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Personalising Social Ills: An Analysis of Race-based Genomics and Personalised Medicine. 社会疾病个性化:基于种族的基因组学和个性化医疗分析》。
Q2 LAW Pub Date : 2023-12-01
Josephine Y Lee

The mapping and sequencing of the human genome at the turn of the new millennium marks a pivotal reassessment of genomic science in its potential to replace traditional "one-size-fits-all" medicine with a personalised approach. The use of racial proxies in the development of pharmacogenomic products risks conflating genetics with race under the guise of alleviating health disparities. This article argues that the current genomic approaches to realising personalised medicine do not deliver on the promise for optimised health for all and may result in irreversible harm, including psychological, social and medical harm, to racial minority groups. In light of recent epigenetic findings, the article provides a reconceptualisation of the genome and race, which is necessary to understand enduring racial disparities and the cumulative effects of racial discrimination. It then addresses the need for regulatory oversight of the approval of race-based pharmacogenomic products.

新千年伊始,人类基因组的绘制和测序标志着对基因组科学进行了一次关键性的重新评估,因为它有可能以个性化的方法取代传统的 "一刀切 "医学。在开发药物基因组学产品时使用种族代用品,有可能在减轻健康差异的幌子下将遗传学与种族混为一谈。本文认为,目前实现个性化医疗的基因组学方法并没有兑现为所有人优化健康的承诺,可能会对少数种族群体造成不可逆转的伤害,包括心理、社会和医疗伤害。根据最近的表观遗传学研究结果,文章对基因组和种族进行了重新认识,这对于理解持久的种族差异和种族歧视的累积效应是必要的。然后,文章论述了对批准基于种族的药物基因组学产品进行监管的必要性。
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引用次数: 0
Comparing Voluntary Assisted Dying Laws in Victoria and Western Australia: Western Australian Stakeholders' Perspectives. 比较维多利亚州和西澳大利亚州的自愿协助死亡法:西澳大利亚利益相关者的观点。
Q2 LAW Pub Date : 2023-12-01
Casey M Haining, Lindy Willmott, Ben P White

In 2021, two years after voluntary assisted dying (VAD) laws commenced in Victoria, Western Australia (WA) was the second Australian jurisdiction to permit VAD. While the two regimes are broadly similar, key differences exist. This article reports on findings from a qualitative study of WA participants with VAD experience across four stakeholder groups (patients and families; health practitioners; regulators and VAD system personnel; and health and professional organisation representatives), focusing particularly on participants' reflections on aspects of the WA VAD regime which differs from that in Victoria and the practical implications of those differences. Globally, participants viewed VAD as operating smoothly in Western Australia and, despite identifying some areas for improvement, that WA's model was more functional and accessible than Victoria's. By comparing two different VAD models, this article's findings add to growing empirical evidence about VAD in Australia and can inform future VAD reforms and reviews.

2021 年,在维多利亚州开始实施自愿协助死亡(VAD)法律两年后,西澳大利亚州(WA)成为澳大利亚第二个允许自愿协助死亡的司法管辖区。虽然两地的制度大体相似,但也存在关键差异。本文报告了对西澳大利亚州四个利益相关群体(患者和家属、医疗从业人员、监管机构和自愿死亡评估系统人员、医疗和专业组织代表)中具有自愿死亡评估经验的参与者进行定性研究的结果,尤其侧重于参与者对西澳大利亚州自愿死亡评估制度与维多利亚州制度不同之处的反思,以及这些不同之处的实际影响。总体而言,与会者认为西澳大利亚州的 VAD 运行平稳,尽管也发现了一些需要改进的地方,但西澳大利亚州的模式比维多利亚州的模式更实用、更方便。通过比较两种不同的志愿援助和发展模式,本文的研究结果补充了澳大利亚志愿援助和发展方面越来越多的经验证据,并可为未来的志愿援助和发展改革及审查提供参考。
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引用次数: 0
Spit Hoods: Reforms to Law and Practice. 吐痰罩:法律和实践改革。
Q2 LAW Pub Date : 2023-12-01
Ian Freckelton

Spit hoods have been used for decades to reduce the ability of people to spit and bite police officers, corrective services officers, paramedics, doctors and nurses. However, historically and in public consciousness they have sinister resonances and often induce fear, panic and distress in persons to whom they are applied or in whose presence they are worn. Problematically frequently spit hoods have been used on detainees from ethnic minorities, including in Australia, on Indigenous persons, individuals with mental illnesses and children taken into custody. On a number of occasions spit hoods have been used with other forms of restraint and been associated with deaths in custody. This editorial reviews high profile cases internationally where spit hoods have played a role in precipitating deaths, important reports and reviews, including from coroners, ombudsmen and commissions of inquiry, into their abuse, and law reform in relation to spit hoods. It supports their abandonment and their replacement with other personal protective equipment options for maintaining custodians' and carers' occupational health and safety.

