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Patient Advisory Committee Engagement in a Precision Medicine-Focused Public Oncology Conference: Case Report of Lessons Learned. 患者咨询委员会参与以精准医学为重点的公共肿瘤学会议:经验教训的案例报告。
IF 2.5 Q1 PRIMARY HEALTH CARE Pub Date : 2026-01-01 Epub Date: 2026-02-19 DOI: 10.1177/21501319261420572
Sevtap Savas, Georgia Skardasi, Aaron A Curtis, Marcelo F Martinez, John King, Cyndi Corbett, Judy Donovan Whitty, Gilles LeBlanc, Beverly Pausche, Jennifer Coish, Angela Hyde, Cara MacInnis
<p><strong>Introduction and objectives: </strong>Public partnerships, engagement, and outreach are essential for meaningful knowledge dissemination and exchange activities in public settings. In 2024, we formed the Atlantic Cancer Consortium Patient Advisory Committee (ACC PAC). In March 2025, the ACC PAC delivered a successful public conference on precision medicine and cancer. Our primary objective is to share the perspectives gained, lessons learnt, impact of the event, and recommendations for future public conferences and engagement.</p><p><strong>Methods: </strong>Conference topics were identified by the ACC PAC. Speaker selection and conference promotion were done using various approaches and/or tools. The WebEx virtual platform was used to deliver the conference. This conference was open to all members of the public. A participant satisfaction survey was created using Qualtrics and distributed to registrants during and after the conference. Survey responses were summarized using descriptive statistics when appropriate. ACC PAC members who participated in the conference were encouraged to reflect on their experience.</p><p><strong>Results: </strong>The ACC PAC patient advisors were involved in all key aspects of this conference's organization and delivery. A total of 24 speakers spoke during the conference on various cancer and patient-centered topics. Comments received and self-reflection exercise responses indicated a high level of impact and satisfaction associated with the content and delivery of the conference. Issues experienced, opportunities realized, and good practices implemented, as well as the feedback received helped us develop recommendations for improved delivery of future public conferences and better public engagement activities.</p><p><strong>Conclusions: </strong>In this Case Report, we discuss our learnings from a public conference that was designed and delivered by a public-scientist partnership. Overall, we were able to organize and deliver a successful public conference on precision medicine and cancer, yet there is still room for improvement in practical and technical areas. Our experience, self-reflection, and participant feedback that are described in this manuscript can help inform future public engagement and conference activities in Canada and beyond. Last, we ask decision-makers, such as governments, to provide sustained support for public partnerships and engagement in oncology.Public SummaryThe Atlantic Cancer Consortium Patient Advisory Committee (ACC PAC) is a patient - scientist partnership in Atlantic Canada focusing on precision medicine and cancer, advising the ACC researchers in research and public engagement activities, and actively working to engage with Atlantic Canadians in knowledge dissemination.This group organized and delivered a one-day public conference on March 15, 2025. Topics included patient and family perspectives, precision medicine, cancer risk factors and screening programs, support s
前言和目标:公共伙伴关系、参与和外联对于公共环境中有意义的知识传播和交流活动至关重要。在2024年,我们成立了大西洋癌症联盟患者咨询委员会(ACC PAC)。2025年3月,ACC PAC成功举办了一次关于精准医学和癌症的公开会议。我们的主要目标是分享获得的观点、吸取的教训、活动的影响,以及对未来公共会议和参与的建议。方法:会议主题由ACC PAC确定。演讲者选择和会议推广使用各种方法和/或工具。会议通过WebEx虚拟平台进行。这次会议对所有公众开放。使用Qualtrics创建了参与者满意度调查,并在会议期间和会议结束后分发给注册人。在适当的情况下,使用描述性统计对调查结果进行总结。鼓励参加会议的行政协调会公共事务委员会成员反思他们的经验。结果:ACC PAC患者顾问参与了本次会议组织和交付的所有关键方面。会议期间,共有24位演讲者就各种癌症和以患者为中心的主题发表了演讲。收到的评论意见和自我反思活动的答复表明,会议的内容和执行具有很高的影响和满意度。经历的问题、实现的机会、实施的良好做法,以及收到的反馈,帮助我们提出建议,以改进未来公共会议的交付和更好的公众参与活动。结论:在本案例报告中,我们讨论了我们从一个公共科学家伙伴关系设计和提供的公共会议中学到的经验。总的来说,我们成功地组织和举办了一场关于精准医疗和癌症的公开会议,但在实践和技术领域仍有改进的空间。本文中描述的我们的经验、自我反思和参与者反馈可以为加拿大及其他地区未来的公众参与和会议活动提供信息。最后,我们要求决策者,如政府,为肿瘤学的公共伙伴关系和参与提供持续的支持。大西洋癌症协会患者咨询委员会(ACC PAC)是加拿大大西洋地区的一个专注于精准医学和癌症的患者-科学家伙伴关系,为ACC研究人员提供研究和公众参与活动方面的建议,并积极致力于与大西洋加拿大人进行知识传播。该小组于2025年3月15日组织并举行了为期一天的公开会议。主题包括患者和家庭观点、精准医疗、癌症风险因素和筛查项目、为癌症患者提供的支持服务、临床试验和宣传。会议对所有公众开放。总的来说,这是一次有影响力的活动,以患者和家庭的优先事项、经验以及信息和支持需求为中心。在这次公开活动的组织和举办过程中,我们从经验中学习,从演讲者和参与者的反馈中学习。在本案例报告中,我们讨论了这些观点、吸取的教训、事件的影响以及对未来公共会议的建议。我们还要求决策者持续支持并重视公共伙伴关系和参与癌症问题。
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引用次数: 0
Community Health Worker Perspectives on Building Patient-Provider Trust in Rural Communities of the San Joaquin Valley, California: A Qualitative Study. 加州圣华金河谷农村社区社区卫生工作者对建立患者-提供者信任的看法:一项定性研究。
IF 2.5 Q1 PRIMARY HEALTH CARE Pub Date : 2026-01-01 Epub Date: 2026-02-22 DOI: 10.1177/21501319261425544
Kimberly D Sánchez, Micaela Velasco Sandoval, Rosa D Manzo

Introduction: Patient-provider trust is essential for effective healthcare delivery, influencing care engagement, disclosure, and adherence. Mistrust can delay diagnoses, reduce care utilization, and worsen outcomes. While cultural competence trainings aim to improve provider awareness, few studies examine how community health workers (CHWs) perceive and support trust-building in clinical care.

