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Revue exploratoire des interventions de soutien offertes aux membres de la famille d’un enfant subissant une greffe de cellules souches hématopoïétiques. 对为接受造血干细胞移植儿童的家庭成员提供的支持干预措施进行探索性审查。
Pub Date : 2023-11-01 eCollection Date: 2023-01-01 DOI: 10.5737/23688076334426
Pauline F Laporte, Manon Ranger, Maura MacPhee
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引用次数: 0
Support interventions offered to family members of a child treated with hematopoietic stem cell transplant: A scoping review. 为接受造血干细胞移植治疗的儿童的家庭成员提供支持性干预措施:范围综述。
Pub Date : 2023-11-01 eCollection Date: 2023-01-01 DOI: 10.5737/236880763334417
Pauline F Laporte, Manon Ranger, Maura MacPhee

A scoping review was conducted to explore support interventions for family members of a child treated with hematopoietic stem cell transplant (HSCT). Three databases (CINAHL, Embase, and Medline) were searched to answer the review question: What are the support interventions offered to family members of a child treated with HSCT and are they based on a family-centred care approach? Out of 665 screened articles, nine were selected for full review. Findings revealed two main types of family-centred support interventions: psychological face-to-face and technology-based interventions. The majority of interventions assisted in improving family members' psychological well-being and included a portion of the core concepts from the Institute for Patient and Family-Centered Care Model in their approach. Based on the review findings, interventions that incorporate family-centred care concepts can enhance the psychological well-being and quality of life of family members whose child is undergoing HSCT treatment.

