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Healthcare Professionals' Perspectives on Dignity in Dementia: A Qualitative Analysis. 医护人员对痴呆症患者尊严的看法:定性分析。
IF 2.2 Q1 NURSING Pub Date : 2024-09-03 eCollection Date: 2024-01-01 DOI: 10.1177/23333936241278074
Frederik Schou-Juul, Rebecca Amalie Struwe Kjeldsen, Lucca-Mathilde Thorup Ferm, Sigurd Lauridsen

In dementia care, the concept of dignity has garnered substantial attention from both researchers and policymakers. However, the concept often remains vague and open to interpretation, potentially leading to misunderstandings and suboptimal care for people with dementia. As healthcare professionals occupy a critical role in upholding dignity, exploring their viewpoints on this complex concept is paramount. In this study, we explore Danish healthcare professionals' views on the dignity of people with dementia and discuss these perspectives against existing theoretical accounts. We employed thematic analysis of data collected during facilitated discussions with a total of 99 healthcare professionals, including nurses and healthcare workers, during which we posed the question, "What is dignity to you?" and documented their perspectives. Through a systematic process of data coding and interpretation, we identified recurring patterns in their responses. This approach allowed us to uncover the depth and complexity of their viewpoints, providing valuable insights into the multifaceted nature of dignity as perceived by healthcare professionals. Our findings revealed that healthcare professionals possessed a nuanced understanding of dignity, recognizing both a subjective element and a universal aspect applicable to all individuals, aligning with theoretical interpretations. However, conceptual ambiguity remained a challenge.

在痴呆症护理领域,"尊严 "这一概念受到了研究人员和政策制定者的广泛关注。然而,这一概念往往仍然含糊不清,可有可无,有可能导致误解,并给痴呆症患者带来不尽人意的护理。由于医护人员在维护尊严方面扮演着至关重要的角色,因此探讨他们对这一复杂概念的观点至关重要。在本研究中,我们探讨了丹麦医护人员对痴呆症患者尊严的看法,并根据现有的理论论述对这些观点进行了讨论。在与包括护士和医护人员在内的共 99 名医护专业人员的讨论中,我们提出了 "对您来说什么是尊严?"的问题,并记录了他们的观点。通过系统的数据编码和解释过程,我们发现了他们回答中反复出现的模式。通过这种方法,我们发现了他们观点的深度和复杂性,为了解医护人员眼中尊严的多面性提供了宝贵的见解。我们的研究结果表明,医护专业人员对尊严有着细致入微的理解,既认识到主观因素,也认识到适用于所有人的普遍性,这与理论解释相一致。然而,概念的模糊性仍然是一个挑战。
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引用次数: 0
Language Matters: Exploring Preferred Terms for Diverse Populations. 语言很重要:探索不同人群的首选术语。
IF 2.2 Q1 NURSING Pub Date : 2024-09-03 eCollection Date: 2024-01-01 DOI: 10.1177/23333936241275266
Higinio Fernandez-Sanchez, Emmanuel Akwasi Marfo, Diane Santa Maria, Mercy Mumba

This article explores the significance of employing preferred terms and inclusive language in research practices concerning diverse populations. It highlights how inappropriate terminology can lead to labeling, stereotyping, and stigma, particularly for equity-denied groups. The study aimed to identify and analyze terminology preferences for diverse communities by major international organizations. Through a systematic environmental scan methodology, data were collected from 12 prominent organizations. The results indicate a concerted effort toward adopting inclusive language, with organizations favoring respectful and accurate terminology. For instance, terms like "people made vulnerable by systemic inequities" and "migrant workers" were preferred over outdated or stigmatizing alternatives. The discussion emphasizes the importance of identifying conflicting terms and trends in terminology preferences over time. We recommend prioritizing the use of preferred terms to promote respectful and accurate discourse, with a focus on person-centered language. Ultimately, the findings underscore the critical role of language in shaping perceptions and attitudes toward diverse communities, and advocate for continued efforts to promote inclusivity and equity in research, policy, and practice.