Purpose: To explore strategies for building and maintaining patient-provider trust from the perspectives of CHWs.

Methods: Using a Community-Based Participatory Research approach, 39 CHWs from 3 rural-serving health centers in California participated in semi-structured focus groups. English and Spanish sessions were co-led by University researchers and trained CHW partners. Deductive thematic analysis was conducted in Dedoose, and descriptive statistics were generated using Stata 17.

Results: CHWs identified 3 factors that shape patient-provider trust: (1) Power dynamics, such as provider-dominated conversations and time constraints, limit trust-building; (2) Communication that fosters emotional safety, including provider attentiveness and respectful verbal and nonverbal behaviors; and (3) Cultural respect and competence, emphasizing the importance of recognizing patients' beliefs and providing language-concordant care.

Discussion: CHWs offer community-informed insights on trust-building that can inform culturally responsive and equity-oriented interventions, particularly in rural and underserved regions. Future efforts should explore co-developing training modules with CHWs to strengthen patient-provider trust.

简介:医患之间的信任对于有效的医疗服务至关重要,它影响着医疗服务的参与、披露和依从性。不信任会延误诊断,降低护理利用率,并使结果恶化。虽然文化能力培训旨在提高提供者意识,但很少有研究调查社区卫生工作者(chw)如何感知和支持临床护理中的信任建立。目的:从卫生保健工作者的角度探讨建立和维护医患信任的策略。方法:采用以社区为基础的参与式研究方法,对来自加利福尼亚州3个农村服务卫生中心的39名chw进行半结构化焦点小组研究。英语和西班牙语课程由大学研究人员和训练有素的CHW合作伙伴共同领导。在Dedoose中进行演绎主题分析,在Stata 17中进行描述性统计。结果:卫生院确定了影响医患信任的3个因素:(1)权力动态,如医生主导的对话和时间限制,限制了信任的建立;(2)促进情感安全的沟通,包括提供者的关注和尊重的言语和非言语行为;(3)文化尊重和能力,强调承认患者信仰和提供语言和谐护理的重要性。讨论:社区卫生工作者为建立信任提供了社区知情的见解,可以为文化响应和面向公平的干预措施提供信息,特别是在农村和服务不足的地区。未来应探索与卫生保健工作者共同开发培训模块,以加强医患之间的信任。
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引用次数: 0
Cross-Sectional Analysis of Insurance Claims Shows Health Care Utilization and Costs Associated With Health-Related Social Needs (HRSNs) in an Urban Population. 保险索赔的横断面分析显示了城市人口中与健康相关的社会需求(HRSNs)相关的医疗保健利用和成本。
IF 2.5 Q1 PRIMARY HEALTH CARE Pub Date : 2026-01-01 Epub Date: 2026-02-18 DOI: 10.1177/21501319261420562
Shimrani L Banik, Samantha Levano, Kevin P Fiori, Allison B Stark, Scott Wetzler, Howard L Forman

Introduction: Unmet health-related social needs (HRSNs) contribute to higher health care spending. Health systems and governments are increasingly addressing these needs to improve outcomes and reduce costs.

Objective: This study examined differences in health care costs and utilization among patients who screened positive versus negative for HRSNs within a large urban health system.

Methods: This retrospective, cross-sectional study included adult Medicaid patients (ages 21-65) who completed a 10-item HRSN screening between April 2018 and December 2019. Each patient's first screening was linked to insurance claims for the following 12 months. Cost and utilization outcomes were analyzed using linear regressions adjusted for sociodemographic covariates.

Results: Of 4432 patients, 1194 (26.9%) screened positive for at least 1 HRSN. Their mean annual health care cost was $8169.72, compared with $4393.22 among those without HRSNs, a difference of $3776.50 (P < .005). Patients with HRSNs also had higher utilization: 3.65 more specialty visits, 1.08 more mental health visits, 0.86 more emergency visits, and 0.40 additional inpatient days annually (P < .005).

Conclusions: Unmet HRSNs were linked to significantly higher costs and utilization, highlighting the potential of addressing social needs to improve outcomes and reduce health care spending.

