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Self-determination in later life: Insights from the voices of older adults with intellectual disabilities in Chilean context. 晚年生活中的自我决定:来自智利背景下智障老年人声音的见解。
IF 1.4 4区 医学 Q2 EDUCATION, SPECIAL Pub Date : 2026-01-23 DOI: 10.1177/17446295261418076
Izaskun Álvarez-Aguado, Vanessa Vega, Miguel Roselló-Peñaloza, Félix González-Carrasco, Felipe Muñoz La Rivera, Herbert Spencer, Maryam Farhang

Background: Although disability rights have expanded, ageing continues to impose relational and structural barriers that restrict self-determination among older adults with intellectual disabilities, especially in Latin American contexts. Method: This study explored the experiences of self-determination among older adults with intellectual disabilities living in community settings in Chile. A qualitative, exploratory design was applied. Semi-structured interviews were conducted with 105 participants aged 45-85 years from family homes, day centers, and supported living programs. Data were analysed using reflexive thematic analysis guided by the Theory of Causal Agency. Results: Participants reported highly variable opportunities for daily decision-making. Respectful listening, communicative accessibility, and flexible supports fostered emotional well-being and motivation, while rigid routines, overprotection, and communication barriers constrained autonomy. Conclusions: Self-determination in later life is relationally and structurally mediated. Strengthening individualized, consistent decision-making opportunities is essential to promote dignity, agency, and social inclusion among ageing adults with intellectual disabilities.

背景:虽然残疾人权利已经扩大,但老龄化继续造成关系和结构性障碍,限制了智力残疾老年人的自决,特别是在拉丁美洲国家。方法:本研究探讨了生活在智利社区环境中的智力残疾老年人的自我决定经历。采用定性、探索性设计。对105名年龄在45-85岁之间的参与者进行了半结构化访谈,他们来自家庭住宅、日间中心和支持生活项目。数据分析采用因果代理理论指导下的反身性主题分析。结果:参与者报告了日常决策的高度可变机会。尊重的倾听、交流的可及性和灵活的支持促进了情感的健康和动力,而僵化的惯例、过度保护和沟通障碍则限制了自主性。结论:晚年的自我决定受关系和结构的调节。加强个性化的、一致的决策机会对于促进智力残疾老年人的尊严、能动性和社会包容至关重要。
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引用次数: 0
Preparation for postsecondary education of transition aged youth with intellectual disability and autism spectrum disorder in the United States: An Analysis of data from the national longitudinal transition study 2012. 美国智障和自闭症谱系障碍过渡年龄青年的高等教育准备:2012年全国纵向过渡研究数据分析。
IF 1.4 4区 医学 Q2 EDUCATION, SPECIAL Pub Date : 2025-12-01 Epub Date: 2023-12-05 DOI: 10.1177/17446295231220093
Meg Grigal, Clare Papay, Alberto Migliore, Belkis Choiseul-Praslin, Jie Chen

Youth with intellectual disability and autism spectrum disorder increasingly access postsecondary education in many countries around the world. To ensure students are ready to access these options, preparation for postsecondary education must be part of their transition services. This study examines the postsecondary education preparation experiences of youth with intellectual disability and autism using the National Longitudinal Transition Study 2012 dataset to identify the extent to which these youth are accessing preparation activities and if this preparation differs from youth in other groups. Findings indicate few differences between the postsecondary education preparation of youth with intellectual disability and autism and autism without intellectual disability but highlight substantial differences in several preparation activities when compared with youth in other groups.

在世界许多国家,有智力残疾和自闭症谱系障碍的青年越来越多地接受中学后教育。为了确保学生准备好获得这些选择,为高等教育做准备必须是他们过渡服务的一部分。本研究使用NLTS 2012数据集考察了智障和自闭症青年的高等教育准备经历,以确定这些青年参与准备活动的程度,以及这种准备是否与其他群体的青年不同。研究结果表明,智障青少年、自闭症青少年和无智障自闭症青少年在中学后教育准备方面差异不大,但与其他群体的青少年相比,在一些准备活动上存在显著差异。
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引用次数: 0
Social assets and the career intent of teachers serving students with extensive support needs. 社会资产与为有广泛支助需求的学生服务的教师的职业意向。
IF 1.4 4区 医学 Q2 EDUCATION, SPECIAL Pub Date : 2025-12-01 Epub Date: 2024-07-20 DOI: 10.1177/17446295241267088
LaRon A Scott, Kristin A Gansle, Selena J Layden, Colleen A Thoma