本文探讨了在涉及不同人群的研究实践中使用首选术语和包容性语言的意义。它强调了不恰当的术语会如何导致标签化、刻板印象和污名化,尤其是对被剥夺公平的群体而言。这项研究旨在确定和分析主要国际组织对不同群体的术语偏好。通过系统的环境扫描方法,从 12 个著名组织收集了数据。结果表明,各组织一致努力采用包容性语言,倾向于使用尊重和准确的术语。例如,"因制度性不平等而变得脆弱的人们 "和 "移徙工人 "等术语比过时或污名化的替代术语更受青睐。讨论强调了识别相互冲突的术语和术语偏好随时间变化的趋势的重要性。我们建议优先使用首选术语,以促进尊重和准确的讨论,重点是以人为本的语言。最终,研究结果强调了语言在形成对不同群体的看法和态度方面的关键作用,并倡导在研究、政策和实践中继续努力促进包容性和公平性。
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引用次数: 0
"The Walls Had Been Built": A Qualitative Study of Canadian Adolescent Perspectives on Mental Health During the COVID-19 Pandemic. "墙已经建好":加拿大青少年对 COVID-19 大流行期间心理健康看法的定性研究》。
IF 2.2 Q1 NURSING Pub Date : 2024-09-02 eCollection Date: 2024-01-01 DOI: 10.1177/23333936241273270
Mischa Taylor, Gina Dimitropoulos, Shannon D Scott, Shelly Ben-David, Carla Hilario

Public health measures (PHMs) implemented during the COVID-19 pandemic introduced sudden changes to adolescents' everyday routines and required adolescents to repeatedly adapt their routines at a critical developmental stage. While meant to protect physical health, the PHMs destabilized mental health. Using a youth-engaged approach and interpretive description, this study explored adolescents' perspectives on their mental health in relation to the COVID-19 pandemic-related PHMs in Canada from March 2020 to the time of data collection in March 2022. Four Youth Research Collaborators contributed an adolescent lens to informing study activities, and a total of 33 high-school aged adolescents ages 14 to 19 completed individual interviews. Findings suggest an overarching concept of a "timeline" through which adolescents described their experiences. Most adolescents described their mental health as worsening during the initial lockdown, although some adolescents experienced positive mental health outcomes. Several adolescents felt their mental health had not recovered after the PHMs were fully lifted. This study contributes young Canadians' unique voices to the literature on the pandemic-related PHMs and adolescent mental health. It is essential that the impacts of the pandemic on adolescent mental health continue to be a focus of research and programming to better understand and address its ongoing effects.

在 COVID-19 大流行期间实施的公共卫生措施(PHMs)突然改变了青少年的日常生活习惯,并要求青少年在关键的成长阶段反复调整自己的生活习惯。虽然公共卫生措施旨在保护身体健康,但却破坏了心理健康。从 2020 年 3 月到 2022 年 3 月收集数据期间,本研究采用青少年参与的方法和解释性描述,探讨了加拿大青少年对与 COVID-19 大流行相关的 PHMs 的心理健康的看法。四名青少年研究合作者从青少年的视角为研究活动提供信息,共有 33 名 14 至 19 岁的高中生完成了个人访谈。研究结果表明,青少年在描述自己的经历时,有一个 "时间轴 "的总体概念。大多数青少年认为在最初的封锁期间,他们的心理健康状况有所恶化,但也有一些青少年在心理健康方面取得了积极的成果。一些青少年认为他们的心理健康在 PHM 完全解除后仍未恢复。这项研究为有关与大流行病相关的公共卫生措施和青少年心理健康的文献提供了加拿大青少年独特的声音。大流行病对青少年心理健康的影响必须继续成为研究和计划的重点,以更好地了解和应对其持续的影响。
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引用次数: 0
Beyond Burnout: Nurses' Perspectives on Chronic Suffering During and After the COVID-19 Pandemic. 超越职业倦怠:护士对 COVID-19 大流行期间和之后长期痛苦的看法。
IF 2.2 Q1 NURSING Pub Date : 2024-09-02 eCollection Date: 2024-01-01 DOI: 10.1177/23333936241271271
Melissa A Powell, Tolu O Oyesanya, Susan D Scott, Deborah H Allen, AnnMarie Walton

