Despite the existence of national and international laws and conventions to avoid discrimination in India, exclusion due to an intersection of disability, gender, and religious identity continues, resulting in marginalisation from society. This article investigates the lived experiences of people by exploring how aspects of their identity intersect to influence their inclusion or exclusion within society. Narrative interviews were undertaken with 25 participants with disabilities in the states of Tamil Nadu and West Bengal. This qualitative methodology was employed to allow the participants to recount their experiences (both positive and negative) in their own words. A thematic analysis of the data provided rich evidence of the complex social structure in India, manifested by the multifaceted intersectional nature of social inclusion and exclusion. Our research found that for our participants disability was the main factor upon which discrimination was based, but that this discrimination is often compounded for people with disabilities due to their minority religious status, or gender. Marginalisation of people with disabilities is shown to be exacerbated when these identities intersect. Action is needed to ensure the human rights of people with disabilities are realised and that discrimination and marginalisation are avoided for those who have different identities compared to the majority of the population.
{"title":"Disability, Religion, and Gender: Exploring Experiences of Exclusion in India Through an Intersectional Lens","authors":"S. Thompson, B. Rohwerder, Dolon Mukherjee","doi":"10.17645/si.v11i4.7129","DOIUrl":"https://doi.org/10.17645/si.v11i4.7129","url":null,"abstract":"Despite the existence of national and international laws and conventions to avoid discrimination in India, exclusion due to an intersection of disability, gender, and religious identity continues, resulting in marginalisation from society. This article investigates the lived experiences of people by exploring how aspects of their identity intersect to influence their inclusion or exclusion within society. Narrative interviews were undertaken with 25 participants with disabilities in the states of Tamil Nadu and West Bengal. This qualitative methodology was employed to allow the participants to recount their experiences (both positive and negative) in their own words. A thematic analysis of the data provided rich evidence of the complex social structure in India, manifested by the multifaceted intersectional nature of social inclusion and exclusion. Our research found that for our participants disability was the main factor upon which discrimination was based, but that this discrimination is often compounded for people with disabilities due to their minority religious status, or gender. Marginalisation of people with disabilities is shown to be exacerbated when these identities intersect. Action is needed to ensure the human rights of people with disabilities are realised and that discrimination and marginalisation are avoided for those who have different identities compared to the majority of the population.","PeriodicalId":37948,"journal":{"name":"Social Inclusion","volume":"136 3","pages":""},"PeriodicalIF":1.5,"publicationDate":"2023-12-05","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"138598720","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"社会学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
The UN Convention on the Rights of Persons with Disabilities (UNCRPD) remains in place as the major disability rights instrument recognising that all persons with disabilities must enjoy human rights and freedoms as every other person. However, the CRPD does not automatically confer realization of these rights. In practice, its implementation is met by multiple hurdles, most pronounced at the local level in the Global South, where disability and poverty intersect. This article reports on findings from a study in five countries (Kenya, Philippines, Jamaica, Guatemala, and South Africa) looking at the extent to which the CRPD is being implemented locally in contexts of poverty, and the factors and processes impacting this localization. The findings highlight multiple barriers, becoming more pronounced in local rural areas. These include weak and fragmented organisations of persons with disabilities (OPDs), political and legal issues, and a siloed approach where disability is marginalised in mainstream areas, including development. These barriers are accentuated as intersectional dimensions are factored in, including indigeneity, age, gender, race, and ethnicity. Overall, each local context is left to its own devices, with urban stakeholders, unknowing of what life in poverty is like and how this reframes the CRPD in discourse and practice at the forefront. Our study concludes that there is a profound need for an informed, contextualized, intersectional, and geopolitical analysis where poverty is kept sharply in focus. This is essential to move beyond unrealistic assumptions about disability rights frameworks and to work towards truly localized and transformative efforts.
