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Why the hermeneutic wager 为什么要下诠释学赌注
Pub Date : 2024-01-29 DOI: 10.26443/ijwpc.v11i1.415
Richard B. Hovey
While progressing through my ongoing cancer treatments, in particular the reflection or re-reflections guided by Richard Kearney’s hermeneutic wager. I prefer a wager over the traditional cancer metaphors because it replaces the blatant harshness of a battle in a war. I am not saying in any way of form to be a passive observer during one’s cancer treatment journey, but to replace the winner-looser paradigm with carnage associated with war, shrapnel dismembered bodies unrecognizable to themselves and others. This does not mean that I am not standing up to and confronting cancer with vigor and intensity. The wager offers dignity during participation where all the “cards” are delt from both the cancer and the treatments with the integrity of the whole person who is living with cancer with their healthcare team and family play together as a community to successfully support the wager’s cause. The wager is respectful and addresses the risks involved and is fully c  onscientious of outcomes as an unpredictable event. This wager is comprised of five reflections and/or conversations to engage in that I have adapted to learn about living with cancer and its treatments. The hermeneutic wager has five points of reflection: imagination, humility, commitment, discernment, and hospitality. These will be used to provide examples of how to offer insight into one’s experiences. Through these kinds of reflections on cancer, uncertainty can help us develop wings for the journey into the unknown uncertainty that often a diagnosis of cancer requires.
在我接受癌症治疗的过程中,尤其是在理查德-卡尼的诠释学赌注的指导下进行的反思或再反思。与传统的癌症隐喻相比,我更喜欢 "赌注",因为它取代了战争中战斗的残酷。我并不是说在癌症治疗过程中要做一个被动的旁观者,而是用战争中的屠杀、弹片肢解的尸体来取代胜者-败者的模式,让自己和他人都无法辨认。这并不意味着我不勇敢地面对癌症,不积极面对癌症。在参与过程中,癌症和治疗过程中的所有 "牌 "都会被打掉,整个癌症患者及其医疗团队和家人作为一个群体共同参与,成功地支持赌注的事业。该赌注尊重并应对所涉及的风险,并充分考虑到作为不可预测事件的结果。这个赌注由五个反思和/或对话组成,我通过这些反思和/或对话来了解癌症患者的生活和治疗。诠释学赌注有五个反思点:想象力、谦逊、承诺、辨别力和好客。我们将利用这些要点来举例说明如何洞察自己的经历。通过这些对癌症的反思,不确定性可以帮助我们为迈向未知的不确定性的旅程插上翅膀,而这往往是癌症诊断所要求的。
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引用次数: 0
Resilience in adolescent chronic pain: an exploration of coping mechanisms and personal growth 青少年慢性疼痛的恢复能力:应对机制和个人成长探索
Pub Date : 2024-01-29 DOI: 10.26443/ijwpc.v11i1.412
R. Szwimer, Richard B. Hovey
Adolescents living with chronic pain (CP) are vulnerable to negative outcomes such as disability and impaired quality of life. They often miss opportunities for social engagement and suffer from anxiety and depression. Central to all accounts is a sense of interrupted life—phrases with negative connotations such as “couldn’t do” and “had to stop” are repeatedly used to express feelings of loss of control. To regain control over their situation, participants create within themselves a positive internal dialogue whereby they reconstruct the meaning of normalcy, practice acceptance, make downward social comparisons, and engage in daily positive affirmations. They also create a positive external environment, surrounding themselves with compassionate individuals as well as advocating for proper accommodations at school. While CP disrupts their personal and academic trajectories, the experience of living with pain has instilled in them the pursuit of significance. This pursuit is propelled by the imagery of a fulfilled life and seems to be particular to this age group. Ironically, some participants are grateful for their pain for granting them intuitive empathy for the suffering of others and the emotional credibility to help others.
