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Medical Assistance in Dying: A Review of Canadian Health Authority Policy Documents. 死亡中的医疗协助:加拿大卫生当局政策文件回顾。
IF 1.7 Q2 Nursing Pub Date : 2023-01-01 DOI: 10.1177/23333936231167309
Robyn Thomas, Barbara Pesut, Gloria Puurveen, Sally Thorne, Carol Tishelman, Betsy Leimbigler

The purpose of this study was to describe policies developed by English-speaking Canadian health authorities to guide multi-disciplinary healthcare practice in the context of MAID. Seventeen policies from 9 provinces and 3 territories were identified and analyzed thematically. Themes developed from these documents related to ensuring a team approach to care, supporting informed patient choice, creating region-specific guidance on eligibility criteria and safeguards, accommodating conscientious objection, and making explicit organizational responsibilities. Ethical language concerned vulnerability, non-judgmental care, dignity, non-abandonment, confidentiality, moral conscience, and diverse cultural values. Overall, these policies addressed important risk mitigation strategies, acknowledged important social contracts, and supported ethical practice. Collectively, these policies outline important considerations in the evolving Canadian context for other jurisdictions seeking to create policy around assisted death.

本研究的目的是描述讲英语的加拿大卫生当局制定的政策,以指导MAID背景下的多学科卫生保健实践。从9个省和3个地区确定了17项政策并进行了专题分析。从这些文件中发展出来的主题涉及确保采用团队方法进行护理,支持知情的患者选择,制定针对特定区域的资格标准和保障措施指导,接受良心拒服兵役,以及明确组织责任。伦理语言涉及脆弱性、非评判性关怀、尊严、不遗弃、保密性、道德良知和多元文化价值观。总体而言,这些政策涉及重要的风险缓解战略,承认重要的社会契约,并支持道德实践。总的来说,这些政策概述了在不断演变的加拿大背景下,其他司法管辖区寻求制定有关协助死亡的政策时需要考虑的重要因素。
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引用次数: 1
CONAA Council on Nursing & Anthropology Abstracts, 83rd Annual Meeting of the Society for Anthropology, March 28-April 1, Cincinnati, OH 美国护理与人类学委员会摘要,人类学学会第83届年会,3月28日至4月1日,俄亥俄州辛辛那提
IF 1.7 Q2 Nursing Pub Date : 2023-01-01 DOI: 10.1177/23333936231180342
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引用次数: 0
A New Normality Illuminated by Past and Present! A Qualitative Study: Experiences and Challenges of Everyday Life in Patients With Advanced Heart or Lung Failure. 过去和现在照亮的新常态!一项定性研究:晚期心肺衰竭患者日常生活的经历和挑战。
IF 1.7 Q2 Nursing Pub Date : 2022-11-29 eCollection Date: 2022-01-01 DOI: 10.1177/23333936221140374
Jytte Graarup, Ida Elisabeth Højskov

The aim of this study was to gain insight into the phenomena of everyday life as experienced and coped with by patients living with advanced heart or lung failure. We employed a qualitative design using a phenomenological hermeneutic approach. Data derived from 10 nursing consultations in a holistic setting. Ricoeur's theory of interpretation inspired the text analysis. The study emphasizes time (past, present, and future) as an overall everyday life theme, playing an essential role associated with improvements or poor outcomes related to physical, mental, and intersubjective challenges. Patients accepted and lived with the challenges, experiencing changes, as transition, but also coped with their new normal, which involved improvements or poor outcomes, some invisible to the community. Assumptions about everyday life changed significantly, the changes possibly essential for intersubjective relations. A reflective approach, can help patients to evolve, using knowledge from the past and present to cope with the future.

这项研究的目的是深入了解晚期心肺衰竭患者的日常生活经历和应对情况。我们采用了一种使用现象学解释学方法的定性设计。数据来自10个护理咨询在整体设置。利科的解释理论为文本分析提供了启示。该研究强调时间(过去、现在和未来)是一个整体的日常生活主题,在与身体、精神和主体间挑战相关的改善或不良结果中发挥着重要作用。患者接受并接受挑战,经历变化,作为过渡,但也要应对他们的新常态,其中包括改善或糟糕的结果,有些是社会看不见的。关于日常生活的假设发生了重大变化,这种变化可能对主体间关系至关重要。一种反思的方法,可以帮助病人发展,利用过去和现在的知识来应对未来。
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引用次数: 0
Using Institutional Ethnography to Explicate the Everyday Realities of Nurses' Work in Labor and Delivery. 利用机构人种学来解释护士在分娩过程中的日常现实工作。
IF 2.2 Q1 NURSING Pub Date : 2022-11-25 eCollection Date: 2022-01-01 DOI: 10.1177/23333936221137576
Paula Kelly, Maggie Quance, Nicole Snow, Caroline Porr