{"title":"Intersecting Disability and Poverty in the Global South: Barriers to the Localization of the UNCRPD","authors":"S. Grech, Jörg Weber, Sarah Rule","doi":"10.17645/si.v11i4.7246","DOIUrl":"https://doi.org/10.17645/si.v11i4.7246","url":null,"abstract":"The UN Convention on the Rights of Persons with Disabilities (UNCRPD) remains in place as the major disability rights instrument recognising that all persons with disabilities must enjoy human rights and freedoms as every other person. However, the CRPD does not automatically confer realization of these rights. In practice, its implementation is met by multiple hurdles, most pronounced at the local level in the Global South, where disability and poverty intersect. This article reports on findings from a study in five countries (Kenya, Philippines, Jamaica, Guatemala, and South Africa) looking at the extent to which the CRPD is being implemented locally in contexts of poverty, and the factors and processes impacting this localization. The findings highlight multiple barriers, becoming more pronounced in local rural areas. These include weak and fragmented organisations of persons with disabilities (OPDs), political and legal issues, and a siloed approach where disability is marginalised in mainstream areas, including development. These barriers are accentuated as intersectional dimensions are factored in, including indigeneity, age, gender, race, and ethnicity. Overall, each local context is left to its own devices, with urban stakeholders, unknowing of what life in poverty is like and how this reframes the CRPD in discourse and practice at the forefront. Our study concludes that there is a profound need for an informed, contextualized, intersectional, and geopolitical analysis where poverty is kept sharply in focus. This is essential to move beyond unrealistic assumptions about disability rights frameworks and to work towards truly localized and transformative efforts.","PeriodicalId":37948,"journal":{"name":"Social Inclusion","volume":"107 22","pages":""},"PeriodicalIF":1.5,"publicationDate":"2023-12-05","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"138599997","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"社会学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
This editorial introduces a thematic issue of Social Inclusion focusing on disabled people and the intersectional nature of social inclusion. This thematic issue includes transnational and transdisciplinary studies and expressions of lived experiences facing disabled people, their families, and allies across the globe from a social, human rights, and/or disability justice perspective. The articles comprising this issue include an explicit recognition and discussion of intertwined and socially constructed identities, labels, power, and privilege as explicated by pioneering Black feminists who introduced the concept of intersectionality. Taken together, the articles within this issue identify and articulate the powerful ideological forces and subsequent policies and practices working against transformational action. As such, we are not calling for the inclusion of disabled people into society as it is today—wrought with social, economic, and environmental crises. Rather, we seek a transformation of the status quo whereby disabled people are respected as an inherent part of human diversity with gifts and worthiness untangled from a capitalist and colonial system of exploitation, extraction, and oppression. This means that achieving social justice and inclusion requires radically reordering our economic and political systems. This thematic issue illuminates the impacts and root causes of exclusion to foment critical thinking about the possibilities for social inclusion from the perspective of those who are marginalized by the status quo.
{"title":"Disabled People and the Intersectional Nature of Social Inclusion","authors":"Alexis Buettgen, Fernando Fontes, Susan Eriksson","doi":"10.17645/si.v11i4.7798","DOIUrl":"https://doi.org/10.17645/si.v11i4.7798","url":null,"abstract":"This editorial introduces a thematic issue of Social Inclusion focusing on disabled people and the intersectional nature of social inclusion. This thematic issue includes transnational and transdisciplinary studies and expressions of lived experiences facing disabled people, their families, and allies across the globe from a social, human rights, and/or disability justice perspective. The articles comprising this issue include an explicit recognition and discussion of intertwined and socially constructed identities, labels, power, and privilege as explicated by pioneering Black feminists who introduced the concept of intersectionality. Taken together, the articles within this issue identify and articulate the powerful ideological forces and subsequent policies and practices working against transformational action. As such, we are not calling for the inclusion of disabled people into society as it is today—wrought with social, economic, and environmental crises. Rather, we seek a transformation of the status quo whereby disabled people are respected as an inherent part of human diversity with gifts and worthiness untangled from a capitalist and colonial system of exploitation, extraction, and oppression. This means that achieving social justice and inclusion requires radically reordering our economic and political systems. This thematic issue illuminates the impacts and root causes of exclusion to foment critical thinking about the possibilities for social inclusion from the perspective of those who are marginalized by the status quo.","PeriodicalId":37948,"journal":{"name":"Social Inclusion","volume":"41 6","pages":""},"PeriodicalIF":1.5,"publicationDate":"2023-12-05","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"138600789","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"社会学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
The spread of digital communication in the employee–supervisor exchange relation has increased the risks of blurred boundaries between life domains and, subsequently, the need for work–life supportive supervisor behaviors (WLSSB). However, media richness and social presence theory indicate that WLSSB is simultaneously at risk because close bonds with supervisors are more difficult to develop and challenges in integrating work and personal life are more difficult to be signaled and understood. Following social network theory in the argument that it is not only the characteristic of the medium that is of importance but also the social embeddedness of its use, this research asks to what extent the association of digital communication with one’s supervisor and perceived WLSSB is context‐dependent. The overall results based on the European Social Survey (round 10) reveal that in‐person communication is more strongly associated with WLSSB than digital communication. However, more nuanced investigations suggest that this is not necessarily driven by the richness of the mode of communication. We find that the meaning of digital communication with one’s supervisor gains importance in size and significance (a) where it complements seldom in‐person communication, (b) where the organizational norm of high work devotion is weak, and (c) where work–life supportive state policies are pronounced. We conclude that the implications of digital communication for WLSSB are dependent on the centrality of digital communication in opportunities for the exchange of WLSSB and dependent on supervisors’ interest and agency to enact WLSSB in digital work communication.
