首页 > 最新文献

Journal of Intellectual Disabilities最新文献

英文 中文
Transition from sheltered workplace: Vocational skills are not the main concern. 从庇护工作场所过渡:职业技能不是主要问题。
IF 1.5 4区 医学 Q2 EDUCATION, SPECIAL Pub Date : 2024-12-01 Epub Date: 2023-08-02 DOI: 10.1177/17446295231193190
Ahmet Bilal Özbek, Alev Girli

The aim of this study was to investigate the transition of employees with intellectual disabilities to inclusive work environments from sheltered workplaces. The study was conducted in a sheltered workplace in Turkey for people with intellectual disabilities. Data was collected from 71 participants in interviews. Interviews were conducted with employees (n = 28), families of employees (n = 24), company human resource managers (n = 8), sheltered workshop foremen (n = 7), and special education teachers (n = 4). The study group asked about the future of the sheltered workplace and participants' views on transition to inclusive work environments. The answers of the participants were analysed using thematic analysis. Findings showed that many participants had positive views about transition along with concerns about accidents and security problems that may occur in inclusive environments. It was observed that negative attitudes and views were related with lack of knowledge about inclusive work environment conditions.

本研究旨在调查智障员工从庇护性工作场所向包容性工作环境过渡的情况。研究在土耳其一家为智障人士提供庇护的工作场所进行。通过访谈收集了 71 名参与者的数据。访谈对象包括员工(28 人)、员工家属(24 人)、公司人力资源经理(8 人)、庇护工场领班(7 人)和特殊教育教师(4 人)。研究小组询问了庇护工作场所的未来以及参与者对过渡到全纳工作环境的看法。使用主题分析法对参与者的回答进行了分析。研究结果表明,许多参与者对过渡持积极态度,同时也对包容性环境中可能发生的事故和安全问题表示担忧。据观察,消极的态度和观点与缺乏对包容性工作环境条件的了解有关。
{"title":"Transition from sheltered workplace: Vocational skills are not the main concern.","authors":"Ahmet Bilal Özbek, Alev Girli","doi":"10.1177/17446295231193190","DOIUrl":"10.1177/17446295231193190","url":null,"abstract":"<p><p>The aim of this study was to investigate the transition of employees with intellectual disabilities to inclusive work environments from sheltered workplaces. The study was conducted in a sheltered workplace in Turkey for people with intellectual disabilities. Data was collected from 71 participants in interviews. Interviews were conducted with employees (<i>n</i> = 28), families of employees (<i>n</i> = 24), company human resource managers (<i>n</i> = 8), sheltered workshop foremen (<i>n</i> = 7), and special education teachers (<i>n</i> = 4). The study group asked about the future of the sheltered workplace and participants' views on transition to inclusive work environments. The answers of the participants were analysed using thematic analysis. Findings showed that many participants had positive views about transition along with concerns about accidents and security problems that may occur in inclusive environments. It was observed that negative attitudes and views were related with lack of knowledge about inclusive work environment conditions.</p>","PeriodicalId":46904,"journal":{"name":"Journal of Intellectual Disabilities","volume":" ","pages":"925-939"},"PeriodicalIF":1.5,"publicationDate":"2024-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9926518","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Pushing the boundaries of digital social contact: Experiences of people with disabilities and their social networks during the COVID-19 pandemic. 突破数字社交接触的界限:新冠肺炎大流行期间残疾人及其社交网络的经历。
IF 1.5 4区 医学 Q2 EDUCATION, SPECIAL Pub Date : 2024-12-01 Epub Date: 2023-10-25 DOI: 10.1177/17446295231210021
Lianne Bakkum, Lotte Piekema, Linda Douma, Carlo Schuengel, Paula Sterkenburg, Esmee Adam, Annet Ten Brug, Noud Frielink, Petri Embregts, Anne Tharner

During the COVID-19 pandemic, many people with intellectual disabilities living in care facilities could not receive visitors. Health authorities suggested the use of digital social contact as an alternative for in-person visits. We examined how people with intellectual disabilities living in care facilities experienced the use of digital social contact with their informal social network throughout 2020. Residents, their relatives, volunteer visitors, direct support staff, and care facility managers (N = 283) completed an online questionnaire, of whom 35 participated in an interview. Video calling and in-person visits were among the most common forms of staying in touch. Experiences with digital social contact depended on residents' abilities and support needs, and on preconditions, such as staff availability. The first phases of the pandemic led to experiences of possibilities and benefits of using digital social contact as complementary to in-person contact for people with different levels of intellectual disability, also after the pandemic.