几十年来,吐痰头罩一直被用来减少人们吐痰和咬警察、惩教人员、医护人员、医生和护士的能力。然而,在历史上和公众意识中,吐痰头罩具有邪恶的共鸣,往往会引起被佩戴者或在场者的恐惧、惊慌和不安。有问题的是,吐痰头罩经常被用于少数民族被拘留者,包括澳大利亚的土著人、精神病患者和被拘留儿童。吐痰头罩曾多次与其他形式的束缚一起使用,并与羁押期间的死亡事件有关。这篇社论回顾了国际上因使用头罩导致死亡的重要案例、重要报告和审查(包括来自验尸官、监察员和调查委员会的报告和审查),以及与头罩有关的法律改革。本报告支持摒弃吐痰头罩,代之以其他个人防护设备,以维护看护人和护理人员的职业健康和安全。
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引用次数: 0
Lessons from Re Teo: Unconventional Practice and the National Law. Re Teo 案的教训:非常规做法与国家法律》。
Q2 LAW Pub Date : 2023-12-01
Cameron Stewart, Ian Freckelton

This section explores the decision of the New South Wales Professional Standards Committee, in Re Teo [2023] NSWMPSC 2. The case provides insights into how the Health Practitioner Regulation National Law Act 2009 (Qld) regulates practitioners who practise outside of conventional practice. The section compares the decision to similar cases and then concludes with a proposal that an express policy on unconventional practice is needed in Australia.

本节探讨了新南威尔士州专业标准委员会在 Re Teo [2023] NSWMPSC 2 一案中做出的裁决。 本案深入探讨了 2009 年《保健执业者监管国家法律法案》(昆士兰州)如何监管非传统执业的执业者。本节将该判决与类似案例进行了比较,最后提出澳大利亚需要一项关于非常规执业的明确政策。
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引用次数: 0
When Will Death Be? Legal Considerations and Regulatory Safeguards in Predictive Modelling Applications for End-of-Life Care. 何时死亡?临终关怀预测模型应用中的法律考虑因素和监管保障。
Q2 LAW Pub Date : 2023-12-01
Hui Yun Chan, Bernadette Richards

Advance care planning (ACP) is generally considered as valuable in guiding treatments that are aligned with patients' preferences. Despite its benefits, there are some practical and legal difficulties in its implementation. Predictive modelling is increasingly used in clinical decision-making, for example, in predicting patients' life expectancy, thus enabling clinicians to initiate timely ACP conversations. This development could transform the way end-of-life conversations are implemented. In this article we advocate for the use of predictive modelling in assisting clinicians to initiate ACP conversations provided several safeguards are in place to address ethical concerns that arise. Predictive modelling applications resolve several practical and legal difficulties in conducting end-of-life conversations. Ethical concerns such as explicability, accountability, trustworthiness and reliability of these models in clinical settings are important considerations. However, safeguards are needed to address these ethical concerns to ensure the models are appropriately supportive of patient needs and interests.

人们普遍认为,预先护理计划(ACP)在指导治疗方法与患者的偏好相一致方面很有价值。尽管它有很多好处,但在实施过程中也存在一些实际和法律上的困难。预测建模越来越多地应用于临床决策,例如预测患者的预期寿命,从而使临床医生能够及时启动 ACP 对话。这一发展可能会改变生命末期谈话的实施方式。在这篇文章中,我们主张使用预测建模来协助临床医生启动 ACP 对话,但前提是必须采取一些保障措施来解决出现的伦理问题。预测建模的应用解决了进行生命末期谈话时的一些实际和法律难题。这些模型在临床环境中的可解释性、责任性、可信性和可靠性等伦理问题都是重要的考虑因素。然而,需要采取保障措施来解决这些伦理问题,以确保这些模型能够适当地支持病人的需求和利益。
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引用次数: 0
Family Veto in Organ Donation. 器官捐赠中的家庭否决权。
Q2 LAW Pub Date : 2023-12-01
David Ernest

A current inconsistency in organ donation is the ability for a family to veto a valid consent for organ donation by a deceased individual; yet the family is unable to veto a valid refusal. Reasons proposed for accepting or rejecting family veto include concerns regarding distress (individual's family vs potential recipients), impact on organ donation rates, and regard for the deceased individual's autonomy. Advance care directives (ACDs) provide an ethical and legal framework for documenting medical treatment decisions which allow an individual to provide directives and to appoint a medical treatment decision-maker to act on their behalf. I argue that consent for organ donation as an ACD under the Medical Treatment Planning and Decisions Act 2016 (Vic) addresses the arguments in support of family veto. This may be an effective ethical and legal framework for managing family veto to meet the needs of the individual, family and community more effectively.