{"title":"Digital Communication and Work–Life Supportive Supervisor Behaviors in Europe","authors":"Anja‐Kristin Abendroth, Antje Schwarz","doi":"10.17645/si.v11i4.7084","DOIUrl":"https://doi.org/10.17645/si.v11i4.7084","url":null,"abstract":"The spread of digital communication in the employee–supervisor exchange relation has increased the risks of blurred boundaries between life domains and, subsequently, the need for work–life supportive supervisor behaviors (WLSSB). However, media richness and social presence theory indicate that WLSSB is simultaneously at risk because close bonds with supervisors are more difficult to develop and challenges in integrating work and personal life are more difficult to be signaled and understood. Following social network theory in the argument that it is not only the characteristic of the medium that is of importance but also the social embeddedness of its use, this research asks to what extent the association of digital communication with one’s supervisor and perceived WLSSB is context‐dependent. The overall results based on the European Social Survey (round 10) reveal that in‐person communication is more strongly associated with WLSSB than digital communication. However, more nuanced investigations suggest that this is not necessarily driven by the richness of the mode of communication. We find that the meaning of digital communication with one’s supervisor gains importance in size and significance (a) where it complements seldom in‐person communication, (b) where the organizational norm of high work devotion is weak, and (c) where work–life supportive state policies are pronounced. We conclude that the implications of digital communication for WLSSB are dependent on the centrality of digital communication in opportunities for the exchange of WLSSB and dependent on supervisors’ interest and agency to enact WLSSB in digital work communication.","PeriodicalId":37948,"journal":{"name":"Social Inclusion","volume":"13 4","pages":""},"PeriodicalIF":1.5,"publicationDate":"2023-11-15","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139274485","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"社会学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Digitalisation has a wide range of impacts on the workplace, such as enabling new work models with flexible work schedules, changing work content, or increasing workplace control. These changes directly affect not only individuals’ work but also their private lives. Scholars theorise that digitalisation either enables or impedes workers’ ability to maximise their work–life balance, which in turn fosters or inhibits the social inclusion of some societal groups and reduces or reproduces social inequalities. Focusing on the German healthcare sector, I explore the impact of using networked digital technologies on work–life balance, and whether it influences gender and educational inequalities. Pressured by government, economic concerns, and medical innovation, this sector is undergoing a transformation process that is expediting the introduction of new networked digital technologies. Thus, it provides an ideal setting for empirical investigation, as one core assumption about digitalisation is that technological innovation at work has societal consequences that must be individually mastered. To assess the relationship between digitalisation and work–life balance, I use survey data from hospital employees on the use of networked digital technologies and individual outcomes. The research is designed as a natural experiment. The treatment group comprises employees at a university hospital equipped with cutting‐edge networked digital technologies (N = 1,117); the control group comprises employees at several church‐owned hospitals (N = 415) with a level of digitalisation corresponding to the average for the sector. I first discuss confounders and then employ quantitative methods to establish a link between digitalisation and work–life balance, assess its direction, and address gender and educational inequalities.