患有慢性疼痛(CP)的青少年很容易出现残疾和生活质量下降等负面结果。他们常常错失参与社会活动的机会,并遭受焦虑和抑郁的折磨。所有描述的核心都是一种生活被打断的感觉--"做不到 "和 "不得不停止 "等具有负面含义的短语被反复使用,以表达失去控制的感觉。为了重新控制自己的处境,参与者在自己的内心深处创造了一种积极的内部对话,通过这种对话,他们重新构建了正常的含义,练习接受,进行向下的社会比较,并每天进行积极的肯定。他们还创造积极的外部环境,与富有同情心的人为伍,并在学校争取适当的便利。虽然脊髓灰质炎扰乱了他们的个人和学业轨迹,但带着痛苦生活的经历给他们灌输了对意义的追求。这种追求是由对充实生活的想象所推动的,似乎也是这个年龄组所特有的。具有讽刺意味的是,一些参与者对自己的痛苦心存感激,因为这使他们对他人的痛苦有了直觉上的共鸣,并在情感上有了帮助他人的可信度。
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引用次数: 0
Simulating a situation of homelessness: nursing students' perceptions of learning through virtual embodiment 模拟无家可归的情境:护理专业学生对通过虚拟体现进行学习的看法
Pub Date : 2024-01-29 DOI: 10.26443/ijwpc.v11i1.393
Niki Soilis, E. Kinsella, François Filion, Jason M. Harley, F. Bhanji, Fernanda Claudio, Laurence Roy, Vivetha Thambinathan, Nadja Benmohamed
Individuals experiencing homelessness encounter unique challenges in accessing and receiving care in our health systems[1,2,3,4]  Preparing emerging health professionals to respond to their complex health needs will require innovative educational approaches that promote person-centered care, and stimulate critical reflection and action towards the personal, interpersonal and structural factors that shape health care delivery.[5,6,7] This presentation reports on preliminary findings of phase 1 of a critical qualitative case study of nursing student’s perceptions of learning about the experience of homelessness, through a virtual reality educational experience.  The study design was informed by critical transformative learning theories and theories of embodiment.  Twenty nursing students were engaged in a virtual reality experience of 12 minutes, followed by a 1:1 debrief interview. The debrief interview used an adapted version of the Promoting Excellence and Reflective Learning in Simulation (PEARLS) framework to elicit students’ reflections on the experience. The interviews were audio recorded and transcribed verbatim. Data analysis involved a process of reading all of the transcripts for a sense of the whole, mindmapping each of the transcripts, identifying themes that permeated the data set, and coding data in Quirkos software. Six preliminary themes include: a) seeing the person through story, b) destabilizing assumptions and questioning stereotypes, c) embodied emotional awareness, d) challenges to care, e) recognizing vulnerability of people experiencing homelessness, and f) quality of the immersive experience in learning. The findings contribute to our knowledge about virtual reality simulation as an innovative approach to fostering learning about homelessness in health professions education.  
[1,2,3,4]培养新兴的卫生专业人员以应对他们复杂的健康需求,需要创新的教育方法,促进以人为本的护理,激发对影响医疗服务的个人、人际和结构性因素的批判性反思和行动。 研究设计参考了批判性转化学习理论和体现理论。 20 名护理专业学生参与了 12 分钟的虚拟现实体验,随后进行了 1:1 的汇报访谈。汇报访谈采用了 "促进模拟卓越和反思性学习(PEARLS)"框架的改编版,以激发学生对体验的反思。对访谈进行了录音和逐字记录。数据分析过程包括阅读所有记录誊本以了解整体情况,绘制每份记录誊本的思维导图,确定贯穿数据集的主题,以及使用 Quirkos 软件对数据进行编码。六个初步的主题包括:a) 通过故事看人;b) 颠覆假设和质疑陈规定型观念;c) 体现情感意识;d) 护理面临的挑战;e) 认识到无家可归者的脆弱性;f) 沉浸式学习体验的质量。这些研究结果有助于我们了解虚拟现实模拟作为一种创新方法,在卫生专业教育中促进有关无家可归者的学习。
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引用次数: 0
Facing our own dying: exploring conflicts between our individual professional stance and our own personal views on MAiD 面对我们自己的死亡:探讨我们个人的专业立场与我们对千年发展目标的个人观点之间的冲突
Pub Date : 2024-01-29 DOI: 10.26443/ijwpc.v11i1.394
Anna Towers