Fetal health surveillance is a significant everyday work responsibility for labor and delivery nurses. Here, nursing care is increasingly focused on technological interventions, particularly with the use of continuous electronic fetal monitoring. Using Institutional Ethnography, we explored how nurses conduct this work and uncovered the ruling relations coordinating how nurses "do" fetal health surveillance. Analysis revealed how these powerful ruling relations associated with the biomedical and medical-legal discourses coordinated nurses' fetal monitoring work. Forms requiring documentation of biophysical data caused nurses to focus on technological interventions with much less attention given to holistic and supportive care measures. In doing so, nurses inadvertently activated and participated in these powerful ruling discourses. The practice of ensuring the safe birth of the baby through advances in technological surveillance and medical interventions took priority over well-established approaches to holistic nursing care.

胎儿健康监护是分娩护士日常工作中的一项重要职责。在这里,护理工作越来越注重技术干预,尤其是使用连续的电子胎儿监护。通过机构人种学,我们探讨了护士如何开展这项工作,并揭示了协调护士如何 "进行 "胎儿健康监护的统治关系。分析揭示了这些与生物医学和医疗法律话语相关的强大统治关系是如何协调护士的胎儿监护工作的。要求记录生物物理数据的表格导致护士将重点放在技术干预上,而对整体和支持性护理措施的关注则少得多。这样,护士无意中激活并参与了这些强大的统治话语。通过先进的技术监控和医疗干预来确保婴儿安全出生的做法优先于行之有效的整体护理方法。
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引用次数: 0
The Image of Nurses and Midwives in Ghana: Patient and Family Perspectives. 加纳护士和助产士的形象:病人和家庭的观点。
IF 1.7 Q2 Nursing Pub Date : 2022-11-20 eCollection Date: 2022-01-01 DOI: 10.1177/23333936221137584
Lillian Akorfa Ohene, Angela Kwartemaa Acheampong, Gladys Dzansi, Josephine Kyei, Charles Ampong Adjei, Samuel Adjorlolo, Isabella Naana Akyaa Asante, Philomena Woolley, Felix Nyante, Lydia Aziato

This study aims to explore the perceptions of patients and family caregivers on the image of nurses and midwives in Ghana. The study adopted a qualitative exploratory descriptive approach. A total of 25 participants were interviewed during data collection. Content and thematic analysis were applied in the data analysis to develop themes. The findings are captured under two major themes that describe the primary influences on participant images of nurses: Thus, (1) nurses' and midwives' attributes with four subthemes; staff appearance, communication strategies and behaviors, work attitudes, and professional competence and (2) patients' status and subthemes were; uneducated poor and educated rich. We conclude that patients and families in Ghana recognize the professional attributes of the nurse and midwife, which reflect in their personality, grooming, communication, competencies, and attitudes. However, low publicity of the professional roles of nurses and midwives may have negative repercussions for their professional image. A policy to perform a regular public audit on the image of the Nurse/Midwife is important for professional advancement.

本研究旨在探讨加纳患者和家庭照顾者对护士和助产士形象的看法。本研究采用定性探索性描述方法。在数据收集过程中,共采访了25名参与者。在数据分析中采用内容分析和专题分析来制定主题。研究结果被捕获在两个主要主题下,描述了对护士参与者形象的主要影响:因此,(1)护士和助产士的属性有四个子主题;工作人员的外表、沟通策略和行为、工作态度和专业能力;(2)患者状况和分主题;没受过教育的穷人和受过教育的富人。我们得出结论,加纳的患者和家属认可护士和助产士的专业属性,这反映在他们的个性、仪容、沟通、能力和态度上。然而,对护士和助产士专业角色的低宣传可能会对她们的专业形象产生负面影响。制定一项政策,对护士/助产士的形象进行定期的公开审计,这对专业发展非常重要。
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引用次数: 1
"Machine-Dependent": The Lived Experiences of Patients Receiving Hemodialysis in Pakistan. “机器依赖”:巴基斯坦接受血液透析患者的生活经历。
IF 1.7 Q2 Nursing Pub Date : 2022-11-15 eCollection Date: 2022-01-01 DOI: 10.1177/23333936221128240
Haseeba Shouket, Eyal Gringart, Dierdre Drake, Ulrich Steinwandel

This study aimed to explore the lived experiences of patients receiving maintenance hemodialysis in Pakistan. Purposive sampling was used to recruit 24 patients and six healthcare professionals, each participated in a semi-structured interview. Interpretive Phenomenological Analysis was used to analyze interviews' data. Two superordinate themes, "The experience of hemodialysis" and "The conceptualizations of hemodialysis" as well as six sub-themes were identified. The experience of hemodialysis was related to, the implications of HD procedure on everyday life, social, cognitive, emotional, financial, and occupational influences. While all participants recognized the importance of hemodialysis for their survival, their conceptualizations of the treatment varied. Despite facing multiple challenges, optimism and independence were observed among participants. Stigma related to hemodialysis, and role adaptation, which appear unique to the Pakistani context, highlight a need for tailored interventions designed to enhance and maintain the mental health of patients receiving hemodialysis in Pakistan.

