Research involving the residents of care homes is vital to improve their health and wellbeing. Such research can make a major contribution to the health and social challenges facing society, including dementia and ageing. However, research is less common in the care context than in health settings. Studies submitted to the Health Research Authority over a 3-year period for ethics review were analysed to identify ethical barriers to research. Just 0.5% of research studies that were submitted involved care homes. The most common subjects researched were residents’ wellbeing, COVID-19 and care home processes and management. Analysis of the response of research ethics committees showed that the majority of questions or comments concerned the consent process, care and respect for the participants, and the social and scientific value of the planned research. There were a number of issues that were commonly raised by research ethics committees. In addition, the majority of studies involved adults who potentially lacked capacity. This work identifies the issues that are raised by research ethics committees and highlights specific ethical concerns about research in the care setting.
{"title":"Ethical issues in care research: an analysis","authors":"Charlotte Allen, Andrew John Timothy George","doi":"10.12968/nrec.2022.0066","DOIUrl":"https://doi.org/10.12968/nrec.2022.0066","url":null,"abstract":"Research involving the residents of care homes is vital to improve their health and wellbeing. Such research can make a major contribution to the health and social challenges facing society, including dementia and ageing. However, research is less common in the care context than in health settings. Studies submitted to the Health Research Authority over a 3-year period for ethics review were analysed to identify ethical barriers to research. Just 0.5% of research studies that were submitted involved care homes. The most common subjects researched were residents’ wellbeing, COVID-19 and care home processes and management. Analysis of the response of research ethics committees showed that the majority of questions or comments concerned the consent process, care and respect for the participants, and the social and scientific value of the planned research. There were a number of issues that were commonly raised by research ethics committees. In addition, the majority of studies involved adults who potentially lacked capacity. This work identifies the issues that are raised by research ethics committees and highlights specific ethical concerns about research in the care setting.","PeriodicalId":317357,"journal":{"name":"Nursing and residential care","volume":"7 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2023-02-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"127506974","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Rowan Wallace and Andy Elder discuss the announcement of additional funding to support the discharge of patients from acute hospitals into care homes.
罗文·华莱士和安迪·埃尔德讨论了宣布额外的资金，以支持病人从急性医院出院到养老院。
{"title":"Interim care home funding: a sticking plaster solution to a long-term problem","authors":"Rowan Wallace, A. Elder","doi":"10.12968/nrec.2023.0005","DOIUrl":"https://doi.org/10.12968/nrec.2023.0005","url":null,"abstract":"Rowan Wallace and Andy Elder discuss the announcement of additional funding to support the discharge of patients from acute hospitals into care homes.","PeriodicalId":317357,"journal":{"name":"Nursing and residential care","volume":"2 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2023-02-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"128769477","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
K. Spilsbury, G. Peryer, R. Devi, Kirsty Haunch, Magda Jordao, Carl Thompson, C. Goodman
Research has the potential to inform and enhance the care and experiences of people living and working in care homes. While there is a growing interest in research relevant for care homes, there is also a need to ensure that staff, residents and their families and friends are supported when considering taking part in research; particularly in a type of research called a ‘trial’. Trials are a type of research study that can help guide decisions about the best treatment, care and support for both residents (and their families and friends) and care home staff. While potentially important, trials are demanding for both care homes and trial research teams. Before agreeing to support a trial, there are questions a care home manager, staff, residents and their families and friends can consider. These questions are outlined in this article, and the answers to these will help a care home to determine whether they have the capacity, readiness and relationships to support a trial. By taking the time to ‘pause’ and ask ‘are we ready?’, care teams can support both care and science.
{"title":"On your marks, get set, pause: what care home teams should consider before partnering with a trial research group","authors":"K. Spilsbury, G. Peryer, R. Devi, Kirsty Haunch, Magda Jordao, Carl Thompson, C. Goodman","doi":"10.12968/nrec.2022.0059","DOIUrl":"https://doi.org/10.12968/nrec.2022.0059","url":null,"abstract":"Research has the potential to inform and enhance the care and experiences of people living and working in care homes. While there is a growing interest in research relevant for care homes, there is also a need to ensure that staff, residents and their families and friends are supported when considering taking part in research; particularly in a type of research called a ‘trial’. Trials are a type of research study that can help guide decisions about the best treatment, care and support for both residents (and their families and friends) and care home staff. While potentially important, trials are demanding for both care homes and trial research teams. Before agreeing to support a trial, there are questions a care home manager, staff, residents and their families and friends can consider. These questions are outlined in this article, and the answers to these will help a care home to determine whether they have the capacity, readiness and relationships to support a trial. By taking the time to ‘pause’ and ask ‘are we ready?’, care teams can support both care and science.","PeriodicalId":317357,"journal":{"name":"Nursing and residential care","volume":"70 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2023-01-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"115541021","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Supporting care home staff who are planning to retire","authors":"A. Ashurst","doi":"10.12968/nrec.2022.0062","DOIUrl":"https://doi.org/10.12968/nrec.2022.0062","url":null,"abstract":"","PeriodicalId":317357,"journal":{"name":"Nursing and residential care","volume":"2016 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2023-01-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"116760533","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Background/Aims Dementia is a collective term for all conditions that cause damage to the brain. Responsive behaviour is one of the symptoms of dementia trajectory and more than 90% of people with dementia present with responsive behaviour. These behaviours, including aggression and agitation, can adversely affect residents and staff in residential care services. There is a lack of understanding of how staff experience and manage responsive behaviours in residential settings. The aim of this qualitative literature review was to explore the experiences and perceptions of healthcare staff in managing responsive behaviour of residents with dementia in older persons’ residential care services. Methods A systematic search across six databases was performed using the Setting, Perspective, Phenomenon of interest, Comparison, Evaluation framework. Synthesis was guided by ‘best fit’ framework using the Valuing, Individualised, Perspective, Social and psychological environment framework. Results A total of nine articles were included in the review. From the Valuing, Individualised, Perspective, Social and psychological environment framework, the following sub-themes were found: valuing residents and staff; knowing residents through life history; unmet needs; the perspective of institutionalised care practices; emotional distance; the importance of meaningful activities; and a supportive environment. Conclusions The findings identified that access to dementia-specific education and a supportive management structure can help staff manage responsive behaviours of residents with dementia.
