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Healthcare Professionals' Views of Supportive Care Needs for Chinese, Korean, and Vietnamese Americans with Metastatic Cancer. 医护人员对患有转移性癌症的华裔、韩裔和越南裔美国人的支持性护理需求的看法。
IF 2.4 4区 心理学 Q1 ETHNIC STUDIES Pub Date : 2024-09-01 DOI: 10.1037/aap0000329
Jacqueline H J Kim, Kauser Ahmed, Sang-Hoon Ahn, Becky Nguyen, Peter Phung, Shirley Pan, Qian Lu, Marjorie Kagawa Singer, Annette L Stanton

The supportive care needs of people with metastatic cancer, particularly Asian Americans, are understudied. Distinct psychosocial support needs may exist across ethnocultural groups with Confucian-heritage values and norms. Cultural factors may shape how adults approach their oncologic care. This qualitative study represents the perspectives of 15 experienced healthcare professionals about the supportive care needs of Chinese-, Korean-, and Vietnamese-heritage (CKV) adults with metastatic solid cancers. Reflexive thematic analysis was conducted with transcripts from three semi-structured focus groups and five parallel-format individual interviews. Inductive coding and iterative theme development resulted in four themes describing the types of needs (basic, care-related, mental health, relational trust) that should be met for CKV patients with metastatic cancer, which may fall through the gaps when the healthcare system and patient's differing cultural contexts collide. In conclusion, greater involvement of psychosocial care specialists with cultural expertise is essential to promote patients' and families' well-being, prevent care disparities, and better support the healthcare team. Systemic changes that increase workforce diversity, reduce language and insurance barriers, and allow healthcare professionals to build relational trust with patients, are needed to improve quality of life for CKV patients with metastatic cancer.

对转移性癌症患者,尤其是亚裔美国人的支持性护理需求研究不足。具有儒家传统价值观和规范的民族文化群体可能存在不同的社会心理支持需求。文化因素可能会影响成年人如何对待他们的肿瘤治疗。本定性研究从 15 位经验丰富的医疗保健专业人员的角度,探讨了中国、韩国和越南血统(CKV)成人转移性实体癌患者的支持性护理需求。我们对三个半结构化焦点小组和五个平行形式个人访谈的记录进行了反思性主题分析。归纳编码和迭代主题发展产生了四个主题,分别描述了转移性癌症的 CKV 患者应满足的需求类型(基本需求、护理相关需求、心理健康需求、关系信任需求),当医疗保健系统和患者的不同文化背景发生冲突时,这些需求可能会出现缺口。总之,具有文化专业知识的社会心理护理专家的更多参与对于促进患者和家属的福祉、防止护理差异以及更好地支持医疗团队至关重要。为提高转移性癌症 CKV 患者的生活质量,需要进行系统性改革,以增加劳动力的多样性、减少语言和保险障碍,并允许医疗专业人员与患者建立相互信任的关系。
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引用次数: 0
Socioeconomic Status, Stress, and Cancer-related Fatigue among Chinese American Breast Cancer Survivors: The Mediating Roles of Sleep. 美籍华人乳腺癌幸存者的社会经济地位、压力和癌症相关疲劳:睡眠的中介作用
IF 2.4 4区 心理学 Q1 ETHNIC STUDIES Pub Date : 2024-09-01 DOI: 10.1037/aap0000330
William Tsai, Jacqueline H J Kim, Nelson C Y Yeung, Qian Lu

Sleep-related issues may be one significant pathway through which socioeconomic disadvantages are associated with worse self-reported states in cancer. The present study examined the relationships between SES (income and education level) and two important biobehavioral factors (cancer-related fatigue and perceived stress), as well as mediation through sleep-related problems (sleep medication use, daytime dysfunction, and sleep quality) among a sample of Chinese American breast cancer survivors. 136 Chinese American breast cancer survivors completed a self-reported questionnaire. We found that relative to those with the lowest annual household income, those with the highest income have lower perceived stress. This relationship was mediated by lower sleep quality. Relative to those with a high school degree or less, those with graduate degrees have lower daytime dysfunction, and in turn lower cancer-related fatigue. Our findings point to the importance of addressing sleep-related issues, perceived stress, and cancer-related fatigue among Chinese American breast cancer survivors with low SES backgrounds.

