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Not a One-Size-Fits-All Approach: Building Tribal Infrastructure for Research Through CRCAIH. 不是一刀切的方法:通过CRCAIH建立部落研究基础设施。
IF 1.3 4区 心理学 Q2 Medicine Pub Date : 2019-01-01 DOI: 10.5820/aian.2602.2019.42
Melissa Buffalo, Jessica E. Heinzmann, D. Kenyon, Kathryn Blindman, S. Bordeaux, Anita Frederick, Erin Garrison, C. Greensky, Heather Larsen, Tonya Kjerland, Victoria Grey Owl
The Collaborative Research Center for American Indian Health (CRCAIH) was created to foster tribal partnerships in the Minnesota, North Dakota, and South Dakota regions to increase capacity for tribal research. Since 2013, through community engagement and technical assistance from CRCAIH's cores and divisions, seven tribal partners have expanded research infrastructure and recognize the benefits of an established tribal research office. This manuscript showcases the unique approaches individual CRCAIH tribal partners have taken to build tribal research infrastructure. The unique experiences of the CRCAIH tribal partnership holds valuable lessons for other tribes interested in increasing research capacity through research review, regulation, and data management.
美洲印第安人健康合作研究中心(CRCAIH)的建立是为了促进明尼苏达州、北达科他州和南达科他州地区的部落伙伴关系,以提高部落研究的能力。自2013年以来,通过社区参与和CRCAIH核心和部门的技术援助,七个部落合作伙伴扩大了研究基础设施,并认识到建立部落研究办公室的好处。这份手稿展示了CRCAIH各部落合作伙伴为建立部落研究基础设施所采取的独特方法。CRCAIH部落伙伴关系的独特经验为其他有兴趣通过研究审查、监管和数据管理来提高研究能力的部落提供了宝贵的经验。
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引用次数: 9
Developing the Tribal Resource Guide and the Poverty and Culture Training: The We RISE (Raising Income, Supporting Education) Study. 制定部落资源指南与贫困与文化培训:提高收入,支持教育的研究。
IF 1.3 4区 心理学 Q2 Medicine Pub Date : 2019-01-01 DOI: 10.5820/aian.2602.2019.134
R. O'Leary, L. McCormack, Corrine Huber, C. Hockett, Alli Moran, J. Pesicka
The We RISE Study aimed to support young American Indian mothers on a tribal reservation by addressing social determinants of health at an individual and community-wide level. To address community-based barriers, the study developed the Tribal Resource Guide, a comprehensive list of available resources that was created through partnerships with community programs and staff. In addition to the guide, the study also developed the Poverty and Culture Training in order to train program staff at numerous community programs to better understand and serve lower socioeconomic and/or Native clients. The two projects facilitated collaboration between community programs and provided tools for programs to address barriers and ultimately better serve their target audience. Despite challenges, the transdisciplinary approach used with the local community maximized potential for success. This process and model could be duplicated in communities with similar demographics, resources, and barriers.
“我们崛起”研究旨在通过在个人和社区层面解决健康的社会决定因素,为部落保留地的年轻美洲印第安母亲提供支持。为了解决以社区为基础的障碍,该研究制定了《部落资源指南》,这是一份通过与社区项目和工作人员合作创建的可用资源的综合清单。除了指南之外,该研究还开发了“贫困与文化培训”,以培训众多社区项目的项目人员,以便更好地了解和服务社会经济地位较低和/或土著的客户。这两个项目促进了社区项目之间的合作,并为项目提供了解决障碍的工具,最终更好地为目标受众服务。尽管面临挑战,但与当地社区一起使用的跨学科方法最大限度地发挥了成功的潜力。这一过程和模式可以在具有类似人口、资源和障碍的社区中复制。
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引用次数: 5
A Transdisciplinary Approach is Essential to Community-based Research with American Indian Populations. 跨学科的方法是必不可少的,以社区为基础的研究与美国印第安人人口。
IF 1.3 4区 心理学 Q2 Medicine Pub Date : 2019-01-01 DOI: 10.5820/aian.2602.2019.15
Jessica E. Heinzmann, Anna C. Simonson, D. Kenyon
Social determinants of health and their effects on health outcomes create a complex system, with interaction between social, economic, physical, and biological factors necessitating research take a holistic approach. Transdisciplinary research, one of the three core values of the Collaborative Research Center for American Indian Health, seeks to go beyond methods of knowledge production occurring solely within disciplinary boundaries, because real-world societal problems do not adhere to such restrictions. Community involvement is an essential component for successful research partnerships with American Indian and Alaska Native (AI/AN) communities. We posit that transdisciplinary approaches, which considers community-level expertise as an equitable component on the research team, show great potential for advancing research in AI/AN communities.