{"title":"Experiences of healthcare staff in managing responsive behaviour of people with dementia in residential care facilities: a qualitative literature review","authors":"S. Joy, M. Butler, M. Dowling","doi":"10.12968/nrec.2022.0046","DOIUrl":"https://doi.org/10.12968/nrec.2022.0046","url":null,"abstract":"Background/Aims Dementia is a collective term for all conditions that cause damage to the brain. Responsive behaviour is one of the symptoms of dementia trajectory and more than 90% of people with dementia present with responsive behaviour. These behaviours, including aggression and agitation, can adversely affect residents and staff in residential care services. There is a lack of understanding of how staff experience and manage responsive behaviours in residential settings. The aim of this qualitative literature review was to explore the experiences and perceptions of healthcare staff in managing responsive behaviour of residents with dementia in older persons’ residential care services. Methods A systematic search across six databases was performed using the Setting, Perspective, Phenomenon of interest, Comparison, Evaluation framework. Synthesis was guided by ‘best fit’ framework using the Valuing, Individualised, Perspective, Social and psychological environment framework. Results A total of nine articles were included in the review. From the Valuing, Individualised, Perspective, Social and psychological environment framework, the following sub-themes were found: valuing residents and staff; knowing residents through life history; unmet needs; the perspective of institutionalised care practices; emotional distance; the importance of meaningful activities; and a supportive environment. Conclusions The findings identified that access to dementia-specific education and a supportive management structure can help staff manage responsive behaviours of residents with dementia.","PeriodicalId":317357,"journal":{"name":"Nursing and residential care","volume":"92 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2023-01-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"124425658","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Delirium is a multifactorial syndrome that, when superimposed on dementia, can lead to twice the risk of being admitted to acute care than for a person who is cognitively intact. Early detection of delirium can be a challenge, especially when there is an existing diagnosis of dementia. Despite the wealth of literature, there continues to be a widespread lack of knowledge about delirium, and under-detection in all types of health and social care settings. This lack of recognition may lead to poor health outcomes and increased mortality. There is a need for effective training for staff working in community settings, and effective communication between health and social care staff and families who are affected by delirium. Furthermore, delirium superimposed on dementia is common, and may cause distress for patients, caregivers and staff. This article will explore some of the common factors when delirium is comorbid with dementia.
{"title":"Dementia and delirium: recognising common factors","authors":"K. Dening, Angela Moore","doi":"10.12968/nrec.2023.0001","DOIUrl":"https://doi.org/10.12968/nrec.2023.0001","url":null,"abstract":"Delirium is a multifactorial syndrome that, when superimposed on dementia, can lead to twice the risk of being admitted to acute care than for a person who is cognitively intact. Early detection of delirium can be a challenge, especially when there is an existing diagnosis of dementia. Despite the wealth of literature, there continues to be a widespread lack of knowledge about delirium, and under-detection in all types of health and social care settings. This lack of recognition may lead to poor health outcomes and increased mortality. There is a need for effective training for staff working in community settings, and effective communication between health and social care staff and families who are affected by delirium. Furthermore, delirium superimposed on dementia is common, and may cause distress for patients, caregivers and staff. This article will explore some of the common factors when delirium is comorbid with dementia.","PeriodicalId":317357,"journal":{"name":"Nursing and residential care","volume":"1 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2023-01-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"117294163","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Adam Bernstein discusses how care homes can prevent confidential information from being taken.
亚当·伯恩斯坦讨论了养老院如何防止机密信息被窃取。
{"title":"Keeping business-sensitive information safe","authors":"A. Bernstein","doi":"10.12968/nrec.2022.0061","DOIUrl":"https://doi.org/10.12968/nrec.2022.0061","url":null,"abstract":"Adam Bernstein discusses how care homes can prevent confidential information from being taken.","PeriodicalId":317357,"journal":{"name":"Nursing and residential care","volume":"24 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2023-01-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"131382880","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Adam Bernstein and Mark Stevens discuss bullying and harassment at work, what care homes should do to prevent this from happening and how to resolve any reports of bullying from their staff.
{"title":"Bullying and harassment in the workplace: advice for employers","authors":"A. Bernstein, M. Stevens","doi":"10.12968/nrec.2022.0060","DOIUrl":"https://doi.org/10.12968/nrec.2022.0060","url":null,"abstract":"Adam Bernstein and Mark Stevens discuss bullying and harassment at work, what care homes should do to prevent this from happening and how to resolve any reports of bullying from their staff.","PeriodicalId":317357,"journal":{"name":"Nursing and residential care","volume":"28 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2022-12-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"124444090","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Adrian Ashurst discusses what older people and care staff can do to keep safe during the winter months.
Adrian Ashurst讨论了老年人和护理人员在冬季可以做些什么来保证安全。
{"title":"Supporting older people and carers to stay safe in winter","authors":"A. Ashurst","doi":"10.12968/nrec.2022.0064","DOIUrl":"https://doi.org/10.12968/nrec.2022.0064","url":null,"abstract":"Adrian Ashurst discusses what older people and care staff can do to keep safe during the winter months.","PeriodicalId":317357,"journal":{"name":"Nursing and residential care","volume":"18 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2022-12-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"121066869","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
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