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Patient involvement in the development of the Danish surgical breast cancer patient pathway – An action research project 丹麦乳腺癌症手术患者路径开发中的患者参与——一项行动研究项目
IF 1.9 4区 管理学 Q3 MANAGEMENT Pub Date : 2020-10-13 DOI: 10.1177/1476750320960819
Ingrid Annette Zøylner, P. Kirkegaard, P. Christiansen, K. Lomborg
Although patient involvement is on the political agenda, the influence on clinical practice is poorly described. The aim of this study was to explore and evaluate the participatory process of involving patients and relatives in development of a surgical breast cancer patient pathway. The overall design was insider action research and included two Danish surgical breast cancer clinics. In dialogue meetings patients, relatives, and healthcare professionals (HCPs) discussed suggestions for improving the pathway. Patients and relatives were satisfied with the pathway organisation in general. However, suggestions related to information, communication, and choice of treatment were presented. In response to this, a patient decision aid was developed, tested, and implemented, and HCPs increased focus on male relatives, and made minor changes to the pathway. Participants were satisfied with the participatory process, however, recommendations for future dialogue meetings included shortening the follow-up period, using a skilled facilitator, reminding HCPs being open-minded, and emphasizing for patients and relatives that participation may require a surplus of mental resources. Overall, recommendations on patient involvement obtained from this project could, due to their general relevance, be implemented in clinical settings other than breast cancer. Furthermore, action research proved a suitable design for research on patient involvement.
尽管患者参与已列入政治议程,但对临床实践的影响却很少被描述。本研究的目的是探索和评估患者和亲属参与癌症手术患者路径发展的参与过程。总体设计是内部行动研究,包括两家丹麦癌症外科诊所。在对话会议上,患者、亲属和医疗保健专业人员(HCP)讨论了改善该途径的建议。患者和亲属总体上对通路组织感到满意。然而,提出了与信息、沟通和治疗选择有关的建议。为此,开发、测试和实施了一种患者决策辅助工具,HCP增加了对男性亲属的关注,并对该途径进行了微小的改变。参与者对参与过程感到满意,但对未来对话会议的建议包括缩短随访时间,使用熟练的调解人,提醒HCP持开放态度,并向患者和亲属强调参与可能需要多余的精神资源。总体而言,从该项目获得的关于患者参与的建议,由于其普遍相关性,可以在癌症以外的临床环境中实施。此外,行动研究被证明是研究患者参与的合适设计。
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引用次数: 2
An Indigenous and Western paradigm to understand gestational diabetes mellitus: Reflections and insights 理解妊娠期糖尿病的本土和西方范式:反思和见解
IF 1.9 4区 管理学 Q3 MANAGEMENT Pub Date : 2020-10-13 DOI: 10.1177/1476750320960822
Joanne Whitty-Rogers, B. Cameron, V. Caine
Indigenous women face many barriers to maternal care during pregnancy in Canada. A participatory study was conducted in two First Nations Communities in Nova Scotia, Canada to gain new knowledge about Mi’kmaw women’s experiences of living with gestational diabetes mellitus (GDM). Relational ethics helped guide this journey. In this paper we describe how Indigenous and Western approaches were used to understand Mi’kmaw women’s experiences with GDM. It was important to us that the research methodology facilitated building relationship and trust. This led to an openness and willingness of the women to express their concerns and offer ways to address GDM in their communities. The challenges of blending Indigenous approaches with Western research are also discussed in the paper. The foundational principles that were used during this research included: 1) Staying true to my word; 2) Mutual Trust; 3) Mutual Respect; 4) Being Flexible; 5) Being Non judgemental; 6) Working in partnership; 7) Taking time to explain; 8) Promoting autonomy; and 9) Genuine connectiveness. The findings revealed that the research assisted the Mi’kmaw women in understanding their experiences in new ways and helped to build capacity so that they could take action to improve their health, while sustaining their Mi’kmaw culture.
