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Access to Justice: The Quest for a Right of Appeal in New Zealand's Health and Disability Commissioner Complaints Scheme. 诉诸司法:新西兰卫生和残疾事务专员投诉计划中上诉权的寻求》。
Q2 LAW Pub Date : 2023-12-01
Joanna Manning

Given the absence of a civil damages action for personal injury in New Zealand, its Health and Disability Commissioner's (HDC) complaints process occupies a pivotal role in its medico-legal arrangements. Much hope was invested in it, but as currently configured, the regime is incapable of delivering justice or fulfilling its legislative purpose in a good number of cases. Many hundreds of complaints per annum, in which there is a strongly arguable case of deficient conduct or more than a mild departure from acceptable standards and in which a serious outcome has resulted, are not fully investigated; and there is no mechanism to appeal an adverse HDC decision that a party considers substantively unfair. Recent criticism of these issues by courts, the Chief Ombudsman, and commentators has mounted, and a petition to Parliament seeking legislative reform to create a right to appeal from adverse HDC decisions resulted in referral of the issue to the Commissioner to consider in an upcoming review, but hoped-for reform will not happen quickly.

由于新西兰没有针对人身伤害的民事损害赔偿诉讼,其健康与残疾事务专员的投诉程序在其医疗法律安排中占据着举足轻重的地位。人们曾对其寄予厚望,但从目前的配置来看,该制度在许多案件中无法伸张正义或实现其立法目的。每年都有数以百计的投诉没有得到充分调查,而在这些投诉中,有充分理由证明存在行为缺陷或轻微偏离了可接受的标准,并导致了严重的结果。最近,法院、首席申诉专员和评论员对这些问题提出了越来越多的批评,有人向议会提出请愿,要求进行立法改革,以建立对住房与发展委员会的不利决定提出上诉的权利。
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引用次数: 0
Key Informant Perspectives on Barriers to Advance Personal Planning: Results from a Qualitative Interview Study. 关键信息提供者对预先个人规划障碍的看法:定性访谈研究的结果。
Q2 LAW Pub Date : 2023-12-01
Briony Johnston, Nola M Ries, Amy Waller

Advance Care Planning (ACP) relates to the process of thinking about, discussing, and potentially documenting future wishes and preferences relating to personal and health matters. Existing literature has explored ACP from the perspective of health care professionals and older people. However, data exploring the broader process of Advance Personal Planning (APP), which also accounts for plans relating to legal and financial matters, are limited. This article reports on an interview study that explored barriers to APP engagement, factors influencing the quality and future use of instruments, and opportunities for improving APP processes for older adults from the perspectives of key informants working in the fields of law, health, and aged care. Data were coded in NVivo and analysed thematically. Opportunities for improvement include education, normalising conversations, integration into usual practice, and reform. Recommendations are made at professional, community, and structural levels, with the aim of improving APP outcomes for all involved.

预先护理规划(Advance Care Planning,ACP)是指对未来与个人和健康事务相关的愿望和偏好进行思考、讨论和记录的过程。现有文献从医疗保健专业人员和老年人的角度对 ACP 进行了探讨。然而,探讨更广泛的 "预先个人规划"(Advance Personal Planning,APP)过程的数据却很有限。本文报告了一项访谈研究,该研究从法律、健康和老年护理领域的主要信息提供者的角度,探讨了参与 APP 的障碍、影响工具质量和未来使用的因素,以及改进老年人 APP 流程的机会。数据由 NVivo 进行编码,并按主题进行分析。改进的机会包括教育、对话正常化、融入常规实践以及改革。在专业、社区和结构层面提出了建议,旨在为所有相关人员改善 APP 成果。
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引用次数: 0
Interdisciplinary Collaboration in the Mental Health Sector: Legislating the Victorian Collaborative Centre for Mental Health and Wellbeing. 心理健康部门的跨学科合作:维多利亚州心理健康与幸福合作中心的立法。
Q2 LAW Pub Date : 2023-12-01
Bernadette McSherry

This column explores how the law might support interdisciplinary collaboration in research and practice in the mental health sector. It provides an overview of the Victorian Collaborative Centre for Mental Health and Wellbeing which was established by statute to support collaboration across multiple disciplines and services for the benefit of mental health consumers. It suggests that interdisciplinary collaboration, which has the lived experience and knowledge of mental health consumers at its heart, has the potential for transformative and beneficial systemic change.

