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Cervical Cancer Screening Uptake and Experiences of Black African Immigrant Women in Canada. 加拿大黑非洲移民妇女接受宫颈癌筛查的情况和经历。
IF 2.2 Q1 NURSING Pub Date : 2024-07-27 eCollection Date: 2024-01-01 DOI: 10.1177/23333936241266997
Abosede C Ojerinde, Sally E Thorne, A Fuchsia Howard, Arminee Kazanjian

Cervical cancer is one of the leading causes of cancer-related death among African women. Unfortunately, in most sub-Saharan African nations, women are vulnerable if they are unaware that cervical cancer is preventable with frequent screening and early treatment. The aim of this study was to examine Black African immigrant women's perceptions and experiences of cervical screening in British Columbia, Canada. Twenty Black African immigrant women were interviewed using the qualitative research method Interpretive Description. Data collection approaches included indepth interviews and analytic memos. Data were analyzed using a constant comparative technique guided by a socioecologic framework to capture subjective experiences and perceptions. Four key themes were identified, including confusing conceptualizations about cancer and cancer screening, competing priorities, concerns for modesty, and commitment to culture. The study findings point to the need for more active approaches to promoting cervical screening for this population.

宫颈癌是非洲妇女死于癌症的主要原因之一。不幸的是,在大多数撒哈拉以南非洲国家,如果妇女不知道宫颈癌是可以通过频繁筛查和早期治疗来预防的,那么她们就很容易受到伤害。本研究旨在考察加拿大不列颠哥伦比亚省黑非洲移民妇女对宫颈癌筛查的看法和经验。采用定性研究方法 "解释性描述 "对 20 名非洲黑人移民妇女进行了访谈。数据收集方法包括深入访谈和分析备忘录。在社会生态框架的指导下,采用恒定比较技术对数据进行分析,以捕捉主观体验和感知。确定了四个关键主题,包括关于癌症和癌症筛查的混乱概念、相互竞争的优先事项、对谦虚的关注以及对文化的承诺。研究结果表明,有必要采取更积极的方法来促进这一人群的宫颈筛查。
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引用次数: 0
Challenges Faced by Women With Neuromuscular Diseases When Having to Urinate Away From Home. 患有神经肌肉疾病的妇女离家小便时面临的挑战。
IF 2.2 Q1 NURSING Pub Date : 2024-06-24 eCollection Date: 2024-01-01 DOI: 10.1177/23333936241262445
Charlotte Handberg, Bente Kristensen, Bente Thoft Jensen, Sarah Glerup, Antoniett Vebel Pharao, Jeanette Strøm, Ulla Werlauff

The aim of this study was to investigate the challenges women with neuromuscular disease face when having to urinate when away from home. The design for this study was qualitative using the interpretive description methodology and the Sense of Coherence theory. The method was three semi-structured focus group interviews with 12 women (3 ambulant and 9 non-ambulant) with neuromuscular diseases at a specialized rehabilitation hospital. We found that physical and functional barriers hampered the opportunity to urinate when away from home due to lack of accessibility and impaired physical functioning. Psychosocial impacts were related to inconvenience and dependency on relatives, fear of stigmatization and impacted dignity, and the constant social sacrifices. The challenge of access to adequate and equitable sanitation for women with neuromuscular diseases is not at always met in society, and these women consequently often must resort to repressing the fundamental need to urinate.

本研究的目的是调查患有神经肌肉疾病的女性在离家小便时所面临的挑战。本研究采用解释性描述方法和 "连贯感 "理论进行定性研究。研究方法是对一家康复专科医院的 12 名神经肌肉疾病妇女(3 名行动自如者和 9 名非行动自如者)进行了三次半结构化焦点小组访谈。我们发现,由于交通不便和身体机能受损,物理和功能性障碍阻碍了外出排尿的机会。社会心理方面的影响则与不便和依赖亲属、害怕被人耻笑和尊严受损以及不断的社会牺牲有关。患有神经肌肉疾病的妇女在获得适当和公平的卫生设施方面所面临的挑战并非总能在社会上得到满足,因此,这些妇女往往不得不压抑小便的基本需求。
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引用次数: 0
Resilience in Relation to Adherence to Antiretroviral Therapy in People Living With HIV: A Qualitative Study. 艾滋病病毒感染者坚持抗逆转录病毒疗法的复原力:定性研究。
IF 1.7 Q1 NURSING Pub Date : 2024-04-24 eCollection Date: 2024-01-01 DOI: 10.1177/23333936241233449
Anggri Noorana Zahra, Agung Waluyo, Sri Yona, Trevino Aristarkus Pakasi