目前,器官捐献中的一个不一致之处是,家属可以否决已故者器官捐献的有效同意;但家属却不能否决有效的拒绝。接受或拒绝家属否决的理由包括对痛苦的担忧(个人家属与潜在接受者)、对器官捐献率的影响以及对死者自主权的考虑。预先护理指示(Advance Care Directives,ACD)为记录医疗决定提供了一个伦理和法律框架,允许个人提供指示,并指定一名医疗决策者代表他们行事。我认为,根据《2016 年医疗计划和决定法》(维多利亚州),器官捐赠同意书作为一种 ACD,解决了支持家庭否决权的论点。这可能是管理家庭否决权的有效伦理和法律框架,以更有效地满足个人、家庭和社区的需求。
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引用次数: 0
Conscientious Objection and Institutional Objection to Voluntary Assistance in Dying: An Ethico-legal Critique. 对临终自愿协助的良心反对和机构反对:伦理-法律批判》。
Q2 LAW Pub Date : 2023-12-01
Ian Kerridge, Cameron Stewart, Jackie Leach Scully, Mary Chiarella, Julie Hamblin, Adam Johnson, Christopher Ryan, Linda Sheahan, George Skowronski

This column examines conscientious objection and institutional objection in Australian voluntary assistance in dying. It reviews the current legislative regimes and then examines these practices from an ethical perspective, and raises particular concerns and suggestions with how conscientious objection and institutional objection should be operationalised.

本专栏探讨了澳大利亚自愿临终关怀中的良心反对和机构反对。它回顾了当前的立法制度,然后从伦理学的角度对这些做法进行了研究,并就如何实施良心反对和机构反对提出了特别关注的问题和建议。
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引用次数: 0
Artificial Intelligence in Medicine: Issues When Determining Negligence. 人工智能在医学中的应用:确定过失时的问题。
Q2 LAW Pub Date : 2023-12-01
Paul Nolan, Rita Matulionyte

The introduction of novel medical technology, such as artificial intelligence (AI), into traditional clinical practice presents legal liability challenges that need to be squarely addressed by litigants and courts when something goes wrong. Some of the most promising applications for the use of AI in medicine will lead to vexed liability questions. As AI in health care is in its relative infancy, there is a paucity of case law globally upon which to draw. This article analyses medical malpractice where AI is involved, what problems arise when applying the tort of negligence - such as establishing the essential elements of breach of duty of care and causation - and how can these can be addressed. Product liability under Australian Consumer Law is beyond the scope of this article. In order to address this question, the article: (1) identifies the general problems that black box AI causes in the health care sector; (2) identifies the problems that will arise in establishing breach and causation due to the "black box" nature of AI, with reference to the Civil Liability Act 2002 (NSW) and common law through two hypothetical examples; and (3) considers selected legal solutions to the problems caused by "black box" AI.

在传统临床实践中引入人工智能(AI)等新型医疗技术会带来法律责任方面的挑战,当出现问题时,诉讼当事人和法院需要正视这些挑战。人工智能在医疗领域的一些最有前景的应用将导致棘手的责任问题。由于人工智能在医疗领域的应用尚处于起步阶段,全球范围内可借鉴的判例法并不多。本文分析了涉及人工智能的医疗事故,在适用过失侵权时会出现哪些问题--例如确定违反护理责任和因果关系的基本要素--以及如何解决这些问题。澳大利亚消费者法》规定的产品责任不在本文讨论范围之内。为了解决这个问题,本文将(1)确定黑盒人工智能在医疗保健领域造成的一般问题;(2)参照《2002 年民事责任法》(新南威尔士州)和普通法,通过两个假设的例子,确定由于人工智能的 "黑盒 "性质而在确定违约和因果关系时会出现的问题;以及(3)考虑针对 "黑盒 "人工智能造成的问题所选择的法律解决方案。
{"title":"Artificial Intelligence in Medicine: Issues When Determining Negligence.","authors":"Paul Nolan, Rita Matulionyte","doi":"","DOIUrl":"","url":null,"abstract":"<p><p>The introduction of novel medical technology, such as artificial intelligence (AI), into traditional clinical practice presents legal liability challenges that need to be squarely addressed by litigants and courts when something goes wrong. Some of the most promising applications for the use of AI in medicine will lead to vexed liability questions. As AI in health care is in its relative infancy, there is a paucity of case law globally upon which to draw. This article analyses medical malpractice where AI is involved, what problems arise when applying the tort of negligence - such as establishing the essential elements of breach of duty of care and causation - and how can these can be addressed. Product liability under Australian Consumer Law is beyond the scope of this article. In order to address this question, the article: (1) identifies the general problems that black box AI causes in the health care sector; (2) identifies the problems that will arise in establishing breach and causation due to the \"black box\" nature of AI, with reference to the Civil Liability Act 2002 (NSW) and common law through two hypothetical examples; and (3) considers selected legal solutions to the problems caused by \"black box\" AI.</p>","PeriodicalId":45522,"journal":{"name":"Journal of Law and Medicine","volume":"30 3","pages":"593-615"},"PeriodicalIF":0.0,"publicationDate":"2023-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139708167","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Disability Law Reform in Australia: Principles, Pragmatism and Politics. 澳大利亚残疾法改革:原则、实用主义和政治。
Q2 LAW Pub Date : 2023-12-01
Ian Freckelton

