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Information Streams in Health Facilities: The Case of Uganda 卫生设施中的信息流:以乌干达为例
IF 3.9 3区 计算机科学 Q3 COMPUTER SCIENCE, INFORMATION SYSTEMS Pub Date : 2022-08-18 DOI: 10.1162/dint_a_00177
Mariam Basajja, Mutwalibi Nambobi
Abstract With the prevailing COVID-19 pandemic, the lack of digitally-recorded and connected health data poses a challenge for analysing the situation. Virus outbreaks, such as the current pandemic, allow for the optimisation and reuse of data, which can be beneficial in managing future outbreaks. However, there is a general lack of knowledge about the actual flow of information in health facilities, which is also the case in Uganda. In Uganda, where this case study was conducted, there is no comprehensive knowledge about what type of data is collected or how it is collected along the journey of a patient through a health facility. This study investigates information flows of clinical patient data in health facilities in Uganda. The study found that almost all health facilities in Uganda store patient information in paper files on shelves. Hospitals in Uganda are provided with paper tools, such as reporting forms, registers and manuals, in which district data is collected as aggregate data and submitted in the form of digital reports to the Ministry of Health Resource Center. These reporting forms are not digitised and, thus, not machine-actionable. Hence, it is not easy for health facilities, researchers, and others to find and access patient and research data. It is also not easy to reuse and connect this data with other digital health data worldwide, leading to the incorrect conclusion that there is less health data in Uganda. The a FAIR architecture has the potential to solve such problems and facilitate the transition from paper to digital records in the Uganda health system.
摘要随着新冠肺炎大流行的流行,缺乏数字记录和关联的健康数据给分析形势带来了挑战。病毒爆发,如当前的疫情,可以优化和重复使用数据,这对管理未来的疫情是有益的。然而,人们普遍缺乏对卫生设施中实际信息流动的了解,乌干达也是如此。在进行这项案例研究的乌干达,对于在患者通过卫生机构的过程中收集什么类型的数据或如何收集数据,没有全面的了解。本研究调查了乌干达卫生机构临床患者数据的信息流。研究发现,乌干达几乎所有的卫生机构都将患者信息存储在货架上的纸质文件中。乌干达的医院提供了纸质工具,如报告表、登记册和手册,其中地区数据作为汇总数据收集,并以数字报告的形式提交给卫生部资源中心。这些报告表格没有数字化,因此无法通过机器操作。因此,卫生机构、研究人员和其他人查找和访问患者和研究数据并不容易。重复使用这些数据并将其与世界各地的其他数字健康数据连接起来也不容易,这导致了乌干达健康数据较少的错误结论。FAIR体系结构有可能解决这些问题,并促进乌干达卫生系统从纸质记录向数字记录的过渡。
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引用次数: 3
Regulatory Framework for eHealth Data Policies in Zimbabwe: Measuring FAIR Equivalency 津巴布韦电子医疗数据政策监管框架:衡量公平等价性
IF 3.9 3区 计算机科学 Q3 COMPUTER SCIENCE, INFORMATION SYSTEMS Pub Date : 2022-08-18 DOI: 10.1162/dint_a_00173
Kudakwashe Chindoza
Abstract The FAIR Guidelines—that data should be Findable, Accessible, Interoperable and Reusable (FAIR)—aim to improve the management of digital data assets for improved decision making. FAIR comprises 15 elements (called facets) that explain how data should be able to be reused by researchers and policymakers. For this research, eight policy documents were reviewed from Zimbabwe's Ministry of Health and Ministry of Information and Communication Technology (ICT) from 1999 to 2020. These were scrutinised to determine the mention of the FAIR Guidelines or FAIR Equivalent principles. The vision, mission statement and objectives of these documents were analysed relative to the 15 facets of FAIR. The research found that none of the policy documents in health/eHealth or ICT in Zimbabwe explicitly mention the FAIR Guidelines, but all contain some FAIR Equivalent principles. Hence, the regulatory framework for health/eHealth data management in Zimbabwe is aligned with the FAIR Guidelines and, therefore, a policy window is open for the adoption of FAIR Guidelines in relation to health/eHealth data management.