在加拿大,土著妇女在怀孕期间面临许多产妇护理障碍。在加拿大新斯科舍省的两个原住民社区进行了一项参与性研究,以获得有关米克莫妇女妊娠期糖尿病(GDM)生活经历的新知识。关系伦理学帮助引导了这段旅程。在这篇论文中,我们描述了土著和西方的方法是如何被用来理解米克莫妇女的GDM经历的。研究方法有助于建立关系和信任,这对我们来说很重要。这导致妇女公开并愿意表达她们的关切,并提供解决社区GDM问题的方法。本文还讨论了将土著方法与西方研究相结合所面临的挑战。在这项研究中使用的基本原则包括:1)信守诺言;2) 相互信任;3) 相互尊重;4) 灵活;5) 不带偏见的;6) 合作;7) 花时间解释;8) 促进自治;以及9)真正的连接性。研究结果表明,这项研究有助于缅甸妇女以新的方式了解自己的经历,并有助于建立能力,使她们能够采取行动改善健康,同时维持缅甸文化。
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引用次数: 4
Knowledge mobilization: Stepping into interdependent and relational space using co-creation 知识动员:利用共同创造进入相互依赖和关系的空间
IF 1.9 4区 管理学 Q3 MANAGEMENT Pub Date : 2020-10-12 DOI: 10.1177/1476750320960810
Yvonne Skipper, D. Pepler
In recent years, there has been a growing interest in using co-creation approaches, with academics and partners working together to create research and interventions to achieve impact. Action research typically starts with the question ‘how can we improve this situation?’ and then co-creates knowledge with and not on or for people. This approach contrasts with conventional approaches in which academics create knowledge and then disseminate it to users via conferences, reports etc. The co-creative approach involves a shift in academics’ thinking and approaches. The success of co-creation depends on the academic shifting from being self-focussed and independent to being other-focussed and interdependent. In this paper, we outline the theoretical background that has informed our thinking and practices related to knowledge mobilization, and our novel relational approach. We illustrate our approach using two co-created projects, focused on enhancing early literacy and supporting mothers with substance use problems. We hope that this will help others consider when it may be appropriate to use a co-creative approach and how to engage in this co-creation process, including awareness of common barriers and benefits.
近年来,人们对使用共同创造方法越来越感兴趣,学术界和合作伙伴共同努力,开展研究和干预措施,以实现影响。行动研究通常以“我们如何改善这种情况?”’然后与人共同创造知识,而不是依靠人或为人创造知识。这种方法与传统的方法形成对比,传统的方法是学者创造知识,然后通过会议、报告等方式传播给用户。共同创造的方法涉及到学术界思维和方法的转变。共同创造的成功取决于学术从以自我为中心、独立为中心到以他人为中心、相互依赖的转变。在本文中,我们概述了理论背景,告知我们的思想和实践有关的知识动员,以及我们的新的关系方法。我们用两个共同创建的项目来说明我们的方法,重点是提高早期读写能力和支持有药物使用问题的母亲。我们希望这将有助于其他人考虑何时使用共同创造方法以及如何参与这种共同创造过程,包括意识到共同的障碍和利益。
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引用次数: 13
Deconstructing positionality in conflict resolution: Reflections from first-person action research in Pakistan and the South Caucasus 解构冲突解决中的位置性:来自巴基斯坦和南高加索第一人称行动研究的反思
IF 1.9 4区 管理学 Q3 MANAGEMENT Pub Date : 2020-10-12 DOI: 10.1177/1476750320960803
Alexander Cromwell, M. Tadevosyan
This article explores the role of first-person action research in uncovering how positionality influences conflict resolution practice. Specifically, it examines the experiences of two scholar-practitioners conducting first-person action research in different conflict/post-conflict settings. The case studies include first-person action research on encounter programs with Pakistani youth and first-person action research examining peacebuilding engagement in the South Caucasus. We highlight the significant challenge posed by positionality for scholar-practitioners in our practice and research, particularly as members of one of the conflict parties, and present first-person action research as a constructive approach to enhance self-reflexivity and improve our practices. We argue that first-person action research highlights the fluidity of positionality and the value of building insider relationships to enhance conflict resolution practice. Concurrently, this research approach illuminates challenges resulting from insider identities because of assumed agreement. Thus, first-person action research is useful for improving conflict resolution practice because it highlights the various benefits and drawbacks of practitioners’ positionalities.