与睡眠相关的问题可能是社会经济劣势与癌症患者自我报告的较差状态相关联的一个重要途径。本研究以美籍华人乳腺癌幸存者为样本,研究了社会经济地位(收入和教育水平)与两个重要生物行为因素(癌症相关疲劳和感知压力)之间的关系,以及通过睡眠相关问题(睡眠药物使用、日间功能障碍和睡眠质量)进行调解的情况。136 名华裔乳腺癌幸存者填写了一份自我报告问卷。我们发现,与家庭年收入最低的人相比,收入最高的人感知到的压力较低。这种关系通过较低的睡眠质量来调节。相对于高中或高中以下学历者,研究生学历者的日间功能障碍较低,进而与癌症相关的疲劳感也较低。我们的研究结果表明,在社会经济地位较低的华裔乳腺癌幸存者中,解决睡眠相关问题、感知压力和癌症相关疲劳问题非常重要。
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引用次数: 0
Discussion of Emotions Among Newly Diagnosed Non-Hispanic White and Chinese American Patients With Breast Cancer and Their Oncologists. 新确诊的非西班牙裔白人和华裔美国人乳腺癌患者及其肿瘤医生对情绪的讨论。
IF 2.4 4区 心理学 Q1 ETHNIC STUDIES Pub Date : 2024-09-01 DOI: 10.1037/aap0000325
Charlene Chao-Li Kuo, Pamela A Saunders, Hsinyi Hsiao, Suh Chen Hsiao, Tian Han, Judy Huei-Yu Wang

This qualitative study analyzed how Chinese American (CA) and non-Hispanic White (NHW) breast cancer patients and their oncologists communicated about patients' emotional concerns. Data included twenty-four recordings of clinical encounters between oncologists and four CA and eight NHW women with a new breast cancer diagnosis between 2013 and 2015. Using an interactional sociolinguistics approach to discourse analysis, we examined how CA and NHW patients and their oncologists initiated conversations about patients' emotions. We also categorized oncologists' responses by whether oncologists turned toward, turned away, or remained neutral to patients' emotions. When bringing up emotions with oncologists, NHW patients brought up social and personal life topics, whereas CA patients only brought up biomedical topics. We also observed that oncologists initiated discussions about emotions with only English-speaking patients of both racial groups. There were no observed differences in how oncologists remained neutral to or turned away from both CA and NHW patients' emotional expressions. When oncologists turned away from patients' emotions, they did so to solve administrative or biomedical problems. In conclusion, the findings suggest that CA patients' racial backgrounds and the language spoken during the encounters may influence how patients and oncologists initiate discussion about patients' emotions. Furthermore, the findings suggest that oncologists remain neutral and turn away from CA and NHW patients' emotions in similar ways. This study provides preliminary data for more comprehensive investigations of Asian American cancer patients' actual communication with their providers regarding emotions and treatment decisions to facilitate patient-provider communication quality.