未满足的健康相关社会需求(HRSNs)导致更高的卫生保健支出。卫生系统和政府正在越来越多地解决这些需求,以改善结果和降低成本。目的:本研究考察了大型城市卫生系统中HRSNs筛查阳性和阴性患者在医疗费用和利用方面的差异。方法:这项回顾性横断面研究纳入了在2018年4月至2019年12月期间完成10项HRSN筛查的成年医疗补助患者(21-65岁)。每位患者的首次筛查与接下来12个月的保险索赔有关。成本和利用结果使用调整了社会人口协变量的线性回归进行分析。结果:在4432例患者中,1194例(26.9%)筛查出至少1种HRSN阳性。他们的平均年卫生保健费用为8169.72美元,而没有HRSNs的人为4393.22美元,差异为3776.50美元(P)结论:未满足HRSNs的人的成本和利用率显著较高,突出了解决社会需求以改善结果和减少卫生保健支出的潜力。
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引用次数: 0
Merging Law and Medicine: Patient Attitudes About and Experiences with Social Needs Screening and Medical-Legal Partnerships in Primary Care. 合并法律和医学:患者对社会需求筛选和初级保健医疗法律伙伴关系的态度和经验。
IF 2.5 Q1 PRIMARY HEALTH CARE Pub Date : 2026-01-01 Epub Date: 2026-01-07 DOI: 10.1177/21501319251411488
Jamelia D Graham, Jennifer L Kraschnewski, Sophia I Allen, Medha Makhlouf, Josheili Llavona-Ortiz, William A Calo

Background: Collecting patients' social determinants of health data allows primary care providers to identify needed services that can address patients' social needs and improve their overall health. Patients' social needs may also be addressed through collaborations between legal and primary care teams, known as medical-legal partnerships (MLPs). We sought to understand patients' experiences with social needs screening (SNS) and MLPs in primary care.

Methods: In 2024, we conducted a web-based survey with a national sample of 502 U.S. adults who had visited a primary care provider in the prior year. The survey assessed patients' experiences with SNS, preferences of SNS delivery and referrals, and perceptions of MLPs. Analyses used multivariable logistic regression models to assess correlates of willingness to use MLPs.

Results: Thirty-eight percent of participants (n = 194) reported having completed a SNS. Of those who completed a SNS, 51% were offered a referral to address their social needs, including 19% who were referred to legal assistance. Approximately 53% of all participants said they were willing to use MLPs. Participants were more willing to use MLPs if they live in rural communities (Odds Ratio [OR] = 1.79, 95% Confidence Interval [CI]: 1.07-3.01) and were aware of SNS (OR = 1.47, 95% CI: 1.05-2.06) and receive public benefits (OR = 0.67, 95% CI: 0.48-0.93).

Conclusion: MLPs are perceived favorably among patients. Establishing MLPs in rural areas may help address social determinants of health in these communities. Next steps in this research include understanding how to build trust in legal representatives in communities with negative experiences with the justice system.

背景:收集患者健康的社会决定因素数据使初级保健提供者能够确定能够满足患者社会需求并改善其整体健康的所需服务。患者的社会需求也可以通过法律和初级保健团队之间的合作来解决,称为医疗-法律伙伴关系(mlp)。我们试图了解患者在初级保健中使用社会需求筛查(SNS)和mlp的经验。方法:在2024年,我们对502名在前一年访问过初级保健提供者的美国成年人进行了一项基于网络的调查。该调查评估了患者使用社交网络的经历、社交网络交付和转诊的偏好,以及对mlp的看法。分析使用多变量逻辑回归模型来评估使用mlp意愿的相关因素。结果:38%的参与者(n = 194)报告完成了社交网络。在完成社交网络的人中,51%的人获得了解决其社会需求的转诊,其中19%的人获得了法律援助。大约53%的参与者表示他们愿意使用mlp。如果参与者生活在农村社区(优势比[OR] = 1.79, 95%置信区间[CI]: 1.07-3.01),并且知道社交网络(OR = 1.47, 95% CI: 1.05-2.06)和接受公共福利(OR = 0.67, 95% CI: 0.48-0.93),则他们更愿意使用mlp。结论:患者对mlp有良好的认知。在农村地区建立家庭保健计划可能有助于解决这些社区健康的社会决定因素。这项研究的下一步包括了解如何在与司法系统有负面经历的社区中建立对法律代表的信任。
{"title":"Merging Law and Medicine: Patient Attitudes About and Experiences with Social Needs Screening and Medical-Legal Partnerships in Primary Care.","authors":"Jamelia D Graham, Jennifer L Kraschnewski, Sophia I Allen, Medha Makhlouf, Josheili Llavona-Ortiz, William A Calo","doi":"10.1177/21501319251411488","DOIUrl":"10.1177/21501319251411488","url":null,"abstract":"<p><strong>Background: </strong>Collecting patients' social determinants of health data allows primary care providers to identify needed services that can address patients' social needs and improve their overall health. Patients' social needs may also be addressed through collaborations between legal and primary care teams, known as medical-legal partnerships (MLPs). We sought to understand patients' experiences with social needs screening (SNS) and MLPs in primary care.</p><p><strong>Methods: </strong>In 2024, we conducted a web-based survey with a national sample of 502 U.S. adults who had visited a primary care provider in the prior year. The survey assessed patients' experiences with SNS, preferences of SNS delivery and referrals, and perceptions of MLPs. Analyses used multivariable logistic regression models to assess correlates of willingness to use MLPs.</p><p><strong>Results: </strong>Thirty-eight percent of participants (n = 194) reported having completed a SNS. Of those who completed a SNS, 51% were offered a referral to address their social needs, including 19% who were referred to legal assistance. Approximately 53% of all participants said they were willing to use MLPs. Participants were more willing to use MLPs if they live in rural communities (Odds Ratio [OR] = 1.79, 95% Confidence Interval [CI]: 1.07-3.01) and were aware of SNS (OR = 1.47, 95% CI: 1.05-2.06) and receive public benefits (OR = 0.67, 95% CI: 0.48-0.93).</p><p><strong>Conclusion: </strong>MLPs are perceived favorably among patients. Establishing MLPs in rural areas may help address social determinants of health in these communities. Next steps in this research include understanding how to build trust in legal representatives in communities with negative experiences with the justice system.</p>","PeriodicalId":46723,"journal":{"name":"Journal of Primary Care and Community Health","volume":"17 ","pages":"21501319251411488"},"PeriodicalIF":2.5,"publicationDate":"2026-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12779904/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145919134","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
"The resources are there, it's just not sufficient:" Primary Care Team Members and Their Experiences with Connecting Patients to Needed Resources. “资源是有的,只是还不够:”初级保健团队成员及其将患者与所需资源联系起来的经验。
IF 2.5 Q1 PRIMARY HEALTH CARE Pub Date : 2026-01-01 Epub Date: 2026-01-16 DOI: 10.1177/21501319251413968
Jasmine Rodriguez, Tharani Ravi, Erika L Thompson, Robert L Ferrer