本专栏探讨法律如何支持心理健康领域研究与实践的跨学科合作。它概述了维多利亚州心理健康与福祉合作中心(Victorian Collaborative Centre for Mental Health and Wellbeing)的情况,该中心是根据法律成立的,旨在支持跨学科合作和服务,以造福于心理健康消费者。它表明,以心理健康消费者的生活经验和知识为核心的跨学科合作有可能带来变革性的、有益的系统性变化。
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引用次数: 0
Legislating the Cause of Death: "What's in a Name …". 死因立法:"名字里有什么......"。
Q2 LAW Pub Date : 2023-12-01
David Ranson

In recent years legal rules to regulate causes of death have begun to appear. One example of this relates to the term "excited delirium" which has been subject to challenge by medical and legal professionals. Human rights activists have pushed against its usage by law enforcement and medical death investigators. The passing of the California Assembly Bill 360 restricting the use of the term is an example of this. Legislatively mandating, or banning causes of death poses an interesting challenge for death investigators. The lack of uniform guidance on how deaths should be classified across different jurisdictions and the variations in linguistic and causation-based language in cause of death statements may have influenced this development. Legislation that seeks to enforce ways of documenting the cause of a death, which is in effect an expert medical opinion, presents significant future challenges in expert testimony.

近年来,规范死亡原因的法律规则开始出现。其中一个例子与 "兴奋性谵妄 "一词有关,该词一直受到医学和法律专业人士的质疑。人权活动家反对执法部门和医学死亡调查人员使用该术语。加利福尼亚州议会通过的限制使用该术语的第 360 号法案就是一个例子。立法规定或禁止死因给死亡调查人员带来了有趣的挑战。不同司法管辖区在如何对死亡进行分类方面缺乏统一指导,死因声明中的语言和基于因果关系的语言也各不相同,这些都可能影响了这一发展。立法试图强制执行记录死因的方式,这实际上是一种专家医学意见,为专家证词带来了重大的未来挑战。
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引用次数: 0
"Missing Persons": Absent Voices of People with Dementia in the Australian Royal Commission into Aged Care. "失踪人员":澳大利亚皇家老年护理委员会中失智症患者缺席的声音。
Q2 LAW Pub Date : 2023-12-01
Kristina Chelberg, Kate Swaffer

This article argues the voice of people with dementia was missing from the Australian Royal Commission into Aged Care Quality and Safety (RCAC) Final Report. This absence was notwithstanding that the RCAC was explicitly tasked to inquire into dementia care. The RCAC Final Report is shown to marginalise the perspective and experience of people with dementia in the aged care system at the same time as prioritising substitute voices of experts, advocates, family and care partners. This absence of voice repeats and re-inscribes framing of people with dementia as "missing persons". Where people with dementia face practical and legal barriers to participate in civic and legal processes, the RCAC failed to adjust its methodologies to ensure their voices were "heard". The RCAC's re-inscription of marginalisation of people with dementia raises concerns for the legitimacy and success of its recommendations for dementia aged care reform.

本文认为,《澳大利亚皇家老年护理质量与安全委员会(RCAC)最终报告》中缺少痴呆症患者的声音。尽管皇家老年护理质量与安全委员会的明确任务是调查痴呆症护理问题,但报告中却没有提及痴呆症患者的声音。事实表明,皇家委员会的《最终报告》将老年护理系统中痴呆症患者的观点和经历边缘化,同时优先考虑专家、倡导者、家人和护理合作伙伴的替代声音。这种声音的缺失重复并重新将痴呆症患者定格为 "失踪者"。当痴呆症患者在参与公民和法律程序时面临实际和法律障碍时,RCAC 未能调整其方法以确保他们的声音被 "听到"。RCAC 将痴呆症患者边缘化的做法令人担忧其提出的痴呆症老年护理改革建议的合法性和成功性。
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引用次数: 0
Between Public and Private: Electronic Health Record-sharing, Health Privacy Principles, and Hepatitis C. 公私之间:电子健康记录共享、健康隐私原则和丙型肝炎。
Q2 LAW Pub Date : 2023-12-01
Sean Mulcahy, Emily Lenton, Kate Seear, Kylie Valentine, Dion Kagan, Adrian Farrugia, Michael Edwards, Danny Jeffcote

