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Development of Efficacy-Enhanced Heart Failure Rehabilitation Patient Education Materials for Health Behavior Change 提高心力衰竭康复病人健康行为改变教育教材之开发
IF 1 Q4 PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH Pub Date : 2023-06-14 DOI: 10.1080/19325037.2023.2209751
A. Suhaimi, T. Chung
ABSTRACT Background Patient education materials (PEMs) are often used in health education programs to empower patients to self-manage their disease for better health outcomes. Heart failure (HF) patients wanted more information about self-management and educational materials that were easy to understand. Programs with self-efficacy as the core component have proven to be effective in improving patients’ self-management. Purpose To develop practical, efficacy-enhanced, tailored HF rehabilitation PEMs that satisfy our clients to drive long-lasting behavior change and evaluate the materials’ quality (readability, understandability, actionability, and acceptability). Methods Exploratory mixed methods study involving: i) semi-structured interviews; ii) evaluation of the PEMs; iii) revision and reevaluation of the PEMs; iv) publication. An appointed panel of experts evaluates content accuracy, understandability, and actionability. The Patient Education Material Assessment Tool assesses content understandability and actionability. The content readability was assessed using Flesch Kincaid Calculator. Clients’ acceptability was assessed using Educational Material Acceptability tool. Results The newly developed PEMs have good understandability, actionability, readability, and acceptance. Discussion Patient-centered PEMs have good acceptance and satisfaction among clients. However, the effectiveness of tailored efficacy-enhanced PEMs for behavior changes needs further evaluation. Translation to Health Education Practice All stakeholders should be included in developing PEMs. A AJHE Self-Study quiz is online for this article via the SHAPE America Online Institute (SAOI) http://portal.shapeamerica.org/trn-Webinars
背景:患者教育材料(PEMs)通常用于健康教育计划,以使患者能够自我管理他们的疾病,以获得更好的健康结果。心力衰竭(HF)患者需要更多关于自我管理的信息和易于理解的教育材料。以自我效能感为核心的项目已被证明对改善患者的自我管理是有效的。目的开发实用的、提高疗效的、量身定制的心衰康复材料,以满足客户的需求,推动长期的行为改变,并评估材料的质量(可读性、可理解性、可操作性和可接受性)。方法探索性混合方法研究包括:i)半结构化访谈;ii)评价pms;iii) pms的修订和重新评价;(四)出版。一个指定的专家小组评估内容的准确性、可理解性和可操作性。患者教育材料评估工具评估内容的可理解性和可操作性。使用Flesch Kincaid计算器评估内容可读性。使用教材可接受性工具评估客户的可接受性。结果新编制的PEMs具有良好的可理解性、可操作性、可读性和可接受性。以患者为中心的PEMs在患者中具有良好的接受度和满意度。然而,为行为改变量身定制的效能增强PEMs的有效性需要进一步评估。所有利益相关者都应参与到健康教育实践中来。本文通过SHAPE美国在线研究所(SAOI) http://portal.shapeamerica.org/trn-Webinars提供了一个AJHE自学测验
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引用次数: 0
Adaptation Processes of Survivors and Informal Caregivers after Stroke: A Scoping Review through the Lens of Educational Sciences 脑卒中后幸存者和非正式照顾者的适应过程:教育科学视野下的回顾
IF 1 Q4 PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH Pub Date : 2023-06-02 DOI: 10.1080/19325037.2023.2209614
A. Moura, Patrícia Magalhães, S. Pais, E. Alves
ABSTRACT Background Systematic knowledge about stroke adaptation can be a useful tool to develop evidence-based policies and practices centered on survivors and informal caregivers. Purpose This scoping review summarizes the body of knowledge about the adaptation processes after stroke. Methods Based on PRISMA-ScR guidelines, databases were searched, in November 2021, and 14 studies were included. The qualitative findings were inductively synthesized. The quantitative results were included in the taxonomy of categories and themes of the qualitative analysis. Results The adaptation processes after stroke are constituted by psychosocial and structural adaptation. The emotional distress, the use of emotional-based coping strategies, the received social support, the role and relationship changes, and the social participation were central factors of the psychosocial adaptation. Regarding the structural adaptation, the use of problem-solving based coping strategies; the centrality of the caregiving role; the learning processes; and the changes in daily life activities were reported. Discussion Health education research and interventions after stroke should consider the role of adaptative coping strategies, social support networks and services, and long-term educational policies. Translation to Health Education Practice: This work will assist Health educators and researchers to deeper understand the adaptation after stroke, identify knowledge gaps, and define further research issues.