Background: Non-medical drivers of Health (NMDOH) (e.g., discrimination, income) influence the health status of individuals and their families. In primary care, where clinicians are trained to provide continuous, comprehensive care to patients, there is increasing recognition of the complexity to treat patients impacted by adverse NMDOH. Addressing complex needs requires coordinated support from both healthcare and social systems to overcome socioeconomic barriers and improve outcomes. The purpose of this project was to identify barriers that clinic team members encounter when referring patients to resources.

Methods: Focus groups were conducted with Primary Care Providers and staff (e.g., Social Workers) regularly tasked with referring patients to community organizations. Interviews were audio-recorded, transcribed, and analyzed.

Results: Participants described 3 themes related to barriers: (1) PCPs Are Unaware of Appropriate Referral Processes and Services/Scope of Services Available Internally, (2) Constant Fluctuation of Community Resources Limit Access, and (3) Cost, Communication, Transportation, and Paperwork Limit Patient Access to Services. A fourth theme included participants' recommendations for Solutions to Improve the Referral Process and Communication.

Conclusion: Understanding the barriers between healthcare providers and community organizations can provide a guide toward improving referral protocols and access to resources, thus ultimately leading toward a more equitable community.

背景:非医疗健康驱动因素(NMDOH)(如歧视、收入)影响个人及其家庭的健康状况。在初级保健中,临床医生接受培训,为患者提供持续、全面的护理,人们越来越认识到治疗受不良NMDOH影响的患者的复杂性。解决复杂的需求需要卫生保健和社会系统的协调支持,以克服社会经济障碍并改善结果。这个项目的目的是确定诊所团队成员在转介病人到资源时遇到的障碍。方法:与初级保健提供者和工作人员(如社会工作者)进行焦点小组,定期负责将患者转介到社区组织。采访被录音、转录和分析。结果:参与者描述了与障碍相关的3个主题:(1)pcp不了解适当的转诊流程和内部可用的服务/服务范围,(2)社区资源的持续波动限制了访问,(3)成本,通信,交通和文书工作限制了患者获得服务。第四个主题包括与会者就改善转介程序和沟通的解决方案提出建议。结论:了解卫生保健提供者和社区组织之间的障碍可以为改进转诊协议和获取资源提供指导,从而最终导致一个更公平的社区。
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引用次数: 0
The Effects of a Health Literacy Promotion Program on Health Behaviors and Blood Pressure Levels Among Uncontrolled Hypertensive Patients: A Quasi-Experimental Study. 健康素养促进计划对未控制高血压患者健康行为和血压水平的影响:一项准实验研究。
IF 2.5 Q1 PRIMARY HEALTH CARE Pub Date : 2026-01-01 Epub Date: 2026-01-13 DOI: 10.1177/21501319251412653
Linya Tesamut, Patcharin Sungwan, Jintana Somrit

Introduction: Uncontrolled hypertension is a leading global public health concern, contributing significantly to cardiovascular disease burden and premature mortality. Crucially, insufficient patient health literacy often underlies poor blood pressure management. Enhancing health literacy therefore offers substantial potential to empower patients, foster beneficial health behaviors, and ultimately achieve effective blood pressure control.

Objective: To evaluate the effects of a health literacy promotion program on health behaviors and systolic and diastolic blood pressure levels in patients with uncontrolled hypertension.

Methods: This quasi-experimental study employed a 2-group pretest-posttest design with 50 patients diagnosed with uncontrolled hypertension. It was conducted at a subdistrict health promoting hospital in Phayao Province, Thailand. Participants were randomly assigned to either an experimental or a control group, with 25 individuals in each. The control group received usual care, while the experimental group participated in a 12-week health literacy promotion program. This intervention comprised small-group activities incorporating the Teach-back method, Ask Me 3, and motivational interviewing, supplemented by home-based phone calls. The program aimed to develop 6 key health literacy skills. Data were analyzed using descriptive statistics, chi-square test, Fisher's exact test, Mann-Whitney U test, paired t-test, independent t-test, and ANCOVA.

Results: The experimental group showed a significant increase in health behavior scores by 8.72 points post-program (95% CI: 6.61, 10.82; P < .001). This increase was 9.52 points greater than that observed in the control group (95% CI: 6.46, 12.58; P < .001; Cohen d = 1.77). Systolic blood pressure decreased by 14.00 mmHg post-program (95% CI: -17.82, -10.18; P < .001). The between-group difference in reduction was -6.97 mmHg (95% CI: -13.33, -0.60; P = .033, Partial η2 = 0.094), indicating a significantly larger reduction in the experimental group. Although diastolic blood pressure decreased by 10.24 mmHg post-program (95% CI: -13.72, -6.76; P < .001), this change did not significantly differ from the control group (P = .387).

Conclusions: The health literacy promotion program significantly improved health behaviors and reduced systolic blood pressure, suggesting its feasibility for implementation in primary care settings. Future research should employ larger sample sizes and extended follow-up periods to thoroughly examine the program's long-term effectiveness across diverse populations.