在新冠肺炎大流行期间,许多居住在护理机构的智障人士无法接待访客。卫生当局建议使用数字社交联系作为面对面访问的替代方式。我们研究了生活在护理机构中的智障人士在2020年全年如何通过其非正式社交网络体验数字社交联系。居民、他们的亲属、志愿者访客、直接支持人员和护理机构管理人员(N=283)完成了一份在线问卷,其中35人参加了访谈。视频通话和面对面访问是保持联系的最常见形式。数字社交接触的体验取决于居民的能力和支持需求,以及员工可用性等先决条件。疫情的第一阶段,也在疫情之后,让不同程度智力残疾的人体验到了使用数字社交联系作为面对面接触的补充的可能性和好处。
{"title":"Pushing the boundaries of digital social contact: Experiences of people with disabilities and their social networks during the COVID-19 pandemic.","authors":"Lianne Bakkum, Lotte Piekema, Linda Douma, Carlo Schuengel, Paula Sterkenburg, Esmee Adam, Annet Ten Brug, Noud Frielink, Petri Embregts, Anne Tharner","doi":"10.1177/17446295231210021","DOIUrl":"10.1177/17446295231210021","url":null,"abstract":"<p><p>During the COVID-19 pandemic, many people with intellectual disabilities living in care facilities could not receive visitors. Health authorities suggested the use of digital social contact as an alternative for in-person visits. We examined how people with intellectual disabilities living in care facilities experienced the use of digital social contact with their informal social network throughout 2020. Residents, their relatives, volunteer visitors, direct support staff, and care facility managers (<i>N</i> = 283) completed an online questionnaire, of whom 35 participated in an interview. Video calling and in-person visits were among the most common forms of staying in touch. Experiences with digital social contact depended on residents' abilities and support needs, and on preconditions, such as staff availability. The first phases of the pandemic led to experiences of possibilities and benefits of using digital social contact as complementary to in-person contact for people with different levels of intellectual disability, also after the pandemic.</p>","PeriodicalId":46904,"journal":{"name":"Journal of Intellectual Disabilities","volume":" ","pages":"940-961"},"PeriodicalIF":1.5,"publicationDate":"2024-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11585181/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"50163231","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Intellectual deficits and restoration to competency to stand trial: An examination of IQ cut off scores. 智力缺陷和恢复接受审判的能力:一项IQ考试扣分。
IF 1.5 4区 医学 Q2 EDUCATION, SPECIAL Pub Date : 2024-12-01 Epub Date: 2023-11-27 DOI: 10.1177/17446295231218782
Karen Grabowski, Robert Morgan, Faith Scanlon

Intellectual functioning impacts defendants' competence to stand trial, though research on this population remains limited. This study replicated and advanced prior work, focusing on defendants' demographic, clinical, cognitive, and criminal justice variables and their association with length of hospitalization and restoration determinations. Participants were 74 male and female criminal defendants in a midwestern state who were adjudicated incompetent to stand trial, had a diagnosis related to intellectual deficits, and completed competency restoration. Most defendants (83.7%) were restored to competency. Demographic factors were unrelated to restoration outcomes; violence of alleged offense predicted shorter hospitalization. Receiver Operating Characteristic Curve analyses determined an IQ score cut-off of 63.5 for which participants were of greater likelihood to be determined restored, providing guidance on the likelihood of restoration for defendants with intellectual disability related diagnoses. Specifically, this score can be used with clinical data to inform competency determinations for defendants with cognitive deficits.

