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The views of people using homeless services about learning disability. 使用无家可归者服务的人对学习障碍的看法。
IF 1.5 4区 医学 Q2 EDUCATION, SPECIAL Pub Date : 2024-12-01 Epub Date: 2023-11-10 DOI: 10.1177/17446295231215412
Karen McKenzie, Ruth Robson, George Murray, Matt Kaczmar, Dale Metcalfe, Alex Shirley

Aims: People with a learning disability are at increased risk of becoming homeless, but little is known about how learning disability is viewed by people accessing homeless services. This study aimed to obtain the views of people experiencing homelessness about learning disability, in the context of a project that was exploring how to increase identification of learning disability.

Methods: A qualitative approach was used, and 19 adults were interviewed who were receiving support from homeless services in the North-East of England. Information from the interviews was analysed using thematic analysis.

Results: Four themes were identified relating to understanding of learning disability, the role of identification, day-to-day challenges, and experiences of services.

Conclusion: There is a need to: promote better understanding of learning disability; for early identification processes that involve the person in a meaningful way; and the provision of support that is non-stigmatising, practical and which addresses health concerns.

目的:学习障碍者无家可归的风险增加,但人们对获得无家可归者服务的人如何看待学习障碍知之甚少。这项研究旨在了解无家可归者对学习障碍的看法,结合一个探索如何增加对学习障碍识别的项目。方法:采用定性方法,对19名在英格兰东北部接受无家可归者服务支持的成年人进行了访谈。采用专题分析法对访谈资料进行了分析。结果:确定了四个主题,涉及对学习障碍的理解、识别的作用、日常挑战和服务经验。结论:有必要:促进对学习障碍的更好理解;以一种有意义的方式让人参与的早期识别过程;以及提供非污名化、务实和解决健康问题的支持。
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引用次数: 0
A study of the adaptation processes of individuals with intellectual disabilities and their mothers to COVID-19 restrictions. 智障人士及其母亲对 COVID-19 限制的适应过程研究。
IF 1.5 4区 医学 Q2 EDUCATION, SPECIAL Pub Date : 2024-12-01 Epub Date: 2023-09-07 DOI: 10.1177/17446295231200053
Büşra Süngü, Dilara Özer, Beyza Has, Irem Afitap Balta

In this study, it was aimed to examine the adaptation processes of individuals with intellectual disabilities and their mothers to COVID-19 restrictions. The research was designed in qualitative research method and focus group interview technique was used. The mothers of individuals with intellectual disabilities constitute the participant group of the study. A semi-structured interview form consisting of eight questions prepared by the researchers was used as a data collection tool. Data were collected through two focus group interviews via Zoom link. The data obtained were analyzed by content analysis method. As a result of the research, four themes were reached: "Life Before the Pandemic", "Encountering the Pandemic", "Effects of the Pandemic", and "Facilitation in the Adaptation Process to the Pandemic". As a result, although COVID-19 restrictions led to the regression of some skills of individuals with intellectual disabilities, it created an opportunity for them to develop new interests. In addition, although there were supports that facilitated the pandemic process, it was determined that mothers needed even more psychological support during this period.

本研究旨在探讨智障人士及其母亲对 COVID-19 限制的适应过程。研究采用定性研究方法,并使用焦点小组访谈技术。智障人士的母亲构成了本研究的参与群体。研究人员使用了由八个问题组成的半结构化访谈表作为数据收集工具。通过 Zoom 链接进行的两次焦点小组访谈收集了数据。研究人员采用内容分析法对所获得的数据进行了分析。研究得出了四个主题:"大流行前的生活"、"遭遇大流行"、"大流行的影响 "和 "大流行适应过程中的促进"。因此,尽管 COVID-19 的限制导致智障人士的某些技能退步,但却为他们创造了发展新兴趣的机会。此外,虽然有一些支持措施促进了大流行病的进程,但据确定,母亲们在此期间需要更多的心理支持。
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引用次数: 0
Usefulness of interactive video-based instruction on learning performance in relation to cognitive development of children with moderate intellectual disability. 基于互动视频的教学对中度智力残疾儿童学习表现的有用性与认知发展的关系。
IF 1.5 4区 医学 Q2 EDUCATION, SPECIAL Pub Date : 2024-12-01 Epub Date: 2023-09-20 DOI: 10.1177/17446295231202021
Munmi Barman, Ananta Kumar Jena