Physician-administered euthanasia (Medical-Aid-in-Dying or MAiD) has been legally available in Canada since 2016, with ever-widening indications. Most palliative care physicians in Canada do not provide MAiD themselves but will refer to colleagues who provide this procedure. The author was involved in a qualitative research project on MAiD, looking at the views of Montreal-based palliative care physicians regarding their role. One interesting finding from that project is that our own individual personal views (i.e., what I would want for myself when I will inevitably face my own death) versus my professional views as a palliative care physician (i.e., the kind of end-of-life care that I am ready to provide, or what I think patients should receive) may radically differ. We teach our trainees (and the community beyond) that dying can have meaning up to the end of one’s natural life. Patients facing terminal illness commonly express a fear of becoming a burden to others. Yet we teach that this sentiment is often not well-founded, based on the expressed views of the patient’s loved ones. And yet dying can be difficult, even when patients receive the best available palliative care. Our professional view of what constitutes a dignified end-of-life and what patients and families (and I, eventually) will experience may be different. This presentation will spark reflection regarding this dichotomy. What feelings might this inner split provoke, when our professional and personal views conflict with each other?  Am I being a dishonest physician? And yet…
自2016年起,加拿大开始合法提供医生管理的安乐死(Medical-Aid-in-Dying,简称MAiD),其适应症不断扩大。加拿大大多数姑息治疗医生自己并不提供MAiD,但会转介给提供这一程序的同事。作者参与了一项关于MAiD的定性研究项目,调查蒙特利尔姑息关怀医生对其角色的看法。该项目的一个有趣发现是,我们个人的个人观点(即当我不可避免地面对自己的死亡时,我希望自己得到什么)与我作为姑息关怀医生的专业观点(即我准备提供什么样的临终关怀,或者我认为病人应该得到什么)可能存在根本性的差异。我们教导我们的受训者(以及社区),死亡在一个人的自然生命结束之前都是有意义的。面临绝症的病人通常表示害怕成为他人的负担。然而,根据病人所爱之人表达的观点,我们认为这种情绪往往没有充分的依据。然而,即使病人接受了最好的姑息治疗,死亡也可能是困难的。我们对什么是有尊严的生命终结以及病人和家属(最终也包括我自己)会经历什么的专业看法可能会有所不同。本讲座将引发我们对这种对立的反思。当我们的专业观点和个人观点发生冲突时,这种内心的分裂会引发怎样的感受? 我是一个不诚实的医生吗?然而...
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引用次数: 0
Survey on the current status of undergraduate education on self-care in university medical schools and medical colleges in Japan 日本大学医学院和医学院本科生自我保健教育现状调查
Pub Date : 2024-01-29 DOI: 10.26443/ijwpc.v11i1.410
Yusuke Takamiya
A survey on the current status of undergraduate education on self-care was conducted in university medical schools and medical colleges in Japan. This survey was planned and conducted by the Professionalism Subcommittee of the Japan Society for Medical Education. Prior approval was given by the Ethics Committee of Showa University. Self-care education was defined as education to enhance the well-being (physical and mental health) of medical students. Of the 82 universities invited to participate, 65 universities responded to the survey, giving a response rate of 79.3%. Of these 65 universities, 32 universities (49.2%) indicated that they were implementing self-care education programs. Stress management, mindfulness, self-awareness, resilience, and improvement of self-affirmation were the most common topics, and many of the faculty in charge of the topics were psychiatrists, psychologists, and medical education faculty members. Although about half of the universities implemented self-care education programs, the educational content has not yet been standardized, suggesting the need for standardization of self-care education in the future. The survey was conducted in all medical year levels, and the results showed that self-care education is given to first- and second-year medical students. It was suggested that it is necessary to provide more education to upper-year medical students who undergo clinical practice and experience increased stress. The need for self-care education for medical students has become even more important since 2020 and onwards, partly because of the impact of the COVID-19 pandemic.