智力功能影响被告接受审判的能力,尽管对这一人群的研究仍然有限。这项研究复制并推进了先前的工作,重点关注被告的人口统计学、临床、认知和刑事司法变量及其与住院时间和康复决定的关系。参与者是中西部一个州的74名男性和女性刑事被告,他们被裁定没有能力受审,被诊断为智力缺陷,并完成了能力恢复。大多数被告(83.7%)被恢复诉讼能力。人口统计学因素与修复结果无关;据称犯罪的暴力预示着更短的住院时间。接受者工作特征曲线分析确定了智商分数的临界值为63.5,参与者更有可能被确定恢复,这为患有智力残疾相关诊断的被告提供了恢复可能性的指导。具体来说,这个分数可以与临床数据一起使用,以告知认知缺陷被告的能力决定。
{"title":"Intellectual deficits and restoration to competency to stand trial: An examination of IQ cut off scores.","authors":"Karen Grabowski, Robert Morgan, Faith Scanlon","doi":"10.1177/17446295231218782","DOIUrl":"10.1177/17446295231218782","url":null,"abstract":"<p><p>Intellectual functioning impacts defendants' competence to stand trial, though research on this population remains limited. This study replicated and advanced prior work, focusing on defendants' demographic, clinical, cognitive, and criminal justice variables and their association with length of hospitalization and restoration determinations. Participants were 74 male and female criminal defendants in a midwestern state who were adjudicated incompetent to stand trial, had a diagnosis related to intellectual deficits, and completed competency restoration. Most defendants (83.7%) were restored to competency. Demographic factors were unrelated to restoration outcomes; violence of alleged offense predicted shorter hospitalization. Receiver Operating Characteristic Curve analyses determined an IQ score cut-off of 63.5 for which participants were of greater likelihood to be determined restored, providing guidance on the likelihood of restoration for defendants with intellectual disability related diagnoses. Specifically, this score can be used with clinical data to inform competency determinations for defendants with cognitive deficits.</p>","PeriodicalId":46904,"journal":{"name":"Journal of Intellectual Disabilities","volume":" ","pages":"1038-1052"},"PeriodicalIF":1.5,"publicationDate":"2024-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"138446541","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Assessing inter-rater agreement of the intellectual disability-frailty index short form: A descriptive pilot study. 评估智力残疾虚弱指数简表的评分者间一致性:一项描述性试点研究。
IF 1.5 4区 医学 Q2 EDUCATION, SPECIAL Pub Date : 2024-12-01 Epub Date: 2023-11-03 DOI: 10.1177/17446295231213436
Heather Hirst, Jennifer Campbell, Samantha Chamberlin, Ibukun Olagunju, Frank Bird, James K Luiselli

Frailty is a health concern for many adults with intellectual disability and should be measured to detect at-risk conditions, monitor disease, plan treatment, and gauge mortality. This descriptive pilot study evaluated measurement consistency (inter-rater agreement) of the Intellectual Disability-Frailty Index Short Form among multiple assessors with 20 adults (M age = 48.3 years) who had intellectual and multiple disabilities. Agreement percentages were computed for (a) non-frail, pre-frail, and frail categories derived from total index scores, and (b) each of 17 deficits listed on the form. Low average inter-rater agreement (<85%) was obtained on the index frail categories, several of the assessed deficits had acceptable inter-rater agreement (84.2-100%), while the majority of deficits were associated with moderate-to-low agreement percentages. Though research supports the Intellectual Disability-Frailty Index Short Form as a valid and practical frailty assessment instrument, our findings suggest that full-scale inter-rater agreement must be improved by adding more specificity to the form, clarifying instructions for assessors, and providing competency-based training in assessment implementation.

虚弱是许多智力残疾成年人的健康问题,应该进行测量,以检测风险状况、监测疾病、计划治疗和衡量死亡率。这项描述性试点研究评估了20名患有智力和多重残疾的成年人(男性年龄=48.3岁)的多名评估员对智力残疾脆弱指数简表的测量一致性(评分者之间的一致性)。协议百分比是为(a)根据总指数得分得出的非脆弱、前期脆弱和脆弱类别计算的,以及(b)表格上列出的17个赤字中的每一个(
{"title":"Assessing inter-rater agreement of the intellectual disability-frailty index short form: A descriptive pilot study.","authors":"Heather Hirst, Jennifer Campbell, Samantha Chamberlin, Ibukun Olagunju, Frank Bird, James K Luiselli","doi":"10.1177/17446295231213436","DOIUrl":"10.1177/17446295231213436","url":null,"abstract":"<p><p>Frailty is a health concern for many adults with intellectual disability and should be measured to detect at-risk conditions, monitor disease, plan treatment, and gauge mortality. This descriptive pilot study evaluated measurement consistency (inter-rater agreement) of the Intellectual Disability-Frailty Index Short Form among multiple assessors with 20 adults (<i>M</i> age = 48.3 years) who had intellectual and multiple disabilities. Agreement percentages were computed for (a) non-frail, pre-frail, and frail categories derived from total index scores, and (b) each of 17 deficits listed on the form. Low average inter-rater agreement (<85%) was obtained on the index frail categories, several of the assessed deficits had acceptable inter-rater agreement (84.2-100%), while the majority of deficits were associated with moderate-to-low agreement percentages. Though research supports the Intellectual Disability-Frailty Index Short Form as a valid and practical frailty assessment instrument, our findings suggest that full-scale inter-rater agreement must be improved by adding more specificity to the form, clarifying instructions for assessors, and providing competency-based training in assessment implementation.</p>","PeriodicalId":46904,"journal":{"name":"Journal of Intellectual Disabilities","volume":" ","pages":"1109-1117"},"PeriodicalIF":1.5,"publicationDate":"2024-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"71487311","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Jordanian mothers' perspectives on having their intellectually disabled daughters undergo hysterectomies: A qualitative study. 约旦母亲对智障女儿接受子宫切除手术的看法:定性研究。
IF 1.5 4区 医学 Q2 EDUCATION, SPECIAL Pub Date : 2024-12-01 Epub Date: 2023-07-27 DOI: 10.1177/17446295231192735
Nawaf S Al-Zyoud, Mizyed A Hyassat, Osamah M Bataineh