FAIR准则——数据应该是可查找的、可访问的、可互操作的和可重用的(FAIR)——旨在改善数字数据资产的管理,以改进决策。FAIR包括15个要素(称为facet),这些要素解释了数据应该如何能够被研究人员和决策者重用。在这项研究中,审查了1999年至2020年期间津巴布韦卫生部和信息和通信技术部(ICT)的八份政策文件。这些都经过仔细审查,以确定是否提及公平准则或公平等效原则。这些文件的愿景、使命宣言和目标相对于公平的15个方面进行了分析。研究发现,津巴布韦卫生/电子卫生或信息通信技术方面的政策文件都没有明确提到公平准则,但都包含一些公平等效原则。因此,津巴布韦卫生/电子卫生数据管理的监管框架与《公平准则》保持一致,因此,在卫生/电子卫生数据管理方面,为采用《公平准则》打开了政策窗口。
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引用次数: 7
FAIR Equivalency with Regulatory Framework for Digital Health in Uganda FAIR与乌干达数字健康监管框架的等效性
IF 3.9 3区 计算机科学 Q3 COMPUTER SCIENCE, INFORMATION SYSTEMS Pub Date : 2022-08-18 DOI: 10.1162/dint_a_00170
Mariam Basajja, M. van Reisen, Francisca Onaolapo Oladipo
Abstract This study explores the possibility of opening a policy window for the adoption of the FAIR Guidelines— that data be Findable, Accessible, Interoperable, and Reusable (FAIR)—in Uganda's eHealth sector. Although the FAIR Guidelines were not mentioned in any of the policy documents relevant to Uganda's eHealth sector, the study found that 83% of the documents mentioned FAIR Equivalent efforts, such as the adoption of the National Identification Number (NIN) as a unique identifier in Uganda's national Electronic Health Management Information System (eHMIS) (findability), the planned/ongoing integration of various information systems (interoperability), and the alignment of various projects with international best practices/standards (reusability). A FAIR Equivalency Score (FE-Score), devised in this study as an aggregate score of the mention of the equivalent of FAIR facets in the policy documents, showed that the documents at the core of Uganda's digital health/eHealth policy have the highest score of all the documents analysed, indicating that there is a degree of alignment between Uganda's National eHealth Vision and the FAIR Guidelines. Therefore, it can be concluded that favourable conditions exist for the adoption and implementation of the FAIR Guidelines in Uganda's eHealth sector. Hence, it is recommended that the FAIR community adopt a capacity building strategy through organisations with a worldwide mandate, such as the World Health Organization, to promote the adoption of the FAIR Guidelines as part of international best practices.
摘要本研究探讨了在乌干达电子卫生部门为采用FAIR指南打开政策窗口的可能性,即数据是可查找、可访问、可互操作和可重复使用的(FAIR)。尽管与乌干达电子健康部门相关的任何政策文件中都没有提到FAIR指南,但研究发现,83%的文件提到了FAIR等效的努力,例如在乌干达国家电子健康管理信息系统(eHMIS)中采用国家身份号码(NIN)作为唯一标识符(可查找性),各种信息系统的计划/持续集成(互操作性),以及各种项目与国际最佳实践/标准的一致性(可重用性)。本研究中设计的FAIR等效分数(FE分数)是政策文件中提及FAIR方面等效内容的总分,表明乌干达数字健康/eHealth政策的核心文件在所有分析文件中得分最高,这表明乌干达的国家电子健康愿景与FAIR指南之间存在一定程度的一致性。因此,可以得出结论,在乌干达电子卫生部门采用和实施FAIR指南存在有利条件。因此,建议FAIR社区通过具有全球授权的组织(如世界卫生组织)采取能力建设战略,以促进将《FAIR指南》作为国际最佳实践的一部分。
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引用次数: 9
Possibility of Enhancing Digital Health Interoperability in Uganda through FAIR Data 通过FAIR数据增强乌干达数字卫生互操作性的可能性
IF 3.9 3区 计算机科学 Q3 COMPUTER SCIENCE, INFORMATION SYSTEMS Pub Date : 2022-08-18 DOI: 10.1162/dint_a_00178
Mariam Basajja, Mutwalibi Nambobi, K. Wolstencroft