The usefulness of information and communication technology has been witnessed around the globe with the occurrence of rapid changes in the field of education i.e. through the formal or informal way. For this, the researchers have assessed Interactive video-based instruction (IVBI) on (N = 95; males = 47 & females = 48 age range between 12 and 15 years) moderate intellectual disability children in Guwahati, Assam, India from three day-care rehabilitation centres. The main objective was to examine the effect of IVBI intervention (IIVBI & CIVBI) on academic performance in association with the cognitive development of children with moderate intellectual disability in a comfortable setting within working hours. The findings conclude that children in the CIVBI group performed more actively as compared to IIVBI and comparison group, and it was due to the involvement of video-based instruction that helped understand the topic more precisely and acts effectively for CIVBI children in an experimental setting.

随着教育领域的迅速变化,即通过正式或非正式的方式,信息和通信技术在全球范围内都发挥了作用。为此,研究人员评估了印度阿萨姆邦古瓦哈提三个日托康复中心对(N=95;男性=47,女性=48,年龄在12至15岁之间)中度智障儿童的交互式视频教学(IVBI)。主要目的是研究IVBI干预(IIVBI和CIVBI)对中度智力残疾儿童在舒适的工作时间内的学习成绩和认知发展的影响。研究结果表明,与IIVBI和对照组相比,CIVBI组的儿童表现更积极,这是由于视频教学的参与有助于更准确地理解主题,并在实验环境中对CIVBI儿童起到有效的作用。
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引用次数: 0
Transitions. 过渡。
IF 1.5 4区 医学 Q2 EDUCATION, SPECIAL Pub Date : 2024-12-01 Epub Date: 2024-11-05 DOI: 10.1177/17446295241299170
Fintan Sheerin
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引用次数: 0
The effect of increasing exercise in the intellectually disabled community. 增加智障人士锻炼的效果。
IF 1.5 4区 医学 Q2 EDUCATION, SPECIAL Pub Date : 2024-12-01 Epub Date: 2023-08-30 DOI: 10.1177/17446295231199805
Yasmine S Ghattas, Joshua Cassinat, Cassidy M Foley Davelaar

Background: Intellectually disabled individuals have been observed to lead sedentary lifestyles resulting in poor health. Physical fitness has been positively correlated to better health outcomes with small changes in fitness translating to major health changes among unfit older adults with intellectual disability. However, there is currently no literature on safe exercise regimens for the intellectually disabled population.

Methods: In this article, a retrospective review was conducted using the Special Olympics Athlete database and analyzed the mean differences of various performance metrics based on self-reported exercise frequency.

Results: These results demonstrated that those who exercised daily performed significantly better in flexibility, static balance and functional strength as compared to those who did not exercise. No statistically significant differences were found among athletes and self-reported exercise frequency for aerobic fitness.

Conclusion: Overall, these findings suggest that 3-6 days-a-week of moderate exercise would be a recommended exercise dose to see significant improvement in performance and physiological adaptations.

背景:据观察,智障人士久坐不动的生活方式会导致健康状况不佳。体能与更好的健康状况呈正相关,体能的微小变化会给体能不佳的智障老年人带来重大的健康变化。然而,目前还没有关于智障人群安全运动方案的文献:本文利用特奥会运动员数据库进行了一项回顾性研究,并根据自我报告的运动频率分析了各种性能指标的平均差异:结果表明,与不锻炼的人相比,每天锻炼的人在柔韧性、静态平衡和功能性力量方面的表现明显更好。在有氧健身方面,运动员和自我报告的运动频率之间没有发现明显的统计学差异:总之,这些研究结果表明,每周进行 3-6 天的适度运动是一个值得推荐的运动剂量,这样可以显著提高运动表现和生理适应能力。
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引用次数: 0
SALUDIVERSEX: A quality of life and sexual health intervention for adults with mild intellectual disabilities. SALUDIVERSEX:针对轻度智障成人的生活质量和性健康干预措施。
IF 1.5 4区 医学 Q2 EDUCATION, SPECIAL Pub Date : 2024-12-01 Epub Date: 2023-08-16 DOI: 10.1177/17446295231196258
María Dolores Gil-Llario, Vicente Morell-Mengual, Olga Fernández-García, Verónica Estruch-García, Rafael Ballester-Arnal

