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Evaluation of a Routine Psychosocial Screening for Patients Receiving Inpatient Specialist Palliative Care: Feasibility and Outcomes. 对住院专科姑息治疗患者进行常规心理筛查的评估:可行性和结果。
IF 1.6 Q3 Social Sciences Pub Date : 2023-01-01 DOI: 10.1080/15524256.2022.2139336
Anneke Ullrich, Said Bahloul, Carsten Bokemeyer, Karin Oechsle

This prospective one-year cohort study aimed to assess the feasibility and outcomes of a routine psychosocial screening at patients' admittance to specialist inpatient palliative care. Patients admitted to an academic palliative care ward were routinely screened for self-reported distress and psychological morbidity, psychosocial stress factors, and subjective need for help from psychosocial professions. Cognitive impairments were the most common patient barrier to screening. Screenings were completed in 138 of 428 patients (32%). Based on established cutoffs, distress was indicated in 89%, depression in 51%, and anxiety in 50% of these patients. The burden on next-of-kin emerged as the most prevalent stress factor (73%). One-half of the patients disclosed a subjective need for help (53%). Possible depression (p = .023), anxiety (p < .001), and subjective need for help (p < .001) correlated positively with a higher amount of time spent by psychologists and creative arts-based therapists with small to moderate effects. Patients who completed the screening were attributed with a higher amount of time by social workers than patients who did not (p = .004), but there were no relationships between screening results and social work. Results suggest the potential of screenings for the allocation of specialist psychosocial care during specialist palliative care; however, barriers to screening do exist.

这项为期一年的前瞻性队列研究旨在评估在接受专科姑息治疗的患者入院时进行常规心理社会筛查的可行性和结果。入院学术姑息治疗病房的患者例行筛查自我报告的痛苦和心理疾病,心理社会压力因素,以及对心理社会专业人员帮助的主观需求。认知障碍是筛查中最常见的障碍。428例患者中有138例(32%)完成了筛查。根据确定的临界值,89%的患者表现为痛苦,51%的患者表现为抑郁,50%的患者表现为焦虑。近亲的负担成为最普遍的压力因素(73%)。一半的患者(53%)表示主观需要帮助。可能是抑郁(p = 0.023),焦虑(p = 0.004),但筛查结果与社会工作之间没有关系。结果表明,在专科姑息治疗期间,筛查可能会分配专科社会心理护理;然而,筛查的障碍确实存在。
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引用次数: 0
Editor's Introduction. 编辑器的介绍。
IF 1.6 Q3 Social Sciences Pub Date : 2023-01-01 DOI: 10.1080/15524256.2023.2184601
Ellen L Csikai
Welcome to the new volume for 2023. In this issue, interventions to improve the lives of caregivers as they provide care to individuals near the end of life is the focus. After two reflections, in a practice concepts and innovations entry, Koufacos describes an educational intervention for stress-reduction among caregivers of Veterans with dementia. There were two aspects of the program, individual counseling provided to caregivers and group self-care webinars. The interventionist was a VA palliative care social worker and these techniques showed promising results. Further examination of this model is needed but it is something that other professionals may wish to consider to reduce caregiver stress and increase self-care among dementia caregivers. In the first of the research articles, a problem-solving intervention among family caregivers of people with cancer receiving outpatient palliative care was examined with respect to dimensions/styles of problem solving. These dimensions are described well by Bruton et al., which included positive and negative orientations and found these to have a relationship with age. Also, gender was related to differences in use of rational problem-solving style and use of negative orientation and an impulsive problem-making style. Because cancer caregivers often have to deal with many changes in care plans, these factors can and should be assessed when working with cancer caregivers in outpatient palliative care settings to determine the most effective aspects of problem solving. Next, Ullrich et al., switch us to examine inpatient palliative care. A multi-factor screening intervention was conducted among patients admitted in a specialist inpatient palliative care unit in an academic center that included self-reported distress as well as psychosocial stress and others. High levels of distress, depression and anxiety were found and those indicating a subjective need for help were also found to have received assistance, such as increased use of psychological services. Social work services increased among those screened but not at a significant level. A major barrier to completing the screening was cognitive impairment. Different methods of screening for distress and other psychosocial problems may need to be developed specifically for palliative care settings. Finally, Isler and Yildirim share their study pointing to the tremendous need for hospice care in Turkey which is currently absent. Although some palliative care units exist, the needs of the country are not being met. In a qualitative approach, both oncology healthcare professionals and family caregivers of individuals near the end of life (without hospice services) were interviewed. Themes centered around preferences for environment of death, problems caused by in-hospital deaths, need for hospice care, and hospice care for caregivers. These themes were shared by the healthcare professionals and the caregivers. For individuals with cancer and their caregiver
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引用次数: 0
Equitable Death Care for Sexual and Gender Minorities: The Role for Social Workers. 性别和性别少数群体的公平死亡护理:社会工作者的角色。
IF 1.6 Q3 Social Sciences Pub Date : 2023-01-01 DOI: 10.1080/15524256.2023.2175104
Jennifer L Wright-Berryman
Early in my career as a suicidologist, I was ignorant about the world of death care, outside of personal experiences attending funerals, celebrations of life, and other forms of memorial and disposition. At the American Association of Suicidology Conference in 2018, I overheard some colleagues discussing the lack of death education in schools. Soon after the conference, I received a phone call from a local pastor asking me to help him properly memorialize the life of a young person who’d died by suicide. Not long after that, I was contacted by a funeral provider, asking me a similar question. It occurred to me that death care providers didn’t know much about suicide, and I didn’t know enough about death care. My journey in studying death care in the United States was born from these conversations. Stigmatized forms of death were difficult for the providers to “get right”. I then wonderedis there anything else the U.S. death care industry needs more help to understand? I began reading the research on all things death and dying, starting with Jessica Mitford’s 1960s scathing expose of the funeral industry, The American Way of Death, then on to nearly every book and research study written since that time. What was largely missing from all these publications was the death care needs of sexual and gender minorities. Topics of culture, tradition, religion, economics, marketing, and policy were all addressed, but nothing was written about the experience of LGBTQIAþ people in the U.S. death care system. I’m not one to shy away from such a glaring omission in one of the largest industries in the United States. Funeral care is a 20-billion-dollar business, however, generally still privatized. Ninety percent of the 18,000 funeral homes in the U.S. are family-owned and operated, with the rest being corporately owned by companies like Service Corporation International (SCI). This is a source of pride for the industry and funeral homes market themselves as communityand family-oriented businesses. What they do not market themselves as is safe spaces for
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引用次数: 0
Supporting Caregivers of Veterans with Dementia. 支持老年痴呆症退伍军人的照顾者。
IF 1.6 Q3 Social Sciences Pub Date : 2023-01-01 DOI: 10.1080/15524256.2023.2184597
Nicholas S Koufacos, Eve M Gottesman, Eugenia Dorisca, Judith L Howe

