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Analysis of the social consequences and value implications of the Everyday Discrimination Scale (EDS): implications for measurement of discrimination in health research. 日常歧视量表(EDS)的社会后果和价值含义分析:对健康研究中歧视测量的含义。
IF 3.6 2区 医学 Q2 HEALTH POLICY & SERVICES Pub Date : 2022-11-01 Epub Date: 2021-08-20 DOI: 10.1080/14461242.2021.1969980
Allie Slemon, V Susan Dahinten, Cheyanne Stones, Vicky Bungay, Colleen Varcoe

The Everyday Discrimination Scale (EDS) is one of the most widely used measures of discrimination in health research, and has been useful for capturing the impact of discrimination on health. However, psychometric analysis of this measure has been predominantly among Black Americans, with limited examination of its effectiveness in capturing discrimination against other social groups. This paper explores the theoretical and historical foundations of the EDS, and draws on the analytic framework of Messick's theory of unified validity to examine the effectiveness of the EDS in capturing diverse experiences of discrimination. Encompassing both social consequences and value implications, Messick's unified validity contends that psychometric evaluation alone is insufficient to justify instrument use or ensure social resonance of findings. We argue that despite the robust psychometric properties and utility in addressing anti-Black race-related discrimination, the theoretical foundations and research use of the EDS have yet to respond to current discrimination theory, particularly intersectionality. This paper concludes with guidance for researchers in using the EDS in health research across diverse populations, including in data collection, analysis, and presentation of findings.

日常歧视量表(EDS)是健康研究中使用最广泛的歧视衡量标准之一,对于捕捉歧视对健康的影响非常有用。然而,对这一措施的心理测量分析主要是在美国黑人中进行的,对其在捕捉对其他社会群体的歧视方面的有效性的研究有限。本文探讨了EDS的理论基础和历史基础,并借鉴梅西克统一效度理论的分析框架,考察了EDS在捕捉不同歧视经验方面的有效性。包含社会后果和价值含义,梅西克的统一效度认为,仅靠心理测量评估不足以证明工具使用的合理性或确保结果的社会共鸣。我们认为,尽管心理测量学在解决反黑人种族歧视方面具有强大的特性和效用,但EDS的理论基础和研究用途尚未对当前的歧视理论做出反应,特别是交叉性。本文最后为研究人员在不同人群的卫生研究中使用EDS提供了指导,包括数据收集、分析和结果展示。
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引用次数: 0
Selective adoption of therapeutic devices among people with type 1 diabetes. 1型糖尿病患者选择性采用治疗设备。
IF 3.6 2区 医学 Q2 HEALTH POLICY & SERVICES Pub Date : 2022-11-01 Epub Date: 2021-12-21 DOI: 10.1080/14461242.2021.2007160
Alberto Ardissone

This paper contributes to the debate regarding the adoption/rejection of technologies by focusing on the selective use of therapeutic devices among people with type 1 diabetes. I show that patients often refuse to use a device (either insulin pumps or sensors for glycaemic control), despite suggestions from diabetologists. The study was conducted in Italy in 2019. Theoretically, the paper relied on a perspective that amalgamates actor-network theory and postphenomenology around the key concept of multistability. I then detected the three main features of stabilities that explain device use/non-use: relation to embodied users, contextual embedment (within larger social assemblages), concrete tailoring. Findings helped to stress the relevance of not only focusing on the type of device and its technical functioning, but also unveiling the underlying ongoing and situated socio-technical processes. Selective adoption of devices should be investigated at the level of the whole patient-device assemblage in order to assess the diverse stabilities that may arise from such networks.

本文通过关注1型糖尿病患者对治疗设备的选择性使用,为关于采用/拒绝技术的辩论做出了贡献。我指出,患者经常拒绝使用设备(胰岛素泵或血糖控制传感器),尽管糖尿病专家建议。该研究于2019年在意大利进行。在理论上,本文围绕多重稳定性这一关键概念,采用了行动者网络理论和后现象学相结合的视角。然后,我发现了解释设备使用/不使用的稳定性的三个主要特征:与具体化用户的关系,上下文嵌入(在更大的社会组合中),具体剪裁。调查结果有助于强调不仅关注设备类型及其技术功能的相关性,而且还揭示了潜在的正在进行的和处于环境中的社会技术过程。应该在整个患者-器械组合的水平上对器械的选择性采用进行调查,以评估这种网络可能产生的各种稳定性。
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引用次数: 0
The use of E-health during the COVID-19 pandemic: a case study in China's Hubei province. COVID-19大流行期间电子医疗的使用:以中国湖北省为例
IF 3.6 2区 医学 Q2 HEALTH POLICY & SERVICES Pub Date : 2022-11-01 Epub Date: 2021-06-23 DOI: 10.1080/14461242.2021.1941184
Weiquan Wang, Li Sun, Tao Liu, Tian Lai