Nurses around the globe have been impacted psychologically and emotionally during and after the COVID-19 pandemic. The purpose of this study was to describe nurses' perspectives on the concepts of compassion fatigue, second victimhood, burnout, and moral injury. Eight nurses were interviewed either individually or in groups of two. Data were analyzed using conventional content analysis. The following themes were identified: waves of compassion fatigue, traumatization within second victimhood, never the same after chronic burnout, moral injury: nurses couldn't do their best, and connections across concepts. Results showed nurses were most familiar with burnout and compassion fatigue, which remain chronic struggles. Second victimhood and moral injury were more distinct experiences related to traumatic or morally distressing events and likely contributed to experiencing burnout or compassion fatigue. Nurses' suffering heightened during the COVID-19 pandemic and remains prominent three years later. Future research and interventions are urgently needed globally to reduce workplace stressors and promote nurse well-being.

在 COVID-19 大流行期间和之后,全球护士在心理和情感上都受到了影响。本研究的目的是描述护士对 "同情疲劳"、"第二受害者"、"职业倦怠 "和 "道德伤害 "等概念的看法。八名护士接受了单独或两人一组的访谈。采用传统的内容分析法对数据进行了分析。确定了以下主题:同情疲劳的浪潮、第二受害者身份中的创伤、长期职业倦怠后的面目全非、道德伤害:护士无法尽其所能,以及各概念之间的联系。结果显示,护士们最熟悉的是职业倦怠和同情疲劳,它们仍然是长期的挣扎。其次,受害者身份和道德伤害是与创伤或道德痛苦事件相关的更为独特的体验,很可能会导致体验倦怠或同情疲劳。在 COVID-19 大流行期间,护士的痛苦加剧,三年后仍很突出。全球急需未来的研究和干预措施,以减少工作场所的压力并促进护士的福祉。
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引用次数: 0
Public Health Nurses in an Internal Negotiation Process When There Is Concern About the Child's Care. 公共卫生护士在关注儿童护理问题时的内部协商过程。
IF 2.2 Q1 NURSING Pub Date : 2024-08-24 eCollection Date: 2024-01-01 DOI: 10.1177/23333936241267003
Ingrid Elisabeth Mathisen Haaland, Terese Elisabet Bondas

The aim of the study was to explore and describe how public health nurses at child health clinics experience and perceive the follow-up of children and families when there is concern about the child's care. The goal was to contribute to knowledge development to guide health-promoting nursing care for children and their families. Theoretical perspectives included health promotion, child-centered and family-centered care, in addition to nursing care. An exploratory qualitative design informed by a hermeneutic approach was used. Data were collected in 3 focus groups with 16 public health nurses and analyzed using latent content analysis. The findings detail public health nurses' internal negotiation processes in the follow-up of children and the family, and the ways these negotiation processes were influenced by various prerequisites, the approaches for follow-up, dilemmas that affected public health nurses' approaches, and prolonged dwellings on past responses to children and families of concern. The lack of routines and goals for follow-up, a dominant parental perspective, and ambiguity related to health promotion and disease prevention, all created challenges for the public health nurses. Based on these findings, a model of public health nurse's follow-up when there is concern about the child's care was developed for future research.