{"title":"Digitalisation as a Prospect for Work–Life Balance and Inclusion: A Natural Experiment in German Hospitals","authors":"Sebastian Schongen","doi":"10.17645/si.v11i4.7117","DOIUrl":"https://doi.org/10.17645/si.v11i4.7117","url":null,"abstract":"Digitalisation has a wide range of impacts on the workplace, such as enabling new work models with flexible work schedules, changing work content, or increasing workplace control. These changes directly affect not only individuals’ work but also their private lives. Scholars theorise that digitalisation either enables or impedes workers’ ability to maximise their work–life balance, which in turn fosters or inhibits the social inclusion of some societal groups and reduces or reproduces social inequalities. Focusing on the German healthcare sector, I explore the impact of using networked digital technologies on work–life balance, and whether it influences gender and educational inequalities. Pressured by government, economic concerns, and medical innovation, this sector is undergoing a transformation process that is expediting the introduction of new networked digital technologies. Thus, it provides an ideal setting for empirical investigation, as one core assumption about digitalisation is that technological innovation at work has societal consequences that must be individually mastered. To assess the relationship between digitalisation and work–life balance, I use survey data from hospital employees on the use of networked digital technologies and individual outcomes. The research is designed as a natural experiment. The treatment group comprises employees at a university hospital equipped with cutting‐edge networked digital technologies (N = 1,117); the control group comprises employees at several church‐owned hospitals (N = 415) with a level of digitalisation corresponding to the average for the sector. I first discuss confounders and then employ quantitative methods to establish a link between digitalisation and work–life balance, assess its direction, and address gender and educational inequalities.","PeriodicalId":37948,"journal":{"name":"Social Inclusion","volume":"116 1","pages":""},"PeriodicalIF":1.5,"publicationDate":"2023-11-15","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139274109","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"社会学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Primary health services are subjected to intensified digitalisation to transform care provision. Various smart and assistive technologies are introduced to support the growing elderly population and enhance the opportunities for independent living among patients in need of continuous care. Research has shown how such digitalisation processes evolve at the intersection of different and often competing discourses, oriented towards service efficiency, cost containment, technological innovation, client‐centred care, and digital competence development. Often, increased technology use is presented as a solution to pressing problems. However, how discourses are negotiated in work contexts and their mechanisms of social inclusion/exclusion in evolving work practices have received less attention. This article examines how care workers in the primary health sector are discursively positioned when care technologies are introduced in the services. We employ a perspective on discourses and subject positions in analysing strategic documents and interviews with care workers in a large Norwegian city. We show how managerial discourses that focus narrowly on the implementation and mastery of single technologies provide limited spaces for workers to exert influence on their work situations, while discourses that emphasise professional knowledge or broader technological and organisational aspects provide a variety of resources for workers’ agency. The way care workers adopt and negotiate subject positions varies based on their tasks and responsibilities in the organisation. We discuss the need to move beyond “solutionism” in efforts to digitalise care work in order to provide inclusive spaces supporting the contributions of various worker groups.