健康的社会决定因素及其对健康结果的影响创造了一个复杂的系统,社会、经济、物理和生物因素之间的相互作用需要采取整体方法进行研究。跨学科研究是美洲印第安人健康合作研究中心的三个核心价值之一,它寻求超越仅仅在学科范围内产生知识的方法,因为现实世界的社会问题不遵守这种限制。社区参与是与美国印第安人和阿拉斯加原住民(AI/ an)社区建立成功研究伙伴关系的重要组成部分。我们认为,将社区层面的专业知识视为研究团队公平组成部分的跨学科方法,在推进人工智能/人工智能社区的研究方面显示出巨大的潜力。
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引用次数: 11
Commentary: A Movement to Reclaim American Indian Health through Tribal Sovereignty, Community Partnerships, and Growing Tribally-Driven Health Research. 评论:通过部落主权、社区伙伴关系和日益增长的部落驱动的健康研究来恢复美国印第安人健康的运动。
IF 1.3 4区 心理学 Q2 Medicine Pub Date : 2019-01-01 DOI: 10.5820/aian.2602.2019.172
V. O’Keefe
Indigenous peoples have been engaged in resistance against the destructive effects of colonialism on Indigenous land, lives, all living things, and its impacts on the health and wellbeing of Native peoples since the first arrival of settlers in the Americas. This resistance, at its core, has been a movement to preserve Indigenous peoples, lands, identity, and ways of knowing, learning, respecting, and living harmoniously with the world. In the past half century, the spirit of Indigenous resistance has found its way to the field of health research. Starting with thoughtleaders like Vine Deloria Jr. in 1969, Indigenous scholars have pointed to problematic and harmful research practices that have taken place on tribal lands, and that have sought to expand the Western canon of scientific knowledge without providing solutions to, with, and for Indigenous communities. Since that time, a narrative around collective protection, collaborative research partnerships (i.e., community-based participatory research in all its forms), and tribal sovereignty over research is increasing rapidly. This special issue of American Indian and Alaska Native Mental Health Research takes a giant step forward – beyond a collective resistance against harmful research practices – to a reclamation of collaboration, Indigenous knowledge, strengths, and tribal sovereignty within health research. This group of articles highlights a diverse coalition of tribal communities, transdisciplinary health researchers, academic institutions, community organizations, service providers, and federal agencies that comprise the Collaborative Research Center for American Indian Health (CRCAIH; Kenyon et al., this issue). CRCAIH goals include improving AI health through strategic development of tribal research infrastructure and sustainability of health research with a focus on social determinants (Kenyon et al., this issue). Supported by the National Institutes of Health, the CRCAIH provides a promising pathway to eliminate health disparities among AI communities—Oglala Sioux Tribe, Turtle Mountain Band of Chippewa Indians, Fond du Lac Band of Lake Superior Chippewa, Sisseton-Wahpeton Oyate, Rosebud Sioux Tribe, Cheyenne River Sioux Tribe, and Spirit Lake Nation—in the Northern Plains and Upper Midwest regions.