这项定性研究分析了美籍华人(CA)和非西班牙裔白人(NHW)乳腺癌患者及其肿瘤医生如何就患者的情感问题进行沟通。研究数据包括肿瘤学家与四名美籍华人和八名非西班牙裔白人乳腺癌新确诊患者在 2013 年至 2015 年间的 24 次临床接触录音。我们采用互动社会语言学方法进行话语分析,研究了长者和非长者患者与肿瘤医生如何就患者的情绪展开对话。我们还对肿瘤学家的反应进行了分类,即肿瘤学家对患者的情绪是转向、回避还是保持中立。在与肿瘤医生谈论患者情绪时,NHW 患者提到了社会和个人生活话题,而 CA 患者只提到了生物医学话题。我们还观察到,肿瘤学家只与两个种族群体中讲英语的患者讨论情绪问题。在肿瘤学家对长者和非长者患者的情绪表达保持中立或回避方面,我们没有观察到任何差异。当肿瘤学家回避病人的情绪时,他们是为了解决行政或生物医学问题。总之,研究结果表明,CA 患者的种族背景和会面时的语言可能会影响患者和肿瘤学家如何开始讨论患者的情绪。此外,研究结果表明,肿瘤学家对 CA 和 NHW 患者的情绪保持中立和回避的方式相似。这项研究为更全面地调查亚裔美国人癌症患者与他们的医疗服务提供者在情绪和治疗决定方面的实际沟通情况提供了初步数据,从而提高患者与医疗服务提供者之间的沟通质量。
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引用次数: 0
A Community-Based Cervical Cancer Education and Navigation Program for Korean American Women. 针对美籍韩裔妇女的社区宫颈癌教育和导航计划。
IF 2.4 4区 心理学 Q1 ETHNIC STUDIES Pub Date : 2024-09-01 DOI: 10.1037/aap0000324
Alison C Brecher, Elizabeth A Handorf, Yin Tan, Joanne Rhee, Charles Kim, Grace X Ma, Carolyn Y Fang

In the United States (US), rates of cervical cancer screening among Asian American women (notably Korean American women) lag far behind other populations. Thus, guided by the Health Belief Model, we developed a multi-component intervention to enhance Korean American women's knowledge and beliefs about screening and to increase screening uptake. The intervention group (N=341) received a culturally-relevant cancer education program and navigation services. The control group (N=335) received a similar program on cervical cancer risk and screening, along with information about free/low-cost screening sites. Women's knowledge and beliefs were measured at baseline and post-program, and screening behavior was assessed at 12-months post-program. It was hypothesized that the intervention would lead to positive changes in health beliefs and knowledge about cervical cancer and screening, which were then evaluated as potential mediators of the intervention on screening behavior. From pre- to post-program, the intervention group reported significantly greater increases in knowledge (p<0.01) and perceived risk (p=0.02) and significantly greater decreases in perceived barriers (p<0.001) compared to the control group. However, changes in knowledge and health beliefs did not mediate intervention effects on screening behavior. Use of navigation services was associated with greater odds of obtaining screening (OR=3.15, 95% CI=2.28-4.01, p<0.001) and attenuated the significant effect of group assignment (intervention vs. control) on screening behavior to non-significance. In conclusion, although our intervention program was effective in improving women's knowledge and beliefs about screening, delivery of navigation services was the critical component in increasing cervical cancer screening rates in this underserved population.

在美国,亚裔美国妇女(尤其是韩裔美国妇女)的宫颈癌筛查率远远落后于其他人群。因此,在健康信念模型的指导下,我们制定了一项多成分干预措施,以增强韩裔美国妇女对筛查的了解和信念,并提高筛查率。干预组(人数=341)接受了与文化相关的癌症教育计划和导航服务。对照组(人数=335)接受类似的宫颈癌风险和筛查项目,以及免费/低成本筛查场所的信息。对妇女的知识和信念进行了基线和计划后测量,并在计划后 12 个月对筛查行为进行了评估。根据假设,干预措施将使宫颈癌和筛查方面的健康信念和知识发生积极变化,然后将其作为干预措施对筛查行为的潜在中介因素进行评估。从计划前到计划后,干预组报告的知识增加幅度明显更大(pp=0.02),感知到的障碍减少幅度明显更大(pp=0.01)。
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引用次数: 0
Patient COUNTS: A pilot navigation program for Asian American cancer patients. 患者重要:针对亚裔美国人癌症患者的试点导航计划。
IF 2.4 4区 心理学 Q1 ETHNIC STUDIES Pub Date : 2024-09-01 DOI: 10.1037/aap0000319
Janet N Chu, Janice Y Tsoh, Salma Shariff-Marco, Laura Allen, Debora Oh, Mei-Chin Kuo, Ching Wong, Hoan Bui, Junlin Chen, Angeline Truong, Katarina Wang, Andrea Hwang, Feng Ming Li, Carmen Ma, Scarlett L Gomez, Tung T Nguyen