Decades of research indicate social support is vital for retaining teachers. However, little is known about social support for teachers serving students with extensive support needs. The purpose of this study was to explore whether collective social assets (administrative support, colleague support, paraeducator support, school culture) were associated with retaining special education teachers (SETs) who serve students with extensive support needs (e.g., intellectual disability, autism). Stepwise regression analyses and Analysis of Variance (ANOVA) were used to analyze survey data from SETs across the United States. Results showed that positive social supports are critical, and teachers serving students with autism reported the highest levels of social support in three of the four social assets categories. Implications for future research and practice are discussed, as well as a need to promote and better understand positive school culture as this variable weighed heavily across SETs.

数十年的研究表明,社会支持对留住教师至关重要。然而,人们对为有广泛支持需求的学生服务的教师的社会支持知之甚少。本研究旨在探讨集体社会资产(行政支持、同事支持、辅助教师支持、学校文化)是否与留住为有广泛支持需求(如智障、自闭症)的学生服务的特殊教育教师(SETs)相关。我们采用逐步回归分析和方差分析(ANOVA)对全美特殊教育教师的调查数据进行了分析。结果显示,积极的社会支持至关重要,在四个社会资产类别中,为自闭症学生服务的教师在三个类别中报告的社会支持水平最高。研究还讨论了未来研究和实践的意义,以及促进和更好地理解积极的学校文化的必要性,因为这一变量在各个特殊教育机构中占很大比重。
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引用次数: 0
Embark on the adventure! Advancing inclusive secondary education through narrative game learning for students with intellectual disabilities. 开始冒险!通过智障学生的叙事游戏学习推进全纳中学教育。
IF 1.4 4区 医学 Q2 EDUCATION, SPECIAL Pub Date : 2025-12-01 Epub Date: 2024-11-23 DOI: 10.1177/17446295241302400
José Miguel Rodríguez-Ferrer, Ana Manzano-León, Anastasio García-Roca, Raquel Soler-Delgado

This study explores Universal Design for Learning (UDL) and Game-Based Learning (GBL) to promote the inclusion of secondary school students with intellectual disabilities. Through qualitative methods, including participant observation and post-workshop interviews, the impact of these methodologies was assessed on 31 students, including 5 with intellectual disabilities. The findings highlight how these methodologies enhance accessibility, motivation, and learning outcomes, developing narrative skills and fostering creativity. Challenges in curriculum integration and active student participation are also addressed. This study underscores the transformative potential of UDL and GBL in inclusive education, significantly improving the educational experience for students of varying abilities.

本研究探讨了通用学习设计(UDL)和基于游戏的学习(GBL),以促进智障中学生的融入。通过定性方法,包括参与观察和工作坊后访谈,评估了这些方法对 31 名学生(包括 5 名智障学生)的影响。研究结果强调了这些方法如何提高无障碍环境、动机和学习成果,如何发展叙事技能和培养创造力。研究还探讨了课程整合和学生积极参与方面的挑战。这项研究强调了 "通识教育法 "和 "全纳学习法 "在全纳教育中的变革潜力,极大地改善了不同能力学生的教育体验。
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引用次数: 0
Outcomes for children with autism spectrum disorder and their families after two years of school based early intensive behavioural intervention. 自闭症谱系障碍儿童及其家庭在接受为期两年的校本早期强化行为干预后取得的成果。
IF 1.4 4区 医学 Q2 EDUCATION, SPECIAL Pub Date : 2025-12-01 Epub Date: 2024-02-12 DOI: 10.1177/17446295241231039
Ian Grey, Deirdre Brennan, Brettjet Cody

The effectiveness of a school based Early Intensive Behavioural Intervention (EIBI) program was assessed over a two-year period for a cohort of 16 pre-school children with autism spectrum disorder (ASD) and their families. Children with a mean age of 40 months, were assessed prior to intervention, after 1 year of intervention, and again after 2 years. Significant improvements were observed on measures of adaptive behaviour, communication ability and challenging behaviour. Parents of children attending the program also reported increased familial quality of life, specifically improved emotional and physical well-being and increased parenting capacity over the duration of the program. The current study suggests that EIBI for young children with ASD can be effective in facilitating improvements in communication ability, reducing challenging behaviours and improving quality of life for families. Children's pre-intervention adaptive skills appeared to be the strongest predictor of post intervention gains as initial level of adaptive ability was positively related to improved post-intervention outcomes.