本文探讨了第一人称行为研究在揭示位置性如何影响冲突解决实践中的作用。具体来说,它考察了两位学者实践者在不同冲突/冲突后环境中进行第一人称行动研究的经验。案例研究包括针对巴基斯坦青年偶遇方案的第一人称行动研究,以及审查南高加索地区建设和平参与的第一人称行动研究。我们强调了学者实践者在我们的实践和研究中所面临的重大挑战,特别是作为冲突各方之一的成员,并将第一人称行动研究作为一种建设性的方法来增强自我反思和改进我们的实践。我们认为,第一人称行动研究强调了位置的流动性和建立内部关系以增强冲突解决实践的价值。同时,该研究方法阐明了由于假设的一致性而导致的内部身份所带来的挑战。因此,第一人称行动研究对于改善冲突解决实践是有用的,因为它突出了从业者的各种优势和劣势。
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引用次数: 1
Upscaling community transformation 升级社区转型
IF 1.9 4区 管理学 Q3 MANAGEMENT Pub Date : 2020-10-10 DOI: 10.1177/1476750320960328
K. Glenzer, S. Divecha
This themed issue offers seven examples of upscaling community transformation, a rich opportunity for action research (AR) to contribute to the United Nations Sustainable Development Goal #17: re-vitalize global partnerships. Covid-19 has revealed anew the structural and political relationships that deepen inequality and hobble human flourishing. Local organizing around antiracist and anticolonial agendas, climate justice, and caring capitalism is at unprecedented and inspiring scales worldwide, yet history shows how gains erode over long periods of time:
本期主题期刊提供了七个扩大社区转型的例子,这是一个丰富的行动研究机会,有助于实现联合国可持续发展目标17:重振全球伙伴关系。新冠肺炎再次揭示了加深不平等、阻碍人类繁荣的结构性和政治关系。围绕反种族主义和反殖民议程、气候正义和关爱资本主义的地方组织在世界范围内以前所未有的、鼓舞人心的规模进行,但历史表明,收益是如何长期侵蚀的:
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引用次数: 0
Feminist cooperative inquiry: Grassroots women define and deepen empowerment through dialogue 女权主义合作探究:基层妇女通过对话界定和深化赋权
IF 1.9 4区 管理学 Q3 MANAGEMENT Pub Date : 2020-09-26 DOI: 10.1177/1476750320960807
S. Khandekar, Vinaya Ghewde, Anita Kamble, Anwar Khan, Pallavi Palav, Dwarka Pawar, Sheela Pawar, Mumtaz Shaikh, L. Lingam
This paper is an account of feminist research influenced by Cooperative Inquiry (CI) described as Feminist Cooperative Inquiry. A team of grassroots women leaders-turned-co-researchers, from different marginalised social locations (on gender, caste, class, education, livelihood axes) in India, developed this methodology to collectively analyse their own empowering journeys to make meanings of empowerment. The diversity of co-researchers in this research led to making additions or deviations in the CI protocol. By bringing in nonliterate or low-literate women from marginalised groups as coresearchers, the research added political value by extending centre of collective knowledge building towards marginalised groups. The paper also discusses how the research processes further empowered the coresearchers for their own interpretations, abstractions and their selfdefined viewpoint in the domain of empowerment. Calling empowerment as primarily an ‘internal reflective process’ co-researchers defied oversimplified, quantifiable proxy indicators as any measure of empowerment.
