Pub Date : 2026-01-31DOI: 10.1186/s41687-026-01001-8
Sadia Ahmed, Marcia Bruce, D'Arcy Duquette, Veronika Kiryanova, Meron Seyoum, Simron Sidhu, Gloria Wilkinson, Fatima Al Sayah, Jeffrey A Johnson, Arto Ohinmaa, Allison Soprovich
{"title":"Patients as partners in a research advisory council role: describing the APERSU Patient Engagement Network.","authors":"Sadia Ahmed, Marcia Bruce, D'Arcy Duquette, Veronika Kiryanova, Meron Seyoum, Simron Sidhu, Gloria Wilkinson, Fatima Al Sayah, Jeffrey A Johnson, Arto Ohinmaa, Allison Soprovich","doi":"10.1186/s41687-026-01001-8","DOIUrl":"10.1186/s41687-026-01001-8","url":null,"abstract":"","PeriodicalId":36660,"journal":{"name":"Journal of Patient-Reported Outcomes","volume":" ","pages":"23"},"PeriodicalIF":2.9,"publicationDate":"2026-01-31","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12901782/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"146094187","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2026-01-30DOI: 10.1186/s41687-025-00990-2
L Bernardi, M R Mollo, C Sartor, S Barbaglia, D Gargano, F Anastasi, G Camiciottoli, C Allegrini, C Caruso, I Baiardini, L Cappellari
{"title":"Living with chronic rhinosinusitis with nasal polyposis (CRSwNP): an experience to amplify Italian patients' voices.","authors":"L Bernardi, M R Mollo, C Sartor, S Barbaglia, D Gargano, F Anastasi, G Camiciottoli, C Allegrini, C Caruso, I Baiardini, L Cappellari","doi":"10.1186/s41687-025-00990-2","DOIUrl":"10.1186/s41687-025-00990-2","url":null,"abstract":"","PeriodicalId":36660,"journal":{"name":"Journal of Patient-Reported Outcomes","volume":" ","pages":"22"},"PeriodicalIF":2.9,"publicationDate":"2026-01-30","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12901749/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"146087092","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2026-01-29DOI: 10.1186/s41687-026-01006-3
Guillaume Fontaine, Joshua Ramos, Meagan Mooney, Marie-Eve Perron, Laura Crump, Sylvie D Lambert
{"title":"Implementation strategies for embedding patient-reported outcome and experience measures (PROMs/PREMs) in routine care: secondary analysis of an umbrella review.","authors":"Guillaume Fontaine, Joshua Ramos, Meagan Mooney, Marie-Eve Perron, Laura Crump, Sylvie D Lambert","doi":"10.1186/s41687-026-01006-3","DOIUrl":"10.1186/s41687-026-01006-3","url":null,"abstract":"","PeriodicalId":36660,"journal":{"name":"Journal of Patient-Reported Outcomes","volume":" ","pages":"17"},"PeriodicalIF":2.9,"publicationDate":"2026-01-29","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12864633/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"146087159","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2026-01-29DOI: 10.1186/s41687-026-01002-7
Farheen Khan, Michelle Prunier, Ivana Ristevski, Maja Trantalovski, Helen Dimaras
{"title":"Assessing patient engagement approaches in the development of patient reported outcome measures.","authors":"Farheen Khan, Michelle Prunier, Ivana Ristevski, Maja Trantalovski, Helen Dimaras","doi":"10.1186/s41687-026-01002-7","DOIUrl":"https://doi.org/10.1186/s41687-026-01002-7","url":null,"abstract":"","PeriodicalId":36660,"journal":{"name":"Journal of Patient-Reported Outcomes","volume":" ","pages":""},"PeriodicalIF":2.9,"publicationDate":"2026-01-29","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"146087138","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2026-01-27DOI: 10.1186/s41687-026-01008-1
Lea Doppelbauer, Maria Margarete Karsten, Anna Tatzber, Laura Hatzler, Pimrapat Gebert, Jasper Brands, Rosanne Andriessen, Therese Pross