不受控制的高血压是全球主要的公共卫生问题,对心血管疾病负担和过早死亡有重大影响。至关重要的是,患者健康知识不足往往是血压管理不善的根本原因。因此,提高健康素养为增强患者权能、培养有益的健康行为并最终实现有效的血压控制提供了巨大的潜力。目的:评价健康素养促进项目对未控制高血压患者健康行为和收缩压、舒张压水平的影响。方法:采用两组前测后测设计,对50例高血压未控制患者进行准实验研究。该试验在泰国帕瑶省的一家街道卫生促进医院进行。参与者被随机分为实验组和对照组,每组25人。对照组接受常规护理,实验组参加为期12周的健康素养促进计划。这种干预包括小组活动,包括反教方法、问我3、动机性访谈,以及家庭电话。该项目旨在培养6项关键的健康素养技能。数据分析采用描述性统计、卡方检验、Fisher确切检验、Mann-Whitney U检验、配对t检验、独立t检验和ANCOVA。结果:实验组健康行为评分在项目后显著提高了8.72分(95% CI: 6.61, 10.82; P P d = 1.77)。收缩压降低14.00 mmHg (95% CI: -17.82, -10.18; P =。033,偏η2 = 0.094),表明实验组的降幅明显更大。尽管计划后舒张压降低了10.24 mmHg (95% CI: -13.72, -6.76; P = .387)。结论:健康素养促进项目可显著改善健康行为,降低收缩压,提示其在初级保健机构实施的可行性。未来的研究应该采用更大的样本量和更长的随访期,以彻底检查该计划在不同人群中的长期有效性。
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引用次数: 0
Patient Perceptions of Family Physicians' Roles in Addressing Food Insecurity. 患者对家庭医生在解决粮食不安全问题中的作用的看法。
IF 2.5 Q1 PRIMARY HEALTH CARE Pub Date : 2026-01-01 Epub Date: 2026-03-19 DOI: 10.1177/21501319261432988
Lisa Huang, Anna Flts, Aarsa Moosavi, Stuti Jha, Philip Collins

Background: Food insecurity (FI) affects health outcomes, yet screening in primary care remains limited and little is known about how patients view the physician's role. This study examined patient comfort and expectations with FI-related care.

Methods: A cross-sectional survey of adult patients was conducted at family medicine clinics in New Jersey. The survey assessed patient comfort and expectations regarding FI discussions. Associations were analyzed using ANOVA and probit regression.

Results: Among 250 respondents, 17.2% screened positive for FI. Few participants reported previous FI screening (1.2%), discussions with their primary care provider (1.2%), or referrals to FI resources (1.6%). Most respondents felt comfortable discussing FI. Patients identified roles for physicians in screening (24%) and providing referrals (37%).

Conclusions: FI was common, yet screening, discussion, and referral rates were low despite patient comfort with physician involvement. Integrating patient perspectives into screening may improve FI identification and support within family medicine settings.

背景:食品不安全(FI)影响健康结果,但在初级保健筛查仍然有限,很少了解患者如何看待医生的作用。本研究考察了患者对fi相关护理的舒适度和期望。方法:对新泽西州家庭医学门诊的成年患者进行横断面调查。该调查评估了患者对FI讨论的舒适度和期望。关联分析采用方差分析和概率回归。结果:在250名受访者中,17.2%的人筛查出FI阳性。很少有参与者报告以前的FI筛查(1.2%),与初级保健提供者讨论(1.2%),或转诊到FI资源(1.6%)。大多数受访者对讨论金融危机感到自在。患者确定医生在筛查(24%)和提供转诊(37%)中的角色。结论:FI是常见的,但筛查,讨论和转诊率低,尽管患者舒适的医生参与。将患者观点纳入筛查可以改善家庭医学环境中的FI识别和支持。
{"title":"Patient Perceptions of Family Physicians' Roles in Addressing Food Insecurity.","authors":"Lisa Huang, Anna Flts, Aarsa Moosavi, Stuti Jha, Philip Collins","doi":"10.1177/21501319261432988","DOIUrl":"https://doi.org/10.1177/21501319261432988","url":null,"abstract":"<p><strong>Background: </strong>Food insecurity (FI) affects health outcomes, yet screening in primary care remains limited and little is known about how patients view the physician's role. This study examined patient comfort and expectations with FI-related care.</p><p><strong>Methods: </strong>A cross-sectional survey of adult patients was conducted at family medicine clinics in New Jersey. The survey assessed patient comfort and expectations regarding FI discussions. Associations were analyzed using ANOVA and probit regression.</p><p><strong>Results: </strong>Among 250 respondents, 17.2% screened positive for FI. Few participants reported previous FI screening (1.2%), discussions with their primary care provider (1.2%), or referrals to FI resources (1.6%). Most respondents felt comfortable discussing FI. Patients identified roles for physicians in screening (24%) and providing referrals (37%).</p><p><strong>Conclusions: </strong>FI was common, yet screening, discussion, and referral rates were low despite patient comfort with physician involvement. Integrating patient perspectives into screening may improve FI identification and support within family medicine settings.</p>","PeriodicalId":46723,"journal":{"name":"Journal of Primary Care and Community Health","volume":"17 ","pages":"21501319261432988"},"PeriodicalIF":2.5,"publicationDate":"2026-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"147487808","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Factors Associated with Under- and Over-Screening for Cervical Cancer in Rural Areas of Cuenca, Ecuador. 厄瓜多尔昆卡农村地区宫颈癌筛查不足和过度的相关因素
IF 2.5 Q1 PRIMARY HEALTH CARE Pub Date : 2026-01-01 Epub Date: 2026-03-16 DOI: 10.1177/21501319251414282
Dayanara Delgado López, Juan Pozo-Palacios, Jorge Vergara Quezada, Raúl Caulier-Cisterna, Bernardo Vega Crespo, Veronique Verhoeven, Vivian Alejandra Neira

Background: Cervical cancer (CC) remains a leading cause of death among women worldwide despite the availability of effective preventive strategies. In Ecuador, CC is the second most prevalent cancer among women. However, many women in rural areas remain inadequately screened, resulting in both underscreening and overscreening patterns.