Abstract The digital health landscape in Uganda is plagued by problems with interoperability and sustainability, due to fragmentation and a lack of integrated digital health solutions. This can be partly attributed to the absence of policies on the interoperability of data, as well as the fact that there is no common goal to make digital data and data infrastructure interoperable across the data ecosystem. The promulgation of the FAIR Guidelines in 2016 brought together various data stewards and stakeholders to adopt a common vision on data management and enable greater interoperability. This article explores the potential of enhancing digital health interoperability through FAIR by analysing the digital solutions piloted in Uganda and their sustainability. It looks at the factors that are currently hindering interoperability by examining existing digital health solutions in Uganda, such as the Digital Health Atlas Uganda (DHA-U) and Uganda Digital Health Dashboard (UDHD). The level of FAIRness of the two dashboards was determined using the FAIR Evaluation Services tool. Analysis was also carried out to discover the level of FAIRness of the digital health solutions within the dashboards and the most frequently used software applications and data standards by the different digital health interventions in Uganda.
摘要乌干达的数字健康领域因碎片化和缺乏综合数字健康解决方案而存在互操作性和可持续性问题。这在一定程度上可以归因于缺乏关于数据互操作性的政策,以及没有一个共同的目标来实现数字数据和数据基础设施在整个数据生态系统中的互操作性。FAIR指南于2016年颁布,汇集了各种数据管理员和利益相关者,以采用数据管理的共同愿景,并实现更大的互操作性。本文通过分析乌干达试点的数字解决方案及其可持续性,探讨了通过FAIR增强数字卫生互操作性的潜力。它通过检查乌干达现有的数字健康解决方案,如乌干达数字健康图谱(DHA-U)和乌干达数字健康仪表板(UDHD),来研究目前阻碍互操作性的因素。使用FAIR评估服务工具确定了两个仪表板的FAIRness水平。还进行了分析,以发现仪表盘中数字健康解决方案的公平性水平,以及乌干达不同数字健康干预措施最常用的软件应用程序和数据标准。
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引用次数: 2
FAIR Equivalency with Regulatory Framework for Digital Health in Ethiopia 与埃塞俄比亚数字卫生监管框架的公平对等
IF 3.9 3区 计算机科学 Q3 COMPUTER SCIENCE, INFORMATION SYSTEMS Pub Date : 2022-08-18 DOI: 10.1162/dint_a_00172
Getu Tadele Taye, S. Amare, T. G. Gebremeskel, A. Medhanyie, W. Ayele, Tigist Habtamu, M. Reisen
Abstract This paper investigates whether or not there is a policy window for making health data ‘Findable’, ‘Accessible’ (under well-defined conditions), ‘Interoperable’ and ‘Reusable’ (FAIR) in Ethiopia. The question is answered by studying the alignment of policies for health data in Ethiopia with the FAIR Guidelines or their ‘FAIR Equivalency’. Policy documents relating to the digitalisation of health systems in Ethiopia were examined to determine their FAIR Equivalency. Although the documents are fragmented and have no overarching governing framework, it was found that they aim to make the disparate health data systems in Ethiopia interoperable and boost the discoverability and (re)usability of data for research and better decision making. Hence, the FAIR Guidelines appear to be aligned with the regulatory frameworks for ICT and digital health in Ethiopia and, under the right conditions, a policy window could open for their adoption and implementation.
