Alter-European Journal of Disability Research最新文献

In this methodology article, the authors illustrate how they conducted multilingual qualitative research in an exploration of the barriers that Deaf people in Northern Ireland face when attempting to access the system of justice. The authors’ research practices are informed, to the extent possible, by the principles of community-based participatory research (CBPR). They explore the challenges of conducting research in American Sign Language (ASL), British Sign Language (BSL), and Irish Sign Language (ISL), and spoken English, facilitated by sign language interpreters fluent in BSL and ISL. Centering the research on the lived experiences of Deaf people who navigate the system of justice, the authors implemented CBPR-informed research methods, which ultimately led to sustained discussion and joint action by the authors and members of the Northern Ireland Deaf community aimed at the removal of barriers that Deaf people face when interacting with the justice system. By writing about their methodological approach in Northern Ireland, the authors wish to be transparent about their work in the hope that other researchers can replicate their successes and avoid the limitations of conducting this work in partnership with members of the Deaf community in other countries.

The National Association of Disabled Staff Networks (NADSN) is a super-network that connects and represents disabled staff networks at organisations across the United Kingdom. NADSN has been very concerned about the development of national policy up to this time and for moving out of the COVID-19 lockdown stage as national policy has been silent in relation to disabled staff apart from in presenting a narrow, medicalised view. We have structured this paper within a social model of disability and the sentiments expressed in the UN Convention of the Rights of People with Disabilities (CRPD) in considering the current issues and setting out our 12 recommendations. This paper discusses NADSN's observations about the lived experiences of Disabled people during COVID-19. Secondly, it moves to outline COVID-19 and the changing workplace. The paper then moves to a broad discussion concerning safe working practices and policies as we move out of lockdown and beyond.

The inclusive society we live in promotes familial and extra-familial relationships for disabled people. The purpose of this research was to understand how adults with intellectual disability (ID) live with their families as well as with extra-familial peers and to identify their subjective and emotional experiences. Using an interdisciplinary approach including clinical psychology along with sociology – for the networks study – and philosophy – capabilities perspective, 23 adults ID were encountered for this qualitative research. Each of them were met three times to discuss about relationships with their peers: 1/ during a semi-directive interview; 2/ with the Family Apperception Test (Sotile et al., 1988); 3/ with a sociogram. For this research, each tool was adapted in order to support the adults ID's participation. Two structures were identified and seem to be impacted by the sibling bonds; the schooling career; the subjectivation of the disability. Analysis highlighted the importance of paying attention to the relationships with peers, since childhood to adulthood, by involving families and institutions.

The aim of this paper is to determine what a philosophical approach, the one that Jacques Derrida uses on blindness in his Memoirs of the Blind, can bring to Cultural Disability Studies. Using some of the paintings and drawings reproduced in this 1990 work, the present study first intends to show that, for Derrida, it is a particular way of considering the mutism of visual art works that leads to seeing or imagining, in those that show blind people, representations of blindness that have in common to make it a powerlessness. This paper then analyses how, for the philosopher, these same works can be approached by virtue of a second way of considering their mutism, and thus read as giving rise to the idea of a completely different kind of blindness, understood this time as a power that is highly resistant to the narratives that, in history, have made it an powerlessness. Finally, he proposes to complement this way of reading pictorial images of blindness with Stiker's theorized “Reversal scheme” and the “neo-historicism” applied by Snyder and Mitchell to artistic representations of disability.

A review on the educational experience of students with disabilities, based on qualitative and quantitative surveys, questions the stated objectives of inclusive education policies. These studies show a more favourable experience in the specialized classe, due to a deteriorated relationship to schooling in the regular classroom and a sense of isolation and incompetence developed faced of difficulties. Research conducted in a bilingual French sign language-French written device, in secondary school with deaf and hearing students schooled together in the regular classroom, suggests other stories. The way in which school and teaching situations are conducted within this aid system, engages these students in a rewarding and capaciting experience, to be a recognized student in the classroom and among peers. Learning French sign language, the work of translators at the linguistic as well as pedagogical and educational level, the supporting role of auxiliary teaching systems, participate in the process of accessing school situations, especially to educational accessibility, thus providing students with a space of opportunity to attend school.

In this article, we present findings from a participatory action research program in France on the exercise of human rights and supported and substitute decision-making, inspired by the United Nations Convention on the Rights of Persons with Disabilities (“CRPD”). Bringing together persons with the lived experience of disability, academics, and health and social care and support professionals, the project used the method of “experience-based construction of public problem” to transform experience into collective expertise. This enabled the exploration of support that persons in vulnerable situations, whose capacity to exercise their human rights has weakened, need to make decisions in their lives and participate meaningfully in public debate. The relationship between the awareness of rights and exercise of rights is discussed. We argue for the need to balance out the positions of different contributors in participatory action research, in a reasoned manner, by recognizing the scientific and citizen-based participation of all partners.