Individuals with intellectual disabilities need an affective and sexual education adapted to their characteristics. There are few interventions that meet these objectives and offer empirical evidence of their efficacy. To respond to the limitations of existing interventions, an evidence-based affective-sexual educational intervention for adults with a mild degree of intellectual disability is proposed: SALUDIVERSEX. Participants will be randomly assigned to an intervention group that will receive the SALUDIVERSEX program or to a waiting list group. The intervention will be implemented by educators of occupational centers after a thorough training phase. Our main hypothesis is that the SALUDIVERSEX program will improve the sexual health and quality of life, through the joint action built into three components: the acquisition of basic information, the development of skills and strategies and the achievement of healthy attitudes towards the experience and expression of sexuality. The results of this approach could have important implications for optimizing the quality of life and self-determination of individuals with Intellectual disability by contributing to the development of healthy sexuality.

智障人士需要适合其特点的情感教育和性教育。目前,很少有干预措施能达到这些目标,并提供其有效性的实证证据。针对现有干预措施的局限性,我们提出了一种针对轻度智障成人的基于实证的情感和性教育干预措施:SALUDIVERSEX。参与者将被随机分配到接受 SALUDIVERSEX 计划的干预组或候补组。干预措施将由职业中心的教育工作者在经过全面培训后实施。我们的主要假设是,SALUDIVERSEX 计划将通过由三个部分组成的联合行动来改善性健康和生活质量:获取基本信息、发展技能和策略,以及对性的体验和表达采取健康的态度。这种方法的结果可能会对优化智障人士的生活质量和自决能力产生重要影响,促进健康性生活的发展。
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引用次数: 0
Associations between motor competence and physical activity levels of children with intellectual disabilities and/or autism spectrum disorder: Movement matters. 智力残疾和/或自闭症谱系障碍儿童的运动能力与身体活动水平之间的关系:运动很重要。
IF 1.5 4区 医学 Q2 EDUCATION, SPECIAL Pub Date : 2024-12-01 Epub Date: 2023-09-20 DOI: 10.1177/17446295231203764
Sarah L Taylor, Samantha J Downs, James R Rudd, Bronagh McGrane, Craig A Melville, Arlene M McGarty, Lynne M Boddy, Lawrence Foweather

Motor competence is important for lifelong physical activity (PA). The current study aimed to examine associations between PA and motor competence. In total, 43 children aged 7-12 years with intellectual disabilities and/or autism spectrum disorder completed anthropometric measures, the Bruininks-Oseretsky Test of Motor Proficiency-2, and wore a wrist accelerometer to capture total PA, moderate-to-vigorous PA (MVPA), average acceleration, and intensity gradient. No significant associations were found between PA outcomes and motor competence. Motor competence performance was commonly 'below average' or 'average'. The weakest subtests were upper limb coordination and strength. The strongest subtest was running speed and agility. Total weekly MVPA was 336.1 ± 150.3 min, higher than UK recommendations of 120-180 per week for disabled children and young people. Larger scale studies are needed to better understand the relationship between PA and motor competence. Future research should also consider the influence of environmental factors on PA in this group.

运动能力对终身体育活动(PA)很重要。目前的研究旨在检验PA和运动能力之间的关系。总共有43名7-12岁的智力残疾和/或自闭症谱系障碍儿童完成了人体测量,即Bruininks-Oseretsky运动能力测试-2,并佩戴了手腕加速计来捕捉总PA、中度至剧烈PA(MVPA)、平均加速度和强度梯度。PA结果与运动能力之间没有发现显著的相关性。运动能力表现通常“低于平均水平”或“平均水平”。最弱的子测验是上肢协调和力量。最有力的测试是跑步速度和灵活性。每周总MVPA为336.1±150.3分钟,高于英国对残疾儿童和年轻人每周120-180分钟的建议。需要更大规模的研究来更好地理解PA和运动能力之间的关系。未来的研究还应考虑环境因素对该群体PA的影响。
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引用次数: 0
Parenting Behaviors and Parental self-efficacy: A comparative study of parents of children with intellectual disabilities and typically developing children. 父母行为与父母自我效能感:智障儿童与正常发育儿童父母的比较研究。
IF 1.5 4区 医学 Q2 EDUCATION, SPECIAL Pub Date : 2024-12-01 Epub Date: 2023-11-13 DOI: 10.1177/17446295231215414
Emre Laçin, Betül Gökçen Doğan