Objective: To identify the determinants associated with under- and overscreening for CC among women in rural areas of Cuenca, Ecuador.

Methods: A cross-sectional, door-to-door survey was conducted between September and December 2023 in the rural parishes of Nulti and Chiquintad. A total of 1692 women aged 18 years and older were included. Participants were categorized as under-, optimally, or overscreened based on self-reported Pap test frequency according to the World Health Organization (WHO) recommended 3-to-5-year screening intervals. Odds ratio (OR) with 95% confidence intervals (CI) were calculated to identify associated factors.

Results: Among the participants, 42.7% were underscreened, 19.3% optimally screened, and 37.9% overscreened. Underscreening was associated with being older than 45 years, having a low educational level, being single, experiencing embarrassment during genital examination, and lack of time. Overscreening was associated with being younger than 45 years, having higher education, and a strong willingness to undergo screening.

Conclusions: Targeted interventions should address informational and emotional barriers contributing to underscreening while discouraging unnecessary overscreening. Strengthened counseling, public education, and standardized guidelines could improve the efficiency and equity of CC screening programs.

背景:尽管有有效的预防策略,但宫颈癌仍然是全世界妇女死亡的主要原因。在厄瓜多尔,CC是女性中第二常见的癌症。然而,农村地区的许多妇女仍然没有得到充分的筛查,造成筛查不足和过度筛查的情况。目的:确定与厄瓜多尔昆卡农村地区妇女CC筛查不足和过度相关的决定因素。方法:于2023年9月至12月在努尔蒂和奇昆塔德农村教区进行了横断面上门调查。总共包括1692名18岁及以上的女性。根据世界卫生组织(WHO)推荐的3- 5年筛查间隔,根据自我报告的巴氏试验频率,将参与者分为筛查不足、最佳或过度筛查。计算比值比(OR)和95%置信区间(CI)以确定相关因素。结果:在参与者中,42.7%的人筛查不足,19.3%的人筛查最佳,37.9%的人筛查过度。筛查不足与年龄大于45岁、受教育程度低、单身、在生殖器检查时感到尴尬以及缺乏时间有关。过度筛查与年龄小于45岁、受过高等教育、强烈接受筛查的意愿有关。结论:有针对性的干预措施应解决导致筛查不足的信息和情感障碍,同时阻止不必要的过度筛查。加强咨询、公众教育和标准化指南可以提高CC筛查项目的效率和公平性。
{"title":"Factors Associated with Under- and Over-Screening for Cervical Cancer in Rural Areas of Cuenca, Ecuador.","authors":"Dayanara Delgado López, Juan Pozo-Palacios, Jorge Vergara Quezada, Raúl Caulier-Cisterna, Bernardo Vega Crespo, Veronique Verhoeven, Vivian Alejandra Neira","doi":"10.1177/21501319251414282","DOIUrl":"https://doi.org/10.1177/21501319251414282","url":null,"abstract":"<p><strong>Background: </strong>Cervical cancer (CC) remains a leading cause of death among women worldwide despite the availability of effective preventive strategies. In Ecuador, CC is the second most prevalent cancer among women. However, many women in rural areas remain inadequately screened, resulting in both underscreening and overscreening patterns.</p><p><strong>Objective: </strong>To identify the determinants associated with under- and overscreening for CC among women in rural areas of Cuenca, Ecuador.</p><p><strong>Methods: </strong>A cross-sectional, door-to-door survey was conducted between September and December 2023 in the rural parishes of Nulti and Chiquintad. A total of 1692 women aged 18 years and older were included. Participants were categorized as under-, optimally, or overscreened based on self-reported Pap test frequency according to the World Health Organization (WHO) recommended 3-to-5-year screening intervals. Odds ratio (OR) with 95% confidence intervals (CI) were calculated to identify associated factors.</p><p><strong>Results: </strong>Among the participants, 42.7% were underscreened, 19.3% optimally screened, and 37.9% overscreened. Underscreening was associated with being older than 45 years, having a low educational level, being single, experiencing embarrassment during genital examination, and lack of time. Overscreening was associated with being younger than 45 years, having higher education, and a strong willingness to undergo screening.</p><p><strong>Conclusions: </strong>Targeted interventions should address informational and emotional barriers contributing to underscreening while discouraging unnecessary overscreening. Strengthened counseling, public education, and standardized guidelines could improve the efficiency and equity of CC screening programs.</p>","PeriodicalId":46723,"journal":{"name":"Journal of Primary Care and Community Health","volume":"17 ","pages":"21501319251414282"},"PeriodicalIF":2.5,"publicationDate":"2026-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"147469677","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Evaluating Childhood Intimate Partner Violence and Adolescent Bullying and Cyberbullying Perpetration: A Longitudinal 2-Part Mixed-Effects Model Approach. 评估童年亲密伴侣暴力与青少年欺凌和网络欺凌行为:纵向两部分混合效应模型方法。
IF 2.5 Q1 PRIMARY HEALTH CARE Pub Date : 2026-01-01 Epub Date: 2026-03-13 DOI: 10.1177/21501319261429748
Shuo Feng, Chendong Li, Fanyi Yu, Oi-Man Kwok, Timothy Lawrence

Objective: This current study aims to explore the associations and the longitudinal effects of childhood intimate violent exposure (IPV) on bullying and cyberbullying perpetrations and the trajectory of bullying and cyberbullying perpetrations during adolescence.