摘要本文调查了埃塞俄比亚是否存在使卫生数据“可查找”、“可访问”(在定义明确的条件下)、“可互操作”和“可重复使用”(FAIR)的政策窗口。通过研究埃塞俄比亚卫生数据政策与《公平准则》或其“公平等效性”的一致性,可以回答这个问题。审查了与埃塞俄比亚卫生系统数字化有关的政策文件,以确定其公平等效性。尽管这些文件支离破碎,没有总体管理框架,但发现它们旨在使埃塞俄比亚不同的卫生数据系统具有互操作性,并提高数据的可发现性和(再)可用性,以用于研究和更好的决策。因此,《公平准则》似乎与埃塞俄比亚的信通技术和数字卫生监管框架保持一致,在适当的条件下,可以为其采用和实施打开政策窗口。
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引用次数: 6
Implementation of FAIR Guidelines in Selected Non-Western Geographies FAIR指南在选定的非西方地区的实施
IF 3.9 3区 计算机科学 Q3 COMPUTER SCIENCE, INFORMATION SYSTEMS Pub Date : 2022-08-18 DOI: 10.1162/dint_a_00169
Yi Lin, Putu Hadi Purnama Jati, Aliya Aktau, M. Ghardallou, Sara Nodehi, M. Reisen
Abstract This study provides an analysis of the implementation of FAIR Guidelines in selected non-Western geographies. The analysis was based on a systematic literature review to determine if the findability, accessibility, interoperability, and reusability of data is seen as an issue, if the adoption of the FAIR Guidelines is seen as a solution, and if the climate is conducive to the implementation of the FAIR Guidelines. The results show that the FAIR Guidelines have been discussed in most of the countries studied, which have identified data sharing and the reusability of research data as an issue (e.g., Kazakhstan, Russia, countries in the Middle East), and partially introduced in others (e.g., Indonesia). In Indonesia, a FAIR equivalent system has been introduced, although certain functions need to be added for data to be entirely FAIR. In Japan, both FAIR equivalent systems and FAIR-based systems have been adopted and created, and the acceptance of FAIR-based systems is recommended by the Government of Japan. In a number of African countries, the FAIR Guidelines are in the process of being implemented and the implementation of FAIR is well supported. In conclusion, a window of opportunity for implementing the FAIR Guidelines is open in most of the countries studied, however, more awareness needs to be raised about the benefits of FAIR in Russia and Kazakhstan to place it firmly on the policy agenda.
摘要本研究分析了FAIR指南在选定的非西方地区的实施情况。该分析基于系统的文献综述,以确定数据的可查找性、可访问性、互操作性和可重用性是否被视为一个问题,是否将采用FAIR指南视为一种解决方案,以及气候是否有利于实施FAIR指南。结果表明,大多数研究国家都讨论了FAIR指南,这些国家将数据共享和研究数据的可重用性确定为一个问题(例如哈萨克斯坦、俄罗斯、中东国家),并在其他国家(例如印度尼西亚)部分引入了该指南。在印度尼西亚,引入了FAIR等效系统,尽管需要添加某些功能才能使数据完全FAIR。在日本,采用并创建了FAIR等效系统和基于FAIR的系统,日本政府建议接受基于FAIR系统。在一些非洲国家,FAIR准则正在实施过程中,FAIR的实施得到了很好的支持。总之,在所研究的大多数国家,实施公平公正审查指南的机会之窗是敞开的,然而,需要提高俄罗斯和哈萨克斯坦对公平公正审查好处的更多认识,才能将其牢牢地列入政策议程。
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引用次数: 2
Towards the FAIRification of Scanning Tunneling Microscopy Images 扫描隧道显微镜图像的精细化研究
IF 3.9 3区 计算机科学 Q3 COMPUTER SCIENCE, INFORMATION SYSTEMS Pub Date : 2022-08-10 DOI: 10.1162/dint_a_00164
Tommaso Rodani, E. Osmenaj, A. Cazzaniga, M. Panighel, C. Africh, S. Cozzini
ABSTRACT In this paper, we describe the data management practices and services developed for making FAIR compliant a scientific archive of Scanning Tunneling Microscopy (STM) images. As a first step, we extracted the instrument metadata of each image of the dataset to create a structured database. We then enriched these metadata with information on the structure and composition of the surface by means of a pipeline that leverages human annotation, machine learning techniques, and instrument metadata filtering. To visually explore both images and metadata, as well as to improve the accessibility and usability of the dataset, we developed “STM explorer” as a web service integrated within the Trieste Advanced Data services (TriDAS) website. On top of these data services and tools, we propose an implementation of the W3C PROV standard to describe provenance metadata of STM images.