在日本的大学医学院和医学院进行了一项关于本科生自我护理教育现状的调查。这项调查由日本医学教育学会职业素养小组委员会策划和实施。事先获得了昭和大学伦理委员会的批准。自我保健教育被定义为提高医学生福祉(身心健康)的教育。在受邀参与调查的 82 所大学中,有 65 所大学对调查做出了回应,回应率为 79.3%。在这 65 所大学中,有 32 所大学(49.2%)表示正在实施自我保健教育计划。压力管理、正念、自我意识、抗压能力和提高自我肯定是最常见的主题,负责这些主题的教师很多是精神科医生、心理学家和医学教育教师。虽然约有一半的大学实施了自我保健教育计划,但教育内容尚未标准化,这表明今后需要对自我保健教育进行标准化。调查在所有医学年级进行,结果显示,自我保健教育的对象是一年级和二年级的医学生。有人建议,有必要为高年级医学生提供更多教育,因为他们要进行临床实践,压力更大。自 2020 年起,医学生的自我保健教育变得更加重要,部分原因是 COVID-19 大流行的影响。
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引用次数: 0
The art and skills of compassion in practice 实践同情的艺术和技巧
Pub Date : 2024-01-29 DOI: 10.26443/ijwpc.v11i1.395
Margie Sills-Maerov, Sofia Valanci
Empathy, or the ability to “feel” another person’s experience, evokes strong emotions and activates the neural pathways in the pain region of the brain. Compassion is empathy combined with purposeful action to relieve suffering and impacts the brain’s reward centres. What are the outward impacts of compassion? Compassion is human connection, reciprocity, feeling cared for and caring for another. It reduces stress and cortisol for the receiver and giver. It reduces suffering and impacts all areas of the Quadruple Aim. Yet nearly half of the population of America and 63% of providers believe that the health system is not compassionate.How do you build “compassion skills”? Being a compassionate clinician is not about knowledge, but the quality of communication and relational interactions. Many hold the belief that this ability is naturally acquired or inherent in medical practice, but this ability is technical, rooted in capabilities, intentional, and requires continuous practice and refinement. Healthcare practitioners are at a disadvantage: the rigours clinical learning and the perceived time pressures of practice take precedent, limiting the opportunity for refinement and practice of these interpersonal communication skills. Looking to bridge the gap on continuous professional development and learning from other sectors, the Royal College of Physicians and Surgeons of Canada has been considering approaches for practice improvement in compassion. To make compassion skills tangible, the presenters offered a “coaching skills” program for physicians. Early evidence is pointing towards the positive impacts of this type of communication skills training on the therapeutic alliance.
同理心,即 "感受 "他人经历的能力,会唤起强烈的情感,并激活大脑疼痛区域的神经通路。同情心是将同理心与有目的的行动相结合,以减轻痛苦,并影响大脑的奖赏中心。同情心的外在影响是什么?同情心是人与人之间的联系、互惠、被关心的感觉和对他人的关爱。它能减少接受者和给予者的压力和皮质醇。它能减少痛苦,并对 "四重目标 "的所有领域产生影响。然而,近一半的美国人和 63% 的医疗服务提供者认为医疗系统缺乏同情心。如何培养 "同情心技能"?作为一名富有同情心的临床医生,需要的不是知识,而是沟通和关系互动的质量。许多人认为,这种能力是自然习得的,或者是医疗实践中与生俱来的,但这种能力是技术性的,植根于能力之中,是有意为之的,需要不断实践和完善。医疗从业人员处于劣势:临床学习的严格性和实践中感知到的时间压力占了上风,限制了这些人际沟通技能的完善和实践机会。加拿大皇家内科和外科医生学院一直在考虑改进同情心实践的方法,以弥补在持续专业发展和向其他行业学习方面的差距。为了让同情技能具体化,主讲人为医生们提供了一个 "教练技能 "计划。早期证据表明,这种类型的沟通技巧培训对治疗联盟有积极影响。
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引用次数: 0
Managing Estranged Relationships at the End of Life 处理生命末期的疏离关系
Pub Date : 2024-01-29 DOI: 10.26443/ijwpc.v11i1.425
Cory Ingram, Martha Siska
-
-
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引用次数: 0
“I get to know them as a whole person”: family physician stories of proximity to patients experiencing social inequity "我把他们当作一个完整的人去了解":家庭医生与遭遇社会不平等的病人的亲近故事
Pub Date : 2024-01-29 DOI: 10.26443/ijwpc.v11i1.402
Monica Molinaro, Katrina Shen, Gina Agarwal, Gabrielle Inglis, Meredith Vanstone
Canadians’ health outcomes are inextricably tied to social inequities. While family medicine is aptly situated to provide care that addresses social factors through longitudinal knowledge of patients and their contexts, family physicians have come under increased pressure to do more for their patients with less time and resources due to financial and resource demands within primary care. Nursing scholar Ruth Malone has argued that remaining proximal, or close to patients, is a form of resistance to these demands. Using a critical narrative methodology, we conducted 36 interviews with 20 family physicians working with persons experiencing health needs related to social inequity in Ontario, Canada, whose stories expressed and expanded upon Malone’s proximity. Notions of proximity were invoked through descriptions of the role of family physicians in: i) generating physical proximity based on the patients’ needs for more time, space, and care; ii) developing narrative proximity through storytelling over time, both between colleagues and patient communities; and iii) engaging in moral proximity, or recognizing the vulnerabilities of their patients, by going “above and beyond” in their care and advocacy roles inspired by the needs of their patients. The findings add theoretical depth to proximity, extending this conceptualization into a new clinical context. These stories also complement current health services and health policy research that advocates for collaborative primary care approaches, as elements of these approaches are conducive to establishing proximity with patients who need care the most.