This editorial reviews two landmark contributions to disability reform in Australia, both published in 2023 - the 12 volume report of the Royal Commission into Violence, Abuse, Neglect and Exploitation of People with Disability and the important Commonwealth Government of Australia report on the operation of the 10-year-old National Disability Insurance Scheme. It contends that each leaves Australia with major steps that need to be taken to enable persons with disability to live in a fairer, safer and more inclusive environment in which their human rights are genuinely respected. The reports contain many challenges where a balance needs to be orchestrated between implementation of principled reform and what is financially feasible. If Australia's governments are to adopt the recommendations in the reports, politics will need to be set aside and collaboration between Federal and State governments will be essential. Attitudes and practices will have to change in government and the general community, laws, protocols and even institutions will need to be reformed, accountability mechanisms will need to be tightened, and considerable sums of money will have to be spent.

这篇社论回顾了 2023 年出版的两份对澳大利亚残疾人改革具有里程碑意义的报告--皇家残疾人暴力、虐待、忽视和剥削问题委员会(Royal Commission into Violence, Abuse, Neglect and Exploitation of People with Disability)的 12 卷报告,以及澳大利亚联邦政府(Commonwealth Government of Australia)关于实施 10 年之久的国家残疾人保险计划(National Disability Insurance Scheme)的重要报告。报告认为,这两份报告都给澳大利亚留下了需要采取的重大措施,以使残疾人能够生活在一个更公平、更安全、更具包容性的环境中,使他们的人权得到真正的尊重。这些报告包含了许多挑战,需要在实施原则性改革与财政可行之间取得平衡。如果澳大利亚政府要采纳报告中的建议,就必须摒弃政治因素,联邦政府和州政府之间的合作至关重要。政府和社会各界的态度和做法必须改变,法律、协议甚至机构都必须改革,问责机制必须加强,还必须花费大量资金。
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引用次数: 0
Expert Evidence of "Risk Assessments" and the Preventive Detention of "Dangerous Prisoners". 风险评估 "和预防性拘留 "危险囚犯 "的专家证据。
Q2 LAW Pub Date : 2023-12-01
Russ Scott, Ian Coyle, Ian Freckelton

The Dangerous Prisoners (Sexual Offenders) Act 2003 (Qld) provides for the preventive detention of a prisoner if there is "acceptable, cogent evidence" to a "high degree of probability" that the prisoner is a "serious danger to the community" because of an "unacceptable risk" that the prisoner will commit a "serious sexual offence". In preventive detention cases courts rely on the expert opinion of psychiatrists and psychologists who often use actuarial risk assessment instruments. In Black v Attorney-General (Qld) [2022] QCA 253 the Queensland Court of Appeal considered a decision to detain an offender who had a history of possessing and trading child sexual exploitation material but who had not previously been proved to have committed a contact offence against a child. This article analyses the reasoning of the Court of Appeal and critically examines the reliability of probabilistic risk assessment tools and the validity of expert evidence about risk in the preventive detention context.

2003 年《危险囚犯(性罪犯)法》(昆士兰州)规定,如果有 "可接受的确凿证据 "证明囚犯 "极有可能 "因 "不可接受的风险 "而实施 "严重的性犯罪",从而 "对社区构成严重威胁",则可对囚犯实施预防性拘留。在预防性拘留案件中,法院依靠精神科医生和心理学家的专家意见,他们通常使用精算风险评估工具。在 Black 诉总检察长(昆士兰)[2022] QCA 253 一案中,昆士兰上诉法院审议了一项拘留罪犯的决定,该罪犯有持有和买卖儿童性剥削材料的前科,但此前未被证实对儿童实施过接触性犯罪。本文分析了上诉法院的推理,并批判性地研究了概率风险评估工具的可靠性以及预防性拘留情况下专家风险证据的有效性。
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引用次数: 0
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Journal of Law and Medicine
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