Methods: This study used data from the Bullying, Sexual, and Dating Violence Trajectories from Early to Late Adolescence in the Midwestern United States, 2007 to 2013. One thousand one hundred sixty-two participants were recruited from 4 Midwestern middle schools (mean age = 11.81; SD = 1.09) and followed into high schools. A 2-part mixed-effects model, the logit submodel and the continuous submodel, was used for statistical analyses.

Results: Bullying perpetration declined as adolescents aged (β = -.03, P < 0.01), while cyberbullying perpetration increased (β = .05, P < .01). Adolescents who have childhood IPV exposure were more likely to engage in bully perpetration (β = .27, P < .01) and cyberbullying perpetration (β = .17, P < .05).

Conclusions: Cyberbullying perpetration has increased as ages, while bullying perpetration decreased. Childhood IPV exposure significantly increased the levels of bullying and cyberbullying perpetrations. Parents need to avoid violent behaviors in front of children; in addition, parents and teachers should pay attention to children's online experiences and educate children about emotion control and proper tools for dealing with negative experiences.

目的:本研究旨在探讨儿童亲密暴力暴露(IPV)与欺凌和网络欺凌行为的关系和纵向影响,以及青少年时期欺凌和网络欺凌行为的发展轨迹。方法:本研究使用了2007年至2013年美国中西部青少年早期到晚期的欺凌、性暴力和约会暴力轨迹数据。从中西部4所中学招募了1262名参与者(平均年龄= 11.81;SD = 1.09),并随访到高中。采用logit子模型和连续子模型两部分混合效应模型进行统计分析。结果:网络欺凌的实施率随青少年年龄的增长而下降(β = - 0.03, P P P P P)。结论:网络欺凌的实施率随年龄的增长而增加,而欺凌的实施率则随年龄的增长而减少。儿童时期暴露于IPV显著增加了欺凌和网络欺凌行为的水平。父母要避免在孩子面前有暴力行为;此外,家长和老师应该关注孩子的网络体验,教育孩子情绪控制和处理负面体验的适当工具。
{"title":"Evaluating Childhood Intimate Partner Violence and Adolescent Bullying and Cyberbullying Perpetration: A Longitudinal 2-Part Mixed-Effects Model Approach.","authors":"Shuo Feng, Chendong Li, Fanyi Yu, Oi-Man Kwok, Timothy Lawrence","doi":"10.1177/21501319261429748","DOIUrl":"10.1177/21501319261429748","url":null,"abstract":"<p><strong>Objective: </strong>This current study aims to explore the associations and the longitudinal effects of childhood intimate violent exposure (IPV) on bullying and cyberbullying perpetrations and the trajectory of bullying and cyberbullying perpetrations during adolescence.</p><p><strong>Methods: </strong>This study used data from the Bullying, Sexual, and Dating Violence Trajectories from Early to Late Adolescence in the Midwestern United States, 2007 to 2013. One thousand one hundred sixty-two participants were recruited from 4 Midwestern middle schools (mean age = 11.81; SD = 1.09) and followed into high schools. A 2-part mixed-effects model, the logit submodel and the continuous submodel, was used for statistical analyses.</p><p><strong>Results: </strong>Bullying perpetration declined as adolescents aged (β = -.03, <i>P</i> < 0.01), while cyberbullying perpetration increased (β = .05, <i>P</i> < .01). Adolescents who have childhood IPV exposure were more likely to engage in bully perpetration (β = .27, <i>P</i> < .01) and cyberbullying perpetration (β = .17, <i>P</i> < .05).</p><p><strong>Conclusions: </strong>Cyberbullying perpetration has increased as ages, while bullying perpetration decreased. Childhood IPV exposure significantly increased the levels of bullying and cyberbullying perpetrations. Parents need to avoid violent behaviors in front of children; in addition, parents and teachers should pay attention to children's online experiences and educate children about emotion control and proper tools for dealing with negative experiences.</p>","PeriodicalId":46723,"journal":{"name":"Journal of Primary Care and Community Health","volume":"17 ","pages":"21501319261429748"},"PeriodicalIF":2.5,"publicationDate":"2026-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12988274/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"147460498","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Development and Evaluation of an AI Avatar Educational Tool for Depression and Anxiety: A Qualitative Pilot Study. 抑郁和焦虑的人工智能化身教育工具的开发和评估:一项定性试点研究。
IF 2.5 Q1 PRIMARY HEALTH CARE Pub Date : 2026-01-01 Epub Date: 2026-01-20 DOI: 10.1177/21501319251413030
Adam Bleik, Patricia Marr, Shelly-Anne Li, Debbie Kwan, Catherine Ji, Kori Leblanc, Yuki Meng, Christine Papoushek

Background: Depression and anxiety affect nearly 1 in 4 Canadians. Traditional patient education materials, such as handouts, are often lengthy and difficult to understand, leading to disengagement. Human-like artificial intelligence (AI) avatars offer a novel way to supplement education by delivering consistent, engaging video content that mimics human interaction and is easily accessible online.

Objective: This pilot study aimed to develop a human-like, non-generative AI avatar educational video to support education on antidepressants for patients living with depression and anxiety. The secondary objectives were to evaluate participants perceptions of the tool across 3 domains: credibility, satisfaction, and understanding.

Methods: The video was developed through 2 Plan-Do-Study-Act (PDSA) cycles, informed by prior research on patient-reported barriers and enablers to antidepressant use. After viewing the video, participants completed a survey assessing the 3 domains. Success was predefined as ≥60% of participants rating each domain ≥4 on a 5-point Likert scale. Open-ended feedback was summarized descriptively to help inform revisions.