As the number of veterans with dementia continues to increase, support services for those veterans and their caregivers must also increase. Caregivers of veterans with dementia often report high levels of emotional distress in the form of anxiety, exhaustion, and burden that negatively impacts their health and quality of life. This brief descriptive report highlights a Veterans Health Administration (VHA) project in which a social worker trained in palliative care, teaches stress-reduction to caregivers through individual counseling and virtual groups. In two years, 39 caregivers received individual assessment and counseling focused on stress-reduction. Also, five group webinars were held on the topic of self-care that averaged 17 caregivers per group. 24 caregivers completed a survey and results suggested that stress-reduction and self-care may be viable target areas of intervention for caregivers of veterans with dementia in both individual and group formats. More research is needed in this area to improve our knowledge of how stress may be reduced for caregivers and what type of interventions may be effective to help caregivers reduce stress and improve their self-care.

随着患有痴呆症的退伍军人人数不断增加,对这些退伍军人及其护理人员的支持服务也必须增加。患有痴呆症的退伍军人的护理人员经常报告说,他们的情绪困扰程度很高,表现为焦虑、疲惫和负担,这对他们的健康和生活质量产生了负面影响。这份简短的描述报告重点介绍了退伍军人健康管理局(VHA)的一个项目,在这个项目中,一名接受过姑息治疗培训的社会工作者通过个人咨询和虚拟小组向护理人员传授减轻压力的方法。在两年内,39名护理人员接受了以减轻压力为重点的个人评估和咨询。此外,还举办了五组关于自我护理主题的网络研讨会,平均每组有17名护理人员。24名护理人员完成了一项调查,结果表明,减轻压力和自我护理可能是个体和群体形式的痴呆症退伍军人护理人员干预的可行目标领域。在这个领域需要更多的研究来提高我们对如何减轻照顾者压力的认识,以及什么样的干预措施可以有效地帮助照顾者减轻压力并提高他们的自我照顾能力。
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引用次数: 1
The Need for Hospice Care as a Preferred Environment of Death in Terminal Cancers: A Neglected Research Area in Turkey. 临终关怀作为晚期癌症患者首选的死亡环境:土耳其一个被忽视的研究领域。
IF 1.6 Q3 Social Sciences Pub Date : 2023-01-01 DOI: 10.1080/15524256.2022.2094524
Ayşe Mine İşler, Buğra Yıldırım