自从第一批移民抵达美洲以来,土著人民一直在抵抗殖民主义对土著土地、生活和所有生物的破坏性影响及其对土著人民健康和福祉的影响。这种抵抗的核心是保护土著人民、土地、身份以及认识、学习、尊重和与世界和谐相处的方式的运动。在过去的半个世纪里,土著抵抗精神已经进入了健康研究领域。从1969年小瓦因·德洛里亚(Vine Deloria Jr.)等思想领袖开始,土著学者指出了在部落土地上发生的有问题和有害的研究实践,这些研究实践试图扩展西方科学知识的经典,却没有为土著社区提供解决方案,也没有为土著社区提供解决方案。从那时起,围绕集体保护、合作研究伙伴关系(即以社区为基础的各种形式的参与性研究)和部落对研究的主权的叙述正在迅速增加。这期《美国印第安人和阿拉斯加土著心理健康研究》的特刊向前迈出了一大步——超越了对有害研究做法的集体抵制——在健康研究中重新利用合作、土著知识、优势和部落主权。这组文章强调了部落社区、跨学科卫生研究人员、学术机构、社区组织、服务提供者和联邦机构组成的多样化联盟,这些联盟包括美国印第安人健康合作研究中心(CRCAIH;Kenyon等人,本期)。CRCAIH的目标包括通过战略发展部落研究基础设施和以社会决定因素为重点的卫生研究的可持续性来改善人工智能健康(Kenyon等人,本期)。在美国国立卫生研究院的支持下,CRCAIH为消除北部平原和中西部上游地区AI社区之间的健康差异提供了一条有希望的途径-奥格拉拉苏族部落,奇佩瓦印第安人的海龟山部落,苏必利尔湖奇佩瓦湖的Fond du Lac部落,Sisseton-Wahpeton Oyate,玫瑰花蕾苏族部落,夏安河苏族部落和精灵湖民族。
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引用次数: 3
Developing an Indigenous Measure of Overall Health and Well-being: The Wicozani Instrument. 发展整体健康和福祉的土著措施:Wicozani工具。
IF 1.3 4区 心理学 Q2 Medicine Pub Date : 2019-01-01 DOI: 10.5820/aian.2602.2019.96
Heather J. Peters, Teresa R. Peterson
A Native community developed the Wicozani Instrument, a 9-item self-report measure, to assess overall health and well-being from an Indigenous epistemology. The Wicozani Instrument measures mental, physical, and spiritual health and their importance to an individual's quality of life. The instrument's validity and reliability was examined through two studies. Study 1 utilized standardized measures from Native (i.e., Awareness of Connectedness Scale) and Western (i.e., Psychological Sense of School Membership and Suicide Ideation Questionnaire) epistemologies with Native and non-Native youth. Study 2 utilized a community created measure (i.e., Indigenous Healing Strategies Scale) with Dakota women. Results suggest the Wicozani Instrument is valid and reliable. The development of an Indigenous measure of overall health and well-being addresses Western atomistic frameworks, which often perpetuate the perception of Native identity as a risk factor for poor health, and works to disrupt the Cycle of Native Health Disparities.
一个土著社区开发了Wicozani工具,一个包含9个项目的自我报告测量,从土著认识论来评估整体健康和福祉。Wicozani仪器测量心理、身体和精神健康,以及它们对个人生活质量的重要性。通过两项研究验证了该仪器的效度和信度。研究1使用了土著和非土著青年的标准化测量方法(即连通性意识量表)和西方(即学校成员心理感和自杀意念问卷)认识论。研究2对达科他妇女使用了社区创建的测量方法(即土著治疗策略量表)。结果表明,Wicozani仪器是有效可靠的。土著总体健康和福祉衡量标准的制定解决了西方原子论框架的问题,这种框架往往使土著身份认同成为健康状况不差的一个风险因素,并破坏了土著健康差距的循环。
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引用次数: 9
The Collaborative Research Center for American Indian Health's Partnership River of Life: Special Issue Introduction. 美国印第安人健康合作研究中心生命之河:特刊导言。
IF 1.3 4区 心理学 Q2 Medicine Pub Date : 2019-01-01 DOI: 10.5820/aian.2602.2019.1
D. Kenyon, Melissa Buffalo, Jessica E. Heinzmann, M. Seiber, Dorothy M. Castille, A. Elliott
In 2012, the National Institutes of Health funded the Collaborative Research Center for American Indian Health (CRCAIH) to work toward two broad goals: 1) to build tribal research infrastructure, and 2) to increase research on social determinants of health in American Indian communities. As the introduction to this special issue of American Indian and Alaska Native Mental Health Research, we highlight results from the Partnership River of Life evaluation tool in order to provide broader context for the other manuscripts presented here. Insights were gained during the Partnership River of Life group discussion and evaluation process of combining the groups' rivers to create one representation of the CRCAIH partnership. Detailed results underscore insights for similar transdisciplinary groups.