The current study aims to identify Jordanian mothers' perspectives on their intellectually disabled daughters receiving hysterectomies. A qualitative methodology was employed; for the study sample, twelve mothers were chosen using a snowballing technique. Semi-structured interviews were carried out, and thematic analysis was utilized. Two main themes arose from the data analysis process: the reasons why mothers made the decision for their daughters to have hysterectomies - which included fears about unwanted pregnancy and keeping family honor - despite this conflicting with their religious and cultural values, and their concerns about their daughters having hysterectomies. Based on these findings, some implications and suggestions for future research were provided.

本研究旨在了解约旦母亲对智障女儿接受子宫切除手术的看法。本研究采用了定性方法;通过滚雪球技术选择了 12 位母亲作为研究样本。研究人员进行了半结构式访谈,并采用了主题分析法。数据分析过程中产生了两大主题:母亲决定让女儿切除子宫的原因--包括担心意外怀孕和保持家族荣誉--尽管这与她们的宗教和文化价值观相冲突;以及她们对女儿切除子宫的担忧。根据这些研究结果,为今后的研究提供了一些启示和建议。
{"title":"Jordanian mothers' perspectives on having their intellectually disabled daughters undergo hysterectomies: A qualitative study.","authors":"Nawaf S Al-Zyoud, Mizyed A Hyassat, Osamah M Bataineh","doi":"10.1177/17446295231192735","DOIUrl":"10.1177/17446295231192735","url":null,"abstract":"<p><p>The current study aims to identify Jordanian mothers' perspectives on their intellectually disabled daughters receiving hysterectomies. A qualitative methodology was employed; for the study sample, twelve mothers were chosen using a snowballing technique. Semi-structured interviews were carried out, and thematic analysis was utilized. Two main themes arose from the data analysis process: the reasons why mothers made the decision for their daughters to have hysterectomies - which included fears about unwanted pregnancy and keeping family honor - despite this conflicting with their religious and cultural values, and their concerns about their daughters having hysterectomies. Based on these findings, some implications and suggestions for future research were provided.</p>","PeriodicalId":46904,"journal":{"name":"Journal of Intellectual Disabilities","volume":" ","pages":"898-908"},"PeriodicalIF":1.5,"publicationDate":"2024-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"10253103","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Application of the positive and negative affect scale in Chinese children with intellectual disability. 正、负情感量表在中国智力残疾儿童中的应用。
IF 1.5 4区 医学 Q2 EDUCATION, SPECIAL Pub Date : 2024-12-01 Epub Date: 2023-10-28 DOI: 10.1177/17446295231208399
Xiaoyu Song, Minjie Ma, Xue Ma, Ke Zhao, Long Gao, Tingzhao Wang

The purpose is to test the applicability of the Positive and Negative Affect Scale (PANAS) to Chinese children with intellectual disabilities. The study was done by distributing the questionnaire to the parents through teachers online. Asked the parents to fill out the scale based on their observations of their children's daily life. The correlation coefficients between each item and the total score of the corresponding dimension ranged from 0.52 to 0.77. Factor analysis confirmed the establishment of the PA-NA two-factor structure of affect. A significant positive correlation existed between the NA and the challenging behavior. The Cronbach's α coefficient and split-half reliability of the PA scale were 0.87 and 0.85, and the Cronbach's α coefficient and split-half reliability of the NA scale were 0.85 and 0.83, respectively, higher than 0.80. It was concluded that PANAS has good applicability in Chinese children with intellectual disabilities.