Globally, the use of e-health has accelerated dramatically during the coronavirus pandemic. Based on both quantitative and qualitative data collected in China's Hubei province (i.e. the first epicentre of COVID-19), this research explores how the pandemic influences the practices of e-health from the perspective of users. Through analysis of 1,033 surveys and 14 in-depth interviews, we find that e-health has played a crucial role in residents' healthcare during the COVID-19 pandemic. Certain external factors influence the choice of digital health, including the high risk of infection outdoors, the shutting down of transport systems, and dysfunctional healthcare facilities that neglect non-COVID-19 patients' clinical demands. Against this backdrop, we argue digital health acts as a functional equivalent to traditional medical treatment and has largely satisfied patients and users in the crisis period. Additionally, the COVID-19 pandemic has unintentionally sped up the diffusion of digital medicine over the long term as respondents expressed their willingness to continue use of e-health in the post-COVID-19 phase. However, we assert that despite the increasing use of e-health, it cannot fully substitute traditional offline treatment. Thus, we suggest a combination of online and offline healthcare will be more commonly practiced in the future.

在全球范围内,在冠状病毒大流行期间,电子卫生的使用急剧加速。基于在中国湖北省(即COVID-19的第一个震中)收集的定量和定性数据,本研究从用户的角度探讨了大流行如何影响电子医疗实践。通过对1033项调查和14次深度访谈的分析,我们发现在COVID-19大流行期间,电子医疗在居民的医疗保健中发挥了至关重要的作用。某些外部因素会影响数字医疗的选择,包括户外感染的高风险、交通系统的关闭以及忽视非covid -19患者临床需求的医疗机构功能失调。在此背景下,我们认为数字医疗在功能上等同于传统医疗,在危机时期基本上满足了患者和用户。此外,COVID-19大流行无意中加速了数字医疗的长期传播,因为受访者表示愿意在COVID-19后阶段继续使用电子医疗。然而,我们断言,尽管电子医疗的使用越来越多,但它不能完全取代传统的线下治疗。因此,我们建议在线和离线医疗保健的结合将在未来更加普遍。
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引用次数: 19
Evaluation of 'Ask the Specialist': a cultural education podcast to inspire improved healthcare for Aboriginal peoples in Northern Australia. “询问专家”的评估:一个文化教育播客,旨在激励改善澳大利亚北部原住民的医疗保健
IF 2.5 2区 医学 Q2 HEALTH POLICY & SERVICES Pub Date : 2022-07-01 Epub Date: 2022-04-03 DOI: 10.1080/14461242.2022.2055484
Vicki Kerrigan, Stuart Yiwarr McGrath, Rarrtjiwuy Melanie Herdman, Pirrawayingi Puruntatameri, Bilawara Lee, Alan Cass, Anna P Ralph, Marita Hefler

In Australia's Northern Territory (NT) most people who access health services are Aboriginal and most healthcare providers are non-Indigenous; many providers struggle to deliver culturally competent care. Cultural awareness training is offered however, dissatisfaction exists with the limited scope of training and the face-to-face or online delivery format. Therefore, we developed and evaluated Ask the Specialist: Larrakia, Tiwi and Yolŋu stories to inspire better healthcare, a cultural education podcast in which Aboriginal leaders of Larrakia, Tiwi and Yolŋu nations, known as the Specialists, answer doctors' questions about working with Aboriginal patients. The Specialists offer 'counterstories' which encourage the development of critical consciousness thereby challenging racist narratives in healthcare. After listening to the podcast, doctors reported attitudinal and behavioural changes which led to stereotypes being overturned and more culturally competent care delivery. While the podcast was purposefully local, issues raised had applicability beyond the NT and outside of healthcare. Our approach was shaped by cultural safety, critical race theory and Freirean pedagogy. This pilot is embedded in a Participatory Action Research study which explores strategies to improve culturally safe communication at the main NT hospital Royal Darwin Hospital.