2012年,美国国立卫生研究院资助了美国印第安人健康合作研究中心(CRCAIH),以实现两个广泛的目标:1)建立部落研究基础设施;2)增加对美国印第安人社区健康的社会决定因素的研究。作为《美国印第安人和阿拉斯加原住民心理健康研究》特刊的介绍,我们强调了伙伴关系生命之河评估工具的结果,以便为这里呈现的其他手稿提供更广泛的背景。在伙伴关系生命之河小组讨论和评估过程中,将小组的河流组合在一起,以创建CRCAIH伙伴关系的一个代表,从而获得了见解。详细的结果强调了类似跨学科小组的见解。
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引用次数: 3
Exploring the Relationship between Sense of Coherence and Historical Trauma among American Indian Youth. 美国印第安青年的一致性意识与历史创伤的关系探讨。
IF 1.3 4区 心理学 Q2 Medicine Pub Date : 2018-01-01 DOI: 10.5820/aian.2503.2018.1
William Evans, Bret Davis

Historical trauma has been associated with many health and social issues. However, there is little understanding of how American Indian (AI) youth cope with historical trauma. Sense of Coherence (SOC) provides a promising framework for studying the relationship between resiliency and historical trauma, as it is a theorized mechanism that helps individuals cope with ongoing stress. A multi-method study examining the potential relationship between SOC and historical trauma revealed that higher levels of SOC predicted fewer historical trauma-related symptoms and provided rich detail about how an AI youth sample conceptualized stress and coping. Implications and future directions are discussed.

历史创伤与许多健康和社会问题有关。然而,人们对美国印第安人(AI)青年如何应对历史创伤知之甚少。连贯性感(SOC)作为一种理论化的机制,可以帮助个体应对持续的压力,为研究弹性与历史创伤之间的关系提供了一个有希望的框架。一项考察SOC与历史创伤之间潜在关系的多方法研究显示,较高的SOC水平预示着较少的历史创伤相关症状,并为AI青年样本如何概念化压力和应对提供了丰富的细节。讨论了影响和未来的发展方向。
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引用次数: 12
Feasibility of a Systems Approach to Treat Commercial Tobacco Dependence within American Indian Health Clinics. 在美国印第安人健康诊所治疗商业烟草依赖的系统方法的可行性。
IF 1.3 4区 心理学 Q2 Medicine Pub Date : 2018-01-01 DOI: 10.5820/aian.2503.2018.52
Brandie Buckless, Kristine Rhodes, Meggan McCann, Bruce Christiansen, Jean Forster, Anne Joseph

American Indians and Alaska Natives (AI/ANs) have the highest smoking prevalence, smoking-related disease, and mortality rates of any racial or ethnic group. Three AI health clinics in Minnesota implemented an evidence-based tobacco dependence treatment intervention that included provider education and customized clinical system tools. A baseline assessment of each clinic facility guided the focus of the intervention and tailored the clinical system tools. Clinic staff were assessed with pre/post-training evaluations and annual assessments. Results indicated self-reported improvements in the rate of identifying smoking status (57% to 89%), documenting smoking status (from 60% to 80%), and providing evidence-based treatments such as pharmacotherapy (from 36% to 78%).

美国印第安人和阿拉斯加原住民(AI/ANs)的吸烟率、吸烟相关疾病和死亡率是所有种族或族裔群体中最高的。明尼苏达州的三家人工智能卫生诊所实施了一项基于证据的烟草依赖治疗干预措施,其中包括提供者教育和定制的临床系统工具。每个诊所设施的基线评估指导了干预的重点,并定制了临床系统工具。对诊所工作人员进行培训前/培训后评估和年度评估。结果表明,自我报告的确定吸烟状况的比率(57%至89%)、记录吸烟状况的比率(从60%至80%)以及提供循证治疗(如药物治疗)的比率(从36%至78%)均有所改善。
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引用次数: 0
Screening for Postpartum Depression in American Indian/Alaska Native Women: A Comparison of Two Instruments. 美国印第安人/阿拉斯加原住民妇女产后抑郁症筛查:两种工具的比较。
IF 1.3 4区 心理学 Q2 Medicine Pub Date : 2018-01-01 DOI: 10.5820/aian.2502.2018.74
Jennifer L Heck

This review examined validation studies of the Edinburgh Postnatal Depression Scale (EPDS) and the Patient Health Questionnaire-9 (PHQ-9) to identify an appropriate postpartum depression (PPD) screening tool for American Indian and Alaska Native (AI/AN) women in the U.S. Databases were searched using: EPDS paired with psychometric properties or validation and PHQ-9 paired with PPD and psychometric properties or validation, yielding a final sample of 58 articles. Both tools have good internal consistency, but discriminative validity for detecting PPD in women from non-Western cultures is low. Positive predictive values in these women are low and diverse (EPDS [n = 21] median 67%, range 21.1-90%; PHQ-9 [n = 1] median 26%). The low predictive accuracy of both tools suggests the tools may be culturally biased.