Antiretroviral therapy (ART) adherence significantly impacts the survival and quality of life of people living with HIV (PLWH). Despite the challenges faced by PLWH, adherence remains crucial. Thus, cultivating resilience in ART is essential for optimal treatment outcomes. This qualitative study explored the experience of resilience in relation to ART adherence among PLWH. Semi-structured interviews with 10 participants were conducted and inductively analyzed. Participants' resilience in ART adherence was reflected in their achievements related to cultivating the habit of taking medication and in their convictions that the medication was a daily necessity. PLWH developed resilience through strategies encompassing finding purpose through faith and motivation, fostering wellness by obtaining adequate information, enjoying life, managing disease therapy, and adopting a healthy lifestyle, and building connections by finding adequate support and involving in the community. Nurses are crucial in HIV management, fostering resilience for successful ART adherence and ensuring effective treatment outcomes.

坚持抗逆转录病毒疗法(ART)对艾滋病病毒感染者(PLWH)的生存和生活质量有着重要影响。尽管艾滋病病毒感染者面临各种挑战,但坚持治疗仍然至关重要。因此,在抗逆转录病毒疗法中培养抗逆力对于取得最佳治疗效果至关重要。本定性研究探讨了 PLWH 在坚持抗逆转录病毒疗法方面的抗逆力体验。研究人员对 10 名参与者进行了半结构式访谈,并对访谈结果进行了归纳分析。参与者在坚持抗逆转录病毒疗法方面的抗逆力体现在他们在培养服药习惯方面取得的成就,以及他们坚信药物是日常必需品的信念。PLWH 通过以下策略培养抗逆力:通过信念和动力找到目标;通过获取足够的信息、享受生活、管理疾病治疗和采取健康的生活方式来促进健康;通过寻找足够的支持和参与社区活动来建立联系。护士在艾滋病管理中至关重要,他们可以培养成功坚持抗逆转录病毒疗法的复原力,并确保有效的治疗效果。
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引用次数: 0
"There's Still Time to be Happy": The Life Trajectories of Portuguese Transgender Women Who Transitioned at 50+ Years. "还有时间快乐":葡萄牙 50 岁以上变性妇女的人生轨迹。
IF 1.7 Q1 NURSING Pub Date : 2024-04-18 eCollection Date: 2024-01-01 DOI: 10.1177/23333936241236292
Rita Carvalho, João Tavares, Tatiana Casado, Liliana Sousa, Sara Guerra

The process of transitioning involves making changes to align one's life with their authentic gender identity. This study explores the life trajectories of three Portuguese transgender women who transitioned later in life (50+ years old) by identifying key chapters in their life courses. Through inductive thematic analysis, six chapters were identified from the participants' interviews: (1) awareness of "something different in me," (2) locked into suffering, (3) finding comfort in something that is socially recognized, (4) "it is enough": it is time to recognize and embrace the woman I am, (5) living my life as a woman, and (6) building and leaving a legacy. Aging and the process of self-discovery played pivotal roles in participants' process of transitioning. The perception of finitude and the limitations associated with the time of life led them to realize that there was no time to waste and a sense of urgency to live authentically.

变性的过程包括做出改变,使自己的生活符合真实的性别身份。本研究通过确定三位葡萄牙变性女性人生历程中的关键章节,探索了她们晚年(50 岁以上)变性后的人生轨迹。通过归纳式主题分析,从参与者的访谈中确定了六个篇章:(1)意识到 "我与众不同";(2)陷入痛苦;(3)在社会认可的事物中寻找慰藉;(4)"够了":是时候承认并拥抱我是一个女人了;(5)作为一个女人生活;以及(6)建立并留下遗产。衰老和自我发现的过程在参与者的转变过程中起着至关重要的作用。对生命有限性的认识以及与生命时间相关的局限性使她们认识到没有时间可以浪费,并对真实地生活产生了紧迫感。
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引用次数: 0
Listening to the Voices of Mothers Who Participated in a Video Feedback Intervention for Postpartum Depression. 倾听参与产后抑郁症视频反馈干预的母亲的心声。
IF 1.7 Q1 NURSING Pub Date : 2024-04-15 eCollection Date: 2024-01-01 DOI: 10.1177/23333936241245588
Jennifer Bon Bernard, Nancy Moules, Suzanne Tough, Panagiota Tryphonopoulos, Nicole Letourneau