我们对 16 名患有自闭症谱系障碍(ASD)的学龄前儿童及其家庭进行了为期两年的学校早期强化行为干预(EIBI)计划效果评估。接受评估的儿童平均年龄为 40 个月,分别在干预前、干预 1 年后和 2 年后接受评估。在适应行为、沟通能力和挑战行为等方面的测量结果显示,儿童的自闭症谱系障碍表现有了明显改善。参加该计划的儿童的家长还报告说,他们的家庭生活质量得到了提高,特别是在该计划实施期间,他们的情绪和身体健康得到了改善,为人父母的能力也得到了提高。目前的研究表明,针对患有自闭症的幼儿开展的 EIBI 可以有效促进沟通能力的提高,减少挑战性行为,改善家庭生活质量。儿童干预前的适应能力似乎是预测干预后成果的最有力因素,因为最初的适应能力水平与干预后成果的改善呈正相关。
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引用次数: 0
Self-perception of learning basic skills in the use of information and communications technology in university students with intellectual disabilities. 智障大学生学习资讯通讯科技基本技能的自我认知。
IF 1.4 4区 医学 Q2 EDUCATION, SPECIAL Pub Date : 2025-12-01 Epub Date: 2023-08-17 DOI: 10.1177/17446295231196205
Joanne Mampaso Desbrow, Ángel Vicario-Merino, Margarita Alonso Criado, Marina Gómez de Quero Córdoba

Educational transformation in the university environment requires updating the basic skills of all university students to the educational moment in which they find themselves. This study aimed to determine the basic skills in the use of information and communications technology that were identified as known, both conceptually and procedurally, in 15 university students with intellectual disabilities. To ascertain the importance of digital skills and information and communications technology tools, a descriptive, cross-sectional, pre-post study was conducted. Descriptive results and statistical analyses are presented with a t-test for independent samples for the variables with a normal distribution, assuming a hypothesis that the post values would be greater than those obtained pre. It was confirmed that there is an increase in the perceived procedural knowledge and skills in different digital tools based on participants' self-perception (p < 0.0001).

大学环境下的教育转型要求将所有大学生的基本技能更新到他们所处的教育时刻。本研究旨在确定15名智障大学生在使用信息和通信技术方面的基本技能,这些技能在概念上和程序上都是已知的。为了确定数字技能和信息和通信技术工具的重要性,进行了一项描述性、横断面、事后研究。描述性结果和统计分析是通过对正态分布变量的独立样本进行t检验提出的,假设后值大于预值。研究证实,基于参与者的自我感知,不同数字工具的程序性知识和技能的感知有所增加(p < 0.0001)。
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引用次数: 0
Editorial - December 2025. 社论- 2025年12月。
IF 1.4 4区 医学 Q2 EDUCATION, SPECIAL Pub Date : 2025-12-01 Epub Date: 2025-10-24 DOI: 10.1177/17446295251392019
Mary-Ann O'Donovan
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引用次数: 0
How differentiated can a new tablet-based reading screening measure the reading proficiency of students with intellectual disabilities? Comparing the impact of disability, disability type and grade level on reading skills. 基于平板电脑的新型阅读筛查能如何区分智障学生的阅读能力?比较残疾、残疾类型和年级对阅读能力的影响。
IF 1.4 4区 医学 Q2 EDUCATION, SPECIAL Pub Date : 2025-12-01 Epub Date: 2024-09-08 DOI: 10.1177/17446295241282750
Nikola Ebenbeck, Peter Zentel, Markus Gebhardt

All people have the right to learn reading. Understanding the factors influencing reading proficiency among students with intellectual disabilities is important for developing effective instructions. To accurately assess reading, suitable assessments that can effectively differentiate between low performance levels are necessary. We analyse results of 400 students (43 students with intellectual disabilities) in a digital reading screening and investigate the influence of disability severity, grade level and special educational needs status on the reading abilities of students with intellectual disabilities. The results indicate that the screening is suitable for assessing students with intellectual disabilities. A newly developed digital screening test for flash reading measures reliably. All presumed factors significantly impact the reading proficiency. However, substantial overlap exists between students with intellectual disabilities and those with other special needs. The necessity for structured reading interventions, irrespective of the disability label, and the importance of appropriate assessments for all students are discussed.