加拿大人的健康状况与社会不平等密不可分。虽然家庭医生通过对病人及其背景的纵向了解,能够恰到好处地提供解决社会因素的医疗服务,但由于初级医疗中的财政和资源需求,家庭医生面临着越来越大的压力,需要用更少的时间和资源为病人做更多的事情。护理学者露丝-马龙(Ruth Malone)认为,保持与患者的近距离接触,是对这些要求的一种抵抗。我们采用批判性叙事方法,对加拿大安大略省的 20 名家庭医生进行了 36 次访谈,这些家庭医生的工作对象都是有健康需求、与社会不公平现象有关的人,他们的故事表达并扩展了马龙的 "近距离 "概念。通过对家庭医生在以下方面的作用的描述,引用了接近性的概念:i) 根据病人对更多时间、空间和护理的需求,产生物理接近性;ii) 通过讲故事,在同事之间和病人社区之间发展叙事接近性;iii) 参与道德接近性,或认识到病人的脆弱性,在病人需求的激励下,"超越 "他们的护理和宣传角色。这些研究结果增加了 "接近 "的理论深度,将这一概念延伸到了新的临床环境中。这些故事也是对目前倡导合作式初级保健方法的医疗服务和医疗政策研究的补充,因为这些方法的要素有利于与最需要护理的患者建立亲近感。
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引用次数: 0
Medical Student Study of Rural Health Concerns, Community Determinants and Whole Person Care 医学生对农村健康问题、社区决定因素和全人护理的研究
Pub Date : 2024-01-29 DOI: 10.26443/ijwpc.v11i1.365
Andrew Harper, Kiera Sanders, Kahla Edwards, Tasfeen Billah, Tessa Corbett, Lucy Irvine
Background: Following a short rural health placement in the second year of medical school five students opted, as an extra-curricular activity, to conduct an exploratory research project into the wellbeing and health concerns of rural residents in the Wheatbelt of Western Australia. The project was conducted in collaboration with the local shires. The aim was to document, analyse and understand the health concerns and experience of rural residents.Methods: A phenomenological research approach was employed. Seventeen rural residents selected by the shires, and four key informants responded to open-ended interviews. Their narratives were subjected to a thematic analysis.Results: The narratives described a wide range of health concerns relating to health services, mental illness, transportation, accommodation, marginalisation of the community, bureaucratisation of administration, community fragmentation and the desire for community partnerships. Frustration and inconvenience from community factors were associated with anxiety, depression, isolation, and loss of wellbeing.Discussion: The respondents described a dysfunctional and under resourced local rural community. They defined numerous health concerns related to deficiencies in community cohesion and integration. They illustrated how whole person health involving prevention, acute and chronic treatment and aged care are all impacted by rural community circumstances. The narratives highlight the need for community development at the population level and for community context to be a principal focus in the clinical practice of whole person care in rural communities.   