为探讨造血干细胞移植(HSCT)患儿家属的支持干预措施,我们进行了一次范围界定综述。我们检索了三个数据库(CINAHL、Embase 和 Medline),以回答综述问题:为接受造血干细胞移植治疗的患儿家属提供了哪些支持干预措施,这些措施是否基于以家庭为中心的护理方法?在筛选出的 665 篇文章中,有 9 篇被选中进行全面综述。研究结果显示,以家庭为中心的支持干预主要有两种类型:面对面的心理干预和基于技术的干预。大多数干预措施都有助于改善家庭成员的心理健康,并在其方法中包含了以患者和家庭为中心的护理模式研究所的部分核心概念。根据综述结果,纳入以家庭为中心的护理理念的干预措施可提高接受造血干细胞移植治疗的家庭成员的心理健康水平和生活质量。
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引用次数: 0
Profils de recherche d’information sur le cancer (PRIC) : outil d’autoévaluation des préférences des patients en matière d’information sur le cancer 癌症信息搜索概况(PRIC):患者癌症信息偏好的自我评估工具
Pub Date : 2023-07-14 DOI: 10.5737/23688076333377
C. Loiselle
Objectif : Les approches oncologiques contemporaines, comme les soins axés sur les valeurs et les forces, prennent en compte les besoins et les préférences du patient tout au long de l’expérience du cancer. On constate de plus en plus que les différences de comportement en matière de recherche d’information sur le cancer influent sur la communication patient-soignant, la prise de décision liée au traitement, la prestation et les résultats des soins, ainsi que la satisfaction du patient à l’égard des services de soins. Dans mes travaux de recherche passés, j’ai documenté divers profils de recherche d’information sur le cancer (PRIC) chez les patients. Il est possible de facilement reconnaître ces profils à l’aide d’un outil d’autoévaluation empirique à un item fondé sur la théorie. Méthodologie : Des recherches quantitatives guidées par la théorie de l’autoévaluation (TAE), selon laquelle les motivations à chercher de l’information sur soi-même varient en fonction de l’individu, ont montré que les motifs découlant de la TAE s’appliquaient au domaine de la santé (N = 600). Des travaux qualitatifs ont ensuite exploré la recherche d’information chez les personnes atteintes de différents cancers. Élaboré d’après cette série d’études, l’outil PRIC (qui pose une question générale invitant à choisir l’énoncé le plus représentatif parmi cinq phrases correspondant aux cinq profils de recherche d’information) a été testé auprès d’un large échantillon de personnes atteintes de différents cancers. Résultats : Dans cet échantillon (N = 2 142), les patients ont rempli l’outil PRIC et le sondage sur la satisfaction des patients en traitement anticancéreux ambulatoire (Ambulatory Oncology Patient Satisfaction Survey ou AOPSS). Voici les PRIC les plus fréquemment rapportés : complémentaire (50,2 %, recherche d’information sur le cancer qui ajoute à ce que le patient sait déjà), minimal (25,2 %, aucune recherche d’information sur le cancer), gardé (14,4 %, évitement de l’information négative et recherche d’information encourageante sur le cancer), axé sur les pairs (6,4 %, recherche d’information sur le cancer qui provient d’autres personnes ayant le même diagnostic) et intense (3,8 %, recherche du plus d’information possible sur le cancer). Le degré de satisfaction à l’égard des soins variait également selon les profils, le profil intense étant le moins satisfait dans tous les domaines de soins oncologiques. Conclusion et implications pour la pratique : L’outil PRIC permet d’évaluer rapidement le profil de recherche (ou d’évitement) d’information sur le cancer afin d’élaborer des interventions personnalisées. Il serait également intéressant de mener d’autres recherches sur l’évolution du PRIC au fil de l’expérience du cancer.
目的:当代肿瘤学方法,如基于价值和优势的护理,在整个癌症体验中考虑患者的需求和偏好。我们越来越发现行为差异研究癌症信息影响patient-soignant沟通、决策与治疗、护理和结果,以及病人对医疗服务的满意度。在我过去的研究中,我记录了患者癌症信息搜索(PRIC)的各种概况。通过基于理论的单项目经验自我评估工具,可以很容易地识别这些概况。方法:以自我评估理论(TAE)为指导的定量研究表明,TAE动机适用于健康领域(N = 600),该理论认为,寻求自我信息的动机因个人而异。定性研究随后探索了不同癌症患者的信息搜索。在这一系列研究的基础上,PRIC工具(提出一个一般性问题,要求从五个信息搜索配置文件对应的五个短语中选择最具代表性的陈述)在不同癌症患者的大样本中进行了测试。结果:在本样本中(N = 2142),患者完成了PRIC工具和门诊肿瘤患者满意度调查(AOPSS)。以下是最常被报道的价格:补充(50.2%),研究癌症信息的补充道,病人已经能最低(25.2%),任何研究癌症信息把守(14.4%),避免负面新闻和信息检索关于癌症的鼓舞,注重同行(6.4%)、研究癌症信息是从其他人有相同(诊断)和激烈的3.8%,研究癌症的最大新闻》)。对护理的满意度也因情况而异,在肿瘤护理的所有领域中,高水平的满意度最低。结论和实践启示:PRIC工具可以快速评估癌症信息的搜索(或回避)概况,以制定个性化的干预措施。在癌症经历过程中,进一步研究PRIC的演变也会很有趣。
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引用次数: 0
Factors influencing Canadian oncology nurses discussing cannabis use with patients experiencing chemotherapy-induced nausea 影响加拿大肿瘤科护士与化疗引起恶心患者讨论大麻使用的因素
Pub Date : 2023-07-14 DOI: 10.5737/23688076333
Tian-Yi Xiao, J. C. Phillips, G. Macartney, D. Stacey
A descriptive, cross-sectional study was conducted to determine factors influencing Canadian oncology nurses discussing cannabis use with patients experiencing chemotherapy-induced nausea (CIN). A survey invitation and three reminders were sent to 678 members of the Canadian Association of Nurses in Oncology (CANO) between February 8 and April 10, 2022. An educator sent an extra invitation to 131 oncology nurses in Eastern Ontario. The survey was based on the Ottawa Model of Research Use. Twenty-seven opened the link to the survey and 25 responded. Of 25 nurses, 11 (47.8%) correctly answered the knowledge question about the effectiveness of cannabis for CIN. The top three barriers to discussing cannabis use were social stigma, nurses’ lack of knowledge, and lack of guidance within the workplace. All participants identified needing continuing education and written guidance about use of cannabis for CIN. Although few oncology nurses responded to the survey, most indicated feeling inadequately prepared to discuss cannabis use with patients experiencing CIN.
进行了一项描述性的横断面研究,以确定影响加拿大肿瘤科护士与化疗引起恶心(CIN)患者讨论大麻使用的因素。2022年2月8日至4月10日期间,向加拿大肿瘤护士协会(CANO)的678名成员发送了一份调查邀请和三份提醒。一位教育工作者向安大略省东部的131名肿瘤科护士发出了额外的邀请。该调查基于渥太华研究使用模式。27人打开了调查链接,25人回复。在25名护士中,11名(47.8%)正确回答了大麻对CIN有效性的知识问题。讨论大麻使用的三大障碍是社会污名、护士缺乏知识和工作场所缺乏指导。所有参与者都确定需要继续教育和关于使用大麻治疗CIN的书面指导。尽管很少有肿瘤科护士对调查做出回应,但大多数护士表示,在与CIN患者讨论大麻使用方面准备不足。
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引用次数: 0
Experience of oncology nurses with cancer survivors during transition from acute oncology treatment to primary care. 肿瘤护士护理癌症幸存者从急性肿瘤治疗过渡到初级护理的经验
Pub Date : 2023-07-01 eCollection Date: 2023-01-01 DOI: 10.5737/23688076333336
Guang Sun, Manon Lemonde, Dominique Tremblay

Background: Cancer care for Canadian cancer survivors remains fragmented. Little is known about the experience of Canadian oncology nurses providing cancer care for cancer survivors, as they transition from acute treatment to primary care.