Many Asian American cancer patients face barriers to cancer care but little is known about their navigational needs. We designed and implemented a pilot study to provide culturally- and linguistically-appropriate navigation for Asian American cancer patients. We recruited Asian American adults age 21+ years, who spoke English, Cantonese, Mandarin, or Vietnamese, with newly diagnosed, stage I-III colorectal, liver, or lung cancer in the Northern California Bay Area. Participants were assigned a language-concordant patient navigator, who provided support and resources over 6 months. Surveys were administered at baseline, 3-, and 6-months to assess sociodemographic characteristics, healthcare access, quality of life (FACT-G), and cancer care needs. Participants' mean age was 65 years (range 38-81); 62% were men, 67% spoke Chinese, and 75% reported limited English proficiency. Forty-two percent of participants had lung, 38% colorectal, and 21% liver cancer. Of 24 participants who enrolled, 67% completed the program and 75% completed standard of care cancer treatment. The average total FACT-G score was 72.6 (SD 17) at baseline, 68.0 (SD 20) at 3 months, and 69.9 (SD 22) at 6 months. All participants reported that the program was culturally appropriate and would recommend it. Asian American cancer patients in a patient navigation program reported lower quality of life compared to the general adult cancer population. Even with navigation, 75% of participants reported completing standard of care treatment. While participants were satisfied with the program, more research is needed to address the quality of cancer care Asian American cancer patients receive.

许多美籍亚裔癌症患者面临癌症治疗的障碍,但对他们的导航需求却知之甚少。我们设计并实施了一项试点研究,为美籍亚裔癌症患者提供文化和语言上适宜的导航。我们在北加州湾区招募了 21 岁以上、讲英语、粤语、普通话或越南语的亚裔成人,他们都是新诊断的 I-III 期结直肠癌、肝癌或肺癌患者。参与者被指派了一名语言一致的患者导航员,由其在 6 个月内提供支持和资源。在基线、3 个月和 6 个月时进行了调查,以评估社会人口特征、医疗保健获取途径、生活质量(FACT-G)和癌症护理需求。参与者的平均年龄为 65 岁(38-81 岁不等);62% 为男性,67% 讲中文,75% 表示英语水平有限。42%的参与者患有肺癌,38%患有结肠直肠癌,21%患有肝癌。在 24 名参加者中,67% 的人完成了项目,75% 的人完成了标准癌症治疗。FACT-G 的平均总分基线为 72.6 分(标准差 17 分),3 个月时为 68.0 分(标准差 20 分),6 个月时为 69.9 分(标准差 22 分)。所有参与者都认为该项目符合他们的文化背景,并愿意推荐该项目。与普通成年癌症患者相比,参加患者导航计划的亚裔癌症患者的生活质量较低。即使有了导航,仍有 75% 的参与者表示完成了标准护理治疗。虽然参与者对该项目表示满意,但还需要进行更多的研究,以了解亚裔美国癌症患者所接受的癌症护理的质量。
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引用次数: 0
Developing the Meaning-Centered Program for Chinese Americans with Advanced Cancer: Applying Cultural Adaptation Frameworks. 为晚期癌症的美籍华人开发以意义为中心的项目:应用文化适应框架。
IF 2.4 4区 心理学 Q1 ETHNIC STUDIES Pub Date : 2024-09-01 DOI: 10.1037/aap0000318
Florence Lui, Zhaoyi Chen, Yunshan Niu, William Breitbart, Francesca Gany, Jennifer Leng