Purpose: The aim of this study was to investigate the parenting behaviors and parental self-efficacy of parents of typically developing and child with an intellectual disability, considering their children's groups of with or without intellectual disability and other relevant variables. The study involved 1194 parents with children aged 3-6 years, of whom 521 parents had children with intellectual disabilities and the remaining 673 parents had typically developing children.

Method: The data collection instruments used in this study were the Parental Behavior Scale Short Form and Parental Efficacy Scale. A t-test was used to compare parenting behavior and parental efficacy according to the child with or without an intellectual disability. In addition, MANOVA was used to compare parenting behavior and parental efficacy in relation to parents' level of education and to examine the possible interaction effect between these two independent variables.

Results: The findings indicate that parents of typically developing children exhibit more positive parenting behaviors than parents of children with intellectual disabilities. However, the negative parenting behaviors of both groups were similar. In terms of parenting self-efficacy, parents of children with intellectual disabilities display higher self-efficacy than parents of typically developing children. The study also investigated whether there was a common effect in relation to child with or without an intellectual disability and parental education level, but no common effect was observed.

Conclusion: Positive parenting behaviors and parental self-efficacy differed according to whether child with or without an intellectual disability.

目的:本研究的目的是探讨正常发育儿童父母和智力残疾儿童父母的教养行为和父母自我效能感,考虑其子女的智力残疾群体和非智力残疾群体等相关变量。这项研究涉及1194名3-6岁孩子的父母,其中521名父母的孩子有智力障碍,其余673名父母的孩子发育正常。方法:本研究采用父母行为量表简表和父母效能量表作为数据收集工具。采用t检验比较不同智力障碍儿童的教养行为和教养效能。此外,运用多元方差分析比较父母教养行为和父母效能与父母受教育程度的关系,并检验这两个自变量之间可能存在的交互效应。结果:正常发育儿童的父母比智力障碍儿童的父母表现出更积极的育儿行为。然而,两组的消极育儿行为是相似的。在父母自我效能感方面,智力障碍儿童的父母比正常发育儿童的父母表现出更高的自我效能感。该研究还调查了是否存在与儿童是否有智力残疾和父母教育水平有关的共同影响,但没有观察到共同影响。结论:智力障碍儿童的积极父母行为和父母自我效能感存在差异。
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引用次数: 0
"A little bit more challenging, but more rewarding": Medical-surgical nurses' perspectives on caring for adults with intellectual disabilities. "更具挑战性,但更有价值":内外科护士对护理智障成人的看法。
IF 1.5 4区 医学 Q2 EDUCATION, SPECIAL Pub Date : 2024-11-28 DOI: 10.1177/17446295241304135
Melissa L Desroches, Kathleen Fisher, Denise Daudelin

Background: Despite their central role in hospital care, little research has explored medical-surgical nurses' perspectives on the rewarding aspects of and significant influences on caring for adults with intellectual disabilities, even though they are key to understanding this population's inequitable hospital outcomes. Methods: A qualitative descriptive design was used, and interviews were conducted with 13 medical-surgical nurses from the United States. Manifest content analysis was used to analyze the interview transcripts and categorize findings. Results: Five categories of significant influences: Preparedness to Care for People with Intellectual Disabilities, Communication, Caregiver Involvement, Ethical Concerns, and Context of Care, and four categories of rewards: Connecting, Making a Difference, Enjoyment, and Learning Opportunity, were revealed. Conclusion: Medical-surgical nurses derive meaning from connecting with and making a difference in the lives of hospitalized adults with intellectual disabilities, but face barriers to providing high-quality nursing care, resulting in dehumanized, delayed, or missed care.

