should be performed regularly to provide optimal pain management. Nurses' knowledge of and attitude toward neonatal pain assessment affect how pain is assessed and managed in the clinical situation. The aim of this study was to explore Swedish nurses' perception, knowledge, and use of neonatal pain assessment. This descriptive, cross‐sectional questionnaire study was conducted across all Swedish neonatal units (n = 38). Respondents were chosen through convenience sampling by the head nurses at each unit. Ten nurses from each unit were asked to complete the survey, which contained both closed and open questions. A majority of the units (30/38; 79%) participated and 232 surveys were returned, a response rate of 61%. Of the nurses, 91% thought that neonatal pain assessment was important. Many nurses mentioned various difficulties with pain assessment and concerns that the scales used might not assess pain correctly. About half of the nurses considered themselves to have enough knowledge of neonatal pain assessment. Those who reported having enough knowledge of pain assessment viewed the pain scales used at their units more positively. Of the nurses, 74% reported using a pain assessment scale several times per work shift. Pain management guidelines were available according to 75% of nurses, but only 53% reported that the guidelines were followed. Although nurses in general expressed a positive attitude toward pain assessment scales, this was not necessarily evident in their clinical practice. Lack of knowledge, available or accessible guidelines, or concerns regarding the validity of available pain scales seemed to limit their use.
早产儿和生病的新生儿在住院期间经历了几个痛苦的过程,可能导致短期和长期的负面后果。疼痛评估应定期进行,以提供最佳的疼痛管理。护士对新生儿疼痛评估的知识和态度影响临床对疼痛的评估和处理。本研究的目的是探讨瑞典护士对新生儿疼痛评估的认知、知识和使用。这项描述性、横断面问卷调查研究在瑞典所有新生儿单位进行(n = 38)。调查对象由各科室护士长通过方便抽样的方式抽取。每个单位的10名护士被要求完成调查,其中包括封闭式和开放式问题。大多数单位(30/38;79%)参与,并回复了232份调查,回复率为61%。91%的护士认为新生儿疼痛评估很重要。许多护士提到了疼痛评估的各种困难,并担心使用的量表可能无法正确评估疼痛。大约一半的护士认为自己对新生儿疼痛评估有足够的了解。那些报告有足够的疼痛评估知识的人更积极地看待他们单位使用的疼痛量表。在护士中,74%的人报告每个轮班使用疼痛评估量表几次。75%的护士有疼痛管理指南,但只有53%的护士报告说他们遵守了这些指南。虽然护士普遍对疼痛评估量表持积极态度,但这在临床实践中并不一定明显。缺乏知识、可用或可获得的指南,或对可用疼痛量表有效性的担忧似乎限制了它们的使用。
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引用次数: 5
Pain burden in children with cerebral palsy (CPPain) survey: Study protocol 脑瘫儿童疼痛负担(CPPain)调查:研究方案
Pub Date : 2021-05-04 DOI: 10.1002/pne2.12049
R. D. Andersen, Lara M. Genik, A. Alriksson‐Schmidt, A. Anderzén-Carlsson, C. Burkitt, Sindre K. Bruflot, C. Chambers, R. Jahnsen, Ira Jeglinsky-Kankainen, Olav Aga Kildal, K. Ramstad, J. Sheriko, F. Symons, L. Wallin, G. Andersen
Pain is a significant health concern for children living with cerebral palsy (CP). There are no population‐level or large‐scale multi‐national datasets using common measures characterizing pain experience and interference (ie, pain burden) and management practices for children with CP. The aim of the CPPain survey is to generate a comprehensive understanding of pain burden and current management of pain to change clinical practice in CP. The CPPain survey is a comprehensive cross‐sectional study. Researchers plan to recruit approximately 1400 children with CP (primary participants) across several countries over 6‐12 months using multimodal recruitment strategies. Data will be collected from parents or guardians of children with CP (0‐17 years) and from children with CP (8‐17 years) who are able to self‐report. Siblings (12‐17 years) will be invited to participate as controls. The CPPain survey consists of previously validated and study‐specific questionnaires addressing demographic and diagnostic information, pain experience, pain management, pain interference, pain coping, activity and participation in everyday life, nutritional status, mental health, health‐related quality of life, and the effect of the COVID‐19 pandemic on pain and access to pain care. The survey will be distributed primarily online. Data will be analyzed using appropriate statistical methods for comparing groups. Stratification will be used to investigate subgroups, and analyses will be adjusted for appropriate sociodemographic variables. The Norwegian Regional Committee for Medical and Health Research Ethics and the Research Ethics Board at the University of Minnesota in USA have approved the study. Ethics approval in Canada, Sweden, and Finland is pending. In addition to dissemination through peer‐reviewed journals and conferences, findings will be communicated through the CPPain Web site (www.sthf.no/cppain), Web sites directed toward users or clinicians, social media, special interest groups, stakeholder engagement activities, articles in user organization journals, and presentations in public media.
疼痛是脑瘫(CP)患儿的一个重要健康问题。目前还没有人口水平或大规模的多国数据集,用于描述CP儿童的疼痛经历、干扰(即疼痛负担)和管理实践。CPPain调查的目的是全面了解疼痛负担和当前的疼痛管理,以改变CP的临床实践。CPPain调查是一项全面的横断面研究。研究人员计划采用多模式招募策略,在6 - 12个月内从多个国家招募约1400名CP患儿(主要参与者)。数据将从患有CP的儿童(0 - 17岁)和患有CP的儿童(8 - 17岁)的父母或监护人那里收集,这些儿童能够自我报告。兄弟姐妹(12 - 17岁)将被邀请作为对照。CPPain调查包括先前经过验证的研究特定问卷,涉及人口统计和诊断信息、疼痛经历、疼痛管理、疼痛干扰、疼痛应对、日常生活活动和参与、营养状况、心理健康、健康相关生活质量,以及COVID - 19大流行对疼痛和获得疼痛护理的影响。调查将主要在网上进行。将使用适当的统计方法对数据进行分析,以便进行组间比较。分层将用于调查亚组,分析将根据适当的社会人口变量进行调整。挪威医学和卫生研究伦理区域委员会和美国明尼苏达大学研究伦理委员会已经批准了这项研究。加拿大、瑞典和芬兰的伦理审批正在等待中。除了通过同行评议的期刊和会议传播外,研究结果还将通过CPPain网站(www.sthf.no/cppain)、针对用户或临床医生的网站、社交媒体、特殊利益团体、利益相关者参与活动、用户组织期刊上的文章以及公共媒体上的演讲进行交流。
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引用次数: 4
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Paediatric & Neonatal Pain
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