{"title":"Discourses of Digitalisation and the Positioning of Workers in Primary Care: A Norwegian Case Study","authors":"Monika Nerland, Mervi Hasu, M. Grisot","doi":"10.17645/si.v11i4.7121","DOIUrl":"https://doi.org/10.17645/si.v11i4.7121","url":null,"abstract":"Primary health services are subjected to intensified digitalisation to transform care provision. Various smart and assistive technologies are introduced to support the growing elderly population and enhance the opportunities for independent living among patients in need of continuous care. Research has shown how such digitalisation processes evolve at the intersection of different and often competing discourses, oriented towards service efficiency, cost containment, technological innovation, client‐centred care, and digital competence development. Often, increased technology use is presented as a solution to pressing problems. However, how discourses are negotiated in work contexts and their mechanisms of social inclusion/exclusion in evolving work practices have received less attention. This article examines how care workers in the primary health sector are discursively positioned when care technologies are introduced in the services. We employ a perspective on discourses and subject positions in analysing strategic documents and interviews with care workers in a large Norwegian city. We show how managerial discourses that focus narrowly on the implementation and mastery of single technologies provide limited spaces for workers to exert influence on their work situations, while discourses that emphasise professional knowledge or broader technological and organisational aspects provide a variety of resources for workers’ agency. The way care workers adopt and negotiate subject positions varies based on their tasks and responsibilities in the organisation. We discuss the need to move beyond “solutionism” in efforts to digitalise care work in order to provide inclusive spaces supporting the contributions of various worker groups.","PeriodicalId":37948,"journal":{"name":"Social Inclusion","volume":"26 2","pages":""},"PeriodicalIF":1.5,"publicationDate":"2023-11-15","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139273660","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"社会学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Digitalization is engendering profound societal transformation that is significantly restructuring our working lives. For society, and the world of work in particular, digitalization presents a major challenge, as the digital transformation of work does not simply relate to technological innovation; rather, it involves a complex sociotechnical process that is socially prepared, technically enabled, and discursively negotiated, and that ultimately must be individually mastered. As a result, the ongoing digitalization of “working worlds” is characterized by multiple dimensions and processes that evolve and proceed unevenly. These processes interact in complex ways, not uncommonly contradicting each other. Against this background, this thematic issue explores some of the implications and dynamics of the digital transformation of work concerning social inclusion.
{"title":"Digitalization of Working Worlds and Social Inclusion","authors":"Alice Melchior, Simone Haasler","doi":"10.17645/si.v11i4.7686","DOIUrl":"https://doi.org/10.17645/si.v11i4.7686","url":null,"abstract":"Digitalization is engendering profound societal transformation that is significantly restructuring our working lives. For society, and the world of work in particular, digitalization presents a major challenge, as the digital transformation of work does not simply relate to technological innovation; rather, it involves a complex sociotechnical process that is socially prepared, technically enabled, and discursively negotiated, and that ultimately must be individually mastered. As a result, the ongoing digitalization of “working worlds” is characterized by multiple dimensions and processes that evolve and proceed unevenly. These processes interact in complex ways, not uncommonly contradicting each other. Against this background, this thematic issue explores some of the implications and dynamics of the digital transformation of work concerning social inclusion.","PeriodicalId":37948,"journal":{"name":"Social Inclusion","volume":"34 6","pages":""},"PeriodicalIF":1.5,"publicationDate":"2023-11-15","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139274246","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"社会学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Information and communication technologies (ICTs) promote flexible forms of work. Based on analyses of data from the German BIBB/BAuA Employment Survey 2018, this article shows that ICT (computer/internet) use is associated with both overtime and better temporal alignment of work and private life. Additional analyses show that these associations differ by gender and parenthood. Especially if also working from home, men with and without children do more overtime when they use ICTs than women with and without children. Better temporal alignment is found only among men without children who use ICTs and work from home compared to women without children.
{"title":"Work‐Related ICT Use and the Dissolution of Boundaries Between Work and Private Life","authors":"Ines Entgelmeier, Timothy Rinke","doi":"10.17645/si.v11i4.7128","DOIUrl":"https://doi.org/10.17645/si.v11i4.7128","url":null,"abstract":"Information and communication technologies (ICTs) promote flexible forms of work. Based on analyses of data from the German BIBB/BAuA Employment Survey 2018, this article shows that ICT (computer/internet) use is associated with both overtime and better temporal alignment of work and private life. Additional analyses show that these associations differ by gender and parenthood. Especially if also working from home, men with and without children do more overtime when they use ICTs than women with and without children. Better temporal alignment is found only among men without children who use ICTs and work from home compared to women without children.","PeriodicalId":37948,"journal":{"name":"Social Inclusion","volume":"12 3","pages":""},"PeriodicalIF":1.5,"publicationDate":"2023-11-15","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139273701","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"社会学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Lénia Carvalhais, Ana Rita Fernandes, Lígia Almeida
Person‐centred planning includes the active social participation of individuals with intellectual and developmental disabilities (IDD) and is the fairest path towards assuring human rights and citizenship among people with IDD. Semi‐structured interviews were undertaken with four technicians from centres of activities in Portugal, four family members, and four adults with IDD to observe the best practices that facilitate/hinder the implementation of person‐centred interventions. Several discrepancies were identified regarding inclusive practices in centres of activities and capacity building, associated with the sense of mission, vision and perspective of technical structures, the bureaucratic weight that conditions the transition between intervention models, the participation and positioning of families regarding their representation of the centres, as well as the investment these centres make concerning effective and fair inclusion in surrounding communities. Still far from successful implementation, a person‐centred approach must be considered and include all participants’ perspectives to build robust and integral life projects.