摘要背景关于中风适应的系统知识可以成为制定以幸存者和非正式护理人员为中心的循证政策和实践的有用工具。目的本范围综述总结了有关中风后适应过程的知识体系。方法根据PRISMA ScR指南,于2021年11月检索数据库,纳入14项研究。对定性结果进行归纳综合。定量结果纳入定性分析的范畴和主题分类。结果脑卒中后的适应过程包括心理社会适应和结构适应。情绪困扰、基于情绪的应对策略的使用、获得的社会支持、角色和关系的变化以及社会参与是心理社会适应的核心因素。关于结构适应,使用基于解决问题的应对策略;照顾角色的中心地位;学习过程;并报告了日常生活活动的变化。讨论中风后的健康教育研究和干预措施应考虑适应性应对策略、社会支持网络和服务以及长期教育政策的作用。转化为健康教育实践:这项工作将帮助健康教育工作者和研究人员更深入地了解中风后的适应情况,找出知识差距,并确定进一步的研究问题。
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引用次数: 0
Inequalities in Communicating about Nutrition Information during Prenatal Care: The After-Visit Summary 产前护理期间营养信息沟通的不平等:访后总结
IF 1 Q4 PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH Pub Date : 2023-06-02 DOI: 10.1080/19325037.2023.2209625
M. JaKa, Maren S. G. Henderson, Jennifer M. Dinh, R. Rivard, Julia Andersen, Corinne Brown-Robinson, T. Kottke, J. Ziegenfuss
ABSTRACT Background Though prenatal nutrition information is critical, it is not known whether information is shared equitably by patient race, financial security, or English proficiency. Purpose To evaluate whether delivery or receipt of ChooseYourFish.org nutrition information in the first prenatal visit differed by patient demographics. Methods Analysis of clinician-document electronic health record (EHR) or patient-reported surveys compared delivery and receipt of fish-related nutrition information in the first prenatal visit. Inferential statistics were used to compare delivery or receipt and race, ethnicity, payor, or interpreter use. Results EHR analysis (n = 2,329) revealed Medicaid patients who used an interpreter were half as likely to have the fish nutrition message in their after-visit summary compared to those with Medicaid who did not use an interpreter (OR = 0.54, 95% CL: 0.35–0.84). The same was not true for non-Medicaid patients. Survey analysis (n = 52) showed respondents identifying as Black or African American were 25% less likely to report receiving the after-visit summary compared to respondents who identified as white (p < .01). Discussion The results presented here illustrate how nutrition communication in the prenatal period can differ by patient race, financial security, and language. Translation to Health Education Practice: Culturally humble efforts to understand drivers of healthcare communication are needed to eliminate inequalities. A AJHE Self-Study quiz is online for this article via the SHAPE America Online Institute (SAOI) http://portal.shapeamerica.org/trn-Webinars
摘要背景尽管产前营养信息至关重要,但尚不清楚患者种族、经济保障或英语水平是否公平共享信息。目的评估首次产前访视中ChooseYourFish.org营养信息的发送或接收是否因患者人口统计而不同。方法分析临床医生文件电子健康记录(EHR)或患者报告的调查,比较第一次产前访视中鱼类相关营养信息的分娩和接收情况。推断统计数据用于比较交付或接收以及种族、民族、付款人或口译员的使用情况。结果EHR分析(n=2329)显示,使用口译员的医疗补助患者在就诊后总结中出现鱼类营养信息的可能性是不使用口译员的患者的一半(OR=0.54,95%CI:0.35-0.84)。非医疗补助的患者则不然。调查分析(n=52)显示,与白人受访者相比,黑人或非裔美国人报告收到随访总结的可能性低25%(p<0.01)。健康教育实践:为了消除不平等,需要在文化上谦逊地努力理解医疗保健沟通的驱动因素。AJHE自学测验通过SHAPE美国在线研究所(SAOI)在线为本文提供http://portal.shapeamerica.org/trn-Webinars
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引用次数: 1
The Mango Model: Best Practices in the Creation of a COVID-19 Open Data Project Through a Partnership with Google Health and the Non-Profit FinMango 芒果模式:通过与b谷歌Health和非营利组织FinMango合作创建COVID-19开放数据项目的最佳实践
IF 1 Q4 PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH Pub Date : 2023-06-01 DOI: 10.1080/19325037.2023.2209620
O. Wahltinez, Scott Glasgow, Aurora Cheung, James F. Glasgow, Martin Noguera, James W. Glasgow, P. Hoalt
ABSTRACT This article addresses the issue of accessibility related to collecting and publishing Open Data for COVID-19, and suggestions for using the finalized project data in addressing lifestyle behaviors that will inform Health Educators in differing agencies when developing programs for prevention and management of COVID-19. The Mango Model, based on evidence from a COVID-19 Open Data Project was funded by Google Health in partnership with the nonprofit FinMango. First, the purpose and background for the creation of the Open Data Project are provided. Second, outreach to various agencies is addressed. Third, differing methodologies used by agencies for collecting, organizing, automating, and publishing subnational were observed. Fourth, implications for organizations regarding practice, policy and research are discussed. The Google Health and FinMango COVID-19 Open Data Project reinforces the need for a universal standard for publishing open data with consistent reporting. Through the creation of the project, the Mango-Model offers best practices and solutions for universally releasing types of data to assist public health professionals, researchers, policymakers, and others in health-related fields in understanding and managing the virus, and in the mobilization of resources in future responses to local and global need.