Results: Fifteen University Health Network (UHN) Patient Partners participated in PDSA Cycle 1, most with lived experience of depression or anxiety and high digital literacy. Success thresholds were achieved for credibility (75%) and satisfaction (67%) but not for understanding (50%). After revisions, 10 participants from the original group completed PDSA Cycle 2, where all domains exceeded thresholds (credibility 90%, satisfaction 85%, understanding 82%). Participants described the tool as trustworthy, clear, and engaging.

Conclusion: This pilot study demonstrated that human-like, non-generative AI avatars can be an effective supplementary educational tool to deliver education on antidepressants for individuals with depression and anxiety. The tool demonstrated acceptability across credibility, satisfaction, and perceived understanding, highlighting its potential to enhance patient engagement and access to reliable information. As a scalable and adaptable format, avatar-based education may extend beyond mental health to other conditions, languages, and clinical settings. Future studies should examine its impact on knowledge retention, treatment adherence, and integration into clinical practice.

背景:近四分之一的加拿大人患有抑郁症和焦虑症。传统的患者教育材料,如讲义,往往很长,难以理解,导致脱离接触。类人人工智能(AI)化身提供了一种新颖的方式来补充教育,通过提供一致的、引人入胜的视频内容来模仿人类互动,并且很容易在线访问。目的:本试点研究旨在开发一个类似人类的非生成人工智能化身教育视频,以支持抑郁症和焦虑症患者的抗抑郁药物教育。次要目标是评估参与者对该工具在三个方面的看法:可信度、满意度和理解。方法:该视频是通过两个计划-做-研究-行动(PDSA)周期开发的,根据先前对患者报告的抗抑郁药使用障碍和促进因素的研究。观看完视频后,参与者完成了一份评估这三个领域的调查。成功被预先定义为≥60%的参与者在5分李克特量表上将每个域评为≥4。对开放式反馈进行了描述性总结,以帮助修订。结果:15名大学健康网络(UHN)患者参与了PDSA第1周期,其中大多数有抑郁或焦虑的生活经历,并具有较高的数字素养。达到了可信度(75%)和满意度(67%)的成功阈值,但没有达到理解(50%)的成功阈值。修订后,原组的10名参与者完成了PDSA周期2,其中所有领域都超过了阈值(可信度90%,满意度85%,理解度82%)。参与者将该工具描述为值得信赖、清晰和引人入胜的。结论:这项初步研究表明,类人的、不可生成的人工智能化身可以作为一种有效的辅助教育工具,为抑郁症和焦虑症患者提供抗抑郁药的教育。该工具在可信度、满意度和感知理解方面都证明了可接受性,突出了其提高患者参与度和获得可靠信息的潜力。作为一种可扩展和适应性强的形式,基于化身的教育可以扩展到心理健康以外的其他条件、语言和临床环境。未来的研究应检查其对知识保留、治疗依从性和临床实践整合的影响。
{"title":"Development and Evaluation of an AI Avatar Educational Tool for Depression and Anxiety: A Qualitative Pilot Study.","authors":"Adam Bleik, Patricia Marr, Shelly-Anne Li, Debbie Kwan, Catherine Ji, Kori Leblanc, Yuki Meng, Christine Papoushek","doi":"10.1177/21501319251413030","DOIUrl":"10.1177/21501319251413030","url":null,"abstract":"<p><strong>Background: </strong>Depression and anxiety affect nearly 1 in 4 Canadians. Traditional patient education materials, such as handouts, are often lengthy and difficult to understand, leading to disengagement. Human-like artificial intelligence (AI) avatars offer a novel way to supplement education by delivering consistent, engaging video content that mimics human interaction and is easily accessible online.</p><p><strong>Objective: </strong>This pilot study aimed to develop a human-like, non-generative AI avatar educational video to support education on antidepressants for patients living with depression and anxiety. The secondary objectives were to evaluate participants perceptions of the tool across 3 domains: credibility, satisfaction, and understanding.</p><p><strong>Methods: </strong>The video was developed through 2 Plan-Do-Study-Act (PDSA) cycles, informed by prior research on patient-reported barriers and enablers to antidepressant use. After viewing the video, participants completed a survey assessing the 3 domains. Success was predefined as ≥60% of participants rating each domain ≥4 on a 5-point Likert scale. Open-ended feedback was summarized descriptively to help inform revisions.</p><p><strong>Results: </strong>Fifteen University Health Network (UHN) Patient Partners participated in PDSA Cycle 1, most with lived experience of depression or anxiety and high digital literacy. Success thresholds were achieved for credibility (75%) and satisfaction (67%) but not for understanding (50%). After revisions, 10 participants from the original group completed PDSA Cycle 2, where all domains exceeded thresholds (credibility 90%, satisfaction 85%, understanding 82%). Participants described the tool as trustworthy, clear, and engaging.</p><p><strong>Conclusion: </strong>This pilot study demonstrated that human-like, non-generative AI avatars can be an effective supplementary educational tool to deliver education on antidepressants for individuals with depression and anxiety. The tool demonstrated acceptability across credibility, satisfaction, and perceived understanding, highlighting its potential to enhance patient engagement and access to reliable information. As a scalable and adaptable format, avatar-based education may extend beyond mental health to other conditions, languages, and clinical settings. Future studies should examine its impact on knowledge retention, treatment adherence, and integration into clinical practice.</p>","PeriodicalId":46723,"journal":{"name":"Journal of Primary Care and Community Health","volume":"17 ","pages":"21501319251413030"},"PeriodicalIF":2.5,"publicationDate":"2026-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12819983/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"146012857","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
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