本研究旨在探讨巴基斯坦维持性血液透析患者的生活经历。采用目的抽样方法招募24名患者和6名医疗保健专业人员,每人参加半结构化访谈。采用解释现象学分析对访谈数据进行分析。确定了两个上级主题,“血液透析的经验”和“血液透析的概念”以及六个副主题。血液透析的经历与HD手术对日常生活、社会、认知、情感、经济和职业的影响有关。虽然所有参与者都认识到血液透析对他们生存的重要性,但他们对治疗的概念各不相同。尽管面临多重挑战,但参与者表现出乐观和独立。与血液透析相关的耻辱感和角色适应似乎是巴基斯坦特有的,这突出表明需要采取量身定制的干预措施,以加强和维持巴基斯坦接受血液透析的患者的精神健康。
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引用次数: 0
Untenable Expectations: Nurses' Work in the Context of Medication Administration, Error, and the Organization. 站不住脚的期望:护士在药物管理、错误和组织背景下的工作。
IF 1.7 Q2 Nursing Pub Date : 2022-11-13 eCollection Date: 2022-01-01 DOI: 10.1177/23333936221131779
Sara F Hawkins, Janice M Morse

We explored nurses' work in the context of medication administration, errors, and the organization. Secondary analysis of ethnographic data included 92 hours of non-participant observation, and 37 unstructured interviews with nurses, administrators, and pharmacists. Think-aloud observations and analysis of institutional documents supplemented these data. Findings revealed the nature of nurses' work was characterized by chasing a standard of care, prioritizing practice, and renegotiating routines. The rich description identified characteristics of nurses' work as cyclical, chaotic and complex shattering studies that explained nurses' work as linear. A new theoretical model was developed, illustrating the inseparability of nurses' work from contextual contingencies and enhancing our understanding of the cascading components of work that result in days that spin out of the nurses' control. These results deepen our understanding why present efforts targeting the reduction of medication errors may be ineffective and places administration accountable for the context in which medication errors occur.

我们探讨了护士在药物管理、错误和组织方面的工作。二次分析人种学数据包括92小时的非参与性观察,以及37次与护士、管理人员和药剂师的非结构化访谈。对机构文件的观察和分析补充了这些数据。调查结果显示,护士工作的本质特点是追求护理标准,优先实践,并重新谈判程序。丰富的描述确定护士工作的特征是周期性的,混乱的和复杂的破碎研究,解释护士的工作是线性的。一个新的理论模型被开发出来,说明了护士的工作与上下文突发事件的不可分割性,并增强了我们对工作的级联组件的理解,这些组件导致了护士无法控制的日子。这些结果加深了我们的理解,为什么目前针对减少用药错误的努力可能是无效的,并使管理部门对发生用药错误的环境负责。
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引用次数: 2
Research Partnerships with Patients Living with Type 2 Diabetes: Practices and Challenges in Quebec Among People New to Canada. 2型糖尿病患者的研究伙伴关系:魁北克新移民的实践和挑战。
IF 1.7 Q2 Nursing Pub Date : 2022-10-31 eCollection Date: 2022-01-01 DOI: 10.1177/23333936221129836
Séraphin Balla, Maman Joyce Dogba, Monika Kastner

Patients are increasingly encouraged to participate in health research programs as partners, with the aim to ensure that studies address their priorities. In response, the Strategy for Patient-Oriented Research (SPOR) has been created in Canada to transform the patient's role in research from a passive beneficiary to a more proactive partner of change within the healthcare system. This research investigates what people new to Canada living with type 2 diabetes think about participating in research partnerships. Using an ethnographic approach, 31 people new to Canada with a diagnosis of type 2 diabetes were interviewed. Findings indicated that few people new to Canada were represented among the Diabetes Action Canada (DAC) Network's Circles of Patient Partners in Quebec. Barriers to engagement in research were: lack of information; competing priorities; language barrier and privacy concerns; preconceptions about being a patient partner; prejudices on research engagement as something demanding and binding; and the matter of religious and gender differences. Some participants questioned the extent to which involvement in research can really meet their expectations considering institutional control over research, funding requirements that often dictate priorities and the biomedical approach which still, in many respects, dominates health research. Implications for achieving equity, diversity, and inclusion of patient partners in research are discussed.