本文讨论了与收集和发布COVID-19开放数据相关的可访问性问题,以及使用最终项目数据解决生活方式行为的建议,这些建议将在制定COVID-19预防和管理计划时为不同机构的健康教育工作者提供信息。芒果模型基于COVID-19开放数据项目的证据,由b谷歌Health与非营利组织FinMango合作资助。首先,介绍了创建开放数据项目的目的和背景。第二,涉及与各机构的联系。第三,我们观察到各机构在收集、组织、自动化和发布地方数据时使用的不同方法。第四,讨论了对组织在实践、政策和研究方面的影响。谷歌Health和FinMango 2019冠状病毒病疫情开放数据项目强调了建立统一的开放数据发布标准和一致报告的必要性。通过创建这个项目,芒果模式为普遍发布各种数据提供了最佳做法和解决方案,以协助公共卫生专业人员、研究人员、政策制定者和其他与健康有关领域的人员了解和管理病毒,并为今后应对地方和全球需求调动资源。
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引用次数: 0
Examining Health Promotion Theories, Limitations, and Lessons Learned for HPV Vaccination Interventions among College Students in the United States: A Systematic Literature Review 美国大学生HPV疫苗接种干预的健康促进理论、局限性和经验教训:系统文献综述
IF 1 Q4 PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH Pub Date : 2023-04-10 DOI: 10.1080/19325037.2023.2187486
Lea Sacca, George Doumat, Alaa Rihan, Jonathan Maroun, C. Ejezie
ABSTRACT Background Despite the availability of health resources such as immunizations on campus, HPV vaccination rates in college students remain low with existing gender disparities in HPV vaccine uptake. Purpose The purpose of this systematic review was to identify common limitations to HPV vaccination interventions among college students, utilized health promotion theories that have been reported to improve HPV vaccination rates among the population of interest, and lessons learned from intervention outcomes. Methods The review team consisted of a group of researchers with medical and/or public health backgrounds who are experts in the assessment, development, implementation, and evaluation of HPV vaccination interventions for US college students. The Arksey and O’Malley framework methodology guided the review. Results Out of the 21 included studies, only 16 utilized health promotion theories and/or models to disseminate and implement the research intervention, with the most common theory being the Health Belief Model (HBM) (n = 7). A total of 50 limitations were identified from 19 studies and classified accordingly. Discussion Results may contribute to a broader understanding of major limitations to consider when designing HPV vaccination initiatives in college settings. Translation to Health Education Practice Different NCHEC areas were applied in the design and administration of this study.