本文论述了合作探究对女性主义研究的影响,称之为女性主义合作探究。来自印度不同边缘化社会位置(性别、种姓、阶级、教育、生计轴)的一个由基层女性领导人转变为联合研究人员的团队开发了这种方法,以集体分析她们自己的赋权之旅,从而理解赋权的意义。在这项研究中,合作研究人员的多样性导致了CI协议的添加或偏离。通过引入来自边缘化群体的非文盲或低识字率女性作为核心研究者,该研究通过将集体知识建设中心扩展到边缘化群体,增加了政治价值。本文还讨论了研究过程如何进一步授权核心研究者在授权领域中进行自己的解释、抽象和自我定义的观点。联合研究人员称赋权主要是一个“内部反思过程”,这与过于简单化、可量化的代理指标作为赋权的任何衡量标准背道而驰。
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引用次数: 2
Participating in social exclusion: A reflexive account of collaborative research and researcher identities in the field 参与社会排斥:合作研究和研究者身份在该领域的反身性解释
IF 1.9 4区 管理学 Q3 MANAGEMENT Pub Date : 2020-09-20 DOI: 10.1177/1476750320954530
S. Newitt, N. Thomas
This paper offers a critical reflexive perspective on a Participatory Action Research project with young people at a site of ‘advanced urban marginality’ (Wacquant, 2008). Its purpose is to explore the ways in which habitus based inequalities in the research field (Bourdieu, 1977) contributed to a parallel process of marginalisation and exclusion in the act of participating. More specifically, we examine how a particular professional academic research identity and taxonomy of participatory social research, animated by a benign intent, nonetheless exerted an ideological form of control over the enquiry, administering and recycling feelings of failure and marginalisation among participants - including the ‘professional’ researcher. To draw out the different ways this control took form, our analysis centres on a particular exchange within the group concerned with the distribution of a one-off financial stipend to participants. We endeavour to draw some conceptual insights in our exploration of this exchange, and in conclusion offer some ideas for a ‘good enough’ practice of action research undertaken in comparable socio-economic and psycho-cultural conditions.
本文对“先进城市边缘化”地区的年轻人参与行动研究项目提供了一个批判性的反思视角(Wacqunt,2008)。其目的是探索研究领域中基于习惯的不平等(Bourdieu,1977)如何在参与行为中促成边缘化和排斥的平行过程。更具体地说,我们研究了一种特定的专业学术研究身份和参与性社会研究的分类,在善意的激励下,如何在参与者(包括“专业”研究人员)中对调查、管理和回收失败和边缘化的感觉施加意识形态形式的控制。为了找出这种控制的不同形成方式,我们的分析集中在小组内的一个特定交流上,该交流涉及向参与者分配一次性财政津贴。我们努力在探索这种交流的过程中得出一些概念性的见解,最后为在类似的社会经济和心理文化条件下进行“足够好”的行动研究实践提供了一些想法。
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引用次数: 1
The promise and challenge of online action research: Notes from a study of self-motivated online music learners 在线行动研究的前景与挑战:来自自我激励的在线音乐学习者的研究笔记
IF 1.9 4区 管理学 Q3 MANAGEMENT Pub Date : 2020-09-01 DOI: 10.1177/1476750317698026
Catherine Schmidt-Jones
As a developer of online open education resources that provide basic information about Western music theory, notation, and acoustics, I undertook an action research project with the long-term goal of creating resources that were more accessible, particularly to independent learners pursuing their own music-making goals. In order to better understand the situations and perspectives of real-world learner stakeholders, I sought participants among the self-motivated users of my open education resources, offering active help in designing and carrying out inquiries based on their goals. Eleven long-term participants provided insights that have subsequently affected my efforts to design more accessible open education resources, but the course of the study also revealed tensions and challenges related to the online action research methodology. I have reported elsewhere the study results as they relate to online music education. This paper focuses on action research issues raised in the course of the study, including open versus closed online actions, reaching disadvantaged communities and learners, and consciousness-raising at a distance.