People with (a history of) hepatitis C have concerns about privacy and the confidentiality of their health information. This is often due to the association between hepatitis C and injecting drug use and related stigma. In Australia, recent data breaches at a major private health insurer and legislative reforms to increase access to electronic health records have heightened these concerns. Drawing from interviews with people with lived experience of hepatitis C and stakeholders working in this area, this article explores the experiences and concerns of people with (a history of) hepatitis C in relation to the sharing of their health records. It considers the potential application of health privacy principles in the context of hepatitis C and argues for the development of guidelines concerning the privacy of health records held by health departments and public hospitals. Such principles might also inform reforms to legislation regarding access to health records.

丙型肝炎患者(有丙型肝炎病史)对其健康信息的隐私和保密性感到担忧。这通常是由于丙型肝炎与注射吸毒之间的联系以及相关的耻辱感造成的。在澳大利亚,一家大型私人医疗保险公司最近发生的数据泄露事件,以及为增加电子健康记录访问权限而进行的立法改革,都加剧了人们的这种担忧。本文通过对丙型肝炎患者和该领域利益相关者的访谈,探讨了丙型肝炎(病史)患者在共享健康记录方面的经历和担忧。文章考虑了健康隐私原则在丙型肝炎背景下的潜在应用,并主张制定有关卫生部门和公立医院所持健康记录隐私的指导方针。这些原则还可以为有关健康记录获取的立法改革提供参考。
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引用次数: 0
Personalising Social Ills: An Analysis of Race-based Genomics and Personalised Medicine. 社会疾病个性化:基于种族的基因组学和个性化医疗分析》。
Q2 LAW Pub Date : 2023-12-01
Josephine Y Lee

The mapping and sequencing of the human genome at the turn of the new millennium marks a pivotal reassessment of genomic science in its potential to replace traditional "one-size-fits-all" medicine with a personalised approach. The use of racial proxies in the development of pharmacogenomic products risks conflating genetics with race under the guise of alleviating health disparities. This article argues that the current genomic approaches to realising personalised medicine do not deliver on the promise for optimised health for all and may result in irreversible harm, including psychological, social and medical harm, to racial minority groups. In light of recent epigenetic findings, the article provides a reconceptualisation of the genome and race, which is necessary to understand enduring racial disparities and the cumulative effects of racial discrimination. It then addresses the need for regulatory oversight of the approval of race-based pharmacogenomic products.

新千年伊始,人类基因组的绘制和测序标志着对基因组科学进行了一次关键性的重新评估,因为它有可能以个性化的方法取代传统的 "一刀切 "医学。在开发药物基因组学产品时使用种族代用品,有可能在减轻健康差异的幌子下将遗传学与种族混为一谈。本文认为,目前实现个性化医疗的基因组学方法并没有兑现为所有人优化健康的承诺,可能会对少数种族群体造成不可逆转的伤害,包括心理、社会和医疗伤害。根据最近的表观遗传学研究结果,文章对基因组和种族进行了重新认识,这对于理解持久的种族差异和种族歧视的累积效应是必要的。然后,文章论述了对批准基于种族的药物基因组学产品进行监管的必要性。
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引用次数: 0
Comparing Voluntary Assisted Dying Laws in Victoria and Western Australia: Western Australian Stakeholders' Perspectives. 比较维多利亚州和西澳大利亚州的自愿协助死亡法:西澳大利亚利益相关者的观点。
Q2 LAW Pub Date : 2023-12-01
Casey M Haining, Lindy Willmott, Ben P White

In 2021, two years after voluntary assisted dying (VAD) laws commenced in Victoria, Western Australia (WA) was the second Australian jurisdiction to permit VAD. While the two regimes are broadly similar, key differences exist. This article reports on findings from a qualitative study of WA participants with VAD experience across four stakeholder groups (patients and families; health practitioners; regulators and VAD system personnel; and health and professional organisation representatives), focusing particularly on participants' reflections on aspects of the WA VAD regime which differs from that in Victoria and the practical implications of those differences. Globally, participants viewed VAD as operating smoothly in Western Australia and, despite identifying some areas for improvement, that WA's model was more functional and accessible than Victoria's. By comparing two different VAD models, this article's findings add to growing empirical evidence about VAD in Australia and can inform future VAD reforms and reviews.