背景尽管校园免疫等卫生资源可用,但大学生HPV疫苗接种率仍然很低,HPV疫苗接种率存在性别差异。本系统综述的目的是确定HPV疫苗接种干预在大学生中的常见局限性,利用已报道的健康促进理论来提高相关人群的HPV疫苗接种率,并从干预结果中吸取教训。方法:审查小组由一组具有医学和/或公共卫生背景的研究人员组成,他们是美国大学生HPV疫苗接种干预措施的评估、制定、实施和评价方面的专家。Arksey和O 'Malley框架方法指导了审查。结果在纳入的21项研究中,只有16项研究使用了健康促进理论和/或模型来传播和实施研究干预,其中最常见的理论是健康信念模型(HBM) (n = 7)。从19项研究中发现了50个局限性,并进行了相应的分类。讨论结果可能有助于更广泛地了解在大学环境中设计HPV疫苗接种计划时需要考虑的主要限制。本研究采用不同的NCHEC区域来设计和实施。
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引用次数: 0
Financial and Demographic Factors Associated with Cooking Self-Efficacy Among College Students from Three Minority Groups 经济和人口因素与三个少数民族大学生烹饪自我效能感的关系
IF 1 Q4 PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH Pub Date : 2023-04-10 DOI: 10.1080/19325037.2023.2187485
J. Enríquez, D. Ader
ABSTRACT Background There are many socio-environmental factors that can limit cooking self-efficacy among university students, where minorities are usually neglected. Purpose To identify the dynamics of income source and money expenditure with cooking self-efficacy of three university minority groups. Methods For this cross-sectional study, recruitment was between October and November 2019, via online survey through Qualtrics platform. A total of 2817 participants completed the survey online which provided data from cooking self-efficacy (20 points scale), money expenditure and financial issues. Results An average of 13.5 was found as cooking self-efficacy. Four of the independent variables: first generation, internationals, age, and employment status show significative relationship (<0.01) with cooking self-efficacy. Discussion This study supports the importance of prioritizing university minority groups, helping to understand their financial support and how they distribute it when managing and prioritizing their finances. Moreover, each group faces different limitations in terms of what the construction of these skills encompasses. Translation to Health Education Practice The findings present in this study are significant for health education specialist focused on identifying factors that impact priority populations.
摘要背景有许多社会环境因素会限制大学生的烹饪自我效能,而少数民族往往被忽视。目的了解三个大学少数群体的收入来源和金钱支出与烹饪自我效能感的关系。方法在这项横断面研究中,招募时间为2019年10月至11月,通过Qualtrics平台进行在线调查。共有2817名参与者在线完成了这项调查,提供了烹饪自我效能感(20分制)、金钱支出和财务问题的数据。结果烹饪自我效能感平均为13.5。四个自变量:第一代、国际、年龄和就业状况与烹饪自我效能感呈显著相关(P<0.01)。讨论这项研究支持优先考虑大学少数群体的重要性,有助于了解他们的财政支持,以及他们在管理和优先考虑财务时如何分配。此外,在这些技能的构建方面,每个群体都面临着不同的局限性。转化为健康教育实践本研究的发现对专注于识别影响优先人群的因素的健康教育专家具有重要意义。
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引用次数: 0
Effectiveness of a Behavior-and Age-Specific Nutrition Education Intervention to Promote Nutrition Knowledge and Preference for Fruits and Vegetables among Elementary School Children 行为和年龄特异性营养教育干预对小学生营养知识和水果蔬菜偏好的影响
IF 1 Q4 PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH Pub Date : 2023-04-05 DOI: 10.1080/19325037.2023.2186982
S. Saha, M. Murimi, W. Oldewage-Theron
ABSTRACT Background Lack of nutrition knowledge, low preference for fruits and vegetables (F&V), and underdeveloped taste are recognized as modifiable influencers of children’s F&V intake. Purpose To assess the effectiveness of a behavior-and age-specific nutrition education intervention to improve nutrition knowledge and preference for F&V among elementary school children. Methods In a quasi-experimental pre-and posttest assessment designed study, a six-week nutrition education intervention (including class-based nutrition education, hands-on activities, cooking demonstrations, and tasting) was implemented at four elementary schools. Nutrition knowledge and preference for F&V were evaluated at baseline and after the intervention. Wilcoxon signed-rank test was carried out to examine the differences between baseline and post-assessment. Results A total of 115 children (3rd- 5th grade) completed both baseline and post-assessment. After the intervention, participants showed a significant improvement in nutrition knowledge (mean [± sd] change score: 7.6 ± 3.7, P < .001). A significant improvement in F&V preference (Ps < .001) was found among the participants after the intervention. Discussion An age-and behavior-focused nutrition education intervention can improve children’s nutrition knowledge and F&V preference. Translation to Health Education Practice: This nutrition education curriculum can be implemented for the child population (age-specific groups) by adapting cultural priorities in nutrition lessons and cooking recipes. A AJHE Self-Study quiz is online for this article via the SHAPE America Online Institute (SAOI) http://portal.shapeamerica.org/trn-Webinars