越来越多的患者被鼓励作为合作伙伴参与健康研究项目,目的是确保研究解决他们的优先事项。为此,加拿大制定了面向患者的研究战略(SPOR),将患者在研究中的角色从医疗保健系统中的被动受益者转变为更积极主动的合作伙伴。这项研究调查了新到加拿大的2型糖尿病患者对参与研究伙伴关系的看法。采用人种学方法,对31名刚到加拿大诊断为2型糖尿病的人进行了访谈。研究结果表明,在魁北克的加拿大糖尿病行动(DAC)网络患者合作伙伴圈子中,很少有新到加拿大的人。参与研究的障碍是:缺乏信息;竞争优先权;语言障碍和隐私问题;对成为有耐心的伴侣有先入之见;对参与研究有偏见,认为这是一件要求很高、有约束力的事情;宗教和性别差异的问题。一些与会者质疑,考虑到机构对研究的控制、常常决定优先事项的供资要求以及在许多方面仍主导卫生研究的生物医学方法,参与研究在多大程度上能真正满足他们的期望。讨论了在研究中实现公平、多样性和患者合作伙伴的包容性的含义。
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引用次数: 0
Indigenous Sami Family Caregivers' Experiences With Accessing and Collaborating With Municipal Health and Care Services. 原住民萨米人家庭照顾者获得市政医疗和护理服务并与之合作的经验。
IF 2.2 Q1 NURSING Pub Date : 2022-09-14 eCollection Date: 2022-01-01 DOI: 10.1177/23333936221123333
Bodil H Blix, Mai-Camilla Munkejord

Previous research has indicated that Indigenous Sami families in Norway use public home-based care services less often than their non-Sami peers. Based on qualitative interviews with Sami family caregivers, we explore what they experience as barriers to accessing public care services for older adults living with dementia, and how they experience collaborating with care services providers. Through a reflexive thematic approach, we identified that rather than a cultural norm of "taking care of one's own," the underuse of public care services among Sami families were related to several intertwined circumstances. The Sami family caregivers reported barriers to accessing public care, such as lack of familiarity with the services and cultural and language concerns and the legacy of history, and drivers for continuing family care, such as blurred distribution of responsibility, lack of continuity of care, and culturally unsafe caring environments and marginalizing practices.

以往的研究表明,挪威土著萨米人家庭使用公共家庭护理服务的频率低于非萨米人家庭。根据对萨米家庭护理人员的定性访谈,我们探讨了他们在为老年痴呆症患者使用公共护理服务时遇到的障碍,以及他们如何与护理服务提供者合作。通过反思性主题方法,我们发现,萨米人家庭中公共护理服务使用不足的现象与几个相互交织的情况有关,而不是 "自己照顾自己 "的文化规范。萨米家庭照顾者报告了获得公共照顾的障碍,如不熟悉服务、文化和语言问题以及历史遗留问题,以及继续家庭照顾的驱动因素,如责任分配不清、缺乏照顾的连续性、文化上不安全的照顾环境和边缘化做法。
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引用次数: 0
Challenging Behaviors as a Relational Phenomenon: Findings From a Qualitative Study in a Nursing Home in Norway. 挑战行为作为一种关系现象:来自挪威养老院定性研究的结果。
IF 1.7 Q2 Nursing Pub Date : 2022-09-14 eCollection Date: 2022-01-01 DOI: 10.1177/23333936221123331
Mai Camilla Munkejord, Laila Tingvold

Challenging behaviors are common in nursing homes. Drawing on rich qualitative data from fieldwork and in-depth interviews with staff in a nursing home in Norway, we will explore (a) how challenging behaviors unfolded, and (b) how such incidents were handled and talked about among staff. Our data is presented firstly through Anna's story as an introduction to discussing: (1) the problem of contrasting approaches to avoid challenging behaviors and (2) the importance of knowing the resident. Christopher's story then works as an introduction to discuss (3) the importance of understanding how to prioritize, (4) the importance of caring with connection and concern, and (5) the importance of sharing success stories among staff. In conclusion we argue that we should develop a more flexible organizational culture and a staffing practice in which care workers are empowered to use their discretion and thus to care for the residents with more connection and sensitivity than is currently the case.

具有挑战性的行为在养老院很常见。通过对挪威一家养老院工作人员的实地调查和深度访谈,我们将探讨(a)具有挑战性的行为是如何展开的,以及(b)工作人员如何处理和谈论这些事件。我们的数据首先通过安娜的故事来介绍,以讨论:(1)避免挑战性行为的对比方法问题;(2)了解居民的重要性。然后,Christopher的故事作为一个引子来讨论(3)理解如何优先排序的重要性,(4)通过联系和关心来关心的重要性,以及(5)在员工之间分享成功故事的重要性。总之,我们认为我们应该发展一种更灵活的组织文化和人员配置实践,在这种文化和人员配置实践中,护理人员被授权使用他们的自由裁量权,从而比目前的情况下更有联系和更敏感地照顾居民。
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引用次数: 0
期刊
Global Qualitative Nursing Research
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