目的是检验积极和消极情感量表(PANAS)在中国智力残疾儿童中的适用性。这项研究是通过教师在线向家长分发问卷来完成的。要求家长根据他们对孩子日常生活的观察填写量表。各项目与相应维度总分的相关系数在0.52至0.77之间。因子分析证实了PA-NA双因子情感结构的建立。NA与挑战行为之间存在显著的正相关。PA量表的克朗巴赫α系数和分半信度分别为0.87和0.85,NA量表的克朗巴赫α因子和分半可靠性分别为0.85和0.83,高于0.80。结果表明,PANAS在中国智力残疾儿童中具有良好的适用性。
{"title":"Application of the positive and negative affect scale in Chinese children with intellectual disability.","authors":"Xiaoyu Song, Minjie Ma, Xue Ma, Ke Zhao, Long Gao, Tingzhao Wang","doi":"10.1177/17446295231208399","DOIUrl":"10.1177/17446295231208399","url":null,"abstract":"<p><p>The purpose is to test the applicability of the Positive and Negative Affect Scale (PANAS) to Chinese children with intellectual disabilities. The study was done by distributing the questionnaire to the parents through teachers online. Asked the parents to fill out the scale based on their observations of their children's daily life. The correlation coefficients between each item and the total score of the corresponding dimension ranged from 0.52 to 0.77. Factor analysis confirmed the establishment of the PA-NA two-factor structure of affect. A significant positive correlation existed between the NA and the challenging behavior. The Cronbach's α coefficient and split-half reliability of the PA scale were 0.87 and 0.85, and the Cronbach's α coefficient and split-half reliability of the NA scale were 0.85 and 0.83, respectively, higher than 0.80. It was concluded that PANAS has good applicability in Chinese children with intellectual disabilities.</p>","PeriodicalId":46904,"journal":{"name":"Journal of Intellectual Disabilities","volume":" ","pages":"1079-1094"},"PeriodicalIF":1.5,"publicationDate":"2024-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"66784466","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Good life in old age: Qualitative interviews about ageing with older adults with mild intellectual disability, prior to an educational intervention. 老年美好生活:在教育干预之前,对患有轻度智力残疾的老年人进行关于老龄化的定性采访。
IF 1.5 4区 医学 Q2 EDUCATION, SPECIAL Pub Date : 2024-12-01 Epub Date: 2023-11-11 DOI: 10.1177/17446295231213689
Marianne Holmgren, Gerd Ahlström

Background: Knowledge about ageing from the perspective of people with intellectual disability is extremely scarce, which means a lack of evidence-based interventions for healthy ageing adjusted to their needs.

Aim: To investigate how people with intellectual disability experience ageing, prior to an educational intervention.

Methods: Twenty-six persons with mild intellectual disability, age 42-74 (mean 61.3) were interviewed and the text was analyzed qualitatively.

Results: The main findings are reflected in the themes Live for today - tomorrow you are old and Need of support to enable a meaningful ageing. The participants avoided thinking about ageing, which they associated with retirement, loneliness and social isolation, increased need for help in everyday life, worsening health and death. Meaningful ageing meant continuance of leisure activities and working as long as possible.

Conclusions: Interventions to prepare people with mild intellectual disability for healthy ageing must take into account these people's loneliness.

背景:从智障人士的角度来看,关于老龄化的知识极为匮乏,这意味着缺乏针对健康老龄化的循证干预措施来适应他们的需求。目的:调查智障人士在接受教育干预之前是如何经历衰老的。方法:对26名年龄42~74岁(平均61.3岁)的轻度智力残疾患者进行访谈,并对文本进行定性分析。结果:主要发现反映在主题“为今天而活——明天你就老了”和“需要支持才能实现有意义的衰老”中。参与者避免考虑衰老,因为衰老与退休、孤独和社会孤立、日常生活中对帮助的需求增加、健康和死亡恶化有关。有意义的老龄化意味着继续进行休闲活动并尽可能长时间地工作。结论:为轻度智障患者做好健康老龄化准备的干预措施必须考虑到这些人的孤独感。
{"title":"Good life in old age: Qualitative interviews about ageing with older adults with mild intellectual disability, prior to an educational intervention.","authors":"Marianne Holmgren, Gerd Ahlström","doi":"10.1177/17446295231213689","DOIUrl":"10.1177/17446295231213689","url":null,"abstract":"<p><strong>Background: </strong>Knowledge about ageing from the perspective of people with intellectual disability is extremely scarce, which means a lack of evidence-based interventions for healthy ageing adjusted to their needs.</p><p><strong>Aim: </strong>To investigate how people with intellectual disability experience ageing, prior to an educational intervention.</p><p><strong>Methods: </strong>Twenty-six persons with mild intellectual disability, age 42-74 (mean 61.3) were interviewed and the text was analyzed qualitatively.</p><p><strong>Results: </strong>The main findings are reflected in the themes <i>Live for today - tomorrow you are old</i> and <i>Need of support to enable a meaningful ageing</i>. The participants avoided thinking about ageing, which they associated with retirement, loneliness and social isolation, increased need for help in everyday life, worsening health and death. Meaningful ageing meant continuance of leisure activities and working as long as possible.</p><p><strong>Conclusions: </strong>Interventions to prepare people with mild intellectual disability for healthy ageing must take into account these people's loneliness.</p>","PeriodicalId":46904,"journal":{"name":"Journal of Intellectual Disabilities","volume":" ","pages":"1118-1136"},"PeriodicalIF":1.5,"publicationDate":"2024-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11585186/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"72211300","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Decoding intervention for young students with mild intellectual disabilities: A single-subject design study. 青少年轻度智障学生的解码干预:单受试者设计研究。
IF 1.5 4区 医学 Q2 EDUCATION, SPECIAL Pub Date : 2024-12-01 Epub Date: 2023-11-11 DOI: 10.1177/17446295231208819
Linda Fälth, Heidi Selenius, Christina Sand, Idor Svensson