Objectives: This study aimed to (1) explore the experience of oncology nurses dealing with fragmented cancer care for cancer survivors in transition to survivorship; (2) identify oncology nurses' perspectives about what promotes or inhibits their delivery of quality cancer care; and (3) obtain their suggestions to improve cancer care.

Design: This study used a phenomenological design to explore the experience of oncology nurses in caring for cancer survivors during transition to survivorship and examine how the nurse participants describe their experience. Semi-structured interviews were used to collect data and an interpretative phenomenological analysis approach was used to develop themes from the data.

Results: Three oncology nurses participated in this study. The following five themes emerged: (1) Under personal transition: nursing assessment, symptoms management, patient education, resources offered, refusing label of cancer survivors, promoting adjustment to a new normal life, promoting return to work, and recognizing meaning of survivorship; (2) Under cancer survivor's care transition: promoting self-care management, communication, and maximal recovery of body functions; (3) Under nurse's positive experience promoting delivery of quality cancer care: caring for cancer survivors, experience and knowledge, and advocate for cancer survivors; (4) Under barriers that negatively affected delivery of cancer care: low socioeconomic status (especially low income), cultures and languages barriers, and limited time providing nursing care; and (5) Suggestions to improve cancer care: establishing a new position - primary nurse, increasing the number of healthcare professionals, and improving knowledge, skills, and experience.

Conclusion: Oncology nurses' knowledge and experience provide a good foundation for quality cancer care and contribute to the health and wellbeing of cancer survivors.

背景:加拿大癌症幸存者的癌症护理仍然支离破碎。我们对加拿大肿瘤护士为癌症幸存者提供癌症护理的经验知之甚少,因为他们从急性治疗过渡到初级护理。目的:本研究旨在(1)探讨肿瘤护士处理癌症幸存者向幸存者过渡的碎片化癌症护理的经验;(2)确定肿瘤护士对促进或抑制其提供高质量癌症护理的观点;(3)获得他们对改善癌症护理的建议。设计:本研究采用现象学设计,探讨肿瘤护士在过渡到幸存者期间照顾癌症幸存者的经验,并检查护士参与者如何描述他们的经验。使用半结构化访谈收集数据,并使用解释性现象学分析方法从数据中开发主题。结果:3名肿瘤科护士参与了本研究。(1)在个人转型阶段:护理评估、症状管理、患者教育、提供资源、拒绝癌症幸存者标签、促进适应新正常生活、促进重返工作岗位、认识幸存者的意义;(2)癌症幸存者护理过渡下:促进自我护理管理、沟通,最大限度地恢复身体功能;(3)在护士的积极体验下促进优质癌症护理的交付:关怀癌症幸存者,体验和知识,倡导癌症幸存者;(4)存在负面影响癌症护理提供的障碍:低社会经济地位(特别是低收入),文化和语言障碍,以及提供护理的时间有限;(5)提高肿瘤护理水平的建议:增设初级护士岗位,增加医护人员数量,提高知识、技能和经验。结论:肿瘤护士的知识和经验为高质量的肿瘤护理提供了良好的基础,有助于癌症幸存者的健康和幸福。关键词:肿瘤护士,肿瘤护理,治疗过渡
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引用次数: 0
Factors influencing Canadian oncology nurses discussing cannabis use with patients experiencing chemotherapy-induced nausea. 影响加拿大肿瘤科护士与化疗引起恶心的患者讨论大麻使用问题的因素。
Pub Date : 2023-07-01 eCollection Date: 2023-01-01 DOI: 10.5737/23688076333300
Tianhao Tiffany Xiao, J Craig Phillips, Gail Macartney, Dawn Stacey

A descriptive, cross-sectional study was conducted to determine factors influencing Canadian oncology nurses discussing cannabis use with patients experiencing chemotherapy-induced nausea (CIN). A survey invitation and three reminders were sent to 678 members of the Canadian Association of Nurses in Oncology (CANO) between February 8 and April 10, 2022. An educator sent an extra invitation to 131 oncology nurses in Eastern Ontario. The survey was based on the Ottawa Model of Research Use. Twenty-seven opened the link to the survey and 25 responded. Of 25 nurses, 11 (47.8%) correctly answered the knowledge question about the effectiveness of cannabis for CIN. The top three barriers to discussing cannabis use were social stigma, nurses' lack of knowledge, and lack of guidance within the workplace. All participants identified needing continuing education and written guidance about use of cannabis for CIN. Although few oncology nurses responded to the survey, most indicated feeling inadequately prepared to discuss cannabis use with patients experiencing CIN.