In the context of end-of-life practices in Turkey, the researchers considered it important to reveal the need for hospice care in Turkey since the number of palliative care units is low and they do not meet the needs, hospice care services are absent, and intensive care units are misused in parallel with these deficiencies. The researchers addressed the subject with a phenomenological qualitative approach. The views of healthcare professionals and patient relatives who cared for terminal cancer patients. In the context of the environment of death preferences were of interest. The study was conducted in the city center of Manisa, one of the 30 metropolitan cities located in the western region of Turkey. Of the 23 participants, 18 were healthcare professionals working in the field of oncology, and five participants were primary caregivers who lost their loved ones with terminal cancer. The caregiver family members were the family members who provided care to the terminal cancer patient with their own means at home and accompanied the patient's treatment process, since there was no hospice care. A semi-structured interview guide was utilized for the in-depth interviews. Data were transcribed by the researchers and coded in MAXQDA 2020, subjected to thematic analysis, and divided into units of meaning. At the final stage of the study, the units of meaning were combined, and four basic themes were revealed: the conceptualization of the environment of death preferences, the problems caused by death in the hospital, the necessity of hospice care, and hospice care for caregivers. The study results demonstrated that hospice care was an essential need in Turkey, and the workload of hospitals would decrease, and hospital resources could be used efficiently in the presence of hospices. At the same time, it was understood that hospices were services making it easier for terminal cancer patients and their caregivers to face death with peaceful expectations.

在土耳其临终实践的背景下,研究人员认为揭示土耳其对临终关怀的需求是很重要的,因为姑息治疗单位的数量很低,它们不能满足需求,临终关怀服务缺失,重症监护病房与这些缺陷同时被滥用。研究人员用现象学的定性方法来处理这个问题。照顾晚期癌症病人的医护人员及病人家属的意见。在死亡环境的背景下,人们对死亡偏好很感兴趣。这项研究是在土耳其西部30个大城市之一的马尼萨市中心进行的。在23名参与者中,18名是在肿瘤学领域工作的医疗保健专业人员,5名参与者是因癌症晚期失去亲人的主要照顾者。照顾者家庭成员是指在家中以自己的方式照顾晚期癌症患者并陪伴患者治疗过程的家庭成员,因为没有临终关怀。深度访谈采用半结构化访谈指南。数据由研究人员转录并在MAXQDA 2020中编码,进行主题分析,并划分为意义单位。在研究的最后阶段,对意义单位进行了组合,揭示了四个基本主题:死亡偏好环境的概念化,医院死亡引起的问题,临终关怀的必要性,以及照顾者的临终关怀。研究结果表明,在土耳其,临终关怀是一项基本需求,医院的工作量将减少,医院资源可以有效地利用临终关怀的存在。与此同时,据了解,临终关怀是使晚期癌症患者及其护理人员更容易以平静的期望面对死亡的服务。
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引用次数: 0
Hospital Palliative Social Worker's Reflection of Working During The Pandemic. 医院姑息社会工作者对疫情期间工作的思考。
IF 1.6 Q3 Social Sciences Pub Date : 2022-10-01 DOI: 10.1080/15524256.2022.2093316
Julia Manning
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引用次数: 0
Wellbeing of Palliative Care Workers During Covid-19 Pandemic: Implications for Social Work Practice. Covid-19大流行期间姑息治疗工作者的福祉:对社会工作实践的影响
IF 1.6 Q3 Social Sciences Pub Date : 2022-10-01 DOI: 10.1080/15524256.2022.2112808
S Rama Gokula Krishnan, Savita Butola

The present study is aimed at examining the wellbeing of palliative care workers in India (n = 114) with special reference to work related variables. The World Health Organization's five item wellbeing index was used to measure the wellbeing of the respondents. In general, the wellbeing of the respondents was found to be good. Furthermore, the age of the respondent (p < 0.001), gender (p < 0.05), work setting (hospital vs. non-hospital) (p < 0.05), work environment (p < 0.01), recent unemployment (job loss) (p < 0.01), years of experience in palliative care (p < 0.05), number of hours of work per week (p < 0.05), and the number of clients who died in the previous month (p < 0.01), were all found to be associated with the wellbeing of the respondents. Specifically, young and female respondents, those engaged in hospital based palliative care, having a poor work environment, facing recent unemployment, having less experience, working for more number of hours, and having more number of patients dying in the previous month, all had a lower level of wellbeing. The implications for social work practice have also been discussed in detail.