Asian Americans have surpassed Hispanics as the fastest-growing racial/ethnic group in the United States and Chinese Americans are the largest Asian American subgroup. Cancer is the leading cause of death among Chinese Americans while heart disease remains the leading cause of death in the U.S. overall. Foreign-born immigrants are more likely to be diagnosed with advanced stage cancers than their native-born counterparts. Patients with advanced cancer have specific psychosocial needs, such as end-of-life concerns and existential distress. Meaning-Centered Psychotherapy (MCP), which enhances a sense of meaning in life to increase QOL, is among the most promising psychosocial treatments for advanced cancer patients, having demonstrated efficacy in several randomized controlled trials. Our preliminary qualitative work suggested a meaning-centered intervention was acceptable but required adaptation to ensure ecological validity among Chinese cancer patients. This paper presents the cultural and linguistic adaptation of Meaning-Centered Program for Chinese Americans with advanced cancer (MCP-Ch), which was informed by the Ecological Validity Model (EVM) and Psychotherapy Adaptation and Modification Framework (PAMF) for cultural adaptation of evidence-based interventions. Implementation considerations, which will be assessed in the next phase of the project, are also discussed. MCP-Ch is used as a case example to illustrate how to adapt culturally syntonic and sustainable evidence-based psychosocial interventions for racial/ethnic minority cancer populations.

亚裔美国人已超过西班牙裔美国人,成为美国增长最快的种族/族裔群体,而华裔美国人则是最大的亚裔美国人亚群体。癌症是华裔美国人的主要死因,而心脏病仍然是美国人的主要死因。与本地出生的移民相比,外国出生的移民更有可能被诊断为癌症晚期。晚期癌症患者有特殊的社会心理需求,如临终关怀和生存困扰。以意义为中心的心理疗法(MCP)可增强患者的生命意义感,从而提高其生活质量,是针对晚期癌症患者的最有前途的社会心理疗法之一,在多项随机对照试验中均证明了其疗效。我们的初步定性研究表明,以意义为中心的干预是可以接受的,但需要进行调整以确保在中国癌症患者中的生态有效性。本文介绍了 "以意义为中心的美国华裔晚期癌症患者项目"(MCP-Ch)在文化和语言方面的调整,该调整参考了生态效度模型(EVM)和心理治疗适应和修改框架(PAMF),用于循证干预的文化适应。此外,还讨论了项目下一阶段将评估的实施注意事项。MCP-Ch 被用作一个案例,说明如何针对少数种族/族裔癌症人群,调整具有文化同步性和可持续性的循证心理干预。
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引用次数: 0
Secondary traumatic stress, financial stress, and the role of coping in understanding Southeast Asian American mental health. 继发性创伤压力、经济压力和应对措施在了解东南亚裔美国人心理健康方面的作用。
IF 2.4 4区 心理学 Q1 ETHNIC STUDIES Pub Date : 2024-07-25 DOI: 10.1037/aap0000345
N. Truong, Lydia HaRim Ahn, Matthew J. Miller
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引用次数: 0
Intersecting kapwa, resilience, and empowerment: A case study of Filipinos in Hawai‘i during the COVID-19 pandemic. 卡普瓦、复原力和赋权的交叉:COVID-19 大流行期间夏威夷菲律宾人的案例研究。
IF 2.4 4区 心理学 Q1 ETHNIC STUDIES Pub Date : 2024-07-18 DOI: 10.1037/aap0000348
Jethro Macaraeg, Clifford S. Bersamira
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引用次数: 0
Internalized racism and Asian American mental health. 内化的种族主义与亚裔美国人的心理健康。
IF 2.4 4区 心理学 Q1 ETHNIC STUDIES Pub Date : 2024-07-18 DOI: 10.1037/aap0000347
Danielle Godon-Decoteau, Alice A. Frye, Karen L. Suyemoto
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引用次数: 0
A qualitative study of Asian American adolescents’ experiences of support during the COVID-19 and racism syndemic. 亚裔美国青少年在 COVID-19 和种族主义综合征期间获得支持的定性研究。
IF 2.4 4区 心理学 Q1 ETHNIC STUDIES Pub Date : 2024-07-18 DOI: 10.1037/aap0000342
Annabelle L. Atkin, Lydia HaRim Ahn, Jacqueline Yi, Jocelyn Li
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引用次数: 0
期刊
Asian American Journal of Psychology
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