背景:尽管内外科护士在医院护理中发挥着核心作用,但很少有研究探讨她们对护理智障成人的回报方面和重要影响因素的看法,尽管她们是了解这一人群不公平的医院治疗结果的关键。研究方法采用定性描述设计,对来自美国的 13 名内科外科护士进行了访谈。采用显性内容分析法对访谈记录进行分析,并对结果进行分类。结果显示五类重要影响因素:护理智障人士的准备情况、沟通、护理人员的参与、伦理问题和护理环境,以及四类奖励:揭示了 "联系"、"改变"、"享受 "和 "学习机会 "四类奖励。结论内外科护士从与住院成年智障人士的联系和改变他们的生活中获得了意义,但在提供高质量护理方面却面临着障碍,导致护理缺乏人情味、延误或遗漏。
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引用次数: 0
Our path together: Development of the inclusive parenting goals questionnaire. 我们一起走过的路开发包容性育儿目标问卷。
IF 1.5 4区 医学 Q2 EDUCATION, SPECIAL Pub Date : 2024-11-28 DOI: 10.1177/17446295241304463
Ines Van Keer, Bea Maes

Background: Instruments on parenting goals are often outdated and don't consider goals related to capabilities and needs of children with (severe) disabilities. This study aimed to develop an inclusive questionnaire on parenting goals applicable to parents of all children (0-21 years). Method: The iterative development process relied on academic and experiential expertise of parents and professionals; and included consultation of relevant literature, interviews with 6 parents of a child with severe to profound intellectual disabilities, a feedback round with diverse stakeholders, and a pilot study. Results: The Inclusive Parenting Goals Questionnaire (IPGQ) is a 99-item summated rating scale demonstrating high face and content validity. A renewed and inclusive definition of parenting goals was formulated, alongside extensive reflection on theoretically robust and practically relevant categorization. Discussion: The IPGQ is suitable for gaining insight into parents goal patterns and differentiating between (various groups of) parents. It also provides a basis for further discussion and elaboration.

背景:有关养育目标的工具往往已经过时,而且没有考虑到与(重度)残疾儿童的能力和需求相关的目标。本研究旨在开发一份适用于所有儿童(0-21 岁)父母的包容性养育目标问卷。方法:迭代开发过程依赖于家长和专业人士的学术和经验专业知识;包括查阅相关文献、与 6 位重度至极度智障儿童的家长进行访谈、与不同利益相关者进行一轮反馈,以及进行试点研究。结果:全纳育儿目标问卷(IPGQ)是一个由 99 个项目组成的总和式评分量表,具有很高的面效度和内容效度。对养育目标进行了新的包容性定义,并对理论上可靠且与实际相关的分类进行了广泛思考。讨论IPGQ 适用于深入了解父母的目标模式和区分(不同群体的)父母。它还为进一步讨论和阐述提供了基础。
{"title":"Our path together: Development of the inclusive parenting goals questionnaire.","authors":"Ines Van Keer, Bea Maes","doi":"10.1177/17446295241304463","DOIUrl":"https://doi.org/10.1177/17446295241304463","url":null,"abstract":"<p><p><b>Background:</b> Instruments on parenting goals are often outdated and don't consider goals related to capabilities and needs of children with (severe) disabilities. This study aimed to develop an inclusive questionnaire on parenting goals applicable to parents of all children (0-21 years). <b>Method:</b> The iterative development process relied on academic and experiential expertise of parents and professionals; and included consultation of relevant literature, interviews with 6 parents of a child with severe to profound intellectual disabilities, a feedback round with diverse stakeholders, and a pilot study. <b>Results:</b> The Inclusive Parenting Goals Questionnaire (IPGQ) is a 99-item summated rating scale demonstrating high face and content validity. A renewed and inclusive definition of parenting goals was formulated, alongside extensive reflection on theoretically robust and practically relevant categorization. <b>Discussion:</b> The IPGQ is suitable for gaining insight into parents goal patterns and differentiating between (various groups of) parents. It also provides a basis for further discussion and elaboration.</p>","PeriodicalId":46904,"journal":{"name":"Journal of Intellectual Disabilities","volume":" ","pages":"17446295241304463"},"PeriodicalIF":1.5,"publicationDate":"2024-11-28","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142740982","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
期刊
Journal of Intellectual Disabilities
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