本研究旨在探讨和描述儿童保健诊所的公共卫生护士在对儿童及其家庭的护理问题感到担忧时,是如何体验和感知对儿童及其家庭的跟踪服务的。目的是为知识发展做出贡献,以指导为儿童及其家庭提供促进健康的护理服务。除护理外,理论视角还包括健康促进、以儿童为中心和以家庭为中心的护理。研究采用了诠释学方法的探索性定性设计。通过 3 个焦点小组收集了 16 名公共卫生护士的数据,并使用潜在内容分析法对数据进行了分析。研究结果详细说明了公共卫生护士在对儿童和家庭进行跟踪时的内部协商过程,以及这些协商过程如何受到各种先决条件、跟踪方法、影响公共卫生护士方法的困境以及对过去对儿童和相关家庭所做反应的长期纠缠的影响。缺乏后续行动的常规和目标、家长的主导观点以及与健康促进和疾病预防相关的模糊性,都给公共卫生护士带来了挑战。基于这些发现,我们为未来的研究制定了一个公共卫生护士在儿童护理问题上的跟进模式。
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引用次数: 0
Perspectives of Young People with Neuromuscular Diseases Regarding Their Choice of Educational Programs and Possibilities to Complete Program Requirements. 患有神经肌肉疾病的年轻人对教育课程的选择和完成课程要求的可能性的看法。
IF 2.2 Q1 NURSING Pub Date : 2024-08-23 eCollection Date: 2024-01-01 DOI: 10.1177/23333936241271126
Charlotte Handberg, Helle Munkholm, Ann-Lisbeth Højberg

Young people with impaired functioning and/or disability do not receive as much education or as high an education as fully functioning young people, thus limiting their job opportunities. Therefore, the aim of this study was to investigate perspectives of young people with neuromuscular diseases regarding their choice of educational programs and possibilities to complete program requirements to gain knowledge for use in future counselling and the development of a national questionnaire survey. The design for this study was qualitative using the interpretive description methodology and Anthony Giddens' theory on modernity and self-identity. Data were generated through two focus group interviews with seven people between 18 and 30 years of age. Beginning and completing an education was influenced by the creation of identity: the importance of experiencing demands and expectations, the meaning of social relations when learning, and the consequences of accessibility for educational opportunities. The participants' sense of self-identity was built by testing boundaries and developing images through social relations with peers, parents, and teachers. How they acted and behaved in the social arena of school and education influenced their choices and chances of completing educational programs.

功能受损和/或残疾的年轻人接受的教育不如功能健全的年轻人多或高,从而限制了他们的工作机会。因此,本研究的目的是调查患有神经肌肉疾病的年轻人对教育课程的选择以及完成课程要求的可能性的看法,以获得用于未来咨询和开展全国问卷调查的知识。本研究采用解释性描述方法和安东尼-吉登斯(Anthony Giddens)的现代性和自我认同理论进行定性研究。通过对 7 名 18 至 30 岁的人进行两次焦点小组访谈,获得了相关数据。开始和完成学业受到身份创建的影响:体验需求和期望的重要性、学习时社会关系的意义以及获得教育机会的后果。参与者的自我认同感是通过与同伴、父母和老师的社会关系来测试界限和发展形象建立起来的。他们在学校和教育的社会舞台上如何行动和表现,影响着他们的选择和完成教育计划的机会。
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引用次数: 0
A meta-Ethnography on Parents' Experiences of the Internet As a Source of Health Information. 关于父母将互联网作为健康信息来源的体验的元人类学研究。
IF 2.2 Q1 NURSING Pub Date : 2024-07-30 eCollection Date: 2024-01-01 DOI: 10.1177/23333936241259246
Thale Strand, Thomas Westergren

The Internet is increasingly being used as a health information resource. This meta-ethnography aimed to synthesize the literature on how parents of children aged below 5 years' experienced using the Internet for health information purposes. We employed an interpretive meta-synthesis approach-meta-ethnography-according to Noblit & Hare's seven phases. A total of 22 articles met the inclusion criteria, representing four continents and with 650 participants, mainly mothers. We analysed and synthesized the primary studies into the following lines-of-argument synthesis representing a novel conceptual understanding of the phenomenon: Parents experience the Internet as "A cyber partner for child caring" being a 24/7 available "go-to" among other confined sources. Parents find ways of "patching together" trustworthy information in solicitude for their child's health while navigating between trust and anxiety. They relate online and share their experiences and secrets without being rejected. Clinicians and parents may benefit from "partnering" with this resource.