{"title":"From participatory design to clinical routine: new concepts for visualizing patient-reported outcomes in breast cancer care.","authors":"Lea Doppelbauer, Maria Margarete Karsten, Anna Tatzber, Laura Hatzler, Pimrapat Gebert, Jasper Brands, Rosanne Andriessen, Therese Pross","doi":"10.1186/s41687-026-01008-1","DOIUrl":"10.1186/s41687-026-01008-1","url":null,"abstract":"","PeriodicalId":36660,"journal":{"name":"Journal of Patient-Reported Outcomes","volume":" ","pages":"28"},"PeriodicalIF":2.9,"publicationDate":"2026-01-27","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"146054120","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2026-01-27DOI: 10.1186/s41687-026-00997-3
Marijke Veenstra, Lisa Victoria Burrell, Ingeborg Strømseng Sjetne, Ann-Marie Towers, Maren Kristine Raknes Sogstad
{"title":"Validity and reliability of the Norwegian Adult Social Care Outcomes Toolkit (ASCOT CH4 and INT4) in three long-term care settings.","authors":"Marijke Veenstra, Lisa Victoria Burrell, Ingeborg Strømseng Sjetne, Ann-Marie Towers, Maren Kristine Raknes Sogstad","doi":"10.1186/s41687-026-00997-3","DOIUrl":"10.1186/s41687-026-00997-3","url":null,"abstract":"","PeriodicalId":36660,"journal":{"name":"Journal of Patient-Reported Outcomes","volume":" ","pages":"29"},"PeriodicalIF":2.9,"publicationDate":"2026-01-27","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"146067429","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2026-01-24DOI: 10.1186/s41687-026-00994-6
Catherine H Coddington, Anna M Kimura, Marissa Hughes, Tetyana P Shippee, Timothy J Beebe, Rachel Shands
{"title":"Assisted living resident quality of life questionnaire: development and validation.","authors":"Catherine H Coddington, Anna M Kimura, Marissa Hughes, Tetyana P Shippee, Timothy J Beebe, Rachel Shands","doi":"10.1186/s41687-026-00994-6","DOIUrl":"10.1186/s41687-026-00994-6","url":null,"abstract":"","PeriodicalId":36660,"journal":{"name":"Journal of Patient-Reported Outcomes","volume":" ","pages":"26"},"PeriodicalIF":2.9,"publicationDate":"2026-01-24","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"146041624","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2026-01-21DOI: 10.1186/s41687-026-01003-6
Luis Naar, Sebastian Mussnig, Janosch Niknam, Florian Brosch, Simon Krenn, Christopher C Mayer, Joachim Beige, Manfred Hecking
{"title":"Reduction of pruritus and depression using longitudinal patient-reported outcome measures in hemodialysis: a quality improvement project.","authors":"Luis Naar, Sebastian Mussnig, Janosch Niknam, Florian Brosch, Simon Krenn, Christopher C Mayer, Joachim Beige, Manfred Hecking","doi":"10.1186/s41687-026-01003-6","DOIUrl":"10.1186/s41687-026-01003-6","url":null,"abstract":"","PeriodicalId":36660,"journal":{"name":"Journal of Patient-Reported Outcomes","volume":" ","pages":"11"},"PeriodicalIF":2.9,"publicationDate":"2026-01-21","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12827871/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"146012595","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2026-01-21DOI: 10.1186/s41687-026-00998-2
Chisom Kanu, Tamara Al-Zubeidi, Shraddha Shinde, Gemma Al-Jassar, Jiat Ling Poon, Jordan Miller, Chris Marshall, Chloe Carmichael
{"title":"Understanding the patient experience of heart failure with obesity and preserved ejection fraction (HFpEF): qualitative insights from patients and clinicians.","authors":"Chisom Kanu, Tamara Al-Zubeidi, Shraddha Shinde, Gemma Al-Jassar, Jiat Ling Poon, Jordan Miller, Chris Marshall, Chloe Carmichael","doi":"10.1186/s41687-026-00998-2","DOIUrl":"10.1186/s41687-026-00998-2","url":null,"abstract":"","PeriodicalId":36660,"journal":{"name":"Journal of Patient-Reported Outcomes","volume":" ","pages":"25"},"PeriodicalIF":2.9,"publicationDate":"2026-01-21","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12909683/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"146020086","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
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