Students with intellectual disabilities need more time and explicit instruction to develop word decoding. Most previous research on interventions among these students is performed in English. Therefore, the current study examined the impact of a word-decoding intervention in Swedish on individual students with intellectual disabilities. A single-subject-design study was conducted with five students with mild intellectual disability in the fourth grade. They needed to enhance decoding, and Swedish was their first language. Their word and non-word decoding was measured during the baseline and intervention phases. The intervention with the Wolff Intensive Program was delivered by special education teachers supporting phonemic decoding and reading fluency training during 25 sessions. All five students developed their decoding as they decoded more words in a given time (NAP=0.84-1.00) and decreased their decoding errors in both word and nonword decoding (NAP=0.72-1.00). The results are promising but need to be confirmed in additional studies.

有智力障碍的学生需要更多的时间和明确的指导来发展单词解码。以前对这些学生进行干预的研究大多是用英语进行的。因此,本研究考察了瑞典语单词解码干预对智力残疾学生个体的影响。本研究以五名四年级轻度智障学生为研究对象,采用单受试者设计。他们需要提高解码能力,瑞典语是他们的第一语言。在基线和干预阶段测量他们的单词和非单词解码。沃尔夫强化课程的干预由特殊教育教师提供,支持音位解码和阅读流畅性训练,为期25次。所有五名学生在给定时间内解码更多的单词(NAP=0.84-1.00),并且在单词和非单词解码中减少了解码错误(NAP=0.72-1.00),从而提高了解码能力。结果很有希望,但需要在进一步的研究中得到证实。
{"title":"Decoding intervention for young students with mild intellectual disabilities: A single-subject design study.","authors":"Linda Fälth, Heidi Selenius, Christina Sand, Idor Svensson","doi":"10.1177/17446295231208819","DOIUrl":"10.1177/17446295231208819","url":null,"abstract":"<p><p>Students with intellectual disabilities need more time and explicit instruction to develop word decoding. Most previous research on interventions among these students is performed in English. Therefore, the current study examined the impact of a word-decoding intervention in Swedish on individual students with intellectual disabilities. A single-subject-design study was conducted with five students with mild intellectual disability in the fourth grade. They needed to enhance decoding, and Swedish was their first language. Their word and non-word decoding was measured during the baseline and intervention phases. The intervention with the Wolff Intensive Program was delivered by special education teachers supporting phonemic decoding and reading fluency training during 25 sessions. All five students developed their decoding as they decoded more words in a given time (NAP=0.84-1.00) and decreased their decoding errors in both word and nonword decoding (NAP=0.72-1.00). The results are promising but need to be confirmed in additional studies.</p>","PeriodicalId":46904,"journal":{"name":"Journal of Intellectual Disabilities","volume":" ","pages":"1095-1108"},"PeriodicalIF":1.5,"publicationDate":"2024-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11585185/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"89719981","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Adults with intellectual disabilities' satisfaction regarding their hospitalization: A correlational descriptive study. 智障成年人对住院治疗的满意度:一项相关描述性研究。
IF 1.5 4区 医学 Q2 EDUCATION, SPECIAL Pub Date : 2024-12-01 Epub Date: 2023-08-11 DOI: 10.1177/17446295231193461
Morgane Gilliand, Ariane Bernier Emch, Béatrice Perrenoud

When hospitalized, adults with intellectual disabilities are more anxious and have more unmet needs than the general population. Despite these problems, studies report contradictory results about their satisfaction with hospitalization. The aim of this study was to determine the level of satisfaction of adults with intellectual disabilities regarding their hospital care and the factors associated with satisfaction. An analysis of the Patient Satisfaction Scale (PSS) and Cognitive Appraisal of Health Scale (CAHS) instruments completed by adults with intellectual disabilities, or their caregivers, after hospitalization was done. The 32 participants' mean PSS score was 3.6/5, with means of 13.3/25 and 8.7/25 on the CAHS' 'harm/loss' dimension and 'challenge' dimension, respectively. None of the factors studied was associated with the total PSS score. Adults with intellectual disabilities were not fully satisfied with their hospital care, experiencing challenges and losses. These findings call for a rethink of the care provided to this population.