背景:在医学院二年级的一次短期农村卫生实习之后,五名学生选择了一项课外活动,即对西澳大利亚小麦带农村居民的福利和健康问题进行探索性研究。该项目是与当地郡合作开展的。目的是记录、分析和了解农村居民的健康问题和经历:采用了现象学研究方法。由各县选出的 17 名农村居民和 4 名主要信息提供者接受了开放式访谈。对他们的叙述进行了主题分析:这些叙述描述了与医疗服务、精神疾病、交通、住宿、社区边缘化、行政官僚化、社区分裂和社区合作愿望有关的广泛健康问题。社区因素造成的沮丧和不便与焦虑、抑郁、孤立和丧失幸福感有关:受访者描述了一个功能失调、资源不足的当地农村社区。他们提出了许多与社区凝聚力和融合不足有关的健康问题。他们说明了涉及预防、急性和慢性病治疗以及老年护理的全人健康如何受到农村社区环境的影响。这些叙述强调了在人口层面进行社区发展的必要性,以及在农村社区进行全人护理的临床实践中将社区环境作为主要重点的必要性。
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引用次数: 0
ICU Bridge Program: Working with staff towards no family members feeling like "the elephant in the room" 重症监护室桥梁计划:与医护人员合作,不让家属觉得自己是 "房间里的大象"
Pub Date : 2024-01-29 DOI: 10.26443/ijwpc.v11i1.405
Adrian Goin, Danielle Fox, David Hornstein
The intensive care unit (ICU) provides specialized care to critically ill patients. Given the traumatic nature of critical illness and its treatments, up to 75% of family members of ICU decedents and survivors experience long-term psychological consequences, termed post-intensive care syndrome family (PICS-F). Anxiety, PTSD, and depression are common manifestations that significantly impact families’ quality of life and the recovery of those dependent on their caregiving. Although PICS-F can be mitigated by engagement with ICU staff, critical care workers are at risk of burnout and requesting closer liaisons with families is unfeasible. Bridging visitors and the ICU health care team would ensure that family members never feel like “the elephant in the room”.The ICU Bridge Program (ICUBP) is a unique volunteering and shadowing initiative designed and run by university students. Bridge Program volunteers are assigned to hospital ICUs in Montreal to be the first point of contact for visitors. This program addresses PICS-F by humanizing the ICU experience through compassionate human contact, continuous support, and an open line of communication. The diverse applicants are carefully selected and trained to maximize soft skills, such as emotional intelligence and active listening, which ensures that families feel welcome and understood in this tense environment. Furthermore, the ICUBP’s self-sufficient structure off-loads administrative responsibilities from resource-constrained hospitals and makes its implementation feasible and cost-efficient. By continuously monitoring its effect on patients, families, and staff, the ICUBP aims to improve and expand its contribution to whole-person care in the ICU.
重症监护室(ICU)为危重病人提供专业护理。鉴于重症疾病及其治疗的创伤性,重症监护病房死者和幸存者的家属中有高达 75% 的人经历了长期的心理后果,即重症监护后综合症家庭(PICS-F)。焦虑、创伤后应激障碍和抑郁是常见的表现形式,严重影响了家属的生活质量和依赖其照顾的人的康复。虽然重症监护室工作人员的参与可以减轻 PICS-F 的影响,但重症监护室工作人员有职业倦怠的风险,要求他们与家属建立更密切的联系是不可行的。ICU 桥梁计划(ICUBP)是一项独特的志愿服务和影子计划,由大学生设计和实施。桥梁计划的志愿者被派往蒙特利尔的医院重症监护室,成为访客的第一接触点。该计划通过富有同情心的人际接触、持续的支持和畅通的沟通渠道,将重症监护室的体验人性化,从而解决 PICS-F 问题。不同的申请者都经过精心挑选和培训,以最大限度地提高软技能,如情商和积极倾听,从而确保家属在这种紧张的环境中感受到欢迎和理解。此外,ICUBP 自给自足的结构减轻了资源有限的医院的行政责任,使其实施具有可行性和成本效益。通过持续监测其对患者、家属和员工的影响,ICUBP 致力于改进和扩大其对 ICU 全人护理的贡献。
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引用次数: 0
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The International Journal of Whole Person Care
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