摘要在本文中,我们描述了为使符合FAIR的扫描隧道显微镜(STM)图像成为科学档案而开发的数据管理实践和服务。作为第一步,我们提取了数据集每个图像的仪器元数据,以创建一个结构化数据库。然后,我们通过利用人工注释、机器学习技术和仪器元数据过滤的管道,用有关表面结构和组成的信息丰富了这些元数据。为了直观地探索图像和元数据,并提高数据集的可访问性和可用性,我们开发了“STM浏览器”,作为一种集成在的里雅斯特高级数据服务(TriDAS)网站中的web服务。在这些数据服务和工具之上,我们提出了W3C PROV标准的实现来描述STM图像的来源元数据。
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引用次数: 1
FAIR Data Point: A FAIR-Oriented Approach for Metadata Publication 公平数据点:一种面向公平的元数据发布方法
IF 3.9 3区 计算机科学 Q3 COMPUTER SCIENCE, INFORMATION SYSTEMS Pub Date : 2022-08-10 DOI: 10.1162/dint_a_00160
Luiz Olavo Bonino da Silva Santos, K. Burger, R. Kaliyaperumal, Mark D. Wilkinson
ABSTRACT Metadata, data about other digital objects, play an important role in FAIR with a direct relation to all FAIR principles. In this paper we present and discuss the FAIR Data Point (FDP), a software architecture aiming to define a common approach to publish semantically-rich and machine-actionable metadata according to the FAIR principles. We present the core components and features of the FDP, its approach to metadata provision, the criteria to evaluate whether an application adheres to the FDP specifications and the service to register, index and allow users to search for metadata content of available FDPs.
元数据是关于其他数字对象的数据,在公平中起着重要作用,与公平的所有原则直接相关。在本文中,我们提出并讨论了FAIR数据点(FDP),这是一种软件架构,旨在定义一种根据FAIR原则发布语义丰富且机器可操作的元数据的通用方法。我们介绍了FDP的核心组件和功能,它提供元数据的方法,评估应用程序是否遵守FDP规范的标准,以及注册、索引和允许用户搜索可用FDP的元数据内容的服务。
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引用次数: 14
COKG-QA: Multi-hop Question Answering over COVID-19 Knowledge Graphs COKG-QA:新冠肺炎知识图谱上的多孔问答
IF 3.9 3区 计算机科学 Q3 COMPUTER SCIENCE, INFORMATION SYSTEMS Pub Date : 2022-07-01 DOI: 10.1162/dint_a_00154
Huifang Du, Zhongwen Le, Haofen Wang, Yunwen Chen, Jing Yu
Abstract COVID-19 evolves rapidly and an enormous number of people worldwide desire instant access to COVID-19 information such as the overview, clinic knowledge, vaccine, prevention measures, and COVID-19 mutation. Question answering (QA) has become the mainstream interaction way for users to consume the ever-growing information by posing natural language questions. Therefore, it is urgent and necessary to develop a QA system to offer consulting services all the time to relieve the stress of health services. In particular, people increasingly pay more attention to complex multi-hop questions rather than simple ones during the lasting pandemic, but the existing COVID-19 QA systems fail to meet their complex information needs. In this paper, we introduce a novel multi-hop QA system called COKG-QA, which reasons over multiple relations over large-scale COVID-19 Knowledge Graphs to return answers given a question. In the field of question answering over knowledge graph, current methods usually represent entities and schemas based on some knowledge embedding models and represent questions using pre-trained models. While it is convenient to represent different knowledge (i.e., entities and questions) based on specified embeddings, an issue raises that these separate representations come from heterogeneous vector spaces. We align question embeddings with knowledge embeddings in a common semantic space by a simple but effective embedding projection mechanism. Furthermore, we propose combining entity embeddings with their corresponding schema embeddings which served as important prior knowledge, to help search for the correct answer entity of specified types. In addition, we derive a large multi-hop Chinese COVID-19 dataset (called COKG-DATA for remembering) for COKG-QA based on the linked knowledge graph OpenKG-COVID19 launched by OpenKG①, including comprehensive and representative information about COVID-19. COKG-QA achieves quite competitive performance in the 1-hop and 2-hop data while obtaining the best result with significant improvements in the 3-hop. And it is more efficient to be used in the QA system for users. Moreover, the user study shows that the system not only provides accurate and interpretable answers but also is easy to use and comes with smart tips and suggestions.