住院时,智障成年人比普通人群更焦虑,有更多未满足的需求。尽管存在这些问题,但研究报告称,他们对住院治疗的满意度存在矛盾。本研究的目的是确定智障成年人对医院护理的满意度以及与满意度相关的因素。对智障成年人或其护理人员在住院后完成的患者满意度量表(PSS)和健康认知评估量表(CAHS)进行了分析。32名参与者的平均PSS得分为3.6/5,在CAHS的“伤害/损失”维度和“挑战”维度上分别为13.3/25和8.7/25。所研究的因素均与PSS总分无关。智障成年人对他们的医院护理并不完全满意,经历了挑战和损失。这些发现要求重新思考为这一人群提供的护理。
{"title":"Adults with intellectual disabilities' satisfaction regarding their hospitalization: A correlational descriptive study.","authors":"Morgane Gilliand, Ariane Bernier Emch, Béatrice Perrenoud","doi":"10.1177/17446295231193461","DOIUrl":"10.1177/17446295231193461","url":null,"abstract":"<p><p>When hospitalized, adults with intellectual disabilities are more anxious and have more unmet needs than the general population. Despite these problems, studies report contradictory results about their satisfaction with hospitalization. The aim of this study was to determine the level of satisfaction of adults with intellectual disabilities regarding their hospital care and the factors associated with satisfaction. An analysis of the Patient Satisfaction Scale (PSS) and Cognitive Appraisal of Health Scale (CAHS) instruments completed by adults with intellectual disabilities, or their caregivers, after hospitalization was done. The 32 participants' mean PSS score was 3.6/5, with means of 13.3/25 and 8.7/25 on the CAHS' 'harm/loss' dimension and 'challenge' dimension, respectively. None of the factors studied was associated with the total PSS score. Adults with intellectual disabilities were not fully satisfied with their hospital care, experiencing challenges and losses. These findings call for a rethink of the care provided to this population.</p>","PeriodicalId":46904,"journal":{"name":"Journal of Intellectual Disabilities","volume":" ","pages":"1137-1154"},"PeriodicalIF":1.5,"publicationDate":"2024-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11585189/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9975166","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Video prompting procedures to teach science electronic journaling to students with intellectual disability: Leveraging students with disabilities' learning endeavors. 向智障学生教授科学电子日志的视频提示程序:利用残障学生的学习努力。
IF 1.5 4区 医学 Q2 EDUCATION, SPECIAL Pub Date : 2024-12-01 Epub Date: 2023-11-17 DOI: 10.1177/17446295231215640
Huda A Almumen

The purpose of this research exploration was to investigate the impact of video prompting procedures on the acquisition of electronic journaling skill, and how to create and present scientific knowledge previously learned by students with intellectual disabilities. Using single-subject, multiple probe, and multiple baseline-design across four participants with moderate intellectual disabilities, results revealed that participants could increase their number of correct, completed steps for creating their electronic journals for the science classes. Results also showcased that participants had an opportunity to encounter the tablet-based, evidence-based instructional strategy to learn how to introduce their scientific pieces, talk about and communicate their ideas and thoughts. Implications for future research and practice were provided.