摘要背景缺乏营养知识、对水果和蔬菜(F&V)的偏好低以及味觉发育不全被认为是影响儿童F&V摄入的可变因素。目的评估行为和年龄特异性营养教育干预的有效性,以提高小学生的营养知识和对F&V的偏好。方法在一项准实验性的测试前和测试后评估设计的研究中,在四所小学实施了为期六周的营养教育干预(包括课堂营养教育、动手活动、烹饪示范和品尝)。在基线和干预后评估营养知识和对F&V的偏好。采用Wilcoxon符号秩检验来检验基线和评估后的差异。结果共有115名儿童(3-5年级)完成了基线和后评估。干预后,参与者在营养知识方面表现出显著改善(平均[±sd]变化得分:7.6±3.7,P<.001)。干预后,在参与者中发现F&V偏好显著改善(P<.001)。讨论以年龄和行为为重点的营养教育干预可以提高儿童的营养知识和F&V偏好。转化为健康教育实践:这一营养教育课程可以通过调整营养课程和烹饪食谱中的文化优先事项,为儿童群体(特定年龄组)实施。AJHE自学测验通过SHAPE美国在线研究所(SAOI)在线为本文提供http://portal.shapeamerica.org/trn-Webinars
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引用次数: 0
The Experience of Spanish-Speaking Latinos in Maintaining Dietary and Physical Activity Changes after the National Diabetes Prevention Program 西班牙语拉丁美洲人在国家糖尿病预防计划后保持饮食和体育活动变化的经验
IF 1 Q4 PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH Pub Date : 2023-04-05 DOI: 10.1080/19325037.2023.2187487
Taynara Formagini, Jarron M. Saint Onge, M. O’Brien, M. Ramírez, J. Brooks
ABSTRACT Background The impact of the National Diabetes Prevention Program (N-DPP) for Latinos post-program participation is uncertain. Purpose We examine the experiences of Latinos who participated in the N-DPP in continuing the dietary and physical activity changes learned in the program. Methods This is a qualitative descriptive interview study. We recruited 19 Latino adults who participated in a culturally and linguistically adapted N-DPP. Thematic analysis was used to analyze the data and report emerging themes. Results Participants discussed how the program improved their knowledge about healthier lifestyles, and shared specific tools and strategies that they used to maintain learned program behaviors. Factors related to discontinuation of behaviors included missing the group social support, losing commitment over time, and avoiding family conflict. Maintenance of behaviors was mainly facilitated by family support. Discussion Our study suggests that Latinos who participated in the N-DPP gained useful knowledge on healthier behaviors and learning strategies for implementation into their lifestyle, but barriers remain. Translation to Health Education Practice Adaptations of the program for Latinos should consider the important roles of family and social support to improve N-DPP outcomes for this group and better support Latinos in preventing diabetes.
摘要背景国家糖尿病预防计划(N-DPP)对拉丁裔项目后参与的影响尚不确定。目的:我们研究了参加N-DPP的拉丁裔在继续该项目中学习的饮食和体育活动变化方面的经验。方法采用定性描述性访谈研究。我们招募了19名拉丁裔成年人,他们参加了一个文化和语言适应的N-DPP。专题分析用于分析数据和报告新出现的专题。结果参与者讨论了该项目如何提高他们对更健康生活方式的认识,并分享了他们用来维持学习项目行为的具体工具和策略。与行为中止相关的因素包括错过群体的社会支持、随着时间的推移失去承诺以及避免家庭冲突。行为的维持主要通过家庭支持来促进。讨论我们的研究表明,参加N-DPP的拉丁裔人获得了关于更健康行为和学习策略的有用知识,以便将其融入生活方式,但障碍仍然存在。转化为健康教育实践拉丁美洲人计划的调整应考虑家庭和社会支持的重要作用,以改善该群体的N-DPP结果,并更好地支持拉丁美洲人预防糖尿病。
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引用次数: 0
Can We Make the Collegiate Personal Health Course More Relevant and Applicable? 我们能让大学个人健康课程更具相关性和适用性吗?
IF 1 Q4 PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH Pub Date : 2023-03-31 DOI: 10.1080/19325037.2023.2186983
Kristen Brewer, R. Mcdermott, Kadi Bliss, J. McDaniel, Mallory Gary, Peter J. Fadde
ABSTRACT Background Many institutions offer introductory personal health courses to fulfill a general requirement; however, gaps may exist regarding health education and information students receive and what they find relevant to their lives. Purpose Identification of topics of salience/relevance to college students in introductory personal health courses, including delivery improvement recommendations. Methods We interviewed students (ages 18–25) who completed an introductory personal health course. MAXQDA© was used for organizing codes and themes responsive to research questions. Results Emergent themes related to mental health, exercise, nutrition, stress, sexual health, and alcohol substance use were uncovered. Students preferred interactive learning and harm reduction approaches to passive learning. Discussion A disconnect exists between students’ interests and what is taught. Formats for presenting topics alienated students, making them feel judged if pursuing questions. The gap between the product desired and that delivered occurred across delivery platforms, syllabi, and textbooks. Translation to Health Education Practice: We heard praise for examples of active, skills-based learning. Students were eager to improve content and delivery and enumerated examples of how to make courses more relevant and applicable. Instructors may need to be better prepared in content, pedagogy, and health-based philosophy to accommodate the diverse student population at collegiate institutions. A AJHE Self-Study quiz is online for this article via the SHAPE America Online Institute (SAOI) http://portal.shapeamerica.org/trn-Webinars.