摘要在澳大利亚北领地(NT),大多数获得医疗服务的人是原住民,大多数医疗服务提供者是非原住民;许多医疗机构难以提供符合文化要求的护理。然而,提供了文化意识培训,但对培训范围有限以及面对面或在线授课形式存在不满。因此,我们开发并评估了Ask the Specialist:Larrakia、Tiwi和Yolŋu的故事,以激发更好的医疗保健,这是一个文化教育播客,在该播客中,被称为“专家”的Larrakia,Tiwi和Yol 331;u国家的原住民领导人回答医生关于与原住民患者合作的问题。专家们提供了“反诉”,鼓励批判性意识的发展,从而挑战医疗保健中的种族主义叙事。在听了播客后,医生们报告了态度和行为的变化,这些变化导致刻板印象被推翻,提供了更具文化能力的护理。虽然播客是有目的的本地播客,但所提出的问题在NT之外和医疗保健之外都有适用性。我们的方法是由文化安全、批判性种族理论和Freirean教育学形成的。该试点项目包含在一项参与性行动研究中,该研究探讨了改善NT主要医院皇家达尔文医院文化安全沟通的策略。
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引用次数: 0
The consequences of household composition and household change for Indigenous health: evidence from eight waves of the Longitudinal Study of Indigenous Children (LSIC). 家庭组成和家庭变化对土著居民健康的影响:来自土著儿童纵向研究(LSIC)的八波证据。
IF 3.6 2区 医学 Q2 HEALTH POLICY & SERVICES Pub Date : 2022-07-01 Epub Date: 2021-01-31 DOI: 10.1080/14461242.2020.1865184
Belinda Hewitt, Maggie Walter

Households are important health contexts, providing social, emotional, financial and material support, but little is known about the role of household composition in the social etiology of Indigenous health. Our research is framed by an Indigenous standpoint, using eight waves of data from the Longitudinal Study of Indigenous Children. We investigated whether household composition and change in household composition were associated with the self-reported general health of Indigenous children and their mothers, adjusting for socioeconomic, household structure and social support factors. Our measure of household composition comprised eight groups differentiating lone and couple parents, living with and without other children and adults. Study children in couple households with other children and adults were 16% less likely to have excellent health and mothers in these same households were 7% less likely to report excellent health than children and mothers in couple households. We find little evidence that mothers in lone parent households have poorer health than mothers in couple households, after adjustment for covariates. Change in household composition was positively associated with health for both children and mothers. The results caution against presuming a direct translatability of research findings from non-Indigenous to Indigenous Peoples.