Postpartum depression (PPD) symptoms can negatively influence mother-infant interactions. Video-Feedback Interaction Guidance for Improving Interactions Between Depressed Mothers and their Infants (VID-KIDS) is a parenting intervention that allows mothers experiencing PPD symptoms to observe and improve their interactions with their infants. VID-KIDS has also positively influenced infants' stress (cortisol) patterns. There is limited research on maternal perspectives of interventions like VID-KIDS. In this hermeneutic study, four mothers were interviewed to increase understanding of the VID-KIDS experience. Key findings included: 1) VID-KIDS provided an opportunity for mothers with PPD symptoms to positively transform their identity; 2) VID-KIDS provided a chance to witness the mother-infant relationship forming and improve maternal mental health t, and; 3) VID-KIDS provided a space for mothers to dialogue about their experience with PPD symptoms authentically. VID-KIDS promoted healing from PPD as mothers experienced a transformation in how they perceived themselves and their relationships with their infants.

产后抑郁症(PPD)症状会对母婴互动产生负面影响。改善抑郁母亲与婴儿互动的视频反馈互动指导(VID-KIDS)是一种育儿干预措施,可让出现 PPD 症状的母亲观察并改善她们与婴儿的互动。VID-KIDS 还对婴儿的压力(皮质醇)模式产生了积极影响。关于母亲对 VID-KIDS 等干预措施的看法的研究十分有限。在这项诠释学研究中,我们采访了四位母亲,以加深对 VID-KIDS 经验的了解。主要发现包括1)VID-KIDS 为有 PPD 症状的母亲提供了一个积极转变身份的机会;2)VID-KIDS 提供了一个见证母婴关系形成和改善母亲心理健康的机会;3)VID-KIDS 为母亲们提供了一个真实对话的空间,让她们能够真实地讲述自己有 PPD 症状的经历。VID-KIDS 促进了 PPD 的康复,因为母亲们在如何看待自己以及与婴儿的关系方面经历了转变。
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引用次数: 0
How Do Persons Who Inject Drugs Experience Care From Nurses in Hospital Settings? A Qualitative Study. 注射毒品者如何体验医院护士的护理?一项定性研究。
IF 1.7 Q1 NURSING Pub Date : 2024-04-03 eCollection Date: 2024-01-01 DOI: 10.1177/23333936241240795
Kjerstine Solheim, Marit Hegg Reime, Leslie S P Eide

People who inject drugs (PWID) are at increased risk of acute and chronic health outcomes and in need of in-hospital healthcare services. This study aims to give insight into how PWID experience care from nurses in hospital settings. We used a qualitative descriptive design and applied reflexive thematic analysis to 11 individual semi-structured interviews with PWID. Our analysis generated the following main themes: (1) diminishment and distance-always just a drug addict, (2) gratitude-equal care not taken for granted, and (3) vulnerability-already carrying a heavy burden. Our findings reveal a complex, nuanced narrative regarding participants' experiences of nursing care and highlight the importance of enhancing knowledge, understanding, empathy, and communication skills when nurses encounter PWID. Our research suggests that patients' vulnerability resulting from previous experiences defined their perception of quality of care. Insight from this study provides valuable knowledge about how to enhance nursing care for PWID.