互联网越来越多地被用作健康信息资源。本元人种学研究旨在综合有关 5 岁以下儿童的父母如何利用互联网获取健康信息的文献。根据 Noblit & Hare 的七个阶段,我们采用了一种解释性元综合方法--元人种学。共有 22 篇文章符合纳入标准,它们来自四大洲,有 650 名参与者,主要是母亲。我们对主要研究进行了分析和归纳,形成了以下论点综述,代表了对这一现象的新概念理解:父母将互联网视为 "照顾孩子的网络伙伴",是其他有限资源中全天候可用的 "必备资源"。家长们在信任与焦虑之间游刃有余,找到了 "拼凑 "可信信息的方法,以关心孩子的健康。他们在网上建立联系,分享自己的经验和秘密,而不会遭到拒绝。临床医生和家长可以从与这一资源的 "合作 "中获益。
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引用次数: 0
Cervical Cancer Screening Uptake and Experiences of Black African Immigrant Women in Canada. 加拿大黑非洲移民妇女接受宫颈癌筛查的情况和经历。
IF 2.2 Q1 NURSING Pub Date : 2024-07-27 eCollection Date: 2024-01-01 DOI: 10.1177/23333936241266997
Abosede C Ojerinde, Sally E Thorne, A Fuchsia Howard, Arminee Kazanjian

Cervical cancer is one of the leading causes of cancer-related death among African women. Unfortunately, in most sub-Saharan African nations, women are vulnerable if they are unaware that cervical cancer is preventable with frequent screening and early treatment. The aim of this study was to examine Black African immigrant women's perceptions and experiences of cervical screening in British Columbia, Canada. Twenty Black African immigrant women were interviewed using the qualitative research method Interpretive Description. Data collection approaches included indepth interviews and analytic memos. Data were analyzed using a constant comparative technique guided by a socioecologic framework to capture subjective experiences and perceptions. Four key themes were identified, including confusing conceptualizations about cancer and cancer screening, competing priorities, concerns for modesty, and commitment to culture. The study findings point to the need for more active approaches to promoting cervical screening for this population.

宫颈癌是非洲妇女死于癌症的主要原因之一。不幸的是,在大多数撒哈拉以南非洲国家,如果妇女不知道宫颈癌是可以通过频繁筛查和早期治疗来预防的,那么她们就很容易受到伤害。本研究旨在考察加拿大不列颠哥伦比亚省黑非洲移民妇女对宫颈癌筛查的看法和经验。采用定性研究方法 "解释性描述 "对 20 名非洲黑人移民妇女进行了访谈。数据收集方法包括深入访谈和分析备忘录。在社会生态框架的指导下,采用恒定比较技术对数据进行分析,以捕捉主观体验和感知。确定了四个关键主题,包括关于癌症和癌症筛查的混乱概念、相互竞争的优先事项、对谦虚的关注以及对文化的承诺。研究结果表明,有必要采取更积极的方法来促进这一人群的宫颈筛查。
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引用次数: 0
Challenges Faced by Women With Neuromuscular Diseases When Having to Urinate Away From Home. 患有神经肌肉疾病的妇女离家小便时面临的挑战。
IF 2.2 Q1 NURSING Pub Date : 2024-06-24 eCollection Date: 2024-01-01 DOI: 10.1177/23333936241262445
Charlotte Handberg, Bente Kristensen, Bente Thoft Jensen, Sarah Glerup, Antoniett Vebel Pharao, Jeanette Strøm, Ulla Werlauff