本研究的目的是检查福祉的姑息治疗工作者在印度(n = 114)特别参考工作相关变量。世界卫生组织的五项幸福指数被用来衡量受访者的幸福感。总体而言,受访者的幸福感是良好的。此外,受访者的年龄(p p p p p p p p)
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引用次数: 0
The Buddy System: An Intervention to Reduce Distress and Compassion Fatigue and Promote Resilience on a Palliative Care Team During the COVID-19 Pandemic. 伙伴制度:在COVID-19大流行期间减少痛苦和同情疲劳并提高姑息治疗团队复原力的干预措施。
IF 1.6 Q3 Social Sciences Pub Date : 2022-10-01 DOI: 10.1080/15524256.2022.2122650
Nancy McCool, Jennifer Reidy, Shawna Steadman, Vandana Nagpal

The SARS-CoV-2 pandemic (COVID-19) dramatically increased the number of stressors on healthcare workers, including palliative care practitioners. Restrictions and increased demands on time made it difficult for the UMass Memorial Health palliative care team to utilize preexisting wellness strategies. In response to team members' stress reactions, a buddy system intervention was conceived and implemented to restore a sense of connection and self-efficacy (Phase 1). Our objective with this quality improvement project was to assess the feasibility and effectiveness of the buddy system and evaluate staff attitudes toward this intervention. After four months, feedback from team members informed redesign to a more structured buddy system (Phase 2). A mixed-methods design of this project included a qualitative online survey along with quantitative data collection with the Professional Quality of Life Scale V (ProQOL V) and the Brief Resilience Scale (BRS) during Phase 1. Phase 2 was also evaluated quantitatively with ProQOL V and BRS. Semi-structured interviews were conducted at the end of this project to enhance qualitative data on staff attitudes and beliefs. Of the 12 study participants, 10 completed all phases of the study. Participants reported the buddy system was a useful, easy-to-implement intervention for mitigating personal distress and compassion fatigue (CF) by providing a strong sense of support and connection to team members.

SARS-CoV-2大流行(COVID-19)大大增加了医护人员(包括姑息治疗从业人员)的压力源数量。限制和时间要求的增加使得麻省大学纪念健康姑息治疗团队很难利用现有的健康策略。为了应对团队成员的压力反应,我们设想并实施了伙伴制度干预,以恢复联系感和自我效能感(第一阶段)。我们的质量改进项目的目标是评估伙伴制度的可行性和有效性,并评估员工对这种干预的态度。四个月后,团队成员的反馈通知重新设计一个更结构化的伙伴系统(第二阶段)。该项目采用混合方法设计,包括定性在线调查,以及在第一阶段使用专业生活质量量表V (ProQOL V)和简短弹性量表(BRS)收集定量数据。第2期也用ProQOL V和BRS进行定量评价。在本项目结束时进行了半结构化访谈,以加强有关员工态度和信念的定性数据。在12名研究参与者中,有10人完成了研究的所有阶段。参与者报告说,伙伴制度是一种有用的,易于实施的干预措施,通过提供强烈的支持和与团队成员的联系,减轻个人痛苦和同情疲劳(CF)。
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引用次数: 2
Scars and Conversations. 伤疤和对话。
IF 1.6 Q3 Social Sciences Pub Date : 2022-10-01 DOI: 10.1080/15524256.2022.2093317
Meera Mahendiran
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引用次数: 0
A Palliative Care Social Worker's Reflection on Visiting Restrictions During the COVID-19 Pandemic. 一名姑息治疗社工对新冠肺炎疫情期间探视限制的思考
IF 1.6 Q3 Social Sciences Pub Date : 2022-10-01 DOI: 10.1080/15524256.2022.2105473
Emma Rathjen
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引用次数: 0
期刊
Journal of Social Work in End-of-Life & Palliative Care
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