{"title":"Person‐Centred Planning in Centres of Activities for Inclusion","authors":"Lénia Carvalhais, Ana Rita Fernandes, Lígia Almeida","doi":"10.17645/si.v11i4.7068","DOIUrl":"https://doi.org/10.17645/si.v11i4.7068","url":null,"abstract":"Person‐centred planning includes the active social participation of individuals with intellectual and developmental disabilities (IDD) and is the fairest path towards assuring human rights and citizenship among people with IDD. Semi‐structured interviews were undertaken with four technicians from centres of activities in Portugal, four family members, and four adults with IDD to observe the best practices that facilitate/hinder the implementation of person‐centred interventions. Several discrepancies were identified regarding inclusive practices in centres of activities and capacity building, associated with the sense of mission, vision and perspective of technical structures, the bureaucratic weight that conditions the transition between intervention models, the participation and positioning of families regarding their representation of the centres, as well as the investment these centres make concerning effective and fair inclusion in surrounding communities. Still far from successful implementation, a person‐centred approach must be considered and include all participants’ perspectives to build robust and integral life projects.","PeriodicalId":37948,"journal":{"name":"Social Inclusion","volume":"92 2","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2023-11-08","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"135341833","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"社会学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Halin ai centres the lived experiences of climate change and disasters of people living with disabilities in two urban sites in Indonesia—Banjarmasin in South Kalimantan and Mataram in West Nusa Tenggara. We call for an intersectional and decolonial approach to better understand how disabilities intersect with social and structural injustices in urban settings to shape diverse responses to climate change and disasters. We highlight the economic, socio‐cultural, and embodied challenges that increase vulnerability to—and ability to recover from—disasters including urban flooding and earthquakes. We draw on ethnographic and visual data from our research, including a comic illustrated by Ariel and Zaldi and sketches by Rizaldi, to centre diverse lived experiences of structural vulnerabilities and socio‐cultural marginalisation, particularly concerning education and livelihoods. Foregrounding life stories in this way serves to challenge the absence of meaningful engagement of people with disabilities in disaster risk reduction and climate change actions and decision‐making. Our article highlights disability as a site of both discrimination and critical embodied knowledge, simultaneously a product of structural, socio‐cultural, political, and environmental injustice while also a source of innovation, resilience, and agency.
{"title":"Halin ai: Intersectional Experiences of Disability, Climate Change, and Disasters in Indonesia","authors":"Desy Ayu Pirmasari, Katie McQuaid","doi":"10.17645/si.v11i4.7105","DOIUrl":"https://doi.org/10.17645/si.v11i4.7105","url":null,"abstract":"<em>Halin ai</em> centres the lived experiences of climate change and disasters of people living with disabilities in two urban sites in Indonesia—Banjarmasin in South Kalimantan and Mataram in West Nusa Tenggara. We call for an intersectional and decolonial approach to better understand how disabilities intersect with social and structural injustices in urban settings to shape diverse responses to climate change and disasters. We highlight the economic, socio‐cultural, and embodied challenges that increase vulnerability to—and ability to recover from—disasters including urban flooding and earthquakes. We draw on ethnographic and visual data from our research, including a comic illustrated by Ariel and Zaldi and sketches by Rizaldi, to centre diverse lived experiences of structural vulnerabilities and socio‐cultural marginalisation, particularly concerning education and livelihoods. Foregrounding life stories in this way serves to challenge the absence of meaningful engagement of people with disabilities in disaster risk reduction and climate change actions and decision‐making. Our article highlights disability as a site of both discrimination and critical embodied knowledge, simultaneously a product of structural, socio‐cultural, political, and environmental injustice while also a source of innovation, resilience, and agency.","PeriodicalId":37948,"journal":{"name":"Social Inclusion","volume":"85 s375","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2023-11-08","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"135341839","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"社会学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
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