本研究旨在探讨视讯提示程序对智障学生电子日志技能习得的影响,以及如何创造和呈现智障学生先前学过的科学知识。通过对四名中度智力残疾的参与者进行单主题、多探针和多基线设计,结果显示参与者可以增加他们为科学课程创建电子期刊的正确完成步骤的数量。结果还显示,参与者有机会接触基于平板电脑的循证教学策略,学习如何介绍他们的科学作品,谈论和交流他们的想法和想法。对未来的研究和实践提出了启示。
{"title":"Video prompting procedures to teach science electronic journaling to students with intellectual disability: Leveraging students with disabilities' learning endeavors.","authors":"Huda A Almumen","doi":"10.1177/17446295231215640","DOIUrl":"10.1177/17446295231215640","url":null,"abstract":"<p><p>The purpose of this research exploration was to investigate the impact of video prompting procedures on the acquisition of electronic journaling skill, and how to create and present scientific knowledge previously learned by students with intellectual disabilities. Using single-subject, multiple probe, and multiple baseline-design across four participants with moderate intellectual disabilities, results revealed that participants could increase their number of correct, completed steps for creating their electronic journals for the science classes. Results also showcased that participants had an opportunity to encounter the tablet-based, evidence-based instructional strategy to learn how to introduce their scientific pieces, talk about and communicate their ideas and thoughts. Implications for future research and practice were provided.</p>","PeriodicalId":46904,"journal":{"name":"Journal of Intellectual Disabilities","volume":" ","pages":"994-1021"},"PeriodicalIF":1.5,"publicationDate":"2024-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"136399734","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
期刊
Journal of Intellectual Disabilities
全部 Acc. Chem. Res. ACS Applied Bio Materials ACS Appl. Electron. Mater. ACS Appl. Energy Mater. ACS Appl. Mater. Interfaces ACS Appl. Nano Mater. ACS Appl. Polym. Mater. ACS BIOMATER-SCI ENG ACS Catal. ACS Cent. Sci. ACS Chem. Biol. ACS Chemical Health & Safety ACS Chem. Neurosci. ACS Comb. Sci. ACS Earth Space Chem. ACS Energy Lett. ACS Infect. Dis. ACS Macro Lett. ACS Mater. Lett. ACS Med. Chem. Lett. ACS Nano ACS Omega ACS Photonics ACS Sens. ACS Sustainable Chem. Eng. ACS Synth. Biol. Anal. Chem. BIOCHEMISTRY-US Bioconjugate Chem. BIOMACROMOLECULES Chem. Res. Toxicol. Chem. Rev. Chem. Mater. CRYST GROWTH DES ENERG FUEL Environ. Sci. Technol. Environ. Sci. Technol. Lett. Eur. J. Inorg. Chem. IND ENG CHEM RES Inorg. Chem. J. Agric. Food. Chem. J. Chem. Eng. Data J. Chem. Educ. J. Chem. Inf. Model. J. Chem. Theory Comput. J. Med. Chem. J. Nat. Prod. J PROTEOME RES J. Am. Chem. Soc. LANGMUIR MACROMOLECULES Mol. Pharmaceutics Nano Lett. Org. Lett. ORG PROCESS RES DEV ORGANOMETALLICS J. Org. Chem. J. Phys. Chem. J. Phys. Chem. A J. Phys. Chem. B J. Phys. Chem. C J. Phys. Chem. Lett. Analyst Anal. Methods Biomater. Sci. Catal. Sci. Technol. Chem. Commun. Chem. Soc. Rev. CHEM EDUC RES PRACT CRYSTENGCOMM Dalton Trans. Energy Environ. Sci. ENVIRON SCI-NANO ENVIRON SCI-PROC IMP ENVIRON SCI-WAT RES Faraday Discuss. Food Funct. Green Chem. Inorg. Chem. Front. Integr. Biol. J. Anal. At. Spectrom. J. Mater. Chem. A J. Mater. Chem. B J. Mater. Chem. C Lab Chip Mater. Chem. Front. Mater. Horiz. MEDCHEMCOMM Metallomics Mol. Biosyst. Mol. Syst. Des. Eng. Nanoscale Nanoscale Horiz. Nat. Prod. Rep. New J. Chem. Org. Biomol. Chem. Org. Chem. Front. PHOTOCH PHOTOBIO SCI PCCP Polym. Chem.
×
引用
GB/T 7714-2015
复制
MLA
复制
APA
复制
导出至
BibTeX EndNote RefMan NoteFirst NoteExpress
×
0
微信
客服QQ
Book学术公众号 扫码关注我们
反馈
×
意见反馈
请填写您的意见或建议
请填写您的手机或邮箱
×
提示
您的信息不完整,为了账户安全,请先补充。
现在去补充
×
提示
您因"违规操作"
具体请查看互助需知
我知道了
×
提示
现在去查看 取消
×
提示
确定
Book学术官方微信
Book学术文献互助
Book学术文献互助群
群 号:481959085
Book学术
文献互助 智能选刊 最新文献 互助须知 联系我们:info@booksci.cn
Book学术提供免费学术资源搜索服务,方便国内外学者检索中英文文献。致力于提供最便捷和优质的服务体验。
Copyright © 2023 Book学术 All rights reserved.
ghs 京公网安备 11010802042870号 京ICP备2023020795号-1