摘要背景许多机构提供个人健康入门课程以满足一般要求;然而,在健康教育和学生获得的信息以及他们发现的与生活相关的内容方面,可能存在差距。目的确定大学生在个人健康入门课程中的突出/相关主题,包括改进交付的建议。方法我们采访了完成个人健康入门课程的学生(18-25岁)。MAXQDA©用于组织响应研究问题的代码和主题。结果发现了与心理健康、运动、营养、压力、性健康和酒精物质使用有关的突发主题。与被动学习相比,学生更喜欢互动学习和减少伤害的方法。讨论学生的兴趣和所教内容之间存在脱节。呈现主题的形式疏远了学生,让他们在提问时感觉受到了评判。所需产品与交付产品之间的差距出现在交付平台、教学大纲和教科书上。健康教育实践:我们听到了对积极、基于技能的学习的赞扬。学生们渴望改进内容和交付,并列举了如何使课程更具相关性和适用性的例子。教员可能需要在内容、教学法和基于健康的哲学方面做好更好的准备,以适应大学机构中不同的学生群体。AJHE自学测验通过SHAPE美国在线研究所(SAOI)在线为本文提供http://portal.shapeamerica.org/trn-Webinars.
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引用次数: 0
A Partial Picture, Without a Frame: Measuring Quality of Life in Cystic Fibrosis Caregivers 部分图片,没有框架:测量囊性纤维化护理者的生活质量
IF 1 Q4 PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH Pub Date : 2023-03-31 DOI: 10.1080/19325037.2023.2186984
W. Nesser, Eun-Hye Grace Yi, Amy J. Wotring, M. Hutchins, Scott W. Snyder
ABSTRACT Background Significant advances in the treatment of Cystic Fibrosis (CF) have extended life expectancy, increasing the number of CF caregivers who deliver demanding daily treatment regimens and manage uncertainty. With the impact these changes have on CF caregivers, it is critical to understand CF caregiver quality of life (QoL). Purpose To examine how QoL is measured in CF caregiver research and identify which QoL domains from the World Health Organization (WHO) framework are represented in CF caregiver QoL outcomes. Methods Literature published from 2003 to the present was searched to identify all relevant articles in online academic databases related to measurement of CF caregiver QoL. Results Findings suggest there is inconsistency within QoL measurement with CF caregivers and no existing scale accounts for all aspects of CF caregiver QoL from the WHO’s framework. Discussion The disconnect between how CF caregiver QoL is measured and how it is defined presents a challenge in utilizing information gleaned to best provide targeted and relevant services and resources to CF caregivers. Translation to Health Education Practice: A better understanding of caregiver QoL across all WHO domains will allow development of targeted programs to adequately address challenges for CF caregivers.
摘要背景囊性纤维化(CF)治疗的重大进展延长了预期寿命,增加了CF护理人员的数量,他们提供了严格的日常治疗方案并管理了不确定性。鉴于这些变化对CF护理人员的影响,了解CF护理人员生活质量(QoL)至关重要。目的研究CF护理人员研究中QoL的测量方法,并确定世界卫生组织(世界卫生组织)框架中哪些QoL领域在CF护理人员QoL结果中有代表性。方法检索2003年至今发表的文献,找出在线学术数据库中与CF护理者生活质量测量相关的所有相关文章。结果研究结果表明,CF护理人员的生活质量测量存在不一致性,世界卫生组织框架中没有现有的CF护理人员生活质量各方面量表。讨论如何衡量CF护理人员生活质量与如何定义生活质量之间的脱节,对如何利用收集到的信息为CF护理人员提供有针对性的相关服务和资源提出了挑战。转化为健康教育实践:更好地了解世界卫生组织所有领域的护理人员生活质量将有助于制定有针对性的计划,以充分应对CF护理人员的挑战。
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引用次数: 1
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