The aim of this study was to investigate the challenges women with neuromuscular disease face when having to urinate when away from home. The design for this study was qualitative using the interpretive description methodology and the Sense of Coherence theory. The method was three semi-structured focus group interviews with 12 women (3 ambulant and 9 non-ambulant) with neuromuscular diseases at a specialized rehabilitation hospital. We found that physical and functional barriers hampered the opportunity to urinate when away from home due to lack of accessibility and impaired physical functioning. Psychosocial impacts were related to inconvenience and dependency on relatives, fear of stigmatization and impacted dignity, and the constant social sacrifices. The challenge of access to adequate and equitable sanitation for women with neuromuscular diseases is not at always met in society, and these women consequently often must resort to repressing the fundamental need to urinate.

本研究的目的是调查患有神经肌肉疾病的女性在离家小便时所面临的挑战。本研究采用解释性描述方法和 "连贯感 "理论进行定性研究。研究方法是对一家康复专科医院的 12 名神经肌肉疾病妇女(3 名行动自如者和 9 名非行动自如者)进行了三次半结构化焦点小组访谈。我们发现,由于交通不便和身体机能受损,物理和功能性障碍阻碍了外出排尿的机会。社会心理方面的影响则与不便和依赖亲属、害怕被人耻笑和尊严受损以及不断的社会牺牲有关。患有神经肌肉疾病的妇女在获得适当和公平的卫生设施方面所面临的挑战并非总能在社会上得到满足,因此,这些妇女往往不得不压抑小便的基本需求。
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引用次数: 0
Resilience in Relation to Adherence to Antiretroviral Therapy in People Living With HIV: A Qualitative Study. 艾滋病病毒感染者坚持抗逆转录病毒疗法的复原力:定性研究。
IF 1.7 Q2 Nursing Pub Date : 2024-04-24 eCollection Date: 2024-01-01 DOI: 10.1177/23333936241233449
Anggri Noorana Zahra, Agung Waluyo, Sri Yona, Trevino Aristarkus Pakasi

Antiretroviral therapy (ART) adherence significantly impacts the survival and quality of life of people living with HIV (PLWH). Despite the challenges faced by PLWH, adherence remains crucial. Thus, cultivating resilience in ART is essential for optimal treatment outcomes. This qualitative study explored the experience of resilience in relation to ART adherence among PLWH. Semi-structured interviews with 10 participants were conducted and inductively analyzed. Participants' resilience in ART adherence was reflected in their achievements related to cultivating the habit of taking medication and in their convictions that the medication was a daily necessity. PLWH developed resilience through strategies encompassing finding purpose through faith and motivation, fostering wellness by obtaining adequate information, enjoying life, managing disease therapy, and adopting a healthy lifestyle, and building connections by finding adequate support and involving in the community. Nurses are crucial in HIV management, fostering resilience for successful ART adherence and ensuring effective treatment outcomes.

坚持抗逆转录病毒疗法(ART)对艾滋病病毒感染者(PLWH)的生存和生活质量有着重要影响。尽管艾滋病病毒感染者面临各种挑战,但坚持治疗仍然至关重要。因此,在抗逆转录病毒疗法中培养抗逆力对于取得最佳治疗效果至关重要。本定性研究探讨了 PLWH 在坚持抗逆转录病毒疗法方面的抗逆力体验。研究人员对 10 名参与者进行了半结构式访谈,并对访谈结果进行了归纳分析。参与者在坚持抗逆转录病毒疗法方面的抗逆力体现在他们在培养服药习惯方面取得的成就,以及他们坚信药物是日常必需品的信念。PLWH 通过以下策略培养抗逆力:通过信念和动力找到目标;通过获取足够的信息、享受生活、管理疾病治疗和采取健康的生活方式来促进健康;通过寻找足够的支持和参与社区活动来建立联系。护士在艾滋病管理中至关重要,他们可以培养成功坚持抗逆转录病毒疗法的复原力,并确保有效的治疗效果。
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引用次数: 0
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Global Qualitative Nursing Research
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