所有人都有学习阅读的权利。了解影响智障学生阅读能力的因素对于制定有效的指导非常重要。要准确评估阅读能力,就必须有合适的、能有效区分低水平表现的评估方法。我们分析了 400 名学生(43 名智障学生)的数字阅读筛查结果,并研究了残疾严重程度、年级和特殊教育需要状况对智障学生阅读能力的影响。结果表明,该筛查适用于智障学生的评估。新开发的闪读数字筛查测试测量结果可靠。所有假定因素都会对阅读能力产生重大影响。然而,智障学生与有其他特殊需要的学生之间存在大量重叠。本文讨论了不论残疾标签如何,进行结构化阅读干预的必要性,以及对所有学生进行适当评估的重要性。
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引用次数: 0
Curriculum effectiveness for secondary-aged students with severe intellectual disabilities or profound and multiple learning difficulties in Australia: Teacher perspectives. 澳大利亚严重智障或有深度和多重学习困难的中学适龄学生的课程有效性:教师的观点。
IF 1.4 4区 医学 Q2 EDUCATION, SPECIAL Pub Date : 2025-12-01 Epub Date: 2024-01-24 DOI: 10.1177/17446295241228729
Tess Rendoth, Jill Duncan, Judith Foggett, Kim Colyvas

The active inclusion of students within education systems relies on a curriculum that caters to all. This article presents partial findings from Australian mixed methods research examining 46 teacher perspectives on the curriculum and its ability to support their practice in supporting students aged 12-19 years with severe intellectual disability or profound and multiple learning difficulties who attend specialist school settings. Results reveal that Australian teachers see the current curriculum as insufficient in its design and content and unable to cater to their students educational and social capacities or needs. Strengths essential to the reform process are highlighted, emergent challenges discussed and recommendations for future action are presented.

在教育系统中,学生的积极融入有赖于面向所有人的课程设置。本文介绍了澳大利亚混合方法研究的部分结果,该研究考察了 46 名教师对课程的看法,以及课程能否支持他们为 12-19 岁有严重智力障碍或深度和多重学习困难、在特殊学校就读的学生提供支持的实践。研究结果显示,澳大利亚教师认为目前的课程在设计和内容上存在不足,无法满足学生的教育和社会能力或需求。报告强调了改革进程中不可或缺的优势,讨论了新出现的挑战,并提出了未来行动建议。
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引用次数: 0
The validity of learning potential for predicting educational adjustment in preschoolers with Down syndrome: A longitudinal study. 学习潜能对预测唐氏综合征学龄前儿童教育适应性的有效性:纵向研究
IF 1.4 4区 医学 Q2 EDUCATION, SPECIAL Pub Date : 2025-12-01 Epub Date: 2024-03-18 DOI: 10.1177/17446295241239984
Maria Auxiliadora Robles-Bello, Francisca Barba-Colmenero, Nieves Valencia-Naranjo, David Sánchez-Teruel

Learning Potential tests aim to assess cognitive functioning using mediation strategies by observing subsequent changes in learning patterns. In this study, this methodology was applied with the Preschool Learning Potential and Abilities Scale and two additional tests, the Kaufman Brief Intelligence Test and the Battery of Aptitudes for School Learning I, to a total of 58 children with Down Syndrome, at four and six years of age. The results demonstrate improvements in general intelligence, learning potential, and school aptitudes between the two timepoints. There was a significant, positive relationship between the variables measured in the different tests, as well as on the predictive variables of school aptitudes, in these children at six years of age. There is evidence that supports the use of this dynamic evaluation methodology, opening new fields of action in child evaluation processes.

学习潜能测试旨在通过观察学习模式的后续变化,利用中介策略评估认知功能。本研究将这一方法与 "学前学习潜能和能力量表 "以及另外两个测试--"考夫曼简易智力测验 "和 "学校学习能力测验 I"--一起应用于 58 名唐氏综合症儿童的四岁和六岁测试中。结果表明,在这两个时间点之间,唐氏综合症儿童的一般智力、学习潜能和学校学习能力都有所提高。在这些儿童六岁时,不同测试所测得的变量之间,以及学校能力倾向的预测变量之间,都存在着明显的正相关关系。有证据支持使用这种动态评价方法,为儿童评价工作开辟了新的行动领域。
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引用次数: 0
期刊
Journal of Intellectual Disabilities
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