家庭是重要的健康环境,提供社会、情感、经济和物质支持,但对家庭构成在土著健康的社会病因学中的作用知之甚少。我们的研究从土著的角度出发,使用了来自土著儿童纵向研究的八波数据。在调整了社会经济、家庭结构和社会支持因素后,我们调查了家庭组成和家庭组成的变化是否与土著儿童及其母亲自我报告的总体健康有关。我们对家庭构成的测量包括八个组,分别是单亲父母和夫妻父母,与其他儿童和成年人一起生活和没有其他儿童和成年人生活。有其他儿童和成人的夫妇家庭的研究儿童健康状况良好的可能性比夫妇家庭的儿童和母亲低16%,这些家庭的母亲报告健康状况良好的可能性比夫妇家庭的儿童和母亲低7%。在协变量调整后,我们发现很少有证据表明单亲家庭的母亲比夫妻家庭的母亲健康状况更差。家庭构成的变化与儿童和母亲的健康呈正相关。研究结果提醒人们不要想当然地认为非土著居民的研究成果可以直接翻译给土著居民。
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引用次数: 2
Yuwinbir - this way! Going beyond meeting points between Indigenous knowledges and health sociology. Yuwinbir——这边走!超越土著知识和健康社会学之间的交汇点。
IF 3.6 2区 医学 Q2 HEALTH POLICY & SERVICES Pub Date : 2022-07-01 DOI: 10.1080/14461242.2022.2091304
Megan Williams, Demelza Marlin
We acknowledge the Gadigal and Wangal people of the Eora Nation, Dabee people of the Wiradjuri Nation, and Wurundgeri Woi Wurrung and Bunurong Boon Wurrung peoples of the Kulin Nation, whose lands have supported the leadership of this Yuwinbir Special Issue of Health Sociology Review. We acknowledge their ancestors, spirits and knowledges, Elders of the past, and Elders of the present. We acknowledge Indigenous people who shaped each article and extend our thanks to their collaborators in exploring meeting points between health sociology and Indigenous knowledges. While ‘meeting points’ is the theme of this issue, we offer a critique of it in the editorial below. We respectfully use the Wiradjuri word ‘Yuwinbir’ to name this special issue, signalling ‘this way’ (Grant & Rudder, 2010) health sociology: this is the way Indigenous authors cited here say we must go. While our editorial names some distressing knowledge and research practice traps to dismantle along the way, it also outlines the way that conscious, critically reflective enquiry about self and sovereignty could transform relationships between Indigenous people and health sociology. The development of the Yuwinbir special issue grew from guest co-editor MeganWilliams’ experience as an associate editor of Health Sociology Review and related to Megan’s role as Chief Investigator of the Centre for Research Excellence – Strengthening systems for InDigenous health care Equity (CRE-STRIDE). CRE-STRIDE builds on 15 years of efforts from a large number of collaborators to improve the quality of health research particularly in partnership with Aboriginal and Torres Strait Islander community controlled health organisations. CRE-STRIDE was established to address health inequity using Indigenous knowledges. It has Indigenous people’s leadership across multi-level project governance structures. An Indigenous Research Framework guides community engagement in research and research on wellbeing, health systems and service quality improvement processes. Relationality and relationships are central, with supportive project structures, and an ‘all teach, all learn’ capacity strengthening commitment that is continuous, reciprocal and reflexive (CRESTRIDE, 2020). The applied health research for health equity that CRE-STRIDE progresses has much to do with health sociology. Some CRE-STRIDE collaborators are trained in social sciences and sociology and for Megan this combines with training in Indigenous knowledges and public health. Belonging to Wiradjuri and palawa peoples and with Anglo-Celtic heritage, Megan’s work is multi-disciplinary across health and justice fields, focusing on the health of Aboriginal people in prison and reforms (Finlay, Williams, Sweet, McInerney, & Ward, 2016; Williams, 2021a). Co-editor Dr Demelza Marlin was trained in sociology and developed experience in health from her research on the intersections between culture, community, sports leadership and physical activity in Aboriginal a
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引用次数: 2
The toxic gift: reciprocity and social capital in cigarette exchange in China 有毒的礼物:中国香烟交换中的互惠和社会资本
IF 3.6 2区 医学 Q2 HEALTH POLICY & SERVICES Pub Date : 2022-05-05 DOI: 10.1080/14461242.2022.2064225
X. Yang, Michael Vuolo, Dan Wu
ABSTRACT The widespread exchange of tobacco cigarettes as a gift in some societies normalises the symbolic desirability of tobacco products and promotes smoking. Little is known about how and why people exchange toxic substances as gifts. This study argues two key factors involved in social exchange processes – reciprocity and social capital – can explain gift cigarette circulation. We conducted a multistage survey among household heads from China and measured the quantity and monetary values of outgoing and incoming gift cigarettes circulated by each household and measured social capital in three dimensions: collective participation, social ties, and trust. Ordinary Least Square regressions showed that reciprocity is strongly and significantly associated with both the value and quantity of gift cigarettes. All three dimensions of social capital are varyingly associated with gifting cigarettes. Income and higher classes are also associated with greater quantity and value of received cigarettes. This study broadens the phenomenon of gifting cigarettes to the more universal patterns of reciprocity and social capital, wherein better social capital and socioeconomic position ironically lead to a higher risk of tobacco use and endanger health. We suggest policymakers target the endemic social need for gift exchange in China’s informal economy.
在一些社会中,香烟作为礼物的广泛交换使烟草制品的象征性可取性正常化,并促进了吸烟。人们如何以及为什么交换有毒物质作为礼物,我们所知甚少。本研究认为,社会交换过程中涉及的两个关键因素——互惠和社会资本——可以解释礼品香烟的流通。我们对来自中国的户主进行了多阶段调查,测量了每个家庭流通的礼物香烟的数量和货币价值,并在集体参与、社会关系和信任三个维度上测量了社会资本。普通最小二乘回归表明,互惠与礼物香烟的价值和数量密切相关。社会资本的所有三个维度都与赠送香烟有不同的联系。收入和阶级越高,收到的香烟的数量和价值也越大。这项研究将赠送香烟的现象扩大到更普遍的互惠和社会资本模式,其中更好的社会资本和社会经济地位具有讽刺意味的是导致更高的烟草使用风险和危害健康。我们建议政策制定者瞄准中国非正规经济中特有的礼物交换社会需求。
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引用次数: 2
Unsettling knowledge boundaries: the Indigenous pitiki space for Basotho women’s sexual empowerment and reproductive well-being 令人不安的知识边界:巴索托妇女的性赋权和生殖福祉的土著皮提基空间
IF 3.6 2区 医学 Q2 HEALTH POLICY & SERVICES Pub Date : 2022-05-04 DOI: 10.1080/14461242.2022.2079092
N. Mohlabane
ABSTRACT Indigenous knowledge systems embody a holistic, inclusive view of the world and foreground interconnectedness for the promotion of life. Through reflective engagement with the author’s positioning as an Indigenous researcher, this article explores Indigenous knowledges of sexual, reproductive health and motherhood shared by Basotho women. It draws on the life stories of twenty never-married women and uses decolonial African feminist approaches to challenge the assumed universality of conceptions of sexual and reproductive health that are both deeply embedded and produced within specific relations of power. It illuminates the Indigenous pitiki space as an Indigenous knowledge hub purposed to empower Basotho women’s sexual and reproductive health. Within this space, Indigenous knowledges and skills are shared amongst women, with the elderly imparting knowledges to the young women. In the context of unsurmountable health disparities, the article shows how Indigenous knowledge-sharing outside the exclusive ‘westernised’ health systems enables communal support for the well-being of women and children in African contexts. It emphasises the need for inclusive and expansive knowledge production systems not only to better inform equitable health solutions for Indigenous communities but also for epistemic redress in the discipline of Sociology.
土著知识体系体现了一种整体的、包容的世界观,以及促进生活的前景相互联系。通过对作者土著研究人员定位的反思,本文探讨了巴索托妇女分享的关于性、生殖健康和母性的土著知识。它借鉴了20名未婚妇女的生活故事,并采用非殖民化的非洲女权主义方法,挑战根深蒂固并产生于特定权力关系中的性健康和生殖健康概念的假定普遍性。它阐明土著皮提基空间是土著知识中心,旨在增强巴索托妇女的性健康和生殖健康。在这个空间内,妇女之间分享土著知识和技能,老年人向年轻妇女传授知识。在无法克服的卫生差距的背景下,这篇文章展示了在排他性的“西方化”卫生系统之外的土著知识共享如何使非洲妇女和儿童的福祉得到社区支持。它强调需要建立包容和广泛的知识生产系统,不仅要更好地为土著社区提供公平的卫生解决方案,而且要在社会学学科中纠正认识上的错误。
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引用次数: 2
Ecocidal behaviour: Solutions in Becoming Indigenous to the Universe 生态灭绝行为:成为宇宙土著的解决方案
IF 3.6 2区 医学 Q2 HEALTH POLICY & SERVICES Pub Date : 2022-05-04 DOI: 10.1080/14461242.2022.2079421
M. Williams
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引用次数: 0
'It's a cultural thing': excuses used by health professionals on providing inclusive care. “这是文化问题”:卫生专业人员在提供包容性护理时使用的借口。
IF 3.6 2区 医学 Q2 HEALTH POLICY & SERVICES Pub Date : 2022-03-01 Epub Date: 2020-11-22 DOI: 10.1080/14461242.2020.1846581
Zubaidah Mohamed Shaburdin, Lisa Bourke, Olivia Mitchell, Trudie Newman