我们开展了一项描述性横断面研究,以确定影响加拿大肿瘤科护士与化疗诱发恶心 (CIN) 患者讨论大麻使用问题的因素。2022 年 2 月 8 日至 4 月 10 日期间,我们向加拿大肿瘤科护士协会 (CANO) 的 678 名会员发出了调查邀请函和三封提醒函。一名教育工作者向安大略省东部的 131 名肿瘤科护士额外发送了邀请函。调查以渥太华研究使用模式为基础。27 人打开了调查链接,25 人做出了回复。在 25 名护士中,11 人(47.8%)正确回答了关于大麻对 CIN 的有效性的知识问题。讨论使用大麻的前三大障碍是社会耻辱感、护士缺乏知识以及工作场所缺乏指导。所有参与者都认为需要关于使用大麻治疗 CIN 的继续教育和书面指导。虽然只有少数肿瘤科护士对调查做出了回应,但大多数护士都表示在与 CIN 患者讨论大麻使用问题时感到准备不足。
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引用次数: 0
Palliative care Advanced Practice Nurse role in engaging in serious illness conversations. 姑息关怀高级执业护士在参与重病对话中的作用。
Pub Date : 2023-07-01 eCollection Date: 2023-01-01
Eleonora Cretu, Sarah Torabi, Kalli Stilos

Having advanced care planning conversations with patients and/or their substitute decision maker has been shown to lead to many benefits, including aligning a patient's priorities and health expectations with his or her wishes. Typically, these conversations have been held with physicians, but have evolved over time to also be incorporated into the roles of other healthcare professionals. Advanced practice nurses who are trained to use a framework or an approach when having such conversations has been shown to have merit. As a result, advanced practice nurses are well positioned to be leaders in facilitating such conversations. In this project, the documentation notes of one advanced practice nurse on an in-patient palliative care team were examined, using the Serious Illness Conversation Guide, to evaluate the Advanced Practice Nurse's contribution to the process of holding advanced planning conversations with patients.

事实证明,与患者和/或其替代决策者进行晚期护理规划对话可带来许多益处,包括使患者的优先事项和健康期望与其愿望保持一致。通常情况下,这些对话都是与医生进行的,但随着时间的推移,这些对话也被纳入了其他医疗保健专业人员的角色中。事实证明,经过培训的高级实践护士在进行此类对话时使用一种框架或方法是有好处的。因此,高级实践护士完全有能力成为促进此类对话的领导者。在本项目中,我们使用《重病谈话指南》对住院姑息关怀团队中一名高级实践护士的记录笔记进行了研究,以评估高级实践护士在与患者进行晚期规划谈话过程中的贡献。
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引用次数: 0
Soins infirmiers donnés pendant la chimiothérapie aux patients atteints de tumeurs gastro-intestinales. 胃肠道肿瘤患者化疗期间的护理
Pub Date : 2023-07-01 eCollection Date: 2023-01-01 DOI: 10.5737/23688076333328
Donghui Dai, Jie Chen
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引用次数: 0
Challenges in nursing care for patients with cancer and severe mental illness: A case report. 为癌症和重症精神病患者提供护理服务的挑战:病例报告。
Pub Date : 2023-07-01 eCollection Date: 2023-01-01
Lesia Wynnychuk, Lise Huynh, Kalli Stilos

Patients with severe mental illness often present with more advanced cancer at diagnosis, experience poorer quality of care, receive fewer medical treatments, have higher overall disease mortality, and are less likely to access timely palliative care when compared to patients without severe mental illness. Research findings have shown that early involvement of specialized palliative care services for patients with advanced cancer improves quality of life, increases satisfaction with care, and mitigates depression. This case study will highlight the spectrum of challenges in caring for patients with a severe mental illness and advanced cancer from the perspective of an inpatient palliative care consult team.

与没有严重精神疾病的患者相比,严重精神疾病患者通常在确诊时已是癌症晚期,他们所经历的护理质量较差,接受的医疗治疗较少,总体疾病死亡率较高,并且不太可能及时获得姑息关怀服务。研究结果表明,晚期癌症患者及早接受专门的姑息关怀服务可以改善生活质量,提高对护理服务的满意度,并减轻抑郁情绪。本案例研究将从住院病人姑息关怀顾问团队的角度出发,重点介绍在护理患有严重精神疾病的晚期癌症患者时所面临的各种挑战。
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引用次数: 0
Page de couverture: Concours d’expression artistique. 封面:艺术表现力大赛。
Pub Date : 2023-07-01 eCollection Date: 2023-01-01
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引用次数: 0
期刊
Canadian Oncology Nursing Journal
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