作为一名在线开放教育资源的开发者,我提供了关于西方音乐理论、符号和声学的基本信息,我承担了一个行动研究项目,其长期目标是创建更容易访问的资源,特别是对于追求自己音乐创作目标的独立学习者。为了更好地理解现实世界中学习者利益相关者的情况和观点,我在我的开放教育资源的自我激励用户中寻找参与者,根据他们的目标积极帮助设计和实施调查。11名长期参与者提供的见解后来影响了我设计更容易获得的开放教育资源的努力,但研究过程也揭示了与在线行动研究方法相关的紧张和挑战。我已经在其他地方报道了与在线音乐教育相关的研究结果。本文重点关注研究过程中提出的行动研究问题,包括开放与封闭的在线行动,接触弱势社区和学习者,以及远距离意识提高。
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引用次数: 8
Theoretical reflections on narrative in action research 动作研究中叙事的理论思考
IF 1.9 4区 管理学 Q3 MANAGEMENT Pub Date : 2020-09-01 DOI: 10.1177/1476750317748439
N. Toledano, Alistair R. Anderson
Narrative is an important tool for developing and writing up action research experiences. Its power lies in the fact that narrative construction and narrative recounting are fundamental human communication practices. Narratives are also knowledge producing devices, since they make sense of personal experiences and share that sense-giving with others. However, the twinned duality of narrative knowing (sense-making) and narrative telling (communicating that sense) has often caused narrative as a methodological approach to be disregarded or misunderstood. Our objective is to reflect on how we can best use the narrative method in action research by paying due attention to these issues. In doing so, we consider ontologies, epistemologies and key characteristics. We argue that what has been seen as a weakness in the narrative method, its deep subjectivity, can actually be employed as an analytical strength in action research. We show how examining explanations of context, inherent in narrative processes, can provide rich insights into the meanings of phenomena.
叙事是发展和总结行动研究经验的重要工具。它的力量在于叙事建构和叙事叙述是人类基本的交际实践。叙事也是产生知识的手段,因为它们能理解个人经历,并与他人分享这种意义。然而,叙事认知(感知)和叙事讲述(传达感知)的双重性往往导致叙事作为一种方法论方法被忽视或误解。我们的目标是反思如何通过适当关注这些问题,在行动研究中最好地使用叙事方法。在这样做的时候,我们考虑本体论、认识论和关键特征。我们认为,叙事方法中的一个弱点,即其深刻的主观性,实际上可以作为行动研究中的一种分析力量。我们展示了研究叙事过程中固有的语境解释如何为现象的含义提供丰富的见解。
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引用次数: 20
Participatory action research with ex-prisoners: Using Photovoice and one woman’s story told through poetry 对前囚犯的参与性行动研究:使用Photovoice和一位女性通过诗歌讲述的故事
IF 1.9 4区 管理学 Q3 MANAGEMENT Pub Date : 2020-09-01 DOI: 10.1177/1476750317719140
Michele Jarldorn, Deer
This paper provides an unexpected and extraordinary example of research data from a Photovoice project conducted with ex-prisoners in South Australia. It focusses on the contribution made by one of the participants who chose the pseudonym ‘Deer’. Deer joins me as a co-author, her voice shines in this paper, albeit through a pseudonym she chose for the project. Photovoice, a qualitative research method, uses a feminist framework and typically produces rich thick accounts of lives and experiences that cannot be adequately captured by quantitative research. Both qualitative and quantitative methods of research data collection each have merits, but qualitative approaches tend to engage the researcher, participant and later the reader on a more personal level. Moreover, unexpected findings are more likely to arise when researchers ask participants to express what they believe is important to their experience. This paper provides such an example, where the unexpected gift of poetry adds a deeper dimension to research findings.
这篇论文提供了一个意想不到的和非凡的研究数据的例子,来自于一个在南澳大利亚州与前囚犯进行的Photovoice项目。它关注的是其中一位选择笔名“鹿”的参与者所做的贡献。迪尔和我一起作为合著者,她的声音在这篇论文中闪耀,尽管是通过她为这个项目选择的笔名。Photovoice是一种定性研究方法,它使用女权主义框架,通常会对生活和经历进行丰富而厚重的描述,这是定量研究无法充分捕捉到的。研究数据收集的定性和定量方法各有优点,但定性方法倾向于在更个人的层面上吸引研究者、参与者和后来的读者。此外,当研究人员要求参与者表达他们认为对他们的经历重要的东西时,意想不到的发现更有可能出现。本文提供了这样一个例子,其中诗歌的意外礼物为研究结果增添了更深层次的维度。
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引用次数: 9
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Action Research
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