本综述检查了爱丁堡产后抑郁量表(EPDS)和患者健康问卷-9(PHQ-9)的验证研究,以确定适合美国印第安人和阿拉斯加原住民(AI/AN)妇女的产后抑郁(PPD)筛查工具:EPDS 与心理测量学特性或验证配对,PHQ-9 与 PPD 和心理测量学特性或验证配对,最终得到 58 篇文章样本。这两种工具都具有良好的内部一致性,但在检测非西方文化妇女的 PPD 方面的鉴别有效性较低。这些妇女的阳性预测值较低,而且各不相同(EPDS [n = 21] 中位数为 67%,范围为 21.1-90%;PHQ-9 [n = 1] 中位数为 26%)。这两种工具的预测准确性都很低,这表明这些工具可能存在文化偏见。
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引用次数: 11
Community Dissemination in a Tribal Health Setting: A Pharmacogenetics Case Study. 部落健康环境中的社区传播:药物遗传学案例研究。
IF 1.3 4区 心理学 Q2 Medicine Pub Date : 2018-01-01 DOI: 10.5820/aian.2501.2018.80
Julie A Beans, Vanessa Y Hiratsuka, Charlene R Apok, Karen Caindec, Denise A Dillard, Renee F Robinson

Alaska Native and American Indian (AN/AI) people experience a disproportionate burden of health disparities in the United States. Including AN/AI people in pharmacogenetic research offers an avenue to address these health disparities, however the dissemination of pharmacogenetic research results in the community context can be a challenging task. In this paper, we describe a case-study that explores the preferences of AN/AI community members regarding pharmacogenetic research results dissemination. Results were presented as a PowerPoint presentation at the 2016 Alaska Native Health Research Forum (Forum). An audience response system and discussion groups were used to gather feedback from participants. Descriptive statistics were used to assess attendee understanding of the presentation content. Thematic analysis was used to analyze discussion group data. Forum attendees needed time to work through the concept of pharmacogenetics and looked for ways pharmacogenetics could apply to their daily life. Attendees found pharmacogenetics interesting, but wanted a simple description of pharmacogenetics. Community members were optimistic about the potential benefit pharmacogenetic medicine could have in the delivery of health care and expressed excitement this research was taking place. Researchers were urged to communicate throughout the study, not just end research results, to the community. Furthermore, attendees insisted their providers stay informed of research results that may have an impact on health care delivery. Conversational forms of dissemination are recommended when disseminating pharmacogenetic research results at the community level.

在美国,阿拉斯加原住民和美洲印第安人(AN/AI)在健康差异方面承受着过重的负担。将阿拉斯加原住民和美洲印第安人纳入药物基因研究为解决这些健康差异问题提供了一个途径,然而在社区环境中传播药物基因研究成果可能是一项具有挑战性的任务。在本文中,我们介绍了一项案例研究,该研究探讨了非洲裔美国人/亚洲裔美国人社区成员对药物基因研究成果传播的偏好。研究结果以 PowerPoint 演示的形式在 2016 年阿拉斯加原住民健康研究论坛(论坛)上进行了介绍。论坛使用观众反应系统和讨论小组收集与会者的反馈意见。描述性统计用于评估与会者对演讲内容的理解。专题分析用于分析讨论组数据。论坛与会者需要时间来理解药物基因学的概念,并寻找药物基因学应用于日常生活的方法。与会者认为药物基因学很有趣,但希望得到药物基因学的简单介绍。社区成员对药物基因学在提供医疗保健服务方面的潜在益处持乐观态度,并对这项研究的开展表示兴奋。与会者敦促研究人员在整个研究过程中与社区进行沟通,而不仅仅是最终的研究结果。此外,与会者坚持要求他们的医疗服务提供者随时了解可能对医疗服务产生影响的研究成果。在社区层面传播药物基因研究成果时,建议采用对话形式进行传播。
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引用次数: 0
期刊
American Indian and Alaska Native Mental Health Research
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