2021 年,在维多利亚州开始实施自愿协助死亡(VAD)法律两年后,西澳大利亚州(WA)成为澳大利亚第二个允许自愿协助死亡的司法管辖区。虽然两地的制度大体相似,但也存在关键差异。本文报告了对西澳大利亚州四个利益相关群体(患者和家属、医疗从业人员、监管机构和自愿死亡评估系统人员、医疗和专业组织代表)中具有自愿死亡评估经验的参与者进行定性研究的结果,尤其侧重于参与者对西澳大利亚州自愿死亡评估制度与维多利亚州制度不同之处的反思,以及这些不同之处的实际影响。总体而言,与会者认为西澳大利亚州的 VAD 运行平稳,尽管也发现了一些需要改进的地方,但西澳大利亚州的模式比维多利亚州的模式更实用、更方便。通过比较两种不同的志愿援助和发展模式,本文的研究结果补充了澳大利亚志愿援助和发展方面越来越多的经验证据,并可为未来的志愿援助和发展改革及审查提供参考。
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引用次数: 0
Spit Hoods: Reforms to Law and Practice. 吐痰罩:法律和实践改革。
Q2 LAW Pub Date : 2023-12-01
Ian Freckelton

Spit hoods have been used for decades to reduce the ability of people to spit and bite police officers, corrective services officers, paramedics, doctors and nurses. However, historically and in public consciousness they have sinister resonances and often induce fear, panic and distress in persons to whom they are applied or in whose presence they are worn. Problematically frequently spit hoods have been used on detainees from ethnic minorities, including in Australia, on Indigenous persons, individuals with mental illnesses and children taken into custody. On a number of occasions spit hoods have been used with other forms of restraint and been associated with deaths in custody. This editorial reviews high profile cases internationally where spit hoods have played a role in precipitating deaths, important reports and reviews, including from coroners, ombudsmen and commissions of inquiry, into their abuse, and law reform in relation to spit hoods. It supports their abandonment and their replacement with other personal protective equipment options for maintaining custodians' and carers' occupational health and safety.

几十年来,吐痰头罩一直被用来减少人们吐痰和咬警察、惩教人员、医护人员、医生和护士的能力。然而,在历史上和公众意识中,吐痰头罩具有邪恶的共鸣,往往会引起被佩戴者或在场者的恐惧、惊慌和不安。有问题的是,吐痰头罩经常被用于少数民族被拘留者,包括澳大利亚的土著人、精神病患者和被拘留儿童。吐痰头罩曾多次与其他形式的束缚一起使用,并与羁押期间的死亡事件有关。这篇社论回顾了国际上因使用头罩导致死亡的重要案例、重要报告和审查(包括来自验尸官、监察员和调查委员会的报告和审查),以及与头罩有关的法律改革。本报告支持摒弃吐痰头罩,代之以其他个人防护设备,以维护看护人和护理人员的职业健康和安全。
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引用次数: 0
Lessons from Re Teo: Unconventional Practice and the National Law. Re Teo 案的教训:非常规做法与国家法律》。
Q2 LAW Pub Date : 2023-12-01
Cameron Stewart, Ian Freckelton

This section explores the decision of the New South Wales Professional Standards Committee, in Re Teo [2023] NSWMPSC 2. The case provides insights into how the Health Practitioner Regulation National Law Act 2009 (Qld) regulates practitioners who practise outside of conventional practice. The section compares the decision to similar cases and then concludes with a proposal that an express policy on unconventional practice is needed in Australia.

本节探讨了新南威尔士州专业标准委员会在 Re Teo [2023] NSWMPSC 2 一案中做出的裁决。 本案深入探讨了 2009 年《保健执业者监管国家法律法案》(昆士兰州)如何监管非传统执业的执业者。本节将该判决与类似案例进行了比较,最后提出澳大利亚需要一项关于非常规执业的明确政策。
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引用次数: 0
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Journal of Law and Medicine
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