Although health services in Australia have an aim to provide inclusive care for their patients/clients, this study highlights how barriers to care can lie at the centre of patient-provider interactions. Racial microaggression is a subtle form of racism that can occur in health settings, leading to further exclusion for First Nations Australians, immigrants and refugees. This paper is guided by Derrida's approach to deconstructionism by unpacking how language is used by health professionals - as holders of organisational power - and how they construct 'truths' or discourses about clients that historically have been marginalised by health services and system. Data comprise 21 interviews with staff from two rural health services. It identified three racial microaggressions were used to justify the challenges of providing care to people from First Nations, immigrant and refugee backgrounds: (1) Participants problematised culture(s) of service users; (2) participants implied cultural superiority in their conceptualisation of 'other' cultures; and (3) participants shared stories of inactions, discomfort and relegating of responsibility. The findings identified these discourses as forms of racial microaggression that can potentially lead to further exclusion of people seeking services and support.

尽管澳大利亚的卫生服务旨在为患者/客户提供包容性护理,但这项研究强调了护理障碍如何处于患者与提供者互动的中心。种族微侵略是一种微妙的种族主义形式,可能发生在卫生环境中,导致土著澳大利亚人、移民和难民进一步受到排斥。本文以德里达的解构主义方法为指导,通过揭示卫生专业人员如何使用语言-作为组织权力的持有者-以及他们如何构建关于历史上被卫生服务和系统边缘化的客户的“真理”或话语。数据包括对两个农村卫生服务机构工作人员的21次访谈。它确定了三种种族微侵犯被用来证明向来自第一民族、移民和难民背景的人提供护理的挑战是合理的:(1)参与者对服务使用者文化的问题化;(2)参与者在对“其他”文化的概念化中隐含文化优越感;(3)参与者分享了无所作为、不舒服和推卸责任的故事。研究发现,这些话语是种族微侵略的形式,可能会导致寻求服务和支持的人进一步被排斥。
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引用次数: 8
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Health Sociology Review
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