摘要新冠肺炎迅速发展,世界各地的许多人都希望立即获得新冠肺炎信息,如概述、临床知识、疫苗、预防措施和新冠肺炎变异。问答(QA)已经成为用户通过提出自然语言问题来消费日益增长的信息的主流互动方式。因此,迫切需要建立一个随时提供咨询服务的质量保证体系,以缓解卫生服务的压力。特别是,在持续的大流行期间,人们越来越关注复杂的多跳问题,而不是简单的问题,但现有的新冠肺炎QA系统无法满足他们复杂的信息需求。在本文中,我们介绍了一种称为COKG-QA的新型多跳QA系统,该系统在大规模新冠肺炎知识图上推理多个关系以返回给定问题的答案。在知识图上的问答领域,目前的方法通常基于一些知识嵌入模型来表示实体和模式,并使用预先训练的模型来表示问题。虽然基于指定的嵌入来表示不同的知识(即实体和问题)是方便的,但存在一个问题,即这些单独的表示来自异构向量空间。我们通过一种简单但有效的嵌入投影机制,将问题嵌入与知识嵌入对准在一个公共语义空间中。此外,我们建议将实体嵌入与其作为重要先验知识的相应模式嵌入相结合,以帮助搜索指定类型的正确答案实体。此外,我们基于OpenKG①推出的链接知识图OpenKG-COVID19,为COKG-QA导出了一个大型多跳中文新冠肺炎数据集(称为COKG-DATA,用于记忆),其中包括关于新冠肺炎的全面和有代表性的信息。COKG-QA在1跳和2跳数据中实现了相当有竞争力的性能,同时在3跳中获得了显著改进的最佳结果。并且它在用户的QA系统中使用更有效。此外,用户研究表明,该系统不仅提供了准确和可解释的答案,而且易于使用,并配有智能提示和建议。
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引用次数: 6
Uncovering Topics of Public Cultural Activities: Evidence from China 公共文化活动的主题揭示:来自中国的证据
IF 3.9 3区 计算机科学 Q3 COMPUTER SCIENCE, INFORMATION SYSTEMS Pub Date : 2022-07-01 DOI: 10.1162/dint_a_00121
Zixin Zeng, Bolin Hua
Abstract In this study, we uncover the topics of Chinese public cultural activities in 2020 with a two-step short text clustering (self-taught neural networks and graph-based clustering) and topic modeling approach. The dataset we use for this research is collected from 108 websites of libraries and cultural centers, containing over 17,000 articles. With the novel framework we propose, we derive 3 clusters and 8 topics from 21 provincial-level regions in China. By plotting the topic distribution of each cluster, we are able to shows unique tendencies of local cultural institutes, that is, free lessons and lectures on art and culture, entertainment and service for socially vulnerable groups, and the preservation of intangible cultural heritage respectively. The findings of our study provide decision-making support for cultural institutes, thus promoting public cultural service from a data-driven perspective.
摘要本研究采用两步短文本聚类(自学神经网络和基于图的聚类)和主题建模方法,揭示了2020年中国公共文化活动的主题。我们用于这项研究的数据集来自108个图书馆和文化中心的网站,包含超过17,000篇文章。在此框架下,我们从中国21个省级地区得到了3个集群和8个主题。通过绘制每个集群的主题分布,我们可以看到当地文化机构的独特倾向,分别是免费的艺术文化课程和讲座,为社会弱势群体提供娱乐和服务,以及非物质文化遗产保护。研究结果为文化机构提供决策支持,从而从数据驱动的角度推动公共文化服务。
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引用次数: 0
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