注射吸毒者(PWID)罹患急性和慢性疾病的风险较高,需要住院医疗服务。本研究旨在深入了解注射吸毒者在医院环境中如何体验护士提供的护理服务。我们采用了定性描述设计,并对 11 个残疾人半结构式访谈进行了反思性主题分析。我们的分析产生了以下主题:(1) 自卑感和距离感--始终只是一个吸毒者;(2) 感激之情--平等护理并非理所当然;(3) 脆弱性--已经背负了沉重的负担。我们的研究结果揭示了参与者对护理体验的复杂而细微的叙述,并强调了护士在遇到吸毒者时加强知识、理解、同情和沟通技巧的重要性。我们的研究表明,患者因以往经历而产生的脆弱性决定了他们对护理质量的看法。本研究的洞察力为如何加强对残疾人的护理提供了宝贵的知识。
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引用次数: 0
Suicidal Emotions, Motivations and Rationales in Australian Men: A Qualitative Exploration. 澳大利亚男性的自杀情绪、动机和理由:定性研究。
IF 1.7 Q1 NURSING Pub Date : 2024-04-02 eCollection Date: 2024-01-01 DOI: 10.1177/23333936241242915
Diane Macdonald, Ally Nicolopoulos, Stephanie Habak, Helen Christensen, Katherine Boydell

Suicide has a devasting and far-reaching effect on our communities. In developed countries, most people who die by suicide are male. Understanding men's mental health and what they experience in a suicidal state is key to preventing future attempts. Our paper explores how a group of 37 men in Australia describe the leadup to their suicidality. Underpinned by interpretive phenomenological analysis, interview transcripts were examined for phrases that the investigative team subjectively identified as profound. Our approach considered language and expression that evoke reactions to the sometimes contradictory nature of suicide. The process enabled our team to identify the emotions, rationales, and motivations for and against suicide that give rise to and arise during suicidal states. One man's source of strength may be another's cause of anguish, so any single, one-size-fits-all pathway to suicide prevention is unlikely to succeed, signaling the need for a tailored approach to suicide prevention.

自杀对我们的社会造成了毁灭性的深远影响。在发达国家,大多数死于自杀的人都是男性。了解男性的心理健康以及他们在自杀状态下的经历,是预防未来自杀企图的关键。我们的论文探讨了澳大利亚 37 名男性如何描述他们自杀前的经历。在解释现象学分析法的支持下,我们对访谈记录进行了检查,以找出调查小组主观认为深刻的语句。我们的方法考虑了语言和表达方式,这些语言和表达方式有时会唤起人们对自杀的矛盾本质的反应。在这一过程中,我们的团队能够识别出导致自杀和在自杀状态下出现的情绪、理由以及支持和反对自杀的动机。一个人的力量源泉可能是另一个人的痛苦根源,因此,任何单一的、一刀切的预防自杀途径都不可能取得成功,这表明需要采取量身定制的方法来预防自杀。
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引用次数: 0
"Unable to Feed My Hungry Child": Experiences of Mothers Caring for Children With Prader-Willi Syndrome. "无法喂饱饥饿的孩子":照顾普拉德-威利综合症患儿的母亲的经历。
IF 1.7 Q1 NURSING Pub Date : 2024-03-28 eCollection Date: 2024-01-01 DOI: 10.1177/23333936241242929
Genevieve Currie, Andrew Estefan, Vera Caine

Mothers' experiences of caring for children with Prader-Willi Syndrome (PWS) is largely unknown. With no treatment for PWS, parents undertake (extra)ordinary care practices to keep children safe from overeating and self harm. Knowledge of these care practices could lead to effective interventions. Narrative inquiry was used to study everyday experience with Canadian mothers. Participants cared for a child 3 to 17 years old who had hyperphagia. Participants were interviewed 8 to 12 times each over the course of a year. Narrative accounts were co-composed through a collaborative process of analysis. Engaging with participants' everyday experiences amplified complex care needs for families and gaps in health and social care systems. Narrative threads focused on engaging in (extra)ordinary care practices, rigid care work to keep children healthy and safe, tension from others while enacting these care practices, and difficulty conforming to social expectations with childrearing and care work. Recommendations for practice and policy include (a) shifting from untenable care practices, (b) reconceptualizing care work, and (c) alternative care models.

母亲们照顾普拉德-威利综合症(PWS)患儿的经历在很大程度上不为人所知。在没有治疗方法的情况下,家长们会采取(额外)普通的护理措施,以保证孩子的安全,避免暴饮暴食和自我伤害。对这些护理措施的了解有助于采取有效的干预措施。我们采用叙事调查的方法研究了加拿大母亲的日常经验。参与者照顾一名 3 至 17 岁患有多食症的儿童。在一年的时间里,每位参与者接受了 8 到 12 次访谈。通过合作分析过程,共同撰写了叙述性叙述。参与者的日常经历放大了家庭复杂的护理需求以及医疗和社会护理系统的差距。叙事线索主要集中在参与(额外)普通的护理实践、为保证儿童健康和安全而进行的严格护理工作、在实施这些护理实践时与他人的紧张关系,以及在养育子女和护理工作方面难以符合社会期望。对实践和政策的建议包括:(a) 摆脱站不住脚的照料做法,(b) 重新认识照料工作,(c) 替代照料模式。
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引用次数: 0
A Critical Comparison of Focused Ethnography and Interpretive Phenomenology in Nursing Research. 护理研究中的重点人种学与解释现象学的批判性比较。
IF 1.7 Q1 NURSING Pub Date : 2024-03-14 eCollection Date: 2024-01-01 DOI: 10.1177/23333936241238097
Uchechi Clara Opara, Pammla Petrucka

Choosing an appropriate qualitative methodology in nursing research is a researcher's first step before beginning a study. Such a step is critical as the selected qualitative methodology should be congruent with the research questions, study assumptions, data gathering and analysis to promote the utility of such research in enhancing nursing knowledge. In this paper, we compare focused ethnography by Roper and Shapira and interpretive phenomenology by Benner. Though these methodologies are naturalistic and appear similar, both have different methodological underpinnings. The historical, ontological, epistemological, and axiological philosophy guiding each methodology are described. In addition, the methodological underpinnings of both methodologies and a justification for use in nursing research are provided. This paper will assist future researchers who aim to employ these methodologies in nursing research.

在护理研究中选择合适的定性方法是研究人员开始研究前的第一步。这一步至关重要,因为所选的定性方法应与研究问题、研究假设、数据收集和分析相一致,以提高此类研究在增进护理知识方面的效用。在本文中,我们比较了罗珀和夏皮拉的重点人种学和本纳的解释现象学。虽然这两种方法都是自然主义的,看似相似,但二者却有着不同的方法论基础。本文介绍了指导每种方法论的历史、本体论、认识论和公理哲学。此外,还介绍了这两种方法的方法论基础以及在护理研究中使用的理由。本文将对未来希望在护理研究中采用这些方法的研究人员有所帮助。
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引用次数: 0
The Evolving Complexities of MAID Care in Canada From a Nursing Perspective. 从护理角度看加拿大 MAID 护理不断演变的复杂性。
IF 1.7 Q1 NURSING Pub Date : 2024-02-29 eCollection Date: 2024-01-01 DOI: 10.1177/23333936241228233
Barbara Pesut, Sally Thorne, Kenneth Chambaere, Margaret Hall, Catharine J Schiller

Medical Assistance in Dying (MAID) legislation has evolved rapidly in Canada with significant impacts on nursing practice. The purpose of this paper is to describe evolving complexities in legislative context and practice standards that influence the experiences nurse practitioners and registered nurses have with MAID. Qualitative interviews were conducted with 25 registered nurses and 10 nurse practitioners from diverse contexts across Canada. Participants described their practices and considerations when discussing MAID as part of advance care planning; their use of, and challenges with, waivers of consent; their practice considerations in negotiating the complexities of clients for whom death is not reasonably foreseeable; and their moral wrestling with the inclusion of MAID for persons whose sole underlying medical condition is mental illness. Findings illustrate the moral complexities inherent in the evolving legislation and the importance of robust health and social care systems to the legal and ethical implementation of MAID in Canada.

加拿大的临终医疗协助(MAID)立法发展迅速,对护理实践产生了重大影响。本文旨在描述立法背景和实践标准中不断演变的复杂性,这些复杂性影响着执业护士和注册护士在临终医疗协助方面的经验。我们对来自加拿大各地的 25 名注册护士和 10 名执业护士进行了定性访谈。参与者描述了他们在讨论作为预先护理规划一部分的 MAID 时的做法和考虑因素;他们对放弃同意书的使用和挑战;他们在协商无法合理预见死亡的客户的复杂性时的做法考虑因素;以及他们在将 MAID 纳入以精神疾病为唯一基本医疗条件的患者时的道德纠结。研究结果表明了不断发展的立法中固有的道德复杂性,以及健全的医疗和社会护理系统对加拿大在法律和道德上实施 MAID 的重要性。
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引用次数: 0
期刊
Global Qualitative Nursing Research
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